I made it to one year guys! Thank you all SOOOO much for the support, you have no idea how much it helped me This will be my last TSW update but don't worry! I'm still making videos.... you haven't got rid of me yet!
The thing about antihistamines I totally relate to aswell! I took them at the start of withdrawal but it didn't do anything so i stopped and haven't used them since! Thank You so much for your support Heba, you have no idea how much you've helped me the past couple of months xxx
Zainab Danjuma hell yeah! The battle was hard but was well worth it! This is the light at the end of the tunnel for us =] thanks for helping me though this journey with your videos. It is very motivating and inspiring!
I'm at my day 3 in TSW RSS, thanks for your vids because it inspires me to continue and not to go back on steroids anymore. My first flare up was on 2015 and it clear up really fast because of prednisone. But now it came back alot worse, the only area that is not affected is my face and now I'm determined to cut off steroids forever. I'm done winning the battle. I want to win this war! 😍
Congratulations Zainab! Can't believe how far you've come and I'm so happy to have watched you through your journey!❤️ Sorry for not watching your 1 year earlier! Tryna catch-up on life... I'm sure you're doing the same. Even though we've never met, I'm happy to know you. You're so inspiring :)
I am so happy for you! Your skin looks amazing. Thank you for making the TSW videos, it is currently helping me with my journey and I am almost 2 months in! Definitely super hard but I know it'll be worth it :D
I've just sat here and binge watched your journey as I've just began my own 2 weeks ago and it's been a struggle so far but you've motivated to chuck my creams in the bin just so I have no excuse to go back to them! Your comment you made about your doctor just offering steriod creams as a solution happened to me and it incredibly infuriating but it taught me a lesson that these people haven't go a clue. Congrats on getting to a year, and thanks for motivating me!!
@@iambeezee Extremely sore all over and finding it impossible not to scratch, but I've watched enough videos on this to know this is how it's going to be for a while so just have to tough it out for a while!
I have just started my journey and your videos have been such a comfort to me! I watch your most recent videos and then after I watch the ones when your skin was at its worst just to remind myself that you went through the worst too and you survived and that I can too! I was wondering how did you do in the coldest months? I live in Northern Ireland and that's one thing thats a struggle it's always freezing here and it's hard to cover your face haha Congratulations girl on a year TSW! ❤️
Hi! Honestly I don't really know how I'm going to cope with the cold. Obviously when I started withdrawal, it was cold but I had so much time off work I rarely left the house. I wore a lot of jumpers with scarves... which is good for hiding BUT the flakes that would collect in the scarf is not nice lol n turning my head u could hear the scraping of the flakes lol I guess I always brought my aquaphor with me wherever I went. N try not to sit by a heater it just dries up ur skin for no reason. Sorry for the late reply x
Literally one the worst things to experiences-TSW! I can relate to everything your saying Zainab. So Grateful you’ve survived this journey! I’m also on my way to recovery myself.
The same thing for me with the sickness!! I wasn't sick for an entire year and then it came at about a year and of course it started freaking me out because I felt like it was the beginning of a flare. Maybe not related, but I did get into a "flare" very very similar to yours as you described in your next videos. It's so cool seeing someone who totally went through such a similar experience to me! even the chapstick and everything
Im so happy for you Zainab :). you've inspired and taught me so much. When my small eczema spot spreader all over my body I knew I wasn't crazy, TS was making it worst. When I got off of them it was horrible and I didn't have answers to questions I didn't have. You were the first video I saw when I started researching. Although I was only on TS for about two and a half months and my TSW journey is about 75 percent healed in the 3rd month, your videos was so freaking me all the way. You provided me with so much comfort Zainab and I am thankful you. You are amazing and inspiring. you are changing people lives and please do not stop documenting because I do believe that this is a life long experience.
Your comment is so sweet! Thank you. I'm glad my videos helped you. I am going to stop my updates here but videos about skin in general are not going to stop. I still have so much to say about eczema.
I'm still struggling and it's been over 5 years now. I am WAAAY better than I was, but all of the sudden 2 days ago I am getting another flare in areas that are left to heal after a LONG time of looking and feeling pretty dog on good. I just HOPE this is the LAST wave. You look great! I just have not been confident enough to do my makeup. I do lipgloss sometimes though, which is good enough I guess. lol
I wanna thank you so muchhh!!!!! My skin is super similar to yours and as dark as mine (which is hard to see since a lot of people are way lighter in complexion with tsw) so lol I just wanna ty for showing me im not alone
so so happy to see how far you’ve come girl ☺️ did you change your diet in anyway to aid in this process? maybe you could do a video showing what you eat in a typical day? like if there are any foods that help/hurt the healing process?
I didn't change my diet at all. I ate what I wanted only avoided foods I was allergic to. I talk about this in my 7th month update around the 20 minute mark
Omg....now I understand why my hair also started to fall out...I used to have long hair as well before but it became thinner and fell out that I got bald spots. Hopefully I recover like you after this tsw. You look amazing, thanks for inspiring and motivation!
Hello there, I found your channel after seeing your comment under Rob's video about TSW. I have eczema on my face/scalp as well.. I was wondering how could you recognize TSW vs regular flare up? And did you just wait for 12month for it to disappear with time, or did you adopted a particular diet etc as Rob recommand it? I wish you all the best in life, and thank you for your testimonial. You know how much stuff like this is important for us skin sufferers.. I'm month 4 of my recovering journey and (I think) TSW withdrawal. Ps : I apologize for the bad English, I'm not a nativ
I didnt change my diet at all during withdrawal, so although Rob says that diet is the cure, im not sure that is the same for everyone - especially diet was never the cause of the eczema in the first place. For me the cause was steroid addiction. I could tell it was withdrawal rather than a flare because of the timing. One day after not using the cream my skin was red sore and itchy. It wasnt a coincidence. Anything to notice is that withdrawal is very extreme. The skin starts to weep a clear/yellow fluid that smells. The skin turns a bright red even when its not been scratched. It looks permanantly flushed. The skin sheds non stop. The skin literally flakes off to the touch. And it is weirdly dry. Even after moisturising the skin is a dry/plasticky texture. And this can be all over the body, not just usual eczema areas. Flares come and go but withdrawal it stays for months and theres rarely a break. After i stopped it took about 6 months for my face to get to some sort of normal. Dealt with shedding, oozing and red skin all the way through. As time went on the symptoms faded
@@iambeezee Thanks for the answer Zainad. I appreciate it. I used to use steroid cream usually on my face, and for a 2years period but not constant. Like 3 weeks non stop then 1month out then 2weeks etc.. When I stopped using it, I had flare up but just like really REALLY red spot on my face but that was all. Then it went really better for some weeks. Then, 2 month after I stopped, it started to get fucked up like really red + so much dead skin everywhere and it literally grow more than the usual red sport on my face. Since that day (September) it is flare up all the time, with few lucky day of rest. But always only red skin + dead/tugging skin. No itching, or not so much but it never itched that much anyway. It is the constant state of my skin that make me think about TSW, but there is nothing smelly or so that leak from my skin. But my skin is always like that, no recovery nothing. Do you think it is TSW? If it was not, it should be good sometime and bad during flare up but not 100%bad always right?
@@thorvald7347 the red skin is a sign pf TSW. Steroids make ur blood vessels constrict to reduce inflammation and redness of an eczema rash. After long term use, ur body can't regulate these nlood vessels due to steroid overuse. That's why the skin stays red - the vessels are constantly open That's the theory behind it anyway. Going through tsw not everyone will display all the symptoms, maybe a few. I suggest u watch videos by Doctor Rappaport. He describes the condition so well
Nothing lol I think it's just time and not using steroids anymore... just wait. Ur hair will grow... I don't believe in all these hacks to make ur hair grow, just be patient
Do you follow any specific diet? Just curious, I have been off from steroid for about 2 yrs, my face, chest n back r feeling a lot better the real big problem are my legs they r itchy ,dry ,weeping,crusty, looks almost like a bark of tree.
I don't have eczema but suffer from another autoimmune skin condition. What's helped me a lot is to eat a low inflammatory diet with lots of greens. Many functional doctors recommend this. I cut out gluten and dairy completely, eat very little sugar. Most importantly I try to eat 600 g vegetables, many of which are leafy greens. It's so difficult but worth it. Vegetables are healing.
Hi Zainab, I’ve been off TS for a couple of weeks now and without knowing about TSW, I got a massive flare a few days ago which has stayed. I would love to be able to speak to you for 5 minutes on a call to answer some of my questions as you have recently been through this journey or if you rather, I send an email with my questions that I hope you don’t mind responding to? Thanks Dan
Is tsw just for like pill steroids because I only use steroid creams and I’m only 13 and having eczema is really hard I have it on my arms legs and cheeks and my cheeks are so white and the rest of my body is darker I’m embarrassed to look in the mirror how can I fix my face
Steroids are steroids whether in pill or cream. They all do the same thing. I never use pills at all, just cream. When i was younger my skin was so dark. Just give it time it will heal
My hands are real bad...I know now to deal with tsw..like there absolutely nothing I can do..I bare with it...but how do I deal with eczema which I started with...?? Like it's hard dark skin how do I deal or get rid of that?
My hands used to be the worst part of my body when i was young. Now you cant enough notice. Scars do fade once the active eczema is gone. That's a promise
I only use hot water to wash my face. If ive been wearing make up i take off my mascara with a cheap oil (those fake bio oil type things) n take off the remaining make up with bioderma miscellar water. Moisturiser is aquaphor healing ointment n cocoa butter Hope that helps!
I only use hot water to wash my face. If ive been wearing make up i take off my mascara with a cheap oil (those fake bio oil type things) n take off the remaining make up with bioderma miscellar water. Moisturiser is aquaphor healing ointment n cocoa butter Hope that helps!
Nope nothing at all. No diet change no medical assistance/treatments. Just dead sea salt baths at home but thats it. I believe time is the real healer.
I only wash my face with hot water and a flannel. For removing make up I use a cheap pound store oil to remove my waterproof mascara, then Bioderma water to take of the foundation. I still use aquaphor and palmers cocoa butter to moisturise
I made it to one year guys!
Thank you all SOOOO much for the support, you have no idea how much it helped me
This will be my last TSW update but don't worry! I'm still making videos.... you haven't got rid of me yet!
I'm so happy for you!! Truly, from my heart
The thing about antihistamines I totally relate to aswell! I took them at the start of withdrawal but it didn't do anything so i stopped and haven't used them since!
Thank You so much for your support Heba, you have no idea how much you've helped me the past couple of months xxx
My skin is becoming normal again =,] the struggle was real!... high 5 warrior! We’re almost winning the war!
Keep going! We're definitely winning from the minute we stop using!
Zainab Danjuma hell yeah! The battle was hard but was well worth it! This is the light at the end of the tunnel for us =] thanks for helping me though this journey with your videos. It is very motivating and inspiring!
@@AJ5TAR 😘
I'm at my day 3 in TSW RSS, thanks for your vids because it inspires me to continue and not to go back on steroids anymore.
My first flare up was on 2015 and it clear up really fast because of prednisone. But now it came back alot worse, the only area that is not affected is my face and now I'm determined to cut off steroids forever.
I'm done winning the battle.
I want to win this war! 😍
Make sure heal your gut. Enemas, salt flush, take digestive pills, eat tons of veggies and fruits. This will make things go by a lo faster.
Congratulations Zainab! Can't believe how far you've come and I'm so happy to have watched you through your journey!❤️
Sorry for not watching your 1 year earlier! Tryna catch-up on life... I'm sure you're doing the same. Even though we've never met, I'm happy to know you. You're so inspiring :)
I am so happy for you! Your skin looks amazing. Thank you for making the TSW videos, it is currently helping me with my journey and I am almost 2 months in! Definitely super hard but I know it'll be worth it :D
I've just sat here and binge watched your journey as I've just began my own 2 weeks ago and it's been a struggle so far but you've motivated to chuck my creams in the bin just so I have no excuse to go back to them! Your comment you made about your doctor just offering steriod creams as a solution happened to me and it incredibly infuriating but it taught me a lesson that these people haven't go a clue. Congrats on getting to a year, and thanks for motivating me!!
Welcome to the TSW family! How's ur skin doing now?
@@iambeezee Extremely sore all over and finding it impossible not to scratch, but I've watched enough videos on this to know this is how it's going to be for a while so just have to tough it out for a while!
بالتوفيق
I have just started my journey and your videos have been such a comfort to me! I watch your most recent videos and then after I watch the ones when your skin was at its worst just to remind myself that you went through the worst too and you survived and that I can too! I was wondering how did you do in the coldest months? I live in Northern Ireland and that's one thing thats a struggle it's always freezing here and it's hard to cover your face haha Congratulations girl on a year TSW! ❤️
Hi! Honestly I don't really know how I'm going to cope with the cold. Obviously when I started withdrawal, it was cold but I had so much time off work I rarely left the house.
I wore a lot of jumpers with scarves... which is good for hiding BUT the flakes that would collect in the scarf is not nice lol n turning my head u could hear the scraping of the flakes lol
I guess I always brought my aquaphor with me wherever I went. N try not to sit by a heater it just dries up ur skin for no reason.
Sorry for the late reply x
Im having a bad time to be honest, on month 9. I hope to see improvements again soon though! Thanks for sharing
What a transformation! You are so strong!
Literally one the worst things to experiences-TSW! I can relate to everything your saying Zainab. So Grateful you’ve survived this journey! I’m also on my way to recovery myself.
It really is! How far are you into withdrawal?
Congratulations girl! You did it!!
The same thing for me with the sickness!! I wasn't sick for an entire year and then it came at about a year and of course it started freaking me out because I felt like it was the beginning of a flare. Maybe not related, but I did get into a "flare" very very similar to yours as you described in your next videos. It's so cool seeing someone who totally went through such a similar experience to me! even the chapstick and everything
Im so happy for you Zainab :). you've inspired and taught me so much. When my small eczema spot spreader all over my body I knew I wasn't crazy, TS was making it worst. When I got off of them it was horrible and I didn't have answers to questions I didn't have. You were the first video I saw when I started researching. Although I was only on TS for about two and a half months and my TSW journey is about 75 percent healed in the 3rd month, your videos was so freaking me all the way. You provided me with so much comfort Zainab and I am thankful you. You are amazing and inspiring. you are changing people lives and please do not stop documenting because I do believe that this is a life long experience.
Your comment is so sweet! Thank you. I'm glad my videos helped you.
I am going to stop my updates here but videos about skin in general are not going to stop. I still have so much to say about eczema.
I'm still struggling and it's been over 5 years now. I am WAAAY better than I was, but all of the sudden 2 days ago I am getting another flare in areas that are left to heal after a LONG time of looking and feeling pretty dog on good. I just HOPE this is the LAST wave. You look great! I just have not been confident enough to do my makeup. I do lipgloss sometimes though, which is good enough I guess. lol
Zainab i love you.. please keep us updated with your skincare routine.. and also do makeup tutorials.. ! Take good care of yourself.
I wanna thank you so muchhh!!!!! My skin is super similar to yours and as dark as mine (which is hard to see since a lot of people are way lighter in complexion with tsw) so lol I just wanna ty for showing me im not alone
😘
Your an angel. Your strength inspires me.
so so happy to see how far you’ve come girl ☺️
did you change your diet in anyway to aid in this process? maybe you could do a video showing what you eat in a typical day? like if there are any foods that help/hurt the healing process?
I didn't change my diet at all. I ate what I wanted only avoided foods I was allergic to. I talk about this in my 7th month update around the 20 minute mark
Thank you so much for your videos 🥰🥺💖I appreciate you😘💖
That is so sweet! Thank you 💕
I am so angry at RUclips right now! I haven't gotten any notifications for you. It's time to binge your content :)
Its weird sometimes i dont get notified on comments either! I uploaded a new vid btw x
Omg....now I understand why my hair also started to fall out...I used to have long hair as well before but it became thinner and fell out that I got bald spots. Hopefully I recover like you after this tsw. You look amazing, thanks for inspiring and motivation!
How are u now
Hello there, I found your channel after seeing your comment under Rob's video about TSW. I have eczema on my face/scalp as well.. I was wondering how could you recognize TSW vs regular flare up? And did you just wait for 12month for it to disappear with time, or did you adopted a particular diet etc as Rob recommand it?
I wish you all the best in life, and thank you for your testimonial. You know how much stuff like this is important for us skin sufferers.. I'm month 4 of my recovering journey and (I think) TSW withdrawal. Ps : I apologize for the bad English, I'm not a nativ
I didnt change my diet at all during withdrawal, so although Rob says that diet is the cure, im not sure that is the same for everyone - especially diet was never the cause of the eczema in the first place.
For me the cause was steroid addiction. I could tell it was withdrawal rather than a flare because of the timing. One day after not using the cream my skin was red sore and itchy. It wasnt a coincidence.
Anything to notice is that withdrawal is very extreme. The skin starts to weep a clear/yellow fluid that smells. The skin turns a bright red even when its not been scratched. It looks permanantly flushed. The skin sheds non stop. The skin literally flakes off to the touch. And it is weirdly dry. Even after moisturising the skin is a dry/plasticky texture. And this can be all over the body, not just usual eczema areas.
Flares come and go but withdrawal it stays for months and theres rarely a break.
After i stopped it took about 6 months for my face to get to some sort of normal. Dealt with shedding, oozing and red skin all the way through. As time went on the symptoms faded
@@iambeezee Thanks for the answer Zainad. I appreciate it. I used to use steroid cream usually on my face, and for a 2years period but not constant. Like 3 weeks non stop then 1month out then 2weeks etc.. When I stopped using it, I had flare up but just like really REALLY red spot on my face but that was all. Then it went really better for some weeks. Then, 2 month after I stopped, it started to get fucked up like really red + so much dead skin everywhere and it literally grow more than the usual red sport on my face. Since that day (September) it is flare up all the time, with few lucky day of rest. But always only red skin + dead/tugging skin. No itching, or not so much but it never itched that much anyway. It is the constant state of my skin that make me think about TSW, but there is nothing smelly or so that leak from my skin. But my skin is always like that, no recovery nothing. Do you think it is TSW? If it was not, it should be good sometime and bad during flare up but not 100%bad always right?
@@thorvald7347 the red skin is a sign pf TSW. Steroids make ur blood vessels constrict to reduce inflammation and redness of an eczema rash. After long term use, ur body can't regulate these nlood vessels due to steroid overuse. That's why the skin stays red - the vessels are constantly open
That's the theory behind it anyway. Going through tsw not everyone will display all the symptoms, maybe a few.
I suggest u watch videos by Doctor Rappaport. He describes the condition so well
ruclips.net/video/0JNVj6eAHDs/видео.html
ruclips.net/video/8nK0RttPg-U/видео.html
So happy for you!! Did you have insomnia? Any improvement?
Hi, thank you, I did have insomnia for a bit! I think i talk about it in my 2nd or 3rd month update
So Happy For You
Hi Zainab, question, what did you use or do to make your hair grow again?
Nothing lol I think it's just time and not using steroids anymore... just wait. Ur hair will grow... I don't believe in all these hacks to make ur hair grow, just be patient
Also... stop dying and straightening. I used to straighten everyday now i probably straighten 3 or 4 times a year!
Will the thinning & tightness of skin improve, because my skin keeps getting damaged easily? Also what skin care products did you use?
I believe it does. Ur skin is constantly regenerating.
Im going to upload a video tonight about my skin products. Subscribe and keep an eye out!!
Hey did u check out my skin products video?
Do you follow any specific diet? Just curious, I have been off from steroid for about 2 yrs, my face, chest n back r feeling a lot better the real big problem are my legs they r itchy ,dry ,weeping,crusty, looks almost like a bark of tree.
I don't have eczema but suffer from another autoimmune skin condition. What's helped me a lot is to eat a low inflammatory diet with lots of greens. Many functional doctors recommend this. I cut out gluten and dairy completely, eat very little sugar. Most importantly I try to eat 600 g vegetables, many of which are leafy greens. It's so difficult but worth it. Vegetables are healing.
600 grams a day I meant to say
Nope i never changed my diet through withdrawal. I eat meat and anything i want pretty much
I’m so happy for you
I’m getting better too
Hi Zainab, I’ve been off TS for a couple of weeks now and without knowing about TSW, I got a massive flare a few days ago which has stayed. I would love to be able to speak to you for 5 minutes on a call to answer some of my questions as you have recently been through this journey or if you rather, I send an email with my questions that I hope you don’t mind responding to?
Thanks
Dan
Hi im so sorry ive only seen this now!
Please send me and email with any questions angela.danjuma@gmail.com
Hopr ur doing ok!
None of my family have it and I just feel lost because I don’t know what to use no one tells me
Is tsw just for like pill steroids because I only use steroid creams and I’m only 13 and having eczema is really hard I have it on my arms legs and cheeks and my cheeks are so white and the rest of my body is darker I’m embarrassed to look in the mirror how can I fix my face
Steroids are steroids whether in pill or cream. They all do the same thing.
I never use pills at all, just cream.
When i was younger my skin was so dark. Just give it time it will heal
I reckon since ur situated at London, ur healing process will take slightly longer, because whoever I visit London, my skin would act up
I agree... London is terrible pollution wise. Im exactly the same if i come back from a holiday... skin goes to shit again lol
My hands are real bad...I know now to deal with tsw..like there absolutely nothing I can do..I bare with it...but how do I deal with eczema which I started with...?? Like it's hard dark skin how do I deal or get rid of that?
My hands used to be the worst part of my body when i was young. Now you cant enough notice. Scars do fade once the active eczema is gone. That's a promise
What products are you currently using on you face ? From washes to moisturisers ??x
I only use hot water to wash my face. If ive been wearing make up i take off my mascara with a cheap oil (those fake bio oil type things) n take off the remaining make up with bioderma miscellar water.
Moisturiser is aquaphor healing ointment n cocoa butter
Hope that helps!
I only use hot water to wash my face. If ive been wearing make up i take off my mascara with a cheap oil (those fake bio oil type things) n take off the remaining make up with bioderma miscellar water.
Moisturiser is aquaphor healing ointment n cocoa butter
Hope that helps!
I think you suffered from Patella ( knee cap) maltracking...
Did the wrinkly, plastic looking skin on the neck and chest go away ? I've got it bad
Its not gone away completely but its better than before. I know its gonna take time to fully heal but it does get better
did u take any kind of treatment during withdrawal period?
Nope nothing at all. No diet change no medical assistance/treatments.
Just dead sea salt baths at home but thats it.
I believe time is the real healer.
What do you do to maintain your skinhealth?
I only wash my face with hot water and a flannel. For removing make up I use a cheap pound store oil to remove my waterproof mascara, then Bioderma water to take of the foundation. I still use aquaphor and palmers cocoa butter to moisturise
I'm starting my journey now I have eczema around my eyes and mouth. It's the worst.