Hi Hannah! I just watched Amy's video and she mentioned you in her description box so I popped over to your channel. This video is great. I have health issues too and these sound like great books. I am definitely going to check out the poem collection! Thanks!
I've found that people's perceptions of what we are capable of while being ill particularly as young people is very skewed. Most people expect me to be able to do a lot more than I can and don't really get that for me working 2-3 days a week is hard and leaves me tired and sometimes in pain. Even with people I've told who know I have health problems often expect the same of me that they would a completely healthy person and it's hard at time to manage that whilst not feeling guilty that you physically can't do all the things you'd like to. I've labeled them hidden illnesses because people can't tell we have them by looking at us which I think is part of the reason why they don't really get that we're ill or what our limits are. Thank you for sharing parts of your story :)
I read "When Breath Becomes Air" last year and was struck by how much I identified with his experience of dying due to my experience with chronic illness. Especially the part about finding his values (deciding what was important for him to be doing) despite not knowing an accurate life expectancy. (I may be chronically ill forever but there's a chance I won't). I'll check out your other recommendations, thanks for the video :)
Caitlin Brown same here! Having a life limiting illness has made me push my boundaries. I have performed poetry in front of big audiences, started a blog and a RUclips channel. These are all things I told myself I would do eventually - but I have done them now and am enjoying myself!
Very interesting video. I have endometriosis and bipolar disorder, so I understand the battle to just have an OK day. if it isn't one thing its the other. I should look to see if there are poetry books about endometriosis....
vanillahearts62 You should! I would be interested to hear what you find. I think representation in literature is really bad. I'm aiming to make at least one video about medical things/ peoples differences once a month. Be sure to subscribe if you want to see more!
Another really interesting video - I hadn't heard of Articulations so will be trying to track that down. I have a similar book which is mostly poetry and some essays called Beauty Is A Verb that I want to get to soon. I just finished reading The State of Me by Nasim Marie Jafry which was a really enjoyable read, a semi-autobiographical novel about ME that I could relate to a lot. I will review it on my channel soon. Also How To Live Well With Chronic Illness by Toni Bernhard and One Million Lovely Letters by Jodi Ann Bickley both brilliant. I have a video on hopeful helpful books where I talked about both of those. I also loved When Breath Becomes Air - so beautifully written and he really was an amazing man.
Amy Jane Smith Hello! I have linked articulations in the description if that is of my use to you. I have also invested in a copy of Beauty is a Vern and am going to get stuck into it soon. I will look up your recommendations - they sound really interesting.
Such an interesting video idea! I volunteer occasionally on an ambulance as an EMT so the patient's perspective is really important to me. Have you read Call the Midwife?
Hi Hannah! I just watched Amy's video and she mentioned you in her description box so I popped over to your channel. This video is great. I have health issues too and these sound like great books. I am definitely going to check out the poem collection! Thanks!
Gem Yeah, I really enjoyed that collection of poems. Thank you for watching :)
I've found that people's perceptions of what we are capable of while being ill particularly as young people is very skewed. Most people expect me to be able to do a lot more than I can and don't really get that for me working 2-3 days a week is hard and leaves me tired and sometimes in pain. Even with people I've told who know I have health problems often expect the same of me that they would a completely healthy person and it's hard at time to manage that whilst not feeling guilty that you physically can't do all the things you'd like to. I've labeled them hidden illnesses because people can't tell we have them by looking at us which I think is part of the reason why they don't really get that we're ill or what our limits are. Thank you for sharing parts of your story :)
I read "When Breath Becomes Air" last year and was struck by how much I identified with his experience of dying due to my experience with chronic illness. Especially the part about finding his values (deciding what was important for him to be doing) despite not knowing an accurate life expectancy. (I may be chronically ill forever but there's a chance I won't). I'll check out your other recommendations, thanks for the video :)
Caitlin Brown same here! Having a life limiting illness has made me push my boundaries. I have performed poetry in front of big audiences, started a blog and a RUclips channel. These are all things I told myself I would do eventually - but I have done them now and am enjoying myself!
Hannah Hodgson That's Awesome! Well done.
Very interesting video. I have endometriosis and bipolar disorder, so I understand the battle to just have an OK day. if it isn't one thing its the other. I should look to see if there are poetry books about endometriosis....
vanillahearts62 You should! I would be interested to hear what you find. I think representation in literature is really bad. I'm aiming to make at least one video about medical things/ peoples differences once a month. Be sure to subscribe if you want to see more!
Another really interesting video - I hadn't heard of Articulations so will be trying to track that down. I have a similar book which is mostly poetry and some essays called Beauty Is A Verb that I want to get to soon. I just finished reading The State of Me by Nasim Marie Jafry which was a really enjoyable read, a semi-autobiographical novel about ME that I could relate to a lot. I will review it on my channel soon. Also How To Live Well With Chronic Illness by Toni Bernhard and One Million Lovely Letters by Jodi Ann Bickley both brilliant. I have a video on hopeful helpful books where I talked about both of those. I also loved When Breath Becomes Air - so beautifully written and he really was an amazing man.
Amy Jane Smith Hello! I have linked articulations in the description if that is of my use to you. I have also invested in a copy of Beauty is a Vern and am going to get stuck into it soon. I will look up your recommendations - they sound really interesting.
Hannah Hodgson Meant to say - Electricity by Ray Robinson another one I could relate to, main character has epilepsy.
I agree, fantastic book!
Amy Jane Smith Yea Electricity is a great book
Such an interesting video idea! I volunteer occasionally on an ambulance as an EMT so the patient's perspective is really important to me. Have you read Call the Midwife?
I have, it's a great book. For once I actually think the TV series did the book justice!
Also, I know it is a lot of work, but it would be really useful if you could link the books you discuss in the description.
Thank you - I wanted to do that but forgot. Its now done :)