Diagnosed with ALS at 21 yrs old

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  • Опубликовано: 28 май 2017
  • Please donate to: als.net/osiel. The money donated is going directly ALS Therapy Development Institute who is on the forefront of finding a cure for ALS!
    Egg Yolk Health Benefits & Info (read the entire article!): www.regenerativenutrition.com...
    #YolkUp4ALS!
    Please like, share, participate and donate!

Комментарии • 299

  • @TheMrturn1
    @TheMrturn1 6 лет назад +53

    NEVER have to apologize for raising awareness on something like this. Good luck to you.

  • @jorjaygonzalez
    @jorjaygonzalez 5 лет назад +50

    I'm 20 and have ALS. It's a cruel world.

  • @eviandaj
    @eviandaj 4 года назад +3

    i am so so sorry for what you have to go through youre an amazing individual, praying for you and your family

  • @goddessvibes08
    @goddessvibes08 4 года назад +4

    Bless you buddy! I have a neurological disorder too. Much love and blessings to you- stay happy and live in the moment.

  • @jeremylay1694
    @jeremylay1694 5 лет назад +15

    My aunt is currently battling ALS and is approaching her 2nd year since being diagnoised. This is a horrible disease. The firat year wasnt so bad, the 2nd however has been devastating. I pray that 1 day there is a cure for it.

  • @kimberlyk3928
    @kimberlyk3928 6 лет назад +9

    You're an inspiration for many people! I know they'll find a cure one day! God bless you! ❤

  • @corniss
    @corniss 4 года назад +5

    Bless you precious young fella. I hope so much these trials underway will bring a cure.

  • @fatguyscansurf2thomas266
    @fatguyscansurf2thomas266 6 лет назад +2

    stay strong man I know I have no idea what your going through but understand after looking into what you have I really feel for you and I'll be praying

  • @cdavis7395
    @cdavis7395 7 лет назад +5

    What an informative and touching video Osiel. Love your Oregon family: Bella and pup. OK...will gulp that egg down and donate. Our family was hit with ALS when my mom-in-law was diagnosed. We are behind what you are doing and pray for your strength.

  • @sjcea0512
    @sjcea0512 6 лет назад +13

    Praying for you !! Lost my mom in 2013 from ALS !! Still breaks my heart to this day ! Miss her so very much

  • @ladychatelaine697
    @ladychatelaine697 5 лет назад +4

    Bless his heart..how tragic to be in such a situation at his age! He's so brave about it all...God bless...♥️

  • @AHugs-gg2mm
    @AHugs-gg2mm 6 лет назад +2

    I'm so sorry for your heart breaking news. I can't pretend to imagine what you are going through. God bless you and your family. My thoughts and prayers are with you. Stay strong honey.💜💜💜

  • @lindaestape5385
    @lindaestape5385 7 лет назад +17

    Sending love and support to you both and we will definitely take part in the challenges ❤️❤️❤️

  • @kathleenburke4553
    @kathleenburke4553 5 лет назад +4

    Im praying for you.🙏Stay positive!Lost my uncle to ALS recently.He lived 5yrs.with it.I donate to the cause.Thats awesome you made video to keep the Awareness of ALS!! Hendricks is adorable😁Godbless to you and wife.❤🙏

  • @laughingdaisies
    @laughingdaisies 7 лет назад +2

    YOU are AMAZING Osiel! I think the puppy was a great idea too!! Great idea Bella!!

  • @tammyadrian4361
    @tammyadrian4361 Год назад

    What an incredible inspiration you are .I am sorry you are dealing with this.What a beautiful puppy he will help comfort and take care of you

  • @Sapphire-yg1dy
    @Sapphire-yg1dy 7 лет назад +8

    Thank you for making this video. Your message has reached to far places as I am checking in from NY. You're already one step closer to winning the fight. -Eileen

  • @ShivaSheevz
    @ShivaSheevz 7 лет назад +52

    Definitely reposting this and doing this first thing tomorrow morning! I absolutely love your positivity and the fact that you are turning this into something that can make a difference in this world. My best wishes to you. You are the true definition of inspiring.

    • @osielandbella686
      @osielandbella686  7 лет назад +1

      Thank you so much for seeing this, reposting, and providing such kind words Shiva, we appreciate it so much. Looking forward to seeing you do the #YolkUp4ALS challenge! Thanks for everything.

    • @yvonnespearing
      @yvonnespearing 6 лет назад +2

      wait!!!!!!!!!!!!!!!!!!!!!!!!!!1 Steven Hawkins lived so far 39 years with it..now I did find out it didn't effect hes lungs or throat. Why? so confused?

    • @pavithrashanmugavel8951
      @pavithrashanmugavel8951 4 года назад

      Tq bro

    • @yesterdayitrained
      @yesterdayitrained Год назад

      @@yvonnespearing No one knows. It’s a mystery. There was some research regarding a possible link between his incredibly long lifespan and his intelligence. He’s the only person in the world diagnosed with ALS to have lived so long.
      IMHO, I do wonder if his diagnosis was correct.

  • @netterboosicily4040
    @netterboosicily4040 6 лет назад +1

    I am so sorry to hear of this...You stay strong in your heart and head..may god give you the calm and strength to get you thru. god bless.

  • @ryanduignan9689
    @ryanduignan9689 7 лет назад +10

    You are an inspiration to everyone and I have got such courage from watching your video. I have been under investigation for ALS for a year now and it's only in the last month after seeing 4 neurologists that my symptoms are being taken seriously. Currently awaiting a muscle biopsy to confirm results of bad EMG. I'm 28 and it's incredibly scary, however seeing the strength and determination you are showing is helping me through this difficult period.stay strong and keep fighting.

    • @jernejjerry1810
      @jernejjerry1810 5 лет назад

      How did your symptoms start? Hope you are well! I will need neurology test too. I am not nearly as strong as this guy here as I am already thinking of death without even being diagnosed. Constant googling for possible cures, ways to reverse it etc. World is a cold place when your health ditches you.

  • @jasonbrown9016
    @jasonbrown9016 4 года назад +1

    God bless you m8 you seem like a top bloke,this disease don't define you .keep living life on your terms your an inspiration.

  • @saraneuburger8036
    @saraneuburger8036 6 лет назад +1

    Sorry about your diagnosis. That really sucks. I am so happy that you are raising more awareness and that you have come up with a new idea. I will definitely be the challenge. My mother passed away from ALS December 2 years ago. So I too am doing everything I can to spread awareness.

  • @agirlwithdifferenttools5850
    @agirlwithdifferenttools5850 5 лет назад +2

    God love you kiddo! Many prayers. I’m so incredibly sorry. 😢

  • @truthistheonlywaytruthisth6387
    @truthistheonlywaytruthisth6387 6 лет назад +1

    Much love,respect and light to all of you from France...Never give up.

  • @amperro
    @amperro 6 лет назад +32

    I have aspired to be an ALS researcher. I donated to ALS TDI. I lost two cousins to ALS. I am disgusted that I cannot do more.

  • @bellamae3911
    @bellamae3911 6 лет назад +2

    I really hope you find the right treatment! I'm hopeful there will be a solution. All the very best sweetheart.

  • @paiv4256
    @paiv4256 4 года назад +1

    You're an inspiration, I wish you all the best

  • @paulstrength8574
    @paulstrength8574 5 лет назад +4

    Praying for you son.

  • @leonardcarter6531
    @leonardcarter6531 6 лет назад

    What a courageous young man God bless you I have cancer but this young man is brave

  • @lululuvi1010
    @lululuvi1010 6 лет назад +1

    Osiel. You are very brave. my mom has had ALS for a couple years now and she is much braver than i could ever be. I will think of you and hope you continue to be brave and courageous.

  • @johnfaye7144
    @johnfaye7144 6 лет назад +2

    You are in my prayers I hope you get better #Pray4aCure

    • @HeiJuLas
      @HeiJuLas 5 лет назад

      My mom died of ALS. I've always wondered why you in America pray for someone.Why do you do that? For what god? For what?

  • @fctryoffetsh39
    @fctryoffetsh39 5 лет назад

    So sorry man,we are here for you,it's scary

  • @YoungNick925
    @YoungNick925 7 лет назад +36

    I've known you ever since John Muir elementary. You were the fastest in PE I always remember Maleec would always be in second behind you it was great cause he'd never win 😝 it's Nick Romero btw remain positive bruh 💪🏻💪🏻

  • @kathikamholz1882
    @kathikamholz1882 6 лет назад +1

    I hope youre doing well. God bless you and your new wife; congratulations

  • @miraclemorris2249
    @miraclemorris2249 6 лет назад

    My uncle had ALS he passed last year this disease is very crazy I hated seeing him in pain and I pray for u stay strong

  • @francesegan8344
    @francesegan8344 5 лет назад +2

    i feel your pain its unreal no cure yet my husband got it in 2017 still going he is a great fighter yes we were told 2 to 3 years and to watch my husband go through this is hell on earth for all of us much love to u and your family xxxxxx

  • @kashifaabbasi6948
    @kashifaabbasi6948 6 лет назад +4

    I hope a cure is found before it's too late for many, it's personal for me lost a cousin with ALS. Many wishes for you son

  • @joannflatt5898
    @joannflatt5898 6 лет назад +1

    God bless you all, I was diagnosed 1-3-18, stay positive, keep the faith

  • @mdlrr78
    @mdlrr78 7 лет назад +1

    I wish you the best and hope that a cure is found!

  • @janettecooper3631
    @janettecooper3631 6 лет назад +1

    How inspirational you are...stay strong

  • @AP-sx4nx
    @AP-sx4nx 6 лет назад +2

    You are amazing!!! Donated!!

  • @brandonlyautey9803
    @brandonlyautey9803 6 лет назад +24

    I'm sorry brother, I was shattered of the possibility of me having ALS when I was having neuro muscular problems. I can only imagine whats on your mind. Bless you, and give your self to Jesus and keep your spirits up. God has a plan for you. I love you man.

  • @marydehaan1991
    @marydehaan1991 5 лет назад

    I truly admire you for making thus video, you are wonderful boyfriend, son and possibly brother. Can't help feeling sadness for you and home you find some help for this disease. God bless you and your family. You have an amazing positive altitude You are a wonderful son, boyfriend. I will pray for your full healig. XO to you and yours

  • @Jaglilpill75
    @Jaglilpill75 6 лет назад +2

    I just want to hug you, so young and so brave for sharing.I hope there will be cure or medicine that can stop the progress
    💙💚💙💚💙💚💙💚💙💚💙💚💙

  • @craigleon3836
    @craigleon3836 7 лет назад +4

    Much love, OCL! Looking forward to getting wet next week here outside Lillis. Go DUCKS! Go Os!

  • @pyarkaaloo
    @pyarkaaloo 5 лет назад +5

    You are too young my friend I am so sorry 💔💔 blessings to you

  • @brokentoedspoon
    @brokentoedspoon 5 лет назад +2

    I pray for you!!

  • @CourtneyFrazer
    @CourtneyFrazer 5 лет назад +5

    I was diagnosed with SMA at 23 years old. When I was going through the diagnosis process, the doctors told me they thought it was ALS. SMA is similar. Since then, two treatments have become available. Don't give up hope!

  • @keelinmorris2115
    @keelinmorris2115 5 лет назад +2

    Praying for you 🖤

  • @iamessence6268
    @iamessence6268 5 лет назад +29

    My dad passed away of MSA and I have a friend that has MS. I hope that they can find the cure for MSA, MS and ALS.

    • @shahrukhmirza8074
      @shahrukhmirza8074 4 года назад

      May the Almighty give your father and friend peace in the eternal life. - Muhammad

    • @rosettajones5785
      @rosettajones5785 3 года назад

      My husband recently passed from MSA....😢

    • @muggz73
      @muggz73 Год назад

      And Parkinson’s disease as well

  • @Robby334
    @Robby334 6 лет назад +1

    You are a very brave man bless you

  • @HWolfe
    @HWolfe 6 лет назад

    Supporting you, and prayers big time.

  • @briar8107
    @briar8107 3 года назад

    Tears in my eyes while watching this video

  • @DIANNEELEE
    @DIANNEELEE 4 года назад

    I shivvvvvered when you did the bucket of ice and water thing. Brrrrr. I gagged when you swallowed that raw egg. Very brave. I don't understand why this fad of the ice and water? I can tell that you are a wonderful person. Happy Trails to you !

  • @renepanting1948
    @renepanting1948 5 лет назад +2

    God bless you man

  • @jennifer0074
    @jennifer0074 6 лет назад +1

    Hi buddy, thanks for sharing this video, your talking, your face are full of energy 👍👍👌👏. Just always remember ,,life is beautiful,, wish you all the best. Hopefully you become healthy, then happy and fortunate. I'm sure God protects you.

  • @shekeyra100
    @shekeyra100 6 лет назад +19

    sad thing is in may 5th 2017 another new drug was approved but the price is unbelievable not many will be able afford it should be free

  • @michaelschoel8852
    @michaelschoel8852 2 года назад

    You are an inspiration and God be with you

  • @truegemrn
    @truegemrn 6 лет назад +2

    God bless you.

  • @electriceyeslide5959
    @electriceyeslide5959 6 лет назад +2

    Anyone who would thumb down this video should go rot in hell.
    God bless you Osiel, it is striking how brave you are and what an inspiration you are.
    You’re making a difference in this world no matter how long you’re here my friend.
    I hope you’re a “long-term progressor” and/or you beat this my dear boy.
    Love,
    Tom

  • @pse888
    @pse888 6 лет назад +1

    Sending love and support from Toronto, Canada.

  • @jeaniecoudriet1887
    @jeaniecoudriet1887 6 лет назад

    Your in my prayers, this just make me angry, my Grandfather had ALS , but your definitely a fighter! Hendrix is ADORABLE! XX

  • @annalubenow1233
    @annalubenow1233 6 лет назад +1

    I want to give you a great big hug

  • @nancychuba2823
    @nancychuba2823 6 лет назад +1

    God bless I hope you beat this praying for you

  • @sharebear1129
    @sharebear1129 6 лет назад +4

    Praying for you. I hope a cure is found soon. Look at Hendrix. He's a cutie ☺🐕

  • @sammy11232003
    @sammy11232003 7 лет назад

    i would like to donate 100 dollars thanks for the link i take care of a lady who has this disease. God bless you and i am praying they find a cure really fast for this quickly. live your dreams!

  • @ttdenadaabba2149
    @ttdenadaabba2149 6 лет назад +2

    With all my heart, and all of my prayers I REALLY me and my girlfriend JUDY wish you the very best, in the name of the Lord " GOD BLESS YOU BROTHER!!

  • @michaelschoel8852
    @michaelschoel8852 Год назад

    God bless you young man

  • @logann8243
    @logann8243 6 лет назад +2

    Stay strong man!

  • @saracutiem.d.241
    @saracutiem.d.241 6 лет назад +2

    Don't worry, Sooner or later we're all going to heaven and will be surrounded by heavenly angels. You're not alone my friend. xoxo

  • @kim.epurdy1644
    @kim.epurdy1644 7 лет назад +8

    My husband DX 49 with sporadic bulbar onset ALS died aged 52 I am so sorry you have to deal with this beast will tweet your video and good luck with the challenge & hope you raise much awareness love

  • @karenquick8737
    @karenquick8737 5 лет назад +1

    Wow, I am so proud of you putting out this challenge. My Father passed away from ALS and it is such a horrible disease. I'm wishing you the very best lots of $ can be put forth to a cure.

  • @CrystalChiEuphoricGardens
    @CrystalChiEuphoricGardens 3 года назад

    I just finished my degree in agribusinesses now I'm sick they found lesions in mri brain scan.I was tripping falling and rolling my ankle things just kept getting worst until I had severe spastic in arms legs belly neck face and especially tounge pulling I couldn't talk I felt trapped in my body super scary it lasted for 4 days then slowly began to regain some speech I still messed up but wont give up without a fight.Stay strong brother maybe they find better medication soon for us.

  • @luciemayer1918
    @luciemayer1918 3 года назад +2

    Wow that's too young so sad hope for a cure my friends husband died from this at 44

  • @jeffdarnell3154
    @jeffdarnell3154 6 лет назад +1

    I know all about ALS...I despise this most of ALL diseases. It's so cold. No options....100% fatal. I hate it. God Bless you my friend...and ALL that this disease attacks. You don't worry about it, say ANYTHING and everything you want to...

  • @Cjanet87
    @Cjanet87 6 лет назад +2

    One of my patients had stem cell therapy and she believes it has helped her. She is 7 years in.

  • @HeavenOnEarth.Animals
    @HeavenOnEarth.Animals 6 лет назад

    Wish you've put up more videos. Wondering how you are and wanting to find out more about this disease.

  • @pantyflash
    @pantyflash 4 года назад +1

    Like, even though your motor neurons are hosed, you're still awesome. Way to go, babe!

  • @CineFutbolByScarlos
    @CineFutbolByScarlos 6 лет назад

    🙏 have to spread this message 💪

  • @sarahmoore2927
    @sarahmoore2927 5 лет назад +6

    Stay strong god bless handsome

  • @megabubbles9478
    @megabubbles9478 3 года назад +1

    It’s crazy how long we’ve known about this disease with very few treatments not enough funding goes to this

  • @sophieleanna9391
    @sophieleanna9391 6 лет назад +1

    You need to watch the DVD "Under Our Skin". A doctor in the DVD was diagnosed with ALS. He chose to believe it was actually Lyme Disease and treated with antibiotics and got better. The test for Lyme Disease are inaccurate and many people get misdiagnosed with other illnesses. I really urge you to watch this DVD. it's extremely informative.

    • @sophieleanna9391
      @sophieleanna9391 6 лет назад +1

      Exactly! ALS is a terminal illness and doctors refuse to treat it as though it could possibly be Lyme, even though the symptoms match up. It just doesn't make sense not to give it a try.

  • @freshlove7926
    @freshlove7926 5 лет назад +1

    Oh my ! You live like an hour away from me . Hope you’re doing well

  • @Crissy24ful
    @Crissy24ful 5 лет назад +5

    I'm actually doing a project for als in my class.

  • @deloresm7494
    @deloresm7494 6 лет назад +1

    God bless you

  • @jaimeeclair8999
    @jaimeeclair8999 6 лет назад

    I hope you're doing well. It's had not to feel sad when you're so young and have your whole life ahead of you. Stay strong, and I thank God for the emotional support of your fiance.

  • @A-Brax
    @A-Brax 7 лет назад

    You are an amazing individual and I'll do this once I buy eggs again! :) I have atrophy in my left leg and arm and doctors can't tell what's going on also twitching all over my body too. It may or may not be als but you have my prayers brother and take care and be strong every day!

    • @butterheads6985
      @butterheads6985 3 года назад

      Hi how are you today bro?

    • @A-Brax
      @A-Brax 3 года назад

      @@butterheads6985 mmmmh this would be a nice follow-up. As for Doctors they have ruled out basically everything and gave me the diagnosis of BFS. Still have twitching all over my body though which sucks. I can exercise normally and do everything like normal. I do have a little imbalance in my left foot when stepping or staying on it.

    • @butterheads6985
      @butterheads6985 3 года назад

      @@A-Brax wow good hear that,does bfs also cause atrophy?

    • @A-Brax
      @A-Brax 3 года назад

      @@butterheads6985 I think it’s atrophy doctors have come to the conclusion that my left side is just thinner

    • @mira0997
      @mira0997 2 года назад

      Hey, hope that everything is fine with you. I started having twitches and then atrophy in left leg and progressed to entire left side of my body , now progressing towards right side. If you could explain me about your case , probably it might give me some relief.

  • @laurenbauer9142
    @laurenbauer9142 7 лет назад +3

    Love you guys!!

  • @trevordunn6968
    @trevordunn6968 3 года назад +1

    Stay strong brother

  • @applejellypucci
    @applejellypucci 4 года назад +1

    Hope you're still doing okay.

  • @LupusPositiveLife
    @LupusPositiveLife 6 лет назад +1

    Sharing soft hugs to you

  • @aminghanbari3687
    @aminghanbari3687 6 лет назад +15

    I will find a cure!

  • @KevinKaffy
    @KevinKaffy 3 года назад

    So sorry dude. I lost my brother to this disease

  • @maddiesmusic1123
    @maddiesmusic1123 6 лет назад

    Was your 100th subscriber

  • @cheryljohnson8098
    @cheryljohnson8098 6 лет назад +3

    Gotta hard boil them. Yes so underfunded. Lost my 47 year old daughter 5 years ago. She fought til the end. Rolled around walmart in her wheelchair with her trach and portable ventilator until 5 mths before her death. Her legacy is 3 great kids (two of who have graduated college since then). One is a special needs daughter who now : works at walmart!! Good luck on your journey.

  • @rayrocher6887
    @rayrocher6887 3 года назад +2

    i plan to donate by mail , to als . society. Foundation. Amen. God be with you.

  • @sylvialin6453
    @sylvialin6453 4 года назад

    Im sorry knowing this. You are so young. I had read some comments regarding herbal med that slows the progress of ALS. How true it is im not sure.
    At first i thought you are Scott Herman the fitness intructor. You both look alike. Stay strong. I hope all is well since i last left the 1st comment

  • @bchurliman
    @bchurliman 2 года назад

    God bless you stay strong 💪🏻 my friend

    • @sananselmospacescienceodys7308
      @sananselmospacescienceodys7308 Год назад

      If I could cure this young man I'd do so in an instant. God could cure him but he won't. I guess God is just being mysterious.

  • @fokeerahnitish7649
    @fokeerahnitish7649 3 года назад +1

    God bless.

  • @johngreen6375
    @johngreen6375 2 года назад +4

    Are there any updates and how he’s doing? I hate seeing young people suffering things like this