My husband is 53, and is entering the last stages of HD. His father drank himself to death at 54, masking symptoms, and we'd never heard of the disease. Only my husband has it out of 5 children, and we consider that miraculous! We had 2 boys before any symptoms appeared and diagnoses were made, one now 22, one 17. The eldest tested positive, and his name was never put to the results; done anonymously. The young one has an appt for early September of 2018 to test. Now, getting to my point...I wish even one person covered in this documentary referred to their faith in God to help them through this disease. I truly would fall apart if I didn't know that i would see my husband, whom I've been with since I was 16 and in 10th grade, again in an afterlife. Or my symptomless child. I know I will, and the suffering is only temporary. I love you, Alex. For better or worse.
This is one of the best "comments" I've ever read. You hit my heart like an arrow. I wish we were neighbors so I could talk & help you in any way. My husband is so good with caring and giving. I know what you mean about not mentioning God. I'm very guilty for divorcing my thoughts about Him from my soul. I don't know why I question things and get my Faith back; my Mom was so firm on instilling God in her children's lives. I know this life is for a bigger purpose & I can't imagine the strength & positivity you must have with your love for our Almighty. Thank you for taking the time to share. I worked for a very short time at a nursing home just last month. There was a young woman suffering from Huntington's and her own sister was living on the floor above. I saw no one visit her; but I can't damn anyone by judgement. Maybe they are afraid and somehow feel guilty for their declining health. Now you are educated with this disease. It is cruel; totally passed on by genetics. I respect you & your family. Do all that you feel is best. My humble thoughts & prayers to you all.
I'm Dutch. For the most part, the Dutch don't believe in God or an afterlife. I don't know anyone who does. I think that (especially) for Americans, not believing is almost incomprehensible.
I had a father that died of Huntington's Disease and have an older sister in the late stages with the disease. I understand how it affects the person who is suffering and how it also affects family and friends. “Be strong and of a good courage, fear not, nor be afraid of them: for the Lord thy God, he it is that doth go with thee; he will not fail thee, nor forsake thee.” - God, Joshua 1:9
I Curеd ММy Yeаst InfесtionTор rаnkеd Cаndidа рlаn fоr dоwnloadUniquе hоlistiс Systеmtwitter.com/fbce00b274110c038/status/784262969735516160 Doсumеntаrу Оff Bаlаnсe Living with Huntingtоn s disеаsе
Aan iedereen, die naar iemand moet naar kijken die Huntington’s heeft, will ik zeggen,ik weet hoe je voel, mijn moeder begin met Huntings town ze 44 was, my is ze net 72 en de twee die naar haar kijken is me zus en mezelf,sorry voor mijn slechte Nederlands maar ik heb het niet in 30 jaar geschreven,toen zijn wij naar Australia verhuist.Ik denk echt als die Doctor echte results wil krijgen moet hij ook zien Wie der is verhuist van Nederland naar...... Much love to everyone, you are all in my thoughts❤️
You're Dutch was perfect especially when I use the translator lol! It's one of the worst diseases they said it is like having ALS, Parkinson's, dementia, and schizophrenic at the same time! 😢
@@winrosMy friend, you’re probably right but to anyone who has a chronic debilitating terminal disease (and there’s lots of others!) their disease is the worst one imaginable! We’re just human, ya know?
Stop selling the Institution and stop buying that is the best Nobody wants to be in an Institution nor embarrassed by missing rings there's something missing and everyone has to quickly cover their asses because of of fear so slow down listen takes us forever to think and so slow down. What would you do has no bearing on our reality. Yelling at him because he missed a meeting yesterday..please give up he feels betrayed obviously. Let him come back home wimps
No. Watch other videos... it isn't simple like that. It is not quite so easy to go test or decide the future of another that way. I can't make the argument as well as others have and there are lots of videos on the pros and cons of such testing. Plus, many disorders produce people who are more different than "disabled." I'm one of them. I don't think erasing variation in the genome is wise at all. Then go watch Gattica.... amazing and disturbing film.
These sort of tests had just become available when my mother was having children. I'm her youngest, and i'm 21. Shortly after that my family members were able to get the genetic testing covered by insurance. For this woman, her parents surely could not have had access to this test. It's not that simple. Even for me, in 2017, with insurance, it will still cost several hundred dollars for me to get tested, and when I do, if I'm positive, that could fuck up my insurance for a long time and make it hard to get a job. Granted, because I have the option and the means, I will get tested before I have children, but my mother and her mother did not have this option.
i can't watch captioned videos... it is really not cool to not tell people it isn't in English when the title is in English. Just TELL people, not rocket science.
If you're blind then I understand,but if you're not then it's really sad that you can't keep up with the speed of an captioned video you should read more.
RampantArtist these people can barely walk, talk and function and you are complaining because your lazy ass won’t read subtitles. I’m sure they would love to switch places with you. Get out of here!
This is the most profound documentary I've ever seen on HD.
What a lovely documentary. Really beautifully done. Much respect to the families and their carers.
My husband is 53, and is entering the last stages of HD. His father drank himself to death at 54, masking symptoms, and we'd never heard of the disease. Only my husband has it out of 5 children, and we consider that miraculous! We had 2 boys before any symptoms appeared and diagnoses were made, one now 22, one 17. The eldest tested positive, and his name was never put to the results; done anonymously. The young one has an appt for early September of 2018 to test. Now, getting to my point...I wish even one person covered in this documentary referred to their faith in God to help them through this disease. I truly would fall apart if I didn't know that i would see my husband, whom I've been with since I was 16 and in 10th grade, again in an afterlife. Or my symptomless child. I know I will, and the suffering is only temporary.
I love you, Alex. For better or worse.
This is one of the best "comments" I've ever read. You hit my heart like an arrow. I wish we were neighbors so I could talk & help you in any way. My husband is so good with caring and giving. I know what you mean about not mentioning God. I'm very guilty for divorcing my thoughts about Him from my soul. I don't know why I question things and get my Faith back; my Mom was so firm on instilling God in her children's lives. I know this life is for a bigger purpose & I can't imagine the strength & positivity you must have with your love for our Almighty. Thank you for taking the time to share. I worked for a very short time at a nursing home just last month. There was a young woman suffering from Huntington's and her own sister was living on the floor above. I saw no one visit her; but I can't damn anyone by judgement. Maybe they are afraid and somehow feel guilty for their declining health. Now you are educated with this disease. It is cruel; totally passed on by genetics. I respect you & your family. Do all that you feel is best.
My humble thoughts & prayers to you all.
God Bless you sweetheart. Youre all in my prayers. Theres more to this world...
I'm Dutch. For the most part, the Dutch don't believe in God or an afterlife. I don't know anyone who does. I think that (especially) for Americans, not believing is almost incomprehensible.
@@kristinesmart24 It´s not "genetics" it is Daniel 2.43
What a beautiful,inspiring documentary. Huntingtons is such a cruel disease,I hope research finds a cure one day❤️🇬🇧
So much dignity, love and compassion here.
I had a father that died of Huntington's Disease and have an older sister in the late stages with the disease. I understand how it affects the person who is suffering and how it also affects family and friends. “Be strong and of a good courage, fear not, nor be afraid of them: for the Lord thy God, he it is that doth go with thee; he will not fail thee, nor forsake thee.”
- God, Joshua 1:9
Wow, beautiful raw perspective. My 23 year old daughter hasn't yet been tested, it is really confronting thinking that this may be her destiny
you are a terrible mom if you knew and this is your biological daughter.
A truly beautiful compilation that helps explain the process and the family dynamics of Living with HD,
DJoyceR
Thank g*d for Netherlands great health care!
Yes, thankful for the use of taxpayers money.
very intense documentary.
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So sorry you’re an atheist. God is all around you. Open your eyes.
Thank you Axle media for covering this
Very powerful documentary. Such a devastating disease...I think Anki died in 2017.
A true reflection.
Ten years ago. I wonder what’s become of them all.
Folks don't live with HD; they die a slow gruesome death. Audience wishes them all the best. Cheers!
Made me cry.
My opa klaas died in 2015 from huntingtons and my mother isn't ready to get tested. 😰
I wonder if canibus would help?
Aan iedereen, die naar iemand moet naar kijken die Huntington’s heeft, will ik zeggen,ik weet hoe je voel, mijn moeder begin met Huntings town ze 44 was, my is ze net 72 en de twee die naar haar kijken is me zus en mezelf,sorry voor mijn slechte Nederlands maar ik heb het niet in 30 jaar geschreven,toen zijn wij naar Australia verhuist.Ik denk echt als die Doctor echte results wil krijgen moet hij ook zien Wie der is verhuist van Nederland naar...... Much love to everyone, you are all in my thoughts❤️
You're Dutch was perfect especially when I use the translator lol! It's one of the worst diseases they said it is like having ALS, Parkinson's, dementia, and schizophrenic at the same time! 😢
@@winrosMy friend, you’re probably right but to anyone who has a chronic debilitating terminal disease (and there’s lots of others!) their disease is the worst one imaginable! We’re just human, ya know?
I may have missed it, but I assume Jordy's father had it.
Yes they died within a month of each other
Years later, but they were in the same care home. His father was the man saying about going outside together.
❤❤❤❤❤
her name is ankie donkers
I recommend Dr Oje Abacha on his RUclips channel for getting rid of my Huntington disease.
What an insensitive comment
Stop selling the Institution and stop buying that is the best Nobody wants to be in an Institution nor embarrassed by missing rings there's something missing and everyone has to quickly cover their asses because of of fear so slow down listen takes us forever to think and so slow down. What would you do has no bearing on our reality. Yelling at him because he missed a meeting yesterday..please give up he feels betrayed obviously. Let him come back home wimps
Cannibis
It does not help the brain is Shrinking in size ! They do not need to fog there brains more !
genetic testing before you ever reproduce
No. Watch other videos... it isn't simple like that. It is not quite so easy to go test or decide the future of another that way. I can't make the argument as well as others have and there are lots of videos on the pros and cons of such testing. Plus, many disorders produce people who are more different than "disabled." I'm one of them. I don't think erasing variation in the genome is wise at all. Then go watch Gattica.... amazing and disturbing film.
These sort of tests had just become available when my mother was having children. I'm her youngest, and i'm 21. Shortly after that my family members were able to get the genetic testing covered by insurance. For this woman, her parents surely could not have had access to this test. It's not that simple. Even for me, in 2017, with insurance, it will still cost several hundred dollars for me to get tested, and when I do, if I'm positive, that could fuck up my insurance for a long time and make it hard to get a job. Granted, because I have the option and the means, I will get tested before I have children, but my mother and her mother did not have this option.
Of course get the testing before you decide to have a child
but they are available now.... @@Resonance1919
@@Resonance1919 The test has been out since 1993
i can't watch captioned videos... it is really not cool to not tell people it isn't in English when the title is in English. Just TELL people, not rocket science.
RampantArtist *In a title? you must joke, how many seconds do you need to click yourself away from this clip? We are a little bit spoiled, aren't we?*
If you're blind then I understand,but if you're not then it's really sad that you can't keep up with the speed of an captioned video you should read more.
Agreed. I was so disappointed to find this wasn't in English. It doesn't give the full affect to have to read subtitles while trying to watch.
RampantArtist these people can barely walk, talk and function and you are complaining because your lazy ass won’t read subtitles. I’m sure they would love to switch places with you. Get out of here!
@@johndavid1585 you are right, a schande