My Double Cancer Diagnosis: Rare Mouth Cancer & Breast Cancer | Sarah's Story | The Patient Story

Поделиться
HTML-код
  • Опубликовано: 26 дек 2024

Комментарии • 134

  • @suewinter3693
    @suewinter3693 Год назад +46

    This lady is such a ray of sunshine! Her husband is so blessed.

  • @Selfullme
    @Selfullme 10 месяцев назад +19

    I had double diagnosis too. Rare cancer in my voicebox and breast cancer one month apart. I had many of the same emotions you describe from shame to acceptance. I am still going through this. I wish you well on your journey.

  • @Darkempress45
    @Darkempress45 Год назад +109

    This is why we need to understand that doctors PRACTICE medicine. They don’t know everything and they aren’t smarter than you in terms of knowing your own body! Advocate, ADVOCATE, ADVOCATE for yourself!

    • @theresa94010
      @theresa94010 Год назад +8

      100% true. Doctors' diagnosis are basically guesses only, sometime not even their best guesses. Do our own research and question, question, question our doctors rather than just accept what they say or recommend.

    • @amymac41890
      @amymac41890 Год назад +4

      GREAT point!!!!!!

    • @KB-ql8cx
      @KB-ql8cx Год назад +7

      @@theresa94010they are not “only guesses”. Their opinion is based on science, but that doesn’t mean they are always right and that doesn’t mean every doctor is good. Absolutely you should absolutely advocate for yourself

    • @55camille
      @55camille Год назад +1

      It took 15 months of ‘advocating to ten different professionals until I insisted on a CT. Even then he said I was wrong and needed an MRI which finally showed a tumour and of course by then it had metatisised.

    • @talesfromtheleashexpatdogl1426
      @talesfromtheleashexpatdogl1426 Год назад +3

      Practicing and VERY motivated by greed and not patient wellbeing.

  • @55camille
    @55camille Год назад +6

    Your story is my story. After 15 months everyone (about 11 medical practioners, specialists, dentists, audiologists and a chiropractor) except my chiropractor told me it wasn’t cancer, it was tonsil stones, TMJ, tension headaches, throat infection, but definitely not cancer. Ongoing symptoms were all in my head. Finally I insisted on imaging and the radiologist diagnosed probable cancer and URGENT attention. Suddenly the previous long-delays appointments became next 24-48 hour appointments.
    It had to be my decision to put all that cr*p behind me and get on with getting well. If it wasn’t for having to put all my energy isn’t required to getting healthy, I would be really angry and try to do something about the health system.
    Thank you for being that person.

  • @nuns8126
    @nuns8126 Год назад +18

    I have been a head & neck cancer patient since 2000. I had it three times. Now I am having a biopsy again next week. That will be the 4th time. Last time I also went to the comprehensive cancer center at Stanford. I am in San Jose. I appreciate your Presentation here.

    • @Mimi-fe2gm
      @Mimi-fe2gm Год назад +1

      Hope your biopsy outcome is favorable to you ❤

    • @Chacho-i5y
      @Chacho-i5y 8 месяцев назад

      Did it start with leukoplakia??

  • @lisaanderson7322
    @lisaanderson7322 Год назад +16

    What a beautiful soul, inside and out. A great story teller, I could listen to her all day. Very well spoken. She should do a TED talk about her experience. Blessings to you for good health and full recovery!

    • @Bujji0423
      @Bujji0423 3 месяца назад +1

      Totally agree

  • @dianeperez3188
    @dianeperez3188 Год назад +6

    OMG, that’s my biggest fear. I had a bilateral mastectomy 7 months ago because of breast cancer and I’m BRCcA 2 positive. I also wanted a CT scan from my neck to pelvis on my suggestion. You have to be your own advocate, it was great you pushed it good for you ❤

  • @debbieschultz106
    @debbieschultz106 Год назад +25

    Sarah, you're beyond amazing. You have helped so many people by sharing your story. You are a unique person, and I would love to see you in 10 years still talking about how you beat both cancers. I love you, and you will be in my thoughts and prayers. This really touched me.

  • @krismay6
    @krismay6 Год назад +13

    Sarah - thank you for showing how important being your own advocate can/did save your life. Thank you for your strength in sharing why it is so important to ask and to fully understand - never giving up until you know what is happening. Thank you for saving others lives, also. I am sure we have all learned from you. Take good care and be well. ❤

  • @130crowd
    @130crowd Год назад +1

    Your thoughtfulness feeds your eloquence in the biggest challenge we can face. You are so right: a FULL VOICE, not a whisper.
    Thank you, Sarah

  • @jenniferhuff2566
    @jenniferhuff2566 Год назад +12

    Thank you for sharing your story. It still amazes me how often woman hear they are over reacting! I.

  • @ahava3838
    @ahava3838 Год назад +11

    Yay! Stephanie is facilitating the interview! 😃👍

    • @theresa94010
      @theresa94010 Год назад +6

      I much prefer this format also. She gets to the key points guiding the story.

  • @deborahmeyers551
    @deborahmeyers551 Год назад +7

    Sarah's attitude is amaizing truely awsome ❤

  • @sallymccoy6286
    @sallymccoy6286 Год назад +1

    You give cancer patients hope with a smile. Bless you!

  • @elizabethconroy7665
    @elizabethconroy7665 Год назад +5

    Hello,Sarah
    Really nice to meet you
    Lovely,positive Lady
    Please accept warm Hugs from Amman Jordan 🇯🇴

  • @jennyd6185
    @jennyd6185 4 месяца назад +2

    Fabulous story! You’re very articulate! Thank you 🙏 for sharing your story! I just finished frontline chemotherapy for 2B ovarian cancer. My sister was recently diagnosed with tongue cancer & trying to learn.

  • @jerseygirl6155
    @jerseygirl6155 Год назад +4

    thank you for sharing your story-it is so disturbing when we bring concerns to our doctors and they dismiss you as a hypochondriac. I have a family member who clearly has something going on but due to his young age, he is constantly dismissed-it is also distressful to see specialists offering consults months after the initial call for an appointment-

  • @kevinr23
    @kevinr23 Год назад +11

    Same thing. Cancer Diagnosis in January and unrelated in March. I thought I was the only one.

    • @xraylife
      @xraylife Год назад

      Very likely they are related to this 💉

    • @Chacho-i5y
      @Chacho-i5y 8 месяцев назад

      What happened next

  • @wandashields6764
    @wandashields6764 Год назад +1

    Thank you Sarah your story makes me feel stronger, I am a breast cancer survivor twice. You give me inspiration.

    • @clairebeever3038
      @clairebeever3038 5 месяцев назад

      Sending love same here second Brest cancer journey a different type this time … I hope your doing well

  • @laniesider2586
    @laniesider2586 Год назад +1

    Sarah is so inspirational, her strength is amazing! I pray you will recover and live a full life. Wishing you the best!

  • @naznow
    @naznow Год назад +19

    Our healthcare system is trash. It’s broken. It’s big business and very little about health. It’s sick care. I’m sorry you weren’t treated properly but happy for you that you survived this and here you are now helping others.

  • @TamaraEnglish-u6x
    @TamaraEnglish-u6x Год назад +1

    As a fellow warrior, I am so angry that your questions were brushed away. I too went through a touch of that as well. I finally got angry and yelled at my oncologist. He talked to my husband about things but not to me and I was the one he was supposed to be treating.

  • @susanmagalas3074
    @susanmagalas3074 5 месяцев назад

    Thank You for sharing your story. I agree wholeheartedly that we need to talk about it. I think someone going through treatment has a lot of things they would like to talk about - like mortality - but their family and often their friends are too devastated to want to discuss it. I had a friend living with cancer and her family kept glossing over the things she wanted to discuss. Since I had also had cancer we spent a lot of time talking about it - talking about treatments - talking about impact on our future lives/families and of course talking about mortality. She has since passed away but I often think about her and I am so glad I could provide a safe place to let her get it all said!

  • @rebeccakarlsson1395
    @rebeccakarlsson1395 Год назад +3

    Thanks so much for your story Sarah. Every word you’ve said here rings true with me. I can’t believe how alike we are in our cancer experiences, from a mental standpoint at least. Thank you for validating my feelings, and those of countless others going through something similar. Congratulations on your 10 years! I have this feeling that if anyone can be cured it will be someone like you who is smart and tough and knows how to protect herself! Wishing us both long, happy disease free lives❤

  • @PianoMan-hx3ev
    @PianoMan-hx3ev Год назад +1

    Your willpower is PROFOUND. You are a true inspiration for all of us. 💯

  • @lholder1104
    @lholder1104 5 месяцев назад

    I relate to so many things Sarah shared - wanting to project manage it, feeling in constant fight or flight, etc.

  • @maryreyes368
    @maryreyes368 Год назад +2

    Right on point in advocating for your diagnosis in every cranny. Don’t wait.

  • @GSPDUKE
    @GSPDUKE Год назад +2

    Lovely Lady and may my God Bless You and All that you Love.

  • @DMHCre8
    @DMHCre8 Год назад +18

    It's amazing to me how often women are told by their doctors they are some kind of crazy for expressing a health concern, only to later find out they have cancer. 🤨

  • @borountree4539
    @borountree4539 Год назад +2

    Perhaps the missed breast cancer diagnosis was a blessing in disguise as the double treatment supercharged the effect and could be the reason for a better outcome for the salivary cancer.

  • @amycanas5873
    @amycanas5873 Год назад

    Oh my gosh, listening to you has helped me give a voice to my experience!! At least I can start- Sarah's story is alot like mine and she is able to express it so well. All I can say is please tell Sarah Thank You

  • @daphnekivinen9482
    @daphnekivinen9482 Год назад +3

    I can't believe she had to go through all this waiting and wondering. Doctors don't realize we as human beings know our body. You are a very strong woman. Thank you for speaking out!

  • @MH_Prof
    @MH_Prof Год назад +7

    A dear friend valiantly fought parotid gland cancer for 9 years. I will always admire the way she went through. What a fighter!🥊

    • @rosanneshinkle4133
      @rosanneshinkle4133 Год назад

      My sister died from parotid gland cancer. It was very aggressive, she lasted less than 2 years even with surgery, chemo, and radiation.

    • @MH_Prof
      @MH_Prof Год назад

      @@rosanneshinkle4133 I am so sorry for your loss.

    • @rosanneshinkle4133
      @rosanneshinkle4133 Год назад

      @@MH_Prof Thank-you. She was 5 years younger than me.

    • @davisholman8149
      @davisholman8149 8 месяцев назад

      @@rosanneshinkle4133. My sister is five years younger than me also. I can’t imagine how hard losing her must be. Bless you, friend.🙏🏼

  • @sherrykelley741
    @sherrykelley741 Год назад

    Amazing piece. So informative. This lady is so resilient. Such a good speaker too. She should do a TED talk. Bless her, so brave. The very best to her and husband❤

  • @shakirajohnson369
    @shakirajohnson369 Год назад +4

    I was very intrigued when I saw the title of this video. Sarah is quite the inspiration. My dad died of myo epithelial carcinoma in 2020. It is a rare salivary gland cancer as well. I am not sure if it is the same one that Sarah had.

  • @fernemcallister6774
    @fernemcallister6774 Год назад +12

    Infuriating that concerns are brushed off.

  • @mnmdisney
    @mnmdisney Год назад +4

    I'm being medical gaslighted currently, & it's insane.

  • @collettebrynes1075
    @collettebrynes1075 Год назад +2

    Absolutely you are 100% correct fight for yourself no one cares about your health more than you fair play to you for fighting for yourself wish you the very best 💖🙏💖

  • @vickyswift-zd8ol
    @vickyswift-zd8ol 6 месяцев назад +1

    This is my 3rd time with oral cancer, fighting it to this day. Please take oral care seriously

  • @elindia5928
    @elindia5928 Год назад

    You are an amazing human being, thank you for sharing, it is very helpful to so many of us. ❤

  • @ThePatientStory
    @ThePatientStory  Год назад +1

    We’d love to hear from you: what was the biggest lesson you learned in your own cancer diagnosis? Leave us a comment below 👇
    Would you like to share your story? Fill out this intro survey 👉www.thepatientstory.com/share-your-story/

    • @danielanderson204
      @danielanderson204 Год назад

      I wish I could be brave enough to share my story and someday I hope to do just that! Thank you Very Much for this RUclips page that I stumbled across a week ago and I have watched numerous stories so far that gives me more Hope than I had Before!!!
      Breast cancer Thriver since 1-2-19 Beverly (on my husband's YT account)

    • @danielanderson204
      @danielanderson204 Год назад

      Forgot to mention the Biggest lesson I learned is Lifestyle changes like a better plant based diet, exercise, Prayers, meditation, and like Sarah mentioned doing things I've never done before as in hobbies and traveling. Beverly

  • @marilynwilson618
    @marilynwilson618 Год назад

    Bless your heart, you have really been through it.i am so sorry this has been such a rough journey.tu for sharing your story with us.i had early breast cancer a few yr back.had lumpectomy and radiation to. The Lord is charge!!! Praying for you❤❤❤

  • @followingbluebird
    @followingbluebird Год назад +1

    What a wonderful human ❤️

  • @Home-e1v1h
    @Home-e1v1h Год назад +3

    Did you think of the afterlife and where you would go?

  • @ggunga7764
    @ggunga7764 7 месяцев назад

    Ur an inspiration

  • @brendawiener
    @brendawiener Год назад +2

    I too have Adenoid cystic carcinoma.

  • @shobeyl
    @shobeyl Год назад

    Thank you for the best insight about it. Godbless

  • @lmccauley7319
    @lmccauley7319 Год назад +1

    Brave woman.

  • @petriciahice4838
    @petriciahice4838 Год назад +7

    Good grief I have zero faith in our medical system. So disappointed

  • @danielanderson204
    @danielanderson204 Год назад

    At 22:58 minutes in she state's Exactly how I feel...
    Death of a Dream - Death of what you believe the future is going to be
    I have felt like this 4.5 yrs after my dx of Stage2B IDC breast cancer, but I'm working on getting past that as well and will hopefully have a Brighter outlook for the future Soon! Thanks for a great interview!!!
    Beverly Anderson

  • @rsundar1973
    @rsundar1973 8 месяцев назад

    What a trooper!!!!

  • @yomama8873
    @yomama8873 Год назад

    Thank you 🤩🤩🤩💖💖

  • @Ceerads
    @Ceerads Год назад

    I’m assuming you had ACC (Adenoid Cystic Carcinoma). I’m a long-time breast cancer survivor and not any kind of medical professional, but I’ve read about ACC because rare cancers interest me, especially head and neck cancers. So good that you’re doing well!

    • @lynnbean7200
      @lynnbean7200 Год назад +1

      I'm no expert but wouldn't ACC be cancer in the adenoids not the salivary gland?

    • @Ceerads
      @Ceerads Год назад

      @@lynnbean7200 Here’s Google: “ACC primarily occurs in the major and minor salivary glands; however, it is found in other sites of the head and neck, breast, female genital tract, prostate and skin.”

    • @Ceerads
      @Ceerads 4 месяца назад

      @@lynnbean7200Thank you. Here’s Google’s answer: “Yes, adenoid cystic carcinoma (ACC) is a rare type of cancer that can form in the salivary glands in the neck, mouth, or throat. It's also known to develop in other glandular tissues, such as those in the head and neck, tear glands, or sweat glands.”

  • @Hbd2002
    @Hbd2002 Год назад +9

    I wonder how many people go undiagnosed because the doctors tell them it’s nothing

    • @nancybee250
      @nancybee250 Год назад +2

      My 28 year old daughter had 3 breast ultrasounds,2 mammogram s and 3 surgical visits over 18 months for a breast lump and swollen lymph nodes. The surgeon said she was anxious over nothing and didn't need a biopsy. Her tumor nearly tripled in size before she was finally given a biopsy and diagnosed with breast cancer. And yes both radiologist s and surgeon that she saw are still practising

    • @lisafrost9237
      @lisafrost9237 3 месяца назад +1

      You listen to your inner voice and be persistent! I'm a oral cancer survivor of 16 years and I wouldn't be here if I listened an gave up. Leuoplakia is a sign that cells are abnormal that is time to persist and be tenacious! God bless this lovely lady - attitude helps healing!

  • @ahava3838
    @ahava3838 Год назад +5

    So, what were the fields of specialty of the various doctors that she saw? She just kept saying "specialist".

    • @nuns8126
      @nuns8126 Год назад +2

      Dentist
      Oral surgeon
      ENT Dr.
      Oncologist

  • @jeanne_margaret
    @jeanne_margaret Год назад

    Unbelievable 😮

  • @alrahbimom
    @alrahbimom Год назад

    I have multiple myeloma for a year. It’s a rare form and hard for doctors to diagnose. I moved to be closer to family to a smaller town that does. It have specialist. I don’t have good insurance too. This month I had lumps at the bottom of my mouth palate. I have stones in my Saliva glands. I’m worried about cancer n my mouth. I just wish I could have better insurance. It’s not fare how this system is arranged . Good luck

    • @jillian4292
      @jillian4292 4 месяца назад

      @alrahbimom I am so sorry that you are going through this.❤

  • @Sarahbee-o8t
    @Sarahbee-o8t Год назад +4

    Doctors ignore me . I went to the ER because I had been sick for about 3 weeks and I have copd . He pretty much laughed at me and I know he thought I was there for pain pills. I have never took a pain pill in my life!

    • @JessNSylvieG
      @JessNSylvieG 11 месяцев назад

      What was going on that you decided to go to the ED?

  • @unknowndriver6652
    @unknowndriver6652 Год назад +2

    How she got cured ?

  • @heiders8488
    @heiders8488 Год назад +1

    My husband was diagnosed with parotid gland cancer in 2007

  • @feliciamarte3031
    @feliciamarte3031 Год назад +2

    Amen, I've been dealing with All kinds of Dr I was told so many different things even was cursed out by a Dr for 20yrs Now I have several fatal health issues death is just the same has Life or living they both have equal rights Just Love hard and live harder God bless All❤️🌈❤️

  • @Creative-Chaos
    @Creative-Chaos Год назад +1

    Death of a dream. That is a great description. I’m a cancer survivor as well. Death of a dream for me relates to a physical injury, not the cancer.

    • @kathleenbrown6734
      @kathleenbrown6734 Год назад

      THAT is horrible what care you had! I would be furious. You are so happy and,cheerful on this video. Great personality! Glad you did your own advocating. Its just not the same world as it was years ago. So much disease and overworked doctors.

    • @kathleenbrown6734
      @kathleenbrown6734 Год назад +3

      so your cancer free now and doing great. Clean for good or waiting it out. I had a recent test mammogram and they were get in here now! well I went back through all my previous scans and it was there in 2008 on and declared nothing. So I had to do their job and told them check it,out and it is nothing but dense tissue which is common and sometimes affects the nipple but rarely ever cancer. It has not changed at all. My mom had it so I have always been high risk so I spent my life not doing anything that put me at risk like in my 20’s not using the commercial deodorants and never ever use products aimed at blocking the release of toxins from the body. So far so good. I am 76. I analyzed the situation of the American women and took precautions. Made my own deodorant etc and stayed healthy. My moms was horrific but not fatal. They mutilated her. It was horrible. I wish you the best and glad your ok, I must have missed the result or you did not say. I wish you good health, Keep that happy smile!!

  • @Hbd2002
    @Hbd2002 Год назад +1

    I wonder why they couldn’t just reduce the dosage or time that you did the radiation if the chemo intensify the effects anyway

  • @jennyrose2200
    @jennyrose2200 Год назад +1

    So typical of how women are treated by doctors in general. We really have to advocate for tests and treatments.

  • @Madhu7-f5q
    @Madhu7-f5q 8 месяцев назад

    I would love to share my experience with you.. tongue cancer with more than 1/2 my tongue removed

  • @John-xp8fc
    @John-xp8fc Год назад

    P aud' arco is amazing

  • @MilesEderson-qz7hv
    @MilesEderson-qz7hv Год назад +1

    Thank you Dr Obaz on RUclips for being the dedicated, thoughtful, and compassionate doctor that you are! You always go above and beyond and work tirelessly towards a healthy outcome. I feel so blessed to know you and have you as my doctor❤❤❤❤❤

  • @claudiaarjangi4914
    @claudiaarjangi4914 Год назад +2

    🙏 It is So important ( for a doctors education ) to go back to those non-listening non-believing doctors etc, in person..
    🤔 Most of them wouldnt ever see the patients they misdiagnose or disbelieved.. Meaning they dont get physical evidence (not just stats ) that they are missing / ignoring patients & their important symptoms, to their patients ( and their own reputations ) detriment..
    🙏 For all their next patients sake, please make that ( satisfying 😋) visit.. 😁☮️🌏

  • @maggiemmoore
    @maggiemmoore Год назад +1

    Why didn't dentist see it?

  • @ellenherman9543
    @ellenherman9543 2 месяца назад

    You had it after a cleaning ? Fishy!

  • @garysharp8871
    @garysharp8871 Год назад +1

    Unfortunately cancer will be the number one cause of death by the year 2030 followed by stroke and heart related illnesses like heart disease. I have my own opinions about Radiaton and chemo treatments but I will save that topic for another day

  • @anurseinthekitchen6442
    @anurseinthekitchen6442 Год назад

    This is scary...why do we need them then...😡

  • @michellemcneill5313
    @michellemcneill5313 Год назад +1

    ❤️

  • @Gabri.D.Simon73
    @Gabri.D.Simon73 Год назад +1

  • @libfloyd4432
    @libfloyd4432 Год назад +1

    cool lady. :)

  • @karenkalasy8251
    @karenkalasy8251 Год назад +3

    Medical gaslighting.

  • @bobsilver3983
    @bobsilver3983 Год назад +3

    Pfizered???

  • @Questioneverything8888
    @Questioneverything8888 Год назад +2

    You’re so beautiful
    Hope it all works out well for you
    I’m astonished to see the amount of people with rare and aggressive cancers this last 12 months
    Unfortunately this is another side effect of the jab
    So sad

  • @amosemenike9642
    @amosemenike9642 Год назад +1

    God bless Dr.Igudia on RUclips, all my life will keep thanking you for the great help and for your product which actually works in eradicating Herpes simplex virus out of my body system

  • @viorelscrob6391
    @viorelscrob6391 Год назад +1

    My mom has ovarian cancer. ..

  • @jodeeblue9663
    @jodeeblue9663 8 месяцев назад

    ❤❤❤🙏🙏🙏

  • @amosemenike9642
    @amosemenike9642 Год назад

    God bless Dr.Igudia on RUclips, all my life will keep thanking you for the great help and for your product which actually works in eradicating genital herpes virus out of my body system.

  • @karenblackerby8704
    @karenblackerby8704 Год назад

    You have my maximum respect Dr Igudia, I am now negative from Herpes simplex virus after I did the test, I wonder what might have become of me it I didn't get the herbal cure From your RUclips channel. God bless you sir.

  • @JephthahIsiramen-dw3pe
    @JephthahIsiramen-dw3pe Год назад +1

    I thank God I came across Dr Obaz RUclips channel. I was able to conquer this infection with medication from him, thanks for giving me hope to live again….

  • @karenblackerby8704
    @karenblackerby8704 Год назад +1

    You have my maximum respect Dr Igudia, I am now negative from Herpes after I did the test, I wonder what might have become of me it I didn't get the herbal cure From your RUclips channel. God bless you sir

    • @Ceerads
      @Ceerads Год назад

      Stop the bullshit here. These accolades are irrelevant to this site.

  • @jamesdouglas7730
    @jamesdouglas7730 Год назад

    now negative from HSV2 after did a Test , it was like a miracle , i really can't thank you enough Dr Igudia , You cured me naturally after I came across your channel on RUclips , with your herbs , May God bless you Handsomely.

  • @KaraLey98
    @KaraLey98 Год назад +1

    This was way too long especially at the end. So much repetition..

  • @AbdulsalamYusufonimasa-ns5og
    @AbdulsalamYusufonimasa-ns5og Год назад

    Words cannot express how grateful I am to Dr Obaz on RUclips, indeed you’re an amazing, compassionate and brilliant doctor, I admire you for your commitment and sincerity and thanks for being the best doctor for me🚨🚨🚨🚨

  • @JephthahIsiramen-dw3pe
    @JephthahIsiramen-dw3pe Год назад

    I thank God I came across Dr Obaz RUclips channel. I was able to conquer this infection with medication from him, thanks for giving me hope to live again….

  • @AbdulsalamYusufonimasa-ns5og
    @AbdulsalamYusufonimasa-ns5og Год назад

    Words cannot express how grateful I am to Dr Obaz on RUclips, indeed you’re an amazing, compassionate and brilliant doctor, I admire you for your commitment and sincerity and thanks for being the best doctor for me🚨🚨🚨🚨