Talking about chronic long term shoulder pain with multiple sclerosis. Waiting for my MRI appointment which is now scheduled in for Saturday 26th in Cardiff. Since doing this video I have seen both referral letters from my MS team and my GP which suggest rotary cuff pathology (a common issue in degenerative diseases) I will update as soon as I get my results.
I have MS too. I just want to say you come across as the loveliest person, you’re so stunning too. Amitriptyline helps with sleeping too, which may be good for you. At the moment I also have Slipping Rib syndrome which is horrible and utterly painful. I doubt your shoulder pain is caused by this, but gallstones can sometimes cause that pain there, but I think it would’ve shown up in the ultrasound. Keep going, keep your chin up. You matter, your life matters xx
Hi Laura. Wow, I can’t believe that what you have been experiencing with the pain in your shoulder, I have also been struggling with the exact same issues. I have had MS since it was 21 and I’m now 62, and I’ve never felt the pain I have now in my right shoulder. I thought it was because of a number of issues I have with with my joints but now that I think about it, I had an MS attack years ago in my neck and left shoulder and arm which was caused by my MS, and the pain with that was very similar to what I’m experiencing now. With the pain in my left shoulder I haven’t been able to sleep at night with the pain, like you I can’t use a hairbrush properly, I can’t lift my arm above my head, and at times I want to rip my arm off to get away from the pain. The problem is, is that it is so debilitating I’m getting angry at myself and those around me, as I just can’t get away from the pain. I complained so much to my doctor that he put me on Tramadol 150mg twice a day and that seems to be keeping it mildly at bay. I also had a cortisone injection into the joint which reduces the inflammation somewhat and sort of reduces the pain a bit. You might need stronger pain medication and I also get those electro things that you’re having and that helps for a couple of hours after. I’m also waiting on an MRI to be done by my MS team in the hospital, but, like you are experiencing, the waiting times are horrendous. I’m in Australia which is fairly similar, medical wise, to the UK. Also, in the past I’ve been prescribed steroids for an MS flair. You might want to talk to your MS team or your doctor to prescribe steroids to help calm the inflammation in the shoulder and joint. I wish you so much success with your treatment and I do so hope that your pain subsides and you get to the bottom of the reasons why it is happening. Lots of love, Shelley in Australia 🙏👍🥰
Hi Shelly, thanks so much for taking the time to write this, when I was reading it I was feeling your pain and I have a very good idea of what you were /are going through. I really understood what you said when you wanted to rip your arm off as I feel exactly like that at the moment! No arm feels that it might be a better option than the pain I'm currently experiencing and that's how bad it is. I'm also feeling tetchy, but that's all just part and parcel of constant pain so don't feel bad about that, people who know you should understand and just want to support you. So you were prescribed tramadol and you've had a cortisone injection and that seems to give some relief? Unfortunately I don't do well on tramadol which is why I think they tried naproxen, but that offered no relief at all. I'd like to have the option to go on steroids as I'm absolutely sure that whatever this is it's inflammatory related (to my MS) but the specialists are suggesting it's rotary cuff or possible frozen shoulder and they don't think it's MS so are not treating it as such, I haven't been seen by my MS team since June 24 and haven't had a regular MRI brain scan in almost 2 years. I'm so sorry that you have had to experience this too, it's awfully debilitating and really drags you down. A friend of mine sent me a really interesting link to some treatment he had on something similar, I will see if he can try to repost it on here as RUclips deleted it because of the link. I'm sure it will help many. I have just called for my results but I don't get them until 8pm today. I will be sure to post the update as who knows this might well help others out there who are going through something similar. Thanks again, look after yourself 🧡
Hi, I've had this problem for years, it's just like your, a constant pain that goes into different levels of discomfort. My PT starting taping my shoulder and it help over time, giving the muscles chance to heal. And she was doing myofascial release which helped, just took a long time, over a year. also had an xray before, and came back with wear on my shoulder. The pain is bad and I agree with you it's hard to explain. Glad your talking about it because no one was believing me that it was MS. I was also diagnosed with brain tumour cancer on my cerebellum when I was being diagnosed with MS. Also I took CBG/CBD, cold therapy works well, and celebrex. The pain levels now it alot better for me, still yhere but aloy better. Hope you find something too help.
Thank you for sharing, sorry that you also went through something similar. The pain from this is horrendous! I think that whilst this may not directly be a 'MS' issue, I do think that diseases like MS can increase the risk of getting shoulder problems - but why I don't know? When you start reading up on MS and Shoulder issues there are actually quite a few links. I had my MRI on Saturday, all went well so the first part of the journey is done, Wednesday I get the results so I will share everything as I go. Take care and thanks again for sharing what worked for you 🧡
Hi Laura, I had exact same back in 2017 pain was horrendous, tried everything and ended up having to get my shoulder manipulated under sedation but took months before physio referred me for it. Fingers crossed crossed for you.
I am so sorry Laura that you are dealing with MS and shoulder pain. You described some of the same problems I have in my shoulders and left arm and hand. Like you describe the arm shoulder weakness. I have this znd also severe spasm, cramps and lightning bolt pain and weakness in left arm and hand. Dont yet know the cause. I do use topical CBD lotion on my neck, shoulders, back, legs, feet. It at least calms the nerve pain enough to get to sleep. Effects seem to last approx 2 hrs so it is only temporary but worth it to me. The CBD lotion is combined w a bunch of essential oils. You may also want to try Frankincense and other pain relieving essential oil for topical pain relief as they are anti-inflammatory. I hope you can get to the bottom of the cause.
I'm actually currently being investigated for MS due to 12 months of recurrent classic symptoms, however what you describe sounds very like Parsonage Turner Syndrome (or brachial plexus neuritis) which I experienced myself at the end of 2019. It's a poorly understood condition, but they believe it's often due to residual viral infections that attack the brachial plexus nerve, resulting in extreme pain (acute phase of ~ 2 weeks) followed by increasing weakness. After some very unhelpful misdiagnoses (rotator cuff sprain it was not...) I was referred by my local MSK team for a nerve conduction study. This revealed that my suprascapular nerve (a branch of the brachial plexus) was more or less fully paralysed and there wasn't much chance of regaining any innervation. Nearly 5 years later, and I still don't have the use of my supraspinatus or infraspinatus muscles, however the other muscles of my shoulder joint have become stronger to compensate and I can still live a fairly normal life. I strongly suspect I have the initial signs of MS so videos like yours are helping me understand the condition and perhaps indicate a possible link between Parsonage Turner and MS. Best of luck with your shoulder pain - I would definitely recommend requesting to speak to someone from your hospital's MSK team.
Hi, thanks so much for commenting. I have just been reading up on parsonage turner syndrome because I've never heard of it before. It sounds very painful 😟. It's horrible to go through misdiagnosis because it's time consuming and frustrating. I don't know if you saw my most recent video but they diagnosed it as Frozen Shoulder, with mild bursitis inflammation and a probable SLAP 11 TYPE tear. I've had the hydrodilatation procedure but as yet I haven't seen any improvement in pain or mobility - I have an appointment booked in with the MSK team next week. I would do anything to get rid of this pain, the mobility part I could deal with. 5 years is a long time to not have use of certain muscles, but I guess that the body works out a way to compensate. Can I ask, do you have a lot of pain, or just limited mobility in your arm? I hope that you do not get the suspected MS diagnosis, fortunately though if this is the case there is so much more information about it and good treatment options. Good luck, please let me know how you get on.
@@lauraironstalksms Ah ok, glad at least you've had a formal diagnosis and have begun treatment. My father in law had frozen shoulder and suffered a lot with the pain. He ended up having surgery to breakdown the scar tissue and has regained a lot of mobility with his post-op physio - all the best for your upcoming appointment! With my PTS, it was 2 weeks of the most intense pain I've ever experienced then, overnight, the pain was replaced with total weakness in that shoulder. No pain these days and my mobility is more or less 100% bat a few very specific lateral movements with my arm. Thanks for your kind words - I've discovered already there is a very supportive MS community out there and that there's plenty of people who live long, fulfilling lives with the right therapies. I'm still waiting on a referral to my local neurology department so have everything crossed until then.
It's good to know that you have no pain not and 100% mobility. That fills me with hope 🙏 Good luck with your up and coming appointment, you're right the community is amazing. Supportive, helpful and there to chat if you want it. Feel free to pop by whenever 🧡
I don't have ms but I have hypermobility syndrome so my right shoulder can dislocate which is excruciating! I feel for you, mine gets worse in cold weather and trying to was my hair can make it really bad. When it gets like that the pain takes my breath away, i ve learnt to go straight to bed, lie on my left side and have pernaton gel rubbed into and isolate it in a makeshift sling and put a hot water bottle on it and concentrate on breathing. After about 2/3 hours I can get up as long as I keep it in the sling and keep it warm. Usually it corrects itself after 1 to 3 days but it is a nightmare! The heat and the sling help to relax it and glide it back to the alignment it needs to be at. Don't know if any of this helps you and your condition but you have my sympathies 🤗💖
Hi Laura, Finally someone else has this problem. I have ms and have had chronic shoulder pain on and off. I mentioned it to the Ms therapy clinic I go to and they had not come across this. You seem to have a good set up with various avenues you can try. I do oxygen therapy once a week and do not know if has an effect but things seem ok at the moment. Good luck and please keep us informed because you help us all.
Hi Chris, oh so you experience this too? Interesting 🤔. Actually, yesterday I googled it and it does seem that others go through the same thing - interesting link here: forum.mssociety.org.uk/t/shoulder-pain/30592/10 Maybe the next time you see your team you could mention it? Yes, I'm lucky in the fact that I have some very helpful and knowledgeable people around me, my physio therapist Maggie has been my god send. She has actually mentioned oxygen therapy to me too so I'm currently looking into this as well as it's based about an hour away. Thanks very much and yes I will keep you updated.
I've been going thru this excruciating pain for about 7 or 8 weeks. Laid flat on my back for about 6 of those weeks. I had it once before in the same shoulder. I'm always having tendon problems in my legs and planters. Cold packs worked the best for me. I manually massage mine too and icy hot I massage in. My chiro is also versed in sport medicine. Figure eight and he pressed and pressed some areas in my shoulders. Shudder. He also used his hands to strong arm my shoulder forward and back. There is no relief from the pain. It's excruciating. I also have had the extreme pain in my legs too with tendinopathy. The other thing that helped was advil every four hours. Didn't relieve the pain much, but I felt like it must be doing something for the inflammation.
Oh bless you Laura! Hoping it can ease for you soon. Doesn’t sound fun at all, especially with two fluffs to walk! So strange the way the body handles grief. I struggled so much with my symptoms at the end of last year and couldn’t seem to do anything to help ease them, and I’m sure it was my body grieving for the boys! X
Thank you sweetie, you are right about walking the fluffs! Although I've found this fantastic waist walker! I'm sure you did, they do say grief causes all sorts of strange symptoms for the body and the boys were a huge loss 💔🐶🐶. Hope you're well. Thanks for your message ❤️
HELLO BEAUTIFUL!!! I'm glad you're back, but it sucks that you're having issues with shoulder pain. I hope that you get that sorted out. That damn MS gets so frustrating and almost funny at the same time when issues arise. All we can do is say, "Here we go again, I've been here before." It's kind of funny that you come back and post a video and I get a MRI tomorrow. 🤞 Thank you for the video Laura. Stay well. 🙏😘
Hello 😊👋 Yep, here we go again!!! What a coincidence.. Very good luck with your MRI today 🤞 I hope all is well with you MS and health wise. Hopefully the next time I'm back on I'll have a resolution for this shoulder 💪👊. Stay well 🐶
Hiya here is some information for you. i had this problem 4 years ago and found out that it was a tare around the cuff, so therefore i had a injection in the joint which replaced the fluid which was lost due to the ware and tare and if you have the same you will go to a specialist, Now we can have the same symptoms but it can be something entirely different. i do wish you all the best with your recovery... i still have my paperwork from the clinic i went too and i had to go to nottingham for it and can see your in wales so you will get the correct treatment. ill message you with the paperwork later today, one question aswell for you, do you have jaw pain related to tmj because i have that aswell and thought it was all linked but luckily enough it is a seperate issue GOODLUCK
Hi, thank you. Sorry you had to experience pain too. No I don't have any pain in my jaw, but what I have noticed is that the pain is transferring to my right shoulder too.
I’ve gone through this three times now. They called it a frozen shoulder, gave me a cortisone shot in the shoulder and I have physical therapy. I’ve often wondered if this is really related to my MS though 🤔
Three times, I feel for you. Yes, it suggests that people with MS are at higher risk of developing both frozen shoulder and rotary cuff so it seems. Do the cortisone shots help? as I think in my mind this will be my next step
I don’t think your shoulder problem is caused by MS. It very much looks like a variant of a frozen shoulder. In the past, I have had issues with both shoulders that exactly match what you’re describing. Although MS is not the cause, it doesn’t help matters either. Really, it’s an aging related problem.
What is happening is the arm bone should be able to rotate freely in a socket that is part of the clavicle, and yours is not. When it can’t, it creates an impingement that can be very painful. The way to treat it is to inject approximately 30ml of a mixture of water and cortisone into the space between the clavicle and the end the arm bone. The volume of fluid stretches the space between the bones allowing a free rotation of the arm bone. You sound like you’re describing some soreness in the rotator cuff and the deltoid muscles - that’s classic frozen shoulder pain,
Two radiologists developed the treatment when they were attending a conference in Paris. One of them in Melbourne, Frank Bourke, has done both my shoulders, so I am familiar with the procedure. It’s really not painful at all and is very quick. Some people don’t like the idea of watching a needle coming towards them, but it’s less stressful than drawing blood for a test.
I must admit, I was a bit shocked by what the medical people have told you so far. Having been through it, I understand how painful it can be and how effective hydro dilation is.
The practitioner does need to go right into the joint. Some try drizzling cortisone over the area but that is a waste of time because it won’t stretch the joint open. If you can see a radiologist who is doing a procedure called hydro dilation, then I think your problem will be solved. I'd run this past someone who does hydrodilation as then you can get a reasonable diagnosis.
Andrew thanks as always for your important input, as you know I'm looking into the hydrodilatation procedure. Your comment may help others that are not aware of this treatment. I have one last call to receive from my GP tomorrow morning and I should be better placed to make a decision and go ahead with this treatment. Thanks again.
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Talking about chronic long term shoulder pain with multiple sclerosis. Waiting for my MRI appointment which is now scheduled in for Saturday 26th in Cardiff. Since doing this video I have seen both referral letters from my MS team and my GP which suggest rotary cuff pathology (a common issue in degenerative diseases) I will update as soon as I get my results.
I have want you describe in my right arm. I take magnesium and that seems to help.
I have MS too. I just want to say you come across as the loveliest person, you’re so stunning too. Amitriptyline helps with sleeping too, which may be good for you. At the moment I also have Slipping Rib syndrome which is horrible and utterly painful. I doubt your shoulder pain is caused by this, but gallstones can sometimes cause that pain there, but I think it would’ve shown up in the ultrasound. Keep going, keep your chin up. You matter, your life matters xx
Hi Laura. Wow, I can’t believe that what you have been experiencing with the pain in your shoulder, I have also been struggling with the exact same issues. I have had MS since it was 21 and I’m now 62, and I’ve never felt the pain I have now in my right shoulder. I thought it was because of a number of issues I have with with my joints but now that I think about it, I had an MS attack years ago in my neck and left shoulder and arm which was caused by my MS, and the pain with that was very similar to what I’m experiencing now. With the pain in my left shoulder I haven’t been able to sleep at night with the pain, like you I can’t use a hairbrush properly, I can’t lift my arm above my head, and at times I want to rip my arm off to get away from the pain. The problem is, is that it is so debilitating I’m getting angry at myself and those around me, as I just can’t get away from the pain. I complained so much to my doctor that he put me on Tramadol 150mg twice a day and that seems to be keeping it mildly at bay. I also had a cortisone injection into the joint which reduces the inflammation somewhat and sort of reduces the pain a bit. You might need stronger pain medication and I also get those electro things that you’re having and that helps for a couple of hours after. I’m also waiting on an MRI to be done by my MS team in the hospital, but, like you are experiencing, the waiting times are horrendous. I’m in Australia which is fairly similar, medical wise, to the UK. Also, in the past I’ve been prescribed steroids for an MS flair. You might want to talk to your MS team or your doctor to prescribe steroids to help calm the inflammation in the shoulder and joint. I wish you so much success with your treatment and I do so hope that your pain subsides and you get to the bottom of the reasons why it is happening. Lots of love, Shelley in Australia 🙏👍🥰
Hi Shelly, thanks so much for taking the time to write this, when I was reading it I was feeling your pain and I have a very good idea of what you were /are going through. I really understood what you said when you wanted to rip your arm off as I feel exactly like that at the moment! No arm feels that it might be a better option than the pain I'm currently experiencing and that's how bad it is. I'm also feeling tetchy, but that's all just part and parcel of constant pain so don't feel bad about that, people who know you should understand and just want to support you. So you were prescribed tramadol and you've had a cortisone injection and that seems to give some relief? Unfortunately I don't do well on tramadol which is why I think they tried naproxen, but that offered no relief at all. I'd like to have the option to go on steroids as I'm absolutely sure that whatever this is it's inflammatory related (to my MS) but the specialists are suggesting it's rotary cuff or possible frozen shoulder and they don't think it's MS so are not treating it as such, I haven't been seen by my MS team since June 24 and haven't had a regular MRI brain scan in almost 2 years. I'm so sorry that you have had to experience this too, it's awfully debilitating and really drags you down. A friend of mine sent me a really interesting link to some treatment he had on something similar, I will see if he can try to repost it on here as RUclips deleted it because of the link. I'm sure it will help many. I have just called for my results but I don't get them until 8pm today. I will be sure to post the update as who knows this might well help others out there who are going through something similar. Thanks again, look after yourself 🧡
Hi, I've had this problem for years, it's just like your, a constant pain that goes into different levels of discomfort.
My PT starting taping my shoulder and it help over time, giving the muscles chance to heal. And she was doing myofascial release which helped, just took a long time, over a year.
also had an xray before, and came back with wear on my shoulder.
The pain is bad and I agree with you it's hard to explain.
Glad your talking about it because no one was believing me that it was MS.
I was also diagnosed with brain tumour cancer on my cerebellum when I was being diagnosed with MS.
Also I took CBG/CBD, cold therapy works well, and celebrex.
The pain levels now it alot better for me, still yhere but aloy better.
Hope you find something too help.
Thank you for sharing, sorry that you also went through something similar. The pain from this is horrendous! I think that whilst this may not directly be a 'MS' issue, I do think that diseases like MS can increase the risk of getting shoulder problems - but why I don't know? When you start reading up on MS and Shoulder issues there are actually quite a few links. I had my MRI on Saturday, all went well so the first part of the journey is done, Wednesday I get the results so I will share everything as I go. Take care and thanks again for sharing what worked for you 🧡
Hi Laura, I had exact same back in 2017 pain was horrendous, tried everything and ended up having to get my shoulder manipulated under sedation but took months before physio referred me for it. Fingers crossed crossed for you.
Thanks lovely, I will look into this x
I am so sorry Laura that you are dealing with MS and shoulder pain. You described some of the same problems I have in my shoulders and left arm and hand. Like you describe the arm shoulder weakness. I have this znd also severe spasm, cramps and lightning bolt pain and weakness in left arm and hand. Dont yet know the cause. I do use topical CBD lotion on my neck, shoulders, back, legs, feet. It at least calms the nerve pain enough to get to sleep. Effects seem to last approx 2 hrs so it is only temporary but worth it to me. The CBD lotion is combined w a bunch of essential oils. You may also want to try Frankincense and other pain relieving essential oil for topical pain relief as they are anti-inflammatory. I hope you can get to the bottom of the cause.
@@christinahurt7505 Thank you so much for your kind message 🙏
I'm actually currently being investigated for MS due to 12 months of recurrent classic symptoms, however what you describe sounds very like Parsonage Turner Syndrome (or brachial plexus neuritis) which I experienced myself at the end of 2019. It's a poorly understood condition, but they believe it's often due to residual viral infections that attack the brachial plexus nerve, resulting in extreme pain (acute phase of ~ 2 weeks) followed by increasing weakness.
After some very unhelpful misdiagnoses (rotator cuff sprain it was not...) I was referred by my local MSK team for a nerve conduction study. This revealed that my suprascapular nerve (a branch of the brachial plexus) was more or less fully paralysed and there wasn't much chance of regaining any innervation. Nearly 5 years later, and I still don't have the use of my supraspinatus or infraspinatus muscles, however the other muscles of my shoulder joint have become stronger to compensate and I can still live a fairly normal life. I strongly suspect I have the initial signs of MS so videos like yours are helping me understand the condition and perhaps indicate a possible link between Parsonage Turner and MS. Best of luck with your shoulder pain - I would definitely recommend requesting to speak to someone from your hospital's MSK team.
Hi, thanks so much for commenting. I have just been reading up on parsonage turner syndrome because I've never heard of it before. It sounds very painful 😟. It's horrible to go through misdiagnosis because it's time consuming and frustrating. I don't know if you saw my most recent video but they diagnosed it as Frozen Shoulder, with mild bursitis inflammation and a probable SLAP 11 TYPE tear. I've had the hydrodilatation procedure but as yet I haven't seen any improvement in pain or mobility - I have an appointment booked in with the MSK team next week. I would do anything to get rid of this pain, the mobility part I could deal with.
5 years is a long time to not have use of certain muscles, but I guess that the body works out a way to compensate. Can I ask, do you have a lot of pain, or just limited mobility in your arm? I hope that you do not get the suspected MS diagnosis, fortunately though if this is the case there is so much more information about it and good treatment options. Good luck, please let me know how you get on.
@@lauraironstalksms Ah ok, glad at least you've had a formal diagnosis and have begun treatment. My father in law had frozen shoulder and suffered a lot with the pain. He ended up having surgery to breakdown the scar tissue and has regained a lot of mobility with his post-op physio - all the best for your upcoming appointment! With my PTS, it was 2 weeks of the most intense pain I've ever experienced then, overnight, the pain was replaced with total weakness in that shoulder. No pain these days and my mobility is more or less 100% bat a few very specific lateral movements with my arm.
Thanks for your kind words - I've discovered already there is a very supportive MS community out there and that there's plenty of people who live long, fulfilling lives with the right therapies. I'm still waiting on a referral to my local neurology department so have everything crossed until then.
It's good to know that you have no pain not and 100% mobility. That fills me with hope 🙏
Good luck with your up and coming appointment, you're right the community is amazing. Supportive, helpful and there to chat if you want it. Feel free to pop by whenever 🧡
It’s good to see you. Sorry for the pain
Thank you
I don't have ms but I have hypermobility syndrome so my right shoulder can dislocate which is excruciating! I feel for you, mine gets worse in cold weather and trying to was my hair can make it really bad. When it gets like that the pain takes my breath away, i ve learnt to go straight to bed, lie on my left side and have pernaton gel rubbed into and isolate it in a makeshift sling and put a hot water bottle on it and concentrate on breathing. After about 2/3 hours I can get up as long as I keep it in the sling and keep it warm. Usually it corrects itself after 1 to 3 days but it is a nightmare! The heat and the sling help to relax it and glide it back to the alignment it needs to be at. Don't know if any of this helps you and your condition but you have my sympathies 🤗💖
Thank you, this is really helpful information. I will re-try heat again to see if it works. Thank you for sharing
Hi Laura, Finally someone else has this problem. I have ms and have had chronic shoulder pain on and off. I mentioned it to the Ms therapy clinic I go to and they had not come across this. You seem to have a good set up with various avenues you can try. I do oxygen therapy once a week and do not know if has an effect but things seem ok at the moment.
Good luck and please keep us informed because you help us all.
Hi Chris, oh so you experience this too? Interesting 🤔. Actually, yesterday I googled it and it does seem that others go through the same thing - interesting link here: forum.mssociety.org.uk/t/shoulder-pain/30592/10
Maybe the next time you see your team you could mention it? Yes, I'm lucky in the fact that I have some very helpful and knowledgeable people around me, my physio therapist Maggie has been my god send. She has actually mentioned oxygen therapy to me too so I'm currently looking into this as well as it's based about an hour away. Thanks very much and yes I will keep you updated.
So sorry that you're experiencing so much pain. I hope it improves soon. x
Thank you very much 😊
I've been going thru this excruciating pain for about 7 or 8 weeks. Laid flat on my back for about 6 of those weeks. I had it once before in the same shoulder. I'm always having tendon problems in my legs and planters. Cold packs worked the best for me. I manually massage mine too and icy hot I massage in. My chiro is also versed in sport medicine. Figure eight and he pressed and pressed some areas in my shoulders. Shudder. He also used his hands to strong arm my shoulder forward and back. There is no relief from the pain. It's excruciating. I also have had the extreme pain in my legs too with tendinopathy. The other thing that helped was advil every four hours. Didn't relieve the pain much, but I felt like it must be doing something for the inflammation.
Hi, so sorry to hear that you are going through this much pain, do you know what it is?
My chiropractor says it is frozen shoulder. He couldnt manipulate my shoulder at all.
I also have MS.
Oh bless you Laura! Hoping it can ease for you soon. Doesn’t sound fun at all, especially with two fluffs to walk!
So strange the way the body handles grief. I struggled so much with my symptoms at the end of last year and couldn’t seem to do anything to help ease them, and I’m sure it was my body grieving for the boys! X
Thank you sweetie, you are right about walking the fluffs! Although I've found this fantastic waist walker! I'm sure you did, they do say grief causes all sorts of strange symptoms for the body and the boys were a huge loss 💔🐶🐶. Hope you're well. Thanks for your message ❤️
HELLO BEAUTIFUL!!!
I'm glad you're back, but it sucks that you're having issues with shoulder pain. I hope that you get that sorted out. That damn MS gets so frustrating and almost funny at the same time when issues arise. All we can do is say, "Here we go again, I've been here before."
It's kind of funny that you come back and post a video and I get a MRI tomorrow. 🤞
Thank you for the video Laura.
Stay well. 🙏😘
Hello 😊👋
Yep, here we go again!!! What a coincidence.. Very good luck with your MRI today 🤞 I hope all is well with you MS and health wise. Hopefully the next time I'm back on I'll have a resolution for this shoulder 💪👊. Stay well 🐶
Hiya here is some information for you. i had this problem 4 years ago and found out that it was a tare around the cuff, so therefore i had a injection in the joint which replaced the fluid which was lost due to the ware and tare and if you have the same you will go to a specialist, Now we can have the same symptoms but it can be something entirely different. i do wish you all the best with your recovery... i still have my paperwork from the clinic i went too and i had to go to nottingham for it and can see your in wales so you will get the correct treatment. ill message you with the paperwork later today, one question aswell for you, do you have jaw pain related to tmj because i have that aswell and thought it was all linked but luckily enough it is a seperate issue
GOODLUCK
Hi, thank you. Sorry you had to experience pain too. No I don't have any pain in my jaw, but what I have noticed is that the pain is transferring to my right shoulder too.
Try Magnesium 500 mg per tablet. chuck
Hi Chuck, I take Magnesium Boost effervescent tablets X 2 per day. They are 375mg each, you think to go higher still +
@@lauraironstalksms Maybe but your weight is probably less than mine. So you should be fine there.
Thanks, I'll keep up with them 👍
Try magnesium.
I’ve gone through this three times now. They called it a frozen shoulder, gave me a cortisone shot in the shoulder and I have physical therapy. I’ve often wondered if this is really related to my MS though 🤔
Three times, I feel for you. Yes, it suggests that people with MS are at higher risk of developing both frozen shoulder and rotary cuff so it seems. Do the cortisone shots help? as I think in my mind this will be my next step
@@lauraironstalksms the shots help tremendously! Improvement in less than a week
I don’t think your shoulder problem is caused by MS. It very much looks like a variant of a frozen shoulder. In the past, I have had issues with both shoulders that exactly match what you’re describing. Although MS is not the cause, it doesn’t help matters either. Really, it’s an aging related problem.
What is happening is the arm bone should be able to rotate freely in a socket that is part of the clavicle, and yours is not. When it can’t, it creates an impingement that can be very painful.
The way to treat it is to inject approximately 30ml of a mixture of water and cortisone into the space between the clavicle and the end the arm bone. The volume of fluid stretches the space between the bones allowing a free rotation of the arm bone.
You sound like you’re describing some soreness in the rotator cuff and the deltoid muscles - that’s classic frozen shoulder pain,
Two radiologists developed the treatment when they were attending a conference in Paris. One of them in Melbourne, Frank Bourke, has done both my shoulders, so I am familiar with the procedure.
It’s really not painful at all and is very quick. Some people don’t like the idea of watching a needle coming towards them, but it’s less stressful than drawing blood for a test.
I must admit, I was a bit shocked by what the medical people have told you so far. Having been through it, I understand how painful it can be and how effective hydro dilation is.
The practitioner does need to go right into the joint. Some try drizzling cortisone over the area but that is a waste of time because it won’t stretch the joint open.
If you can see a radiologist who is doing a procedure called hydro dilation, then I think your problem will be solved.
I'd run this past someone who does hydrodilation as then you can get a reasonable diagnosis.
Andrew thanks as always for your important input, as you know I'm looking into the hydrodilatation procedure. Your comment may help others that are not aware of this treatment. I have one last call to receive from my GP tomorrow morning and I should be better placed to make a decision and go ahead with this treatment. Thanks again.