Thank you, Dr. Boster! I definitely have sensory issues. You're always teaching me something new about MS. I'm really glad I found you and, I may have MS, but I won't let it have me!
I have been playing ostrich avoiding any MS videos for a while🙄😬. Then Dr Boster pops up and reminds me that knowledge is power and if your not aware of your MS symptoms and how they effect your body how can you get the help needed to improve things. So going to get back to facing reality and being my own advocate. 👍🏼Your so informative and straightforward thank you. x
Never play ostrich. ... In my early 20s, I worked for an insurance company. They covered the accident of Kaprun (a cog railway that went through a tunnel for quite some time.) A fire broke out in the tunnel. A few people ran downhill, towards the fire and through the fire. Those survived. The other ones ran uphill, away from the fire. They all passed away. :-( And I photocopied the diagram with the names. Some of them the same last name, one having made it a little further up the hill than the other. ... I've never forgotten that. And when I was diagnosed with MS, I immediately knew that I must face the fire and read as much as I could about the disease.
Ok... good thing nobody was awake while I watched this video. I have my eyes closed and violently flailing one arm around then trying to touch my finger! 😁 thanks for the video Dr. B!
Love this one! Great topic 😉 I had spatial problems with my first attack, a couple weeks before my MS Dx. It all started with optic neuritis- I remember trying to walk along a path of stepping stones at a park and I realized right then that something was seriously off. It wasn’t “just” from losing complete vision in one eye - but it also didn’t feel like vertigo or what I’d consider dizziness. It was like being in some alternate universe! Such a strange, strange feeling - looking down at my legs, walking “normally”, but feeling like I was on the moon or something. I hated it! I’ve had many more episodes like this over the years - but honestly, this particular spatial problem in MS is really hard to explain unless you’ve ‘been there’. And I still feel bad for anyone who’s had to deal with it!
had O.P 2 times.. got thru those...but these legs sometimes i fel like they are going to give out on me..i wonder how they are still keeping me up at times..i do not 'feel' them when walking. numbness and tingling of and on with them..also have that out of space feeling in my brain a lot. not vertigo or dizzy...my dr. does not get it..worse when exercising and laying my head down to rest....symptoms are weird at times..also have lung sarcoid which mimics m.s.....hooray for me...been going strong over 30 yrs. with it..just retired nursing in 2019..gave it my best.all you can do day to day..God Bless.
Thanks Dr. B! Newly diagnosed here. Not knowing where all of my body parts are in space is a big issue for me. I clip the wall when going around corners , I knock things over when reaching for them and I often scratch (sometimes gouge) the skin on my hands, face and forearms with my own fingernails because my fingers don't know where they are(?).
Thank you for this understandable explanation. I know what happens to me, but no-one has explained it to me. I have learnt more about my condition from you and your videos than anyone else. I am SPMS now so my MS specialist has just written me off and I just have to manage neuropathic and normal pain myself. I've deteriorated quite a lot in last 2 years, so am a little frightened, but there is nothing that they can do, so I just carry on. However, you give me hope, so thank you once again. 😘
Thank you for this mornings video, it got me thinking that my muscle stiffness and occasional cramping might not be just age related. One thing i have experienced since being diagnoses with MS is that i tend to bump into things more frequently. I appreciate your taking time from your busy schedule to make these videos.
Interesting you should mention that…. I’ve noticed a tendency to bump into things much more often lately especially door frames etc. The other day I actually managed to shut a car door and hit my face with it as I completely misjudged where I was in relation to where the car door was…. weird and it bloody hurt too!!
Thank God the only physical problem I had was my whole right arm going numb! which was when I was diagnosed in 2009 after steroids for a week I was back to normal of course staying on therapy!
I don't say this lightly -- Dr. Boster, you're my hero. I had been absolutely flummoxed by why ten minutes in a hot tub left me temporarily paralyzed from the waist down. It was the HEAT! Upon further research, after watching this video, I leaarned that a hot bath was a way to diagnose MS before we had advanced imaging technology. And sensory issues...now I finally understand. (An uneven surface is my nemesis. A four-inch curb can stop me cold in my tracks.) You also answered my question about hot weather. The heat severely affects me, even when I am inside an air conditioned building. I used to be so frustrated that I couldn't even walk the 20 feet from house to pool during the worst Southern California summer days, because my body just would not function. THANK YOU!!! The neurologist I went to a month ago knew NOTHING about MS, and it seems very FEW neurologists here in SoCal have that knowledge base or even care to access information for their MS patients. I also wanted to thank you for being willing to treat older MS patients with disease modifying therapies, because I'm 62 and despite my 'challenges' with MS, I'm still alive and kickin' -- no one should count us out, and I'm thrilled that you don't shove us aside. Thank you also for talking about muscles and spasticity in this video, because I used to be a power-lifter and everything you said makes so much sense. (Yes, we ladies like to move metal/pump iron with the gentlemen. I miss those days more than I can say.) You are a tremendous resource, Dr. Boster, and I am very grateful to you for spending so much time and effort in sharing your VAST knowledge with us all -- patients, families, caretakers and fellow medical professionals. You ROCK!!!
I restarted kickboxing a year ago and it has really improved my balance. I am still anxious about one kick style but I’ll get there. My upper body and leg strength is waaaaaay better. I started slow but I can sometime outperform the much younger and fitter girls.
That was incredible! I have severe spasticity, and my legs are weak. I have to use a blanket at night in the summer or I get too cold and wake up really stiff. The condition of my legs can be different from morning till night, and in between depending on I don’t even know what criterion. I experienced the not knowing where am I limb was During my last two exacerbations, which unfortunately Earned me a shiny new power chair. But, the first sensation I had was that somebody had filled my thighs with helium and they were moving up and down as I was sitting in on a chair. I literally had to put my hands on my legs to know that they weren’t up in the air. It was a weird feeling. I know I didn’t explain myself very well, but Now I understand why things change so much, and sometimes so quickly with my legs. Have a good week Dr. Booster!
omg no wonder my brain melts down trying to figure out why certain symptoms come and go! this is a great insight... thank you! i think i'll give up trying to rationalize what's going on with me physically. might be good for my mental health lol!
So much is explained in a very short period of time in this video. It’s as if you are talking about me personally! I will be sharing this with those I love to help them understand the craziness going on inside my body!
My husband has had PPMS for over 40 years, and taken many DMTs. We enjoy listening to Dr. Boster, we learn so much and really get a lot out of his videos. Thank you!
I have the cramped bicep 💪🏻/ weak arm. Perfect example you gave in the beginning. Along with burning 🔥 via the nerve pathways in the arm. AND old carpal tunnel activity/ ulnar nerve damage. The whole arm is a massive cluster F. #WeHaveMS Sharing is caring
Thank you for your videos! They help make sense of life with MS! My local neurologist never really explains anything to me. I'm now 2 years between MRI's and am just coming out of a relapse following a round of Acthar. I see him again in 6 weeks.
Thank you very much for this !!!! I am having so many issues and do feel like my left leg, at times, isn't there. The last few days, it seems my legs, both, while the left is affected more, have become weaker and during sleep, have had some cramping in my legs. Well, the being out of shape is not something I am happy about. I did have PT, until Dec 2020, and had to stop due to financial considerations. I had 'homework', however, it just seems I am so busy at work, I can't stop for those 2 - 3 minutes for sit-to-stand and similar, simple muscle strengthening. It's a fight, battle, but, having this input can help me not to give in, to give it more effort. Again, thank you.
Living with MS and a TBI (post concussion syndrome back of head) and married to a (wonderful) man with same TBI but front of head who has just been diagnosed with Movement Disorder w/parksonian features. You helped both of us today! Thanks!
Thank you for this video. I definitely am experiencing all of this right now. I have a hard time explaining to my neurologist about these symptoms over telemedicine. And to add to the confusion I was diagnosed with Parkinson’s five years ago. So I don’t know if I have rigidity or spasticity. I’m immunized now so am in PT to regain some strength and mobility. You are such a treasure Dr. Boster.
Dr. Boster, I just wanted to let you know how much I enjoy your videos. I am from Alabama and have a wonderful Dr LaGanke but it’s just comforting to hear what other people are saying and of course your knowledge is very valuable to me. I was diagnosed with ms, cidp, thyroid disease, and fibromyalgia got added later by Mayo Clinic at the age of 50. I am a ver positive patient and person but of course I have my days. But I was on a walker and I was able to start walking on my own about a year later. Praise the Lord I hope you are able to keep this channel going. 🤩👍
Thank you for my Monday educational time! I look forward to waking up and watching..THANK YOU! You will never probably understand how much these mean to me, Thank you so much. This wasn’t the journey I wanted but with it learning with you makes the trip less scary.
Thanks so much for sharing this. I needed to hear this. Pseudo things going on. It brings back panic on how it all started. I have an appointment with my provider and MRI at the end of the month. Changing of the seasons in the South don’t help either. Happy Monday!! You are awesome to share these topics with us.
you are amazing when explaining these symptoms of m.s. thank you. now if we could only find an m.s. dr. who understands and can work with us..not a neurologist !!! not a rheumatologist.!! m.s. specialists like the U.K. has to work with us consistantly.....human to human.not meds, mri's, ct scans, without real explanations...all I hear is 'unremarkable'...see you in 6 months...
We can always tell when my son is having a relapse. He starts going blind and can't walk right. Last time he fell down the stairs. It's hard picking up a 23 year old that is 6' 5" and 280 lbs. Ever since they started him on Ocrevus 2 years ago he hasn't had a relapse or any disease progression. I hate that he's on a medication that suppresses his immune system during this Covid pandemic but at least he doesn't seem to be getting worse.
glad i foind these videos as these have been some of my biggest issues in getting people to not see me as a hypochondriac whos just being a baby about some random stiffness grate video
I’ve shared this video with several people tonight, because I’ve never been able to articulate so succinctly, so informatively about the spasticity I experience. I will not find a better video to describe MS spasticity. I’m sure many other people will feel the same way. Every MS professional should watch this. Every doctor interested in developing their understanding of medicine should watch this. Incredibly good work Doctor B. You’re the best resource on MS. You should open a specialist centre :-)
Thank you for continuing to educate us on different topics of MS, Your videos help me so much and I get to show my caregivers these videos so they can have a better understanding of MS, You are an amazing doctor I wish I lived in your area, I hope you have an awesome day.
This really makes more sense for me. My ability to move around changes throw the day and day to day. It always confuses me how much it can change and how severe it can get but also so mild. I moved into a new house that's fully accessible for a wheelchair. I've noticed I'm able to walk around it a lot easier as well even unaided because the doors are soo wide. It's amazing how little I've fallen/stumbled here. In comparison to our old tiny house. I think this may also b e partly because I can't coordinate where I am in relation to other things, if things come at me at speed I fall over. That includes if I walk too fast at it.
This is a great short explanation about what can be a VERY CONFUSING set of symptoms for the MSer and their friends/family. Thanks for this! I’ll pass it along in hopes it helps others. 👍
Dr Boster I worked for over a month to get my arms stronger and within a few days of not doing the exercises I’m back to square one. What do you say to people to encourage them to keep trying!? Thanks for all you do 🧡
THANK You SO MUCH FOR THIS ! I am sharing this with my friends and family. It is very difficult to articulate all of the things that we have to endure…… anything that I can utilize to help them understand is very helpful to me . Thanks again!
Thank you for explaining what’s going on & doing these videos. I definitely have noticed some of your examples & I was confused why this was happening.
@@AaronBosterMD Thanks for your reply - what I meant to say was it explains why I have the symptoms beyond "Man I am so weird" (which is what I've thought). Now, I understand there is an MS explanation and that gives me some clues to how I can prevent this problems.
Oh wow, I find that finger finding test really funny, Because I keep failing on it. I give up trying to touch my fingers together with eyes closed. I tried both ways and I keep missing the mark by an 1/2” up to an 1” and 1 1/2” away. I’m literally trying to focus hard and even slowly as long as hands or arms don’t shake. It seems that if I move my body fast enough, I can concentrate walking better and shake less while outside working, but if I start to move slow or still again, I notice shaking can appears with my muscles. My muscles today were just not with me completely. Thanks for teaching those with ms and those who are not yet dignosed with ms.
Keep the videos going I’ve learned more from you than my neurologist. Thank you for that……now can you let me know what I can do since I have problems with walking & gaining weight would be a problem.
I have both weakness, spasms and tremors also. Some days I can type, other days I could make real good smoothies with no effort, but striking the correct letter on a keypad is impossible. Sensory issues also give me challenges. One of my lesions has killed all feelings to the outside of my right leg. That, added to arthritis in my knees, spine and degenerate discs that causes chronic sciatica, reeks havoc with my gait and strength. When I become fatigued I am worthless to do much of anything. (I also have left hip weakness due to gluteus medius tendon repair surgery) I am in week 11 of a 12 week study, through UAB and the Lakeshore Center, in Birmingham, AL, called Movement 2 Music. It has given me more than I ever thought it could. My ability to walk, without sitting every few yards has made me be able to walk my dog again. I still get depressed when I want to do some of the exercises, but have to modify them or sit back down, rather than stand. But I try to focus on what I can do. However, being able to meet people, from all over the US that can relate with me has been great. With me in Florida and one lady in Pennsylvania, comparing weather has been fun. My question is: What makes the weakness, spasticity and overall clumsy motions worse when I am either fatigued or hot? Some days I feel almost normal, but other days I feel as if I have a ball and chain around both legs. Does this have anything to do with how many spoons I’ve used? Sometimes I have used all my daily supplies and have to borrow from the next day. Oh, and I always seem to feel horrible after a fall.
Thank you Dr. Aaron. Ok I attempted the finger exercise you did and couldn't find my own finger . :( why did that happen? Never mind I re-watched .Again thanks for the clarity.
Again, thanks. More things to add to the list to bring up in my neuro consult :) It is... funny/quirky/annoying/stupid/amazing how 1mm difference in a lesion or inflammation can have such a differing impact in people. Crazy neurons!
Also I’d like to ask , as I’ve symptoms of MS but my GP says my MRI is ok , I’m getting a muscle biopsy done , I’d like to ask do you think I have MS ❤️
Dr Boster - thank you for all your informative videos. I have been dealing with electric shocks in my neck (throat) when I lift my right arm, sneeze, shiver.. Plus, difficulty swallowing food, also with the feeling of something solid stuck in my right side of throat. The throat electric shocks are worrying more than anything else. I’ve been waiting to see a neurologist for over a year with no avail to seeing them as yet due to Covid.. does this sound like ms symptoms ..
Hi Dr. B🙋♀️, very informative and helpful as always 👍. Walking is sooooo difficult and exhausting for me. Thanks for the explanation. Have a great day 🌞🐶
Thank you, good Doctor, once again. The symptoms you mention are often extremely hard to reconcile, but I understand a bit more now and hopefully can adjust that into my walk in all of this. As I'm also a Type1 Diabetic, I find not being able to exercise when I get an MS flare-up very frustrating (apart from having the flare-up itself of course), as my blood sugar needs to still be regulated. I'm glad I have a good GP and specialist though who help me out with both. God bless.
This is a very helpful video. I’m working out more but have found that I need to focus on simple exercise movements. I used to dance when I was younger, so it was a big shift not being able to easily do more complex movements. I have made a lot of progress (albeit slow) with this approach. And thank goodness for air conditioning!!
Have you seen the cases of ms getting higher among people than before? I personally wonder if all of these lights with these cellphones could be hurting us too. I know that if I spend much time on mine, I get a bit jittery and weaker.
Hi Dr. Boster, thank you very much for this explanation! I have a question. When somebody has the muscle problems that you describe in this video. Do they show up on a scan? And if so, on a brain scan or a spinal scan. Or both? Are there specific areas that you would be looking if you’re looking for an explanation? Thank you!!
This has been weighing on me mentally and I hope others have this problem as well. I would love to see a video on what to expect when taking dmt ( I'm currently on ocrevus) I guess it's confusing because if you have a headache you take medicine 20 mins later you feel better. So I guess better understanding on what to expect and how to understand the medication, will symptoms go away eventually would be a wonderful video
Sensory issues suck. In PT I had no idea where my hips were in relation to me. Made getting exercises right done plus I refuse to look in a mirror. Thank you for make sense of this. Maybe mirrors will help if I can't see above waist.
MS sucks. I hate it with a passion. A lot of what you said makes a lot of sense. I feel like I'm a mogwai gremlin. Can't go in the sun. Can't get hot. Can't get cold. I think what can I do? 🤣🤣🤣 I look at it like this it is what it is and I can't do anything about it. 🤷🏻♂️🤷🏻♂️🤷🏻♂️ Unless they keep releasing medication that will help me along my journey then I'm all for it. Thanks Dr B
Thank you again Dr Boster! Once again you describe my condition perfectly! I have most of these signs and symptoms you describe. I don’t know exactly what to do about it, but I just continue with my DMT, Tysabri, while hoping for the cure. Thank you again!
I have had MS for 28 years and have been using a walker/scooter off and on for the last 15 or so years. Never experienced pain UNTIL NOW. both upper legs have significant pain. Not sensory or burning pain, but spastic pain. Especially the buttocks, hamstrings, and thighs. My muscles feel like tight rubber bands. Neuro suggests I take more baclofen, up to 80mg per day from my current 30. Hurts even more to stretch, too. Gotta keep on keeping on, I guess.
Yes Yes yes, and YES. This is accurate Doc. What can you say about Periodic limb movement disorder or PLMD? After telling several doctors about my symptoms, I never get any help. My regular MD put me on Mirapex, I'm not sure it helps to be honest because I still get it. After researching my symptoms plmd is the best I can come up with describing what's happening with me every day of my awesome life, several times a day and when it starts it happens like clock work ever 18 to 30 seconds until I'm so worn out I just want to go to bed. It only occurs while I'm awake that I'm aware of because when I wake up I'm in the same position as when I went to sleep. With that said, yes it has occurred only 2 times that I'm aware of while sleeping. It's horrible, and depletes any energy I might have. I'm not asking for medical advice although if you have ANY suggestions or comments, they would be much appreciated. Thank you for all you do ❤.. you know,, I find myself apologizing to the people around me all the time,,, "I wasn't always this way" seems to come out of my mouth alots.. God bless ~John
I always listen to you with interest in me in progressive high school, they have nothing to give me. I don't have balance anymore. The worst thing is that I have a job and some colleagues discriminate against me. that's why
Thank you. Your explanation helped me understand what's going on with me. I was diagnosed in 2011 but never really understood how it all works. I appreciate your input about MS. It also helps to have a conversation with my doctor. Sue from Florence Oregon
Hi great video as usual definitely have sensory issues Could you please explain what this means on an MRI -Parenchyma atrophy: Mild Callosal atrophy mild!🙌😇
Wow, only just seen this one. I have recently been unable to straighten my leg properly. I have to force it straight when lying down but it just wants to bend. Which means when standing I can't straighten up properly. Really hurts but at least now I know what it is. Thanks for all you do. 😊
Thanks, Dr. Boster. The next time you do a Q&A video can you address this question. If you are in a DMT, I am on Tysabri, do MS symptoms go away over time or will you always have some MS symptoms? If they go away and you still have them does that mean the DMT isn't working? I didn't see the answer on any other videos.
Thank you, Dr. Boster! I definitely have sensory issues. You're always teaching me something new about MS. I'm really glad I found you and, I may have MS, but I won't let it have me!
#StrongerTogether #WeHaveMS BosterMS.com
That is fantastic indeed mr Boster!!!
I have been playing ostrich avoiding any MS videos for a while🙄😬. Then Dr Boster pops up and reminds me that knowledge is power and if your not aware of your MS symptoms and how they effect your body how can you get the help needed to improve things. So going to get back to facing reality and being my own advocate. 👍🏼Your so informative and straightforward thank you. x
I feel really fortunate that I got to help in some way Krazy Brooks. #TeamWork #StrongetTogether #WeHaveMS
Never play ostrich. ... In my early 20s, I worked for an insurance company. They covered the accident of Kaprun (a cog railway that went through a tunnel for quite some time.) A fire broke out in the tunnel. A few people ran downhill, towards the fire and through the fire. Those survived. The other ones ran uphill, away from the fire. They all passed away. :-(
And I photocopied the diagram with the names. Some of them the same last name, one having made it a little further up the hill than the other. ... I've never forgotten that. And when I was diagnosed with MS, I immediately knew that I must face the fire and read as much as I could about the disease.
Ballet and playing piano is my therapy... it helps! I began ballet and piano a year after my diagnosis! 🧡🩰🎹
Ok... good thing nobody was awake while I watched this video. I have my eyes closed and violently flailing one arm around then trying to touch my finger! 😁 thanks for the video Dr. B!
Me too! Lol!
Ha!
Love this one! Great topic 😉
I had spatial problems with my first attack, a couple weeks before my MS Dx. It all started with optic neuritis- I remember trying to walk along a path of stepping stones at a park and I realized right then that something was seriously off. It wasn’t “just” from losing complete vision in one eye - but it also didn’t feel like vertigo or what I’d consider dizziness. It was like being in some alternate universe! Such a strange, strange feeling - looking down at my legs, walking “normally”, but feeling like I was on the moon or something. I hated it! I’ve had many more episodes like this over the years - but honestly, this particular spatial problem in MS is really hard to explain unless you’ve ‘been there’. And I still feel bad for anyone who’s had to deal with it!
had O.P 2 times.. got thru those...but these legs sometimes i fel like they are going to give out on me..i wonder how they are still keeping me up at times..i do not 'feel' them when walking. numbness and tingling of and on with them..also have that out of space feeling in my brain a lot. not vertigo or dizzy...my dr. does not get it..worse when exercising and laying my head down to rest....symptoms are weird at times..also have lung sarcoid which mimics m.s.....hooray for me...been going strong over 30 yrs. with it..just retired nursing in 2019..gave it my best.all you can do day to day..God Bless.
Thanks Dr. B! Newly diagnosed here. Not knowing where all of my body parts are in space is a big issue for me. I clip the wall when going around corners , I knock things over when reaching for them and I often scratch (sometimes gouge) the skin on my hands, face and forearms with my own fingernails because my fingers don't know where they are(?).
Thank you for this understandable explanation. I know what happens to me, but no-one has explained it to me. I have learnt more about my condition from you and your videos than anyone else.
I am SPMS now so my MS specialist has just written me off and I just have to manage neuropathic and normal pain myself. I've deteriorated quite a lot in last 2 years, so am a little frightened, but there is nothing that they can do, so I just carry on.
However, you give me hope, so thank you once again. 😘
You are so welcome!
Thank you Dr. Boster. It is great to have an I depth explanation of what is going on with our muscles. Knowledge is power.
Glad it was helpful!
Thank you for this mornings video, it got me thinking that my muscle stiffness and occasional cramping might not be just age related. One thing i have experienced since being diagnoses with MS is that i tend to bump into things more frequently. I appreciate your taking time from your busy schedule to make these videos.
You're so welcome! As long as you keep watching 'em, then I'll keep making 'em!
Interesting you should mention that…. I’ve noticed a tendency to bump into things much more often lately especially door frames etc. The other day I actually managed to shut a car door and hit my face with it as I completely misjudged where I was in relation to where the car door was…. weird and it bloody hurt too!!
Thank God the only physical problem I had was my whole right arm going numb! which was when I was diagnosed in 2009 after steroids for a week I was back to normal of course staying on therapy!
I don't say this lightly -- Dr. Boster, you're my hero. I had been absolutely flummoxed by why ten minutes in a hot tub left me temporarily paralyzed from the waist down. It was the HEAT! Upon further research, after watching this video, I leaarned that a hot bath was a way to diagnose MS before we had advanced imaging technology. And sensory issues...now I finally understand. (An uneven surface is my nemesis. A four-inch curb can stop me cold in my tracks.) You also answered my question about hot weather. The heat severely affects me, even when I am inside an air conditioned building. I used to be so frustrated that I couldn't even walk the 20 feet from house to pool during the worst Southern California summer days, because my body just would not function. THANK YOU!!! The neurologist I went to a month ago knew NOTHING about MS, and it seems very FEW neurologists here in SoCal have that knowledge base or even care to access information for their MS patients.
I also wanted to thank you for being willing to treat older MS patients with disease modifying therapies, because I'm 62 and despite my 'challenges' with MS, I'm still alive and kickin' -- no one should count us out, and I'm thrilled that you don't shove us aside. Thank you also for talking about muscles and spasticity in this video, because I used to be a power-lifter and everything you said makes so much sense. (Yes, we ladies like to move metal/pump iron with the gentlemen. I miss those days more than I can say.) You are a tremendous resource, Dr. Boster, and I am very grateful to you for spending so much time and effort in sharing your VAST knowledge with us all -- patients, families, caretakers and fellow medical professionals. You ROCK!!!
I restarted kickboxing a year ago and it has really improved my balance. I am still anxious about one kick style but I’ll get there. My upper body and leg strength is waaaaaay better. I started slow but I can sometime outperform the much younger and fitter girls.
That was incredible! I have severe spasticity, and my legs are weak. I have to use a blanket at night in the summer or I get too cold and wake up really stiff. The condition of my legs can be different from morning till night, and in between depending on I don’t even know what criterion. I experienced the not knowing where am I limb was During my last two exacerbations, which unfortunately Earned me a shiny new power chair. But, the first sensation I had was that somebody had filled my thighs with helium and they were moving up and down as I was sitting in on a chair. I literally had to put my hands on my legs to know that they weren’t up in the air. It was a weird feeling. I know I didn’t explain myself very well, but Now I understand why things change so much, and sometimes so quickly with my legs. Have a good week Dr. Booster!
omg no wonder my brain melts down trying to figure out why certain symptoms come and go! this is a great insight... thank you! i think i'll give up trying to rationalize what's going on with me physically. might be good for my mental health lol!
So much is explained in a very short period of time in this video. It’s as if you are talking about me personally! I will be sharing this with those I love to help them understand the craziness going on inside my body!
Agreed! And I also plan to share this video with my loved ones. So well explained!
Wonderful!
My husband has had PPMS for over 40 years, and taken many DMTs. We enjoy listening to Dr. Boster, we learn so much and really get a lot out of his videos. Thank you!
That is awesome!
I always say that dealing with MS is like hearding cats and this fits right in! Good Grief Charlie Brown! I swear by exercise to help (plus DMT!).
I have the cramped bicep 💪🏻/ weak arm. Perfect example you gave in the beginning.
Along with burning 🔥 via the nerve pathways in the arm. AND old carpal tunnel activity/ ulnar nerve damage. The whole arm is a massive cluster F.
#WeHaveMS
Sharing is caring
So true! I still have difficulty scrambling eggs, using Scissors...
Thank you for your videos! They help make sense of life with MS! My local neurologist never really explains anything to me. I'm now 2 years between MRI's and am just coming out of a relapse following a round of Acthar. I see him again in 6 weeks.
I so needed this video today. I just got back from PT due to my left leg and spasticity and weakness in the leg ❤️❤️
Thank you very much for this !!!! I am having so many issues and do feel like my left leg, at times, isn't there. The last few days, it seems my legs, both, while the left is affected more, have become weaker and during sleep, have had some cramping in my legs. Well, the being out of shape is not something I am happy about. I did have PT, until Dec 2020, and had to stop due to financial considerations. I had 'homework', however, it just seems I am so busy at work, I can't stop for those 2 - 3 minutes for sit-to-stand and similar, simple muscle strengthening. It's a fight, battle, but, having this input can help me not to give in, to give it more effort. Again, thank you.
Living with MS and a TBI (post concussion syndrome back of head) and married to a (wonderful) man with same TBI but front of head who has just been diagnosed with Movement Disorder w/parksonian features.
You helped both of us today! Thanks!
damn! dr. Boster body temperature trying to keep it on point is so so hard!
Good night, doctor! Andrea, a CRA from Argentina. I use your videos to supplement my MS education. Thank you!
You are welcome!
Thank you for this video. I definitely am experiencing all of this right now. I have a hard time explaining to my neurologist about these symptoms over telemedicine. And to add to the confusion I was diagnosed with Parkinson’s five years ago. So I don’t know if I have rigidity or spasticity. I’m immunized now so am in PT to regain some strength and mobility. You are such a treasure Dr. Boster.
Dr. Boster, I just wanted to let you know how much I enjoy your videos. I am from Alabama and have a wonderful Dr LaGanke but it’s just comforting to hear what other people are saying and of course your knowledge is very valuable to me. I was diagnosed with ms, cidp, thyroid disease, and fibromyalgia got added later by Mayo Clinic at the age of 50. I am a ver positive patient and person but of course I have my days. But I was on a walker and I was able to start walking on my own about a year later. Praise the Lord I hope you are able to keep this channel going. 🤩👍
Very interesting! I always learn something with each of your videos I watch!
Glad to hear it John!
Thank you for my Monday educational time! I look forward to waking up and watching..THANK YOU! You will never probably understand how much these mean to me, Thank you so much. This wasn’t the journey I wanted but with it learning with you makes the trip less scary.
Wow, thank you!
Thanks so much for sharing this. I needed to hear this. Pseudo things going on. It brings back panic on how it all started.
I have an appointment with my provider and MRI at the end of the month.
Changing of the seasons in the South don’t help either.
Happy Monday!!
You are awesome to share these topics with us.
you are amazing when explaining these symptoms of m.s.
thank you. now if we could only find an m.s. dr. who understands and can work with us..not a neurologist !!!
not a rheumatologist.!!
m.s. specialists like the U.K. has to work with us consistantly.....human to human.not meds, mri's, ct scans, without real explanations...all I hear is 'unremarkable'...see you in 6 months...
You just described my problem with detail and more importantly why it does that. Thanks
I was thinking the same thing! He did a great job!!!
Thank you for the wonderful video of decoding ms symptoms. Wow, multiple layers of our ms craziness. Doug coffee in hand from Lyndhurst
We can always tell when my son is having a relapse. He starts going blind and can't walk right. Last time he fell down the stairs. It's hard picking up a 23 year old that is 6' 5" and 280 lbs. Ever since they started him on Ocrevus 2 years ago he hasn't had a relapse or any disease progression. I hate that he's on a medication that suppresses his immune system during this Covid pandemic but at least he doesn't seem to be getting worse.
glad i foind these videos as these have been some of my biggest issues in getting people to not see me as a hypochondriac whos just being a baby about some random stiffness grate video
You described me perfectly, pretty much across the board, symptom wise. Good video!
This was so helpful, thank you so much for making these videos!!
You're so welcome!
I’ve shared this video with several people tonight, because I’ve never been able to articulate so succinctly, so informatively about the spasticity I experience.
I will not find a better video to describe MS spasticity. I’m sure many other people will feel the same way.
Every MS professional should watch this. Every doctor interested in developing their understanding of medicine should watch this.
Incredibly good work Doctor B. You’re the best resource on MS.
You should open a specialist centre :-)
Thank you for continuing to educate us on different topics of MS, Your videos help me so much and I get to show my caregivers these videos so they can have a better understanding of MS, You are an amazing doctor I wish I lived in your area, I hope you have an awesome day.
You are so welcome!
This really makes more sense for me. My ability to move around changes throw the day and day to day. It always confuses me how much it can change and how severe it can get but also so mild. I moved into a new house that's fully accessible for a wheelchair. I've noticed I'm able to walk around it a lot easier as well even unaided because the doors are soo wide. It's amazing how little I've fallen/stumbled here. In comparison to our old tiny house.
I think this may also b e partly because I can't coordinate where I am in relation to other things, if things come at me at speed I fall over. That includes if I walk too fast at it.
Thank you, thank you, thank you. A quick question, do you see people for non-MS related Neurologic Issues?
This is a great short explanation about what can be a VERY CONFUSING set of symptoms for the MSer and their friends/family. Thanks for this! I’ll pass it along in hopes it helps others. 👍
Great video! I wish my friends and family would watch this.
TY Melissa!
Dr Boster I worked for over a month to get my arms stronger and within a few days of not doing the exercises I’m back to square one. What do you say to people to encourage them to keep trying!?
Thanks for all you do 🧡
Thank you much you have helped me to understand so much that I was on the dark about.
You are so welcome
Thank you dr.B
Your very helpful i hope to met you one day. Much love and respect.
Same to you!
Hi Dr Boster….Thank you Dr Boster… love your videos.
Glad you like them!
Perfect timing! I need to share this
Please do!
THANK You SO MUCH FOR THIS ! I am sharing this with my friends and family. It is very difficult to articulate all of the things that we have to endure…… anything that I can utilize to help them understand is very helpful to me .
Thanks again!
Fantastically informative as usual! Thank you.
Thank you for your explanations of all of these things, Dr. Boster! Keeping up with the variety of symptoms is a never-ending journey.
Thank you for explaining what’s going on & doing these videos. I definitely have noticed some of your examples & I was confused why this was happening.
Glad it was helpful!
@@AaronBosterMD Thanks for your reply - what I meant to say was it explains why I have the symptoms beyond "Man I am so weird" (which is what I've thought). Now, I understand there is an MS explanation and that gives me some clues to how I can prevent this problems.
Looks to me like everybody loves the Bos. Had to say it.
Boom! :)
You explain well, I thought 💭 most of my symptoms were my Lyme disease. It’s nice to differentiate the diseases.
Oh wow, I find that finger finding test really funny, Because I keep failing on it. I give up trying to touch my fingers together with eyes closed. I tried both ways and I keep missing the mark by an 1/2” up to an 1” and 1 1/2” away. I’m literally trying to focus hard and even slowly as long as hands or arms don’t shake. It seems that if I move my body fast enough, I can concentrate walking better and shake less while outside working, but if I start to move slow or still again, I notice shaking can appears with my muscles. My muscles today were just not with me completely. Thanks for teaching those with ms and those who are not yet dignosed with ms.
Spot on
Keep the videos going I’ve learned more from you than my neurologist. Thank you for that……now can you let me know what I can do since I have problems with walking & gaining weight would be a problem.
This is a great one, Doctor! THANK-YOU! I understood it all!
I have both weakness, spasms and tremors also. Some days I can type, other days I could make real good smoothies with no effort, but striking the correct letter on a keypad is impossible. Sensory issues also give me challenges. One of my lesions has killed all feelings to the outside of my right leg. That, added to arthritis in my knees, spine and degenerate discs that causes chronic sciatica, reeks havoc with my gait and strength. When I become fatigued I am worthless to do much of anything. (I also have left hip weakness due to gluteus medius tendon repair surgery)
I am in week 11 of a 12 week study, through UAB and the Lakeshore Center, in Birmingham, AL, called Movement 2 Music. It has given me more than I ever thought it could. My ability to walk, without sitting every few yards has made me be able to walk my dog again. I still get depressed when I want to do some of the exercises, but have to modify them or sit back down, rather than stand. But I try to focus on what I can do.
However, being able to meet people, from all over the US that can relate with me has been great. With me in Florida and one lady in Pennsylvania, comparing weather has been fun.
My question is: What makes the weakness, spasticity and overall clumsy motions worse when I am either fatigued or hot? Some days I feel almost normal, but other days I feel as if I have a ball and chain around both legs. Does this have anything to do with how many spoons I’ve used? Sometimes I have used all my daily supplies and have to borrow from the next day. Oh, and I always seem to feel horrible after a fall.
Thank you Dr. Aaron. Ok I attempted the finger exercise you did and couldn't find my own finger . :( why did that happen? Never mind I re-watched .Again thanks for the clarity.
Again, thanks.
More things to add to the list to bring up in my neuro consult :)
It is... funny/quirky/annoying/stupid/amazing how 1mm difference in a lesion or inflammation can have such a differing impact in people. Crazy neurons!
Thanks for sharing!
I really love watching you Dr Boster , you videos are great value , ❤️
I appreciate that!
Also I’d like to ask , as I’ve symptoms of MS but my GP says my MRI is ok , I’m getting a muscle biopsy done , I’d like to ask do you think I have MS ❤️
Yes, I have sensory issues too. Thanks for explaining!
Thank you Dr Boster, brilliant explanation with super helpful tips 😁🔥🔥🔥🔥🔥
it was very helpful
You are such a good doctor.
Thank you, so helpful as always, what a 🌟
You are so welcome!
I absolutely love your channel. Thank you sooooo much for sharing all this information.
You are so welcome!
Ur explanations are so amazing .. Very easy to understand. Again, thank u for these videos 😊
Glad you like them!
Dr Boster - thank you for all your informative videos.
I have been dealing with electric shocks in my neck (throat) when I lift my right arm, sneeze, shiver.. Plus, difficulty swallowing food, also with the feeling of something solid stuck in my right side of throat. The throat electric shocks are worrying more than anything else. I’ve been waiting to see a neurologist for over a year with no avail to seeing them as yet due to Covid.. does this sound like ms symptoms ..
Good morning Dr. B.😊
Good morning!
This was really helpful, it explains a lot of very some puzzling issues. 🤗
Hi Dr. B🙋♀️, very informative and helpful as always 👍. Walking is sooooo difficult and exhausting for me. Thanks for the explanation. Have a great day 🌞🐶
You are so welcome!
Thank you, good Doctor, once again. The symptoms you mention are often extremely hard to reconcile, but I understand a bit more now and hopefully can adjust that into my walk in all of this. As I'm also a Type1 Diabetic, I find not being able to exercise when I get an MS flare-up very frustrating (apart from having the flare-up itself of course), as my blood sugar needs to still be regulated. I'm glad I have a good GP and specialist though who help me out with both. God bless.
Hi dr Aaron Boster nice to meet you.howdy
Wow this explains a lot thanks Doc.
Glad it was helpful!
This is a very helpful video. I’m working out more but have found that I need to focus on simple exercise movements. I used to dance when I was younger, so it was a big shift not being able to easily do more complex movements. I have made a lot of progress (albeit slow) with this approach. And thank goodness for air conditioning!!
Have you seen the cases of ms getting higher among people than before? I personally wonder if all of these lights with these cellphones could be hurting us too. I know that if I spend much time on mine, I get a bit jittery and weaker.
Hi Dr. Boster, thank you very much for this explanation! I have a question. When somebody has the muscle problems that you describe in this video. Do they show up on a scan? And if so, on a brain scan or a spinal scan. Or both? Are there specific areas that you would be looking if you’re looking for an explanation?
Thank you!!
Great video!
This has been weighing on me mentally and I hope others have this problem as well. I would love to see a video on what to expect when taking dmt ( I'm currently on ocrevus) I guess it's confusing because if you have a headache you take medicine 20 mins later you feel better. So I guess better understanding on what to expect and how to understand the medication, will symptoms go away eventually would be a wonderful video
Sensory issues suck. In PT I had no idea where my hips were in relation to me. Made getting exercises right done plus I refuse to look in a mirror. Thank you for make sense of this. Maybe mirrors will help if I can't see above waist.
Thank you, you described exactly what happens right now😅 it is confusing😅
MS sucks. I hate it with a passion. A lot of what you said makes a lot of sense. I feel like I'm a mogwai gremlin. Can't go in the sun. Can't get hot. Can't get cold. I think what can I do? 🤣🤣🤣
I look at it like this it is what it is and I can't do anything about it. 🤷🏻♂️🤷🏻♂️🤷🏻♂️ Unless they keep releasing medication that will help me along my journey then I'm all for it. Thanks Dr B
Thank you again Dr Boster! Once again you describe my condition perfectly! I have most of these signs and symptoms you describe. I don’t know exactly what to do about it, but I just continue with my DMT, Tysabri, while hoping for the cure. Thank you again!
Thank you! Can you do a video on kesimpta? That’s what I’m currently on and I’d appreciate it!
I have had MS for 28 years and have been using a walker/scooter off and on for the last 15 or so years. Never experienced pain UNTIL NOW. both upper legs have significant pain. Not sensory or burning pain, but spastic pain. Especially the buttocks, hamstrings, and thighs. My muscles feel like tight rubber bands. Neuro suggests I take more baclofen, up to 80mg per day from my current 30. Hurts even more to stretch, too. Gotta keep on keeping on, I guess.
Oh my goodness! I have had both
Yes Yes yes, and YES. This is accurate Doc. What can you say about Periodic limb movement disorder or PLMD? After telling several doctors about my symptoms, I never get any help. My regular MD put me on Mirapex, I'm not sure it helps to be honest because I still get it. After researching my symptoms plmd is the best I can come up with describing what's happening with me every day of my awesome life, several times a day and when it starts it happens like clock work ever 18 to 30 seconds until I'm so worn out I just want to go to bed. It only occurs while I'm awake that I'm aware of because when I wake up I'm in the same position as when I went to sleep. With that said, yes it has occurred only 2 times that I'm aware of while sleeping. It's horrible, and depletes any energy I might have. I'm not asking for medical advice although if you have ANY suggestions or comments, they would be much appreciated. Thank you for all you do ❤.. you know,, I find myself apologizing to the people around me all the time,,, "I wasn't always this way" seems to come out of my mouth alots.. God bless ~John
I always listen to you with interest in me in progressive high school, they have nothing to give me. I don't have balance anymore. The worst thing is that I have a job and some colleagues discriminate against me. that's why
Thank you. Your explanation helped me understand what's going on with me. I was diagnosed in 2011 but never really understood how it all works. I appreciate your input about MS. It also helps to have a conversation with my doctor. Sue from Florence Oregon
Glad it helped!
Thank you for this!
Ok failed the sensory test 😂 practice makes perfect, thanks Dr B
You bet
Thank you 🙏🍎
Welcome 😊
Sir any medication for muscle dystonia?
Hi great video as usual definitely have sensory issues Could you please explain what this means on an MRI -Parenchyma atrophy: Mild
Callosal atrophy mild!🙌😇
Wow, only just seen this one. I have recently been unable to straighten my leg properly. I have to force it straight when lying down but it just wants to bend. Which means when standing I can't straighten up properly. Really hurts but at least now I know what it is. Thanks for all you do. 😊
Really awesome video thank you 😊
You are so welcome!
Can one have motor issues with the legs, caused by MS, if there are no lesions on the spine? Only brain lesions.
Thanks, Dr. Boster. The next time you do a Q&A video can you address this question. If you are in a DMT, I am on Tysabri, do MS symptoms go away over time or will you always have some MS symptoms? If they go away and you still have them does that mean the DMT isn't working? I didn't see the answer on any other videos.
Is there one specific part of the (demyelinated) cns that causes tremors Dr. Boster?