The Complex Emotional Issues Of Genetic Testing | Do You Really Want To Know? | Beyond Documentary
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- Опубликовано: 7 авг 2022
- A documentary about three North American families who have been confronted with the emotional dilemma of being tested or not for Huntington's disease.
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I had tested positive yesterday. This shit is the hardest i ve ever been through
🙏🏼
I am so sorry my thoughts and prayers are with you and your family
How are you going brother?Hope you are okay. I am too in delimma of going for genetic testing.What would you say?
🙏🏼@@lakshitsinghal3491
@@lakshitsinghal3491
Hi friend,
this is the most transcendental decision that you probably will ever take, so consider my opinion as the one from an stranger of the internet. BUT i recommend you to do it. As is the only way you have to face it and be prepared to it in the worst scenario.
Do it Not only for yourself. Do it for your beloved ones that are sharing a life path with you. It is a brave decision, it is scary but is the only way we have to stop next generations to suffer from it.
If you want to do it Consider to make it in a stable emotional moment as it can hit you hard and it will change your priorities and life perspective totally.
And one last thing, Life still goes on and doesnt stop. You just learn to live knowing that some day maybe you will develop an illness. Meanwhile you have to enjoy every litle damn moment of joy. Dont give up!
Hope my words help you
I'm only part way into this but have already shed tears. John falling over while running broke me . What an amazing man 😢
At first I was upset about the running and falling. ( glad you have pads on...maybe a helmet?) Then I realized that everyone has the right to battle this disease....their way. I'm cheering for you!
A helmet, worried about head trauma? 🤣
I cannot imagine the burden of having to make that kind of decision. I do, however, think that if you are at risk of having HD and you want to have children, it is irresponsible to do so without getting tested. And if you do turn out to be positive, you should either adopt or have IVF with pre-tested embryos. You can't be blamed, if you didn't know, but it you know before you have children, I think that it is cruel to perpetuate HD.
If you can't imagine having to make that kind of decision, then you should not make a comment on what a person should or shouldn't do .
However, I guess you can't be blamed for that.
Yes. It is very irresponsible to knew and not doing something to prevent it get passed on to next generation
Do you believe in god ? 🤔
Do you personally know someone with HD or juvenile HD ?
So you are a very responsible person, and that gives you a right to make such a comment. 🤔 🙄
@@MARVINGAYE662
Would you kindly answer my ???? When you get a chance, as I'm really looking forward to your answer.
@@coraldell3091 Of course only a religious loony could possibly argue in favor of having the disease and still choosing to reproduce. God gave you a functioning brain (I'm assuming), please use it.
Watching this while reading Lisa Genova's Inside the O'Briens
I’d want to know even though I’m well past the age of childbearing. I’d want to warn my young relatives. They should get tested as well, to prevent having a child with the disease.
Hi Maria, you don't want to know ?
Is that what you mean ?.
Everyone has their own decisions to make ?
Chorionic Villus sampling ( CVS ) is a option for testing in utro.
Although the at risk person needs to be tested first.
Happy new year
MD Henry ?? Where do you practice if m d stands for medical doctor ?