Duchenne Muscular Dystrophy: Ryan's Story
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- Опубликовано: 23 ноя 2014
- Learn more about Duchenne Muscular Dystrophy (bit.ly/1yzusRh) or connect with a specialist: (bit.ly/1xz0Cy1).
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Learn about our Muscular Dystrophy Research (here: bit.ly/1yzuys7) and our Center for Gene Therapy (here: bit.ly/1yzuCbf). Meet Dr. Mendell (here: bit.ly/1yzuPLv).
Duchenne muscular dystrophy (DMD) is the most common life-threatening childhood form of muscular dystrophy. As it is caused by genetic defects that lead to missing or non-functional proteins, faculty members are investigating the possibility of gene replacement or gene therapy as treatment options for DMD.
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Next week is my finals. Watching these type of videos made me feel a surge of motivation to do my best so one day I can be one of the doctors that can change someone’s quality of life❤️
God will guid you, help you and make things easier for you to reach your aim. you have a good heart and you will be successeful.
I will never forget the day I came across dr igho channel on RUclips , I will always keep it memorable, thank you doctor for helping me cure my muscle dystrophy & pain completely , and putting a smile on my face , you made me feel more alive like never before , Thank you Dr Igho
I’m crying..I suddenly remembered my brother, especially when they mentioned the heart complications and dying at the age of 16 :(( I’m glad they found a treatment for this boy.. 🙂
My brother also😢😢😢
I have also this disease
I can't run and walk properly
But now I'm 26 and I'm cured
Rajpal Singh aww that’s great that you’re cured! 😊
shout out to my dad who has MD. i love him with all my heart, and i'm so glad to still have him
whom did he marry? is your mother normal or does she have some kind of disease and what's your father's status now?
You didn’t get the gene ?
@@rubiamancia6691 she is a girl, it mostly affects boys and if the girl is the carrier so her brothers will be safe too but her children may get the infected gene
I will never forget the day I came across dr igho channel on RUclips , I will always keep it memorable, thank you doctor for helping me cure my muscle dystrophy & pain completely , and putting a smile on my face , you made me feel more alive like never before , Thank you Dr Igho
@@rubiamancia6691 Mother is the carrier and it only happens to boys. I am suffering from this disease. It doesn't transfer from men to their off springs. It's actually 1 X in women which is defected.
I have this f**cking disease but I have no lung and heart problem so I wish I can live at least more than 25 years
me too
You guys can do it! 😊❤️🤗
Try power meditation it's helpful to muscular dystrophy patient if anyone wants to know how to do please contact me on what'sApp 91 9322303271
@@sur3n_lll just stay on your prednisone dose
I'm also DMD since i was 11years and am 30years now,i believe we can do it..even more 👌+256706203651 if anyone needs to talk
I'm a nurse and my patient is 37 years old living with duchenne's muscular dystrophy
Please help me my sun 6year avanu 9847715506 please help me dmd petiont
Rare
@@thanseerthansi7375 yes
@@thanseerthansi7375 plzz uska abhi ilzz karwye varna bad me bhut paresani ayegi abhi koi dikkat nahi ayegi mera bhai17 sal ka tha but ab vo nahi raha but plzz aap arranv ko excise or doctor ke pass le jaye soory to say bit ye bhut serious bimari hai
Hi, my son is having Bethelem Myopathy, he is 2 years and 7 months now. Still not able to stand or walk himself independently
My heart goes out to these kids! Merry Xmas Bud
My little sister’s best friend has this. She told me he told her that he’s gonna die, but she doesn’t wanna believe it. I hear her crying about him everyday. It’s heartbreaking, and his mother is the sweetest woman. She had another son but he died when he was just 2. She has a few other kids but that doesn’t mean the loss of her sons will hurt her less. My sister’s friend is about to go into surgery, and he doesn’t know if he’ll live. Praying for him 🙏
I have a little brother who has DMD my heart just stopped after seeing " He's gonna die" tbh i just sometime cry by seeing him..
Omg how did the surgery go 😭
Amazing prayer for a long life for this young man.
very helpful ! I hope Ryan doing ok so sad poor little boy, breaking my heart
God bless this boy! Stay strong lil man! 👍🏼👍🏼
My nephew died of DMD in 2017 at age 37 . I miss him so much ❤❤❤
My nephew has same thing he's 5 years old any advice??
My nephew has same disese
My little brother, (10) gets bullied for his height. He has MD, and it makes him shorter and his bones are super weak. I hope they find a cure to all types of MD, it’s so sad how many kids die at a young age due to it. I hope they find a cure, no one deserves anything close to this
Question, can a patient have becker muscular dystrophy and Atherosclerosis? If so what is the chance of living a long life?
Hello
1 of my brother (15) and my sister 12 years old both are facing muscular problems we are trying to find solutions for this problem since last 10 years but didn't get any treatment. Is there any treatment please let me know so I can schedule appointment and can start it ASAP so they can walk or can do their work in their end.
I'll very happy if you'll response me please revert me
Thanks
What a great family!
My 4 year old son has exon 45-47 deletion which points to mild becker....but ck level came out to be 11000..i am confused and heartbroken..we have requested lab to recheck..he can walk run climb stairs without support but cannot jump..dies anyone know how is he now?
I have a dmd in my relation, he is 10yr now, he has difficulty in walking, can anyone suggest a better treatment for him, also eager to know ryans present condition and his age. So it can help many others like him
God bless you
Cute boys...god ye smiles aise hi bna k rkhe ...god bless u beta...
Hlo ryan and doctor please tell me proper treatment and money in treatment...please please help me ....my cousin brother is suffering from this syndrome ....he is the only son of his parents
any update video on this?
My aunt Sandra passed away from md in 2011
I can understand your problem because my son is also suffering from this disease He is only 10 years old
Are there any updates about Ryan? This video was posted 7 years ago.
Kavita and others would you like to share your story with me. Thinking of documentory on it
What about CMD. Is there any tritment for this.
can someone get limb girdle muscular dystrophy from being in contact with someones blood who has limb girdle muscular dystrophy??...plz reply!!
what is your link
I will never forget the day I came across dr igho channel on RUclips , I will always keep it memorable, thank you doctor for helping me cure my muscle dystrophy & pain completely , and putting a smile on my face , you made me feel more alive like never before , Thank you Dr igho
I have Duchenne Muscular Dystrophy is there any treatment I want help please
I have Duchenne Muscular Dystrophy is there any treatment I want help please
Both my sons have it I am the carrier my oldest is 12 he is now going into a wheelchair my youngest is 11 so together they are beating odds as he is still walking has difficulty but we are adding as many modifications as we can into our house including railings and a railing set to practice walking and keep legs moving as long as we can. We are beating many odds and I couldn’t be more prouder of them I do have some symptoms but when I was young they did not test for such things as no one else in my family has it so far that we know of I believe it is a new mutation in my genes which I then passed to them. Just goes to show how important prenatal care really is. We are hoping to see more testing for this as it can be tested with a dna test , a western blot, muscle biopsies, and also ck levels. And most of all we hope and pray for a cure to stop this disease and save children who deserve a chance to live and be happy and just be a kid. But I have never met two more happier boys despite all odds and all they go thru. Tell Ryan he will be in our thoughts and prayers and he is never alone there are many other children facing the same thing and beating many odds so never give up hope.
God bless Ryan. Can I ask steroids being used to slow the disease and if so what are they ?
Iam From Bangladesh
My two Son Suffered by DMD.
Pls.Treatment Possible?hospital location.
God bless you my child❤
Aise me kya khana chahiye aur kya nahi khana chahiye
Where is that doctor
Sir Mai cg se hu I am suffering from muscular destrophy Dr iska ilaj bataye aur isme kitna kharch lagta hai
Contact 9694551234
I have dmd too and Mytonic dystrophy
So pleased 😀
I want to talk to you about this, please?
Hello I have a 3 yr old who has been diagnosed with Duchenne...please need answers where to go if someone is seeing this please help,I need answers
Can you please say about symptoms?
How is he doing now, whats his uodate?
My sister have this. She is now 25 year old. Day by day she is losing her ability to walk. Can anyone of u suggest a best doctor and hospital please
Hi I like to inform you that Mrs Geeta lgmd patient she got good improve in walking getting up from floor you can ask 91 8652141051
I am also a nurse from india and my patient is 6 year old and minor dmb so suggest me some physiotherapy
Minor dmb includes which kind of symptoms?
Please help me where these doctors are. My son is 8 and he is showing symptoms of duchenne
Hello, here is a link to our website where you can make an appointment with one of our specialists - bit.ly/1XAVgfd
Yes what he said
I am sick with muscular dystrophy and I want you to help me, thank you
My brother here India suffering from this😭
I have this
M from India
My cousins r suffering from this disease and I am very sad about it, is there any treatment for it please help me
Unfortunately there is no treatment sir. Only supportive management.
Try the carnivore diet. People with MD might get better on it and have virtually nothing to lose by trying it.
My cousin also has that UCMD (ullrich muscular dystrophy)one of the rarest . Waiting for a miracle to happen💔🥺
@@Dhyaneshkk001 what problems you are facing in UCMD??
I have DMD.
my son has DMD an he is 22 love him darely
Your son take any medicine pleasetell me
I'm from Indian ,Telangana
My sister son ,he is now 10 years old suffereing from DMD.
God please helps these kids .
We had reached 2023 but it's strange that we didn't had medical cure for these Genetic Disease .
did you get any info regarding the treatment of DMD? please reply. I'm from Maharashtra India.
@@8DROYALBOLLYWOOD no ,only physical therapy
Please help me sir my son DMD problem 9y boy please help medicines sir please sir
Contact me on what'sApp 91 9322303271
Sir I'm 17 years old and suffering from this disease...
I'm enable to walking since 2014...
Please sir give me some suggesting to recover...
hope you'll find your cure!
if you want to talk with someone, i am here!
Please contact me on 9354133779
I'm kantilal Bhanushali from Madhaper nava vaas Kutch Bhuj I like to inform you that we got good results in muscular dystrophy patient case with the help of power meditation for further information please contact me on what'sApp 91 9322303271
Please research Dr. Robert Morse on RUclips🍇💕I wish you luck on your healing journey!
@@xxhaj I have Duchenne Muscular Dystrophy is there any treatment I want help please
I am no walking i am musculer dystrophy prchant please help us how to tricment
Stem therapy is only way
Parag jyoti Gogoi please don't go for stem cell therapy it is not helping in muscular dystrophy
@@kantilalbhanushali3668 why
@@puspagogoi.2048 many muscular dystrophy patient told me that they spend lots of money after steam cell treatment but didn't get any improvement
@@puspagogoi.2048 it is west of money if you are ready to do hard work for long periods then contact me on what'sApp or call me
91 9322303271
My name is bryce janzen cuizon 13 years old from philippines..me and my yourger brother suffering from this desease i cant able to walk at the age of 10 ...i am now on my wheelchair
God bless you and your brother!
im also from philippines and i have this desease
sorry, i have beckers muscular dystrophy, not duchenne, and im 40yrs old
@@danilodelapaz7657 please start doing power meditation it's helpful for muscular dystrophy patient if you want to know how to do power meditation please contact me on what'sApp 91 9322303271
My brother 18 years old & he living with DMD patient..pls help me...How can treatment?
Please call me 91 9322303271
Please call or WhatsApp on
91 9322303271
My son also DMD Patient
How can start treatment ?
Help plez
Hello your brother take any medicine of heart
maskular distofi ka ilaj bataiye
9694551234 contact
This is great news! I knew a family that had 5 boys with Duchenne.
ruclips.net/video/jRpdWBoAeVg/видео.html
Wow 5 boys
Could you please tell me what age group are they in🙏🙏
I m suffering lgmd muscular dystrophy..I am 25 years old and The disease has become 10 years old. please help me please ..🙏🙏🙏🙏😒
Hello Rama, our team here at Nationwide Children's is dedicated to helping patients just like you. Here's a link to our Center for Gene Therapy so you can read more about our research and projects - bit.ly/2KepNkE
Rayn is sooo cuteeee😘😘😘😘
please share latest video of his condition now in 2024 is his familly satisfied with the results of exondy 51.....!!!!!!
Hello Dears, my son is a 6 years old boy and here in Afghanistan, the doctors told me that, your son have Duchenne Muscular Dystrophy (DMD). I tried more for the health and treatment of my son, but unfortunately there is no way for his treatment. If anyone of you know something or any advices for his treatment, please send me an email. Kindly thank you.
I'm kantilal Bhanushali from India I like to inform you that we got good results in muscular dystrophy cases with the help of acupressure massage reflex therapy power meditation and ayurveda medicine for further information call me or what'sApp on 91 9322303271
sir please share your contact details or email.
sir farzad mohammad please share your contact details or email.
Can you please say what was the symptoms?
My 7 years old son is also suffering from DMD kindly help for treatment of plz suggest for any doctor
Dr. Sanjay Ramteke
Dr.brenda Wong in Boston! She sees my younger brother (age 14 w DMD) and he is doing well!
When did he get diagnosed if u don't me asking
@@undergroundlady5892 he is now 14 and was diagnosed at age 4
Contact 9694551234
Mere vedio Me medicine ke bina kese thik ho sakte He uspe He.... Magnet tharapy
My nephew lost his life due to MD at the age of 15 Years on 12-11-2021 at Lahore 🇵🇰
plss guide me for the treatment as my son age 8 years also suffering from dmd
Hello, here is a link to our website where you can make an appointment with one of our specialists - bit.ly/1XAVgfd
NationwideChildrens cant get through the link as i m from india
dr joel wallach muscular dystrophy
If you are interested to cure your son then answer my question can you spend 4 hrs daily for three months then contact me on what'sApp
91 9322303271
Aku juga punya anak penderita duchene syndrome
my son 10 year age dmd paitent pliase halp bangladash
Does Duchenne affect primarily boys or can girls get it too?
But other muscular dystrophy also affect girls
I read an interesting article about females and Duchenne. Sometimes the good x gene is switched off and the carrier gene is causing many of the symptoms, especially as these females hit their 20’s and 30’s. Extreme weakness, difficulty with stairs and even laundry, due to upper body involvement.
I'm a girl with dmd
sir my son 7 year age dmd paitent please help me from pakistan okara
dr joel wallach
muscular dystrophy
sir alkhidmat lab please share your contact details or email.
my son 10 year age dmd paitent please help me from bangladashe
I have his condition I hate not being able to walk
Don't worry, there should be treatments available to help alleviate the symptoms. If you try gene therapy like exon skipping. I hope it works, it all depends on the treatments that are available to you
Sara N Nothing works
my little bro is also suffering from this
Hi suhaib. How old is he? Who is treating him now?
U can do it
Sir it is a very imp question I am going to ask ' sir my friend brother is in 6 class and he is suffering from this disease sir is that can be querable sir money does not matter sir pls kindly tell the best hospital of the India pls sir it is a humble request sir pls reply fast single second is imp pls sir understand 😟😟😟😟
...hllo i m a physiotherapist ... can i help u for something ...
Sir reply fast pls
Sir pls fast i am waiting for a reply
Hello Aryan, this disease is devastating and something no child should have to endure. Right now it is not curable but our research teams here at Nationwide Children's Hospital are dedicated to changing that. Here's a link to our Center for Gene Therapy so you can read more about our team, research and projects - bit.ly/2KepNkE
@@aryan8202 😢😢 ۔مجھے بھی بتایئے کچھ اس کے بارے میں پلیز
Sir ji mere bete ko dmd hai 50 parsent 3 saal ka hai iska ilaaj ho sakta hai apke pas pless apna no send karo pless
91 9322303271
Lord may you cleanse my soul of entitlement and ungrateful behaviour
Strong mother allah bless her
I have dmd and I'm 30
dr joel wallach muscular dystrophy
That's beautiful. 😊❤️
Sir, Is this disease curable??...if yes.
Then please suggest some better treatment procedures
Masoodi Maliha No it’s impossible to cure
Dino Fan impossible TODAY
Any contact number of Ryan vaish
Plz sir help
I have duchenne
My younger brother is suffering from this disease and his age is 16 and his heart is only working 15% please help me if you know the cure of this disease 😭😭😭😭😭😭🙏🙏🙏🙏🙏
Yeah He's screwed If his heart only works 15% he'll probably die in the next month or so.
Your brother take any medicine of heart
@@PBXAKSH09 Yes akshpreet.....and he is no more 🥺
@@harshitbhadauria4861 age
@@harshitbhadauria4861 i have DMD I'M 19S OLD
That's sounds great .
My brother passed away exactly a month ago, due to DMD!!
People on a carnivore diet reported that it helped their MD. My thoughts are you have nothing to lose by trying it for 6 weeks. Monitor your progress during that time and continue if it helps.
it wont help, because DMD are not lack of protein but, absence of dystrophin needed to form muscle
I have muscler dystrophy and us muscler dystrophy people are fighting
=3
I have it too, which is terrible I've lost the ability to walk at 13, it's been about 4 years now and I'm still up and "running" XD well hope you're alright
It has ruined my life man. I cant even earn for life. I never had a normal life.
Its shameful for me I am 23 and I havent even earn 1 doller.
Guys your are fighting more than anyone ever could.
Sounkaman
Eteplirsen
Bhaio is bimari ka treatment aaa gya america me lekin cost jada h 1cror50lac ka ek injection h 6 month me ek lage ga 5 saal tk lagwana padenge
Bhai kya name hai us injection ka
anaku dua2nya sakit dmp
I lost 4 son's
B.s.dahiya
#driyaremoses channel
Who else came from gypsy Rose Blanchard Documentaryi thought this was about her boyfriend Ryan
Mere bacche ke Ilaaj Karana Hai Mast dikkat Hai do bacche
Man its more painful and heartbroking as you grow up I am MD patient I have gone through lot of pain lot of bullies lot of beatdown lot of mental torture. Its too much for me I wish for my death.
Hang in there!!
Same
Hi, I don't know how you feel. But I lost my only brother recently (just last week) at the age of 19. He had DMD. He lost his ability to walk or use his hands at the age of 10 and I've been his care giver ever since. I know its hard for you. But please do think about your love once and draw strength from them. I miss my brother so dearly and I wish he was here with me😥. Please stay strong for your family. My brother Samson was the strongest person I know. If you're like Sammy, then you guys are the strongest people on earth. Please stay strong and keep living❤
@@okperepublicfitvlog6197 you take any heart medicine
@@okperepublicfitvlog6197 you have any heart problem
I have money how need say but i want treatment at any cost
How much 16,17or 20 crore i give
Hey anybody's listening me😔😔😔😔😔😔😔😔😔😔😔
There is exon skipping treatment in america that can cure this disease
@@Oneaboveall653 u are saying cure means i can walk seriously
Lol
can someone get limb girdle muscular dystrophy from being in contact with someones blood who has limb girdle muscular dystrophy??...plz reply!!
Sounkaman
can someone get limb girdle muscular dystrophy from being in contact with someones blood who has limb girdle muscular dystrophy??...plz reply!!
can someone get limb girdle muscular dystrophy from being in contact with someones blood who has limb girdle muscular dystrophy??...plz reply!!
No