PNES is not only a psychological condition. There can also be a physiological cause. Mine were caused by an adverse reaction to medication. I have met others with a brain injury and another with pancreas disfunction whose injuries have caused non-epileptic in my small town, also not psychologically induced. "Older ideas that FND is “all psychological” and that the diagnosis is made only when someone has normal tests have changed since the mid-2000s. The new understanding, including modern neuroscientific studies, has shown that FND is not a diagnosis of exclusion. It has specific clinical features of its own and is a disorder of the nervous system functioning in which many perspectives are necessary. These vary a lot from person to person. In some people, psychological factors are important, in others they are not." ... "In some psychological factors such as past trauma or stress at the time of symptom onset in FND are important in understanding how the brain has gone wrong. In others the presence of a problem like migraine or a physical injury may be the most important thing." From the National Organization for Rare Diseases (NORD) website. rarediseases.org/rare-diseases/fnd/
The only way as a mental health professional I found out about this was my clients saying they had been diagnosed and told they need CBT. I don't think it is about negative opinions just that what has happened that the news has travelled via people referred to the service rather than coming from initiatives from Neurologists to recruit mental health professionals to make us aware that this is an issue.
You really “tapped into an issue” regarding treatment. I am in northern Utah and have only met two psychologists who knows about (one says she has treated) “pseudo seizures”. My neurologist diagnosed me after I had mentioned a councilor suggested we look into PNES. He then ceased treatment and has since denied contact as if I were a inconvenience. I can’t find treatment anywhere and know more about psychogenic events than the doctors I do see. I have to refer new doctors to my research before seeing them. So far I know more than anyone who has attempted to treat me. Hopefully my new psych is more well informed. She insists she has treated people with “pseudo seizures”.
I found these videos today after being diagnosed in 2021 and sadly there still is not much information or help available. I’ve been passed from one dr to another and am still waiting for CBT and Talk therapy 🤷♀️
I was diagnosed by a neurologist that the non epileptic seizures were psychogenic I suffered with them for 35 years last couple of years they stopped I sufferers alot of mental emotional abuse from my father mabe contributed to having them
Its because the central nervous system is faulty, not working properly and for me there's nothing much u can do about it. Go with your body treat it as and when required. (FND and various symptoms).
hi m amanshi i know wanna know that my boy friend fell down but am confused its seizure or faint..after that we seek the medical treatment and his MRI is normal n EEG too is normal...but the things is that does he really has epilepsy though he didn't got another attack but while is he sleep he moves alot means he normally moves alot in sleepl and am worried a lot......please reply me am wating...
There is insufficient evidence to conclude that the manner in which my alarm clock goes off each morning is epileptic (alpha = 0.05). Thus, I have a putatively non-epileptic alarm clock. A two-tailed test indicates, however, that the ringing of my alarm appears to follow the idealized pattern indicating it is an "event" with the same threshold. Hence, the data indicate that the ringing of my alarm each morning is, at least with the typically accepted statistical thresholds, an event, and, moreover, one whose nature is apparently not epileptic. Phenomena with this exact combination of characteristics, such as the ringing of my alarm, are aptly called non-epileptic events. No but seriously. Maybe one barrier to treatment on both patient and clinician sides is using such a meticulously contrived name that only contextually implies the general diagnostic and research categories it falls under. They're events, sure. The specific type of event they are is "seizure." Seizures were first described a bit before epileptiform voltage traces on EEG. Sure, one might wish to be strictly phylogenetic and re-classify things that were once unambiguously "seizures" because we know more about seizure pathophys now. After all, certain types of focal seizures were ADDED to the definition of the term "seizure," so why not duly remove others? Well, the asininity of the resulting terms is by itself a robustly sufficient reason not to... It's okay to classify the things that are treated-symptoms experienced by people-based on presentation. God help us if we decide to classify everything based on physiological imaging, especially when clinical EEG montages are roughly as sophisticated as open-air electric arc lamps. It's actually even worse than that, though, for such a buffoonish name as "non-epileptic events," because the "non-epileptic" bit, you know, does the actual work. They are not non-epileptic collagen fibers, they are not non-epileptic air superiority fighter aircraft, they are non-epileptic seizures. The classification as "events," subsequent to already identifying their physiological basis (non-epileptic), actually does exactly what clinicians (absolutely appropriately) emphasize should not be done: it marginalizes them, and thus the people suffering from them. But wait, there's more! I forgot about "psychogenic!" Alright, in fairness, this one actually is a meaningful specifier because there are non-psychogenic, non-epileptic seizures, as from strychnine toxicity, which is substantially spinally mediated, not classically epileptiform, but about as emphatically non-psychogenic as it gets. But, let's not grow soft. The whole category in the first place is a stand-in for "we're not totally sure what precisely underlies the symptoms but we can treat the events (which are seizures) with multiple modalities that are often successfully, so we need a name." "Psychogenic," again, is always stressed to not mean "fake," but all it DOES mean is "lacking a clear neurophysiological basis." And an overly brusque "we're not quite sure what's going on fundamentally [even if we can help]" is a stone's throw from "we think you might be doing this voluntarily, even if it feels out of your control." You know, because that's a thing that makes any sense at all. Regardless, when combining all three sins, so as to go from "seizure" to "psychogenic non-epileptic event," well, that's about the same gap to "super-duper faky-shaky make-believe dummy dance." They're seizures without (apparent, let's not even forget) pathological synchrony and electrical potential magnitude. To the true believers, yes, there is the extravagantly descriptive "non-benzodiazepine" drug class, but I think that's pure and old-fashioned laziness and convention, rather than a contrived neologism to placate ... The EEG equipment lobby? And there are "cardiac events," too... Let me know when there are "homeostatic oxygenic non-cardiac events," and I'll immediately add an event (presumably non-epileptic) to my Google calendar to prepare my arguments.
My twin sister was diagnosed epileptic I'm pretty sure hers were quite violent siezures.could I have the same conditions for I have had a seizure seizure
2005 and 2014 unexpected seizures I was 43 and 51 First one was bright light and collapse..... Second pixelated light and collapse..... I was outside....keen walker ????? Maybe hormonal...... Hospitals came up with no answer
Hobbies. Puzzles, painting, musical instruments, bubbles (giant), writing. Occupy your mind with fun and distracting things. I wish I had better advice.
Dissociative seizures (DS) are involuntary changes in behaviour, sensation, motor activity, cognitive processing, autonomic function. Dissociative seizures aren’t epileptic seizures that means they aren’t caused by abnormal electrical activity within the brain, Dissociative seizures happen through a unconscious process called dissociation, Dissociation is a disconnection between a human sensory experience,consciousness,identity,memory, self awareness and surroundings, motor control and behaviour. The autonomic nervous functions causes the symptoms of dissociation, During Dissociative seizures the body also goes into a fight or flight response.
Pure terror. Malfunction of fight or flight that is. Even though I am aware and talking myself down my fight or flight says it is the most terrifying thing ever.
Thank you again so much for having these videos. They are awesome and very helpful.
PNES is not only a psychological condition. There can also be a physiological cause. Mine were caused by an adverse reaction to medication. I have met others with a brain injury and another with pancreas disfunction whose injuries have caused non-epileptic in my small town, also not psychologically induced.
"Older ideas that FND is “all psychological” and that the diagnosis is made only when someone has normal tests have changed since the mid-2000s. The new understanding, including modern neuroscientific studies, has shown that FND is not a diagnosis of exclusion. It has specific clinical features of its own and is a disorder of the nervous system functioning in which many perspectives are necessary. These vary a lot from person to person. In some people, psychological factors are important, in others they are not."
... "In some psychological factors such as past trauma or stress at the time of symptom onset in FND are important in understanding how the brain has gone wrong. In others the presence of a problem like migraine or a physical injury may be the most important thing."
From the National Organization for Rare Diseases (NORD) website. rarediseases.org/rare-diseases/fnd/
Quite often a myriad of these factors are present.
The only way as a mental health professional I found out about this was my clients saying they had been diagnosed and told they need CBT. I don't think it is about negative opinions just that what has happened that the news has travelled via people referred to the service rather than coming from initiatives from Neurologists to recruit mental health professionals to make us aware that this is an issue.
You really “tapped into an issue” regarding treatment. I am in northern Utah and have only met two psychologists who knows about (one says she has treated) “pseudo seizures”. My neurologist diagnosed me after I had mentioned a councilor suggested we look into PNES. He then ceased treatment and has since denied contact as if I were a inconvenience.
I can’t find treatment anywhere and know more about psychogenic events than the doctors I do see. I have to refer new doctors to my research before seeing them.
So far I know more than anyone who has attempted to treat me. Hopefully my new psych is more well informed. She insists she has treated people with “pseudo seizures”.
I found these videos today after being diagnosed in 2021 and sadly there still is not much information or help available. I’ve been passed from one dr to another and am still waiting for CBT and Talk therapy 🤷♀️
Have you seen myjourneytobeseizurefree ? The girl advocates for epilepsy but sees no doctors yet have lots of seizures weekly. It's very worrying.
Thanks for sharing 😊
I was diagnosed by a neurologist that the non epileptic seizures were psychogenic I suffered with them for 35 years last couple of years they stopped I sufferers alot of mental emotional abuse from my father mabe contributed to having them
Its because the central nervous system is faulty, not working properly and for me there's nothing much u can do about it. Go with your body treat it as and when required. (FND and various symptoms).
hi m amanshi
i know wanna know that my boy friend fell down but am confused its seizure or faint..after that we seek the medical treatment and his MRI is normal n EEG too is normal...but the things is that does he really has epilepsy though he didn't got another attack but while is he sleep he moves alot means he normally moves alot in sleepl and am worried a lot......please reply me am wating...
Contact this doctor directly on his WhatsApp number for your total cure then. +2347030936239
There is insufficient evidence to conclude that the manner in which my alarm clock goes off each morning is epileptic (alpha = 0.05). Thus, I have a putatively non-epileptic alarm clock.
A two-tailed test indicates, however, that the ringing of my alarm appears to follow the idealized pattern indicating it is an "event" with the same threshold.
Hence, the data indicate that the ringing of my alarm each morning is, at least with the typically accepted statistical thresholds, an event, and, moreover, one whose nature is apparently not epileptic. Phenomena with this exact combination of characteristics, such as the ringing of my alarm, are aptly called non-epileptic events.
No but seriously. Maybe one barrier to treatment on both patient and clinician sides is using such a meticulously contrived name that only contextually implies the general diagnostic and research categories it falls under.
They're events, sure. The specific type of event they are is "seizure." Seizures were first described a bit before epileptiform voltage traces on EEG. Sure, one might wish to be strictly phylogenetic and re-classify things that were once unambiguously "seizures" because we know more about seizure pathophys now. After all, certain types of focal seizures were ADDED to the definition of the term "seizure," so why not duly remove others? Well, the asininity of the resulting terms is by itself a robustly sufficient reason not to...
It's okay to classify the things that are treated-symptoms experienced by people-based on presentation. God help us if we decide to classify everything based on physiological imaging, especially when clinical EEG montages are roughly as sophisticated as open-air electric arc lamps.
It's actually even worse than that, though, for such a buffoonish name as "non-epileptic events," because the "non-epileptic" bit, you know, does the actual work. They are not non-epileptic collagen fibers, they are not non-epileptic air superiority fighter aircraft, they are non-epileptic seizures.
The classification as "events," subsequent to already identifying their physiological basis (non-epileptic), actually does exactly what clinicians (absolutely appropriately) emphasize should not be done: it marginalizes them, and thus the people suffering from them.
But wait, there's more! I forgot about "psychogenic!" Alright, in fairness, this one actually is a meaningful specifier because there are non-psychogenic, non-epileptic seizures, as from strychnine toxicity, which is substantially spinally mediated, not classically epileptiform, but about as emphatically non-psychogenic as it gets.
But, let's not grow soft. The whole category in the first place is a stand-in for "we're not totally sure what precisely underlies the symptoms but we can treat the events (which are seizures) with multiple modalities that are often successfully, so we need a name." "Psychogenic," again, is always stressed to not mean "fake," but all it DOES mean is "lacking a clear neurophysiological basis." And an overly brusque "we're not quite sure what's going on fundamentally [even if we can help]" is a stone's throw from "we think you might be doing this voluntarily, even if it feels out of your control." You know, because that's a thing that makes any sense at all.
Regardless, when combining all three sins, so as to go from "seizure" to "psychogenic non-epileptic event," well, that's about the same gap to "super-duper faky-shaky make-believe dummy dance."
They're seizures without (apparent, let's not even forget) pathological synchrony and electrical potential magnitude.
To the true believers, yes, there is the extravagantly descriptive "non-benzodiazepine" drug class, but I think that's pure and old-fashioned laziness and convention, rather than a contrived neologism to placate ... The EEG equipment lobby? And there are "cardiac events," too...
Let me know when there are "homeostatic oxygenic non-cardiac events," and I'll immediately add an event (presumably non-epileptic) to my Google calendar to prepare my arguments.
My twin sister was diagnosed epileptic I'm pretty sure hers were quite violent siezures.could I have the same conditions for I have had a seizure seizure
2005 and 2014 unexpected seizures
I was 43 and 51
First one was bright light and collapse.....
Second pixelated light and collapse.....
I was outside....keen walker
?????
Maybe hormonal......
Hospitals came up with no answer
Emergency services picked me up and hospital assessed me.
I need help i have this can someone lead me in the right direction?
Hobbies. Puzzles, painting, musical instruments, bubbles (giant), writing. Occupy your mind with fun and distracting things.
I wish I had better advice.
@@henrydanc thank u I greatly appreciate it!! Much love to u ty so much
Dissociative seizures (DS) are involuntary changes in behaviour, sensation, motor activity, cognitive processing, autonomic function. Dissociative seizures aren’t epileptic seizures that means they aren’t caused by abnormal electrical activity within the brain, Dissociative seizures happen through a unconscious process called dissociation, Dissociation is a disconnection between a human sensory experience,consciousness,identity,memory, self awareness and surroundings, motor control and behaviour.
The autonomic nervous functions causes the symptoms of dissociation, During Dissociative seizures the body also goes into a fight or flight response.
Pure terror. Malfunction of fight or flight that is. Even though I am aware and talking myself down my fight or flight says it is the most terrifying thing ever.
Talk therapy did not help me. Trauma came out itself eventually.