Lyme disease and the fight for recognition | DW Documentary
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- Опубликовано: 6 апр 2024
- Years of pain, paralysis and fear - without a diagnosis. For a long time, medicine seemed to ignore Lyme disease. The film accompanies several patients as they fight for an accurate diagnosis -- and the right treatment.
Many Lyme disease patients suffer for a long time before receiving a diagnosis. Their symptoms, including pain and paralysis, often seem to indicate other diseases, like MS. The fact that they have been bitten by a tick that carried Lyme disease often only emerges after many examinations. This is exactly what happened to two of the film’s subjects: a girl from Brooklyn, NY and a researcher at Duke University. Both decided to take matters into their own hands and began carrying out independent research into their symptoms. Both ended up in the middle of a controversial medical debate and found themselves having to fight hard for adequate treatment.
The Quiet Epidemic
A film by Lindsay Keys and Winslow Crane-Murdoch.
Produced by Daria Lombroso and Chris Hegedus
#documentary #dwdocumentary
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There is nothing more dangerous than a doctor who refuses to believe that they dont know everything about medicine and the human body.
it's called 'humility "
This is the problem with the doctors. It has to do with detection. Current testing aren't very good and without a positive results, doctors can't treat a patient. There would be legal issues.
@@n3talie1you are right, tests sucks but the actual tests that can detect these infections are not inside the conventional medical system.
I was diagnosed with frequencies and healed with medications along with the help of the right frequencies.
Completely healed many “irreversible” infections. My doctor heals Lyme disease and many autoimune that MD’s can’t detect and treat.
If you don’t know anything about Rife machines… you can help animals, plants and even people with just a simple flu.
Or one who won’t listen to you about your pain and problems and won’t investigate further. I’ve met a few of those and I’m sick of them. I live in Ohio and they told me lyme disease is not in Ohio
but I found people who tested positive and never left Ohio. This is after I recently went to Maine. I’m still in pain I Lyme disease titer has some positive, but they tell me I don’t have it but I’m in pain all the time
Absolutely. We end up training and feed with knowledge so that we do not take BS.
When a doctor says that you have nothing wrong and it's all in your mind, that's the time to find a new doctor. Nobody knows your body better than you .
Fully agree, a golf ball sized tumour was all in my head according to my GP for 7 years, nearly killed me until I forced the doctor under duress to forward me for tests, he profusely apologised later.
Been through 4 Doctors concerned about their 5 minutes and making their insurance money💰
Yes my family doctor has been passing me off to the next guy for the last ten years .. around in circles I go, refered to the next guy, then while filling out applications, they wanted to know if my family doctor office had a mental health councilor in office before putting me on a wait list for a hospital counselor , it took two weeks before my family doc office came back with a no, but by then the other doctors form was no good.. so a few months later I'm in the specialist office and she goes on my family doctor website which clearly says yes,they do offer mental health counselor there! So I call back and say we saw it on the website! Then they make me an appointment for the in office counsellor they denied having the last five years! It's unbelievable the games these doctors play! I was so suicidal a few years ago I thought I was having a nervous breakdown.. now it's been like five years since I first started trying to find the help and I just went around and around right back to where I started, the family doctor! I swear it's economic, if I were a rich person I would e gotten the help immediately, I'm a poor nothing to them so I just got passed off!
My friends daughter died from brain tumour sadly back in the late 80s..the pompous doctor dismissed this as her not wanting to go to school. On holiday she had a MRI scan and an advanced tumour was found. Apparently, said Dr. felt terrible about this but whether he is still an arrogant incompetent I cannot say. I have met some fantastic medics over the years but unfortunately also a good few who I think are just not smart enough for the role.
If only there wasn't a MASSIVE shortage of doctors and an even BIGGER shortage of specialists...
Lyme and tick borne diseases have ruined my life. Please be tick aware and support all who suffer.
Oh no. I've been bitten many times. I work in the woods 4 to 6 times a month. What happened?
@@OpalDragon24 don’t play Russian roulette with your health. Keep ticks off and if one gets past protection you should take abx or at this very least get on an herbal protocol.
@@nicsxnin6786 I don't know what abx is but I'll look it up.
Love to hear more @@nicsxnin6786
@@nicsxnin6786what’s abx? And what herbal protocol do you take?
It's alarming when physicians and other professionals dismiss new science. Shame on those who stop learning.
Canada has the same issue. Lyme is not recognized here either .
Lyme disease is one thing. Chronic Lyme disease is not what its name implies. It’s either an autoimmune reaction, a mental diagnosis or another disease, but unfortunately a lot of misguided patients are suffering damaging themselves with antibiotics…as was the case with me, until I got out of the Chronic Lyme cult.
@@chamade166 Good for you. Some of the Lyme cults that "research" have been fined millions by the FDA many times over the years. This documentary was bogus. They just sort of forgot to follow up on the vaccine. There is one coming out this year or next. There was a vaccine in 2000 for lyme disease but the company wasn't making enough money with it due to low demand. Which makes sense because the anti biotics take care of it and is cheap.
“In the fullness of time, the mainstream handling of Chronic Lyme disease will be viewed as one of the most shameful episodes in the history of medicine because elements of academic medicine, elements of government and virtually the entire insurance industry have colluded to deny a disease.”
Kenneth B. Liegner, MD
Internal & Critical Care Medicine
Yet another disease created in a lab and released onto the public via ticks
I was bitten twice by ticks in the 1980s. I had no immediate reactions. In the late 2000s, I was tested for Lyme due to chronic fatigue, brain fog and body aches. The testing came back negative for Lyme and therefore my team of docs diagnosed me with Fibromyalgia; which let them off the hook and provided me with no relief. In 2010 I travelled to the Mayo Clinic, in FL, for a week long stay to further investigate my chronic, debilitating issues. I tested positive for Lyme, 20 yrs. after being bitten! I spent 6 additional weeks in FL to eradicate the disease and replenish my system through daily IV therapy and a boatload of supplements. It was determined that the time for antibiotic treatment had long passed. I’m still amazed at the inability to receive a conclusive/correct diagnosis in New England (Portland and Boston) and having to travel thousands of miles from my home to do so, as well as receive proper treatment. Years of wasted time, energy, pain, suffering and money.
Insane!
How did you feel after the treatment you recieved?
Please can you share if the treatments you received helped to improve your condition?
I would also like to know how you feel now? Did only some things improve? Or is everything better?
Ah yes, the US medical system is the best in the world.
Except for all the other systems.
That doctor saying it was conversion syndrome should be stripped of his license.
Exactly. I felt like I was on my deathbed and was told it was psychosomatic. The doctor told me his assessment as if it was great news and I could just go home and make my mind up to feel better. He also served as the chief of staff for our local hospital system so once his notes were in my shared electronic medical file, all the other medical providers I saw treated me differently and I had difficulty being taken seriously. I had to go out of state and outside of that system in order to get actual medical care.
Lives and families ruined by this BS diagnosis. Better to adopt an attitude of,
“I don’t know, but let’s figure this out together.”
He is practicing science, instead of damaging people with toxic unneeded antibiotics
@@chamade166 if he was he would have come to the conclusion this couldnt be a psychological. But some doctors just dont take us serious when we know ourselfs its not that.
I went to an outdoor museum on a warm day in November 2022 about an hour outside of New York City. When I was laying in bed about to go to sleep that night, I felt a pinch on my lower back, like someone was poking me with a pin. I reached back and pulled off a live tick, and fortunately, knowing about the risk, had it sent to a lab for testing. It came back positive for Lyme, and I took antibiotics for a few weeks. Luckily, that was good enough. ALWAYS check yourself after you go outside in the summer if you live in an area with ticks.
glad you are well. can you remember what antibiotic you were prescribed?
I'm so sad to find that Dr. Neil Spector passed away. I hope his important research will continue on and that his team will be able to get the funding they need for clinical trials
He did? I am so sad.
That's crazy. thank you for sharing this news. Goosebumps while listening to his interview although they share the news at the end, it gives the show more depth knowing this beforehand
That's such a f****** shame, so mad for everyone affected. I hope someone carries on the passion for a cure
He passed away on June 2020 from a clinically aggressive post-transplant lymphoproliferative disorder as a result of immunosuppressive drugs used to prevent heart rejection.
I’ve seen this horror first hand, I’ve been bit, my child, my dogs, my partner got the disease really bad, almost died from it. This is serious and seems to be ignored by our medical systems. This should be at the top of the list with cancer and all the other serious diseases that humans get. It is chronic!
As we've seen with the plandemic, there is little truth in the mainstream!
I got infected in 2020 and within three weeks I could no longer comprehend how people stand normally without balance issues
Did you get the disease too, or did you somehow escape it?
I am wondering because I got bit in 1997, spot and all, but - so far - never had any symptoms (nor treatment). I only realised what it had been in 1998, and at that time the doctor told me I would know it if I had the disease.
@@ronald3836 no I didn’t, the trick is to get it off within 24 hours or sooner, treat with alcohol and keep your fingers crossed! I’m in CT. so it’s a constant battle.
@Chris-kz3jf thought the 24 hr thing was already disputed and you can get if much quicker
I contracted Lyme Disease in Scotland. Luckily I noticed the bullseye rash and went straight to the Doctor. I experienced severe headaches and faint dizzy spells. I had 2 blood tests with no indication of infection but was prescribed antibiotics anyway. I was lucky and several years later have no noticable issues. This awful disease needs to be taken seriously!
So since you acted fast is it gone then ??? Or just like, dormant and u still have it ??? I don't really understand Lyme disease or its severity
@@dfoolz as far as I am aware it's gone. But there's always a nagging doubt!
@@hedleylamarr7283 hey is there anyway you could've detected it without the bullseye rash? did the tick bite hurt/itch, did you feel anything? where were you for the tick to get on you? were you in the wilderness? thanks.
Not everyone gets the bullseye rash with Lyme disease do they?
IT WAS SPREAD WORLD WIDE EVERYWHERE US ARMY IS ...
If the doctors can’t figure it out.. the sick person has to be crazy? Horrific. I hope they come up with better treatments. 😢😢😢😢😢
waouh, how is it simply possible ? It's torture and inhuman from doctors,right? but maybe, they don't do on purpose..
Having psychosomatic symptoms does not mean you are crazy. If you have psychosomatic pain, doctors do no doubt that you are really in pain. The pain is real. The problem in such cases is that there is no physical cause that can be treated.
Of course it is not good if Lyme-related symptoms are diagnosed as psychosomatic.
@@ronald3836 in some diseases, no exams can "prove" anything wrong but the pain is not psychosomatic at all ! In some cases of neuropathic pain for example
@@hdv6 I know. Not finding a physical cause does not mean that there is no physical cause. But my point is that a doctor suggesting that your pain is psychosomatic is not telling you that you are crazy or pretending, or that he/she does not believe you.
Yup. They gaslight and claim you must have anxiety or depression.
Then you got to a therapist or a psychiatrist to discuss if you have an anxiety disorder...and the therapist says...no you're totally sane and sound... Your depression is mild and situational ... And of course you are anxious. ... They disregarded your disease for a decade and said you were too young or a complex case and sent you to 20 different subspecialists that are hyperfocused and not looking at the systemic issue....
Then the doctors get annoyed because you have lingering issues and constant problems and they look at you like you're not worth their time because of the way the insurance system dictates care.
Sorry. I vented. It's been a long decade.
I have a number of friends with Lyme Disease. They have suffered for decades. In addition they have to pay for ALL of their health care needs because their insurance will not cover most of the treatments they need to have ANY quality of life. My one friends pays for Medicare, a supplementary health insurance plan AND all of her out of pockets medical needs. She was a teacher who can no longer work, she lost her monthly income, her career, therefore her pension and her overall quality of life. This situation is being seen all over the US. This is terribly sad, a terrible injustice and just WRONG!
How come they have been suffering for decades since I assume they got themselves their antibiotics to kill the “invisible” bacteria outside of insurance?
Instead of fighting Lyme they should have taken care of their mental and physical health with lifestyle changes, their symptoms would have improved.
Doctors who don't believe their patients need to lose their license. Just because they aren't smart enough to figure it out Mr doctor or MS doctor that doesn't mean that somebody's lying, faking It, or psychosomatic. Doctors like that need to go away in shame.
they stole me years of 24/7 intense pain :(
My friend G. went for a short vacation with his kids to the Northern California forests. Two of his children got tick bites and their arms and necks after the first day of hiking. They came back to Mexico. A couple of years later, both started showing strange symptoms that couldn’t be pinpointed to a particular disease. Both got Lyme’s. A., passed away after 13 years of fighting for her life with enormous courage. JP is alive with a myriad of neurological issues but happy to help others with Lyme. They had to travel to the ONLY place in San Francisco where they “believed” in Lyme’s disease. Their story is unimaginable and heartbreaking. 15 years fighting and a beautiful child who gave her life for science should be a wake-up call for many researchers. Bravo for this documentary!
Thanks for watching and sharing you thoughts and experiences!
@@DWDocumentary
Lots of things get overlooked. My grandfather suffered with recurring malaria that he got in a WW2 boot camp. My mom in the 80s got malaria visiting friends in Honduras. She was given different advice by her doctor and never got reoccurring malaria. And the difference was that she was told to take the bitter Q pills for longer. She told her Dad and he tried it and never got malaria again.
If you are talking about Ana and Juan Pablo, Ana died due to complications of Lupus, an autoimmune disease, not Lyme…
@@alers4594 sorry. Complications after Lyme. Yes they are Ana and JP.
Lymes disease is best treated with lineage-based plant medicines like Ly Fu Mo from Jampha. This is a powerful formula to support you bodies healing and remediation of lymes and confections. Please give your friend this information. There are many other supports for the damage lyme disease causes.
I live in Oklahoma and have been battling RMSF and Lyme for 10 years. 8 people have died from this in a ten square mile where i contracted mine. It's chronic and debilitating for me and I'm treated like it's no big deal by medical community. I wouldn't wish this on my enemies. Prayers to everyone going through this.
Im sorry you are suffering with lyme & RMSF. Here is some things to do to heal your body. Wishing you a speedy recovery. take care.
These lyme ticks are a US Plum Island US Military Bio-Germ Weapon created when the US govt brought over Na. ...ZI german Scientist after WW2 under the US Govt secret "operation paper clip".
One of these Na. ..ZI scientist was given a top job at Plum Island to put bacteria/virus/parasties into ticks. Which they were later leased in Lyme Conn and now these bio-germ weapon ticks are world wide. This is well documented. Many books & documentaries on this fact.
Please se. ..e vds "Dr Michelle Slater lyme dry fasting" = she healed her lyme with dry fasting. She wrote a book also.
Several things that you need to heal your Lyme disease: **Detox heavy metals out of your body, rebuild your immune system after the tick bit and all the anti-biotics that also kill the good bacteria in your gut which IS your immune system. To do this you need to eat RAW fremented veggies channels Dr Berg, Dr Sean Omara, Dr Axe, Dr group, Candida eric bakker naturopath. YOu also need to kill off the candida overgrowth you most likely have from the anti-biotic all the above doctors have vds on this too.
heavy metal detox channels Dr Mindy pelz, Dr group, dr axe vds on heavy metal detox.
you can buy RAW sauerkraut at most health food $6stores & joe traders $5even the big box food stores like co. ST. co$11
Also get a vitamin & mineral deficiency test including B12, iron, zinc, D, magnesium, potassium, sodium etc as these are common deficiencies wtih all sickness including lyme.
Do a parasite cleanse!! doctors above have vds on this too. This is a huge part of healing.
Find a good functional or alternative medicine doctor or naturoapth to rebuild your immune system and do heavy metal detox. .
eat a clean diet like keto and/or carnvore diet. keto diet channels: Dr Berg, Dr Eckberg, Dr Boz (look for "keto for beginners, keto flu, electrolytes vds), carnvore channels: Dr Ken berry, shawn baker md podcast, dr chaffee, homestead how, kelly hogan and more. many have testimonies of healing every health issues. Carnivore diet is a elimination diet that heals the body. eliminatoin diets have been around since Hippocrates days (father of medicine).
virus, bacteria, parasties feed off of sugar and carbs = cut these out. Best diets for this are keto & carnviore diet. They are also brain healing diets. Library will have books on keto, carnvore, heavy metal detox, parasite cleanse, raw veggies for rebuilding gut and more. Doctors are not taught this info in medical school because medical schools are controlled by Big pharma.
Please write down & pass on to everyone.
take care.
Prayers back to you too! ❤
what part of oklahoma?
@@champagneflowers8522 Asher
I have lived with this for 28 years now...first it just attacked my joints, but later on my brain...I am to be considered invalid and keeping up with my hygiene is enough for me. I was also a very active person before, I was working as a constructor and member of a MC Club.
There is absolutely no reason me or any of these persons would just decide to lay in bed the rest of our lives!
can you share where you might've been for the ticks to get on you so we can avoid those similar areas? thanks and i hope they come up with a cure/vaccination soon.
@@vwazp Those ticks are everywhere. Even in an Urban setting I found a tick hidden on one of my dogs
as shitty as this is, and I want to recognize that this is practically back door eugenics for something we could probably fix. This has been going on for years with many many many medical diagnosis, women and minorities are statistically more likely for doctors to just assume its mental and send them home, insurance providers force people not to treat as many people as possible and make the way as complex as possible because it means more people are going to give up on treatment or end themselves.
But the whole idea in the first place that mental conditions cant be treated is also in and of itself entirely ablism, people with executive function issues feel similar and are ignored because technically its "all mental" even tho mental conditions have physical effect, my ptsd has officially stressed my body out enough I deal with arthritis at 24, and worst of all, unlike for lime, when we try treating our conditions at home, we arent just told its potentially unsafe and regulated to the supplement section, we get arested for taking things that have fairly quick impacts, that make living slightly easier, and we as people are criminalized for it, while america in specific continues to ignore all modern scientific evidence about the issue, which proves theres either something more here, or that they are completely mistreating people.
Consider employing a functional doctor.
Perhaps Dr D. Schmidt of YT from Ann Arbor, MI.
I am getting results from this doctor.
He is now treating my lyme. So we shall see what happens.
@@richardkalmwater5996 I thought he was a G.I. specialist?
Thanks to everyone who took part in this informative documentary. Words can't express the validation of finally being seen.
As an avid mountain biker, hiker and trail runner, when I was a vigorous lad in my fifties, I contracted Lyme disease. Living less than 30 miles from Lyme CT wow what a surprise. Luckily after a 100% miserable week and a half (20 lbs lighter) I noticed a red "bullseye" , sought medical treatment and am lucky to escape (now 73) without any bad effects. If I had not educated myself to recognize this symptom, I might be in serious medical trouble now. I have extreme sympathy for those not so lucky.
Some people dont get the bullseye, so it isn't as easy to identify.
Question: If I read your comment correctly, it took a week of being ill before the bullseye appeared, is that correct? The reason I ask is that a decade ago, I also had the bullseye, but it appeared right the day after I had removed a tick, so luckily I was on guard for it. I didn't know that 1. It can make you acutely ill right after a tick bite, since I thought Lyme's was chronic and only manifested a while after the bullseye and 2. That the bullseye can take a week to appear. Interesting and good to know, because that means I need to be on guard longer than I thought after a tick bite. Glad to hear you're doing okay. It's a horrible disease. I know someone that has chronic Lyme and he truly suffers from it and will likely die much younger than he would have otherwise (heart damage). Glad I escaped that just by taking some antibiotics
@@puffinjuice Yes, I was lucky.
@@BinaryBlueBull I only can relate my experience. Typical, atypical?
@@puffinjuice YES! This information needs to be propagated. Many think that you will see a ring if you are infected.
I’m watching this now and am covered in sweat from watching it. This is what happened to me.
In a period of three years I was sent from one doctor to another. All tests were negative, still I was hopelessly ill, whole my body in pain, with swollen joints, could not walk without help etc.
My health slowly came to normal (I guess I was lucky). Never received diagnosis, but I know it was Lyme and I know when and where I contracted it.
Good luck to everyone who is suffering and be strong!
This is an excellent documentary. I knew there was controversy but never understood it. Thank you so much for this documentary.
Thank you for watching!
@@DWDocumentaryDr. Mathew Lao said "that they could genetically modify ticks so when they bite people it can make them allergic to meat. He said tbey could find a way to do this ethically".. Please look that up?
@@DWDocumentaryIMO
Once enough of us are plagued by Lyme disease due to increase of exposure from climate change then maybe a vaccine will be created but only then bc it’s only profitable if the masses are required to take it
The same folks debunking Lyme disease now will be the same companies or ppl who come up with a vaccine in 10plus yrs once a larger percent of the ppl are exposed.
It’s all about profit.
Look at the Covid vaccine.
I’m not saying there is anything wrong with the vaccine I’m saying it’s when and where it’s produced or provided to the public.
It’s all about profit not the health and well-being of society
It’s all a faucking game and we’re Guinea pigs
@@dedetudor.yes there are people who are being bit by ticks who then become allergic or get sick when they digest red meat (I find it very peculiar and also kind of ironic considering we exploit the meat market and in turn cause climate change to drastically change the environment to which we become overly exposed to Lyme disease and then can’t eat the main source of our protein diet)
@@dedetudor. Ticks were not genetically modified to make people allergic to meat. I am not even sure if it is currently possible to make a tick that can genetically modify a particular infection to be used in people, let alone know why they would.
The symdrome in question is known as Alpha-Gal Syndrome, and it has been discussed and talked about as an allergy connected to tick bites since 200, and I know for a fact we certainly did not have the technology to genetically modify ticks in 2009.
I was bitten by a tiny tick. No rash, but it oozed and itched like crazy for a month. Then, i started having random fevers that would come and go along with joint pain that moved around. I told my doctor and was given the western blot test. It was negative so my doctor did nothing and acted like it was great news. I questioned the fevers again and was told i needed to rest - that it was probably stress! My health went seriously downhill and i paid out of pocket about a year later (after a complete medical odyssey in which it was determined that my growing list of symptoms were imaginary) that i had contracted tickborne relapsing fever as well as Alpha-Gal syndrome and a number of co-infections. Im still struggling to get my life and health back and am completely disgusted with how the majority of the medical community has treated me. No one goes from being happy, healthy and "fine" to having a laundry list of symptoms because they're suddenly obcessed with spending all their money on visits to the doctor.
I have 2 friends that have alpha gal syndrome. You never get rid of that either. It caused anaphylaxis in the lady other wise just terrible itching or n the man. Neither can ever eat any mamal meat again. They say that alpha gal is being found in more regions now besides the south and east
I was diagnosed with Lyme disease by the Air Force in 1994, but I was in the Army, and the Army told me it was fake but gave me penicillin, then discharged me under honorable conditions..... they gave me a disability for Lyme disease over the years have given me various antibiotics and also made claims in the late 90s that the Lyme disease was all in my head...... at the beginning of covid, the head infectious disease doctor for the VA in Las Vegas brought into his office and asked me if I could figure out why I was still testing positive with all five bands...... they've increased my disability after fighting for it, but have zero answers, and in my opinion, they're simply waiting till I expire to do more testing..... I definitely have chronic Lyme completely untreated. Luckily, the symptoms are random and only get scary when they affect my heart 😊
Don't forget to also fight for fibromyalgia rating
I'm not a doctor.I was told in 2018-2019 I needed a liver transplant I lost around 50 lbs in one months time.I was sent to a hospital for liver transplant but something didn't feel right and noticed bugs in the hospital bed like lice and seen bed bugs or cockroaches on the floor.I asked to get moved to a different room and they told me 8 hours and I showed them the pictures I took on my phone and wiped off a chair and it in till my ride showed up.I made them take i.v.out after asking 3 times and I told them I would rip it out.I tried getting ahold of a attorney my new phone was completely wiped out.I went to Cleveland clinic in Cleveland,Ohio for a week of testing and they asked me who sent me for a liver transplant.They said your liver is fine.I went back and I did take ivermectin apple flavored horse paste for a month and gained my weight back and went back to liver expert and asked him about him about flu jabs in 2018-2019 he started recording me on his phone I told him God knows everything and he resigned? Some people have to be following Georgia guide stones 10 commandments instead of King James Bible 10 commandments in Exodus 20.I pray truth wakes people up and they study With word with a Strongs concordance bible dictionary in Hebrew and Greek,Smiths bible dictionary and older dictionaries and encyclopedias helps to look up words,numbers and names in King James Bible.I don't want to see anyone deceived by the Antichrist or his followers.Pray to God for wisdom and knowledge in Jesus name Amen!Their is power in the name of Jesus ,Holy Spirit power.Jesus said learn the parable of the fig tree I will share book of Daniel, Matthew 24, Mark 13 and Luke 21,Ephesians 6 is the whole armor of God,Song of Moses the servant of God and the song of the lamb Deuteronomy 32, Revelation 15 share t song with loved ones.I pray Father God that you touch this brother with your healing hands to prove to the doctors you have all healing power and in Jesus name I pray for this brother in Christ in Jesus name Amen!I pray you heal others by the Holy Spirit in this brother in Christ Amen!💪😇🙏🙏🙏🙏🙏🙏🙏🙏🙌💥✌️💖😁⚔️
I live in Buffalo NY and haven't seen ticks my whole life until the past two years. They are everywhere now. I can't walk my dogs anywhere without getting ticks on us. It's become completely unbearable.
Also grew up in NY deer park area and can say the same thing they are everywhere now. When I was a kid I spent almost every day in the woods looking for snakes, fishing, and camping. Never had tick issues, now I walk to my car and have had up to 5 in that short 1 minute walk 🤦♂️ definitely a problem.
@@pumpkinchow It's crazy. Im glad someone else is noticing, everything is always blamed on global warming. I don't think that is the case whatsoever.
This is a pattern with chronic inflammatory diseases. We see it with long covid today and ME/CFS. Doctors think they understand everything about the human body and when patients don't fit their paradigm they start to antagonize them. The medical profession is far too arrogant and vastly overestimates its understanding. There is much more to learn and these chronic inflammatory diseases are real and need further study until we can diagnose and treat them.
The medical community along with scientists has become a dogmatic religion of sorts that's not to be questioned unless you want to be ostracized and labeled a tin foil hat wearer.
Wow! Another fascinating documentary from DW. They just keep getting better and better. About topics which you never thought you had any interest in. Great work guys and good luck to all the people featured in the doc.
Dw did not make this, this ʻThe Quiet Epidemicʻ google it to see who did.
Sadly, Dr. Spector passed away. He was one of the best warriors for other patients with this disease and it's co-infections. May he rest in eternal peace...
13 years ago i was told i had Lyme, after a year of suffering! Antibiotics did not help me, im better now than i was but i still get headaches, migraines and have bad arthritis. After years of doctors giving me the run around, i took my own health into my hands. Herbs, eating healthy, exercise and lying saying i had a drug addiction so i could get Suboxone for pain. I lost trust in doctors and tbh was so traumatized from so many hospital stays and different procedures that im now scared to go to the doctors just for little things! Had a doctor one time tell me he could not treat me for lyme because of all the controversy around it! My world changed years ago but i still consider myself one of the lucky one's compared to so many stories ive heard!
I live in East Lyme, CT and I’d guess 1 in 10 people I know have had the disease. If you want to go down a very depressing rabbit hole on the origins of Lyme research the Plum Island animal testing facility. It’s right off the coast of East Lyme and their connection to the rapid spread of the disease is an interesting coincidence.
@@dogswhistlesharam9029ghey
Did government create it? Like they did Covid and other diseases.
Wow
Did the government create it? It wouldn’t surprise me.
I thought they were trying to weaponize tics.
Made me cry at the end. A Father is a son's first hero, and a daughter's first love. God bless.
This is really scary. Doctors should be listening more to patients.
There is a young woman with a RUclips channel “Bartonella Babe”’who chose to end her life who suffered from Lyme disease consequences. She practically became a medical expert trying to heal herself.
I've looked her up, but it doesn't mention Lyme disease anyway. Nonetheless, really sad what happened to her :(
High rate of Suicides with this illness. The medical community turned its back on patients and this affects any part of the body. Nothing off limits to these spirokeets. They have biofilms and change forms every few weeks and keep the immune system going full speed. Once the immune system develops the antibody to attack the bacteria has already mutated. It's like out of a SCI FI MOVIE
We become our own case managers. Must struggle with the symptoms while living with the incorrect diagnoses, ignorance, and familial rejection.
Bartonella is a frequent co-infection with Lyme disease.
@@wolfzmusic9706 Bartonella is another tickborne disease, just like Borrelia (Lyme). Bartonella is considered even worse.
im in the UK . i went to my doctor and said can you test me for Lyme disease . he looked at me like i was a joke ... i had to ask 3 times before he did anything . and made it sound like i watch to much TV for trying to self diagnose even tho i go camping and walking with my dog in the countryside.. in the UK you are treated when the doc can be bothered ... you need to threaten the doc with i need a second opinion before they listen .. 3 times cancer patient peeing blood 2 years of trying to get some help ..... this is the problem with going to the doc for help . they are to busy acting like they are a god
Superb documentary. EVERY doctor should be made to watch this so they take their blinkers off and stop believing the guidelines.
Kudos to everyone involved in making this film and God bless everyone who is suffering from this terrible disease.
Who didn’t have tears well up in their eyes watching this??
I was diagnosed with Lyme on Valentine's day in 2016, I was about 25, I went to my PCP because I was having deep aching pains in my bones and joints, I was taking over the counter pain medicine and it didnt even touch the pain, and i knew something was wrong because otherwise I was healthy as a horse, I noticed the pain would move, some days it was my knees, elbows, ankles then it would move, my doctor tested me for everything and was about to send me for fibromyalga testing when my western blot results came back and i was 3x the normal amount, he prescribed me doxycycline 2x a day for about a month, and i thank my lucky stars i havent had any problems since, pain still there but nowhere near what it used to be, though i never even knew i had been bitten at all.
Fascinating discussion on Lyme disease! For those exploring alternative treatments, you might want to consider Jampha’s Lyme, Fungus, and Mold formula, known as Ly Fu Mo. It’s based on traditional Tibetan medicine practices and utilizes lineage-based plant medicines designed to support the body’s natural healing processes. Jampha combines ancient ethnobotanical wisdom with modern practices, offering a unique approach to remedying Lyme and its co-infections. Worth checking out if you’re seeking complementary options for managing this complex condition.
Thank you for this documentary. As someone who has a very similar story to Julia, this type of recognition means the world.
THIS IS MAN MADE .......IN A LAB ,,,,MARK MY WORDS !!!!!!!!
Yea, plum island....
SHOCKING !! Thank you for all your work on this documentary.
Cycling in France in 1993, on returning to Britain I found some ticks on my body and was severely ill for some days. About 2 or so years latter and experiencing lots of random pain I was diagnosed with fibromyalgia. I was ill with this for years, sometimes high dose magnesium helped. Then in 2020 with a serious heart infection I was on very, very powerful antibiotics for months. After that, my pain symptoms were basically gone. I think I had undiagnosed lyme disease which lead to longer term post viral effects which were resolved by the powerful antibiotics I was put on.
What antibiotics were you prescribed? I’m so glad you were treated and improved!
@@GenRN Well, as I had infective endocarditis, basically bacteria eating my aorta, I was put on lots of different antibiotics as the infection couldn't be got under control. I ended up with heart surgery to replace the aortic valve and patch the aortic route. I'd had so many drugs and antibiotics pumped into me that all the veins in my arms collapsed. There were times when I found that high dose magnesium, 5000mg per day, worked and gave real relief, though it seemed to be only certain brands or types. I'd read studies which explored high dose magnesium for fibromyalgia (which is what I was told I had).
@@AdamBlight
It is hard to say in your case. You may be right in your hunch, but you may also be suffering from the post hoc ergo propter hoc fallacy. We have to be careful in jumping to conclusions and we also have to be careful about spreading that kind of thinking around. We have had far too much of that sort of thing these days and it really does not do anyone any good.
People want quick, easy, cut and dried solutions. Most things are more complex than that, require far more time and are not always clear cut.
It would seem you are lucky to be alive.
What is your prognosis after that valve swap and patch if I may ask?
I wish you continued good health into the future!
It is hard to say in your case. You may be right in your hunch, but you may also be suffering from the post hoc ergo propter hoc fallacy. We have to be careful in jumping to conclusions and we also have to be careful about spreading that kind of thinking around. We have had far too much of that sort of thing these days and it really does not do anyone any good.
People want quick, easy, cut and dried solutions. Most things are more complex than that, require far more time and are not always clear cut.
Your story does seem plausible, at least to some degree.
I’m sorry you got heart problems, but good to hear you now are better. Please don’t feel bad for some making bad comments about your statement, like @manfredconnor3194 . You are in every right to state your opinion, and a history like yours are VERY well known in literature about Lyme patients. It may transfer to every part of the body and give symptoms depending on the location. That’s why it’s called the great imitator. I am happy you are well, and thanks for sharing your story.
I contracted lymes disease and luckily my sister saw the bullseye. Less than a week after the bite I could barely open my eyes or speak in a full sentence. A single squat made me cry from the pain. The medicine was so strong but I was told since I caught it so early I was lucky. I made a full recovery.l after another week.
Before i was diagnosed with lyme disease about 10 years ago. I had the worst run around for almost 2 years with doctors in my area. One doctor told me there was no such thing as lyme disease in Upstate NY, also said that a tick has to bite a mouse then another tick had to bite that same mouse them bite a deer. Then a third tick had to bite that deer then possibly they could transfer lyme disease to a human. Finally once my doctor who diagnosed that i got better. Was a rough 2 years with very uneducated doctors and specialists.
Our good friend is slowly dying from Lyme disease. He struggles every day just to move. Now he's losing his voice and short term memory.
Another disease that was/is gaslit by the medical world that causes suffering and disability. I've had ME for 54 years and experienced the same. It's tragic
It was likely developed by the government.
All too true - fortunately my cousin who is the same age as myself was diagnosed as a teenager in the 90s with ME. He still has it ofc.
Why is that? Why doesn’t med world like to help those with Lyme?
@@kovy689The med world does want to help people with Lyme. The majority of people treated for Lyme recover without issue. The problem is that a small subset develop chronic symptoms, the cause of which is unknown. Lyme also becomes a catchall diagnosis for other chronic symptoms that cannot be explained using current medical knowledge
@@Diashi1267 But why….?
Had it three times in the past 7 years… i was lucky, my symptoms were quite clear and i knew what it was immediately and very early on because i had learned about ticks and lyme as a kid in school. Got put on antibiotics each time (heavy doses for at least 8 weeks btw) and everything turned out fine. Makes you think about the blessing of antibiotics and the ever growing, tremendous problem of antibiotic resistance in germs 🥺. That is crazy scary.
Fascinating discussion on Lyme disease! For those exploring alternative treatments, you might want to consider Jampha’s Lyme, Fungus, and Mold formula, known as Ly Fu Mo. It’s based on traditional Tibetan medicine practices and utilizes lineage-based plant medicines designed to support the body’s natural healing processes. Jampha combines ancient ethnobotanical wisdom with modern practices, offering a unique approach to remedying Lyme and its co-infections. Worth checking out if you’re seeking complementary options for managing this complex condition.
People!
_ALWAYS check yourself after being outside in the wild where ticks live! I lived many years in one of the most tick infested areas in Scandinavia, and my whole family checked each other every evening. I had around 15 - 20 ticks per year, and Lyme disease twice._
Great piece of work DW Documentary. Keep it up!
I live in the USA 🇺🇸 and my favorite Dr from India 🇮🇳 diagnosed me for my lyme; and helped my body not just feel stronger but alive 💪 ❤ he had recently passed away, but he was the best Dr in the world and understood about lyme and its real affects to our bodies.
indian doctors are quite good generally..
@@msdadsfsx true
Hey east coast did your doc treat you conventionally only and or with traditional Indian?Ayurvedic medicine...Just curious..Thanks!
@@theresapelham1918 ayurvedic doesn't work in serious illness, good for mild condition
Hey can you please let me know the name of that Dr/ hospital where he practised?
My mom used to work for a boss whose daughter ended up getting Lyme disease. She had symptoms for years before a diagnosis was finally made.
I first learned about this thanks to Avril Lavigne, she said no one believed in her symptoms and the doctors made her believe she was going crazy.
Bless the people who are still fighting
4,5 years have Lyme myself. The worst experience I’ve ever had.
I know at least 5 people who have had Lyme, some twice. Getting a diagnosis and treatment is next to impossible from what I understand, especially for women.
Why is it more difficult for women?
Because many GPs / doctors dont take women patients seriously, assuming it's "all in their head" @@Wit2344
Well done. Seeing Dr Spector made me cry. I got to see him speak when he came to the Lyme conference in Maine. What an incredible human being. So sad he passed away:(
Thank you so much for this documentary!!!!
Thank you for watching!
What a good piece of journalism from DW - amazing
Thank you for your support!
This is 45 min excerpt from the FULL MOVIE NAMED "THE QUIET EPIDEMIC " released in 2023. 2 hour movie on Amazon and Kanopy.
Well done documentary 👏
Thanks for watching and for the feedback!
Excellent presentation, thank you.
I had severe Lymes and was diagnosed with ALS by a Mayo physician. I have told my story many times and met many who had Lymes - my conclusion is of irbid diagnosed early it seems to have a totally different outcome. I had it for prob 2-4 years before they even tested - and they only tested because I asked them to. A battle ensued btw the Mayo neurologist and my Lymes doctor. Then I was allergic to the medication but once treated I recovered. I was sleeping 23 hours a day and never felt so tired ever. Best wishes to those who are fighting this battle for recognition.
How did you recover? What was the treatment that helped you?
Autoimmune, MS, ALS, Parkinson--- all label diagnosis, caused mainly by tickborne infections.
Please let me know!!
I’m seeing success with a rife machine (BCX ultra) rifing 2-3 per day (!!) for tickborne pathogens (mainly Lyme, Bartonella, Babesia, but also Erlichia, Anaplasma, mycoplasma). Lyme and Bartonella need rifing every day 2-3 times (I do short sessions like 10 minutes for each pathogen), as they multiply quickly.
I have BCX contact version but I consider adding a plasma bulb and letting it run on my bedside at night.
I got Lyme‘s 5 times in north central Florida in the 90s and first half of 00s. Each time I went to a doc in the box (no health insurance) and for the most part was treated according to the Connecticut health guidelines for 30 days of doxycycline. One time the doc only gave me two weeks treatment and refused more after the test came up negative. I did the unthinkable and asked a friend, who was a pharmacist, to get me the rest which he did. Thanks to him I have not suffered from long Lyme’s. Most of the doc’s did not want to believe me. This mistreatment of Lyme patients is disgusting and horrific at best!
This documentary is very well done.
My daughter who is near 16yrs old now was paralyzed during her 3rd grade year and in and out of ERs and hospitalized from a tick bite. It took a lot of hard work, pain and suffering for her to get proper help. She still years later has severe asthma and weakness even after many different treatments. But she’s a lot better. Not cured though.
19 years ago I was bit by a tick whilst travelling in South Africa, classic bullseye rash, severe flu like symptoms , I didn’t get treated as didn’t know about Lyme disease, I just went on with my life. A year later symptoms started to appear in my life but they were manageable. Fast forward to a stressful life event and covid, it reactivated my lyme disease to a point where it was debilitating, that was two years ago- it affects my joint, my brain, my nerves, I am 43 yet I am so weak I can barely walk. And doctors do nothing but give me pain meds. “Falling through the cracks” is very true, it gives you a kind of PTSD as no one believes you as all tests come back negative. I am officially diagnosed with fibromyalgia & CFS. Mentally it is a strain. I have often wished for cancer because atleast then the medical community rallies around you, but Lyme is terribly isolating. For anyone else who is going through this, you aren’t alone, there are millions of us I believe and it’s only going to get worse.
This is where the rich should contribute and help the society!
If you want to see the first hand mental health effects of Lyme Disease, watch Hi Ren by Ren (Gill). Also, consider having a box of tissues on hand, that song is absolutely one of the finest pieces of music to be created in this generation. Then dive into his discography to learn more. Ren is changing people's perspectives for the better through his music. A Tick bite almost completely destroyed what looked like a very bright future, only now that future is looking much shinier than it did before. The man is leading a RENaissance.
Hi ren is a masterpiece.
@renmakesmusic I had no idea about the seriousness of this disease until finding Ren. He’s an incredibly inspirational person and speaks in great depth about his struggles through his music.
Excellent documentary thank you
thank you for highlighting the impact of this disease
Thanks for watching!
Thank you for this documentary. I was diagnosed with Lyme's in 2o1o while in Art College in Boston. I went into Brigham and Women's hospital with athritis, tachycardia, swelling of the brain and spinal cord, the erythema migrans covered my whole body - including the whites of my eyes and under my finger nails. Thanks to the doctors at Brigham and Women's who took Lyme's very seriously, over 3 and a half days I was stabilized. during which time my heart nearly stopped several times, and it was thought I would need to have a pacemaker put in to survive. I remember talking with my grandmother back in Washington state on the bedside phone at one point as my heart was slowly coming to a stop. I'm not sure what the opinion of the Boston Hospital was at the time as far as Chronic Lyme's, but, naturally, having nearly died I returned immediately Home (to the west coast) to be with my family. I have now lived with Chronic Lyme's Disease for over 14 years. West Coast doctors have been hostile to the idea of Chronic Lyme's and so I quickly turned to Naturopaths. I live a decent life these days but for several years i was afraid to even laugh because my heart would hurt so bad. In recent years I have noticed more trouble with my memory, concentration, and that it has become harder to control my temper. I don't consider myself cured of Lyme's Disease but have it in a holding pattern. Everyday feels like carrying a boulder on one's shoulders, walking neck deep in Muddy water, trying to keep one's head above the water. By sheer force of Will I survive and often thrive. 9 years ago I started my own construction company. and it is in a continuing state of growth. Although it is a struggle at times with athritis, chronic fatigue, the time it takes to get started in the morning, random wandering pains and soreness, etc etc. I was diagnosed with Bipolar Type II NOS when I was 18 and I believe the illnesses interact with each other, I would be curious to know more about research having to do with when there is a concurrence of Lyme's with Mental Illness.
Every person diagnosed with this is like white, white people make up beliefs a lot of stuff like ufos, so I’m skeptical even if this ones real, there could be other faked mental illnesses
I recognize your symptoms (especially "walking neck deep in muddy water" which is exactly how i described it.) High doses of methylcobalamin (a type of vitamin B12) and methylfolate helped me get some relief. I take daily injections of the B12 but you might be able to get away with taking sublingual lozenges. Give it a try. You can't overdose on b12. The doses I have needed for symptom relief are massive compared to the daily recommended value.
Fascinating discussion on Lyme disease! For those exploring alternative treatments, you might want to consider Jampha’s Lyme, Fungus, and Mold formula, known as Ly Fu Mo. It’s based on traditional Tibetan medicine practices and utilizes lineage-based plant medicines designed to support the body’s natural healing processes. Jampha combines ancient ethnobotanical wisdom with modern practices, offering a unique approach to remedying Lyme and its co-infections. Worth checking out if you’re seeking complementary options for managing this complex condition.
One of the many reasons I'll express my love for nature by watching National Geographic and leave it at that ~ nature is a powerful force and I have a lot of respect for it.
But this is a Deutsche Welle Documentary. And while you might not believe it, they also do ENGLISH LANGAUGE EPISODES...
Let me tell u something
U know that we are from nature?
Our place is everywhere like a 🐜 is everywhere
We dont have to ask permission to walk freely
People forget that we live on nature we just build stuff on it
@@benediktmorak4409 you didn't get the comment? right? the person was saying they don't want to go hiking/camping into the woods to avoid deer ticks that cause Lyme disease
@@janejustin1788 doesn't have to be a forest. ticks can be in the grass.on bushes.and a few other places....
Better to risk getting sick than never live at all! You’re missing out.
"Conversion Syndrome" being the catch-all for diseases we don't yet understand feels very 1800s/early 1900s. Reminding me of how Tuberculosis was referred to as "Consumption" or how people were sent for lobotomies for being burnt out and having a breakdown... It's wild that we still haven't learnt from our history
Extremely relevant documentary!
This is truly frightening.
I have a friend who has lyme disease and her son, born after she was bitten, also has it. They fought for years in Canada and couldn't get diagnosed. Finally they sent bloodwork off to Europe and got a positive diagnosis. It's hard to watch them suffer. They are both so exhausted and tired all the time and fighting brain fog, achy muscles, bones, joints, thin hair, and can't get through a day without a nap. Lyme disease is very real and VERY VERY dangerous.
Thank you for sharing with us! Very interesting! 👍
Thank you for your comment!
Had it as a kid in the 90s. Still remember being so weak i could hardly walk.
Every time a doctor can't figure it out it has to be your crazy and doing it to yourself 😢
Aren't they "punished" for wrong diagnosis ? And no trust of the patient's saying.
@@hdv6 no trust from patients but punished, no not always
@@hdv6 They're not punished for admitting they don't know. They also aren't punished when they refer you to a psychiatrist because you're "crazy." Yet they choose one over the other in most instances. I wonder why that is.
They are trained to suspect a somatic disorder if they can't find a diagnosis. It's horrible training.
@@KMx108 you mean "psychosomatic", right ?
Under Our Skin is the best doc I've seen on lyme disease and tratments.
The Quiet EPIDEMIC is the full movie. DW posted 45 min of the full movie on RUclips. The Quiet EPIDEMIC is on Amazon & Kanopy. Released 2023
Bless Dr. Spector for his work in creating better tests for Lyme's. that would be a game changer for sure. the last I heard the tests were still very expensive and inaccurate. A brilliant man to focus on this area. I hope his research will be continued and fully realized. Bless all of my brothers and sisters who also suffer and cope and transcend with this Illness, and that slowly we are being vindicated as the world slowly realizes it isn't "All in our heads." Peace and Love along the Way ~~~
How awful that such a great man like Dr. Spector passed away. He was a fierce advocate for people with this crazy disease. I hope and pray for a cure.
There are many cases in Europe as well, and we can't get treatment.
I speak for everyone when i say - thank you! Literal chills watching this video, felt every micro second of it.
Long story short... I was diagnosed with lyme 6 years ago. Even tho i was bit by a tick more than i can count, i never saw this 'bulls-eye rash' on me. After a very late diagnosis, i was in hospital two times... The first time they gave me amoxicillin, the standard two week antibiotic treatment. After that i was at home for months, just laying in bed, barely able to do anything, in pain, tired as hell. The second time i went to hospital (six months after the first one), i couldn't take it anymore, i had the same symptoms as the first time, only this time all the tests were negative, so without any treatment and diagnosis, with three doctors beside my bed scratching their heads thinking i was simulating or something, i was sent home. To this day, all the tests, pills and countless appointments to many different specialists (didn't matter private clinic or state clinic, felt like i was going in circles) all of it went from my pocket to the point where i went broke and still clueless, how to make this any better.
I hope that one day every doctor will admit that there IS such thing as a chronic lyme and that there WILL be a solution for this, no matter the stage. But for now i am done being kicked like a soccer ball from door to door when i know it is not gonna result in anything but wasted time and money.
We have ti talk about how ticks were used as a bio weapon and how that ended up getting out into the public
33:30 Vindication... What a moment that would be for people who suffer from this
A wonderful documentary shared by an amazing ( DW) documentary channel about Lime disease..in the USA
I worked with a man who had severe Lyme disease. His wife also had it. Crazy story 17 doctors and 2 hospitals later, oh yeah and we live in northern Canada. He used a tincture from the Amazon basin. Started walking after 10 days with 4 times the reccomeded dosage.
He had chronic twitching and his head would move side to side 12-16 hrs a day
What province are they from or in? I'm in Saskatchewan and I'm recruiting ppl with Lyme
About 20 years ago I was having pain, my hair was falling out, extreme fatigue and brain fog and didn’t know what was wrong. My doctor did a whole blood work up, and tested for lupus and everything, and I came back positive for Lymes disease. I ended up in the hospital on IV antibiotics because I ended up not being able to walk, and thought I would never walk again! I have flare ups still 20 years later and the pain is debilitating and I’m on methadone, and some days I just cry even with pain meds. I wish more information was available on this, all these years since Lymes was discovered and the doctors still have no clue really how to treat this disease.
I totally understand. For me personally kratom helps the most, it is an opioid ppl take it to wean them off stronger ones
The full documentary is 1 hr 40 min. Do yourself a favor and go watch the whole thing. “The Quiet Epidemic.” Much is omitted in this YT version.
The Lyme s disease is completely debilitating. I contracted it last May and although I do feel better after the antibiotic treatment I have still not regained my full strength and energy/ endurance
I contracted Lymes disease in 1998, misdiagnosed with ongoing flu, had very bad encephalitis and organ problems, etc., and finally doctors gave me antibiotics after 4 months. It completely screwed up my life, a lot from the brain damage, resulting in depression/anxiety and social problems.
Great Information 👍🏽♥️
Its so hard to listen to this documentary with the tension backing track constantly playing in the background.
I was in grad school in 2012 and the bulk of my thesis used Western blot analysis. I was told back then that it was a very outdated test method. I’m surprised they’re still using it for diagnostics today.
Lobby vs Lyme. DW, always Great documentaries!!! ⭐⭐⭐⭐⭐
Well you have my unwavering support! Everyone should think about their children especially considering how they play outside and in and near the woods..I know I sure do, it's disturbing really
I have Lyme disease. I've had it for 39 years. I was misdiagnosed for 26 years. I am in late stage and had a total jaw joint and mandible replacement along with 2 other jaw surgeries. I live in constant pain.
Hi. no treatment is working for pain ? Regards
Same here jaw and cheek pain for years
It wasn't silent for a long time. There was a period of awareness then it just died off. If you live where its more possible to be infected and pay attention you live with that awareness
Very informative documentary 👍. I was not aware of Lyme disease before.
Thanks for watching and for the feedback!
This is tragic. It is not just US. My two close friends from Poland suffer from this.
Both did go thro many doctors. Many of them said that my friends did made-up in their minds. That this is in their head.
Because of that both of my friends almost died but they have been lucky to do not give up and find different doctor.
It feels like approach to Lyme disease is like approach to Depression. Some people even in profession do not take this serious.
waouh, scary. what do you mean by "they almost died" ?
Had it for 8 year, undiagnosed and unaware. Got it in the Okefenokee swamp in Georgia in 1982 in early spring so must have been the nymph stage. I won't relate my symptoms or my search for medical care in 1989 finally. At age 73, after many years of vague issues with my heart, I had an ablation procedure and then a pace maker. I have worsened neuropathy all over and occasional mild arthritis. I feel certain my ultimate problem will be dementia if my heart does not do me in first; gradually it's harder and harder to get my words together, to pull out the words I want, to keep presence of mind, to remember, etc. I have not suffered as much as many others over my years, but I can't help but think my aging problems are going to accelerate faster than they would had I not been sick. It's especially concerning since I find myself an elder orphan.
Do you mean you had it from 1982 to 1990 (8 years)?
@@ronald3836 Yes, why do you ask?
@@virginiamoss7045 Thanks. I asked because I got the rash in 1997, was never treated, but so far haven't had related health complaints. I'd like to think my immune system managed to fight it off by itself, but I do wonder if there might be people who started to have problems after 20+ years. (So you had problems already much earlier.)
(I only realised what the rash was in 1998 when by chance I opened an issue of National Geographic at an airport and recognised my rash in an article on Lyme's disease.)
Regarding your fear of dementia, I remember reading about a case of someone who was thought to have Alzheimer's but his condition turned out to be the consequence of Lyme disease and was treatable. (Ah, you can google for "Kris Kristofferson".)
All the best!
@@ronald3836 Glad you got informed in just one year. After 8 years it has done it's damage and possibly is continuing to do so, but the standard antibiotic treatment, which I had in 1989, wouldn't change that damage which is showing itself now that I am aging. It did make me better; it was like a dense fog got blown away so I could think again; so clearly the diagnosis, which I had to fight for, was accurate.
I'd like to share my story with you in hopes that it will help you. Please supplement with high doses of methylcobalamin (a type of vitamin b12) and its cofactor, methylfolate (b9.) I was being considered for a heart ablation procedure but started taking ultra-high doses of injected methylcobalamin (daily) as well as oral methylfolate and my heart went back to normal sinus rhythm and the ablation procedure was canceled. My electrophysiologist had not heard of this happening, so I'm sure doctors don't even try this option to see if it helps. At the time, i was feeling like I was developing dementia and was having trouble finding words. It was so concerning, i had a brain MRI done. I'm in my late 40s! The b12 and b9 reversed this cognitive difficulty also. I can't stress enough that I needed massive b12 doses to feel better and none of my doctors saw the signs of b12 deficiency in me because my blood serum level was always normal, which threw them off the track. B12 serum tests are worth getting but they are only useful if the value is low (a clear problem.) If it is normal, it is not an indicator of what is getting into your cells. I have chronic Lyme as well as chronic mycotoxin exposure from mold, so i may need more b12/b9 than the average person and you may improve with smaller doses than me, but don't follow the "daily recommended value" ...what you need depends on how well your symptoms are being addressed. Don't let anyone tell you you're "just aging and this is to be expected." I have a great aunt in her 90s who has more energy than me! She is sharp as a tack! She also probably doesn't have Lyme. Also, don't let anyone tell you your B12 level is too high or toxic...that is simply not possible. Many doctors are trained to think something outside a lab reference range is a problem, but high b12 from supplementation is NOT dangerous (there are studies on this but it is not taught in med school.) My dad is 72 and had Lyme...he got proper treatment but said it was the only time he prayed to please not die because he was so ill. That was one tick out of many that have bitten him. I give him b12 shots and methylfolate pills and he noticed improvement. You can get your own methylcobalamin without prescription from perniciousanemia dot org. I buy Now brand 1mg methylfolate pills and injection supplies from Amazon. Subcutaneous injections are easy (similar to people who need insulin.) Be sure you're also getting enough vitamin D3 (with vitamin K2) because that helps keep your immune system up and fighting the Lyme bugs. I'm so sorry you have needed a pacemaker...Lyme definitely can damage the heart and it is why I keep going to my cardiologist to keep tabs on things...but I never would have known what B12 (and B9) could do if I had not witnessed it myself. It was a chance discovery and a real blessing. My mom supplements also now after seeing what happened to me (she witnessed me struggling to find words.) She now sees friends of hers with mental decline and tries to make the same recommendation to them but they will say "I'll ask my doctor about it..." and we know the doctor does not know what we know and her friends are just getting worse over time. My own brother is an MD and told me they barely teach anything about b12 in med school. His training has him thinking my parents and I are experiencing a placebo effect. It is so frustrating to me that, as smart as he is, that he doesn't have any better sense. I have documented evidence of the improvement this treatment had because I was on a 30 day cardiac monitor and I started the injections in the middle of that test and the results were pretty immediate. I have tried all sorts of other supplements that could have been a placebo but only the B12 with folate actually worked. (FYI - I eat a very healthy diet but the B12 and B9 I was getting from diet alone was just not nearly enough.) Wishing you good health in the years ahead. 🙏