Thinking of you on your trip and sending good vibes and prayers for your business and health🤗🧡 It is getting hot here in CT, USA - my symptoms hate the heat🥵
Congrats with your new business 🎉 I have been doing pretty good just tired often. Tingling in hands often and in legs when I walk for too long but good have a good one 😊
When I lost vision in my right eye my doctor told me that MS attacks white matter on and near the brain. The myelin sheath is white, the optic nerves are white and the spinal cord is white. So for me I have optic nerve damage.
I think what you’re describing in your mouth is a canker sore?? The news on your new company is very exciting! All the best in that endeavor ♥ soooo, do you think you will go into hospital if you lose vision again? Probably should as losing vision permanently would be awful. I like the well rounded content, if you want to talk about other things besides MS…it’s your Chan and you should! I don’t have MS so I enjoy the other content as well. Sorry to hear about your trip for the funeral, he lived a long life so hopefully that some comfort.
Hi Alicia! How are you? I probably would go in but not sure what they can actually do for me..? 🥺 I’ve arrived in Sweden as of yesterday and the country is in full bloom and summer temperatures. It’s beautiful and I can’t wait to share with you all.💕
First relapse left me permanently blind in my left eye till this day :/ was a huge shock for me - was sitting down and rubbed my right eye - it was only then I noticed I had almost zero vision in my left eye. I strangely had no pain with my ON but it did feel itchy. Over the course of 2 days the "dim" vision went full black except for the peripheral - my central vision was a black hole where I could see nothing. When looking at someone directly I could only see their shoes (for example). Never recovered from it and am in the unlucky 5% in which this happens apparently. Wishing you a speedy recovery. :) Losing vision frightens me to this day. I am terrified of losing my vision in my right eye, I would be fully blind. Not sure what I would do with my life then :/
I’m so sorry!! This is one of my fears. To get completely blind. My optic neuritis I had last summer left me with a reduced vision field but if I look straight ahead I can see with the exception of a handful of “floaters” and gray spots… Much love and strength to you my friend ❤️🩹
@@orbitingdecay6797 Sadly there is nothing that can restore nerve function (apart from clemastine but that is in trials now and barely works). HSCT does nuke the immune system and is very good in reducing relapses / future attacks - where I live you need to be incredibly disabled already with MS to be eligible for HSCT. It's really messed up. I would have thought taking HSCT before being bedridden would be a smarter approach... Currently on tecfidera though :/ its an "ok" medicine. Doctor wouldn't allow me to take anything stronger...
From studies I have read steroids only speed up recovery but ultimately don't impact the recovery amount. You may regain 95% of your vision back in 2 weeks vs 1-2 months (with/without steroids). Personally I wish I received plasmapheresis which can be used in extreme ON cases.
@@LiiBorossy essentially like dialysis where they filter out the white blood cells that are attacking the nerves. Very dramatic way of reducing body inflammation. I was unaware this was even possible during my first relapse as at the time I had no idea what was going on / didn't know I even had MS. It was only several weeks later (after having 3 days of steroids) that I found out it is sometimes used in extreme cases of ON. From some studies there is a decent chance I could have received some of my vision back - not sure why my Dr. didn't know about it / care / inform me.
![Seungmin "그렇게, 천천히, 우리(As we are)" | [Stray Kids : SKZ-PLAYER]](http://i.ytimg.com/vi/kAzmhLHePqU/mqdefault.jpg)
Thinking of you on your trip and sending good vibes and prayers for your business
and health🤗🧡
It is getting hot here in CT, USA - my symptoms hate the heat🥵
I hear you!!! The heat makes my walking so much worse. And my pain levels go through the roof.😭
Thank you for your support my friend!❤️
Congrats with your new business 🎉 I have been doing pretty good just tired often. Tingling in hands often and in legs when I walk for too long but good have a good one 😊
Thank you!!!! 🙏🏼 I’m so excited about it.
Sorry to hear you are struggling. I hope you get some relief soon. 💕
Share everything! Hope your cold lets up soon!
I feel much better now thank you 🙏🏼
When I lost vision in my right eye my doctor told me that MS attacks white matter on and near the brain. The myelin sheath is white, the optic nerves are white and the spinal cord is white. So for me I have optic nerve damage.
I’m sorry for what you are going through. It’s so hard/frustrating when things start to go wrong with your vision. 😢
I think what you’re describing in your mouth is a canker sore?? The news on your new company is very exciting! All the best in that endeavor ♥ soooo, do you think you will go into hospital if you lose vision again? Probably should as losing vision permanently would be awful. I like the well rounded content, if you want to talk about other things besides MS…it’s your Chan and you should! I don’t have MS so I enjoy the other content as well. Sorry to hear about your trip for the funeral, he lived a long life so hopefully that some comfort.
Hi Alicia! How are you? I probably would go in but not sure what they can actually do for me..? 🥺
I’ve arrived in Sweden as of yesterday and the country is in full bloom and summer temperatures. It’s beautiful and I can’t wait to share with you all.💕
Please also share about your life beside ms updates. As ms patient we also need to hear happy side of life stories ❤
Thank you for telling me! I love to share other bits too. ☺️ I have a travel vlog to Sweden coming soon. 🙌🏼
First relapse left me permanently blind in my left eye till this day :/ was a huge shock for me - was sitting down and rubbed my right eye - it was only then I noticed I had almost zero vision in my left eye. I strangely had no pain with my ON but it did feel itchy. Over the course of 2 days the "dim" vision went full black except for the peripheral - my central vision was a black hole where I could see nothing. When looking at someone directly I could only see their shoes (for example). Never recovered from it and am in the unlucky 5% in which this happens apparently. Wishing you a speedy recovery. :) Losing vision frightens me to this day. I am terrified of losing my vision in my right eye, I would be fully blind. Not sure what I would do with my life then :/
I’m so sorry!! This is one of my fears. To get completely blind. My optic neuritis I had last summer left me with a reduced vision field but if I look straight ahead I can see with the exception of a handful of “floaters” and gray spots…
Much love and strength to you my friend ❤️🩹
@@LiiBorossy Thank you
@@__Wanderer you are so sweet! Thank you for being so supportive and kind.
@@orbitingdecay6797 Sadly there is nothing that can restore nerve function (apart from clemastine but that is in trials now and barely works). HSCT does nuke the immune system and is very good in reducing relapses / future attacks - where I live you need to be incredibly disabled already with MS to be eligible for HSCT. It's really messed up. I would have thought taking HSCT before being bedridden would be a smarter approach... Currently on tecfidera though :/ its an "ok" medicine. Doctor wouldn't allow me to take anything stronger...
I am so glad your vision is better. I also have an eye condition and was afraid to lose my vision. The Lord Jesus bless you, dear Lii.
I’m sorry you are going through something similar. It’s so scary isn’t it? 🥺 Take care dear 💕
From studies I have read steroids only speed up recovery but ultimately don't impact the recovery amount. You may regain 95% of your vision back in 2 weeks vs 1-2 months (with/without steroids). Personally I wish I received plasmapheresis which can be used in extreme ON cases.
What is plasmapheresis?
@@LiiBorossy essentially like dialysis where they filter out the white blood cells that are attacking the nerves. Very dramatic way of reducing body inflammation. I was unaware this was even possible during my first relapse as at the time I had no idea what was going on / didn't know I even had MS. It was only several weeks later (after having 3 days of steroids) that I found out it is sometimes used in extreme cases of ON. From some studies there is a decent chance I could have received some of my vision back - not sure why my Dr. didn't know about it / care / inform me.
@@__Wanderer goodness me. I have no words. Maybe that would have been the better option for you.