My seizures didn't start until I was an adult. My mom didn't even believe the diagnosis for the first year lol. Education is a big thing. Refractory epilepsy has taken a lot from me but it's given a lot of strength, too. I would like to share with anybody reading that the ketogenic diet was a game changer for me, taking daily clusters to a single seizure every 2 to 3 weeks. Cheers, Kelly. Thanks, Miles.
I was diagnosed at 4 also. I attended special education until 6th grade when I begged to be with the regular kids. Epilepsy is more than seizures. I had stomach aches, nausea, Constantly drowsy and had coordination problems. But, thanks to having an older sister who was 18 months older looking out for me, I got to do a lot. People would find out about my seizures when I had to say no to swimming and riding a bike and playing any sport with a flying ball. I had to wait to drive when everyone else was driving. But, I did get to drive and had 20 years of that and jobs that I got fired from(but, I got to work) got married, had kids. I always felt there was a clock on me and I needed to experience as much as possible. Now, I can’t drive and work is hard to maintain. I make plans and then have to cancel. I so get what you are saying about telling people. Some people get very concerned and treat me like glass. Some tell me stories about people who died of epilepsy. Very few ask, what do my seizures look like. I have had seizures in public, but most people would not be able to tell. However post ictal speech loss, etc. had forced me recently to tell people. How can a condition so common still be a mystery?
I was diagnosed with Epilepsy when I was 2. When I was 5 I had Seizures in School the School called my Mom who was Army National Guard back then and Mom took me home. Because of Epilepsy I had a speech impairment and flunked Kindergarten so I had to go to a special School. It was strange finding out my Speech Teacher was my Dad’s ex. Anyways when I was 8 years old I had my Seizure Tumor surgically removed. I’m 30 now and I haven’t had a Seizure since.
Myles life story has hit home everything he suffered i did to plus myself also wanted to make a stage version of my life and epilepsy but would not have a clue where to start what made me want to make a stage version of my life was seeing the film "First do no harm" staring Meryl Streep
Thank you so much!!! You are an amazing individual and extremely relatable. Please continue! Your work is amazing and ground breaking. I would love to connect and learn more about your journey and I would love to share my epilepsy journey with you. Thank you and thank you #CURE EPILEPSY !!
My seizures didn't start until I was an adult. My mom didn't even believe the diagnosis for the first year lol. Education is a big thing. Refractory epilepsy has taken a lot from me but it's given a lot of strength, too. I would like to share with anybody reading that the ketogenic diet was a game changer for me, taking daily clusters to a single seizure every 2 to 3 weeks. Cheers, Kelly. Thanks, Miles.
He hits close to home for me. My entire childhood was seizures. I have epilepsy as well. I get it.
I was diagnosed at 4 also. I attended special education until 6th grade when I begged to be with the regular kids.
Epilepsy is more than seizures. I had stomach aches, nausea, Constantly drowsy and had coordination problems. But, thanks to having an older sister who was 18 months older looking out for me, I got to do a lot. People would find out about my seizures when I had to say no to swimming and riding a bike and playing any sport with a flying ball. I had to wait to drive when everyone else was driving. But, I did get to drive and had 20 years of that and jobs that I got fired from(but, I got to work) got married, had kids. I always felt there was a clock on me and I needed to experience as much as possible. Now, I can’t drive and work is hard to maintain. I make plans and then have to cancel.
I so get what you are saying about telling people. Some people get very concerned and treat me like glass. Some tell me stories about people who died of epilepsy. Very few ask, what do my seizures look like. I have had seizures in public, but most people would not be able to tell. However post ictal speech loss, etc. had forced me recently to tell people.
How can a condition so common still be a mystery?
This is brilliant!. I've been waiting for this for a long time. Thank you to Miles for making this film
I was diagnosed with Epilepsy when I was 2.
When I was 5 I had Seizures in School the School called my Mom who was Army National Guard back then and Mom took me home.
Because of Epilepsy I had a speech impairment and flunked Kindergarten so I had to go to a special School.
It was strange finding out my Speech Teacher was my Dad’s ex.
Anyways when I was 8 years old I had my Seizure Tumor surgically removed.
I’m 30 now and I haven’t had a Seizure since.
Well done 👍👍👍👍👏👏👏👏
Thank you so very much!!
Myles life story has hit home everything he suffered i did to plus myself also wanted to make a stage version of my life and epilepsy but would not have a clue where to start what made me want to make a stage version of my life was seeing the film "First do no harm" staring Meryl Streep
Thank you so much!!! You are an amazing individual and extremely relatable. Please continue! Your work is amazing and ground breaking. I would love to connect and learn more about your journey and I would love to share my epilepsy journey with you. Thank you and thank you #CURE EPILEPSY !!