my best friend was diagnosed with LAm recently, I'm devastated, I'm trying not to show her my emotions, (she doesn't need to see it) but it's hard. I'm hoping on the scientific breakthrough and sooner drug availability. It's sad that insurance companies are not very supportive with this. But please hang in there, I'm praying for all of you!
My friend was recently told that she had less than I year to live, she has both LAM and a central nervous system shut down type thing. I'm not ready to lose her and I don't how I'll live with that... these people live through this for years but with my BEST friend she won't be here anymore...
i know a 27 yr old that is suffering with LAM. I know that if is was not for her son, she would have committed suicide. her son is the only person that is keeping her alive. i know that she is in a lot of pain because she talks to me about it all the time. i dont know what i would do when she passes. it will hurt me deeply. THIS IS NO JOKE. THIS IS A VERY SERIOUS DISEASE!!! THERE IS NO CURE FOR THIS.
Hello. My name is Laurie and I too have LAM. I was diagnosed in 2000 when I was 19 years old, due to a collapsed lung. Since then I've had many more collapses(7 in total) and a number of surgeries. I am now 27 and I'm completely oxygen dependent. Over the years, my pulmonary doc told me that my lung function was slowly deteriorating. At my last appointment, last month, I was told that I'm down to 30% lung function. Everyday is a struggle but I do my best to not let it interfere with my happiness
my best friend was diagnosed with LAm recently, I'm devastated, I'm trying not to show her my emotions, (she doesn't need to see it) but it's hard. I'm hoping on the scientific breakthrough and sooner drug availability. It's sad that insurance companies are not very supportive with this. But please hang in there, I'm praying for all of you!
Any up dates?
She had both lungs transplanted 2 years ago. She is doing ok.
I am so glad to hear she is doing fine.
My friend was recently told that she had less than I year to live, she has both LAM and a central nervous system shut down type thing. I'm not ready to lose her and I don't how I'll live with that... these people live through this for years but with my BEST friend she won't be here anymore...
she's only 14 so she won't even be able to live a full life..
Omg I’m going through this now & don’t know what to do!!
i know a 27 yr old that is suffering with LAM. I know that if is was not for her son, she would have committed suicide. her son is the only person that is keeping her alive. i know that she is in a lot of pain because she talks to me about it all the time. i dont know what i would do when she passes. it will hurt me deeply. THIS IS NO JOKE. THIS IS A VERY SERIOUS DISEASE!!! THERE IS NO CURE FOR THIS.
Hello. My name is Laurie and I too have LAM. I was diagnosed in 2000 when I was 19 years old, due to a collapsed lung. Since then I've had many more collapses(7 in total) and a number of surgeries. I am now 27 and I'm completely oxygen dependent. Over the years, my pulmonary doc told me that my lung function was slowly deteriorating. At my last appointment, last month, I was told that I'm down to 30% lung function. Everyday is a struggle but I do my best to not let it interfere with my happiness