Damn right it becomes a huge problem but what can you do when for years medical professionals dismiss pelvic pain as “in your head”, “you’re too sensitive”, depression etc etc because the blood tests and imaging is fine?? I’m not talking about a general GP but specialists like gynaecologists, urogynaecologists and even pelvic floor specialists? Also, despite complaining for years about back pain nobody connected these two dots and realised that it’s PN until 20 years later.
Yes the video is well meaning. But I went to all those very specialists many different kinds and several different pelvic physical therapist. To no avail. It is a rare condition and is not well understood by medical professionals or if they do understand it they know how complex it is and they don't want to take the time to have to treat it when they're not going to get paid very much from the insurance companies.
Mine started after a few years of marathon running and an injury to my back. I then developed back pain and a clicking noise in my back. And my hips would get stuck sometimes. Then it was painful intercourse. A few years later a strange burning sensation on my posterior thighs and buttocks and inability to wear tight clothing. That was just the beginning. Every pelvic floor PT I went to had me doing relaxation exercises with some stretching, but I had already begun a vicious pain spasm cycle and nothing helped. Unfortunately I felt I had no other alternative but to go by medical imaging at that point and went on to have several unnecessary surgeries in a desperate attempt to stop the pain. As the years have gone on its only gotten worse. I have had constant daily high level pain for 4 years now. I just started seeing a sports rehab PT, and he has been very proactive. During my first session he did dry needling to my glutes and lower lumbar. This was the first time anyone has done this, and its the only thing I have ever noticed a difference with. Started doing some core strengthening and this week we are dry needling the obturator internus. Which is something I wish someone had tried 4 years ago. None of the pelvic PT's I had been to had ever seen anyone with nerve involvement like mine, and I went to probably 10 of them. It just seemed like there was no real plan of action. After watching this video I think I understand what you are trying to convey to people...don't ignore things that may seem small like some back pain and clicking because it can lead to much larger issues, and the more time that passes and it is not treated and corrected it becomes like a chain reaction in the body. Instability is now everywhere and before you know it your not walking right anymore, and muscles are tightening up and becoming overloaded compensating for others. And basically it turns into a big mess.But after watching this video now I feel like there is little hope for me to ever be pain free again.
I’ve gone to a neurologist, orthopedist and a urologist and they can’t figure it out. I told them about pudendal neuralgia and they look at me like I’m crazy. Things causing me to have ED issues and constipation. I’m ready to just give up
Pudendal Neuralgia, except for entrapment due to extreme physical injury (car crash etc.) is always TMS (Mind-Body Syndrome). Core Pelvic Floor Therapy does not recognize this, and the effectiveness of the treatment is thereby limited. I healed completely in just two months, after years of suffering, by following a TMS protocol.
@@jackiek4159 follow a TMS protocol, for example howard schubiners, or alan gordons. Theres books or online information on how to do it for free. I healed my pudendal neuralgia in 6 weeks after years of suffering. I have helped other people, and all have gotten rid of their pudendal neuralgia completely
Not at all. I believe everyone with the slightest sign and symptoms of pelvic floor should immediately be treated for pelvis balancing, breathing and functional movement. That won’t lead to more complex issues that some PN cases can be. I have treated many cases with PN successfully so you are right, this is not the end of the rope diagnosis. It just is more complex- that’s all. Email me what is going on with you and what you have done about it.
I have had Pudendal neuralgia for 1.5 years from onset of symtoms until now. Lately I have had good progress, thanks to a knowledgeable doctor. By your estimation, how long time usually passes before it is too late to cure?
I don’t know. Too many other factors influence the progression. Doing nothing about it only leads to it getting worse, however. What were some of the things you did that helped?
@@corepelvicfloortherapy Thank you kindly for a quick response. Using dilators with heat, sitting less and using a pillow with pelvic area cut out, sauna, swimming on my back, not lifting heavy things (like heavy pots and pans, internal trigger point release etc. Also baclofen and clonazepam helps alot now. My pudendal neuralgia has never been extreme, but always present and worse after sex. Do you do online video consultations perhaps? Best regards Jonas
@@jonas-j3h hi there i have had this about same time as you. Any suggestions? What kind if stretches does your doctors have you do? I live in a small town with no pelvic floor specialist 😢. Does it bother your bladder? What do you do for the pelvic floor? Please and thank you
I want thank you for taking the tme to explain how o avoid thi condition. Any chance you are located in Dalas/Fort Worth area? I have some isues with lower back pain
Hi! Could you please advise what doctor to see if you have burning sensation for about 3 weeks in your genitals? The gynecologist and proctologist didn't find any problem, so I am interested in what doctor I need to see next.
@@Kearnage1 I’m sorry to hear that. Acknowledging that I don’t know the specifics, I’ll say that injuries heal but neuroplastic pain can remain. I should have said that “long term PN is a mind-body condition”.
@@andrewfleming86Not the case in every situation. If the PN-related pain case is due to chronic entrapment (or continued compression), there is no opportunity for healing. The problem with your statement is that it is an over generalization, not that it is wrong. Further, your statement is also true of many other long-term pain conditions in which the injury heals yet the brain still registers the pain. I’d call that a brain-body illness, not mind-body illness, to avoid suggesting the pain is psychological in origin.
@@recipehacker9752 Thanks for the reply. You're right, I should refine my generalization... Chronic PN symptoms - without a structural cause - is a mind-body condition. I'm very well versed in mind-body conditions and approaches for recovery. I was hit hard by PN 2 years ago and used mind-body healing modalities to recover. And, yes, many conditions can be mind-body issues: back pain, neck pain, migraines/headaches, pelvic pain, irritable bowel syndrome, tinnitus, etc. Mind-body is the accepted term and used in dozens of books, hundreds of podcasts, RUclips videos and other success stories and by many many mind-body practitioners and coaches. Mind-body struggles can be neuroplastic as you are referring to after an initial injury, but they can also be psychosomatic in origin without any initial physical trauma. Thanks again and... Peace!
It's not a stress related issue if the nerve is crushed between the ligaments. And not just the nerve but the artery and the vein that go to that nerve crushed between the two ligaments along its course or severely trapped in the alcocks canal.
I’m dam near in tears listening to this especially about how doctors write it off as something else
Damn right it becomes a huge problem but what can you do when for years medical professionals dismiss pelvic pain as “in your head”, “you’re too sensitive”, depression etc etc because the blood tests and imaging is fine?? I’m not talking about a general GP but specialists like gynaecologists, urogynaecologists and even pelvic floor specialists? Also, despite complaining for years about back pain nobody connected these two dots and realised that it’s PN until 20 years later.
I am so sorry to hear that! That is my thought too.
Yes the video is well meaning. But I went to all those very specialists many different kinds and several different pelvic physical therapist. To no avail. It is a rare condition and is not well understood by medical professionals or if they do understand it they know how complex it is and they don't want to take the time to have to treat it when they're not going to get paid very much from the insurance companies.
Mine started after a few years of marathon running and an injury to my back. I then developed back pain and a clicking noise in my back. And my hips would get stuck sometimes. Then it was painful intercourse. A few years later a strange burning sensation on my posterior thighs and buttocks and inability to wear tight clothing. That was just the beginning. Every pelvic floor PT I went to had me doing relaxation exercises with some stretching, but I had already begun a vicious pain spasm cycle and nothing helped. Unfortunately I felt I had no other alternative but to go by medical imaging at that point and went on to have several unnecessary surgeries in a desperate attempt to stop the pain. As the years have gone on its only gotten worse. I have had constant daily high level pain for 4 years now. I just started seeing a sports rehab PT, and he has been very proactive. During my first session he did dry needling to my glutes and lower lumbar. This was the first time anyone has done this, and its the only thing I have ever noticed a difference with. Started doing some core strengthening and this week we are dry needling the obturator internus. Which is something I wish someone had tried 4 years ago. None of the pelvic PT's I had been to had ever seen anyone with nerve involvement like mine, and I went to probably 10 of them. It just seemed like there was no real plan of action. After watching this video I think I understand what you are trying to convey to people...don't ignore things that may seem small like some back pain and clicking because it can lead to much larger issues, and the more time that passes and it is not treated and corrected it becomes like a chain reaction in the body. Instability is now everywhere and before you know it your not walking right anymore, and muscles are tightening up and becoming overloaded compensating for others. And basically it turns into a big mess.But after watching this video now I feel like there is little hope for me to ever be pain free again.
I’ve gone to a neurologist, orthopedist and a urologist and they can’t figure it out. I told them about pudendal neuralgia and they look at me like I’m crazy. Things causing me to have ED issues and constipation. I’m ready to just give up
Can’t tell you much given that I don’t know about your condition.
Pudendal Neuralgia, except for entrapment due to extreme physical injury (car crash etc.) is always TMS (Mind-Body Syndrome). Core Pelvic Floor Therapy does not recognize this, and the effectiveness of the treatment is thereby limited. I healed completely in just two months, after years of suffering, by following a TMS protocol.
What is TMS? Magnetic stimulation? @jonasbcassel5193
How did you do this? 🙏🏻
@@shei924 tension myositis syndrome
@@jackiek4159 follow a TMS protocol, for example howard schubiners, or alan gordons. Theres books or online information on how to do it for free. I healed my pudendal neuralgia in 6 weeks after years of suffering. I have helped other people, and all have gotten rid of their pudendal neuralgia completely
Yes this was my case , I used pain free RUclips channel too help myself
Most do not catch early symptoms. So now that we have pudendal neuralgia it's too late? That's not helpful nor do I believe it's so.
Not at all. I believe everyone with the slightest sign and symptoms of pelvic floor should immediately be treated for pelvis balancing, breathing and functional movement. That won’t lead to more complex issues that some PN cases can be. I have treated many cases with PN successfully so you are right, this is not the end of the rope diagnosis. It just is more complex- that’s all. Email me what is going on with you and what you have done about it.
Hi I could really use some help
Had hysterectomy now I have this horrible problem went to Dr after Dr and physical therapy surgeries been 10 years of pure #ell
I went to dr in march my hosp appointment is end October
I have had Pudendal neuralgia for 1.5 years from onset of symtoms until now. Lately I have had good progress, thanks to a knowledgeable doctor. By your estimation, how long time usually passes before it is too late to cure?
I don’t know. Too many other factors influence the progression. Doing nothing about it only leads to it getting worse, however. What were some of the things you did that helped?
@@corepelvicfloortherapy Thank you kindly for a quick response. Using dilators with heat, sitting less and using a pillow with pelvic area cut out, sauna, swimming on my back, not lifting heavy things (like heavy pots and pans, internal trigger point release etc. Also baclofen and clonazepam helps alot now. My pudendal neuralgia has never been extreme, but always present and worse after sex. Do you do online video consultations perhaps? Best regards Jonas
@@jonas-j3h I don’t. In my opinion Pelvic Floor dysfunction therapy is best done in person. Where are you located?
@@jonas-j3h hi there i have had this about same time as you. Any suggestions? What kind if stretches does your doctors have you do? I live in a small town with no pelvic floor specialist 😢. Does it bother your bladder? What do you do for the pelvic floor? Please and thank you
Guten nacht.konnen sie bitte mir helfen.ich habe problem.ich habe pudandel neuralgia
Doctor please I feel numbness during intercourse.does it means I have pudendal nerve damage??.
PN is painful
I want thank you for taking the tme to explain how o avoid thi condition. Any chance you are located in Dalas/Fort Worth area? I have some isues with lower back pain
I am in Irvine California
Do you do virtual therapy? None of my local doctors or therapists are knowledgeable about this.
This is not something that can be done virtually. Where are you located?
@@corepelvicfloortherapy I am Baton Rouge, LA.
@@Nettamorphosis let me look around and see if I can get a referral
Drs dismissed my PN and I lost time! Drs are not taught what to look for or say it’s unlikely or rare. I’m finally getting help but too months. 😢
Hi! Could you please advise what doctor to see if you have burning sensation for about 3 weeks in your genitals? The gynecologist and proctologist didn't find any problem, so I am interested in what doctor I need to see next.
Any infection?
@@corepelvicfloortherapy nothing. I just cannot sit because it burns. So, if I have pudendal neuralgia, what doctor can treat it and make a diagnosis?
@@Mila-ve9dw find a urogynecologist if you haven't already.
PN is a mind-body condition. Treatment for the symptoms - PT, etc. is helpful to relax the affected muscles, but get at the stress-related source.
Not always. Mine was an injury
@@Kearnage1 I’m sorry to hear that. Acknowledging that I don’t know the specifics, I’ll say that injuries heal but neuroplastic pain can remain. I should have said that “long term PN is a mind-body condition”.
@@andrewfleming86Not the case in every situation. If the PN-related pain case is due to chronic entrapment (or continued compression), there is no opportunity for healing. The problem with your statement is that it is an over generalization, not that it is wrong. Further, your statement is also true of many other long-term pain conditions in which the injury heals yet the brain still registers the pain. I’d call that a brain-body illness, not mind-body illness, to avoid suggesting the pain is psychological in origin.
@@recipehacker9752 Thanks for the reply. You're right, I should refine my generalization... Chronic PN symptoms - without a structural cause - is a mind-body condition. I'm very well versed in mind-body conditions and approaches for recovery. I was hit hard by PN 2 years ago and used mind-body healing modalities to recover. And, yes, many conditions can be mind-body issues: back pain, neck pain, migraines/headaches, pelvic pain, irritable bowel syndrome, tinnitus, etc. Mind-body is the accepted term and used in dozens of books, hundreds of podcasts, RUclips videos and other success stories and by many many mind-body practitioners and coaches. Mind-body struggles can be neuroplastic as you are referring to after an initial injury, but they can also be psychosomatic in origin without any initial physical trauma. Thanks again and... Peace!
It's not a stress related issue if the nerve is crushed between the ligaments. And not just the nerve but the artery and the vein that go to that nerve crushed between the two ligaments along its course or severely trapped in the alcocks canal.
Chiropractor?
Watch Dr Bergman put pudendal neuralgia RUclips