“I do NOT have rice…half the time” that was so cute. Made me laugh. You’re sweet. My daughter has Tourette’s. She is about to graduate high school. She is a very introverted child and that had been an added challenge when she has to “blink on a face” (stares and blinks hard- several times-) and someone thinks she staring at them. Among other tics. The last thing she wants is attention and I think that’s probably the case for most people with Tourette’s. Certainly not attention for their tics. I will never forget her first tics when she was five. Smelling people. Yes smelling people (teacher called me about that one) and a complex one where she would throw her arm out and jerk it back then smell her pinky. And THEN click her tongue and flick her finger. Lasted about a year. The SCARIEST one was she would have to reach out and touch things she knew were hot. I had to keep her away from the kitchen when cooking. She would just reach out and tap the stove. Thankfully we were able to prevent injury and this only lasted 6 months. I’m going to share your channel with her. Thanks for sharing!
My niece was just diagnosed. She is also a senior in high school … she also has depression and anxiety so I am worried that this will be too much for her. It’s hard
@@rachel-in-the-208 I have always told my daughter it’s something that makes her unique. Since day one of diagnosis. And it gives her an ability to relate to others with unique issues. Without it she wouldn’t be able to put herself in their shoes. She is a more enriched empathic person because of her Tourettes. We have always chosen to try to be thankful for that gift. To this day she says she doesn’t think she would magically get rid of it if that were possible. It’s a part of who she is. And she is wonderful.
@@erintraicene7422 My niece has been through A LOT - including a very serious concussion when she was younger. She may may also have ADHD and mild autism (and anxiety and depression) Also, she had to stay home and homeschool most of her senior year because the teachers said her condition was too “disruptive” … so it’s just a lot!! She is coping the best she can. I am so glad that your daughter is thriving though! That is wonderful 💕
Oo, i dont have tourettes but i am diagnosed with autism, i used to blink very very hard for no reason several times all the time, it has recently stopped this year and i am very happy, it fluctuates alot :) but ppl used to ask why i blinked so hard all the time. i had no idea why i did it. It was very uncomfortable!
I love your “I do NOT have rice” and “Don’t have jelly on a plate, don’t know what that is” 😂 So glad I found your channel! Thank you for educating us!
Jelly on a Plate is a kid’s song haha I used to play it all the time when I taught English. Maybe you’ve heard the song in passing and it stuck. Anyway, I’m learning so much from your channel. Thank you.
Aw, I felt bad at the end when the tics started compounding and you looked frustrated :( but thank you for this video! It's interesting to learn about where some of them come from and the forms they take!
So interesting! I do not have Tourettes, and I'll be totally honest, I have found myself in the past thinking that vocal tics are mostly what the person is actually thinking. Thanks for educating me on this, showing that it's most likely not the case at all! Fascinating. But I feel for people that have painful movements as tics. I can't imagine the pain ☹️
I've been going back through your videos after finding your response to Tics and Roses. It's cool to see how much your channel has progressed, you're acing it.
Thank you for taking the time to share your experience and educate people in such an open and engaging way. Re: Jelly On A Plate, there’s a sweet, nonsense kids song with that as a lyric “Jelly on a plate, jelly on a plate, wobble wobble wobble wobble, jelly on a plate.” Not sure if the Wiggles are a big deal over there, but maybe you overheard them singing it on tv once and it stuck? Anyway, wishing you all the best!
Hi Carly!! I have echolalia! But it doesn't have to be involuntary as it is when it's part of a tic! I have autism and so my echolalia is a choice either used for communication purposes or as a stim!!
Thanks you for sharing thus and educating others! I understand the weird vocal tics. My weirdest one is, " That's a shoe" when there is usually no shoe anywhere near me. It is pretty bizarre to have these random sayings you can't get rid of that might insult someone or overall be embrassing. Thanks for sharing your experience!!
If you ever make merch, you gotta have somebody holding a bag of rice and on the back it needs to say "I got rice." Or may a sad face that says "I don't got rice."
I have been watching your vids for a while and the "my buttcheeks are clenching" got me. You're so silly and I love the way you deal with your tics. Your humor is amazing. Keep up the education ❤
i recently developed a tic where i laugh in a very weird way and it is triggered by silence. I am so scared of going back to school and having that tic in the silent classroom. Most of my classmates don't know i have tics because most of them are only triggered by certain noises that usually aren't around at school. It's gonna be so embarassing
I remember hearing a group of kids make fun of a girl who had Tourettes at school, saying she must be faking because one of her tics was barking. At the time I was just so angry, I couldn't believe they were actually laughing about such a debilitating thing. My cousin was diagnosed with Tourettes a few years ago and practically became a hermit, almost never showing up to family events because she was embarrassed about her tics. Those kids' behavior just makes it harder for people with this syndrome, as not only do they have to worry about often painful tics, they also face bullying and harassment because of it. However, my cousin is living her best life and recently got married, just going to show that there is hope.
I don't have tourettes, but I've had many tics in my life. The only vocal tic I had was a little squeak as a kid. It always came with a twitch in my stomach area, which also affected my breathing out. So annoying and exhausting! This shit came back two years ago after many years of not having it. Luckily it went away again after a few weeks. This video was very interesting and funny. I'm really impressed, that you handle your tics so well and talk about them openly even if you trigger yourself - for us!
Wow, I’m so sorry you have to deal with such bothersome tics. I can tell you’re pretty frustrated and embarrassed by them where other TS creators seem to just let them happen and even seem to accept them. Anyway sub’d. God bless.
I hope this isn’t out of line, but I just love you to death! You’re adorable and your personality and confidence are just so perfect! Thank you for doing what you’re doing!
You honestly remind me of me (but I don't have tourettes!) You're very sweet and honest! Thanks for this video ♡ Edit. Your videos are so consistent. Seen a few of these tics in your other videos, though I've only been following for a little while. I dont get why people would want to pretent to have tourettes. The 'ugh' tic is actually quite appropriate while you react to ticsandroses lol. She disgusts me.
yeah, she reminds me of me too. i have anxiety tics, where if i get a surge of anxiety or get close to an attack, the tics will start happening. it's only an occasional behavior, nowhere near tourette's at all, but makes me more empathetic toward people with tourette's. i can imagine having to deal with it all day, every day, and just the thought hurts on some level. i've also been having muscle jerks and spasms lately bc of a new medication. i have to pretend like i don't see people reacting to me. it's embarrassing and can be painful (one jerk made my shoulder pop the other day). the only thing that would make sense is that these people are doing it for attention, possibly bc they want some kind of social validation or as part of a bigger mental health problem (attention-seeking is a common symptom among personality disorders). they either don't think about the harm they're doing or they don't care bc they're getting the views they want. esp those that respond aggressively toward questions like "are you diagnosed?"
It is such an inspiration when someone brings awareness about something they struggle with. I have struggled with psoriasis for years (fortunately it is dormant at the moment) and I remember just being embarrassed if someone noticed it. I am proud of you for putting yourself out there. I can also tell that doing this video must have been super exhausting since it triggered so many tics. Thank you for sacrificing to bring awareness to others.
I so relate to these tics. My first vocal tic was the velociraptor call from Jurassic Park. My most common vocal tic is a dog bark or the f word. People have asked me emphatically if I have a puppy in my backpack. My most recent vocal tic is to say "Turtle!" in a high pitched voice that I playfully used for my stuffed turtle, Myrtle, that turned into a tic. Every time I'm walking along the river with someone and they point out a turtle, it triggers my turtle tic. Kinda cute but also kinda annoying.
I've watched several of your videos now & find them very helpful and inspiring. This is the first time your 'tic' made me laugh. Your explanation of your rice/communists and chess tic made me giggle. I never laughed/giggled at your tics in all your other videos but simply your explanation of your tics here was funny to me. It also truly made me realize that you aren't thinking about it and that it isn't neccesarily related to anything in your life/something that has happened. I totally see and understand ticcing is annoying, sometimes painful and unwanted in your life. I wish you wouldn't have to deal with this. But I want to say thank you, for creating the content you do. You being so open is refreshing and brings people closer together.
I hope this isn’t offensive to say, but while watching these videos I’ve actually felt very…understood? I have diagnosed OCD, and while it’s definitely different from Tourette’s (ocd is characterized by compulsions that are preformed by an individual to keep something bad from happening), I understand what it’s like to have impulses that you can’t control. For instance, I have a compulsion where I feel like I HAVE to bend my neck upwards towards the ceiling until it hurts, and I feel like if I don’t do it something bad will happen. I understand it looks weird and that other people probably wonder why I do it, but I can’t not do it. It’s been really interesting to learn more about Tourette’s syndrome through these videos
You are the first stranger I have told this to...but I have trichotillomania. Unfortunately I have ruined my root tips so much,I cannot grow hair on the top of my head. I have pretty hair (I'm told) down to my waist and wavy. But I will NEVER be able to part my hair in the middle. I have trich in other areas also. Many years since I was 11. Much strength to you. I enjoy educating myself on different dxs. I also take meds.
I don't have tourettes, but I do have autism. And I had for a while I had pretty bad echolalia. It's no joke. You're a sound and you just kind of have to copy it. Two years ago it was pretty moderate but it's pretty much died down now
Not tourettes, but i have a FND and it's somehow comforting to hear you also have an "animal noise" tic- mine is moreso... whimpering/distressed yelping like a dog in pain, though. Love your videos!
Thank you for sharing yourself with the world in an open and informative way. You're not obligated to explain yourself, and the fact that you are willing to do so in the interest of helping others to better understand what you and so many people are dealing with, takes guts.
OMG I WAS RIGHT YOU SAY I GOT RICE y’all i’ve been watching her videos for some weeks now probably more than a month now and so i wanted to know what she says in THAT tic, so i decided to turn on the subtitles of the video that i was watching back then, cause i’m not a native speaker so i struggle sometimes, and well i thought that she says i got rice the first time but in the subtitles it says A GAR ACE or A GAR RACE something like that and i was like ok? mysterious solved ig? but now with this video i can finally say that I WAS RIGHT SHE SAYS I . G O T . R I C E .
I'm on the autism spectrum and I have hella echolalia 😂 I will repeat the dumbest stuff and having to mask gets so stressful sometimes! I also have some vocal tics kind of as a response if I hear something that makes my brain think of it? Idk if that makes sense lol but the main vocal tic I have is a Wii sports golf meme where the announcer says "nice c*ck" 😂😂 this one is SO fun to mask lmao
"Jelly on a plate" is part of a famous children's song in my country (UK). I think the only lyrics are "Wibble wobble, wibble wobble, jelly on a plate" over and over lol. Your British numbers are cute :) hope that's okay to say. I'm autistic and I also get strong echolalia urges, but I'm able to supress them whenever I need to. I repeat my own name a lot when I'm alone, and also just the noise "mmm" like I'm agreeing with something, but there's nothing to agree to. Love your channel :)
I am fairly sure that ‘jelly on a plate’ is a nursery rhyme. I have vague memories of my parents saying this rhyme to me when I was a toddler (I live in Ireland and my dad was British…. Don’t know if it is a local thing or not) the rhyme was: ‘Jelly on a plate, Jelly on a plate, Wiggly wobbly, Wiggly wobbly, Jelly on a plate’ No idea if that is where you know it from but it is what immediately came to mind for me.
The lapdog bark was probably my first vocal tic as well lol Every once in a while it comes back but doesn't stay long. My main tic is a similar high pitch tic
This is so fascinating. What a very strange condition to have. Thank you for the educational aspect of your videos, especially as you made yourself very uncomfortable and triggered to make the video for us! Lots of love to you!
I felt bad for laughing at your "the communists are coming" tic mostly because of how you explained it, "this is definitely NOT what i'm thinking!" Thank you for talking about your tics even though it very clearly triggered you the more you talked about them. you're a gem
Oh wow!! So many comments on this video! & with good reason. After watching this, all I want to say is “Bless your heart” & in the most sincere way. You were really struggling by the end of the video & they started firing up. You’re doing great though & it’s a wonderful thing you’re doing. How anyone could accuse you of being fake is beyond me. I love your personality & energy you project on here. I must add that I’ve watch all of your videos (just to kind of catch up & support your channel) & there’s one where you mention that the I Gor Rice stemmed from an former boyfriend who said that phrase in a certain way & it stuck with you & became a tic. Remember that? Anyway, keep up the amazing job with your videos.
Thank you for this video. I have actually been wanting for a way to ask if "I got rice" was itself a tic or if it was a reaction to another tic. I overthink, and and spend a good deal of time in hospitals, so I assumed maybe RICE was an acronym related to the grimace/disgust tic you also have. Which now I know: some tics may seem linked, but in reality are just happening at roughly the same time because ticcing can trigger more ticcing. Also, you have said some of your tics are painful - may I ask if the grimace is one of them?
I love this, just the fact that your addressing that ticks are not voluntary. You don’t want to do them. But that’s not something that others need to find funny. Recently joined your channel. Keep going! Your amazing!!
Wow, thank you so much for making all these amazing videos! I like really recently discovered your channel after I got so curious about the people faking disorders on tiktok..THING- and I stumbled across your video on the topic- I was actually really curious about the "I got rice" tic you had lol and literally the only thing that popped into my mind whenever you said it was: "You may not have rice but..do you like rice?" Idk- Also as a person into history, "The Communists are Coming" just sends me-
I don’t have Tourette’s but I do have three kind of tics. My most common is that the upper outer corner of my left eye will twitch randomly. Have no idea why and I find it annoying unless the stats align and and it happens after someone says something ridiculous or annoying because then I can tell them they made my eye twitch. My second most common is that I make a double clicking sound but that one is most likely due to anxiety because I mainly do it when I’m anxious and half the time I don’t even notice. My least common is a mild jerk of my torso to the right. It’s so slight that it doesn’t add my driving and you wouldn’t notice unless you’re watching for it. I can’t imagine having multiple tics that actually affected me so I can’t fully understand what you go through but the torso one scared me the first time it happened because I didn’t do it intentionally. I respect you for being so open about your life and this might seem insensitive but I really like how you say hi and I’ve got rice, it actually sounds familiar like I’ve heard the rice one before somewhere. I’m not saying this in a “oh that’s so funny” way and I hope you don’t take it that way. It’s just bringing up a sense of familiarity but I’m not sure where from.
I randomly got recommended a video of yours recently, and I’ve learned so much from what I’ve watched so far. I’ve got to admit the “I do not have rice” made me laugh out loud. Thanks for sharing your experience.
I knew nothing about Tourettes. I was curious after watching a special on Prager U. I'm glad I found you. You have explained this very well. The examples you've shown help me to understand the behaviors that I've seen before, but never quite knew what to think. I would never belittle or act mean toward someone with a tic, but I understand more now. Thank you!
I got rice shirts please lol so random for ppl who don’t know about your channel (they may even ask about the random sentence on our shirt) and give us a chance to talk about your channel
I have high functioning autism, but hardly felt high functioning when I was young because I would echo on a daily basis. It could be something I heard or said once, but then became a compulsion I had to say at moments of high stress and anxiety- I.e. every morning before school- grade A honor roll student yet I couldn’t handle the sensory and social aspects so in these hour or two long overloads/meltdowns Id have these “ritual” like things I had to say counting to 13 and then walking away- was one of them. Weird I know haha. Another was blasphemy which I absolutely hated and was terrified of because I grew up in a conservative Christian home and truly adored Jesus, so I was convinced I was going to hell on a daily basis. I would also echo and mirror any friends I hung out with, my NT sister truly hated this one. As an adult these are all distant memories but I can nevertheless relate with saying things you have to say but have no clue why or are even ashamed of!
Thank you for sharing this info with us even at the expense of triggering yourself. Your videos are just so educational and I appreciate it so much! God bless!
Found your channel today and I find it super informative and interesting. I think I know where your jelly tic could come from, btw: There is a song called "Jelly on a Plate" by a band called the Wiggles. And it sounds exactly like you described.
Interesting!! For me it’s MUCH harder to suppress my motor tics than vocal tics! Tbh, i can’t 100% not vocal tic, but i can kinda redirect into a whisper or coughing sound
it's nice to hear your vocal tics come from nothing.thank you for sharing, i thought i was alone. i just have ADHD, i don't have tourettes.mine came from nothing as i know???and i felt weird about them.my long-time one was "let's get married" and my current one is "kill yourself" none of these display what i truly think or feel at all!!!! not even a bit!!!!! i've not felt either of those things about myself or others, in any way, i hate it. and it's not prominent in my head,, but it does happen, when i'm having troubles with my symptoms, which is usually at certain points at work through the day, or when i'm alone in bed trying to sleep.or if i wake up in the night and have racing thoughts.
I feel like you can tell when the vocal tics are genuine because from you they are kind of throaty and monotone - you can tell when you talk about it vs a tic.
heya i understand you on these like it feels like bubbling and the overcoming senstion i know this very well becuse i always hold my tics in during school becuase people think im faking but some tics are just too over powerind like ill kick my leg and i say oof alot but not like the roblox one its more like a quitetic kinda and its really embarrissing for me to have tics in class i wish i could yknow not supress them but im just too scared of being judged expetally people my age faking tourrettes and tic online (im 14 btw) and when i used to let out my tics people woukd judge me and give me weird looks. alsomy weirdest vocal tics are "i f*cked your mom do do do do" i like say it in a singing kinda way and "eggs" and "whos a pretty bird"
Hey. I’m from the UK so I’m not sure if you’ve ever heard this nursery rhyme song in the US but there is actually a nursery rhyme song that says jelly on a plate, wibble wobble jelly on a plate!. I remember hearing it when I was in nursery, I think it’s called Kindergarten in America. So maybe you heard it in the past and that’s where it’s come from. Like I said in the comments on a different video, I had a brain injury 10 years ago where the Axons in my brain were damaged and I still have to see a neurologist and neuropsychologist as I still suffer extreme symptoms. But what’s so odd is, I’ve never watched a RUclips video of someone with tics before and I came across you as you are an inspiration and a amazing person but since watching a few of your videos I now feel mentally foggy and exhausted. Like when you drink alcohol and it feels like a dizzy build up of pressure in your brain. So that’s a new one for me!. I’ve never experienced this before. Another symptom of my brain injury is, it’s like your brain goes to sleep, but you can still see everything. It’s so weird. And I’ve not experienced that in 2 years but after watching your videos it’s happening. But I can’t go to sleep as I need to go and pick my kids up from school soon 😅. So I’m now wondering if there’s some kind of neurological link. Like seeing others who are suffering from tics affects me neurologically. In the last 6 months I’ve started to have brain seizures at night and I remember watching a documentary on tv last year of a woman in the uk who was in her 40’s and suffered similar symptoms to me and she actually developed turrets syndrome. I was pretty shocked because I didn’t know you could develop it once you’re an adult. It’s obviously a very tiring thing though I can see. But well done for educating others with your videos. All the best
Man. Idk why people wish they have tourettes and use it to fake for attention. Its seems very annoying to have to do that constantly (my heart goes out to you! I just discovered your channel and ive been very interested in learning about this disorder, you seem like such an amazing person!) Also the "ugh" tic seems the most annoying since you scrunch up and such. I feel like itd make your neck and mouth sore from the muscle tension.
This was kind of interesting to listen to because I have something sort of similar that happens to me even though I do not have Tourette’s. I’m on the autism spectrum as well as having pretty severe ADHD and I go through periods where I get “urges” to do things similar to the way you were describing it where it’s just something you have to do even if it’s not pleasant. And mine are not all the time one of them happens only when I’m anxious but I’ll flick my thumb against my pointer finger pretty rapidly…. I also have this feeling sometimes that there’s a lot of pressure behind my eyes and I feel the urge to squeeze them or press them to make the feeling go away. And then there is the worst urge I get (that only happens every three months or so) is this feeling like I can’t get a deep enough breath and so I have to take these deep breathes that I try pulling in in different ways in order to satisfy the feeling in my lungs that I actually took a deep breath….differently to the finger flicking thing this one actually causes a great deal of anxiety and stress and when I start doing it it lasts for weeks and is nearly every 10 seconds that I have to do it…plus my chest ends up feeling really bruised the entire period of time because I’m just constantly forcing in these weird breaths. Anyway…like I said i don’t have Tourette’s but I am neurologically different so it kind of makes me wonder how many overlaps there are. The more vids of yours I watch the more I find myself relating to your experiences on deeper levels. Hmm. Cool.
Omfg, i also have the eye thing, i press and squeeze my eyes alot for no reason all the time, it never stopped 😂 it stopped recently this year and i am so happy, its been annoying my eyes alot
Hello ! I am leaving a comment here since your last video has the comments disabled (i can understand why) I don't have any diagnosed disorders but I sympathize with all the hurtfull things and difficulties having disorder imply. I think you are very brave to do what you do, has I have noticed that you can be more easily confronted with idiots. To be honest, I am very surprised that people believed for so long that Tic & roses had really Tourette syndrome. It was so fake ! And I find that most of the time, you don't need much time to recognise fake people. Thoses people are disgusting and should be punished severely for lying about serious conditions that can result from traumatic experiences (like DID), spreading falses informations about disorders and defamation of the braves people like you that work hard to make society change its perception on real affected people. I wish you can find more suportives people that idiots and haters who must live a quite pitifull life if they feel proud to make feel alone. I hope you managed to sleep well in the end
Love this and yes “jelly on a plate” is a thing. It’s a little rhyme “jelly on a plate. Jelly on a plate. Wibble wobble, wibble wobble, jelly on a plate”
Hi! I'm new to your channel, and I am so so sorry if this sounds rude/offensive, but I see your "eugh" tic a lot, (especially in the videos where you react to ticsandroses) does that hurt when you do it? I know it's like a vocal tic, but like does it cause any pain?
Thanks for showing that tics are not something desirable. I have tics related to my fibromyalgia. It’s hard just to type this message as my fingers tic all over the place. My scariest thing about tics came a few months back when I was removing a pot of pasta from the stove.. my hand ticked and I almost dropped the pot all over me. Lesson learned. Now I just remove the pasta and wait for the water to cool.
So my kid once made a random ticsound in class once and got called out by his teach. And my kid was like , what did i do? His teach forgot about his TS and said , you werent quiet as I told you to be.. and my kid askes, ow, wasnt I? Teach : so you make sounds without yourself realising? My kid: uh yeah kindoff, I have Tourettes remember?
Is it ok to ask someone with Tourette’s how best to engage? I’d rather acknowledge and then learn the appropriate way to respond (or not respond) than either pretend I know how to, or pretend it’s not there.
TW for the Jelly tick. Idk if anyone else commented, but ‘jelly on a plate’ is a kids song/rhyme thing. It’s repeated a few times then says ‘wibble wobble, wibble wobble, jelly on a plate. Thanks for sharing, it seemed like a difficult video. Hope the rest of your day wasn’t affected.
I don't have tourettes, however, sometimes I find myself mimicking certain words that people say. Sometimes I don't even realise I'm doing it. Especially if they have an accent. I've done it with family, friends and even at work. So I do understand the copying what someone says...
Ahhh I get the British accent one 😅 "what are you doing" in an accent and im just like?? Who and where did i hear this that I latched onto it 😅 it's not a weird one, but I say bitch too often. Like the urge is constantly in my throat and it's either by itself, or throws itself into the conversation and I'm always Embarrassed bc like. I'm not calling you a b*tch, it's just my TS 😔 im glad you share your experiences and educational as well. I've wanted to myself but with like you said, all the tiktok stuff, I'm not really comfortable putting myself out there anymore since I don't have a platform and I don't want to deal with others thinking I'm faking bc they just assume everyone on tiktok is a faker. Even though those in the community do recognize and follow my content 😅 I love to see TS creators thrive bc we deserve to live our normal life too :)
Would you say that holding in a tic is somehow like holding in a hiccup? Im just trying to get an understanding of what you feel like when you suppress them ? Of course holding in a tic is far from it but it’s good to educate myself 😊🙃
I don't have tics, but sometimes brain comes up with really weird verbal stims that make no sense but just feel nice to say (and occasionally it becomes almost a compulsion to repeat it for like a week because it'll be the stim I'm craving that alleviates sensory overload) so like... it makes sense that brain just comes up with random phrases as tics too. -shrug-
Jelly on a plate is a really common rhyme young children and upwards say and joke about with here in the UK (England specifically). I think in the US you call it Jell-o? But that’s what we call jelly and it goes ‘Jelly on a plate, jelly on a plate, wibble wobble, wibble wobble, jelly on a plate’. I swear we ALL repeat it when we gather and have jelly for dessert no matter how old we get, it’s catchy to all of us and we don’t even all have tourettes so I can totally see why this can end up as a long lasting tic!
Let me preface this by saying I do NOT have Tourette's. That being said, I am Autistic and a lot of the times seeing tics will trigger me to stim. When I'm super stressed out I'll repeat "Do you wanna cookie" which is... annoying. Can anyone explain the main differences between tics and stimming? Also Autistic folks can often have echolalia too.
In my best understanding, tics are completely involuntary. You can try to withhold them, but it won't last long and can hurt. Think of stimming as scratching an itchy spot, while a tic is sneezing. I don't have anything diagnosed (despite my own inklings of some sort of neurodivergency) but I do have tics and apparently stim a lot. 🤷♀️ Like if I get over-stimulated, a stim I have is aggressively flapping my hands/wrists. While it can be compulsive and I don't realize I'm doing it, I could theoretically stop it the moment I realize. But, with a tic, it is a compulsive movement my body does even if I dont want it to or am trying to stop it. Saying "boom" is a tic I have a lot, some nerve in my body making me often scare those around me with the mimiking of a bomb in a high-pitch tone. 🤣😅 I can't prevent it from happening and I probably should never go to an airport because of it.
Is it possible for this condition to diminish over time or disappear completely? When I was a younger child up to about the age of ten maybe, I would squeak from the back of my throat among a few other subtle things like clemching my feet in my shoes. That's actually why I was reading about the condition today, out of curiosity. I am 29 now and haven't experienced anything in like two decades. It has been too long for me to recall exactly how it felt but I do remember it was like more than a habit, but maybe just a nervous thing or somethimg. Jaja. Interesting condition. Thanks for sharing.
Jelly on a Plate is in several kids songs as far as I can tell. In the Wiggles one he actually says "jelly-on-a-plate" fast and similar to the way you say it: ruclips.net/video/GcV-Btg1o-g/видео.html
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“I do NOT have rice…half the time” that was so cute. Made me laugh. You’re sweet. My daughter has Tourette’s. She is about to graduate high school. She is a very introverted child and that had been an added challenge when she has to “blink on a face” (stares and blinks hard- several times-) and someone thinks she staring at them. Among other tics. The last thing she wants is attention and I think that’s probably the case for most people with Tourette’s. Certainly not attention for their tics. I will never forget her first tics when she was five. Smelling people. Yes smelling people (teacher called me about that one) and a complex one where she would throw her arm out and jerk it back then smell her pinky. And THEN click her tongue and flick her finger. Lasted about a year. The SCARIEST one was she would have to reach out and touch things she knew were hot. I had to keep her away from the kitchen when cooking. She would just reach out and tap the stove. Thankfully we were able to prevent injury and this only lasted 6 months. I’m going to share your channel with her. Thanks for sharing!
My niece was just diagnosed. She is also a senior in high school … she also has depression and anxiety so I am worried that this will be too much for her.
It’s hard
Thank
@@rachel-in-the-208 I have always told my daughter it’s something that makes her unique. Since day one of diagnosis. And it gives her an ability to relate to others with unique issues. Without it she wouldn’t be able to put herself in their shoes. She is a more enriched empathic person because of her Tourettes. We have always chosen to try to be thankful for that gift. To this day she says she doesn’t think she would magically get rid of it if that were possible. It’s a part of who she is. And she is wonderful.
@@erintraicene7422 My niece has been through A LOT - including a very serious concussion when she was younger. She may may also have ADHD and mild autism (and anxiety and depression) Also, she had to stay home and homeschool most of her senior year because the teachers said her condition was too “disruptive” … so it’s just a lot!! She is coping the best she can.
I am so glad that your daughter is thriving though! That is wonderful 💕
Oo, i dont have tourettes but i am diagnosed with autism, i used to blink very very hard for no reason several times all the time, it has recently stopped this year and i am very happy, it fluctuates alot :) but ppl used to ask why i blinked so hard all the time. i had no idea why i did it. It was very uncomfortable!
I love your “I do NOT have rice” and “Don’t have jelly on a plate, don’t know what that is” 😂 So glad I found your channel! Thank you for educating us!
I’m glad you don’t hate your cute “hi” tic. Even out of nowhere, that super friendly tone makes me feel happy for whatever reason.
Jelly on a Plate is a kid’s song haha I used to play it all the time when I taught English. Maybe you’ve heard the song in passing and it stuck. Anyway, I’m learning so much from your channel. Thank you.
“Ugh my butt cheeks are clenching”
Im so sorry but i burst out laughing 😂❤
Aw, I felt bad at the end when the tics started compounding and you looked frustrated :( but thank you for this video! It's interesting to learn about where some of them come from and the forms they take!
I’m so glad you talk about how it can hurt or be very uncomfortable if you need to tic or try to suppress it.
So interesting! I do not have Tourettes, and I'll be totally honest, I have found myself in the past thinking that vocal tics are mostly what the person is actually thinking.
Thanks for educating me on this, showing that it's most likely not the case at all!
Fascinating. But I feel for people that have painful movements as tics. I can't imagine the pain ☹️
The "I got rice" or "ugh" are super satisfying to hear for some reason, I repeat them in my head, they're like sensory some how
I've been going back through your videos after finding your response to Tics and Roses. It's cool to see how much your channel has progressed, you're acing it.
Thank you!! 🥰
Thank you for taking the time to share your experience and educate people in such an open and engaging way. Re: Jelly On A Plate, there’s a sweet, nonsense kids song with that as a lyric “Jelly on a plate, jelly on a plate, wobble wobble wobble wobble, jelly on a plate.” Not sure if the Wiggles are a big deal over there, but maybe you overheard them singing it on tv once and it stuck? Anyway, wishing you all the best!
If she's American or Canadian like I think she is, the Wiggles would have been popular on TV when she was small!
@@Dr.PicklePh.D.She's Canadian.
The random “my butt cheeks are tensing” got me 😭😭💀
Hi Carly!!
I have echolalia! But it doesn't have to be involuntary as it is when it's part of a tic!
I have autism and so my echolalia is a choice either used for communication purposes or as a stim!!
Thanks you for sharing thus and educating others! I understand the weird vocal tics. My weirdest one is, " That's a shoe" when there is usually no shoe anywhere near me. It is pretty bizarre to have these random sayings you can't get rid of that might insult someone or overall be embrassing. Thanks for sharing your experience!!
I know, some of my tics are sooo embarrassing or mean like "you're a loser"
@@artsy.humanbeing2973 Oh wow! I understand why that I embarrassing or can insult others. Maybe send off a bad impression as well.
If you ever make merch, you gotta have somebody holding a bag of rice and on the back it needs to say "I got rice."
Or may a sad face that says "I don't got rice."
Good idea!! Haha 😂
I’m autistic and I use echolalia for many different stims.
I’ve started saying “I got rice” as stim after watching a bunch of your videos 😅😅😅
I have been watching your vids for a while and the "my buttcheeks are clenching" got me. You're so silly and I love the way you deal with your tics. Your humor is amazing. Keep up the education ❤
i recently developed a tic where i laugh in a very weird way and it is triggered by silence. I am so scared of going back to school and having that tic in the silent classroom. Most of my classmates don't know i have tics because most of them are only triggered by certain noises that usually aren't around at school. It's gonna be so embarassing
I remember hearing a group of kids make fun of a girl who had Tourettes at school, saying she must be faking because one of her tics was barking. At the time I was just so angry, I couldn't believe they were actually laughing about such a debilitating thing. My cousin was diagnosed with Tourettes a few years ago and practically became a hermit, almost never showing up to family events because she was embarrassed about her tics. Those kids' behavior just makes it harder for people with this syndrome, as not only do they have to worry about often painful tics, they also face bullying and harassment because of it. However, my cousin is living her best life and recently got married, just going to show that there is hope.
You're so beautiful!! Thank you for educating those who will listen. You're such a strong amazing woman.
I don't have tourettes, but I've had many tics in my life. The only vocal tic I had was a little squeak as a kid. It always came with a twitch in my stomach area, which also affected my breathing out. So annoying and exhausting! This shit came back two years ago after many years of not having it. Luckily it went away again after a few weeks.
This video was very interesting and funny. I'm really impressed, that you handle your tics so well and talk about them openly even if you trigger yourself - for us!
💜💜💜
Gyy
Wow, I’m so sorry you have to deal with such bothersome tics. I can tell you’re pretty frustrated and embarrassed by them where other TS creators seem to just let them happen and even seem to accept them. Anyway sub’d. God bless.
My boyfriend has Tourette's and his vocal tics are clearing his throat and wheezing. He has been made fun of for it "sounding like a dog dying" :(
I hope this isn’t out of line, but I just love you to death! You’re adorable and your personality and confidence are just so perfect! Thank you for doing what you’re doing!
You honestly remind me of me (but I don't have tourettes!) You're very sweet and honest! Thanks for this video ♡
Edit. Your videos are so consistent. Seen a few of these tics in your other videos, though I've only been following for a little while. I dont get why people would want to pretent to have tourettes. The 'ugh' tic is actually quite appropriate while you react to ticsandroses lol. She disgusts me.
yeah, she reminds me of me too. i have anxiety tics, where if i get a surge of anxiety or get close to an attack, the tics will start happening. it's only an occasional behavior, nowhere near tourette's at all, but makes me more empathetic toward people with tourette's. i can imagine having to deal with it all day, every day, and just the thought hurts on some level. i've also been having muscle jerks and spasms lately bc of a new medication. i have to pretend like i don't see people reacting to me. it's embarrassing and can be painful (one jerk made my shoulder pop the other day). the only thing that would make sense is that these people are doing it for attention, possibly bc they want some kind of social validation or as part of a bigger mental health problem (attention-seeking is a common symptom among personality disorders). they either don't think about the harm they're doing or they don't care bc they're getting the views they want. esp those that respond aggressively toward questions like "are you diagnosed?"
It is such an inspiration when someone brings awareness about something they struggle with. I have struggled with psoriasis for years (fortunately it is dormant at the moment) and I remember just being embarrassed if someone noticed it. I am proud of you for putting yourself out there. I can also tell that doing this video must have been super exhausting since it triggered so many tics. Thank you for sacrificing to bring awareness to others.
I am so sorry you have to deal with this :/ I really am just so sorry, I could see you getting triggered and I almost broke down. I’m so sorry :/
I so relate to these tics. My first vocal tic was the velociraptor call from Jurassic Park. My most common vocal tic is a dog bark or the f word. People have asked me emphatically if I have a puppy in my backpack. My most recent vocal tic is to say "Turtle!" in a high pitched voice that I playfully used for my stuffed turtle, Myrtle, that turned into a tic. Every time I'm walking along the river with someone and they point out a turtle, it triggers my turtle tic. Kinda cute but also kinda annoying.
I've watched several of your videos now & find them very helpful and inspiring. This is the first time your 'tic' made me laugh. Your explanation of your rice/communists and chess tic made me giggle. I never laughed/giggled at your tics in all your other videos but simply your explanation of your tics here was funny to me. It also truly made me realize that you aren't thinking about it and that it isn't neccesarily related to anything in your life/something that has happened. I totally see and understand ticcing is annoying, sometimes painful and unwanted in your life. I wish you wouldn't have to deal with this. But I want to say thank you, for creating the content you do. You being so open is refreshing and brings people closer together.
I hope this isn’t offensive to say, but while watching these videos I’ve actually felt very…understood? I have diagnosed OCD, and while it’s definitely different from Tourette’s (ocd is characterized by compulsions that are preformed by an individual to keep something bad from happening), I understand what it’s like to have impulses that you can’t control. For instance, I have a compulsion where I feel like I HAVE to bend my neck upwards towards the ceiling until it hurts, and I feel like if I don’t do it something bad will happen. I understand it looks weird and that other people probably wonder why I do it, but I can’t not do it. It’s been really interesting to learn more about Tourette’s syndrome through these videos
I’m really glad you felt understood 💜
My most common vocal tics at the moment are "It's behind you!" "JESUS" and "ee-oo"
You are the first stranger I have told this to...but I have trichotillomania. Unfortunately I have ruined my root tips so much,I cannot grow hair on the top of my head. I have pretty hair (I'm told) down to my waist and wavy. But I will NEVER be able to part my hair in the middle.
I have trich in other areas also. Many years since I was 11. Much strength to you. I enjoy educating myself on different dxs. I also take meds.
I don't have tourettes, but I do have autism. And I had for a while I had pretty bad echolalia. It's no joke. You're a sound and you just kind of have to copy it. Two years ago it was pretty moderate but it's pretty much died down now
Not tourettes, but i have a FND and it's somehow comforting to hear you also have an "animal noise" tic- mine is moreso... whimpering/distressed yelping like a dog in pain, though. Love your videos!
I have anxiety tics, (not Tourettes) and they are really painful sometimes, I don’t understand people who think Tourettes or other tics are funny.
Thank you for sharing yourself with the world in an open and informative way. You're not obligated to explain yourself, and the fact that you are willing to do so in the interest of helping others to better understand what you and so many people are dealing with, takes guts.
i think you’re really pretty and i love your videos, they’re so educational. thank you for sharing your story.
OMG I WAS RIGHT YOU SAY I GOT RICE
y’all i’ve been watching her videos for some weeks now probably more than a month now and so i wanted to know what she says in THAT tic, so i decided to turn on the subtitles of the video that i was watching back then, cause i’m not a native speaker so i struggle sometimes, and well i thought that she says i got rice the first time but in the subtitles it says A GAR ACE or A GAR RACE something like that and i was like ok? mysterious solved ig? but now with this video i can finally say that I WAS RIGHT SHE SAYS
I . G O T . R I C E .
“I never wanna play chess, it’s not something I want” lol you’re absolutely great dude
I'm on the autism spectrum and I have hella echolalia 😂 I will repeat the dumbest stuff and having to mask gets so stressful sometimes! I also have some vocal tics kind of as a response if I hear something that makes my brain think of it? Idk if that makes sense lol but the main vocal tic I have is a Wii sports golf meme where the announcer says "nice c*ck" 😂😂 this one is SO fun to mask lmao
"Jelly on a plate" is part of a famous children's song in my country (UK). I think the only lyrics are "Wibble wobble, wibble wobble, jelly on a plate" over and over lol.
Your British numbers are cute :) hope that's okay to say.
I'm autistic and I also get strong echolalia urges, but I'm able to supress them whenever I need to. I repeat my own name a lot when I'm alone, and also just the noise "mmm" like I'm agreeing with something, but there's nothing to agree to.
Love your channel :)
I am fairly sure that ‘jelly on a plate’ is a nursery rhyme. I have vague memories of my parents saying this rhyme to me when I was a toddler (I live in Ireland and my dad was British…. Don’t know if it is a local thing or not) the rhyme was:
‘Jelly on a plate,
Jelly on a plate,
Wiggly wobbly,
Wiggly wobbly,
Jelly on a plate’
No idea if that is where you know it from but it is what immediately came to mind for me.
I genuily feel so bad for you because you have to deal with people faking tourette's
hi, I really enjoy your videos. I have learned a lot from you so far and love your cheery attitude
The lapdog bark was probably my first vocal tic as well lol Every once in a while it comes back but doesn't stay long. My main tic is a similar high pitch tic
Ugh I feel ya! When the barking tic comes back I always get so annoyed 😂
This is so fascinating. What a very strange condition to have. Thank you for the educational aspect of your videos, especially as you made yourself very uncomfortable and triggered to make the video for us! Lots of love to you!
I felt bad for laughing at your "the communists are coming" tic mostly because of how you explained it, "this is definitely NOT what i'm thinking!" Thank you for talking about your tics even though it very clearly triggered you the more you talked about them. you're a gem
Oh wow!! So many comments on this video! & with good reason. After watching this, all I want to say is “Bless your heart” & in the most sincere way. You were really struggling by the end of the video & they started firing up. You’re doing great though & it’s a wonderful thing you’re doing. How anyone could accuse you of being fake is beyond me. I love your personality & energy you project on here. I must add that I’ve watch all of your videos (just to kind of catch up & support your channel) & there’s one where you mention that the I Gor Rice stemmed from an former boyfriend who said that phrase in a certain way & it stuck with you & became a tic. Remember that? Anyway, keep up the amazing job with your videos.
I've watched a couple of your videos and my first thought it "holy cow, how does she choose such PERFECT LIP SHADES!!" Love your makeup!
Thank you!! I love lipstick hahaha 🤣
Thank you for this video. I have actually been wanting for a way to ask if "I got rice" was itself a tic or if it was a reaction to another tic. I overthink, and and spend a good deal of time in hospitals, so I assumed maybe RICE was an acronym related to the grimace/disgust tic you also have. Which now I know: some tics may seem linked, but in reality are just happening at roughly the same time because ticcing can trigger more ticcing.
Also, you have said some of your tics are painful - may I ask if the grimace is one of them?
I love this, just the fact that your addressing that ticks are not voluntary. You don’t want to do them. But that’s not something that others need to find funny. Recently joined your channel. Keep going! Your amazing!!
Omg “cheesus” is so cute haha
Wow, thank you so much for making all these amazing videos! I like really recently discovered your channel after I got so curious about the people faking disorders on tiktok..THING- and I stumbled across your video on the topic-
I was actually really curious about the "I got rice" tic you had lol and literally the only thing that popped into my mind whenever you said it was: "You may not have rice but..do you like rice?" Idk-
Also as a person into history, "The Communists are Coming" just sends me-
I don’t have Tourette’s but I do have three kind of tics. My most common is that the upper outer corner of my left eye will twitch randomly. Have no idea why and I find it annoying unless the stats align and and it happens after someone says something ridiculous or annoying because then I can tell them they made my eye twitch.
My second most common is that I make a double clicking sound but that one is most likely due to anxiety because I mainly do it when I’m anxious and half the time I don’t even notice.
My least common is a mild jerk of my torso to the right. It’s so slight that it doesn’t add my driving and you wouldn’t notice unless you’re watching for it.
I can’t imagine having multiple tics that actually affected me so I can’t fully understand what you go through but the torso one scared me the first time it happened because I didn’t do it intentionally.
I respect you for being so open about your life and this might seem insensitive but I really like how you say hi and I’ve got rice, it actually sounds familiar like I’ve heard the rice one before somewhere. I’m not saying this in a “oh that’s so funny” way and I hope you don’t take it that way. It’s just bringing up a sense of familiarity but I’m not sure where from.
The way you explain things is so cute and funny (in a good way) ❤️
Oh apparently there’s this weird children’s song from 2014 on YT referencing “Jelly on a plate”
I randomly got recommended a video of yours recently, and I’ve learned so much from what I’ve watched so far. I’ve got to admit the “I do not have rice” made me laugh out loud. Thanks for sharing your experience.
I knew nothing about Tourettes. I was curious after watching a special on Prager U. I'm glad I found you. You have explained this very well. The examples you've shown help me to understand the behaviors that I've seen before, but never quite knew what to think. I would never belittle or act mean toward someone with a tic, but I understand more now. Thank you!
Jelly on a plate is a kids nursery rhyme!
I got rice shirts please lol so random for ppl who don’t know about your channel (they may even ask about the random sentence on our shirt) and give us a chance to talk about your channel
I have high functioning autism, but hardly felt high functioning when I was young because I would echo on a daily basis. It could be something I heard or said once, but then became a compulsion I had to say at moments of high stress and anxiety- I.e. every morning before school- grade A honor roll student yet I couldn’t handle the sensory and social aspects so in these hour or two long overloads/meltdowns Id have these “ritual” like things I had to say counting to 13 and then walking away- was one of them. Weird I know haha. Another was blasphemy which I absolutely hated and was terrified of because I grew up in a conservative Christian home and truly adored Jesus, so I was convinced I was going to hell on a daily basis. I would also echo and mirror any friends I hung out with, my NT sister truly hated this one. As an adult these are all distant memories but I can nevertheless relate with saying things you have to say but have no clue why or are even ashamed of!
Thank you for sharing this info with us even at the expense of triggering yourself. Your videos are just so educational and I appreciate it so much! God bless!
Found your channel today and I find it super informative and interesting. I think I know where your jelly tic could come from, btw: There is a song called "Jelly on a Plate" by a band called the Wiggles. And it sounds exactly like you described.
Interesting!! For me it’s MUCH harder to suppress my motor tics than vocal tics! Tbh, i can’t 100% not vocal tic, but i can kinda redirect into a whisper or coughing sound
it's nice to hear your vocal tics come from nothing.thank you for sharing, i thought i was alone. i just have ADHD, i don't have tourettes.mine came from nothing as i know???and i felt weird about them.my long-time one was "let's get married" and my current one is "kill yourself" none of these display what i truly think or feel at all!!!! not even a bit!!!!! i've not felt either of those things about myself or others, in any way, i hate it. and it's not prominent in my head,, but it does happen, when i'm having troubles with my symptoms, which is usually at certain points at work through the day, or when i'm alone in bed trying to sleep.or if i wake up in the night and have racing thoughts.
Thanks, Carly! Learning so much from your videos!
I feel like you can tell when the vocal tics are genuine because from you they are kind of throaty and monotone - you can tell when you talk about it vs a tic.
heya i understand you on these like it feels like bubbling and the overcoming senstion i know this very well becuse i always hold my tics in during school becuase people think im faking but some tics are just too over powerind like ill kick my leg and i say oof alot but not like the roblox one its more like a quitetic kinda and its really embarrissing for me to have tics in class i wish i could yknow not supress them but im just too scared of being judged expetally people my age faking tourrettes and tic online (im 14 btw) and when i used to let out my tics people woukd judge me and give me weird looks. alsomy weirdest vocal tics are "i f*cked your mom do do do do" i like say it in a singing kinda way and "eggs" and "whos a pretty bird"
Hey. I’m from the UK so I’m not sure if you’ve ever heard this nursery rhyme song in the US but there is actually a nursery rhyme song that says jelly on a plate, wibble wobble jelly on a plate!. I remember hearing it when I was in nursery, I think it’s called Kindergarten in America. So maybe you heard it in the past and that’s where it’s come from. Like I said in the comments on a different video, I had a brain injury 10 years ago where the Axons in my brain were damaged and I still have to see a neurologist and neuropsychologist as I still suffer extreme symptoms. But what’s so odd is, I’ve never watched a RUclips video of someone with tics before and I came across you as you are an inspiration and a amazing person but since watching a few of your videos I now feel mentally foggy and exhausted. Like when you drink alcohol and it feels like a dizzy build up of pressure in your brain. So that’s a new one for me!. I’ve never experienced this before. Another symptom of my brain injury is, it’s like your brain goes to sleep, but you can still see everything. It’s so weird. And I’ve not experienced that in 2 years but after watching your videos it’s happening. But I can’t go to sleep as I need to go and pick my kids up from school soon 😅. So I’m now wondering if there’s some kind of neurological link. Like seeing others who are suffering from tics affects me neurologically. In the last 6 months I’ve started to have brain seizures at night and I remember watching a documentary on tv last year of a woman in the uk who was in her 40’s and suffered similar symptoms to me and she actually developed turrets syndrome. I was pretty shocked because I didn’t know you could develop it once you’re an adult. It’s obviously a very tiring thing though I can see. But well done for educating others with your videos. All the best
I hate when echolalia kicks in when I think about it and then I repeat what people say and they think I’m mocking them😀
Man. Idk why people wish they have tourettes and use it to fake for attention. Its seems very annoying to have to do that constantly (my heart goes out to you! I just discovered your channel and ive been very interested in learning about this disorder, you seem like such an amazing person!)
Also the "ugh" tic seems the most annoying since you scrunch up and such. I feel like itd make your neck and mouth sore from the muscle tension.
thank you so much for this! i’m sorry about you having to trigger yourself!
This was kind of interesting to listen to because I have something sort of similar that happens to me even though I do not have Tourette’s. I’m on the autism spectrum as well as having pretty severe ADHD and I go through periods where I get “urges” to do things similar to the way you were describing it where it’s just something you have to do even if it’s not pleasant. And mine are not all the time one of them happens only when I’m anxious but I’ll flick my thumb against my pointer finger pretty rapidly…. I also have this feeling sometimes that there’s a lot of pressure behind my eyes and I feel the urge to squeeze them or press them to make the feeling go away. And then there is the worst urge I get (that only happens every three months or so) is this feeling like I can’t get a deep enough breath and so I have to take these deep breathes that I try pulling in in different ways in order to satisfy the feeling in my lungs that I actually took a deep breath….differently to the finger flicking thing this one actually causes a great deal of anxiety and stress and when I start doing it it lasts for weeks and is nearly every 10 seconds that I have to do it…plus my chest ends up feeling really bruised the entire period of time because I’m just constantly forcing in these weird breaths. Anyway…like I said i don’t have Tourette’s but I am neurologically different so it kind of makes me wonder how many overlaps there are. The more vids of yours I watch the more I find myself relating to your experiences on deeper levels. Hmm. Cool.
Omfg, i also have the eye thing, i press and squeeze my eyes alot for no reason all the time, it never stopped 😂 it stopped recently this year and i am so happy, its been annoying my eyes alot
The ugh tic 😂 love your videos soooo much I’m not Tourette’s diagnosed but I get motor tics from what they say is ocd.
my (autistic) echolalia loves "i got rice" so i'm walking around saying that now 😂
the bark one is adorable imo
I like that you do have rice the other half of the time.
Thank you for your videos.
Thank You so much for sharing your journey and educating so many of us❤❤
Hello !
I am leaving a comment here since your last video has the comments disabled (i can understand why)
I don't have any diagnosed disorders but I sympathize with all the hurtfull things and difficulties having disorder imply.
I think you are very brave to do what you do, has I have noticed that you can be more easily confronted with idiots.
To be honest, I am very surprised that people believed for so long that Tic & roses had really Tourette syndrome. It was so fake ! And I find that most of the time, you don't need much time to recognise fake people. Thoses people are disgusting and should be punished severely for lying about serious conditions that can result from traumatic experiences (like DID), spreading falses informations about disorders and defamation of the braves people like you that work hard to make society change its perception on real affected people.
I wish you can find more suportives people that idiots and haters who must live a quite pitifull life if they feel proud to make feel alone.
I hope you managed to sleep well in the end
Sorry it seems my french automatic corrector decided that some words didn't exist 😅
Love this and yes “jelly on a plate” is a thing. It’s a little rhyme “jelly on a plate. Jelly on a plate. Wibble wobble, wibble wobble, jelly on a plate”
LOL that’s so funny!!
Hi! I'm new to your channel, and I am so so sorry if this sounds rude/offensive, but I see your "eugh" tic a lot, (especially in the videos where you react to ticsandroses) does that hurt when you do it? I know it's like a vocal tic, but like does it cause any pain?
Thanks for showing that tics are not something desirable. I have tics related to my fibromyalgia. It’s hard just to type this message as my fingers tic all over the place. My scariest thing about tics came a few months back when I was removing a pot of pasta from the stove.. my hand ticked and I almost dropped the pot all over me. Lesson learned. Now I just remove the pasta and wait for the water to cool.
So my kid once made a random ticsound in class once and got called out by his teach. And my kid was like , what did i do? His teach forgot about his TS and said , you werent quiet as I told you to be.. and my kid askes, ow, wasnt I?
Teach : so you make sounds without yourself realising? My kid: uh yeah kindoff, I have Tourettes remember?
Jelly on a Plate is a weird kid's song/nursery rhyme. "Jelly on a plate, Jelly on a plate, wibble wobble wibble wobble".
Is it ok to ask someone with Tourette’s how best to engage? I’d rather acknowledge and then learn the appropriate way to respond (or not respond) than either pretend I know how to, or pretend it’s not there.
TW for the Jelly tick.
Idk if anyone else commented, but ‘jelly on a plate’ is a kids song/rhyme thing. It’s repeated a few times then says ‘wibble wobble, wibble wobble, jelly on a plate.
Thanks for sharing, it seemed like a difficult video. Hope the rest of your day wasn’t affected.
Well I just found your videos! I love the education of this! My name is Misty it's nice to meet you
I don't have tourettes, however, sometimes I find myself mimicking certain words that people say. Sometimes I don't even realise I'm doing it. Especially if they have an accent. I've done it with family, friends and even at work. So I do understand the copying what someone says...
Ahhh I get the British accent one 😅 "what are you doing" in an accent and im just like?? Who and where did i hear this that I latched onto it 😅 it's not a weird one, but I say bitch too often. Like the urge is constantly in my throat and it's either by itself, or throws itself into the conversation and I'm always Embarrassed bc like. I'm not calling you a b*tch, it's just my TS 😔
im glad you share your experiences and educational as well. I've wanted to myself but with like you said, all the tiktok stuff, I'm not really comfortable putting myself out there anymore since I don't have a platform and I don't want to deal with others thinking I'm faking bc they just assume everyone on tiktok is a faker. Even though those in the community do recognize and follow my content 😅 I love to see TS creators thrive bc we deserve to live our normal life too :)
Would you say that holding in a tic is somehow like holding in a hiccup? Im just trying to get an understanding of what you feel like when you suppress them ? Of course holding in a tic is far from it but it’s good to educate myself 😊🙃
Are newer tics harder to suppress than older?
I don't have tics, but sometimes brain comes up with really weird verbal stims that make no sense but just feel nice to say (and occasionally it becomes almost a compulsion to repeat it for like a week because it'll be the stim I'm craving that alleviates sensory overload) so like... it makes sense that brain just comes up with random phrases as tics too. -shrug-
Jelly on a plate is a really common rhyme young children and upwards say and joke about with here in the UK (England specifically). I think in the US you call it Jell-o? But that’s what we call jelly and it goes ‘Jelly on a plate, jelly on a plate, wibble wobble, wibble wobble, jelly on a plate’. I swear we ALL repeat it when we gather and have jelly for dessert no matter how old we get, it’s catchy to all of us and we don’t even all have tourettes so I can totally see why this can end up as a long lasting tic!
Thank you for doing this one to educate us, it was obviously a difficult one to do.
4:40 I used to have a meowing tic lol
Let me preface this by saying I do NOT have Tourette's. That being said, I am Autistic and a lot of the times seeing tics will trigger me to stim. When I'm super stressed out I'll repeat "Do you wanna cookie" which is... annoying. Can anyone explain the main differences between tics and stimming? Also Autistic folks can often have echolalia too.
In my best understanding, tics are completely involuntary. You can try to withhold them, but it won't last long and can hurt.
Think of stimming as scratching an itchy spot, while a tic is sneezing.
I don't have anything diagnosed (despite my own inklings of some sort of neurodivergency) but I do have tics and apparently stim a lot. 🤷♀️ Like if I get over-stimulated, a stim I have is aggressively flapping my hands/wrists. While it can be compulsive and I don't realize I'm doing it, I could theoretically stop it the moment I realize. But, with a tic, it is a compulsive movement my body does even if I dont want it to or am trying to stop it. Saying "boom" is a tic I have a lot, some nerve in my body making me often scare those around me with the mimiking of a bomb in a high-pitch tone. 🤣😅 I can't prevent it from happening and I probably should never go to an airport because of it.
I just looked up Jelly on a Plate and apparently it's a nursery rhyme.
Is it possible for this condition to diminish over time or disappear completely? When I was a younger child up to about the age of ten maybe, I would squeak from the back of my throat among a few other subtle things like clemching my feet in my shoes. That's actually why I was reading about the condition today, out of curiosity. I am 29 now and haven't experienced anything in like two decades. It has been too long for me to recall exactly how it felt but I do remember it was like more than a habit, but maybe just a nervous thing or somethimg. Jaja. Interesting condition. Thanks for sharing.
I always thought you said “I Got (a) Raise” 🤣
Jelly on a Plate is in several kids songs as far as I can tell. In the Wiggles one he actually says "jelly-on-a-plate" fast and similar to the way you say it: ruclips.net/video/GcV-Btg1o-g/видео.html