My ALS symptoms

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  • Опубликовано: 14 июл 2023
  • TW: bony legs. Sharing my version of ALS today. They say when you meet one person with ALS, you’ve only met one person with ALS, as it’s very different for each person fighting. Ask me questions! #als #alsawareness #lougehrig #lougehrigsdisease #symptoms #mnd #vlog #atrophy

Комментарии • 47

  • @AashishmJogi
    @AashishmJogi 9 месяцев назад +12

    Really sorry you are going through this bit i really lik the fact that u are smiling . God bless u😊

  • @funkyflights
    @funkyflights 9 месяцев назад +10

    ALS is unbelievable, it’s just so cruel how it just keeps slowly taking things from you … I wish it didn’t exist… :(

  • @Katie-sj6vp
    @Katie-sj6vp 7 месяцев назад +5

    My brother in law and also my Best friend Suzanne both passed away from ALS....the cruelest disease in the world!! Hang in there....A cure is hopefully coming....God Bless you. Prayers from Vancouver Canada...

    • @MBT372
      @MBT372 4 месяца назад

      Nooo! The cruelest one is Huntington disease!

  • @wandaviruet3621
    @wandaviruet3621 6 месяцев назад +2

    God bless you and keep you strong🙏🏻❤️❤️❤️

  • @theredqueen2283
    @theredqueen2283 2 месяца назад +1

    This world doesn't seem fair, if God exists why do these evil conditions exist? It daunts me. You are a beautiful and brave soul in my prayers and thoughts. You are helping others with your courage, none of us will live forever but your light shines onto others, bless you and keep shining your beautiful soul

  • @rochcharron9835
    @rochcharron9835 7 месяцев назад +2

    In hindsight, can you remember abnormalities or symptoms many years ago, even before your first medical consultations? Thank you so much for what you do and for your smile. Merci
    Roch

  • @oliviabyrne5463
    @oliviabyrne5463 5 месяцев назад

    thanks so much for sharing. i always appreciate being educated on others’ experiences. wishing you the absolute best 🫶

  • @eduardotorres-du1lf
    @eduardotorres-du1lf 7 месяцев назад +2

    There are als reversal stories, try looking into them and also try looking into als stemcells treatment. People with als have had this treatment and they have shown improvement

    • @Rosemary64276
      @Rosemary64276 3 месяца назад

      It's a great privilege coming across your RUclips channel Dr ubarlo. You have always been there for me health wise. I can vividly remember how you turned up for me when I was down with ALS. Your contribution and care was highly appreciated. You are the best doctor I have ever come across. Thank you so much for the difference you make in the lives of your patients ! Your kindness, sincere caring, and concern make everything better and are a great encouragement Dr ubarlo.

  • @Rosemary64276
    @Rosemary64276 3 месяца назад

    It's a great privilege coming across your RUclips channel Dr ubarlo. You have always been there for me health wise. I can vividly remember how you turned up for me when I was down with ALS. Your contribution and care was highly appreciated. You are the best doctor I have ever come across. Thank you so much for the difference you make in the lives of your patients ! Your kindness, sincere caring, and concern make everything better and are a great encouragement Dr ubarlo.

  • @aminkabuli9415
    @aminkabuli9415 28 дней назад +1

    I am sorry you are doing through this

  • @TV-cx2zw
    @TV-cx2zw Месяц назад

    😢 God bless girl

  • @SPQR-qq5bz
    @SPQR-qq5bz 7 месяцев назад +1

    Mi mother had ELA. You are so young to have it and still smile to the life. I hope the cience find the cure.

  • @andreac980
    @andreac980 8 месяцев назад

    Brooke, how long did it take to develop the atrophy? How many weeks or months?

  • @Jnglfvr
    @Jnglfvr 10 месяцев назад

    Over that 4 year period did you have any improvement, even temporary, of the left foot drop?

  • @cookinthekitchen
    @cookinthekitchen 6 месяцев назад

    For some reason the leg that is a bit redder is not getting the same circulation. I wonder if using something like a power plate would help for that. I literally got one a couple of days ago but I know they are good for circulation.

  • @lightplan
    @lightplan 11 месяцев назад +7

    Been suffering from fasciculations, sleep myoclonus and muscle spasms since june 2022 😢. I had a full body EMG/NC, Spinal MRI, EGG and blood tests back on october 2022 and everything came back clear. At this point I really don't know what's going on with my body 😔. It's really hard to live without a propper diagnose.

    • @anthonymacon6778
      @anthonymacon6778 10 месяцев назад +2

      I am having similar issues. Have you been able to get any clarity from doctors yet?

    • @doud4476
      @doud4476 10 месяцев назад +2

      How is your body right now , i have also same fasiculations and muscle fatique im going to go to emg this friday, how is your symtomps

    • @anthonyformichelli5318
      @anthonyformichelli5318 9 месяцев назад +1

      @lightplan what blood tests were performed?

    • @matthewpadilla9825
      @matthewpadilla9825 7 месяцев назад +1

      I'm also having such symptoms. It started in 2021. I also have some muscle waisting and hyperreflexia. I'm still looking for answers.

    • @anthonyformichelli5318
      @anthonyformichelli5318 7 месяцев назад

      @@matthewpadilla9825 I’d recommend starting theracumin by Theravalues, AAKG, GABA, L-Serine, and B complex by MegaFoods. It has helped me tremendously. Even reversed for a while as I mix and match with dosage and supplements further. Also marijuana has been known to great improvement as well but haven’t gotten that far.

  • @Daquarius-sz2hg
    @Daquarius-sz2hg 8 месяцев назад

    For anyone who may see this, did the muscle twitching only happen when laying down/resting or was it at anytime like walking or standing?

    • @mikelife101-x9p
      @mikelife101-x9p 7 месяцев назад +1

      For me muscle twitching on happens when I sitting and trying to relax or working on a desk. It never happens while standing, or moving.

  • @oliviashuii364
    @oliviashuii364 Год назад

    Do any of your family members, immediate or distant have it m, or had ALS

  • @argentinarodriguez4170
    @argentinarodriguez4170 Год назад +5

    Hi! How long ago did you start having those problems? I was diagnosed with ALS yesterday. I do have the same problem on my left leg and it is affecting my right one, too. I do have swallowing and speech difficulties. Also, is there a especial diet that you follow for this disease? TIA

    • @tobiasleeflang6747
      @tobiasleeflang6747 8 месяцев назад

      You might want to read Brain Saver and/or brain saver Protocols, by Medical Medium

  • @63Jax
    @63Jax 8 месяцев назад +1

    God Bless You

  • @UP-BEATMUSIC
    @UP-BEATMUSIC 9 месяцев назад +2

    What's the reason behind causing ALS, Is it discovered yet?

    • @SPQR-qq5bz
      @SPQR-qq5bz 7 месяцев назад

      Unos investigadores chilenos dicen saber que ocurre pero no tienen la cura.

  • @Beniamin6665
    @Beniamin6665 2 месяца назад

    Please watch Dr Burks note on ALS.. You can reverse this completely

  • @ruha24-s6j
    @ruha24-s6j 7 дней назад

    My prayers are with you. Keep on repeating the word of God because for Him nothing is impossible. Have faith and just believe.
    Keep on saying this word because I've seen many miracles by it.
    Heal me, O LORD, and I shall be healed; save me, and I shall be saved, for you are my praise.
    Jeremiah 17:14

  • @RayAnnetteP
    @RayAnnetteP 8 месяцев назад

    I have tremors & bad cramping & my penmanship, is now poor.

  • @Jillaray1
    @Jillaray1 6 месяцев назад

    Have you tried stem cells

  • @stusherman1476
    @stusherman1476 9 месяцев назад +2

    Your symptoms appear to be closer to PLS than ALS

    • @Trigger-xw9gq
      @Trigger-xw9gq 8 месяцев назад +1

      There's minimal to no atrophy with PLS, so likely not.