STOMA and MTB? Mountain biking with ILEOSTOMY. Stoma life vlog.
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- Опубликовано: 7 ноя 2022
- Not many people know this about me, but I had stoma for 3 years. And how could they know? It is not visible under clothing and there is no reason for me to bring it up. So after a while everyone is surprised to find out about it. I have had stoma in all of the MTB videos that I have posted on this channel.
I have gone through 5 separate surgeries (2 emergency) until finally I had a reversal with J- Pouch.
This video is tribute to that time of my life in hopes it can help someone else. 
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I have ulcerative colitis. None of the medication worked for me aswell and the last year has been hell for me. I used to ride a lot of mountain biking in Ireland but it has effected so much i can't now. Having my surgery this Friday can't wait to get back on the bike so happy to have came across your video 😁
Same here, last year before the surgery was tough. Felt so much better after it. Are you getting stoma or going straight for J-pouch? Btw good luck on Friday and get back shreddin the trails 🤘
I'm getting a Stoma to start with. Thanks so much. Much appreciated 😁
@@johnward_7199 remember to get them cool bags 😎 going to feel much more confident. They come in black too. Good if you have some formal thing to go to where you wear a suit.
@@johnward_7199 Hi. Kinda curious how did it go with the surgery and are you back riding or not yet? Its been 4 months 🤔
@@thekorenkovsmtb My surgery went well thanks for asking 😀. Back riding struggling with fitness but I’ll get there 💪🏻
💪🦾
First video that I've found that has a mtber with an ileostomy.
I had my surgery 3+months ago and hoping that I'll get it reversed in September.
So far i haven't gone for a ride but i train at home doing a bit of weight training walking and in door cycling.
I'm afraid I might crush and with my intestines hanging out in bags that's dangerous i guess.
My condition was pretty bad so much that i couldn't support my own weight witch was 40kg.
Now I'm much better and I've gained 25kg and thinking of going for a small ride will see i only know that i miss it.
How are you today? How is the j_pouch?
Hei there. I am actually thinking of making a follow up video about mtb and j pouch. Not sure how many people find this helpful though. 🤷 Anyway, i feel ya, lost a lot of weight too before and between the surgeries. Looked like skin and bones. In my case, i tried to get back on the bike as fast as possible and was not afraid to do downhill etc. Even if you fall, you wouldn't rip anything out. The worst case, rip the bag off (never happened to me) or even worse, handlebars straight to stoma. But to do that i guess u have to be veeeery "lucky". 😬 For the first year after the j pouch (basically every surgery, had 5 in total) its hard to keep the energy levels. Use vitamins n electrolytes 👍🏼 there a lot to say, for long story short, it has been good. Im lucky without no complications and am able to do lots of extreme stuff 😁 rope jumping for example. Would be hard with stoma, but i have used the harness with the stoma so not a big deal.
Some other things to mention, medication that i had to use messed with my mind and thinking. Brain fog etc and still havent fully recovered. Annoying as hell. With stoma, the bag got full fast if I ate 1 to 2 hours before the ride. Now with J pouch is so good, just take a dump before the ride 😅 , take loperamid or something similar(we have to use strong stuff, cuz normal ppl hardeners dont do nothing for us) and i can ride in the mountains for 3-4-5 hours 👌 but still struggling with energy levels. Or maybe Im just getting old, hard to say 😁🤘🏼
@@thekorenkovsmtb Thanks for the response good to know you are doing well. Currently i don't take medication even though my doctor suggested to start a biological agent Hulio is the name of the drug but the potential side effects prevent me from starting.
As for the bar to the stoma 😂😂 i don't know if it is dangerous but i wouldn't want to happen even if i didn't have a stoma but almost did in one of my first attempts to get back to the saddle somehow i managed to avoid hitting my stomas (have 2) and took a light hit in my abdomen right in the middle.
I was sore for a few days like i did a lot of sit ups.
Anyway it's nice that you're doing well you seem like you rip stay strong 💪 buddy.
What kind of bag did you use?
Hi. I use Sensura Mio convex 1 piece soft maxi or midi. Those are the ones with curved in mod. After my first surgery i did use Sensura Mio but the cutting size ones (normal ones). I have tried Salts bags but the plastic from those always sticks to my stomach and was really hard to take off so i did not like them.
@@thekorenkovsmtb Thanks man!