Episode 16: A patient's Deep Brain Stimulation (DBS) journey
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- Опубликовано: 20 апр 2022
- The Secret Life of PD: In this episode, we welcome Steve Brandenburg back to talk about, and show us, his entire DBS (Deep Brain Stimulation) journey. While we may joke and make light of his "party trick" (showing his tremor come on then off again), with the DBS remote, it is a very deep and emotional "trick" to share. We are so grateful for him being vulnerable and allowing everyone to see and hear what it's like to have DBS surgery. Please remember, we are just patients discussing OUR experiences. We are no medical professionals.
Check out other episodes here: / @thesecretlifeofparkin...
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Great interview. This did help me feel less scared of DBS.
Glad to hear it Michele. It is definitely worth looking into!
Great podcast on DBS
Thank you for sharing your experience with DBS.
Great information. Thank you Steve for sharing your experience. Real life experience sharing is very helpful :). When I first met my MDS, we went through the motions of testing balance, walking, the finger taps and what not, and we talked about things. She said to me "You would be a great candidate for DBS in 4 to five years. Well here it is 5 years..I'm Bradykensia and Rigid movement dominate with a very little tremor. I went through my physical type of evaluation for DBS which they had me come in on no meds, and filmed me doing certain exercises, then I took my normal dose of meds, waited for them to kick in and did it all over again. I was told I would be a candidate for the STN-DBS. I did learn there are two types. The other is for tremor only, rarely done since STN really covers it all, but available if it is the right path for that type of patient. My evaluation for the memory and cognition is coming up next. Like Steve was saying, sooner the better. It just makes sense. Thank you again all!
Chris, I’m excited for you and wish you the best of luck!
Steve is a great guy, took it all in his stride. 😎
Hi. Thank you for sharing this video. Im not a PD patient but a wife to one. Much love to you Steve for sharing your journey. If it’s possible, could you please share who your surgeon was and which hospital who did an amazing job for you. Thank you so much!
I was wondering if you ever thought of doing a segment from your gym where you work out with other Parkinson’s people? It might be helpful to see what other people are doing and are capable of and who knows, it might motivate somebody. As always, I appreciate your efforts!
That's a great idea! We'll see what we can do!
Great podcast on DBS.
Glad you enjoyed it
Great
Nice presentation, really beneficial. Does DBS help with brain fog and fatigue?
Hi, thanks for your question. I didn't have brain fog to begin with, but Brian did...and it did make a difference for him. I didn't see any difference regarding fatigue.
Do you think if I have DBS I could play golf again?
Every person with PD is different and from what I've seen every experience with DBS is different. But its not just DBS, exercise needs to be involved too. But I would like to think that yes, you would be able to play golf again, but I don't think anyone can be sure. Good luck on your journey!
Hi. Thank you for sharing this video. Im not a PD patient but a wife to one. Much love to you Steve for sharing your journey. If it’s possible, could you please share who your surgeon was and which hospital who did an amazing job for you. Thank you so much!
Hi. Thank you for sharing this video. Im not a PD patient but a wife to one. Much love to you Steve for sharing your journey. If it’s possible, could you please share who your surgeon was and which hospital who did an amazing job for you. Thank you so much!
If you want to send me an email at jessica@thesecretlifeofpd.org I can pass your question on to Steve!
Hi. Thank you for sharing this video. Im not a PD patient but a wife to one. Much love to you Steve for sharing your journey. If it’s possible, could you please share who your surgeon was and which hospital who did an amazing job for you. Thank you so much!
Yes, my surgeon is Dr. Nagel at the Cleveland Clinic.
Hi. Thank you for sharing this video. Im not a PD patient but a wife to one. Much love to you Steve for sharing your journey. If it’s possible, could you please share who your surgeon was and which hospital who did an amazing job for you. Thank you so much!
sorry for the late reply Rowena. I went to the Cleveland Clinic for my DBS. Dr. Nagle was my surgeon.