My brother has dmd and I just started crying watching this video because all of this is true and i hope there will be a cure for this and my brother can be able to walk again as you all out there that have this
I will never forget the day I came across dr igho channel on RUclips , I will always keep it memorable, thank you doctor for helping me cure my muscle dystrophy & pain completely , and putting a smile on my face , you made me feel more alive like never before, Thank you Dr igho
I know just how you feel, taking care of someone you love when they have something terrible going on with them. The way you help him and care for him will go a very long way for both of you. For what it’s worth I believe there will be a cure one day and that you two will stay strong together. Never give up on the ones you love. Not that I think you’d ever want to do that
I have this same disease, and it's really mentally breaking when you turn 16 and find out all the things your parents didn't tell you. It's hard to find acceptance in what is yet to come for your future and it can be very scary to think about. Though even people with this disease can have fun in life and enjoy what they have. I pray and hope that someday in a couple of years at least there can be something that can prevent the breakdown of muscle or make it in a way where you don't feel like crying all the time. It's really hard to accept and it's hard to just shrug it off as oh it'll get better because that's just not true. 2021 is definitely better as people with this disease live longer. I hope everyone else with this can fight it or overcome it and not care about the differences in how you are as a person. Not being able to walk won't stop you from doing amazing things. Stay positive, stay strong, try to accept everything as it is because you will have to learn that growing up with Duchenne's. You could say you wish you weren't born but you at least have a life, to begin with.
I will never forget the day I came across dr igho channel on RUclips , I will always keep it memorable, thank you doctor for helping me cure my muscle dystrophy & pain completely , and putting a smile on my face , you made me feel more alive like never before, Thank you Dr igho
My music teacher mr moeschen has this type of md. He is still alive and well and he is 40. I feel bad for all of the poor children and their parents who hear bad news about this, I wish them the best and hope for the survival of their boy.
Next month, there's a fashion show happening in Vancouver that's raising money for muscular dystrophy and some of the models featured during the show are actually have muscular dystrophy. Check them out on TinyKick
@suwakee Hi Suwakee, Duchenne occurs almost exclusively in boys because the Duchenne gene (dystrophin) is found on the X-chromosome. Young men have one each of the X- and Y-chromosomes, whereas girls have two X-chromosomes. Young men are therefore at greater risk of inheriting disorders caused by damaged genes on the X-chromosome, since they lack a second X-chromosome to “make up” for the damaged gene.
@ParentProjectMD that souds bit strange. When you have two X-chromosomes the risk is twice the risk of the chromosome. Why is the risk bigger for young men?
@cooldit1 I have it to i have a wheel chair because my family are afraid i'll get pushed down in the halls. 6th graders always whisper to them selvs ... "but he can walk". It really annoys me owell i gusse i just have to deal what i have. But i can still walk
@khayztin Carrier females can also show symptoms of muscular dystrophy, because of random X-chromosome inactivation. Even though females have 2 x-chromosomes, one of them need to be inactivated to produce the normal amount of proteins. If by chance, the X-Chromsome carrying the wild type allele for dystrophin is inactivated, while the diseased allele remains activated, then the female can also show the same muscular dystrophy symptoms.
+Abraham C Munemo Hi Abraham. The Physical Therapy page on PPMD's website is a great starting point: www.parentprojectmd.org/site/PageServer?pagename=Care_area_physicaltherapy. If you have any specific questions you can contact PPMD's SVP of Clinical Care, Kathi Kinnett, MSN, CNP at Kathi@parentprojectmd.org.
@khayztin they can because they (girls) have two x's so if the dad has mdm and the mom is a carier there is a chance that the child will be a girls with mdm
Girls can also get DMD. My understanding is that when the two X-chromosomes come together, one in each pair switches "off". If more chromosomes with the good gene switch off, the girl will show more DMD symptoms. This is rare and its progression is slow (more like Beckers) and my daughter has it. She is 16.
@suwakee It's a bit complicating to understand but the reason it's so rare for girls is because MD is an x-chromosome transmitted disease. The y-chromosome comes from dad and the x-chromosome is always passed from mother to son. This is why it's almost always boys who contract MD. The girl has a 50% chance of carrying the disease and the boy has a 50% chance of contracting it. This is also why girls are the only ones who can pass the disease on to their sons.
I have been volunteering as a camp counselor at the MDA Summer Camp and have created a video for Muscular Dystrophy Awareness Month. If you could approve the response that would be wonderful.
@rOsE24401 So...that has happened to me. I used to walk in middle school, and im in high school and have been in a wheelchair since 9th grade. Some brave kid yelled as he went by in a car, "You can F**king walk!(" It made me upset. I didn't let it stay in my head though...the kid is just stupid and knows not what he's talking about. Adults have asked me if i need my chair or if im just playing around. I just ask them "are you stupid or are you just playing" =P
A girl gets an X chromosome from her mother and an X chromosome from her father. For her to get two X chromosomes that contain a mutated dystrophin gene, her father would have to have DMD. Since patients affected by DMD are usually very affected by the time they reach sexual maturity, it is very hard to imagine one having a child. It would be even more unlikely for one to have a child with a woman who is a carrier of a mutation in the dystrophin gene, since such mutations are rare.
@pwnerranger God, that's really mean. A lot of kids just take things for granted so don't let it bother you. What keeps me going is that I know there's actual people who aren't that immature and do genuinely care, hope they leave ya alone
They laughed when I told them I would bulk up with "MAD Ripped Muscle", but then they saw the results. Google MAD Ripped Muscle to see their reaction. (It was epic!)
@khayztin I thought females can get the disorder if they have two affected X-chromosomes, one from the father and one from the mother, provided the father can live long enough with muscular dystrophy to reproduce.
@amio1995 Chromosomes are like puzzle pieces coming together when they form a new person. you have a men have y-x and women have x-x chromosomes. the y is what makes men men but everyone gets a x from their mother. For women I think the other x factors out the possibility of them contracting MD but they can still pass MD onto their sons. For men I think the y-chromosome acts like a catchers mit for MD and they contract it when they receive the MD x-chromosome from their mother.
I knew a girl with DMD she was the best and fastest using a roller board in gym. She lied on the board on her stomach and uses her arms to get exercise.
@khayztin Females can get it. If both parents had DMS she would inherit it because both her X chromosomes would carry the disorder. Very very very rare but possible.
My brother has dmd and I just started crying watching this video because all of this is true and i hope there will be a cure for this and my brother can be able to walk again as you all out there that have this
I too feel the same way abt my brother as he has dmd
My brother also has it
I feel a lot of love y’all’s way 😢 💗
I hope he lives a lovely and happy life, I’m sure he’s already lucky to have such a loving sibling ☺️
I will never forget the day I came across dr igho channel on RUclips , I will always keep it memorable, thank you doctor for helping me cure my muscle dystrophy & pain completely , and putting a smile on my face , you made me feel more alive like never before, Thank you Dr igho
I know just how you feel, taking care of someone you love when they have something terrible going on with them. The way you help him and care for him will go a very long way for both of you. For what it’s worth I believe there will be a cure one day and that you two will stay strong together. Never give up on the ones you love. Not that I think you’d ever want to do that
Thank you for this awesome video, it really helps this Grandma understand what her sweet grandson is dealing with.
Same here. I have 2 grandsons with Duchenne. 💗
I have this same disease, and it's really mentally breaking when you turn 16 and find out all the things your parents didn't tell you. It's hard to find acceptance in what is yet to come for your future and it can be very scary to think about. Though even people with this disease can have fun in life and enjoy what they have. I pray and hope that someday in a couple of years at least there can be something that can prevent the breakdown of muscle or make it in a way where you don't feel like crying all the time. It's really hard to accept and it's hard to just shrug it off as oh it'll get better because that's just not true. 2021 is definitely better as people with this disease live longer. I hope everyone else with this can fight it or overcome it and not care about the differences in how you are as a person. Not being able to walk won't stop you from doing amazing things. Stay positive, stay strong, try to accept everything as it is because you will have to learn that growing up with Duchenne's. You could say you wish you weren't born but you at least have a life, to begin with.
This is an old comment but i hope ur doing good bro, sick osu plays
It is my wish that an animation video about dmd should be produced in Korea.
Moby was performed by Dee Bradley Baker.
I love your channel we watch it all the time at school
how can people dislike this informative video?
Ya, I disliked a Spanish teaching video, but I subscribed to this channel cuz it's good
Who knows? Maybe it makes them nervous?
I wish you had a video for every condition I need to know for Nursing School! Great Job!!
Thank you so much. This account can stay on at any time. It is very helpful when I get out of school and I need help with my homework or a project.
What a great video to help increase awareness for kids!
I have to do a presentation on DMD in about a month. This video helps explain a lot. It must be tough for kids who have it.
I have DMD and it makes sense because my grandma's sister has two boys with DMD and sadly one of them died...
I will never forget the day I came across dr igho channel on RUclips , I will always keep it memorable, thank you doctor for helping me cure my muscle dystrophy & pain completely , and putting a smile on my face , you made me feel more alive like never before, Thank you Dr igho
Thx for posting this vid. Learns a lot from it.
this video is great to help kids understand MD!! AWESOME
Tim was performed by Jon Lovitz.
Awesome info! Thanks so much!
nice video. i have BMD. research is key!!!
My music teacher mr moeschen has this type of md. He is still alive and well and he is 40. I feel bad for all of the poor children and their parents who hear bad news about this, I wish them the best and hope for the survival of their boy.
You know it's serious when the robot's four-line mouth frowns.
Next month, there's a fashion show happening in Vancouver that's raising money for muscular dystrophy and some of the models featured during the show are actually have muscular dystrophy. Check them out on TinyKick
U r so inspirering! I love u guys Tim moby and anny
Coach was performed by Catherine O'Hara.
10 years on RUclips! Wow!
@suwakee Hi Suwakee,
Duchenne occurs almost exclusively in boys because the Duchenne gene (dystrophin) is found on the X-chromosome. Young men have one each of the X- and Y-chromosomes, whereas girls have two X-chromosomes. Young men are therefore at greater risk of inheriting disorders caused by damaged genes on the X-chromosome, since they lack a second X-chromosome to “make up” for the damaged gene.
how do u get rid of it?
my little brother has duchenne, hes so brave :) x
I have muscular dystrophy
and i dont want to use wheel chair,,, what can i do??? any cure?
I wish there was a cure for this,I have DND and life isn't going that great,I hope I don't have it for my whole life
Me too
Skeleton Derp i don't have it are you good now!!!
I DO TOO, it's the worst
feel sorry for you
Skeleton Derp me too and God Bless You
I am familiar with MDA. I kind of wanna go to the camp but i'm not sure If I should go. I'm kind of nervous about it.
Thnx for posting-helped me understand DMD.
RN Student Salem Mass.
Excellent!
I love how they make people with muscular dystrophy sound like its easy... Lol. I am almost 15 and I have limb girdle and it is such a pain.
Maddisyn Mills hi I read your youtube comment. I was wondering how are you now?
what was the first tim and moby, anyone know?
This video is pretty informational, and i always love BrainPoP by how it ends... XD
I think my friend (a boy) has this,well he did say he had a disease. and i'm pretty sure he has this.
so great video
@ParentProjectMD that souds bit strange. When you have two X-chromosomes the risk is twice the risk of the chromosome. Why is the risk bigger for young men?
@CheyenneTheBee awwwwwwwwwww thats sooooooo
sweet U ROCK @CHEYENNE!!!!
@cooldit1 I have it to i have a wheel chair because my family are afraid i'll get pushed down in the halls. 6th graders always whisper to them selvs ... "but he can walk". It really annoys me owell i gusse i just have to deal what i have. But i can still walk
Why is everything upside down? o_o
@khayztin Carrier females can also show symptoms of muscular dystrophy, because of random X-chromosome inactivation. Even though females have 2 x-chromosomes, one of them need to be inactivated to produce the normal amount of proteins. If by chance, the X-Chromsome carrying the wild type allele for dystrophin is inactivated, while the diseased allele remains activated, then the female can also show the same muscular dystrophy symptoms.
greetings i need some information on how the people with dystrophy get physiotherapy done and how it can be implemented at home
+Abraham C Munemo Hi Abraham. The Physical Therapy page on PPMD's website is a great starting point: www.parentprojectmd.org/site/PageServer?pagename=Care_area_physicaltherapy. If you have any specific questions you can contact PPMD's SVP of Clinical Care, Kathi Kinnett, MSN, CNP at Kathi@parentprojectmd.org.
I have Type-2 MD and I'm from the USA
there is world of trivia challenge do you best and see if your school does it it helps raise money for muscular dystrophy
@khayztin they can because they (girls) have two x's so if the dad has mdm and the mom is a carier there is a chance that the child will be a girls with mdm
researching this, because I was reading joyland by stephen king and Mike had it, in the book
Girls can also get DMD. My understanding is that when the two X-chromosomes come together, one in each pair switches "off". If more chromosomes with the good gene switch off, the girl will show more DMD symptoms. This is rare and its progression is slow (more like Beckers) and my daughter has it. She is 16.
Me too💞
HAHA I miss brain pop! I used to do these all the time in middle school (=^..^=)
Brain Pop makes learning fun :D
the robot is talking using morscode
Muscle protein are replace by fat.
My godson has dmd and is only a 1 year old this was very informative
I hope they find a cure soon
@suwakee It's a bit complicating to understand but the reason it's so rare for girls is because MD is an x-chromosome transmitted disease. The y-chromosome comes from dad and the x-chromosome is always passed from mother to son. This is why it's almost always boys who contract MD. The girl has a 50% chance of carrying the disease and the boy has a 50% chance of contracting it. This is also why girls are the only ones who can pass the disease on to their sons.
3:33
A background character spoke
I have been volunteering as a camp counselor at the MDA Summer Camp and have created a video for Muscular Dystrophy Awareness Month. If you could approve the response that would be wonderful.
Never failed to make me laugh. I used to watch that when I was in middle school
love it
All the symptoms are similar to my brother
@rOsE24401 So...that has happened to me. I used to walk in middle school, and im in high school and have been in a wheelchair since 9th grade. Some brave kid yelled as he went by in a car, "You can F**king walk!(" It made me upset. I didn't let it stay in my head though...the kid is just stupid and knows not what he's talking about. Adults have asked me if i need my chair or if im just playing around. I just ask them "are you stupid or are you just playing" =P
i have dmd and im from the uk
A girl gets an X chromosome from her mother and an X chromosome from her father. For her to get two X chromosomes that contain a mutated dystrophin gene, her father would have to have DMD. Since patients affected by DMD are usually very affected by the time they reach sexual maturity, it is very hard to imagine one having a child. It would be even more unlikely for one to have a child with a woman who is a carrier of a mutation in the dystrophin gene, since such mutations are rare.
My friend died because of this at 17
i love it
Blast from the past
I love brain pop
@pwnerranger God, that's really mean. A lot of kids just take things for granted so don't let it bother you. What keeps me going is that I know there's actual people who aren't that immature and do genuinely care, hope they leave ya alone
They laughed when I told them I would bulk up with "MAD Ripped Muscle", but then they saw the results. Google MAD Ripped Muscle to see their reaction. (It was epic!)
wow moby wow
I think i could have it but i am not sure lets hope i don't!
@khayztin I thought females can get the disorder if they have two affected X-chromosomes, one from the father and one from the mother, provided the father can live long enough with muscular dystrophy to reproduce.
you sould make one like this but about autism
@marci0306 he is almost 11 but he is getting better
I wuv u Brainpop. i ike the education anD funniness!!!!!!
wuv,
BigLuigiFan1000/Briggszilla :)
Why is it rare for girls???
Who is watching this on 2015? Meeee
Welcome to the future, my child.
Nope it's 2020
Nope it’s 2023
Tell your parents, and go to the doctor if you NEED to.
nice vid. i have bmd
so they know they have it...That would be a terrible secret to keep. I have DMD anyway.
my brother have DMD too
but there is no cure for genetic disease i will not stop research
god help us
The "nurik54's" I see live in Kazakhstan.
Of course you are.
i have MD to OMG
I also have DMD and I'm a girl
Well I'm the few girls
I hope you get well God will help you
She is probably dead by now.
@@TheHyperactiveMelon Sadly, there's no cure. All pacients will eventually die by the age of 19.
@@vladone3428 oh didn't know that
@amio1995 Chromosomes are like puzzle pieces coming together when they form a new person. you have a men have y-x and women have x-x chromosomes. the y is what makes men men but everyone gets a x from their mother. For women I think the other x factors out the possibility of them contracting MD but they can still pass MD onto their sons. For men I think the y-chromosome acts like a catchers mit for MD and they contract it when they receive the MD x-chromosome from their mother.
@MrHaloGuy1000 Me too!
FREE ME OF THIS CURSED DISEASE!
Omg I was like 6 years old when this uploaded jeez but now I am 11!!😂😂
now your 14
Now 16
My friend walks on his toes
A girl inn my elementary school has dmd
I knew a girl with DMD she was the best and fastest using a roller board in gym. She lied on the board on her stomach and uses her arms to get exercise.
@khayztin Sometimes girls can get it...rare though.
IDK
thumbs up if clay matthews brought you here
i got that disease i hate it
Yay
Department Of Motor Vehicles? Nah, kidding. Sorry for you :(
I have dmd
@khayztin Females can get it. If both parents had DMS she would inherit it because both her X chromosomes would carry the disorder. Very very very rare but possible.