Oh Darling I am so happy you were able to attend the concert and you made it almost all the way through!! I couldn’t have made it through and hour! I also cannot eat popcorn anymore and I crave it so much. When I fix it for my husband I just try to satisfy myself with the wonderful aroma of hot buttered popcorn! Not nearly as good but its something! I understand needing a carer also. I have a sweet girl who I pay to just come see me for a while sometimes because I feel so isolated that I sometimes wonder if life still goes on outside my home and neighborhood. I tease her that I have to hire a friend since all of mine are already in Heaven or live too far away to visit me, or they are too sick to visit also. I am blessed to have my husband and my son who I see almost every day. I do know how it feels not to be able to go to the store or anywhere without having someone drive me or to be with me to help me get a motor cart at the grocery store. I don’t trust myself to walk in and get what I need and get through checkout and back to the car without passing out so I only go with my son or my sweet friend. I am praying for you every day so you will get to be made whole and enjoy your precious young life. You deserve it! I love you Sweetheart!
Thank you 😊 but it wasn’t a real concert, just a cinema ☺️ & I spent a long time throwing up & in pre syncope outside & showed the affect it caused after which I’m still going through, so I don’t know if I’d say I made it though. I’m glad you have those 3 in your life! I’d visit you if I could!
Glad you got to see the movie/concert. I wanted to see the new Spider-Man across the spider verse movie in theaters this summer but it was too long for me so I didn’t go. I’m planning on going to the new Captain Marvel movie though! I was just officially diagnosed with POTS last week and am looking to buy some compression socks, but it’s so overwhelming because there are so many different brands I don’t know which ones work for POTS or what level of compression to get. Do you or anyone else here have any recommendations? I heard JOBST is good, but someone mentioned it feels like a pantyhose and I’m concerned it would bother my sensitive skin. I don’t know whether to get thigh high or knee high or open toe etc. 😵💫🫣😳😫
I’m glad you got to experience it! I love Taylor Swift too, she’s my favourite artist. However my noise sensitivity is too severe. I listen to about 1 song every 3 or 4 weeks! I remember pushing myself to watch a bit of Elton John at Glastonbury on the TV. I only listened to two songs and I developed severe symptoms for days including bad insomnia. My noise sensitivity used to be even worse than this before I started taking clonazepam daily. Clonazepam reduces my sensitivity to being able to tolerate a little talking but not much else. Back when my ME was less severe I did manage the cinema very occasionally though after finding two cinemas with recliner sofas. So glad beds and recliner sofas are in some cinemas now! I would wear earplugs to reduce the volume a lot and take my wheelchair and extra meds and just live with the PEM after.
Thanks ☺️ yeah, I had all of that, plus trembling, laboured breathing, etc, & am still not over it now, but I also have this to some degree 24/7 from my noisy flat so I’m used to wearing ear plugs over ear plugs, out of necessity. People rarely notice my ear plugs in my videos, but I wear them almost 24/7. Do you like poems at all? I can’t really listen to music anymore either, only every few weeks too, but I follow some people online who share poems as short as 1 line long, averaging around 3 lines each, that I really enjoy 😊 I saw one today that was 3 lines, 9 words in total, & really powerful 😊
@@GeorginasJourney Yes I love poetry. I used to write it and studied creative writing and have many poetry books. Mary Oliver is my favourite. Unfortunately after I got worse in 2020 I found I really struggled reading any poetry but if you share some very short/simple ones I’ll read them 😊
I went to see the Eras (eeeras) film too at the weekend, I loved it! I was very emotional during it, I didn't realise how emotionally attached I am to her songs. I wore headphones throughout (no loops). I'm AuDHD/fibro, so it was a lot, I agree with you. I was wiped out afterwards. ❤
I also have a CEA card, but didn't have anyone to come with me. I used a recliner seat, but had to alternate it throughout, as my circulation cut off in my legs. My ticket was £20+, agreed, I also couldn't have attended the actual concert
@@GeorginasJourney I didn't mention the loops as a prompt ('where are my loops?!' 🤦🏻♀️) I was just saying, I always wear in ear headphones at cinema as it's ridiculously loud. It was a lovely experience though aside from being wiped out. I'm so glad you got to go too ☺️
Woah I didn't know that the eras concerts had accessible seatings and stuff that's so cool! I don't really know anything about these things because in my region there is literally 0% consideration of accessibility and disabled people at all. There isn't even accessible housing or accessible parking. If your a disabled person here then you better have supportive family and friends or carers that will help you with literally everything ever or if not and your like me then you just have to break your entire body 24/7 and be in the most severe agony. I'm really happy to see that the concert had beds/seats for disabled people. I'm really sorry that you had to suffer so much afterwards. I really hope you get to your baseline soon. I'm glad you felt it was worth it. Sending spoons and hugs! ❤️💕💜
It’s not a real concert, the concert was just shown in cinemas 😊 as I discussed, I was in the same boat with no family or carers, so I spent £31 on a carer fees in addition to my expensive ticket just to go. It’s hard, but you’re not alone ❤️🩹
Aw man I'm slow I really thought it was the actual concert for a second lol. It would be amazing if these things were actually accessible. Really sorry your going through this aswell. Hope we can all find some relief soon.
Thank you, I missed the ending too & then some of it I was just really ill for even though I stayed in, but I really enjoyed the first hour 😊 hope you’re as okay as you can be ❤️🩹
We both have to deal with a lot. I’m knackered 24/7 but still get myself up and ready each morning. I have a fibro scan on my liver tomorrow morning xx
Me neither & me too! Propranolol isn’t a cure, but can help with BOTH POTS & migraines a little bit though 😊 there’s debate about whether it can help with headaches- it hasn’t helped mine, but does help my migraines & pots a bit 😊
@@GeorginasJourneyI've be reading.about we have high copper to zinc ratio in eds pots Asperger's heds trying to find best lace to check.in.uk seams to be a high factor
Hi! Really not been doing well, but social services are aware now & are trying to get me some help 🤞🏽as things have reached worrying levels with me being collapsed & stuck on the floor a lot, so hopefully I can get some help 🤞🏽 I commented to you a few times asking if you wanted to tell me your Instagram username or to message me yourself if you prefer, if you wanted me to send you your Bluetooth headband still, btw 😊 you can message private accounts, but if you don’t want to, you can tell me your username instead 😊
Oh Darling I am so happy you were able to attend the concert and you made it almost all the way through!! I couldn’t have made it through and hour! I also cannot eat popcorn anymore and I crave it so much. When I fix it for my husband I just try to satisfy myself with the wonderful aroma of hot buttered popcorn! Not nearly as good but its something! I understand needing a carer also. I have a sweet girl who I pay to just come see me for a while sometimes because I feel so isolated that I sometimes wonder if life still goes on outside my home and neighborhood. I tease her that I have to hire a friend since all of mine are already in Heaven or live too far away to visit me, or they are too sick to visit also. I am blessed to have my husband and my son who I see almost every day. I do know how it feels not to be able to go to the store or anywhere without having someone drive me or to be with me to help me get a motor cart at the grocery store. I don’t trust myself to walk in and get what I need and get through checkout and back to the car without passing out so I only go with my son or my sweet friend. I am praying for you every day so you will get to be made whole and enjoy your precious young life. You deserve it! I love you Sweetheart!
Thank you 😊 but it wasn’t a real concert, just a cinema ☺️ & I spent a long time throwing up & in pre syncope outside & showed the affect it caused after which I’m still going through, so I don’t know if I’d say I made it though. I’m glad you have those 3 in your life! I’d visit you if I could!
awww that so sad I feel for you and my mum has coped and also has a swallow problem too so I understand the pain your such a lovely girl
Thank you so much! Sending gentle hugs to you and your mum ❤️🩹
@@GeorginasJourney thanks your such a lovely girl
I am so glad that you did this to yourself. This was emotional to watch.
Thanks
Well done for getting there, even though you couldn't do the whole thing. You showed up, and that's so important! I hope you thought it was worth it
Thanks for sharing!! So glad you were able to do it and handle the music, even though you missed some of it.
And yes- everything is SO much more expensive when you need accommodations for chronic illness! :(
Glad you got to see the movie/concert. I wanted to see the new Spider-Man across the spider verse movie in theaters this summer but it was too long for me so I didn’t go. I’m planning on going to the new Captain Marvel movie though!
I was just officially diagnosed with POTS last week and am looking to buy some compression socks, but it’s so overwhelming because there are so many different brands I don’t know which ones work for POTS or what level of compression to get. Do you or anyone else here have any recommendations? I heard JOBST is good, but someone mentioned it feels like a pantyhose and I’m concerned it would bother my sensitive skin. I don’t know whether to get thigh high or knee high or open toe etc. 😵💫🫣😳😫
I am glad you got to go out but I am sorry that you paid so much for it healthwise.
Thanks so much 😊☺️☺️
So Glad I Found You! I Have Cerebral Palsy & Also Do RUclips. Much Love From San Diego California ❤
Hope it’s going well!
@GeorginasJourney Thank You Very Much! Appreciate The Love ❤️ Hope To Make A Vlog With You. Positive Vibes 💯
Love you Georgina, best wishes to you from Minnesota.
Thank you so much! 😊☺️ hope your week is going okay 😊
@@GeorginasJourney
I’m glad you got to experience it!
I love Taylor Swift too, she’s my favourite artist. However my noise sensitivity is too severe. I listen to about 1 song every 3 or 4 weeks! I remember pushing myself to watch a bit of Elton John at Glastonbury on the TV. I only listened to two songs and I developed severe symptoms for days including bad insomnia. My noise sensitivity used to be even worse than this before I started taking clonazepam daily. Clonazepam reduces my sensitivity to being able to tolerate a little talking but not much else.
Back when my ME was less severe I did manage the cinema very occasionally though after finding two cinemas with recliner sofas. So glad beds and recliner sofas are in some cinemas now! I would wear earplugs to reduce the volume a lot and take my wheelchair and extra meds and just live with the PEM after.
Thanks ☺️ yeah, I had all of that, plus trembling, laboured breathing, etc, & am still not over it now, but I also have this to some degree 24/7 from my noisy flat so I’m used to wearing ear plugs over ear plugs, out of necessity. People rarely notice my ear plugs in my videos, but I wear them almost 24/7. Do you like poems at all? I can’t really listen to music anymore either, only every few weeks too, but I follow some people online who share poems as short as 1 line long, averaging around 3 lines each, that I really enjoy 😊 I saw one today that was 3 lines, 9 words in total, & really powerful 😊
@@GeorginasJourney Yes I love poetry. I used to write it and studied creative writing and have many poetry books. Mary Oliver is my favourite.
Unfortunately after I got worse in 2020 I found I really struggled reading any poetry but if you share some very short/simple ones I’ll read them 😊
Not well enough to share poems, but I hope you find a way to enjoy poetry again some day like I have ☺️
I went to see the Eras (eeeras) film too at the weekend, I loved it! I was very emotional during it, I didn't realise how emotionally attached I am to her songs. I wore headphones throughout (no loops). I'm AuDHD/fibro, so it was a lot, I agree with you. I was wiped out afterwards. ❤
I also have a CEA card, but didn't have anyone to come with me. I used a recliner seat, but had to alternate it throughout, as my circulation cut off in my legs. My ticket was £20+, agreed, I also couldn't have attended the actual concert
So glad you got to go! I will update you about your loops on Instagram now & something else 😊
@@GeorginasJourney I didn't mention the loops as a prompt ('where are my loops?!' 🤦🏻♀️) I was just saying, I always wear in ear headphones at cinema as it's ridiculously loud. It was a lovely experience though aside from being wiped out. I'm so glad you got to go too ☺️
Stay strong love!
Thank you ☺️
I’m glad you got out but so sorry that you got so sick I hope Your feeling better now
Thank you ☺️
Woah I didn't know that the eras concerts had accessible seatings and stuff that's so cool! I don't really know anything about these things because in my region there is literally 0% consideration of accessibility and disabled people at all. There isn't even accessible housing or accessible parking. If your a disabled person here then you better have supportive family and friends or carers that will help you with literally everything ever or if not and your like me then you just have to break your entire body 24/7 and be in the most severe agony. I'm really happy to see that the concert had beds/seats for disabled people. I'm really sorry that you had to suffer so much afterwards. I really hope you get to your baseline soon. I'm glad you felt it was worth it. Sending spoons and hugs! ❤️💕💜
It’s not a real concert, the concert was just shown in cinemas 😊 as I discussed, I was in the same boat with no family or carers, so I spent £31 on a carer fees in addition to my expensive ticket just to go. It’s hard, but you’re not alone ❤️🩹
Aw man I'm slow I really thought it was the actual concert for a second lol. It would be amazing if these things were actually accessible. Really sorry your going through this aswell. Hope we can all find some relief soon.
Please feel better. Glad you went!!
Thanks ☺️
I’m pleased you managed to go. Sad that you missed 20 minutes. I have a chronic illness to. Xxx❤❤
Thank you, I missed the ending too & then some of it I was just really ill for even though I stayed in, but I really enjoyed the first hour 😊 hope you’re as okay as you can be ❤️🩹
Just had a look at your channel and subscribed, so sorry you go through so much with your health too ❤️🩹
We both have to deal with a lot. I’m knackered 24/7 but still get myself up and ready each morning. I have a fibro scan on my liver tomorrow morning xx
@@torispalliativecareheartjourneproud of you! Hope your scan goes as smoothly as possible🤞🏽x
Happy New year ❤
Happy new year!! 🥳
I can’t handle bright lights not only from POTS but I Migraines from Bright lights too
Me neither & me too! Propranolol isn’t a cure, but can help with BOTH POTS & migraines a little bit though 😊 there’s debate about whether it can help with headaches- it hasn’t helped mine, but does help my migraines & pots a bit 😊
@@GeorginasJourneyI've be reading.about we have high copper to zinc ratio in eds pots Asperger's heds trying to find best lace to check.in.uk seams to be a high factor
@@GeorginasJourneydo u feel low energy symptoms my friend please answer
Hey girl💜 just checking in on you, how are you?
Hi! Really not been doing well, but social services are aware now & are trying to get me some help 🤞🏽as things have reached worrying levels with me being collapsed & stuck on the floor a lot, so hopefully I can get some help 🤞🏽 I commented to you a few times asking if you wanted to tell me your Instagram username or to message me yourself if you prefer, if you wanted me to send you your Bluetooth headband still, btw 😊 you can message private accounts, but if you don’t want to, you can tell me your username instead 😊
Hi, Gerogina. Are you taking İvabradine now? And is it help Pots syndrome? What is side effects
Hi, no I’m not on ivabradine anymore & I listed the common side effects in my ivabradine video 😊
@@GeorginasJourneyhow many months or years u take ivabradine
@@rajeshlumb8659 maybe 2-3 weeks, wasn’t long, then I found meds that are better for me personally as everyone is different 😊