Rant: Physician Medical Gaslighting and CPAP
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- Опубликовано: 10 сен 2024
- Medical and Sleep Medicine Physician Gaslighting is discussed
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Hello Jason!
If you haven't had it done yet, I would say the absolutely most important thing to get checked asap, is your PSA blood marker. "The finger test" , is outdated and not considered reliable/accurate for risk assessment anymore, by doctors following more recent medical literature.
Besides that, I'm sure you can Google search treatments for enlarged prostate, as well as I can! 😉
But, avoiding caffeine and alcohol, and stop drinking liquids 2 hours before going to bed. Are standard advice for general prostate issues.
Putting a schedule on pee time /toilet visits(meaning, you make a habit of going at specific times, even if you don't initially feel the need), should help getting a more regular bladder emptying and help keeping it's function more reliable/stable.
Eating a banana close to bed time(unripe or close to it, as sugars has opposite effect) could help with reducing peeing at night as well.
Apnea control I trust you know how to deal with, but blood pressure and cholesterol levels would be some other tests I would recommend getting looked at, if you haven't had those done recently.
Good luck mate and let's us know, if you succeed in locating the issue(s)! 🙂
I share in your rant. I'm sick of it.
You nailed it. I won't start cuz then I can't stop ranting. Maybe, once AI replaces all doctors, we may have a chance?
Jason nails it! He just described every CPAP visit to my MD!
Ah yes, you had what basically every fem person goes through at the doctors.
'My ovary has exploded, doc'
"Have you considered being in less pain? In fact I think your pain might be entirely fictional. Bye.'
Everyone gets that. You've fallen for the "greener grass" fallacy
@@cebruthius It's true that everyone CAN experience it, but women experience it EVERY TIME. I've been to the emergency room a few times and every time they asked if I was pregnant multiple times, even after telling them I'm both celibate and on BC. They made me take a pregnancy test at 13, when I was there for dehydration. Every time I go to get my BC to treat the condition that probably makes me infertile, they ask if I'm pregnant. I was in pain 24/7 as a result of fibroids and doctors insisted it was period pain (fun fact periods don't occur 24/7) or wasn't actually sufficient to cause me to lose consciousness. Your experiences are not universal. Neither are mine, but every woman I've ever known has experienced this.
@@SnowFox102 The top level commenter was referring to their verbal input being ignored and invalidated. That is universal.
Jason, I have been very lucky with finding doctors that actually "listen to me" because if they don't they never see me again. They obviously don't care about the patient. I know that doesn't help you but I do understand. It could make you want to yell at the doc "shut up and listen, please".
As for your issue, I have not had the misfortune so far but I am only 71 and things keep falling apart.
I love your ranting and good honest information about CPAP therapy.
Thanks,
Paul
I’m happy that I now have a doctor who pays attention to the CPAP at all. I recently saw a neurologist, and he was appalled to learn that I’d been using a CPAP for years with no reviews or follow up or prescription changes (me: there’s supposed to be some follow up?). He wrote me a script on the spot for a new ResMed (which works great) and I have a follow up appointment already scheduled. (Shortly after receiving my original CPAP I had moved to a new city and never saw that old doctor again, I suppose that’s how it started.)
I have been with the same awesome PCP for around 30 years. When I start telling him about an issue, he stops and looks at me while he quietly listens. When I have finished, he starts asking relevant questions. ALL healthcare providers should behave this way, even if it is the 1000th case of the same stomach bug that has been going around. LISTEN TO THE PATIENT AND LET THEM SPEAK.
Recently had my annual 15 minute appointment with my sleep doctor. A complete waste of time. I brought along 4 pages of OSCAR reports and charts, but he said he didn't want to look at them, much less add them to my medical record. Said ResMed's summary report generated by my machine is all he needs to see, and if he accepted from me the OSCAR information I brought along his staff would have to scan the pages in and that would be too much. Time to jettison him.
Purrrrge!
Ha Ha. I disconnected my modem (after compliance period), so there is NO data being transmitted and the specialist HAS to look at my OSCAR data. LOL
I was shocked when I was treated this way at Stanford Sleep Medicine. They didn’t listen to me at all and asked stupid questions like whether I was still with the girlfriend that made me get a sleep study. They are not training docs to look at cpap data at all. (My AHI is very low but I still often have poor sleep quality.) One doc said that he wakes up 8 times and that’s not abnormal and I had to make the argument that RERAs are not normal. He also made lots of excuses to not look at my Oscar data, saying things like privacy lawyers will be after him.
RERAs mean you need to see ENT if you got nasal blockage, possible tonsil issues. Oral Sureons and Dentist to address mouth, tongue and jaw problems. Also see a sleep psychiatrist - psychology of sleep for CBT therapy for poor sleep habits that keep you up at night, anxiety around sleep, address racing thoughts, etc.
Your story about people's stories with sleep doctors hits right on the nail for me! I've had sleep apnea for 20 years (and been medically gaslit and gatekeeped all this time). The last real sleep doctor eval I had he literally said, "well your numbers are good, you had the surgery to open your airways, the only left we can do is break your face". So I just take really good care of my cpap machine and for the last 10 years have been able to keep getting my supplies without having to see another sleep "specialist". Recently my cpap supplier suddenly needed a doctor's signature...so I was like okay make a simple appt. with a sleep doc...just in and out...just need a signature. Appt. seems to go off without a hitch (mostly kinda)....he took my basic info down...reviewed my last sleep study...disapprovingly because it has been "so long", then he handed me back the papers and said he put in the info for my supplies. That's it. I get home and apparently he decided to diagnose me with psychophysiological insomnia?? (Insert side note I also have autoimmune disease, and a variety of other digestive, skin, spine issues that currently are the primary cause of my sleep issues...of which I told him...and was on my questionnaire) He also had out right lies on my notes about how we talked about that, and my allergies, and my sleep hygiene, etc. (of which none of that happened of course) Finally got a hold of him and he tries to mumble off some thing about how he diagnosed me off of my questionnaire (of course he wasn't wrong at all)...but said since he isn't going to treat me for it anyways he will remove it from my record. But what doc gives a person a dx off of a entry form vague questionnaire without having any discussion at all? This is just my most recent "incident" with gaslighting "specialists"....which just happens to be related to your video. I have a ton more stories...I mean I can't make em up they are so friggin' rediculous! Like did you know a rheum can tell if you have inflammation, organ damage, or an autoimmune disease just by looking at you for 5 minutes without tests, imaging, or any physical exam? lol Thanks for the video it really helped a lot!!
I have never even met my sleep doctor lefty videos saved my life years ago I had to do all my own research for years it seemed that the Cpap machine made me worse not better what I needed was a full face mask and much much higher pressure than the doctors and machine said now I adjust my machine weekly I feel great thank you lefty I have supported you for years
I feel like I get gaslighted almost every time I go to the doctor. It happens for pretty much every issue I bring forward. It can take many visits to make any progress because I basically can't get a word in edgewise - almost exactly as described in the video. I thought that it was because I am a middle-aged woman. But, I now know that it happens to guys too. I suffered from sleep issues for years. OSA runs in my family. I remember being out at the lake and the snoring from family members was so bad it sounded like I was at the Indy 500 or something. I t told my GP that I needed to be tested and she kept telling me that I am the wrong gender and also didn't look like I had sleep apnea.
Lanky i’d hug you if I could. Cheers to you. You just described my CPAP experience through my HMO. The fact I have an HMO and am using RUclips to learn how to get better, I’m watching strangers so I can understand what’s wrong, I’m experimenting on my own to feel better. You’ll be hearing more from me soon ;)
I totally agree with you. Loved the rant. My favorite part was you putting another quarter in the machine🤣🤣. Thx for keeping it real.
When i couldnt adjust to cpap, my Dr said that since i was meeting compliance (by wearing it while working) that there was nothing they could do but refer me to a shrink. My prescribed pressure was 4-16 (lazy dr special). Thanks to your channel, OSCAR and mouthtape, I came through it.
Perfect. The sleep/COPD/asthma/CHF physicians I worked with in my Lung Health Clinic often told me that their visits with patients who had been through clinical education almost always went better because they didn’t have to take time to teach the basics during a visit, and the questions the patients did have were often spot-on, and the patient was ready to go deeper and more quickly into pertinent information. They made connections through the education venue. Great topic.
i don't have a CPAP but dealing with doctor gaslighting for years bc of a PTSD diagnosis. love your yt nickname lol
This is why I love your channel! You’re very transparent & what other YT channels will transition from talking about the NES classic ‘Mike Tyson’s Punch-Out’ to personal urinary+prostate experiences?! Beautiful.
Thanks Nammm
CPAP is a one trick pony! Yes, if that trick works for you, great! HOWEVER, if you have a problem like A HEART CONDITION it's worse than worthless. Seems to me that if they can't sell you a PAP machine they'll kick you out of their program without a fair-thee-well or for that matter WITHOUT AN OUT BRIEFING! I 'failed' their test TWICE and with NO out brief or direction as to what the problem might be. I finally had to have a heart attack to get on track with a proper treatment (I needed stints...man, that would have helped out a couple months before the HEART ATTACK!)
I should take them to court, but at this point the thought of dealing with both SHYSTERS and QUACKS at the same time is more than I can stand!
Another quality rant mate. Hope you had a nice Christmas with the fam. All the best for 2024 xox
Ah, Lefty....you don't need a doctor to tell you to change to your Right(y) to fix your problem. Feel better and thanks for being there for us!!
0:09 My Name 0:02 is Bruce and
I am a male, aged 81 and in good health for my age.
My story is quite long. It takes place over a period of about 2 years. I already knew before I got to the first doctor that I probably had sleep apnea. My primary physician sent me to a neurologist whose main practice was General neurology and not sleep problems. He gave me a device to take home and spend the night with it. The result was on the follow-up that I had 26 events per hour. The neurologist sent me to a sleep lab for a night's observation. I knew from research I did online that sleeping pills can help in the treatment of sleep apnea as a side effect. I took the sleep med because I wanted to be sure that there was plenty of data from the sleep lab to do a definitive diagnosis. The neurologist never asked me if I was a mouth breather and prescribed a nasal mask for the night at the lab. I believe that he should have described a full face mask. The neurologist prescribed a CPAP machine at a pressure of 10/6 which was pretty much useless. The neurologist practice was very busy, with very long waits for follow-up visits. Therefore I decided to find a doctor who specialized in the treatment of sleep apnea. The new doctor I found was better than the first, but was very rigid. He sent me for another night at the sleep lab and the results were that I had treatment emergent Central apneas. Sometimes patients on CPAP find that the machines cause Central apneas. Before he could prescribe a new machine, because of the requirements of insurance, he had to send me for a second night at the sleep lab. It took a long time to get the BiPAP machine that he prescribed to eliminate the central apneas. I did somewhat better on the BiPAP machine but we had a lot of trouble getting to the right pressure. After an extended amount of time, with the doctor increasing my pressure settings ( I also adjusted the pressures myself, which the doctor was very much against my doing without a good reason) and over a pretty extended period he kept raising the pressure higher and higher. At this point I was on an evora full face mask after trying many many masks. Also because of the pressures I had to use a chin strap, and ended up trying several different types that were terrible. I was lucky that through youtube, I discovered the Knightsbridge chin strap which helps prevent leaks But as time went on, he raised the pressure up to 19 cm which is very high and very hard to tolerate. I watched many many videos on youtube, and learned a great amount about the treatment. I realized I needed to be on a higher level machine, an ASV ( adaptive Servo ventilator) but because the high pressure of the BiPAP machine reduced the number of nightly events to around 5 per hour (but I was still very tired the next day) the doctor would not prescribe it. In his opinion I did not meet the protocol for him to prescribe the advanced machine. He didn't prescribe it because he said that insurance would not cover it on my Medicare Plan. I did not realize that I could have purchased the machine myself at a cost of a around $3,500. In any event I decided to seek out a third sleep doctor. I explained to the new doctor the history of my treatment, and asked him if he would prescribe the advanced machine . Of course before he could do that I had to do another night in the sleep lab after which he agreed to prescribe the ASV machine. By now I am sure you were wondering the results of the use of the new machine. It is actually quite phenomenal. I want to mention that throughout my entire ordeal, I used a program called Oscar and a program called Sleep HQ which allowed me to see in detail my nightly data. My nightly events have been basically eliminated and I have after being on the machine for 6 months an Ahi of less than .5 per hour and a total AI of 0.1. I no longer wake up multiple times at night to pee and sleep an average of 8 hours per night. I seldom am tired during the day, but if I am, and I take a nap, I use the machine. My extended message above was not clear that my AHI is: .5 (less than one event per night). Also, before the ASV machine, my O2 levels would drop to the upper 80s several times a night (I have an O2 ring that records all night). With the new machine my O2 levels never drop below 96. My only complaint about the treatment, is the pressure of the mask against my face. I never feel the air pressure that I used to get from the previous machines. My Oscar data shows that before I fall asleep, my pressures our only about 10 cm which I don't feel at all. Once I am asleep, the machine continually adjusts my pressures up and down in response to my needs, occasionally at a pressure as high as 21 cm which is very high but I never feel it. My average pressure is 14 to 16 cm. If I had not been so proactive in my treatment, I never would have gotten to this point. I feel sorry for many of the patients out there who never get to the point in the treatment of being so comfortable in the treatment of sleep apnea. There must be many patients out there who should be on the advanced machines but never get there. Some patients cannot be on this type of machine because they have COPD but that is a minority of the sleep apnea population. I think there should be a lot more RUclips videos on the benefits of the ASV machines as I cannot imagine most patients getting my results. I would love to hear comments from other patients out there.
Doctors aren't smart; they are obedient. Not obedient to the patient, but to their professors, medical directors, pharmaceutical companies, and insurance providers.
Speaking of weiner stories. My ed disappeared when I started mouth taping, which was the first clue I had UARS.
Happy new year yall. 🎉
yay for working weenie
UARS gang 🤝
@cebruthius does cpap help with uars ?
Have you had your testosterone levels checked lately? Low T can cause enlarged prostate. Testosterone Replacement Therapy can get the prostate back to a normal size in about 6 months, if that's the issue. The modern reference range of 200-250 is super low. Most older guys should be around the 700 level or so, depending on the person and other symptoms. There are plenty of channels that cover this on RUclips, if that helps.
I really thought you were me at my doctor appointment... I was in that situation where I was waking up after 8 hours and still tired and no energy.
I got fed up and told my doctor " hey Listen I Can't continue like this and it ENOUGH". he look at my blood work and he found my blood level kind of low. So he decide to test my stole for blood because I have the crohn disease and it came back positif I'm bleeding from the inside. They put me on Iron supplements and it getting better.... thank you for your video!
The name of the game is to empty to avoid UTIs. The rest is just anxiety. Been there. I sit to pee and it works. No shame to do the same.
Your friendly neighborhood sidekick stalker here lol...Based on your description, these symptoms seem to be consistent with a condition known as Benign Prostatic Hyperplasia (BPH). BPH is quite common as men age, and involves the enlargement of the prostate gland. This enlargement can partially block the urinary tract, leading to symptoms like varying urine flow, urgency, and the feeling of incomplete bladder emptying. Your experiences of intermittent flow patterns, urgency without high urine output, and the lack of pain during urination align with typical BPH symptoms. While BPH seems possible, it's of course important to maybe find a better doctor to ensure an accurate diagnosis and effective plan. Treatment can involve a combination of lifestyle changes, medications, and in some cases, surgery. Sidekick out!
Ahh, the good ole enlarged prostate. Hits most of us guys 50+, and is a pain in the butt or the Other Place… so I got the same info you got as to coffee, blah blah blah. Then the Dr asked, would you be interested in a procedure that reduces the volume of the prostate around the urethra. “Sure”, I said. Cut to the chase, it’s called Rezum and I had it 3 years ago. Outpatient right there in the office… no sedation and you drive yourself home. Worked like a charm for me after a week or so of everything settling down. I’d highly recommend you ask your urologist about it. BTW, I Love your channel as to the info given, but also the humor that makes it less like 9th grade chemistry class and more like after school out in the students parking lot. 😂
Even if you get time to speak, it's in deaf ears mostly. Last time an ENT, after my thoughts, just clown smiled at me and told me how wonderful the body is. He looked in the throat and saw 'all looking goooooood'.
This is exactly why I am off CPAP. I had some physical issues that contributed to my sleep apnea, lost a bunch of weight, but still I continued to have issues with shallow during REM sleep and low O2 saturation and CO2 retention. Show the Doctor my Oscar data with O2 numbers and while they were dismissive of Oscar, they ordered up a split sleep test including CO2 monitoring.
As things proceeded through the sleep test, I didn't meet the AHI requirement to do a titration. To say I was pissed would be an understatement.
Return to the Doctor's office, they were disappointed by the lack of a titration or even a mask being employed. The good news they said is they were able to monitor my CO2 and O2, which I had already alerted them of the issues.
Doctor recommends a new pressure setting, won't give it directly to me but will have the DME upload it. DME doesn't have access to my machine, get that straightened out, and I'm blessed with a 5-15 auto setting.
Now that I'm thoroughly pissed off, Philips drops their bomb, and I'm through with the whole fucking thing.
Oh, and saved for a later date my issues with mucus in urine, bloody mucus in urine, and a doctor that is singularly focused on my sex life, which is unspectacular, single partner, married to my wife for the last 35 years.
I think the fact that you are still married to your wife and faithful to her IS spectacular. So glad for you both.
I’m a lady, but I can relate to all of this with my husband & all my own crazy doctor visits.
Re: your male plumbing problems. It might not be the prostate. It could be the bladder neck sphincter. I had this problem since my teenage years (so for more than 15 years) where it would sometimes tense up (bladder neck spasm) and it would be verrrrry uncomfortable. You could try getting some supplements for vitamin D3 to enhance calcium absorption, magnesium, and potassium. Once I got my micronutrients in order, the problem completely resolved.
My sleep doctor was terrible. She set me up with a range of 5 to 15cm. On the follow-up appointment she was mad that I changed my pressure. I watched your videos and slowly raised my starting pressure because the Auto settings aren't very good. Changing my pressure helped my ratings.
Soo Good Jaw-SUn..... I was just checking my PAP therapy and thinking back to my Sleep Dr visits and also G.P. and PSychiatrist...... I got up all thei asses and went in one day and just layed it down to them like so....... Are you willing to work with me or not? if not thats fine im happy to see another Dr for a second opinion...... GP was cool, Psych sounded like your Dr.. Was thrown back in his chair lol.... Sleep Dr is not after 1 year sending me for another sleep study with CPAP this time to see whats going on........ Friken Dr`s have such a superiority complex they need us to remind them that we the Patients are the clients and should be treated as such....... RANT ( just starting) LOL
I had a cardiologist gaslight me. My old one moved. The new guy pulled an old test of a non diagnostic echocardiogram and tried to tell me I had a valve problem. I knew that was wrong, because that film should not be used. I went to another doctor and my valves were all fine. I love it when doctors think we are all stupid. Go to a good sleep specialist. If your problem is not being addressed, go to someone else.
A dozen doctors told me I had anxiety. These a**holes didn't catch the fact that I had 4 complete collapses in my airway when I slept. Thank god I pushed to self advocate
I have a friend who had a bladder stone that had similar problems. The found it on ultrasound. Good luck!
I legit could not have said that any better. My current doctors are actually really good listeners, but I had to go through a lot of bad ones first.
I gave up even going back to my CPAP doc, he was an idiot right out of the gate lol.
In his mind you are a "consumer" of services, procedures and drugs and not a patient- it is a business after all. It is call standardized medicine and it is one size fits all.
Exactly. In the Netherlands, everything is done according to "the menu." If your problem is not on the menu, then you're out of luck. And the menu lags about 30 years behind current science. And because it's state-run healthcare, there aren't any private clinics in the country that can make up for these shortcomings.
From my perspective, i have found that it is the younger drs who seem to need this lesson more than the older drs. I have been blessed with a GP that plans on working till he dies (he graduated med school in 64) and when he does referrals he sends massive notes so the specialist knows what’s going on more than I do.
Idk, I've had opposite experiences . Young drs seem to be more willing to dig for causes of ailments in my experience.
This just tells me it's as much about a person's natural curiosity to learn as it is about their age and experience.
Another tip re: your male plumbing problem. There's a US company called High Island Health that manufactures "tools" for enlarged prostates. They have a secondary brand for recreational purposes, I have their largest model and it works great. I'm hoping it will have a protective effect for the coming years sinde my plumbing isn't enlarged yet :D
Thank you for this tip! on their website right now
Boy can I relate! God-complex-know-it-all much? Since the goal of CPAP is supposed to be better, safer rest and good O2 sats, maybe we should show them a record of lousy O2 sats over time [with an O2 ring], and tell them you do not feel rested, for example. We know that these machines miss MANY apneas and hypopneas in their calcs and AHI is a lousy indicator of the quality of sleep. Perhaps rather than letting them just look at your AHI, impress just a couple of key points and don't let them detour. Of course, this approach may not help with some jerk-docs.
Damn. Tell me what you really think. All my issues such as BPH disappeared the first night I started CPAP. And you are part of that solution.
As for doctor follow-up on CPAP, my therapy, etc., First, at Kaiser, I have yet to actually see a CPAP doctor, as they only provide access to a Rcp. And when I showed my Rcp OSCAR and SleepHQ, he said that is good info, thank you. I knew I would never learn anything from them. Armed with my learnings from you and Uncle Nicko, I am empowered to manage my own situation, which is much like riding a bicycle where one must fine tune the CPAP machine settings and results. And sometimes other factors. I have UARS, thank you very much Jason. As without you I would not have known this. And I have learned how to help reduce its influence with the likes of ibuprofen. And I can see the direct correlation with SleepHq or OSCAR.
With all that said. Jason, and Nicko are my goto sources for how to manage my OSA. Kaiser is merely an equipment vendor and Medicare paper pusher for me.
What advice do you have for patients who can’t wear cpap? I’ve tried and I can’t keep it on. I rip it off in the middle of the night.
There is a surgical alternative.
Have you tried different masks?
If your machine's set on APAP with a wide range, it could be the pressure fluctuations causing you to take it off. What are your pressure settings?
Could be residual RERAs. It happens often.
This was seriously your funniest video ever !!!!
Lefty if your really wanting to know , I went throught the same thing and had to have surgery done, get the urologist to have a look because the prostate can inlarge internal as well , as for the scoping the freeze you no pain , I have had it done twice
Leave the BEST GUY MD and find a better one that has better patient relation .
OMG! I deal with this BS on a regular basis, except with a neurologist that specializes in neuroimmunology and rheumatology. Understand this first.. they know EVERYTHING and are ALWAYS right, so they feel the need to totally discount everything you are saying and proceed to tell you why you can't possibly be experiencing that because your MRI is very "abnormal, but not abnormal in the right areas". After that shard of wisdom, then I hear... well I'm not exactly sure what to tell you... see me in 3 months. ARRRGGHHHHH!!!!
Hell yeah - the dr can’t be bothered. They send the equipment for you to use. Then they say you need a machine. I have had mine for 4 yr and 2 never used cause I get rhinoplasty- runny nose and no dr to work w me. Also never had a good night sleep
I wanted to buy a new cpap machine but I needed my prescription then I needed a new appointment of which the only thing done was the dr telling me to trust my dream station and do t buy anything else . By the time I got the prescription document the cpap was out of stock.
They didn’t even want to see my numbers .
Sorry bad rant
Judging by your pee symptoms you need to get referred to a urinary surgeon to get a TURP operation (AKA a rebore 😒). I had it done and it is great
My local ENT sucks ass. They go by scripts. If you don't fall right in line, or their solution doesn't work they revert to being children basically. Use expensive scans as threats, don't listen to you, that kind of thing.
Get a new doctor.
Yep, we need doctors that can be trusted. I'd never be able to trust a person like that.
I had an ent originally do an overnight test 20 yrs ago. No cpap. Local pulmonary does the send me in mail but she can’t help or make no effort. I go to John Hopkins to work w the chief pulmonary to help me to use this cpap. He goes after 4 yrs where is the chip. What chip no one ever wanted to see data
Sorry to hear... might not be just coffee... other food allergies could be indicated. You know you have prostate problems... you're already on FlowMax... is it stent time? Stick with your urologist and see what happens. I'd try pushing the fluids, I don't believe it could hurt, myself.
In general lots of groups who are treated this way get lists of doctors who aren't like this and share them. Like for example, some doctors will tell all fat people to lose weight no matter what the complaint is, so fat people collect lists of doctors who actually think about other possible diagnoses. One of the ways to get around the usual diagnosis in that community is to ask, "What would you recommend to your non-fat patients with this experience?" and I think you could ask a similar question like, "if it weren't that what else might you suggest?" Mostly we just end up going to a new doctor because the original one can't see past that one answer.
I have this issue with CPAP too. I sleep way worse with CPAP because I have a very small head and EVERY mask is built for large heads. No one wants to hear it or design masks for anyone but the main people who have CPAPs. Hey designers there's a cool new thing called elastic. LOOK INTO IT. I got tested for apnea to rule out something else and never felt tired after s2leep and now I always do but none of the drs. find it to be a problem because my numbers are "good."
Have you tried Resmed "for her" style masks which are purple instead of blue but the headgears are more petite? There is also an old mask that comes in an XS which is a Mirage Quattro XS. Its an older style but I think you can still get it.
@@jamierick79 I have, but apparently I have a child sized head! :D For me the plastic bits on my nose fit but I just wish I could get an elastic headband instead of the scratchy velcro. I've settled on the F&P evora nasal only. I tried the bleep, but I need to take my mask on and off a lot so it didnt work for me.
Doctors and especially surgeons can be complete whackadoodles and unfortunately if you have one that is talking crazy your only option is to find another one. However in my experience you might end up with just another flavor of crazy. You have my sympathy because prostate stuff is a b*tch and my father got put through something I'll spare you hearing about. Your quest, should you accept it, is to try to get recommendations for the least insane doctor for your problem. As for cpap, yeah, everything you described is exactly what I was put through, with the minor variation that I was put on Modafanil for fatigue because I guess it was easier than helping me figure out the cpap. Now they harass me because Modafanil is a scheduled drug which sets off all the alarm bells even though it's a medication they prescribed for a documented condition that I have. I'll stop here though I could write a book. Good luck to us all.
Hey Jason, on my road to trying to figure out why I was so tired I went to see a urologist because I was peeing a lot (especially at night), but not much was coming out. He gave me a pitcher and a pee diary, and I had to write down details about every urination. I went back and he said it was odd, so he scheduled me for an endoscopy (camera up the pee hole). It was not fun at all! They fill your bladder with so much fluid it feels like you’re about to explode, and then he fills it up some more. It only took about 5 minutes, but it felt like half an hour. Then he pulled the camera out and I thought I was going to pee all over the place, but I didn’t. They all left the room and I felt like I’d been violated lol. Then I had to constantly pee for the rest of the day and night.
Turns out that untreated sleep apnea causes urination problems at night.
Btw this is Jon Gagné. My sleep is still terrible and I don’t know what to do.
ouch! I wouldn't be able to pass that test without a ton of narcotics to put me a sleep for 2 weeks....
If the doc is that much of a knucklehead, then he probably won't change even if you correct him. He may behave properly when he's with you, but if it's not his nature to behave the way you want him to, then he probably won't be as good at it as a doc who responds properly by nature. So, get another doc. I always walk into an appt with a new doc in assessment mode. If I don't like how the doc is behaving, then I move on to another doc. You'll never change them. Good luck, and thanks for the great vids.
You mentioned a weiner probe, and MY legs clenched. Noooo thank you!
Are sleep doctors supposed to follow up with you more than once? ...I say "doctor" loosely, since I only saw the actual MD at the initial "let me check you out" appointment. But the techs in the room definitely just sat me down, said the numbers were fine even if I felt no different...and no followup was ever mentioned.
I'm STILL upset, years later, that all my friends told me what a night and day difference CPAP made for them, and not once have I felt any different than I did before. Finally getting health insurance though, after 4 years without, so maybe I can Mike Tyson combo someone into listening to me.
I looked up the procedure and a picture of it came up. If I don't cancel this appointment it will be a miracle.
@@FreecpapadviceI am not going to look that up. 😂 I hope all goes well, though!!
My boyfriend is going in for a vasectomy consultation next month, and I keep thinking about your video where you said it felt like a donkey punched you in the nuts...and I kind of want to tell him not to do it. 😅😭
@@veryberry39I wouldn’t do it again. I feel like things got a little “off” after. I wouldn’t do it again.
Just went through the exact same process (put on Flomax, didn’t help) pee-flow test twice, finally the dreaded uroscoping…it sucked, and peed blood for a week. Ultrasound followed, and got nothing from the doctor (top rated in my area).
Preach, Sister.
You're right on.
I wish I knew how to get to the Oscar data. I’m six months into therapy and still can’t make it past 2-3 or four hours once in a blue moon I’ll get to five or six hours. I’m experimenting with different masks. Nothing seems to work is my pressure too high. Is it too low? I recently learned how to get into the clinical settings and started playing around with the pressures, I’m getting less than 1.0 events per hour since day one and My sleep apnea is mild but it’s still frustrating nonetheless. Switch doctors BTW. Sounds like a moron.
If you're "mild" you may have undiagnosed or residual RERAs. RERAs are just as harmful as apneas or hypopneas and the machine doesn't count them. This channel has some good videos on that topic.
If you're "mild" you may have undiagnosed or residual RERAs. RERAs are just as harmful as apneas or hypopneas and the machine doesn't count them. This channel has some good videos on that topic.
Oh boy, another thing I need to learn and look at. I have no clue at all whatsoever what that is but trust me I will find out. Thanks for the info. What a steep learning curve this whole thing is.
The CPAP Friend's Channel helps you visually setup OSCAR. ruclips.net/video/32JwMc6dphQ/видео.html
I wonder if what they say about pressure in the airway increasing the production of nitric oxide in the blood stream and what effects NO can have on the, um.. wiener and associated area.
Happy New Year !
They caan't keep gettting away with ittt!!
This story made me laugh 😂
I had this for a couple months after a mild covid infection. I had a bunch of tests all normal. But i did have an ultrasound of my prostate and it was enlarged. The urgency to pee but minimal peeing resolved itself after time.
I have/had the exact same symptoms and a urologist diagnosed me with overactive bladder and put me on Myrbetriq and it works wonders. Hope you are able to figure it out and get it fixed.
I had a reaction to long term use of prescription allergy medication that sounds alot like what you are describing. Been too long ago to remember what it was, big and shiny green pill.
Kaiser does not employ any sleep specialists
They do in my area: thrive.kaiserpermanente.org/care-near-you/northern-california/southsacramento/departments/sleep-lab/clinicians/
You see them initially to get your machine, then you never see them again or hear from them again. And no one monitors the machine once you get it!
If Jason was a boxer he'd be Sandman
As an UARS survivor, I experienced extreme medical gaslighting basically for more than a decade. Once the truth came out, my trust in doctors and the medical system was completely destroyed. As a result, I never took that thing that everybody wanted to put into my arm, and I'm kind of happy about that.
An overworked doc (normally a good guy honestly) got openly angry about an inability to tolerate CPAP (using a recalled machine that was probably causing a problem in retrospect) and just gave up. Forget the fact that the machine caused immense pain sinus pain and one heckuva sore throat leading to pulling the mask off after an hour or two. Flonase and humidity didn't help. Getting a history is the most important part of most medical assessments. Ask open ended questions and listen.
I think patients need to have a concise agenda, repeat themselves if needed, and emphasize the biggest problems and ask for solutions directly.
My advice: Write down in bullet point a summary of why your there. Greet the Doctor, put the list in front of them, immediately say please read this before any discussion. “IF” they’re a good practitioner they will thank you for providing a brief summary then know where you coming from…if they push the overview aside and go off on their own tangent, find another Doctor!
Re: Urology, after many years and challenges for myself, I’d suggest getting the Cystoscopy done. They should use a mild sedative if you find it confronting and it has a good chance of finding the issue (possible bladder stone). Also tension related tight pelvic floor muscles could be a problem. There are exercises to deal with that plus other treatments including Botox…yes, not in the face but rather down below into the pelvic floor muscles. I hope you find a solution as this can really affect your quality of life. Take care🤞
Thanks. The Cystoscopy is the "weiner probe" mentioned.
A physiotherapist who specializes in pelvic floor issues might be someone to visit. Male and female patients.
Some doctors are lazy, or just greedy.
Maybe they’re being lazy and don’t want to take the time 😂
In the US they prescribe more drugs.
In Canada they prescribe MAID (medical assistance in dying) let’s here it for socialist health care.
My boss and a few people told me I didn’t look good, I told them but I feel good, he said I should go to the doctor and get checked out anyways.
I went to the doctor he asked what was wrong and I said people are telling me I look bad but Doc I feel good.
He grabbed his medical journal and started flipping pages he mumbled looks bad feels bad, nope that’s not it, looks good feels bad, nope that’s not it either and then he says oh wait here it is looks bad feels good yup that’s it.
He read through it nodding making me think that what he was reading must apply to me and I’d get some answers. He closed the book looked me straight in the eye and said Tiko you’re a c you next Tuesday.
Ya high school parking lot for sure. Have a Happy New Year!!
Get a different dr
Find a new doctor. Seriously. How could you ever trust this guy
My thoughts exactly
I think you're right about being a 12 year old in some respects. I find the Lego man and face distortions annoying. Your "wiener" problems would have been better as a separate video appropriately titled. I don't need to hear this. Appreciate your dedication to CPAP concerns and energy though.