Episode 15: Questions for a Movement Disorder Specialist (MDS)

[@laurakatz2842]

Great info in this and so many episodes, Keep 'em coming!

[@thesecretlifeofparkinsons]

Thanks!

[@chrisc9259]

Great Info for all!! 😊 A must watch if you found your way here. It's worth the 25 mins! As always Thank you both 😊 Thank you too Dr. Patel!

[@thesecretlifeofparkinsons]

I loved this episode as well! Dr. Patel shared really great information that is helpful for anyone wanting to learn about Parkinson's.

[@marvinshrager1749]

Dr. Patel rightly pointed out the word we should fear most: apathy. The concept our community is best positioned to fight. Get busy living….

[@gjvarnado]

Thank you for sharing this information. I look forward to seeing every episode.

[@thesecretlifeofparkinsons]

We try and post a new podcast every Thursday or Friday! Coming this week we will be talking to Steve about his journey with DBS surgery!

[@helensmith8325]

This is SO informative, but also depressing as in Canada there is zero opportunity or option to see an MDS. Our community neurologist has abandoned us. I can't even get an answer about when my husband should take his 3xday levodopa. I rely on youtube and the internet. He is deteriorating rapidly and there is zero help. our HC might be "free" but it is broken. thank you for your channel. I at least learn what questions to "try" to ask and investigate. like "when does he take his Rx?"

[@julieanna8495]

I wish I had the answer. I am just recently in the last 2 weeks diagnosed with Parkinson’s and my Mobility disorder specialist said, 3 times a day. 😐. I was so shocked about the diagnosis that I didn’t think to ask what does that really mean? 🫤. So for now I am taking it morning’s, noon and night. 🤷🏻‍♀️. The doctors really should be more specific. I wish you and your Husband the best. 🙌. And I am sorry about the medical field in your area. 😔

[@louisecostello7819]

I have just found your podcasts- thank you so much!

[@thesecretlifeofparkinsons]

That's great! I hope it is helpful to you!

[@normanrubenzer]

excellent program. please have him on again to talk about the new pump that will be out soon hopefully. please check into the zhittya medicle research study. they are in human trials so that looks promising in the future. fgf-1 fibroblast growth factor i think would help everyone that has pd.

[@patriciabaldwin4680]

Thank you so much for this great information! God Bless!♥

[@susanedghill6597]

Neuro found fluid on my brain.and said prob no Pd. However . After the shunts for fluid I was able to walk again but have terrible balance and dare not let go of my walker .. still have jerking going on and don’t know if I do really have PD. Guess I’d better find a MDS.

[@andrieak]

Spinal neuropathy is my main symtom, tremor is when i use any muscle to much. When i drive i tremor in my leg and my hands go numb. I have constant internal tremors in my neck spine and face. Im 36 😢

[@thesecretlifeofparkinsons]

I'm sorry to hear about the symptoms you are dealing with. I hope you find some relief with medications!

[@kitkat20221]

He said nothing to 100% confirm PD. Did I hear the Neuro incorrectly when she said your DAT Scan can definitely confirm PD?

[@thesecretlifeofparkinsons]

Nothing can definitely confirm PD, until now...well, sort of. The Michael J Fox Foundation's PPMI study has been doing research for 10 years and just found this year that they can test for it but it requires a spinal fluid sample. www.michaeljfox.org/news/ask-md-what-does-new-parkinsons-test-mean-me-today
I received a DAT brain scan to help support the movement diagnosis. Basically, my MDS made me do a few movement tests in the office, listened to what i've been dealing with (tremors, not swinging my arm, dropping my foot, hard to use my mouse on the keyboard, feeling apathetic/joyless) so all of that combined with an abnormal DAT brain scan confirmed my diagnosis. 4 years I have slightly progressed which continues to confirm the diagnosis. Does that help?

[@garystephens1900]

Where are you located. Do you have have a phone a phone number or take calls

[@thesecretlifeofparkinsons]

We are located in Ohio, and no we don't take calls, but we do take your questions. Either by leaving a comment here or sending us an email at [e-mail]