HOW HASHIMOTO'S DISEASE ALMOST KILLED ME | SHOCKING STORY OF AUTOIMMUNE CONDITION

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  • Опубликовано: 26 окт 2024

Комментарии • 318

  • @itsmidtrib1569
    @itsmidtrib1569 9 месяцев назад +193

    The worst part is when everyone had expectations of me and thought I am healthy and young..but I couldn't exceed peoples expectations as I was so exhausted and fatigued and the brain fog..and depression.

    • @maxinethirlwall8953
      @maxinethirlwall8953 9 месяцев назад +1

      NDT or synthetic medication?

    • @AlicjaGriffiths
      @AlicjaGriffiths  9 месяцев назад +19

      I know exactly how it feels and people’s expectations of your ability to exceed cause you are young and fit can be very frustrating.

    • @carolroth440
      @carolroth440 9 месяцев назад +17

      I agree people are to quick to judge and its so hurtful. Praying for all of us with chronic health ❤

    • @KarenLedesma-w8i
      @KarenLedesma-w8i 5 месяцев назад +6

      Yes I relate

    • @cindyrstedman2573
      @cindyrstedman2573 5 месяцев назад +8

      You literally hit the nail on the head. I feel exactly the same. 💔

  • @paradiseacres9724
    @paradiseacres9724 7 месяцев назад +38

    Thank you so much for sharing! ❤ The stressful ending of my abusive marriage has me in the middle of a horrible flare-up. Debilitating. I am so active for my age, 55, so when the fatigue and weakness hits, it affects my whole life so much. I throw around 50lb bags of feed and bales of hay all day, so it it a frustrating situation for me to feel so badly. My doctor and I feel that once I am completely free from the abuse, my stress will ease, and I will be back to doing well again. That really is what you have when you have Hashimoto's... you do well or you don't. Stay strong and don't stop speaking your truth and searching for what works best for your body.

  • @Cgeese
    @Cgeese 6 месяцев назад +24

    I was diagnosed with hypothyroidism 20 years ago. I was 230 lbs. about a year ago I was diagnosed with hashimotos in 2023. My doctors says I’m ok because I am of far eastern descent. I lost 80lbs in 8 months
    Since I had hypothyroidism I had tight throat and gagging and the gagging doesn’t go away.
    In my case both parents have thyroid issues.
    The heart races and the gagging are still there.
    My doctors are saying I need a psychiatrist.
    I don’t know what to do it s like my world changed almost literally like a different planet not only physically but among people I am close to and
    trust. since discussion and when asking for advice from a lot of people I got a deaf ear eventually.
    Your video is very helpful and informative!

    • @chriskat646
      @chriskat646 6 месяцев назад +9

      For some fortunate people when the doctors give them a pill they get better and do pretty well. No so for me and maybe for you. The meds you are on may not be the right ones for you. No matter what the test results are you still have many symptoms. There is a book called Stop the Thyroid Madness. It may be a starting place to start making progress toward getting better. I hope so. Good luck in your health journey. The gagging may be digestive issues. See if you can get checked out by a gastroenterologist. If it is not that don't give up keep doing research and looking for the right doctor to get your concerns properly addressed.

    • @moggyslifehacks1819
      @moggyslifehacks1819 6 месяцев назад +8

      This is the same for me. Choking and breathless. Numb arms. Very poor sleep.

    • @rosssundberg5510
      @rosssundberg5510 5 месяцев назад +1

      Does the tight throat come and go based on certain foods or is it all the time?

    • @libbyfransen7053
      @libbyfransen7053 4 месяца назад

      Look for a functional doctor. Unfortunately it will be out of pocket but it's worth it. Get your bloodwork checked, Dutch test and food allergy tests. Good luck!

    • @mariaharo5468
      @mariaharo5468 3 месяца назад +2

      ⁠that is me too, and lost 35 pounds in 2 months , and they said is a mental issue, I am frustrated because the lock of empathy and knowledge of this condition.

  • @svetusya9091
    @svetusya9091 5 месяцев назад +45

    One of the hardest things about having Hashimoto is understanding from other people about how hard it is to function day to day. Many people look at me like I’m so lazy even though I have two kids that I homeschool, nanny 2-3 days a week, plus try to be active and just by adding one thing out of the routine can wipe me out. It also does come with multiple of other diseases which tend to affect your life. Thank u for this video and letting others like u feel like we r not crazy and we try to do the best we can but always seems like it’s not enough.

  • @RationalNon-conformist
    @RationalNon-conformist 6 месяцев назад +56

    Everyone speaks about cancer, but rarely do I hear them speak about how horrific Hashimoto’s thyroiditis can be, it can feel like a terminal illness, even when eating properly.. hormone is needed. Thank you for sharing your story.

    • @TrudyContos-gq1bw
      @TrudyContos-gq1bw 5 месяцев назад +6

      Do realize how they institutionalized woman back in the day. It's still missed and mostly now linked to bipolar disorder bcz they over medicated or did nothing at all.
      I hear the pain all to much 40 plus yrs.

    • @mariaharo5468
      @mariaharo5468 3 месяца назад +2

      @@TrudyContos-gq1bw😭

  • @artistsmeetfilm6491
    @artistsmeetfilm6491 7 месяцев назад +29

    Its hard for me to open up like you just did because chronic illness devistated me. I had a very bright future, was lucky in the respect I had a strong skill set that led to a really incredible life but like you, grew up in a turmoiled growing up, I entered a very high stress industry but got to say I loved it anyways. I had bouts of infections my whole life, but it never kept me down, always bounced back even if I was periodically hospitalized, but just as I got my life right where I got comfortable a bit I awoke to a total nightmare, one of such high pain loads I really felt like I was better off dead sometimes as it would cause me to black out. I had zero strength, I swelled up like a balloon and just to get out of bed was a whole chore in itself let alone feed myself. I spent years alone, confined because my body began attacking my skin, took me four years to understand why and then another six years to get internal damages repaired usually after suffering in multiple ERs through seizures where I was even awoke once to an officer demanding I stand up or he'd drag me out in handcuffs. I too suffered huge amounts of abuse from medical facilities, Im lucky Im still alive after multiple adverse reactions from multiple misdiagnosing. I found my problem through my own research and a kind doctor who was paying attention and ran a test that most doctors wont. The damage for me has been done, my chances out of this now due to delays is slim to none. Some days Im ready to fight and try and other days I crumble in defeat and I think the worst part for me is in knowing my doctors still refuse to let me even near what could help me. I do not have the luxury of resting as I fend for myself, my family has substantial problems so yeah Im very much walking this road alone. It is my creative passions that keep me going, but everyday is a challenge and most my dreams seem to get further and further away from me. Thank you, your story is just nice to know others out there are also trying to find a way to cope with probably the hardest journey of life. We take for granted the body God gives us until it breaks down and find out no one wants to really fix it. If not for my strong belief in God I would have given up a long time ago. I know when my time is up its up and not much else you can do, but try your hardest to overcome what you can and hope for the best.❤

    • @AlicjaGriffiths
      @AlicjaGriffiths  7 месяцев назад +13

      Thank you for sharing your story here. I am aware there surely is so much more pain to it than you were able to describe.. 😢 I don’t know you but I am proud of you for dealing with adversity so well, specially walking this path alone. That requires tremendous amount of strength and though due to your health you may be lacking physical streangdh, you surely have more mental strength than most people. I hope God will reward your endurance 🌹

    • @juliepenney2683
      @juliepenney2683 4 месяца назад +1

      Never give up ❤ guided meditation 3 times a day has helped me during chronic illness; I’ve grave’s disease, I believe in you, one step at a time ❤

  • @SlyFox93
    @SlyFox93 6 месяцев назад +7

    Thank you for sharing! I was diagnosed with Hypothyroidism in 2001 and didn’t know until 2019 that it was Hashimoto’s. Your perspective and outlook on the disease and life is very encouraging and uplifting.

    • @AlicjaGriffiths
      @AlicjaGriffiths  6 месяцев назад +1

      Thank you for watching and taking time to comment, I am glad to know it was encouraging and uplifting. I hope you are doing well. Have a great week ahead 😘

  • @susiethomas6909
    @susiethomas6909 7 месяцев назад +68

    I’ve had Hashimoto’s since my early 20s. I’m in my 50s now. It it absolutely devastating and life changing. It’s awful. 😢 I also believe my Hashimoto’s developed due to extreme teenage stress as well.

    • @AlicjaGriffiths
      @AlicjaGriffiths  7 месяцев назад +8

      I feel you, it’s so frustrating knowing that external factors which happened due to not our fault, contributed to our loss of health. Be gracious to yourself and recognize yourself for everything you do despite that limitation. Sending you love 🥰

    • @Ela-b1y
      @Ela-b1y 5 месяцев назад +1

      Progesterone✌️ check your balance of estrogenes and progesterone… agnus castus helps a lot

    • @chellerose
      @chellerose 5 месяцев назад

      same

    • @Tacoman1967
      @Tacoman1967 12 дней назад

      I believe mine was childhood trauma.

  • @carolroth440
    @carolroth440 9 месяцев назад +13

    Thank you for your video. I was diagnosed with hypothyroidism 20 years ago i am now 64. I have been taking levothyroxine for all these years. I have flare ups from time to time fatigue brain fog etc. I really appreciate your speaking on how peoples opinions is really hard to accept and i try to shut out that noise as it doesn't help me. I take it one day at a time and pray 🙏 i really appreciate you sharing your journey. I hope and pray for continued health for you ❤

  • @melodie7792
    @melodie7792 9 месяцев назад +13

    Hi there, the best video ever on you tube. So insightful, sincere and brave. You are a real warrior. No wonder you inspire.

    • @AlicjaGriffiths
      @AlicjaGriffiths  9 месяцев назад +2

      Thank you for your kind words and ongoing support, it means a lot to me 😘

  • @tonyawhitten5199
    @tonyawhitten5199 9 месяцев назад +27

    My daughter was diagnosed with Hashimoto's Disease as a child. She was placed on Thyroid medication and did fine until after the birth of her daughter at age 17. Suddenly her thyroid levels were within normal limits and the Dr took her off the medication. It has stayed that way ever since then. She has all the symptoms of someone with thyroid disease yet the labs remain normal. Her hair falls out, she is cold all the time, she has gained a lot of weight and she has palpitations with panic attacks. She is always tired and has to push herself. She does not sleep well. The Doctors tell her that her thyroid levels are fine so they do nothing. Now her thyroid is developing nodules. I worry so much about her and nobody will help.

    • @AlicjaGriffiths
      @AlicjaGriffiths  9 месяцев назад +8

      I am so sorry for your daughter, the worst part is that doctors do not really do much to help the condition not to progress over time. And it does progress while left untreated. I hope your daughter will find a good specialist and feel better soon 🙏🏻

    • @UnderHisWings0322
      @UnderHisWings0322 8 месяцев назад +11

      I am in the exact same boat as your daughter except I have not yet had a diagnosis. I've been suffering for the last few years so bad. Been in and out of ERs and all that shows up is low TSH level but nothing to the point of them doing anything about it. They also found 4 thyroid nodules but since they aren't huge they "monitor" them. I'm left to try to survive this with no help. Healthcare is awful in the U.S. now, especially where I am. As my condition worsens I wonder how much longer I will live but since my labs aren't alarming they do nothing. Praying for your daughter and answers for us all in this situation!🙏

    • @JuliaNalchadzhi
      @JuliaNalchadzhi 8 месяцев назад

      I highly recommend to check out McCall McPherson and the Modern Thyroid Clinic. She is a Hashimoto’s expert and her clinic is extremely popular for giving people their lives back. Find her on social media and even here on YT and you’ll learn very valuable information on how to fix your daughter’s thyroid. The key is to be guided by someone like her instead of the normal general practitioners who have no clue about thyroid treatment. Please share this with others too. I’m in no way affiliated with them, I just have done a lot of research over the years for my own Hashimoto’s. Good luck!😊

    • @flamingpieherman9822
      @flamingpieherman9822 8 месяцев назад +5

      For the panic attacks, you need to make sure she's taking nutritional yeast... That will really help.
      Also look into taking salt... Either Himalayan or sea salt. I found that did help me. You don't have to take a lot just to pinch in water in the morning and a pinch at night in water. Maybe test it for a few days and see if that helps?
      Also look and see if she's got h pylori or even Candida... That could wreak havoc on your whole system.
      If she does I would tell you to steep herbs like clove, cinnamon, nutmeg and ginger and drink one or two cups a day. I would also tell you to cut out the sugar and eat good healthy meats like mackerel or sardines several times a week along with good fats and fruit
      ... Hope she's better

    • @juliegoff1731
      @juliegoff1731 7 месяцев назад +1

      At Tony boy do I hear you ! You just described me ,your daughter is not alone

  • @AnneWight-w5e
    @AnneWight-w5e 5 месяцев назад +23

    Thank you for describing your thyroid Hashimoto’s thyroid so well. My TSH test came back at 36 and I am so frustrated that no one understands how exhausted I am and how difficult it is for me to get out of bed every day. I am not depressed; I can’t understand why so many doctors don’t recognize the symptoms of Hashimoto’s, especially when for over a year I was complaining of energy and memory issues. Lab work needs to be done early and not just for TSH. I hope better care is on the horizon for all who experience this debilitating illness.

    • @AlicjaGriffiths
      @AlicjaGriffiths  5 месяцев назад +5

      You are right, it’s so frustrating that it often gets overlooked by doctors and also people around fail to understand challenges a person with autoimmune condition faces daily .. I hope you will feel better soon 😘thank you for watching

    • @pennysmovingart5478
      @pennysmovingart5478 3 месяца назад +2

      Omy same here! Been to the hospital 3 times within a week! Told me it was my anxiety. Well I finally left after they didn't help me. I went to my dr and said please check my thyroid! Of course it was off.

    • @pennysmovingart5478
      @pennysmovingart5478 3 месяца назад +2

      The hospital snd drs should ask with regulate blood work because we have too many people have trouble 😢

  • @Leacoxman
    @Leacoxman 9 месяцев назад +8

    Thank you for being so open about your story and giving such an uplifting message about staying determined and consistent!! It must not have been easy to share such challenging personal times but helps me see that we are all human. I also have ongoing health struggles but even standing one minute in the sun or appreciating the flowers in the park is something I can do to bring a bit of joy because every day is a gift as they say

    • @AlicjaGriffiths
      @AlicjaGriffiths  9 месяцев назад +2

      Thank you for watching and for your positive words, I appreciate it a lot. I also hope your health struggles will pass soon 😘

  • @mommisabommis
    @mommisabommis 5 месяцев назад +14

    Oh, my goodness! Thank you, thank you, thank you!
    I am in the throws of this very struggle! You poor girl! I have had hypothyroidism for more than 15 years and am only now booked in with an endocrinologist. I relate to all the symptoms. So tired, brain fog. Can't read, can't make a plan. It takes monumental effort to do simple daily tasks! Thank you for making me feel like I'm not the only one!

  • @sailorVenus225
    @sailorVenus225 7 месяцев назад +6

    I relate so much to people not taking you seriously because of age and being seemingly healthy. I've been very sick with Ehler Danlos syndrome since age 14, and now I also found out that I have Hashimotos (actually one year ago). I ignored the symptoms for a long time because I just assumed it was the progression of my other illness. And also because the Dr. (not a specialist) said we just need to monitor it and treat it if it becomes hypo or hyper-thyroidism, but the last few months have been so awful. No energy, too much sleep but never feeling rested, unusual weight gain, scalp flaking and itching :/ My face changed so much

    • @AlicjaGriffiths
      @AlicjaGriffiths  7 месяцев назад +2

      I am so sorry you have to be going through this. Recently I had my medication dose adjusted and I feel much better, hopefully your doctor can find a right dose for you too 🙏🏻

    • @sailorVenus225
      @sailorVenus225 7 месяцев назад +3

      @@AlicjaGriffiths Thank you so much! And thank you for sharing your story. I really feel for you. I will find a doctor that actually treats Hashimoto's and see what can be done :)

  • @saraj396
    @saraj396 8 месяцев назад +6

    I am around the same age as you and my symptoms are very similar to yours. It can be so frustrating. I am getting treatment but it is so difficult to have patience with myself and to avoid pushing myself. I am the type of person that likes to do so many things. I guess I am learning to accept how I feel and only try to do what I can. I am learning my limits. Stress definitely makes me feel worse. I hope the treatment you will receive is successful. Thank you for sharing your story❤

    • @AlicjaGriffiths
      @AlicjaGriffiths  8 месяцев назад

      Hi Sara, thank you for watching. As you said it is really important to know your limits when you suffer with chronic condition. I hope you will find the way to feel better soon ❤️😘

  • @byromania
    @byromania 9 месяцев назад +5

    Thank you for being as transparent as you were, about your condition. I am just blown away by your courage and your determination to stay as happy, healthy, and grateful as you possibly can!! I am in awe of your resilience, and I pray that your health continues to improve. I wish you nothing but peace, healing, and an abundance of joy.

    • @AlicjaGriffiths
      @AlicjaGriffiths  9 месяцев назад +2

      Thank you so much for such a sincere, thoughtful comment. I teared up reading this, I appreciate your support, kind words and wishes. I wish you all the best as well 😘

    • @byromania
      @byromania 9 месяцев назад +1

      @@AlicjaGriffiths Thank you.

  • @Jmil989
    @Jmil989 9 месяцев назад +9

    Dear Alicja, thank you for sharing this ❤️
    There is this one quote came to my mind listening to your story 'God gives his toughest battles to his strongest soldiers'
    Stay strong 🌹

    • @AlicjaGriffiths
      @AlicjaGriffiths  9 месяцев назад +2

      Thank you for your words of support 🙏🏻😘

    • @thisgirlisfancy
      @thisgirlisfancy 3 месяца назад

      That quote contradicts the Bible: James 1:13. God does not cause our problems. He’s much too loving❤

  • @kayruwhukaowhonda1036
    @kayruwhukaowhonda1036 9 месяцев назад +11

    Thank you for sharing.
    I pray God gives you the strength and heals you wholesomely 🙏🏾🙏🏾❤️

    • @AlicjaGriffiths
      @AlicjaGriffiths  9 месяцев назад +2

      Thank you so much, I really appreciate it 😘❤️

  • @writethroughtheheart
    @writethroughtheheart 6 месяцев назад +7

    I suspected I had thyroid issues since my late teens, had every symptom I'd read about. Finally diagnosed mid thirties, but didn't really take it seriously. I took my meds, but didn't look into it further. At 42 Hashimoto's is kicking my ass. So thank you so much for sharing this! It's so important for people to know how serious this can be!

    • @AlicjaGriffiths
      @AlicjaGriffiths  6 месяцев назад +3

      It is indeed very serious condition, unfortunately it is not widely understood due to lack of awareness. Left untreated it can completely mess someone’s life.
      I am happy my video is helpful and I also hope you get the treatment that will make you feel well again 💕

    • @josmith6140
      @josmith6140 4 месяца назад +1

      I'm 70 and Hashimotos thyroiditis really sucks.

  • @amooreinc07
    @amooreinc07 8 месяцев назад +11

    I have Hashimoto's disease and I FEEL HORRIBLE!! Everything that you have described I am experiencing. My skin feels itchy or like it's absolutely crawling. I need my doctor to do something 😢

    • @AlicjaGriffiths
      @AlicjaGriffiths  8 месяцев назад

      I am sorry to know you feel so bad. To have all the symptoms at the same times is absolutely the worst. I hope you will find the right doctor for you and get the help that you need soon 🙏🏻❤️

    • @gitimakouee5937
      @gitimakouee5937 6 месяцев назад

      Ayodine. ❤❤ for hypo

    • @gitimakouee5937
      @gitimakouee5937 6 месяцев назад +1

      They took it out of our salt
      For cheaper replacement

    • @gitimakouee5937
      @gitimakouee5937 6 месяцев назад

      Just take yode

    • @nkitkat1879
      @nkitkat1879 28 дней назад

      I have underactive thyroid gland, diagnosed in 2011. Not sure it is the same as Hashimotos. My skin itches like insects crawling especially at night. I thought it was bites, then heat, but now I think it is perimenopause and depleting estrogen. I am on HRT but it started a tear after taking it.

  • @lisadl687
    @lisadl687 9 месяцев назад +6

    Thank you for sharing, I always wondered where your RUclips videos had gone. Sorry to hear you had a stressful upbringing, maybe you could make a video on this if you’re comfortable to get a deeper understanding of the stress that causes this disease. Praying a good fertility journey for you in the near future

    • @AlicjaGriffiths
      @AlicjaGriffiths  9 месяцев назад +2

      Thank you for watching and for your kind words 😘

  • @aquilinaciamacco2410
    @aquilinaciamacco2410 9 месяцев назад +5

    Thank You for taking the time to create and share this very informative video. You are an excellent speaker!

  • @dianex5084
    @dianex5084 4 месяца назад +3

    Thank you so Much for this Information. I have been Horrified and Dealing with Hypothyroidism for Years, Now I realize I probably have BOTH. I 100% understand the whole yawning thing and Not having the Energy to Do things I can't do. Wow , It being Stress Induced Makes Sense. I probably had it years before I was diagnosed. I am so blessed I found your Channel. I will have a Major discussion with my New Doctor on 6/20/24. You are a Guardian Angel for giving this Information to those who Need it. xo

  • @gi_herna
    @gi_herna Месяц назад +1

    Thank you for sharing your story 🙏🏼 if you have celiacs make sure you read your medication ingredients because some thyroid meds contain gluten 😔 I just got diagnosed with hashimotos and graves and my endocrinologist didn’t prescribe me anything or give me any diet changes. I feel like crap and he literally said “you don’t look sick to me” Decided to go another route to see a functional medicine doctor, she teaches how to heal with diet changes and does a few other procedures to help the healing process and what I can say is she said the liver, kidney, and gut are connected to thyroid so if they aren’t thriving then thyroid can be affected. In my case I strongly believe it was gut & stress induced. I will start a detox for those organs this week and praying for healing, this desease is so exhausting 😩

  • @RowesRising
    @RowesRising 4 месяца назад +4

    I have hashimotos hypothyroidism. I’m tall and thin. I had a lot of trauma in my first 25 years then a stressful life the past 15 years as a military spouse. For the past 4 years I have had gut issues and we recently discovered in the past year it’s related to my pancreas- chronic pancreatitis. I was told it was celiacs or a gut imbalance. I had to advocate for myself and go to the ER in a terrible stomach pain flare for them to catch my elevated lipase to diagnose me. You are right- after 15 years battling this disease it’s wreaking havoc on my digestive system. I need to be strict dairy and gluten free. But sometimes cream of wheat is all I can eat without pain. I go off and on liquid diets.

  • @tammywade3649
    @tammywade3649 6 месяцев назад +7

    I was diagnosed with Hashimotos from Mayo Clinic, i was in critical stages, musle spasms every where, large nodules on my temples, extreme dry mouth, I'm 60 now, but i still do not believe I'm where i should be. I'm on 1.50 mcg Levothyroxine.

  • @mj-ev8hu
    @mj-ev8hu 5 месяцев назад +3

    Thank you for sharing your story, I really hope you are feeling better now. I have had hypothyroidism (diagnosed) for over 15 years, after a time of hyperthyroidism and lupus. Because I have had repeated pericarditis in the past I have always been undertreated with levothyroxine. My TSH with treatment has been around 6-7. Constant weight gain (I used to be too skinny, everyone in my family is skinny at all ages and I´ve always had a very healthy lifestyle) that I kind of accepted (gave up with) after some years, extreme fatigue (this is the worst part, but sadly I have been the first one to treat myself as lazy), lots of hairfall and hair breakage, ridged nails etc. For the last year and a half it´s been much worse, I spent a few months hardly going out of my bed. Because of having had difficulty finding good doctors before I didn´t seek help at that point, instead I bought even more books, trying to "fix" the problem myself with special diets/detox/sleep/meditation etc (all very good but not instead of doctor´s consultation). After a few months I felt good enough to force myself to go out for yoga lessons, and to have blood tests and finally see an endocrinologist. My medication dose was increased but very little, and I did not feel much better. The endocrinologist was not interested in my symptoms, only in the TSH and in getting it almost within the range. I did not go back again as I was so disappointed. My extreme fatigue, weight gain etc. continued. Since the beginning of this year it has been worse but I blamed it on having had covid, and being depressed because of grief etc. Finally beginning of April I decided to return to India (I love traveling there, and had planned to go for almost a year but had to cancel due to my health) even though I didn´t feel better, as I thought it might be in my mind so once I´m in a place I want and surrounded by friends etc. I´ll feel better. Well since I´m here in India it´s become more obvious that my health really is bad right now. I can feel that I am not depressed but that does not help me getting out of bed, I definitely sleep more (garmin showing me scores of 80 and above) but still as tired, it´s 45 degrees and I can spend nights without a/c freezing (I checked for fever but it was just my body temperature being below 25), garmin regularly shows me poor breathing rate during night (as low as 8) etc. I went to see a plastic surgeon because I´m so sad about my extremely puffy eyes and didn´t think that was the thyroid, well he said I should consult urgently for myxedema. I went to 3 endochrinologist within a few days, the third one was excellent, best one I have ever seen, she examined everything (reflexes, skin etc.). She said that my symptoms were very severe, but when the blood work came back, almost within range, she did not want to increase my dose more than a tiny bit, also saying that since it´s summer and extremely hot here lower dose is needed. I feel desperate, I just can´t continue with this extreme fatigue (having finally understood I am not lazy and that I cannot not find all the answers in my super, sometimes extreme, healthy diet and lifestyle), and I´m scared now that I finally understand that low thyroid is something to take very seriously as it can kill you.

  • @MrTomprokopec
    @MrTomprokopec Месяц назад +1

    I got diagnosed in 35 (completely by chance during an unrelated check), I'm M, 40, and I've been on medication nonstop and feeling good so far. Strange thing is i barely had any symptoms prior to being diagnosed. Just got tired quite quickly but since i was physically inactive, I didn't think much of it. Started exercising a year ago and doing good so far. I'm never planning to stop my medication after hearing your story. Stay strong!

    • @AlicjaGriffiths
      @AlicjaGriffiths  Месяц назад +1

      I am glad my story can be useful, I am sorry that you got diagnosed with that condition as well. Sadly nowadays everyone is so used to being tired, with current paste of life being tired all the time almost become the norm and it’s so easy to overlook it as a symptom of something potentially very serious. I am glad you are doing good now. Wish you all the best

    • @MrTomprokopec
      @MrTomprokopec Месяц назад

      @@AlicjaGriffiths Thank you, Alicja. Likewise!

  • @El.savedbyJesus
    @El.savedbyJesus 2 месяца назад +1

    Thanks so much for sharing. I've had hoshimito's for almost 30 years. Multiple hospitalizations for thyroid storms including a 114 TSH and complications. Currently stage 4 and gave resorted now to carnivore diet to try to slow down the progression. You speak well for the progression you've had. I have a list a mile long of diagnosis' Including disability caused by a completely unrelated disorder. But am always encouraged by those who are able to articulate there journey such as you have.

  • @jamiehromas
    @jamiehromas 4 месяца назад +3

    Thank you. I needed to be reminded to give myself grace. I've been having an awful flare. Thank goodness I have a supportive spouse too.

    • @AlicjaGriffiths
      @AlicjaGriffiths  4 месяца назад +1

      The support and understanding of close people is one of the crucial factor of recovery from flare ups and for the condition not to get worse in my opinion. I am glad you have support that you need ❤️

  • @PolSKNAzi
    @PolSKNAzi 2 месяца назад +1

    A kind and hopeful presentation. And a testament to proper, helpful and loving marriages that God blesses us with.

  • @alejandrarivera1087
    @alejandrarivera1087 3 месяца назад +1

    I was diagnosed with Hashimoto’s when I was on my 30’s but I realized I have been dealing with this since I was younger , unfortunately doctor’s in my country never tested me for that. It’s a struggle and yes unfortunately people are ignorantly and because they see me skinny and fit can’t even imagine with what I have to deal with hashimoto’s. Not very lucky with doctor’s either but doing my own research and advocacy I have been able to be in reemission and not taking medication for almost 3 years . Thank you for talking about this chronic disease.

  • @oksanaorlova497
    @oksanaorlova497 9 месяцев назад +8

    Thank you for sharing. Alicija all the best for you ❤

    • @AlicjaGriffiths
      @AlicjaGriffiths  9 месяцев назад +1

      Thank you for watching and all the best to you too ❤️

  • @marcusr.6218
    @marcusr.6218 4 месяца назад +2

    Great video. Please keep up the great work. I find your videos EXTREMELY helpful. Thx

    • @AlicjaGriffiths
      @AlicjaGriffiths  3 месяца назад

      Thank you for watching, I am glad it was helpful, recently I posted an updated video on Hashimoto’s disease, check it out, you might find that one helpful too 😊

  • @patriciaannclark2712
    @patriciaannclark2712 4 дня назад

    Thanks for your encouragement. I also have Hashimotos disease and struggling with changing to a gf diet.

  • @isabelalder9998
    @isabelalder9998 10 часов назад

    Thank you for sharing your experinces & knowledge regarding these two thyroid conditions (I have been diagnosed w/ hypo only but have symptoms of both hypo & hyperthyroidism as well). The T4 meds (including Tirosint which has no fillers) have not helped & cause rapid heart beat. Conventional Dr.'s don't seem to know what to do & Functional are usually more knowledgeable but many (like myself) cannot afford the ongoing cost to visit them.

  • @Journey384
    @Journey384 4 месяца назад +1

    This video just made me cry . Who suffer from it know why this video can make someone cry .
    Autoimmune conditions make sick people look fine and that why they arent taken seriously . It is painful .

  • @jenlitchfield8430
    @jenlitchfield8430 2 дня назад

    This video was very helpful because now I know it’s not all in my head and your case seems to be a lot like mine so it was very reassuring that I’m not the only one.

  • @TripleBcraftsandcrochet
    @TripleBcraftsandcrochet 21 день назад

    thank you for sharing your story, my mom and grandma both have hashimoto's and my grandma had thyroid cancer so this just makes me feel a little happier because my chance of getting this when I'm older is very high.

  • @nikibrand1035
    @nikibrand1035 5 месяцев назад +1

    You really have suffered, I hope you are able to find some peace and relaxation now. I agree, stress and insomnia are huge triggers for me. Also diet, I cut out Soy, gluten, alcohol, caffeine, meat and dairy and only eat organic whole foods now. I do a 16/8 fast every day, and take supplements plus Reishi, nettle, slippery elm, aloe, ginger and turmeric. This has helped my IBS and keeps me as close as possible to a state of Hashimoto’s remission. Some days I actually feel almost normal now. I hope you continue to recover ❤️

    • @AlicjaGriffiths
      @AlicjaGriffiths  5 месяцев назад

      Thank you for your compassionate comment, I feel like you really understand how I feel. I really appreciate your words❤️
      Your recommendations inin regard to diet are aligned with all the research I made recently, you are right, this diet works for Hashimoto’s but is so restrictive 😫😭 I don’t like it.. I will try those eliminations for some time and see how that is going to work for me. Thank you 🙏🏻

  • @LoveToCreatebyTonya
    @LoveToCreatebyTonya 3 месяца назад +2

    Hello😊 my heart goes out to you. I completely understand what you’re going through. I just turned 60 in June and I have been dealing with Hashimoto’s for almost 20 years and boy is it hitting me hard right now! I too had to close down my hair salon business and take a break from uploading to my RUclips channel. I am trying to get started back this month. Extreme tiredness,digestive issues and joint pain is my biggest struggles. I subscribed to your channel. I will keep watching and hopefully all of us can help each other!

  • @jessicasmith7716
    @jessicasmith7716 21 день назад

    I completely relate to you. It seems no matter how much I explain my disease and how I feel everyone seems to overlook that and when I have really bad flare ups and symptoms people at my job and anywhere honestly treat me like I'm on something. My tpo antibodies are over 24,000 my tsh came down to 11 over a month ago yet was at 24 a few weeks prior to that and when I was diagnosed with hypothyroidism 5 years ago was over 40 and has been up and down ever since . it has been a long hard awful road and yes some days you feel better and think you are getting better and then you don't and struggling to make it through the day and work. I truly appreciate you posting this video I'm definitely going to send it to people who dont seem to get why I am and feel the way I feel in hopes that they will understand

  • @oldegoatee8450
    @oldegoatee8450 6 месяцев назад +8

    I had fertility issues as well but looking back maybe that was for the best. Children require so much time and energy which I lacked.

    • @AlicjaGriffiths
      @AlicjaGriffiths  6 месяцев назад

      You are right, it takes one’s maturity to self reflect and recognize that and lots of people unfortunately go into parenthood without that realization.

    • @dyerstar
      @dyerstar 4 месяца назад +1

      Same. I’m glad I don’t have anyone that depends on me. But in turn, as I get older, there’s no one there for me.

  • @perculiar_daughter
    @perculiar_daughter Месяц назад

    Thank you, Alicja, for this. I am often very bewildered about my thyroid issues. I was under an endocrinologist in my late 30's as my bloods were showing thyroid issues. As I felt fine, he did not medicate me for the first 3 years until symptoms started to show. I don't know if I have just hypothyroidism or it has developed into Hashimotos, as since then I have been discharged from endocrinologist (I'm 53 now) and my general doctor just keeps prescribing me 100mg of levothyroxine. I have bloods checked every 6 months, and they show my TSH levels are "normal".
    I have daily body aches and my voice is definitely changing and hoarse. I find it hard to lose weight even though I try to eat well. I get tired, and my energy crashes in the afternoon's around 4pm. Hair has thinned, but not that noticeable. I am also 6 years postmenopausal, so many of these symptoms could be due to that also. I'm in a quandary, as I don't feel great, but I'm managing things. As a condition, it baffles me, as I don't know what is causing what.

  • @jamiebrennan5779
    @jamiebrennan5779 4 месяца назад

    Thank you for sharing. I had Hashimotos undiagnosised for 16yrs. Now diagnosised, and having it for many yrs. I have Hashimoto, Sjogrens B, Non Alcoholic Fatty Liver. Chronic SIBO. It is really difficult to balance life. I have a faith in Jesus Christ which helps me greatly. You have encourgaged me to be exercise more even when I am exhausted. God bless you.

  • @KeepMeLord05
    @KeepMeLord05 4 месяца назад +1

    Ty, Ty, Ty.. There's no telling how long I may have had Hashimoto's disease but like you, I suspect since childhood. As a young adult, I stopped seeing doctors because it was always the same, depression. I had all of the visible signs of Hashimoto but doctors never put the puzzle together until I demanded THS, T3, reverse T3, T4, and TPO blood work after doing my own research. I always had normal TSH results and every time that's when every doctor stopped looking at the Thyroid. I'm angry at the lack of care and for all of the money I spent trying to find out what was wrong with me just to have diagnosed myself. Also Like you, I have a wonderful husband I married 50 years ago at 17 years old who saved my life. Thank you, GOD..

    • @AlicjaGriffiths
      @AlicjaGriffiths  3 месяца назад

      I agree that doctors are not very helpful when it comes to this condition which is terribly disappointing.

  • @dinawhite5175
    @dinawhite5175 5 месяцев назад +3

    Wow you poor thing you’ve gone thru so much this is new journey for me I got long term Covid which attacked my thyroid and for a year or two I ignored my symptoms thinking it was Covid symptoms or I was to busy until I started gaining weight & was so fatigued my numbers were high 52 then within a month to get to a specialist they went to 80 so my thyroid stopped working my meds are tripled and and we will see next week with blood work if there helping so far I do not have hashimoto disease so I pray they can fix my thyroid Thank you for your video

  • @aquawyatt
    @aquawyatt Месяц назад

    I too have Hashimoto’s and so exhausted. I had neck pain and was put on a round of steroids for a week and felt better. Was given a second round and symptoms were gone, energy levels normalized and I felt great. Now I’m back to exhaustion, sleeping day and night and aching. Good luck with your new doctor appointment and thank you for sharing your experience. I’m wondering if steroids can be prescribed as treatment. I’m not sure if research has been done but it definitely made a huge impact on my symptoms when I had the steroid medication for the week!

  • @adrienneconroy4208
    @adrienneconroy4208 3 месяца назад

    On my Goodness 😢 I can relate to so much of your journey with Hashimotos. It made me realise that I do need to take good care of myself and I am only now starting thyroid meds after 24 years and terrible 9 years of hyper symptoms and no doctor could tell me what was wrong , it settled in to hypo after radioactive thyroid scan and I functioned . Today I'm still trying to get a good doctor to help me and to get the right Dose of Medication that suits my body. Also Post Menopause which throws another spanner in the works . Thank you So much for Sharing your story with us and for making me realise it's not in my head that it is real and serious. None of my family understand or even care to understand Sadly they just think I'm a moaner .blushing you well .

  • @CoffeeandPraise
    @CoffeeandPraise 4 месяца назад

    I was diagnosed with hypothyroidism 10 years ago, and about 2 or 3 weeks ago, I was diagnosed with Hashimoto's. Thank you for sharing your story.

  • @pasteleiro98
    @pasteleiro98 5 месяцев назад +1

    Hi Alicjia! Thanks for sharing. Hashimoto's is awful. I'm dealing with it since my 16 yo. I''m 52. Are u on supplements too? If so, what supplemments do you take? Could you please tell us more about your diet and exercise plan? Thanks. My hug from Lisbon, Portugal.

  • @kathyerb3134
    @kathyerb3134 7 месяцев назад +3

    Thank you for this video and explanation of Hashimoto. I have hypothyroidism since early 30s and fibromyalgia, ibs, Diverticulitis. Question, do endincrinologists, check T3, 4, etc with TSH? I hear and know that they don't anymore and I don't understand why. My t4 when checked is literally borderline. Noone checks t3. U need t4 to have t3. Tsh is produced from pituitary gland. T3, t4 produced from thyroid. Nobody has checked antibodies. I have severe hypothyroidism symptoms on .0.75 mcq levothyroxine. Some ppl need t3 and fee better.
    I have 2 grandkids grandkids with very rare genetic disease that affects thyroid, and more. I am 69 now.

  • @AmyS38
    @AmyS38 5 месяцев назад +1

    Thank you for sharing your story. Nobody knows how it is until they are experiencing this and it is scary!
    I had hyperthyroid 1st and i felt like i was going to have a heart attack and die. And then after months of going through hell it switched to hashimotos been dealing with it for over 15 years now and it has been awful I get alot of those symptoms and it is devastating cause i havent felt normal since I was diagnosed. I know have high anxiety and cant figure out how to control it and now I cant drive due to the high anxiety. I just found a doctor who cares and its getting a little better for me for now.

  • @teresatillman2955
    @teresatillman2955 2 месяца назад

    Thank you for sharing your story I understand all your symptoms and struggles with the disease, I had hyperthyroidism and then ended up having hypothyroidism I can relate and hope that you stay well

  • @wendyjomendy
    @wendyjomendy 2 месяца назад

    Hi Alicia! I know how you feel you described my situation and illness I have every symptom you mentioned. I have Hashimottos too.
    I've had an extremely hard life as well. I cant wait to hear the rest of this video
    I gained a bunch of weight I decided to remove things like dairy and processed food and added kelp, magnesium and because I was constipated I ate cashews throughout the day and fruit berries and apples and pears peaches cut sugar and all processed food.
    So i ate only things that were whole food like rice and potatoes instead of pasta and bread.
    I stopped coffee switched to tea with almond milk and honey. ... Just stuff that is whole some.
    All that excruciating body wide pain, throwing up acid, HUGE THYROID STICKING OUT OF MY FAT NECK blacking out after meals and being super tired fluctuating sleep on and on ALL WENT AWAY IN LITERALLY WEEKS!
    I bever had good days like remission i am beginning to think remission is just eating better for a while.
    Im on 88 mcg levothyroxine it only manages my mood and a little of my tiredness.
    Anyway i had all tye stmptoms you mentioned and still do since i wrnt back to my poor diet
    I'm 56 yrs old. I'm not preaching to you because I began eating bad again, regained all the weight and symptoms.
    I am disabled and cannot work over this. However I now know HOW to fix it. I hope this helps you like it did me.

  • @RationalNon-conformist
    @RationalNon-conformist 6 месяцев назад +3

    Eating well is one piece of the puzzle, but you can still feel unwell if not on the correct thyroid hormone. Carnivore has really reduced a lot of the symptoms that comes with hashimotos, but I’m still trying to find the right hormone.

    • @jaquelmaa
      @jaquelmaa 5 месяцев назад

      My nutritionist said she asks her hashimotos patients to take selenium and inositol at night and vitD at lunch might be worth a try!

  • @debidags1152
    @debidags1152 6 месяцев назад +2

    Thank you so very much for sharing.. I'm at a complete loss for answers with my hashimotos and I need to find a new Doctor mine retired..Wishing you much blessings ❤❤Ty again

  • @asgard5612
    @asgard5612 3 месяца назад

    Thanks Alicja for sharing your experience on Hashimoto D. I was diagnosed with hypothyroidism defined under the Graves Disease umbrella in Oct 2023. Learning to asjust to it.

  • @bonnitabee903
    @bonnitabee903 5 месяцев назад +1

    You are 100 right - hyperthyroid is stress induced - I’m sorry you story was so difficult 🙏💖I also had graves also radiated and live now with the horror effects - I believe killing throws dhould be illegal

    • @AlicjaGriffiths
      @AlicjaGriffiths  5 месяцев назад

      It indeed should be illegal, I am sorry you are dealing with the same issues and I really appreciate your supportive and compassionate comments, thank you 🥰

  • @dianajohnson5991
    @dianajohnson5991 6 месяцев назад +4

    I have Graves disease and now I have hashimoto's disease trying to figure it all out.

    • @AlicjaGriffiths
      @AlicjaGriffiths  6 месяцев назад

      It is very hard. I am sorry, I hope despite that you are holding on and doing well. I am sending you love and strength ❤️

    • @Tank34DDD
      @Tank34DDD 5 месяцев назад

      me too

  • @shariw
    @shariw 5 месяцев назад

    Thank you so much for this video. I get down on myself because of the tiredness and often don’t eat right. Your story and encouragement has really helped me to eat better and give myself grace. God bless you ❤

  • @renee408
    @renee408 4 месяца назад

    Thank you for sharing your story. I went from thyroiditis with the goiter to hyper thyroidism to thyroiditis with Hashimoto’s. 47 years old. And it seems like every year I get a new diagnosis and there’s something wrong with me and now I have high cholesterol after my recent blood test. All I wanted was to be sent to an endocrinologist but Kaiser doesn’t want to go that route AnyWho never really connected all the things that go along with it besides the fatigue and weight gain and brain fog, I was also diagnosed with lymphocytic colitis so fun I had my gallbladder removed. I had 21 day menstrual cycles so I decided to have uterine ablation. Feel like I’m falling apart and I’m not even that old but now I know I’m not crazy. Thank you.

    • @AlicjaGriffiths
      @AlicjaGriffiths  4 месяца назад

      You are not crazy, this is a very serious condition that affects life in many ways. In order to feel good and function properly despite having that condition, constant daily effort is required and it is definitely not easy. Hold on there, I hope you get better soon. Thank you for sharing your story ❤️
      After I am done with posting my Japan travel series I will share more about what I do to help myself with that condition.

  • @aliciagutierrez1088
    @aliciagutierrez1088 24 дня назад

    Thank you so much for sharing your story. I learned a lot and it was very helpful. God bless you.

  • @e.williams13
    @e.williams13 2 месяца назад +1

    I have hashis and have been diagnosed with me/cfs and pots... I believe my cfs and pots are related to my hashimotos...im not on thyroid meds yet but my tpo is always between 600-3000. I was in an abusive relationship for 20+ years and one day i crashed and never recovered. The anxiety is off the charts, heart palpitations, chest pain, short of breath, fatigue, intolerant of any stress ( even stressful conversations and jump scares)

    • @izreenfarah8689
      @izreenfarah8689 2 месяца назад

      Hi, may i know how do you deal with heart palpitations, anxiety and intolerant of any stress, shortness of breath? I have high TPO and TRAB and high ANA, but my doctor diagnosed me with graves disease. The problem is i have both symptoms of hypothyroid and hyperthyroid and my digestive system is totally out of whack. I have severe constipation (no feeling of bowel movement).

    • @e.williams13
      @e.williams13 2 месяца назад

      @@izreenfarah8689 I take a beta blocker and Ativan. I used to take Prozac as well. I have symptoms of hyper and hypo and fluctuate between the two.

  • @xxpowwowbluexx
    @xxpowwowbluexx 2 месяца назад +1

    Please, please, PLEASE look into the Immune+ Protocol by Silver Fern Brand. I have Hashimoto’s, too, and I’ve had almost all the same debilitating issues as you, but this protocol is helping me.
    Also please look at taking creatine for Hashimoto’s, as well.

  • @mattdesleavitt1819
    @mattdesleavitt1819 5 месяцев назад +4

    Take methylcobalamin b12 to help with the breathless part. I was diagnosed with hoshimotos and b12 is the only thing that keeps the breathlessness away

  • @inezharrison5001
    @inezharrison5001 2 месяца назад

    Oh my your childrood was really a challenge
    My thyroid is verv frustrating as a grown up . But for you dealing with so much God bless you.
    Your story makes me understand myself better. I couldnt understand why i was heavier than my sister my life changed about 13 years old weight gain i was called fat slob by my brother i weighted 140 lbs 4th grade monthy periods were he__ my mom took me to Dr to lose weight. Wanted me to.get off my but and get active. I couldnt lose weight until high school . I was saving my lunch money to buy something and only ate ice cream cone only for lunch . I got down to 120 lbs. But still tired falling asleep during classes in high school and grammer school.. teachers were concerned. I connect somewhat with you. But still cant imagine your hurt and pain. My tsh being 7.296 nothing compared to you.
    You were probably shakey all the time from being breathless. Glad to hear your story. Your husband seems like a true hero helping you . True you almost died but you lost out on so much as a young person. I hope the best for you. Pushing yourself to go on. I just turned 75 trying to be more like you. You set a good example.. helpful. Beautiful lady.

  • @jennyforrest4680
    @jennyforrest4680 6 месяцев назад +2

    I’ve done the excessive yawning since I was a pre-teen & thought it was just an anxiety thing, but I think I’ve had hashimotos/hypothyroidism for a lot longer than I realize. So frustrating.

    • @jennyforrest4680
      @jennyforrest4680 6 месяцев назад

      I joined the military when I was 17 & that really flared it up. I’ve always carried some extra weight besides a few years when I was very strictly paleo & working out constantly, which led to an ED. In Highschool they tried to put me on meds for gastritis but it didn’t help & the only thing that helped was correcting my diet.

    • @placebo6922
      @placebo6922 6 месяцев назад

      Omg I’m yawning every day at midday since 20 years and don’t know why? But no Hashimoto discovered by me. The hormones in blood are fine and in Saliva to low progesterone and testosterone. How do you get diagnosed? Because I really have the symptoms.

  • @velikoda7814
    @velikoda7814 9 месяцев назад

    Thank you for sharing your story, I myself have hashimotos but many things you talked about I never heard before.

    • @AlicjaGriffiths
      @AlicjaGriffiths  9 месяцев назад +2

      Thank you for watching, I am sorry you also have hashimoto’s. I am glad I was able to provide more information and insight about this condition, since knowledge about full spectrum of this disease is not that common. Wishing you lots of health 😘

  • @BathHappy619
    @BathHappy619 3 месяца назад

    Stress!!! That's exactly how I feel that this happened to me. You are not alone. It is awful and no one understands.

  • @EJMG22
    @EJMG22 28 дней назад

    Thk you, you are a beautiful soul helping others. Thk u

  • @sue150
    @sue150 3 месяца назад

    Thank you. Your story is somewhat . I am have complicated UTI’s. Antibiotic resistant. Family doesn’t think I am sick. Thank you for your encouraging words. God Bless you indeed

  • @jenlitchfield8430
    @jenlitchfield8430 2 дня назад

    I’m battling Hashimoto. It’s attacking other systems in my body. I went into ER twice from hashimotos. I get the heart palpitations almost to the point where I can easily. But my rheumatologist is just pinning that on my my weight gain. the inflammation has gotten out of control that it’s painful at this point. I have to even walk with a cane now for my balance and stability.

  • @jenlitchfield8430
    @jenlitchfield8430 2 дня назад

    I too, had a very rough childhood very daily stress as a kid and into adulthood. And still ongoing

  • @smithaday9225
    @smithaday9225 Месяц назад

    Thankyou for doing this. I ha e Hashimoto hypothyroid..no one seems to know what to do especially doctors. It's totally stress related..and for the first time in my life I am non stop gaining weight no energy. I push myself. Only the ultrasound tech told me the truth telling me my gland is nonfunctional and ancient looking

  • @lacrimioaraburciu3596
    @lacrimioaraburciu3596 4 месяца назад +1

    My highest TSH level I ever got was 74 as a singlemom ... the doctor was estonished that I was still alive...😢

    • @AlicjaGriffiths
      @AlicjaGriffiths  4 месяца назад +1

      Oh my God!! I have no idea how did you even get out of bed and function .. that must have been an absolute nightmare.. I feel for you, I hope you are better now 🙏🏻 take care of yourself ❤️

  • @jaimiekight
    @jaimiekight 6 месяцев назад +4

    I am so sorry. My TSH was 125 when I got my diagnosis. Absolutely debilitating. This disease is horrible. ❤

    • @AlicjaGriffiths
      @AlicjaGriffiths  6 месяцев назад +2

      I am so sorry, TSH 125 sounds absolutely horrific.. 💔 I can’t imagine how you were even able to function 😥

    • @Summertyme75
      @Summertyme75 4 месяца назад +2

      When I got diagnosed this year my tsh was 194 and my left thyroid had already atrophied. I was insanely fatigued my hair fell out and my belly got huge. I thought it was all because of the chemo I had in 2021. I thought I was experiencing chemo belly and my Dr's only said it takes time to recover from cancer treatment but did nothing. It wasnt until I got a new doctor/ new insurance and a new set of eyes on me that any tests were run. Frustrating when you know it's something wrong but to everybody else you look fine, so you're dismissed.

  • @maricelarooper9558
    @maricelarooper9558 5 месяцев назад +2

    Dang so many of these things are happening to me. My heart races. Hard to breathe in having a hard time getting going. I climb out of bed and later go back in bed. I try so hard not to let it affect me. My hands shake. But I’m gaining weight. I ended up in the hospital cuz my heart went crazy but they didn’t find anything wrong. I do have thyroid problems. I think hypothyroidism. I’ve had half my thyroid taken out due to a goiter. 5 years later my other half of thyroid goiter has grown but benign.

  • @dyerstar
    @dyerstar 4 месяца назад +4

    I am about to lose my job because I am in the middle of a major flare up. It’s been a long while since I had a flare up this bad. I use to be very active and social. But I was never the same after Hashimoto’s got on board. I am obese now, gaining massive weight in my upper body, face, and neck. I hate it!!!! I hate every aspect of this shitty disease. I am not suicidal, but if I could never wake up again, that would be fine. 😢

    • @Summertyme75
      @Summertyme75 4 месяца назад

      I totally understand. I say the same, im not suicidal but if a bus going 60mph was coming straight for me, on some days Im in no rush to get out the way. It's an exhausting and taxing disease

  • @SharonReynolds-m6v
    @SharonReynolds-m6v 2 месяца назад

    We have a very similar story ! Thank you for sharing ❤

  • @EJMG22
    @EJMG22 28 дней назад

    Just watched Dr Gupta, he has a book on this I've ordered. Now to start tomorrow cutting my absolute fav coffee and milk😢. Thk u ❤❤

  • @AnnaWoG
    @AnnaWoG 3 месяца назад +1

    first is gluten sensitivity, then it causes Hashimoto's. For some people milk is also a problem, or fructose etc.

  • @TrudyContos-gq1bw
    @TrudyContos-gq1bw 5 месяцев назад +1

    Stress plays a huge part in all disease and I too have and still struggling with hashimoto's tyroiditsis, but, it lead to my severe inflammation my whole life upper respiratory asthma, breast cancer polyps (nasal) digestion, miscarriages, endometriosis breast cancer, and now post menopause 11 years and still can't get anyone to pay attention to my T3 and t4 I'm a mess at 61.

    • @nataleefearon3593
      @nataleefearon3593 4 месяца назад

      You had nasal congestion too? Like your nose is always blocked and can’t breathe well?

  • @marial4623
    @marial4623 3 месяца назад

    Thank you so much for this video!

  • @orsi6587
    @orsi6587 2 месяца назад

    Thank you for sharing your story. Creating awareness is so important when it comes to chronic conditions. I'm really sorry to hear that you've had such a difficult road so far and hope that your health improves and that you stay well. I was diagnosed with Hashimoto's 10 years ago and it has been a journey to say the least. Being kind to yourself and practicing self-care without judgement can be so helpful and I'd say it's crucial for getting better. Our genes load the gun, but environment pulls the trigger as they say. And yes, stress is a huge trigger for most of us. I've mainly managed my condition through holistic means, changing my diet and lifestyle and taking supplements and Dr Izabella Wentz's work has been a massive key for me to unlock a lot of this.

  • @KarsonsChannel
    @KarsonsChannel Месяц назад +1

    I’m sorry this happened to you

  • @jenniferpaes8930
    @jenniferpaes8930 2 месяца назад

    A feel so related to your story. I also have hashimoto and celiac dease. Thank you for sharing.

    • @AlicjaGriffiths
      @AlicjaGriffiths  2 месяца назад

      I am sorry to hear that you suffer with those conditions as well. Stay strong 💪🏻 I have more videos in my channel related to autoimmune conditions, I hope they can help you 😘

  • @ForkNLeans
    @ForkNLeans 11 дней назад

    Eating well and exercising makes a difference..

  • @TheEevje
    @TheEevje 3 месяца назад

    I wonder what helped you between 2 yrs ago and now. I have hypothyroidism for about 16yrs and i've been okay with thyroid hormones, apart from periods of fatigue and depression. But lately I have trouble breathing, shortness of breath, trouble swallowing my food, changes in my voice. Sounds like the symptoms you had. Also my iron is low all the time, I'm hot all the time, brain fog, ... I have to write everything down and it's not safe to drive anymore. My new family doctor said I have hashimoto, not just hypothyroidism.
    I have to wait now for a scan of my neck and after that I have to wait until the second half of october until I can see the endocrinologist. I'm a bit worried about what will happen now. My guess is they will remove my thyroid. Did you have yours removed or did something else help?

    • @ruth8753
      @ruth8753 2 месяца назад

      Jesus must have been watching over you knowing all you have had to walk through. Jesus complete her healing.❤

  • @ForkNLeans
    @ForkNLeans 11 дней назад

    Pilates Will not raise heart rate enough to get the proper benefits. Find zone 2 in cardio for you and stay in that zone 10-20 mins.

  • @Freeazabird
    @Freeazabird 5 месяцев назад +1

    I’m going blind from hoshimotos. My antibodies are THROUGH THE ROOF, but my tsh levels are normal 👎🏼🙈

    • @AlicjaGriffiths
      @AlicjaGriffiths  5 месяцев назад +1

      I am so sorry about that, this is really a horrible disease. I hope you will get better soon 🙏🏻

  • @lindadobszay8272
    @lindadobszay8272 26 дней назад

    LDN is the answer for hashimoto’s. Also need to be dairy and soy free not just gluten free. I was diagnosed a month ago, luckily caught it before causing thyroid tissue damage. Go yo an integrative doctor and get low dose naltrexone. Good luck 🍀

  • @Ela-b1y
    @Ela-b1y 5 месяцев назад +2

    Often there is another autoimmune desease.. plus hashimoto✌️ sjögren, lupus, collagenoses… etc… and it is importent to check the balance of estrogenes abs progesterone

  • @izreenfarah8689
    @izreenfarah8689 2 месяца назад

    Hi, i have been on carbimazole and propanolol since august last year. My thyroid hormones (t3,t4,tsh) have been in normal range since december last year but my symptoms are getting worst due to i couldn't eat much because of heart pounding hard, heart palpitations and increasing in pulse rate even i am at rest. Doctor only tested my thyroid antibodies in october last year. My TPO, TRAB and ANA are high. I am having very frequent heart palpitations, heart pounding hard 24/7, shortness of breath while standing and walking (even a short walk), frequent headaches, lightheaded and i am becoming more heat intolerance compared to before i started taking meds. I don't know what is happening to me. It has been a year i have been under-eating. For my case, should i do radioactive iodine or total thyroidectomy? I am really afraid of operation. I am bedbound since november last year (at that time i was having heavy menses), since then my heart always pounding harder, racing without any trigger and so on.

    • @prachitawde6948
      @prachitawde6948 29 дней назад

      Have you consulted with any functional medicine exprt?
      Might help.

  • @survivalflare54
    @survivalflare54 6 месяцев назад

    Thank you so much. Can we please have an update? Also can you tell us what you eat and how you do your self care. I feel exactly like you. Please

  • @yorkiem0m
    @yorkiem0m Месяц назад

    so do you see an endocrinologist or rheumatologist (auto immune dr)?? or both?? My daughter has like all these symptoms and has a 350+ TSH.

  • @DIDIRADER
    @DIDIRADER 2 месяца назад

    💜💜💜🙏GOD BLESS YOU AND YOUR HUSBAND.I FEEL YOUR PAIN.😢🌹

  • @lenakohl2339
    @lenakohl2339 5 месяцев назад +1

    The doctor who destroyed your thyroid gland failed you. He didn't explain that you have to watch your levels AND your symptoms and if you feel tired etc. you have to replace the hormone that your destroyed gland doesn't produce in the right amount. And nobody explained to you that hormone raplacement doesn't heal the gland. The autoimmune inflamation doesn't resolve from taking L-thyroxine, it can get better with nutrition and lifestyle, but there is no medicine for the inflamation, AFAIK (well, immune supressants, but you don't want to take that).
    I myself wasn't aware how tired I have been for years. My hypothyroidism wasn't that bad though. But since taking the hormone, I feel the difference, it's huge.

    • @moyceimaan
      @moyceimaan 4 месяца назад

      Do you feel better after taking your medication ?

    • @lenakohl2339
      @lenakohl2339 4 месяца назад +1

      @@moyceimaan yes. I can work the whole day without falling asleep, I can go out and enjoy a concert without thinking about going home because I'm too tired, I don't forget too many things, have no brainfog.

    • @moyceimaan
      @moyceimaan 4 месяца назад

      @@lenakohl2339 have you made any dietary changes ?

    • @moyceimaan
      @moyceimaan 4 месяца назад

      @@lenakohl2339 I’m sorry for all the questions I’ve recently been diagnosed so I’m just trying to get as much information in time for my next checkup

    • @lenakohl2339
      @lenakohl2339 4 месяца назад +1

      @@moyceimaan I did some changes, had often stomach pain before that. So I started to exlude some food groups. For me, it was dairy that made a difference.
      And then I started a plant based diet, but for other reasons. The pain comes back sometimes though.
      Hashimoto often come with digestion issues. Some can't eat dairy, others can't eat gluten, for example. You have to find out what your trigger is if you have issues.

  • @wendyjomendy
    @wendyjomendy 2 месяца назад

    I began with symptoms of tiredness and got exhausted and felt like super crap after i ate bad food.
    If you eat whole food meaning no processed food like the obvious bread spaghetti pizza, and even dairy since its for baby cows with around 5 stomachs! 😅. Idk im hoping this helps someone like it did me!