Coming from someone who was a full time caregiver for a parent who passed away from ALS, I've never seen a more brave and inspiring individual in my life.
#1 ONE FAN RIGHT HERE! DUDE YOU ROCK. I ALSO HAVE ALS, diagnosed June 2014. 33 yrs old from Canada. If ever in Canada let's hook up and hit up a hockey game or something. All the best...Way to make a difference! I'm here with energy and support when you need it!
Thank you for everything you do, I'm 16 years old and my father has ALS and it's truly the hardest thing I've ever been through seeing what's happening to him and I still cannot grasp what it's like for him. It's been over a year since he was diagnosed and his arms are almost completely gone and I've noticed his speech is starting to get slurred as well. Just thank you for everything your doing for this cause... It means so much more than you think
You're such an inspiration. I can't even put into words how much you're my hero. I don't know what it is but you're so sincere, I feel you through the screen lol honestly you really are something special. Thank you for being so unbelievably strong
you're such an amazing individual, Anthony. I'm 48, and been diagnosed with Essential Tremors about 10 years ago, and now it's gotten so bad that it effects my hands, head, voice, legs, and now my balance. I've also been diagnosed with Cramp Fasciculation Syndrome, very painful, but not a death sentence. the cramping is sooooo painful.........but watching you this last year, has inspired me so much, and makes me so much stronger. you are very inspiring. my things are just very debilitating. ... NOTHING like you. love you, your family......you're a radiant light of awesomeness!!!!!! Xoxox
I think I speak for all of us when i say your courage and positivity is extremely inspiring. It makes the problems that we think we think are huge become minor. You remind us that health is like gold and its value is infinite. Thank you. I want nothing more than for you to conquer this!
Anthony thanks fir sharing. I don't have ALS but I do have another life long disability. Your attitude is infectious! I could gush for days but I'll spare you that! Following your story makes me mot feel so alone. Love ya kid! Yes I'm old enough to be your mom lol! Give her a kiss from me. She sounds like one in a million!
Thanks so much for being open about ALS. It was your ice bucket video that allowed us to explain ALS to my mother who's doctor diagnosis her and then walked out telling her nothing else. She had no idea it was terminal. I truly don't think I would have had the words during such a difficult time.
I just found your story by accident and my heart went out to u ..your inspirational ..i have a lifetime crippling disease and I agree u have to stay focused and happy take as much and give as much happiness to yourself and others as u possibly can .... I send u strength and much love from the UK xxxx
I was so exited to see that you posted another video! I love your personality and how you're handling this situation! You are such an inspiration! You've educated me about ALS and I've donated since then. This disease should defiantly receive more attention! I wish you the best!
You are so inspiring! My grandfather died from ALS and I was diagnosed with MS although I often wonder if its actually ALS. For now I'm content and will continue to push through!
Great video, thank you for being so open and honest with the public about your life with ALS. My grandmother passed away from ALS and my mother has MS, so my family is quite familiar with neurodegenerative diseases. I hope others who have ALS or loved ones with ALS will find your videos beneficial.
Anthony, sending you so much love, I feel like you were put here to share your heart, and your vulnerability. thank you. Thanks for reminding me how to enjoy each moment and my loved ones.
Thank you Anthony for making people more aware of this terrible disease other then it's an ice bucket challenge. My SIL (brothers wife) died of Lou Gerigs disease back in 2016. We are now worried about my nephew and niece getting it. It runs in her family also. Keep smiling love seeing it.
Hey Anthony, I have FALS in my family, lost my Mom in 2011, and a cousin in 2012. I am 59 yrs old and good so far? Thanks for your support! You are awesome, keep smilin!
Hey man I'm glad I checked the RUclips als site out tonight. I hope u are well. I was diagnosed 10/2/15. My b/f & I are trying to get a site like urs up to keep a focus & answer questions like u do. I'm still able to work, I work at a major retailer, & any info, help or support will be appreciated & reciprocated. Be well buddy & stay happy.
I lost my father in the 1980's to ALS and I know for a fact what it does to the one who has it and how it effects those who love them. I have no questions because I have been there, seen it, felt it and have seen it's tragic ending and I want to tell you that I will pray for you Anthony and for your family as well. My heart just breaks for you....Stay strong my friend...You are in my prayers
Hey Anthony, I very much appreciate what you are doing for ALS!! My mom died in 2012 after her BATTLE with ALS. Wishing you the very best with it, but it appears you are living life to the fullest and doing all that you can for others too! Thank you! A somewhat strange question for you, do you have any root canals? I understand root canal infection can upset your nervous system as it can persist un-noticed for a long time.
Love you for your courage,my Aunt died from ALS 20 yrs ago and 5 days ago my mother was diagnosed...her started out with speech and trouble swallowing we all thought she just had a stoke,,devastated we are,but will make the best out of it,yes ive cried for 5 days now,,I need to be strong for my Mom.I will B
The only thing I wanna ask you is: how do you feel about telling us all these things about yourself? I mean, does it make you feel sad because you have to think about it once more, or does it make you happy to hopefully help other people through these videos? Which of these feelings prevails? Anyway I really love the fact you're doing this kind of Q&A videos, I'm actually following you anywhere I can and I've been waiting for a video like this (or actually any kind of video) from you for so so long! I really want you to know how much I appreciate everything you've done and still do for people and hope you can forgive me for the mistakes I made while writing, cause I'm Italian, and just get the sense of what I wanted to say. Love you so much. xo
Hello Anthony! We were both diagnosed around the same time. I'm 43, my symptoms started with leg weakness, now has progressed to my upper body. I actually share the same insight with the positive attitude my family and friends say I inspire them?? I have my moments but I've never questioned why me.. This is a part of my life journey I guess, I'm just making the best out of it. Surrounding myself with positive people is key. Thank you, for sharing your ALS story most people have never heard of it unless someone close to them were affected by the deadly disease. I was one of them, I've learned so much over these last 2 1/2 years, most importantly strength comes from within. 💪🏾 Let's Fight!! #kissmyals
Thank you Anthony for your Q&A video. I also have ALS, diagnosed July 2013. I have lost use of my left hand. My fingers are crunched up making my hand into a first. I have a soft splint that helps with my finger pain. Keep on sharing your positive outlook.
For some strange reason this video is incredibly comforting xD being a teenager with a parent with ALS I suppose it's nice to hear about it without without it being a super sad thing. I hope you are doing ok !
Thanks for being brave and for answering the various questions people have asked you. It is helpful to understand what is happening to you, and your attitude is amazing.
That beard is AWESOME!!! I loved your advice about feeling the bad but not staying there. I just got done with treatment for breast cancer. I hope I stay in remission. A question for you, what would you tell someone who just got Dx? Having seen this from beginning to end with your family members I'm sure you had a lot to say. Stay awesome and can't wait until your next Q&A
I can't say how much you are my hero I have no idea how you stay so strong. I think about this disease every day. I have no idea how you stay so strong but keep doing it! I am do so sorry I hope with all my heart that this disease is cured
I'm so happy you made this video! I've been waiting for an update for a while since I saw your diagnosis video, and I think of you and your family often! You give so much hope to so many people; you are an inspiration. My prayers and thoughts are with you always. Keep us posted!! ALS SUCKS!!
Anthony-- I watched your episode tonight. I watched your #ALSchallenge video too. You have such an amazing spirit. I know you hear that all the time. One thing you said while you were watching the eclipse struck me and I would like to make a piece of art using your words. "This is one of those moments you just gotta savor. You don't point your camera at it."
Hey Anthony do you think you could do a video every couple months or so and let us know how you're doing? One guy that I know who did this was Kevin O'Donnell you can find it by searching "ALS Diagnosis Process" he made about 10 videos on his progression and it was shocking. I think those type of videos are very educational for this disease. Thank you for this video!
Oh i watched the video on Kevin O'Donnell yesterday all i can say to that was wow, emotional, brave and raw. Love your outlook on life too Anthony, keep that beautiful smile going, loads a love Jaine
I think you are an absolutely amazing guy!!! Thank you for answering these questions as they helped me understand a bit of what you are going through. I just fell in love with your personality from the moment I saw you on here (last March 2014). It breaks my heart that you and thousands of others are going through this and I wish I could help somehow. Stay strong Anthony; we all love you.
Hi Anthony, just wanna say you are such an inspiration, I have no idea how are you staying so positive. I am rooting for you and others with this horrible disease. My brother in law got diagnosed last year, they are expecting their first baby too.. after sooo many years of trying, disappointments and bad news they finally found out my sis is expecting. Martin got diagnosed just weeks later :( I would like to hear your thoughts on Deanna Protocol...
I am having the muscle & nerve conducting tests done to confirm dx of ASL. Until today, I really had no idea and as terrified as I am... I just wanted to say I think the world of you and your spirit in all of this. With my tears and my prayers, I wholeheartedly pray that for the rest of your life that you wake up humbled, despite these conditions. Thank you for being bold and strong! Truly an inspiration. From my family to yours #kissmyasl
Anthony, I appreciate how open, honest and informative you are about ALS. In the long run, it is that openness from all of those who have ALS and the medical community that may lead to figuring out a cure. There is so much that the public does not know including how it progresses and how it is "diagnosed" and you are certainly helping to get the word out. I don't have ALS but have known others who did and I know that your efforts do not go unnoticed. Am I the only one it bothers that people would as you to get them on Ellen? That seems a bit tacky. I noticed the beard immediately... I wish I could get my goatee to fill in like that... mine looked so scraggly in Movember that I had to shave it off last weekend. :( Take care and enjoy your night out. :)
Hi Anthony! I love your videos and I think it's incredible that you're willing to share such an intimate and personal experience with the world. My question is about your health care providers. How has your interaction with the medical community impacted your relationship with it, and how you understand your illness? Are there specific moments with your physicians that were particularly positive, negative, or otherwise remarkable? I think doctors today are reflecting on how they treat their patients and how to focus on the human aspect of disease, and I believe you can have valuable insight on this subject!
Wish I could meet you but your videos will have to do. I have atrophy of my left arm and very stiff bicep, I can't extend my left arm(can't punch) and my neurological exams show weakness on my left side. My 1st neurologist stated ALS VARIANT. I have been like this for 5 yrs and just started my 2nd round of testing. I'm terrified. My muscles jump but not quick and quiver like yours...hmmm. I hate that my arm is stuck and and shrunken, it's tiring but no pain at all. Do you agree that most ALS patients do not live past 5 yrs past diagnosis? Was that the case with your grandmother? I am trying to find all of the info I can about ALS. I want to become actively involved whether I end up having it or not. Hugs to you. I needed to find you on here, I needed to hear from someone like you. Hugs Anthony
just wanted to say hi and let you know that your amazing and such an inspiration wish I would have known you before so that I could have shared this with my dad. he too had ALS! but anyway im looking forward to more videos! peace love and happiness!!!
My grandfather has this terrible disease and it's painful to see him close to immobile and always in bed. I couldn't imagine having it. I wish you the best of luck!
Yea it's so upsetting watching that. My aunt died from ALS in 2012 and it was so unbelievably hard to say goodbye to her and I knew it would be the last time I could say anything into her ear personally when I hugged her last and do u know what I said. I said "I love you so incredibly much and no one will ever forget you" and those words during that hug felt like a lifetime so everytime you see him tell him you love him and just don't regret not telling him anything you feel.
You inspire me to love my life to not be sad to get out of it and adventure the world i love u sooo much i hope u will live for 100 years or more i love u 😊
You are amazing and inspiring and just an amazing human being... keep that in mind. Support all the way from Colombia! (Just want you to know how your influence has reached every corner of this world :) ) So much admiration for you!
Thank you for sharing! So informative and truthful. You're beautiful, I really appreciate what you are doing. Since my Aunts diagnosis a couple months ago, I have decided to try and help to the best of my ability, and offer descriptions of Yoga Poses that would benefit people with ALS. I hope your doing well Anthony! :) Thank you again, you're such an inspiration.
I have NF1 which is Neurofibromatosis where I grow tumors all over my body, primarily on my nerves. So far my disorder seems to have become dormant, but I fear that it will worsen. This disorder does not have a cure and my only option is surgery to get my tumors removed to which I have about a hundred all over my body. One thing I would love to do is get more people aware about this disorder. Do you have any interesting ideas about how to do that? I would love to get more attention about this disease because I have seen my mom live with it and it gets very tiring watching all the people who feel the need to stare and ask if it is contagious.
You said something about fasculations about stress, It doesnt make it go faster but when you have stress your muscles are going insane so the fasculations gets worse people with allot of stress can have fasculations without having a kind of disease stress makes your body react and when you try to relax your muscles wil relax to and then the fasculations come its a thing that your body does when trying to relax.
People who have weird twitching and fasiculations should be aware of this syndrome: en.wikipedia.org/wiki/Benign_fasciculation_syndrome I've had that for several years and spent the first few months thinking I had ALS or MS.
Anthony you are such an inspiration I love to follow your blogs and your videos that you make. My brother was diagnosed in 2011 he is doing okay it started off in his legs and and now has slowly progressed to his upper body his handsare starting to be affected he used to drive all over the place come to visit us whenever he wanted to now he need somebody to drive for him. Is there someplace you could suggest where we can get assistance with modifying the shower and making the house more adaptable if you can please point us in the right direction thank you so much much love.
Anthony I really hope you can answer this!! I've seen a few documentaries about the connection between ALS and limes disease. many people are diagnosed with ALS but then later treated for limes and recover fully! There are docs that day it can be passed mother to child even. have you or your mom ever considered trying treatment for limes to find out if it helps you?!? if you haven't already please find and watch these docs about limes and ALS. what is your thoughts on this?
You, your mother, your wife, sister and all are so so beautiful, inside and out.......just had to tell you one more time :) and yes, I would love to hear more about medical marijuana. Better than chemicals I'm sure. Anthony, you're my hero xox, Mary
👏👍 great job Anthony You And your beautfle family , should have your own reality show God Bless YOU are our #1 from the heart Ambassador Prayers and Love ( I also am 1 yr in Jan 30, lower strt drop foot ) I am 56 , 1st in my family I am in a Biomarker Study @ UPMC Pgh, to help you and all young faces of PALS ...also waiting on phone interview from TDI , anything yo help find a medical Miracle
Question, do you think there will be another ice bucket challenge campaign this year? Or do you think it will be some thing else? Stay strong and much love.
Anthony, My brother in law was diagnosed last March, and his is progressing really fast. He just had a feeding port put in, and his diaphragm function has dropped tremendously. Can you tell me how the marijuana is helping you? Does, it just help with pain, and muscles spasms? I follow you on Facebook, keep up the good work.
I remember watching you ice bucket video a lot of times, it was funny, you looked so good that I never thought als could be so bad, I remembered you and checked your chanel recently and looking you so destroyed makes me feel glad with the live I have, I was complaning about balding at 27 y o but now I think I'm the luckiest person in the world
Just wondering how you're doing Anthony. I have a friend with MS and you both seem to suffer the same types of symptoms. He was diagnosed with a latent recurring MS and I was wondering if ALS can be like that.
who takes care of your mom? my dad has had ALS for a year now and after taking Riluzol, he went from talking and walking to almost paralyzed within 3 months. we have all the care from hospice allowed and we also have an aid come in three times a week for 6 hours because I'm in college and my mom can't take care of him by herself. it's so hard and I can't imagine what we will have to do when he can't even hold himself up, which is bound to be quite soon. he apparently soiled himself five times today and every time I think it couldn't get any worse, it does. there has to be a better way around this.
Youve left a bigger impact on this world than 99.9% of us will.. Thank you
@Rebel Heart I believe so. It looks like he posts on Instagram regularly.
Coming from someone who was a full time caregiver for a parent who passed away from ALS, I've never seen a more brave and inspiring individual in my life.
You should see him now, he's crying for some money so he can still "alive" if you can call that "alive"
@@dazeldibujosfeos8435 thanks for the kind words lol
@@dazeldibujosfeos8435 u miserable swine
Does it hurt when someone gives you a hug? I want to give you a hug. You're a huge inspiration.
#1 ONE FAN RIGHT HERE! DUDE YOU ROCK.
I ALSO HAVE ALS, diagnosed June 2014. 33 yrs old from Canada.
If ever in Canada let's hook up and hit up a hockey game or something.
All the best...Way to make a difference!
I'm here with energy and support when you need it!
Thank you for everything you do, I'm 16 years old and my father has ALS and it's truly the hardest thing I've ever been through seeing what's happening to him and I still cannot grasp what it's like for him. It's been over a year since he was diagnosed and his arms are almost completely gone and I've noticed his speech is starting to get slurred as well. Just thank you for everything your doing for this cause... It means so much more than you think
You have such a great spirit, God bless you!!!! Wishing you continued positivity and strength... Hoping for a cure.
You're such an inspiration. I can't even put into words how much you're my hero. I don't know what it is but you're so sincere, I feel you through the screen lol honestly you really are something special. Thank you for being so unbelievably strong
you're such an amazing individual, Anthony. I'm 48, and been diagnosed with Essential Tremors about 10 years ago, and now it's gotten so bad that it effects my hands, head, voice, legs, and now my balance. I've also been diagnosed with Cramp Fasciculation Syndrome, very painful, but not a death sentence. the cramping is sooooo painful.........but watching you this last year, has inspired me so much, and makes me so much stronger. you are very inspiring. my things are just very debilitating. ... NOTHING like you. love you, your family......you're a radiant light of awesomeness!!!!!! Xoxox
Good luck, Hope your life gets better here is a Cookie :)
TheMrCookie Lord i love cookies!
Inkgoddess66 keep on fighting strong! Thank you for your kind words love and support!
Anthony Carbajal here ya go.
I think I speak for all of us when i say your courage and positivity is extremely inspiring. It makes the problems that we think we think are huge become minor. You remind us that health is like gold and its value is infinite. Thank you. I want nothing more than for you to conquer this!
You my sir are awesome. Stay strong and keep doing what you're doing. I wish you the best
You, sir, are a real hero for me right now!
Anthony thanks fir sharing. I don't have ALS but I do have another life long disability. Your attitude is infectious! I could gush for days but I'll spare you that! Following your story makes me mot feel so alone. Love ya kid! Yes I'm old enough to be your mom lol! Give her a kiss from me. She sounds like one in a million!
Thanks so much for being open about ALS. It was your ice bucket video that allowed us to explain ALS to my mother who's doctor diagnosis her and then walked out telling her nothing else. She had no idea it was terminal. I truly don't think I would have had the words during such a difficult time.
I just found your story by accident and my heart went out to u ..your inspirational ..i have a lifetime crippling disease and I agree u have to stay focused and happy take as much and give as much happiness to yourself and others as u possibly can .... I send u strength and much love from the UK xxxx
I was so exited to see that you posted another video! I love your personality and how you're handling this situation! You are such an inspiration! You've educated me about ALS and I've donated since then. This disease should defiantly receive more attention! I wish you the best!
No questions, just support. ❤️ wishing you and your family nothing but the best in life.
My sis has has ALS found out in October.I have not stop crying since. My heart goes out to you.God bless you!!!
You are so inspiring! My grandfather died from ALS and I was diagnosed with MS although I often wonder if its actually ALS. For now I'm content and will continue to push through!
Great video, thank you for being so open and honest with the public about your life with ALS. My grandmother passed away from ALS and my mother has MS, so my family is quite familiar with neurodegenerative diseases. I hope others who have ALS or loved ones with ALS will find your videos beneficial.
Anthony, I wish you the best!!!
Anthony, sending you so much love, I feel like you were put here to share your heart, and your vulnerability. thank you. Thanks for reminding me how to enjoy each moment and my loved ones.
Thank you Anthony for making people more aware of this terrible disease other then it's an ice bucket challenge. My SIL (brothers wife) died of Lou Gerigs disease back in 2016. We are now worried about my nephew and niece getting it. It runs in her family also. Keep smiling love seeing it.
Hey Anthony, I have FALS in my family, lost my Mom in 2011, and a cousin in 2012. I am 59 yrs old and good so far? Thanks for your support! You are awesome, keep smilin!
Hey man I'm glad I checked the RUclips als site out tonight. I hope u are well. I was diagnosed 10/2/15. My b/f & I are trying to get a site like urs up to keep a focus & answer questions like u do. I'm still able to work, I work at a major retailer, & any info, help or support will be appreciated & reciprocated. Be well buddy & stay happy.
I lost my father in the 1980's to ALS and I know for a fact what it does to the one who has it and how it effects those who love them. I have no questions because I have been there, seen it, felt it and have seen it's tragic ending and I want to tell you that I will pray for you Anthony and for your family as well. My heart just breaks for you....Stay strong my friend...You are in my prayers
P.S. My father too decided to smoke the herb and it did help with his muscle twitching and helped to relax him.
Hey Anthony, I very much appreciate what you are doing for ALS!! My mom died in 2012 after her BATTLE with ALS. Wishing you the very best with it, but it appears you are living life to the fullest and doing all that you can for others too! Thank you! A somewhat strange question for you, do you have any root canals? I understand root canal infection can upset your nervous system as it can persist un-noticed for a long time.
Love you for your courage,my Aunt died from ALS 20 yrs ago and 5 days ago my mother was diagnosed...her started out with speech and trouble swallowing we all thought she just had a stoke,,devastated we are,but will make the best out of it,yes ive cried for 5 days now,,I need to be strong for my Mom.I will B
The only thing I wanna ask you is: how do you feel about telling us all these things about yourself? I mean, does it make you feel sad because you have to think about it once more, or does it make you happy to hopefully help other people through these videos? Which of these feelings prevails?
Anyway I really love the fact you're doing this kind of Q&A videos, I'm actually following you anywhere I can and I've been waiting for a video like this (or actually any kind of video) from you for so so long! I really want you to know how much I appreciate everything you've done and still do for people and hope you can forgive me for the mistakes I made while writing, cause I'm Italian, and just get the sense of what I wanted to say.
Love you so much. xo
Hello Anthony! We were both diagnosed around the same time. I'm 43, my symptoms started with leg weakness, now has progressed to my upper body. I actually share the same insight with the positive attitude my family and friends say I inspire them?? I have my moments but I've never questioned why me.. This is a part of my life journey I guess, I'm just making the best out of it. Surrounding myself with positive people is key. Thank you, for sharing your ALS story most people have never heard of it unless someone close to them were affected by the deadly disease. I was one of them, I've learned so much over these last 2 1/2 years, most importantly strength comes from within. 💪🏾 Let's Fight!! #kissmyals
i got some symptoms of motor neurone disease. i need your advice coz i'm so scared that i could have als. can we talk via skype?
@@flyhigh9410 could you please tell what are you symptoms?
Thank you Anthony for your Q&A video. I also have ALS, diagnosed July 2013. I have lost use of my left hand. My fingers are crunched up making my hand into a first. I have a soft splint that helps with my finger pain. Keep on sharing your positive outlook.
Hi how r u now?
For some strange reason this video is incredibly comforting xD being a teenager with a parent with ALS I suppose it's nice to hear about it without without it being a super sad thing. I hope you are doing ok !
Thanks for being brave and for answering the various questions people have asked you. It is helpful to understand what is happening to you, and your attitude is amazing.
I love and wish you the best, Anthony. You're such a huge inspiration!
God bless you Anthony. Wish you all the best.
That beard is AWESOME!!! I loved your advice about feeling the bad but not staying there. I just got done with treatment for breast cancer. I hope I stay in remission. A question for you, what would you tell someone who just got Dx? Having seen this from beginning to end with your family members I'm sure you had a lot to say. Stay awesome and can't wait until your next Q&A
Coopdizzle I love you! 💔❤
Rest in peace.
I can't say how much you are my hero I have no idea how you stay so strong. I think about this disease every day. I have no idea how you stay so strong but keep doing it! I am do so sorry I hope with all my heart that this disease is cured
I'm so happy you made this video! I've been waiting for an update for a while since I saw your diagnosis video, and I think of you and your family often! You give so much hope to so many people; you are an inspiration. My prayers and thoughts are with you always. Keep us posted!! ALS SUCKS!!
Anthony-- I watched your episode tonight. I watched your #ALSchallenge video too. You have such an amazing spirit. I know you hear that all the time. One thing you said while you were watching the eclipse struck me and I would like to make a piece of art using your words.
"This is one of those moments you just gotta savor. You don't point your camera at it."
Thank you. God bless you & all with ALS. Thinking of with love & prayers always.❤️
Bro i love you.. I know it is much harder than i think to stay positive, but i am praying for you. I am.
Hey Anthony do you think you could do a video every couple months or so and let us know how you're doing? One guy that I know who did this was Kevin O'Donnell you can find it by searching "ALS Diagnosis Process" he made about 10 videos on his progression and it was shocking. I think those type of videos are very educational for this disease. Thank you for this video!
Oh i watched the video on Kevin O'Donnell yesterday all i can say to that was wow, emotional, brave and raw.
Love your outlook on life too Anthony, keep that beautiful smile going, loads a love Jaine
i support you so much man!! They WILL find a cure for als x
I think you are an absolutely amazing guy!!! Thank you for answering these questions as they helped me understand a bit of what you are going through. I just fell in love with your personality from the moment I saw you on here (last March 2014). It breaks my heart that you and thousands of others are going through this and I wish I could help somehow. Stay strong Anthony; we all love you.
very insightful what you say about allowing yourself to feel your feelings but not sticking in it too long.. very true..
I love you, Anthony! I can't wait for you to get over this obstacle, you really do inspire thousands of people. God bless
You're a huge inspiration and i really hope that a cure will be found as soon as possible.Stay strong and awesome.
Hi Anthony, just wanna say you are such an inspiration, I have no idea how are you staying so positive. I am rooting for you and others with this horrible disease. My brother in law got diagnosed last year, they are expecting their first baby too.. after sooo many years of trying, disappointments and bad news they finally found out my sis is expecting. Martin got diagnosed just weeks later :( I would like to hear your thoughts on Deanna Protocol...
and your mom is lucky to have you. you're an angel.
I pray they find a cure man your a trooper
I am having the muscle & nerve conducting tests done to confirm dx of ASL. Until today, I really had no idea and as terrified as I am... I just wanted to say I think the world of you and your spirit in all of this. With my tears and my prayers, I wholeheartedly pray that for the rest of your life that you wake up humbled, despite these conditions. Thank you for being bold and strong! Truly an inspiration. From my family to yours #kissmyasl
You are no burden, and have every right to life everything ever born has
Thank you for being you! You're awesome
You are a force of nature! How can you talk about what are you going through? You are inspiring! 💙
Anthony,
I appreciate how open, honest and informative you are about ALS. In the long run, it is that openness from all of those who have ALS and the medical community that may lead to figuring out a cure. There is so much that the public does not know including how it progresses and how it is "diagnosed" and you are certainly helping to get the word out. I don't have ALS but have known others who did and I know that your efforts do not go unnoticed.
Am I the only one it bothers that people would as you to get them on Ellen? That seems a bit tacky.
I noticed the beard immediately... I wish I could get my goatee to fill in like that... mine looked so scraggly in Movember that I had to shave it off last weekend. :(
Take care and enjoy your night out. :)
Hi Anthony! I love your videos and I think it's incredible that you're willing to share such an intimate and personal experience with the world. My question is about your health care providers. How has your interaction with the medical community impacted your relationship with it, and how you understand your illness? Are there specific moments with your physicians that were particularly positive, negative, or otherwise remarkable? I think doctors today are reflecting on how they treat their patients and how to focus on the human aspect of disease, and I believe you can have valuable insight on this subject!
i admire you soo much anthony and awesome que eres half mexicano ! que dios te bendiga
great attitude..i became strength from you since i was dx MS..thank you very much
Wish I could meet you but your videos will have to do. I have atrophy of my left arm and very stiff bicep, I can't extend my left arm(can't punch) and my neurological exams show weakness on my left side. My 1st neurologist stated ALS VARIANT.
I have been like this for 5 yrs and just started my 2nd round of testing. I'm terrified. My muscles jump but not quick and quiver like yours...hmmm. I hate that my arm is stuck and and shrunken, it's tiring but no pain at all. Do you agree that most ALS patients do not live past 5 yrs past diagnosis? Was that the case with your grandmother? I am trying to find all of the info I can about ALS. I want to become actively involved whether I end up having it or not. Hugs to you. I needed to find you on here, I needed to hear from someone like you. Hugs Anthony
just wanted to say hi and let you know that your amazing and such an inspiration wish I would have known you before so that I could have shared this with my dad. he too had ALS! but anyway im looking forward to more videos! peace love and happiness!!!
My grandfather has this terrible disease and it's painful to see him close to immobile and always in bed. I couldn't imagine having it. I wish you the best of luck!
Yea it's so upsetting watching that. My aunt died from ALS in 2012 and it was so unbelievably hard to say goodbye to her and I knew it would be the last time I could say anything into her ear personally when I hugged her last and do u know what I said. I said "I love you so incredibly much and no one will ever forget you" and those words during that hug felt like a lifetime so everytime you see him tell him you love him and just don't regret not telling him anything you feel.
You inspire me to love my life to not be sad to get out of it and adventure the world i love u sooo much i hope u will live for 100 years or more i love u 😊
YES,YES, YES! So glad to see your wonderful face again. You're an inspiration :-)
You are amazing and inspiring and just an amazing human being... keep that in mind. Support all the way from Colombia! (Just want you to know how your influence has reached every corner of this world :) ) So much admiration for you!
You are so inspiring and made me laugh many times while watching this. I hope you are doing well. Thank you for spreading positivity.
My god you are the strongest person I know. God bless you.
I’m a wedding photographer also but have developed drop foot and lots of cramping . I pray you are still doing good ! Just found you . I’m 51 .
Thank you for sharing! So informative and truthful. You're beautiful, I really appreciate what you are doing. Since my Aunts diagnosis a couple months ago, I have decided to try and help to the best of my ability, and offer descriptions of Yoga Poses that would benefit people with ALS. I hope your doing well Anthony! :) Thank you again, you're such an inspiration.
God bless and do know that you are in our prayers; love you too.
Keep fighting man! A cure could be developed in your lifetime.
Aww he's so handsome
so so sorry man I'm just starting to watch you God bless you man you are so so cool
I was so glad to see that you had a video up!!! :)
I have NF1 which is Neurofibromatosis where I grow tumors all over my body, primarily on my nerves. So far my disorder seems to have become dormant, but I fear that it will worsen. This disorder does not have a cure and my only option is surgery to get my tumors removed to which I have about a hundred all over my body. One thing I would love to do is get more people aware about this disorder. Do you have any interesting ideas about how to do that? I would love to get more attention about this disease because I have seen my mom live with it and it gets very tiring watching all the people who feel the need to stare and ask if it is contagious.
the way you talked about your mom made my heart melt :)
You said something about fasculations about stress, It doesnt make it go faster but when you have stress your muscles are going insane so the fasculations gets worse people with allot of stress can have fasculations without having a kind of disease stress makes your body react and when you try to relax your muscles wil relax to and then the fasculations come its a thing that your body does when trying to relax.
People who have weird twitching and fasiculations should be aware of this syndrome: en.wikipedia.org/wiki/Benign_fasciculation_syndrome
I've had that for several years and spent the first few months thinking I had ALS or MS.
That smile is so beautiful.
You are amazing!!!! Best of wishes from Norway.
Anthony you are such an inspiration I love to follow your blogs and your videos that you make. My brother was diagnosed in 2011 he is doing okay it started off in his legs and and now has slowly progressed to his upper body his handsare starting to be affected he used to drive all over the place come to visit us whenever he wanted to now he need somebody to drive for him. Is there someplace you could suggest where we can get assistance with modifying the shower and making the house more adaptable if you can please point us in the right direction thank you so much much love.
I wish you the best!!
Anthony I really hope you can answer this!! I've seen a few documentaries about the connection between ALS and limes disease. many people are diagnosed with ALS but then later treated for limes and recover fully! There are docs that day it can be passed mother to child even. have you or your mom ever considered trying treatment for limes to find out if it helps you?!? if you haven't already please find and watch these docs about limes and ALS. what is your thoughts on this?
You, your mother, your wife, sister and all are so so beautiful, inside and out.......just had to tell you one more time :) and yes, I would love to hear more about medical marijuana. Better than chemicals I'm sure. Anthony, you're my hero xox, Mary
👏👍 great job Anthony
You And your beautfle family , should have your own reality show
God Bless YOU are our #1 from the heart Ambassador
Prayers and Love ( I also am 1 yr in Jan 30, lower strt drop foot )
I am 56 , 1st in my family I am in a Biomarker Study @ UPMC Pgh, to help you and all young faces of PALS ...also waiting on phone interview from TDI , anything yo help find a medical Miracle
You're wonderful. Bless you.
Question, do you think there will be another ice bucket challenge campaign this year? Or do you think it will be some thing else? Stay strong and much love.
It's weird how ALS attacks different symptoms for different people like my grandfather lost his speech and then atrophy started taking place.
Stephen Hawking Survived 50 years with ALS just wanted to put that out there :).
You are amazing! A real role model and your positivity is remarkable! Keep your head up and show off that epic beard :D
There has to be a way of stopping this disease or halting its progression . Big hugs to you :).
Bronte Braithwaite there is no way to stop it. And this man is already probably dead.
I wish you the best of luck Anthony :)
Stay positive :)
Anthony,
My brother in law was diagnosed last March, and his is progressing really fast. He just had a feeding port put in, and his diaphragm function has dropped tremendously. Can you tell me how the marijuana is helping you? Does, it just help with pain, and muscles spasms? I follow you on Facebook, keep up the good work.
My kids father has als thanks for your viedo
I remember watching you ice bucket video a lot of times, it was funny, you looked so good that I never thought als could be so bad, I remembered you and checked your chanel recently and looking you so destroyed makes me feel glad with the live I have, I was complaning about balding at 27 y o but now I think I'm the luckiest person in the world
I wish you the best Anthony. Do you speak Spanish?
Just wondering how you're doing Anthony. I have a friend with MS and you both seem to suffer the same types of symptoms. He was diagnosed with a latent recurring MS and I was wondering if ALS can be like that.
best of luck young man!
wow... such a fighter you are.... keep strong ..... how can I find you at FB?
I'll be praying for your cure :)
Do something that'll actually work instead, like donating to scientific research.
+Opteryx Industries Don't be a douche.
+Anne Marie yep
+Anne Marie yep
White Male and how well has that worked? 2 years later, and even with the bucket and pepper challenge we haven't even come close
the start was so cuuuuuuuteeeee...
who takes care of your mom? my dad has had ALS for a year now and after taking Riluzol, he went from talking and walking to almost paralyzed within 3 months. we have all the care from hospice allowed and we also have an aid come in three times a week for 6 hours because I'm in college and my mom can't take care of him by herself. it's so hard and I can't imagine what we will have to do when he can't even hold himself up, which is bound to be quite soon. he apparently soiled himself five times today and every time I think it couldn't get any worse, it does. there has to be a better way around this.