Why You Feel Worse with CPAP and How to Feel Better.
HTML-код
- Опубликовано: 4 окт 2024
- As an Amazon Associate, I earn on Qualified Purchases: amzn.to/3drPax1
Check out my new Amazon Store: www.amazon.com...
(or....use my Amazon affiliate link every time you shop Amazon. Thanks!)
Why you feel worse with CPAP and what you can do about it.
Video Sponsor: cpapsupplies.c...
Use my CPAPSupplies.com (affiliate link): bit.ly/38yPlXk
Don't forget discount code: lefty20 if all else fails!
CPAPSupplies.com (affiliate link): bit.ly/38yPlXk
Join this channel to get access to perks:
/ @freecpapadvice
Links:
1.) As an Amazon Associate, I earn on Qualified Purchases: amzn.to/3drPax1
2.) Monthly basis: / freecpapadvice
3.) Tell people that need a sleep study or help with OSCAR or CPAP Therapy about axgsleepdiagnos...
4.) Donate one time at www.paypal.me/...
5.) Support us AND clean your stinky dirty mask. maskbright.com. You can also buy a great mask for CHEAP!
6.) Use our Free Forum. freecpapadvice.... (I swear it's free, and we will never give out your information.
Thank you!!!
#cpap
#apnea
Thank you to the video sponsor CPAPSupplies.com/lefty. Use my CPAPSupplies.com (affiliate link): bit.ly/38yPlXk
Don't forget discount code: "LEFTY20" to save some loot.
I am getting back into CPAP therapy after being diagnosed 15 years ago. My biggest problem has been masks. Trying to find the right one and dealing with the over-inflated price's has been a challenge. What makes it worse is that some places will not let you return them if they don't work. So now you are out that money. I checked out your sponsor and noticed they will let you return the items "IF" they are unopened. Very disappointing for those of us that struggle with finding the right masks.
The reason we stop is because I get less sleep than before. It’s BS. I’m not playing more games to get all this crap to work. It has disrupted my sleep more than anything I ever have known.
Ditto!!!
Mine too
I hate my machine. I hate my mask. I hate the whole thing. The truth is, CPAP just doesn’t work for everyone.
I just sleep propped up and I don't wake up choking anymore. He's right a total pain I went thru, even being put under to see what's going on and couldn't stand it. Said hell no to the implant. Got Bi-pap. Tried different Masks and pressures.....blah blah. Felt like it was going to kill me!
I had a CPAC and even after my test, I got a new CPAC and it still wasn’t working then they sent me up with a bipack(= pressure, inhale, and different pressure when exhale) and this works so much better CPAC was not doing the job for me
If the main danger of sleep apnea is low oxygen levels why not just wear an oxygen sensor that alerts you whenever your levels are low? All my cpap does is wake me up randomly throughout the night and destroy my rest....an o2 sensor would do the same and be far less annoying.
I am desperate. I feel worse everyday now. I live alone, so I don't have anyone who can watch me while I sleep and see what's wrong.
It takes an hour to two hours to feeling normal again after using my CPAP. Truly feels like i am nearing the end. I have a HMO, and they
often don't have much time for patients. Thanks for your video. Nice to know that I am not alone.
Hang in there, Mike!
I video myself at night.
I realize this is an old video, but I recently began CPAP and I was feeling like doo-doo every morning. Then I watched this video, realized that my mask was just too tight on my mush, made a slight adjustment to loosen it and I no longer wake up thinking I'm going to die. Thank you for the work you do! This one was a life-saver.
This guy won't answer any questions questions. He is only here to make money. That's all he wants.
I’m light headed/dizzy EVERY DAY.
Me too! Almost every morning I'm dizzy af, then fatigue. Gotta start capturing data and get OSCAR setup I guess. Seems like that should be my sleep tech's job 🤷♂️
@@moidfpvme too and hardly sleep at night 😢
Same here. I'm going to stop using mine and go for a dental device
I've been on CPAP for just over 2 years and it's been a complete life changer for me. I started feeling better immediately. There have been small hiccups here and there but overall, I'm in much better shape *sleep wise* than I was for years before my SA diagnosis. I've tweaked my settings on my APAP machine to the point I think I've got the right settings for me. If you're having problems, don't give up! Keep tweaking the settings, try different masks until you find the right thing for you! It's worth it to yourself to get your sleep health in check. You'll feel so much better if you do!
Man I wish I had your experience I use it day after day but I feel like trash years later using it
How can I tweak settings when they have my machine locked on me??? And I said to them I am every week paying for this thing and eventually I'm going to own it and actually I will be an owner of it pretty soon. So how come it would be locked? I mean I just asked the lady this today I was at my appointment and she said so how is the machine been working for you so far? And I said I wouldn't know and you know that because I don't use it and she said yeah I see that. I felt like saying then why the hell did you just ask me that??? You know it's the same damn thing I tell you every single time I've come in here that machine doesn't work for me it just continuously blows and I feel like I'm going to suffocate when I put the fucking mask on my face and you guys just keep telling me to keep trying??? And I hear stories like you all yeah man I took to it right away etc etc it's so fucking depressing and every day I'm getting more and more horribly depressed and aggravated over nothing and cranky all the time for no reason and constantly fucking tired. And I just want to throw this fucking expensive piece of shit out the window. And these doctors and technicians that are not helping me that just continuously telling me to keep trying but yet they keep taking my money at Sleep Centers of Connecticut. I think it's a big fucking scam actually
I’ve been using cpap for 16 years. Can’t live without it.
@@davidcarlburg2296i have heard cpap therapy can emergent central sleep apnea????
I love my machine ❤
Another great video, LL! I've been on CPAP for two years. But I felt terrible - tired, confused, etc. "But your AHI is good," my neurologist told me. I tried different types of masks and nothing helped. My PCP recommended another MD who specializes in sleep medicine and she asked if I'd tried auto PAP ( I had been on a fixed pressure of 14). I hadn't. So she recalibrated my machine to APAP and voila - I started feeling better each day after. Then FoamGate happened and I had to switch machines - and another miracle happened - my AHI improved a lot after I got my new machine! So don't be satisfied when a medical professional tells you you're "fine" or "within acceptable range" when you feel terrible. Persevere and get some answers until you DO feel better!
What's the brand and model of your new machine?
@@the5stacys I got a AirSense 10 for Her. I'm using it on the "Auto" feature so air pressure fluctuates during the night depending on what the machine thinks I need. Its range is set between 9-20.
@@ClarisseRockinThatBow Yeah, that's good, FBS. You've obviously looked into it well, & set your bottom pressure at a good point, rather than leaving it at the standard settings APAP comes at. I really don't think they're actual treatment settings (almost always 4 to 20), just a standard "shipment" setting.
Oh man that's all Greek to me! in my current case I was having a good time with my BIPAP machine for half a year, no problems... then suddenly I've started waking up at night feeling bad and distressed, as if I've been poisoned and it feels like I'm having trouble breathing after I take the mask off, but my pulse oximeter says I'm fine. even after a 45 minute nap I have this problem with it now. It feels like I'm dying! I can't describe it better than that. I know that's not very descriptive but any suggestions on what I can ask my pulmonologist or the supplier I got my machine from?
@@AnotherCoyotehey did you ever figure anything out? I cannot adjust to this machine I keep trying but it's scaring me. Al's I have are claustrophobic episodes whenever I try to wear it. All it does is just blow blow blow and I can't even adjust settings as they have me locked out of the thing that I'm paying for and I am almost done paying for and will own soon but yet they have me locked out of it. She told me it's already on the lowest setting of four or something? And then it's on some ramp-up setting?? The first night I experienced trouble with it I told them, and they just said keep trying and I did and it still didn't help and I just haven't been using it it just sits on the side of my bed. I'm really sorry that nobody has answered your question. I come onto RUclips looking for answers all the time and I leave questions for people just like this guy and nobody ever even answers me so even this RUclips stuff where people say they're here to help you, they aren't. Do you really think that this guy is going to answer you or me? We all need to grow up and figure this stuff out on our own apparently because medical staff and people like this guy aren't really helpful this guy only wants more clicks and Views so he can grow his channel he's not really trying to help anyone. Because I see people like you with serious questions and struggling and he's not on here answering you is he? Or me is he? Yeah this is all very discouraging and I really hope you can find the help you need and I hope I can find the help I need.
Been a Papper now for over 6 yrs...was a big struggle at 1st ....then discovered guys like you ...and it was HUGE...I use Soft Neck Collar...my numbers are very consistent ...still fell tired most days but I attribute this to my heart Meds ...thank you for all you do...you have been a LARGE beacon in this man's life ...
That's great to hear Rick!
what they don't tell you is, sleep apnea can deplete the body of all its vitamin b levels, take a look at high doses of b thiamine programme.
You have to be committed and determined. I didn’t have a choice - I had to make it work. I have a BIPAP. Untreated apnea caused PULMONARY HYPERTENSION! Don’t give up!!!
Well, I finally got tired of having massive air leaks every single night. I had trouble sleeping through the night also. The noise I was making would wake up my wife almost every night so I had to get something done. I have been using the same mask for about 10 years (Mirage Activa LT) and yes, I was aware that my CPAP machine was reporting massive leaks, but I couldn't figure out where they were coming from. I finally bought some mouth tape and stared using that. It helped for awhile. I still was making noises at night and while still using the Mirage Activa LT mask, I was still getting mask leaks.
So, I finally decided to try a full face mask. I didn't like the idea of using one, but I thought I had to do something different. I bought an AirFit F20 and started using that. The first time I used this mask, I slept through the entire night and to my knowledge, didn't move a muscle! It was strange to go to sleep and then wake up and it's daylight! I checked my OSCAR readings and my mask leaks were just about gone. Then I found that there is an AirTouch F20 which has the softer foam cushions and that's what I'm using now. I have the medium mask and I think it's the right size.
Also, with some advice from Freecpapadvice.com, I change some settings on my BiPAP that hadn't been changed in 11 years! I lowered the pressure and now I sleep like a log all night through! It's just remarkable how much better I sleep with this full face mask. If you a reluctant to try one, I strongly suggest you give it a shot. I don't even use the mouth tape any more and I sleep as quietly as I have ever done and my wife is very appreciative of that fact. So, this thing with the CPAP is working for me and I'm 71 years old. Even an old guy can learn something new once in awhile! Good luck to everyone out there.
Yeah, I've got similar parameters to you, Guardsix6, but the shite my face has gone through over the decades means I can't get a full-face mask that seals completely. I use a nasal pillow mask that I still have to also be extra careful to get a good seal.
You mention both CPAP and BiPAP. Those are different machines are they not? So, which do you actually have, if you don't mind me asking?
@@Nope2022HugeTheWarningFan I have a BiPAP (ResMed AirCurve 10 VAuto) as of the latest machine which is about 3-4 years old.
@@guardsix6Were you able to afford that with insurance?
@@Nope2022HugeTheWarningFan I suppose Medicare paid for it over time. I don't mess with how it's bought, I'm just interested in it doing the job. It works just fine and I have used my BiPAP and mask every night for many, many years with no problems (other than trying to find the perfect mask which I have now.)
I don't feel worse, but I don't feel better. I have however, stopped snoring, so hubs is happy! It has been only a few days, I'm sure there are tweaks I can make to actually feel better. Going to get an SD card reader so I can use Oscar to delve in further. This RUclips channel is so helpful!
I am on my second round. Used a Cpap for 2 years and never felt rested. Stoped using it for a year and now I am back. Just switched from APap to Cpap and a steady pressure. I’m tired of being tired!
Did the change work for you?
I feel better but I don’t feel “normal” still.
What is normal? I haven’t been there for a long time. 😢
Same, I just want a good nights sleep. Sleep is impossible without it, and with it, I do sleep but not well.
I sleepy 3 hrs on a "good night" so what's normal.
Get a drug induced sleep endoscopy, then do surgery like tongue base or epiglottis if you have obstruction in those areas
I've been on CPAP since 2015 and ASV since 2016. I never really feel good and sometimes feel worse without it. However, I am 63, have no major health issues (knock on wood), work full time in a high-stress job, and support two young teenage children and my 'stay-at-home mom' wife. All things considered... I'm probably doing above-average compared to other people my age that I know.
All I can say is keep with the therapy, and don't give up.
Jason. Your information is invaluable. I appreciate you.
You have provided me with solutions that work.
Not getting a thing out of my doctors. They seem to not want their patients to be proactive with their health, but ignorant dependent on them. Thank you again.
I was diagnosed with a classic case of sleep apnea beginning of 2007. My first machine was a Respironics . The mask was not great but had it replaced in 2017 with a Resmed 10. The motor was dying two weeks which was replaced with new Resmed 10 Autosense I called up the folks at our local hospital and was able to get a new doctor who was willing to write me a new prescription. Four days later it arrived. I was able to set it up myself and and I am doing great, better than the older Resmed.
Thank you for your advice! Appreciate listening to your videos. Thanks for all you do!
CPAP & mouth taping has my OSA **well** under control. Now, I need some way to remove my arms when I go to sleep. As a side sleeper, I wake up and roll over when either arm goes numb. If I sleep on my back, my back issues (classic L4/L5 spine disc compression) wake me up. flip. flop. flip. flop. all. night. long. Maybe I need to sleep in one of those sensory deprivation chambers where you float, near weightless.
Get a “boyfriend” or pregnancy pillow. I had the same issues including sore hips and knees but now I sleep so comfortably and not one numb arm since I started using it.
Ps my hubby uses one too 🤪
I am side sleeper also. I got 2 contour pillows and put one on top of the other. Then I of course laying on the top pillow….. I off set the top pillow and it leaves the perfect gap underneath for my arm to go… ❤️
JD, I experienced the same thing. In fact, I even had a nerve pinch that made side sleeping unbearable and I was in so much pain I was disabled for 6 months. I tried sleeping on a specialized beanbag called the Yogibo. OMG, you can sleep in ANY position and it supports you equally through the length of your body. It feels like you are sleeping on a cloud. It was life changing. It took me a couple weeks to figure it out, but once you dial it in, you will never sleep in more comfort again.
A lot of angst could be relieved if the CPAP consultants were honest about what to expect. Here's the truth - you'll despise it at first, then hate it, then be annoyed by it, then irritated, gradually coming down to acceptance. That takes about a year. At least, that's what I experienced.
That's definitely one path. Plenty that love it right from the start. Both experiences are "normal." Hoping to get more people in the "love it (or the benefits) as soon as possible" through early education.
Thank you for establishing this RUclips! I was a RPSGT for fifteen years and, like you, had some patients who felt the difference immediately and loved CPAP/BIPAP. I always wanted to have the patient's studies, whether the initial study then secondary or a split night study, and show them the difference in their sleep patterns side by side. Allow them the "tangible" effect of seeing is believing. As you have mentioned, it doesn't always work for some, however, it does work for many. I also tried to explain to patients that PAP is a treatment and not a cure, as well, taking ownership of their health and once better sleep is attained, the patients could change their lifestyle; i.e. eating better, exercising, and enjoying life because the person feels so much better about life and themselves.
I couldn’t do it with a cpap machine, couldn’t sleep and felt worse .. They got me on a bipap and my life totally changed!.. I’m starting to feel better and my health is improving.
Do you have UARS? usually BIPAP is for people with COPD etc
I really enjoy your videos. I was diagnosed with sleep apnea a month ago and started cpap almost two weeks ago. I did prelim research for the weeks waiting for my device to arrive, and I was super paranoid I wouldn’t adjust to it quickly enough. From day one it’s been great. I have used it nearly 9 hours a night and feel great!
I keep trying to use it, but it's so claustrophobic feeling to me that I stopped trying after 4 or 5 trys.
It's just an expensive thing that sits on my bedside table.
In the meantime, I'm tired every day, everywhere, and I'm depressed, agitated easily, cranky, etc...
Then I hear ppl like you, and I'm so discouraged because, for me, it's a nightmare. I can't fall asleep with it.
It blows constantly.
My ears keep popping, especially if I try to swallow. It feels like I'm going to suffocate, not sleep super wonderful.
I'm glad it worked for you right away. It hasn't been a good experience for me, and I feel worse and worse.
They just keep saying, "Keep trying,"
That's not helpful. I'm just depressed more than anything about it.
@williamdistasio9358 i feel the same as you... i used it on the second night of my sleep study and i felt the same way as you ... super claustrophobic made me want to keep swallowing which then made feel like it was choking me... i haven't even got my machine yet because of that
@ericsavage4299 yeah. But I've seen other videos too, that explain that the machine can be set to turn off for the short time that it takes you to breathe out.
It's called variable something or another....
I'll look for the video I'm talking about.
@@ericsavage4299 ruclips.net/video/xlIyzDdVxxI/видео.htmlsi=bmiau4ssA9vJF5Gm
@@williamdistasio9358well irritated people won’t wear the mask and get over it lol. Sounds like you need to hear why most churches are mixed up. And mix the 2 main gospels. See grace ambassadors n Jim devney n Richard Jordan n Lesfeldick ministries n exsplains 😮
I fell in love with my cpap once I got the right mask. When I was first diagnosed as needing a cpap my sleep apnea was 15 time an hour during regular sleep and 40 times an hour during REM. I was waking up soooo tired each morning. Now with a comfortable mask (Dreamwear cushion) and the proper settings for air pressure, humidity, hose temp, I'm having nights where I have NO events at all. I LOVE wearing my cpap. And I'm no longer walking into walls in the morning. I have found using a bit of surgical tape on my mouth helps stop dry mouth.
After ten years and many, many attempts to sleep through the night I got it to the point where I at least didn't feel worse after wearing it, but I also never felt a bit better. After several months of using it regularly I finally gave up on CPAP. Maybe there's a cure for sleep apena out there that is actually effective but if there is I haven't found it.
I gave up on cpap several years ago. I opted for a mandibular jaw advancement device ($2000), plus positional sleep treatment (i.e. a belt to prevent supine sleeping). The device was super painful to my jaw. I worked through the pain, but eventually discovered that my oxygen level was still very low at night. ( I have a pulse oximeter that records data writeable to OSCAR. Two years ago I was tested again. I began using CPAP in earnest, following another scary health issue. Watching your videos, Jason, has helped a lot with finding good masks, managing jaw drop, mouth leaks etc. If I didn’t have to pee and disconnect at night, I wouldn’t even be aware that I’m using a machine. My sleep is lovely now. It’s been a long journey through non-compliance, plain defiance, and discomfort to get to this point, and if I can do it, anyone can. It’s important because we all need that good O2 to stay healthy.
What is NON COMPLIANCE?
Ill see i this works for me, i've been wondering on buying a Mandibular advancement device that, one of those acrylic ones with ball clasps because the cheap MADs make my front lower teeth hurt
I've had a lot of frustration over the years. Gave up completely once. I've been back on since February and finally settled on a 'mask' that works and is comfortable. Now I have pressure problems, occasionally. sometimes it's great and I can sleep through the night, other times the pressure is so high I just take it off. I feel like that's the last hurdle for me
I purchased an APAP machine with a nasal pillow on-line around 3 years ago. Prior to that, I recorded myself on a few occasions and wow...just scary how many apneic episodes i had. Went on-line without a prescription and on your recommendation, purchased a nasal pillow due to being a stomach sleeper. Settings: low side 5ppm's...high side 12ppm's. On the first night, I slept the entire night through, not getting up once to use the bathroom (2-3 occasions prior to APAP), and felt very good the entire day and every day since. I've since recorded myself and I've been quiet as a church mouse. I've watched videos of sleep studies, and I knew I wouldn't get an accurate reading because of my sleep position. Sleeping very well since..
Great video @TheLankyLefty27 would love to see a video doing a deep dive into central apnoeas, also exploring arousals v genuine centrals. Also how to manage pressure levels in relation to whats too low and whats too high 🙏
Jason, I've been thinking about this a lot. There are any number of little tweaks I made based on your videos as well as Nick's, and all have made my CPAP experience better. But when I think about the one change that determined whether I was going to succeed or fail, it really boils down to one key moment, I think.
Some time ago, you said something that entirely changed my perspective, and I wish I could remember the exact wording, but it was something to the effect of, "Most people can become nose-breathers."
That seems like such a little thing, but I've been a life-long mouth breather, so the notion that I'd be able to get away with a nasal mask never would have occurred to me. And my first DME and sleep doctor both told me I'd never be able to use a nasal mask. But you forced me out of one mode of thinking into accepting other possibilities. And I honestly believe if I had kept on trucking trying to make a hybrid full-face mask work, I would have given up long before this point.
Do you need to tape your mouth shut when you use the nasal mask?
@@BWCA-vy2pi, I don't! I just trained myself during the day to keep my tongue planted firmly in the roof of my mouth, and my tongue just got into the habit! I discussed it some here: ruclips.net/video/gejYbiBQ0CI/видео.html
Jason, thanks so much for all the info, you’re awesome!
My pleasure!
I have PTSD so the pressure of the full mask wakes me up. Im struggling figurring out how to fix this. I cant use the nasal pillows because I cant breathe out against it. I have both kinds of apnea.
Doctor is of little help. You are right about that.
I started two months ago. First week I landed admitted into the hospital and I haven’t slept through the night ever since…. I’m so sick of it already.
I can not tolerate anything digital attached to me. Total nightmare. Upset my heart and I ended up in hospital 😢
I didn’t like it with the full nose and mouth one due to waking up with painful headaches but once I bought a nose one I loved it.
I got a Philips… it was killing me. now i got resmed air mini but i am still exposed shit at my job my sinus are killing until i get time off job them it get better. My pressure is good now thanks to your videos
Watching one or two offerings every few days. Just plain good stuff. I have studied CPAP non-compliance since the late 80s/early 90s, and I'm only questioning the very rare opinion, and that's probably because we haven't had an over-the-table discussion to flesh out our concepts. I was thinking about starting a YT channel, but now I'm just telling people to check your channel out. Again--great job, from an old, retired RT. Ha, ha!
Thank you. Just starting CPAP and have experienced the 3 top causes in the video . On the positive side, symptoms are decreasiing and AHI is dropping. So I'm not stopping.
I just ordered a new mask (through your link) based on your other videos, so hopefully that will help me not wake up so much because of my mask sticking in my face.
i am more than ready ! to get there. I am trying to be patient!
I stopped snoring but feel 10 times more tired than before my CPAP. I am on auto tho. Might try cpap mode. It’s a nightmare that thing. Need to figure it out. Thank you for the advices, it helps.
I'm certainly going to start by losing some weight and doing cardio so I can hopefully get off cpap
thank you so much for this video! I'm being prescribed a cpap machine and am very worried about just this topic. Thanks!
Over 20 years on my CPAP …. New Resmed 11 is awesome! Can’t imagine sleeping without it! Saved my life!
I was just given that machine by the VA. Just started CPAP treatment and can’t stand it. I sleep so much better without it. I don’t know how anyone does it.
Jason your channel has help me sooooo much and my dad thank you thank you for doing these videos. 🎉
😊
4+ months of failure for me. Last week my doctor said that my leak rate was higher than he likes to see, but he'll overlook it because my apnea events are low. Ugh.
The third mask I tried (nasal mask), I thought was going to work until that also started leaking. Adjusting the straps does nothing. I can't stop using it because I'm also on supplemental oxygen, but I feel like crap. Will go to your site. Thanks for all you do. Edited to add that I'm on bipap.
Glad to see a new video.
-Claire Bear
I dont think my issue is leaks. I roll over frequently to change sleeping positions. My issue is the hose getting tangled in my pillow and sometimes Ive pulled the machine off my nightstand. So I'm now very aware of the hose when I move around which disturbs my sleep more than mask issues.
love this dude. very helpful and encouraging
Loved your video. Heck you definitely have guided me since October 2017 and I have used your Info when it was unavailable support from sleep center in my Town.. Between you & Nick Teaming Up got say Best ones available. Keep up good work!!!
I didn’t have symptoms, just snoring. Wife made me get a sleep study. Had a score of 24. Tried the air pillow, it was awful my nose burned. I have a nose cover now, it’s better but honestly I hate it too. I’m exhausted all the time, it’s affecting my work, my time with the kids and has eliminated my sex drive. I hate the hose, I hate when I put it on like I’m on life support. I used to work out, now I’m too tired. I find myself needing to take naps during the work day. Everyone says keep doing it, but the only time I feel like I have enough sleep is the once a week where I take it off and get 4 hours. I appreciate that some had this positive life change but for me I’ve considered that divorce may be the only solution, because this thing is ruining my life. I completely understand why people give up. The last review said I had zero instances when using it, so I appear to be doing everything right but the numbers don’t reflect my reality. I’ve been using for over a month now but not sure how long I can keep this up. I took it off at 2 am last night and slept in the guest bedroom without it- that’s the best sleep I’ve had all month.
Sorry to hear you're going through that. View your data in OSCAR. sleepfiles.com/OSCAR. The Devil is always in the details.
How's it going now? I'm having a difficult time very much like yours. Used to love sleep and slept through the night. Score of 24, put on CPAP, now hate going to bed, trouble getting to sleep, feel sleep deprived in the morning unless I take my mask off. Trying to stick to it, and now I have COVID. Hope you're doing better.
You make good points! Problems with CPAP therapy are often (usually?) a matter of adjustments being needed.
A minor clarification: you mentioned that many events might be incorrectly flagged by OSCAR. Any incorrect event flagging was done by the CPAP machine. OSCAR just shows the events that the CPAP machine reports have occurred.
Thank you for the correction on the event flagging. I know this and still misspoke!
49k! You're almost to your goal!
8 years to 49k. Roughly 2 weeks for another 1000.......this looks bleak.
We'll need one of two things. 1. Holiday Miracle. 2. I'll have to give away free crap.
@@Freecpapadvice I started a channel back in...June, I think? And have a whole 28. 😂 Admittedly, I'm not as prolific as you are, not by a long shot. But it's definitely discouraging to put your heart into something, only for RUclips's algorithm to be like "lol nope :)"
Anyway, I have faith! Especially now with the Dreamstation recall, there must be tons of poor souls suddenly realizing they need more information! I shared your latest post about that on Facebook, but of course FB doesn't like to make things visible either. 🙄
@@veryberry39 I’m gonna need the name of that channel!
@@Freecpapadvice LOL. I'm not even sure it shows up in searches because it has so few subscribers. The name of it is AwkwardKidAdventures though. 😛
Been using Cpap for over 20 years . I’ve never found a mask that held a seal for more than two days . Whatever the technician has recommended has not worked . I have better luck self diagnosing.
I’ve had my ResMed Air Curve VAuto for a month. I’ve only been able to fall asleep 3 times. I have no control over the settings for pressure, only the doctors office can adjust. It was set originally set at 22/16 with a 35 minute ramp because my second sleep study with therapy reported I needed that pressure to stop events. That was one of the most miserable, uncomfortable nights of my life. I still experience intense pressure from both the mask and the air when high pressure is reached. I take it off after 1 to 1.5 hours cuz I’m wide awake, the mask starts leaking at the slightest movement of my head and I can’t stop the leaks. I’m on my 3rd mask, the ResMed Airfit F20 and the machine is on Auto. It’s not looking good. I have over 30 events while wide awake. And I do feel worse with BiPap than I did before. I’ll give it a little more time. Unless they lower the pressure, I know this won’t work. What good is full face mask if I feel like I’m not getting enough air when I breathe through my mouth and can’t sleep. I know the answer.
I have exactly the same experience 😢
My problem with CPAP is that I now suffer from migraines and TMJ. At first, CPAP was working for me but now it has become a real nightmare due to these new conditions. I've tried all kinds of masks including the Resmed F20 and F30i and Philips Dreamwear full face masks, but I continue having extreme tightness and discomfort over most of my face and waking up with pain in my nostrils and air leaks. I'm also having several stomach problems lately and feel overly gassy all the time, and suspect aerophagia. If you could please contact me with information about a consultation, I'd immensely appreciate it, thank you. Really enjoy your content!
A tip I got on youtube was to add ice cubes to humidfier for cooler air. Of course they don't last all night but help me get to sleep better especially in summer months. After I had gave up on CPAP this helped me get past my initial resistance to using the machine.
Interesting. I do prefer cooler air but I've been told warmer air holds more humidity so I'm experimenting with higher temps. I might have to try this ice cube tip at some point though.
Very good points, my pressure was too low to begin with woke up suffocating. Then had to try 8 different masks to find a comfortable one. Then had to go from apap to bipap. Finally I sleep good. Was wondering, Jason, do you still have your mask bright site where I could buy a gently used mask system? I saw it before but now can't find it.
Maskbright.com was hacked into oblivion. Tried to fix, but ultimately needed to take it behind the barn and shoot it. It's being rebuilt. If there is something you want, just let me know and I can see if I have it. Email my axgsleepdiagnostics address.
Most entertaining helpful video on RUclips. My /0 year old Cpap gave up the ghost. A friend gave me one of his old ones. My number is 14, and it working ok.
I've been using my CPAP for 10 months and it has been a struggle from the wrong masks ,I'm on my 7th mask. I also changed my CPAP pressure from 4 to 18 that was first prescribed. When I used OSCAR , realized I will be better on a pressure of 9 to 14...95% of the time the pressure is between 12 and 13.54 when I looked at OSCAR. I always wake up during the night from a lot of events and they diagnosed me of suffering form severe chronic insomnia but I know I keep getting awake by my mask leaks or the sounds of the air(those masks with the tube attachment on top of the head)..10 months of struggle but I never not even for one night stop using my CPAP...Every nights it's different from choking one night or having a good night or having no leaks or some or just not sleeping at all...
If that's the case, try a steady pressure of 12 for a few nights, then 13 for a few nights. If you need a RAMP to get to sleep, go for it, but keep it short, like 10 minutes at most. Make sure the leak trend is also very flat. Sounds like you on that though!!!
My hunch is that this is more of a pressure problem than a mask problem....though masks could certainly be part of the problem!!!
Thanks for watching!
@@Freecpapadvice Thank you I will try that!
Hey Jason…after my consult with you in late September I now have a fixed pressure of 7. Had to go back to using EPR and that is set to 3. The best suggestion you made was to try Bleep DreamPorts. Since switching to them I sleep through the night more than ever. I used my Brevida and Evora on occasion too. Lately my AHI has been jumping all over the place but overall I’m feeling great.
I honestly believe the poor mask selection is the major cause of CPAP failure.
Wishing you the best!
Kathleen, I also believe poor headgear selection also contributes to CPAP failure.
Monica…you are spot-on and I couldn’t agree more!
Could you explain what "EPR: is? also what is Bleep DreamPorts and what are Brevida and Evora?? I need help with my fit or sleep also.
@@marilynmcleod1196 Sorry to take so long to give you a heads up on at least 1 point, Marilyn. EPR stands for Expiration Pressure Relief. So, when you naturally breathe out, your machine doesn't force your wind back down into you. Hope that helps, if you get back here.
p.s. Pretty sure your other queries relate to mask brands.
#CPAPLegend! I’ll take the thank you for RUclips members and being president to the lefty fan club.
My cpap changed my life and used to make me feel great. However over time that has changed. I started feeling tired during the day again, although not as bad as before getting my cpap machine. My problem is I haven't been able to afford to go see my doctor in a couple years. I'm still using the original settings from when I was first diagnosed almost 10 years ago
Any changes for you?
I still feel better with CPAP than without but...When I first started using CPAP I slept like the dead and felt great. I literally wouldn't move all night long. Now I'm back to tossing and turning but still getting much better sleep than before CPAP. I've been trying a number of different masks trying to find what I like best but in the end I keep going back to my original mask with the modification I did to the frame to get better seal on the bridge of the nose. My doctor says my data still looks good...that I have very little mask leak and very low incidents per night so it is still working...but I really wish I was sleeping like I did when I first started the therapy.
If you’re in it for the money it’s worth every penny!
I recently began seeing issues with higher AHI than usual, then I remembered what you said about mask and mouth leaks. I changed to a full face mask Resmed for Her F10 with an XS cushion (will not purchase Respironics again!!). This is the only full face mask that works for my very small face. Last night I tightened the top straps because I was noticing eye irritation as well as AHI bad numbers; this morning my numbers were under 4 AHI. Thanks for all these videos and I am using CPAP Supplies with Insurance now. They and you are AWESOME!!
Have used CPAP for 13 years without problems. In the past few months I started waking up many times at night and did not know why, I did a little research online and discovered pressure could be the issue. I dropped the pressure from 12 to10, problem solved. This pressure setting may not be correct for everyone.
I did fine with CPAP for several years. Post cancer treatments I had a more problems sleeping through the night. Trying to minimize issues I decided to get a new mask because mine was breaking down. Which needed a new script. Which meant doing the whole process all over again. And I didn't end up with a mask that worked. The equipment company just wanted to randomly try masks, which meant weeks of not sleeping well trying to adjust to the latest mask. No true effort on their part. And I kept getting air in my stomach, or at least that's what it felt like, so it probably wasn't the right pressure. Considering that taking yet another stab at it would have meant going through the same medical practice and same equipment supplier, I just didn't bother. Wish I had your caliber of professional in my area.
I've been on a cpap for a week. I've never had headaches in my life. Now I've had them every day since I've been on the machine. The machine and or mask makes my nose run. Due to the shape of my head my mask doesn't seal right. I'm at a 24 on my machine. I dread going to bed.
With other changes CPAP works ….get the settings right ….4 the start level to 10.8 for the strength of the pressure works for me ….and the dehumidifier I set to 8 and I had a good sleep ….stick with it with correct settings and the right mask it works .
Sleep apnea has been addressed with the cpap but ONLY works if your asleep, my problem at 72 is insomnia and I really don't want to use meds to get to sleep, I've gone 3 day's without sleep and even now at 2:30 am posting this,if I get 4 hours of sleep thats generally the best I can hope for! Maranatha, Greetings from Tampa Florida 😎
Just started and am on auto and biggest problem I have is it ramps up way too high and wakes me up and I thought it was just a normal part of it. I will discusses this with my doctor. I am determined and this info helped a lot THANK YOU
I feel dizzy almost every morning after using my machine
I wish I found this a few weeks ago when I first started! My doc just changed me from APAP to CPAP, hope it helps
Never give up never surrender! I have had almost 20 years crappy sleep with CPAP. Same without it so I use it because Dr says reduces chance of a stroke. 🤷♂️
I started using a cpap 6 years ago, it was the cpap version before autopap, my original machine was horrible, it was one setting for inhale and exhale and I had a hard time breathing, my autopap was much better, airsence 11 came with a app , I can see my daily records , leaks , the works , I sleep much better with this machine
Week one with CPAP I feel like garbage. The most horrific sinus headaches I've ever had in my life. I've tried cranking up the humidification. I've tried using saline nasal spray. I've started referring to my CPAP machine as the torture machine.
Might be several things. One....might just need a full face mask if there is resistance in your sinuses. Two...might be having the pressure much too high for you if you have APAP enabled. Don't know for sure, but those are some things to explore.
thanks for this vid, it described my experience so far exactly. I have gone to a lot of expense to get this far and have only been trialling a CPAP machine for 11 days. After a week I returned to the supplier to check the data, except that I did not feel heard. I should not be driving a car at this stage by head is so foggy. Last night I slept 7 hours waking up once, but this morning I felt so terrible, it is getting progressively worse. All I was told was that I had to persevere and it could take 6 months. AHI 3.4 fixed pressure 6
I panic and feel like I have to take a deep breath, then I can't get it so I have to throw off the mask.
I realize it's a mental thing but I can't seem to shake it off.
This video inspired me to try it out again so I set it up in my bedroom for tonight.
I guess the biggest problem is that I struggle to fall asleep. I've got this thing where I fixate on my breath, humming sounds etc. I've worked as a musician/sound engineer my whole adult life so my mind is literally tuned to focus in on frequencies. It's a thing that haunts me in many ways.
If I start to think about how often I take a breath because of the sound of the machine I can't fall asleep.
It's a problem even without a machine..
Jason, I would recommend that everyone using cpap use either a full face mask or TAPE YOUR MOUTH to prevent mouth leaks. It took me way too long to learn this.
,I feel more tired out after a night of using it .Plus right after I got the new machine I got a terrible cold.
Then ended up with bacterial pneumonia and pleurisy .
So Thicccccccc man! A really cool vid bro xo . APAP on 4-20 = NO . Tailored APAP with a tighter range is pretty awesome. Just my experience though. Do you mind if i discuss this and sample that part in a vid? Cheers brother. Nicko
I wake up frequently but for me thats not my issue in fact for me thats my norm. wearing my device actually helps me get back to sleep eaiser. the more I use it the better I sleep I have longer intervals of better sleep. not every night but trending toward better sleep.
With my bipap (with full mask) I sleep better, I don't fall asleep during the day, and I remember my dreams. I was waking about about 8 times each night before the bipap now I only wake up about once per night. However, I am more saddend knowing that I have to be attached to this thing for the rest of my life
Thanks for the practical tips and advice. I wish my F & P Icon would show the flow rate! Hopefully upgrading in 2022.
Upgrading to the SleepStyle?
@@Freecpapadvice Airsense 10 I hope. This is Lee from NC. I need to upgrade so I can do another analysis with you. That was fun!
I have mild to moderate sleep apnea (15 obstructions) and I never suffered from sleep apnea symptom (except people said I snore really loud) I was never tired or anything until I got my CPAP machine. I’m sleeping during the day and I get 8 sometimes 9 hours a sleep at night.
Really? What is going on now?
I’m new to APAP. I get significantly less sleep in general with it, half as much REM sleep or less with it as compared to without it, and even less deep sleep than I was already getting. Still waking up 10-15 times a night. Can’t find a mask that fits/works. Have to shell out $100+ apiece on failure after failure while my compliance period ticks away.
I'm more or less stuck with it until late October because ✨compliance✨ is all they care about, not how well it’s working. Sleep medicine is garbage, at least where I live. They throw you on APAP with a massive range, give you two shots to find the right mask before you’re paying OOP, don’t check back in with you for like three months, and if you change your own settings during that time then they have a fit. The whole process is exhausting and miserable and nobody should be surprised that compliance is so low. It’s like having an extremely expensive, extremely uncomfortable, and wholly involuntary hobby thrust upon you with zero guidance and if you screw up, they kick you out of the club for not a) suffering silently through months of inadequate APAP treatment, or b) doing their jobs for them.
Oh, and I’m a stomach sleeper. Not a single person I’ve talked to during this whole process has comprehended that. It’s always “side sleeper” to them. I can’t sleep on my side. I can’t sleep on my back. And now I can’t sleep on my stomach because of the suffocating face hugger blowing my cheeks and ears out.
I didn’t think my sleep could get worse but fuck me if this torture device by my bed hasn’t made it happen.
On my 2nd unit, med 10 auto, I have had a full mask , nasal pillows and different straps . Today I am throwing the unit in the garbage. Two year trial is long enough. Most pillows are made of latex which can cause congestion.
I have been using my cpap machine for almost one year and realize now that the machine is actually inducing anxiety for me nightly. I could not figure this out until one night I fell asleep without the machine and actually woke up without any anxiety. It may work for some but for me it is the wrong therapy.
Been following you for awhile now and you have very helpful info. I've been on cpap for several years and recently switched suppliers and went to the airfit nasal mask and started having problems with mask leak. I tried different sizes and still had mask leak, finally went back to the dreamwear that I was using and problem solved. I believe it was the hard plastic connectors on the side of the nasal mask because the dreamwear doesn't have them. They were very uncomfortable for me. Just an FYI, love your channel
I’ve been using mine for only 6 nights and I feel infinitely worse. I’m physically struggling with the mask and tube and I’m experiencing much more episodes of fully waking up vs arousals in my sleep. I’m also in more physical pain because I’m having to accommodate my head and neck for the mask more. At least when before I used it, I was waking up at a normal hour so I could get to work on time.
I've had such a terrible experience with CPAP myself that I feel that they need to get rid of the silicone and make it of a different material
I’ve been on a CPAP machine for over 20 years. The first 3-4 years were a struggle but after that I was getting really good sleep. I needed a new machine about 2 years ago and picked up a Dreamstation and aDreamwear gel nasal pillow. I just received my replacement Dreamstation 2 and I’m not sleeping as well…don’t know why…also they have discontinued the gel nasal pillow and the new version is terrible…I went out and bought a dozen gel pillows because the new nasal pillows are so bad….not very happy with Philips right now but from everything I’ve read the other manufacturers are just as bad!!! This is getting very frustrating.
CPAP/APAP impose breathing resistance, which some doctors consider inhumane. BiPAP is great, ASV is the bees knees. These actually make breathing easier.
Who considers it inhumane?
@@NecroBanana Also here is a very nice webinar ruclips.net/video/Syv7YcHbTCI/видео.html
His message: Please don’t quit CPAP. Also his message; I’d like to thank CPAP supplies for sponsoring this video. 😅
Just going from memory since it's been awhile......also some reasons of why it's bad and how to improve.
In New Zealand we have the kindest support available ....we can phone a sleep specialist anytime ,we get several appointments until our sleep is right , and then we are " parked " if we have a problem ,we can ask to go back ....we get free replacements of masks ,tubing and water containers..of if you exceed older ppl can use their pension card to get more....they have a club to join if you want to learn tips ...believe me ,I feel blessed .
Tried CPAP for the first time last night and loathed it. Felt all kinds of funky after 2 hrs. Pretty sure I have a deviated septum & have had it for a long time. I'm thinking getting surgery could potentially help my issues. I know a lot of the things I experienced last night will probably go away given time, but regardless I don't think I'll ever like it. Probably going to be change careers, because the job requires it.
I use oscar. Found my ideal presure and switched from apap to cpap. Works like a charm
After getting my Cpap 3 years ago. I can't sleep without it. As soon as I put my mask on I pass out. But I do have to admit I am a Paramedic and I have made some minor adjustments to my settings. My over all sleep has improved. My only problem now is Foam gate. My first device was a Dream station 1 and recently just received a Dream station 2 in the mail. But after hearing the news this week from the FDA, I'm ready to pay out of pocket for a new machine. Should Resmed be my next adventure?
I use and like the AirSense 10. I also have the SleepStyle (FP) but haven't been able to use since I loaned it out.
ResMed or 3B Medical (BMC). With either one do not use any ozone cleaner. You can always open up your machine and remove the foam if you want. After stopping use of my Philips System One, I used a 3B Medical Luna APAP for 3 months before recently getting a ResMed AirSense 11 and switching to that. Both of these machines in my experience are good.
@@Subarulah How does the SleepStyle compare to the AirSense 11? How is it different?
I am a retired FireFighter Paramedic. I use a dream wear and sleep better than I ever have.
Just got a new CPAP with new mask. I feel more tired with it even though you can’t even hear the new machine.I went back to the old full face mask. I’m wondering if the pressure may be off. I will see how I feel in the morning. I’ve been using a CPAP for 15 to 20 years with no problems
I do have to through it on the side sometimes because I get tire for air leak and too tired to try to fix it at the moment of sleeping
But yes it make me feel good when I wake up and get a good sleep and thank you bud for doing this type of videos
Five years of cpap and I do wake up a lot. But I feel better because the quality of my sleep is much better. I am on an adventure to find a new full face that works for me.