My heart is broken. Our Zebra community has lost such a massive warrior influencer who raised so much awareness. This video hit me hard because I'm on IV potassium everyday and my magnesium is always super low. Amy you were the most hard-core fighter who came back from this near death weight loss and seemed to do so much better once you got put on TPN . It sure seemed unexpected. We lost a beautiful unique soul and I hope that wherever you are, you're finally pain free for the first time ever. You showed such beauty and strength in your stripes. I hope you're free of them now. I am in this same boat right now. It sucks. You have helped me so much!
I just hate seeing your poor arms in such a condition what with the bruises and skin rash. I’m so sorry you’re stuck in the hospital, but hope the potassium starts helping and brings your numbers up. Sending lots of love your way!!! ❤️♥️💗🦓💪🏻
After a rib removal surgery, I was discharged from the hospital a couple weeks ago. Every thing they gave me to eat tasted awfullll. They told me it was from general anesthesia. No. It was just nasty. I’m so upset I found Amy and her channels so late. She’s such an inspiration and I know she’s finally healthy and pain free. I know she’s appreciative of all the comments we’ve been leaving for her. Rest easy, beautiful.
I have never commented on any of your vidoes not because i dont follow you. Your a very inspirational individual no matter what life brings you. I wish for a speedy recovery and they find you some answers in life that will kick this in the butt. Keep being positive no matter what girl.. much love from Texas
Amy, I could relate so much when you were speaking about how nobody wants to take charge at Gastro! It's so frustrating when Doctor's don't really know what to do with you and everyone is saying something different. It's especially bad for rare diseases...hang in there and all the best; I wish for a speedy recovery!
Tom is so sweet.. I love when he is brushing your hair. You to are a match made in heaven. He always makes you smile and he loves you so much and I know you love him some much too... #Relationshipgoals so please tell him how amazing I think he is. I wish I could find me a man like him. Every guy I meet runs away when they hear I have a chronic illness...
I've been told this is why doctors/staff and patients get the same food here (at least in TX), so there's decent selection and quality. You can probably see the incentives there lol...
Like I said, I was lucky! In Canada it was good for the MOST part, except that tuna casserole. lol It wasn't GOOD, but it was very... bland? Thank god they give you salt.
I feel you with no one agreeing. I need surgery to help my Cerebral palsy. Every doctor says something different. They all say that the Dysautonomia needs to meet under control before they do anything. I’m not sure if I can wait that long though.
you're so right about the food!!!!! i was on an adolescent psychiatric unit for 6 weeks and most of the other kids had to rely on their own snacks because the meals were gross but also tiny and probably totalled about 700 calories a day!!! but im sending u all the positivity and strength i can
I still watch Amy’s videos all the time. I too have a chronic illness and always have a question. If anyone else have clogs in a NG Or NG tube that clogs, flus with warmer water before and after each bag. It works. That’s just if u had problems with your GJ. And I’ve been blessed with a heart which took me off the terminal list. I was dying in. I still have lots of issues, but I’m alive and feel stronger every day. Prayer works. I struggled for every breath. I was in Vanderbilt. What an amazing hospital. Amy, please pet my dogs Athena and Lexi. I miss them. Much love from Kentucky, Lesley and medical Service Dog Jake.
Feel heartbroken 😭. She was such a fighter and a warrior for her cause. What are her fur babies going to do and also Tom. Rest in peace Amy you will never be forgotten and your memories live on 😥😥 xxxxxxxxx
My God, Amy. I hope you get well soon so you can go back to do the things you love. I keep you in my prayers and I have to admit I absolutely agree with you about hospital food. Next week I’ll have a surgery and think about that food... you know 😂 Stay strong girl, after a storm the sun always rises back ❤️
I have chronic Lyme disease and last time I was admitted (North Manchester general) I just asked for toast and a cup of tea at mealtimes for 6 days straight
Omg! I've had Potassium bags like you when I was in hospital a few years ago as I had really low potassium and it literally burns. It is so not a nice feeling at all.
Potassium through an IV hurts so bad! After my last baby my Potassium level was really low, spent all night getting bag after bag run through me. Each one seemed to get worse.
I love your channel. You're very genuine and I like your happiness. I have mental health problems and it makes me realize that there are people in this world with all sorts of conditions who manage to lead a happy life even when their chips seem down. You rock.
I get the potassium thing!! I'm queen of hypokalemia lol. The same thing happens to me (drops even when I have it) which is why i require so much. Also low mag and phos typically accompany - it has to do with malnutrition. I get everything u said, plus the low WB, you name it. Hang in there!
I totally understand how you feel with the nasty hospital food... I have been on a liquid diet for 8 weeks now cause I had surgery to fix my hiatal hernia and to try and help with my acid reflux and also try and helped G.P. And OMG I had to get very creative with how to make that mushy stuff they call food. If you add butter, brown sugar, and maple syrup and it kinda in almost edible... I hope you are doing better... Sending you hugs and love from Oregon
@@awaitingaugust1681 yes actually it has helped me a lot with my acid feflux, I have actually not had to take anymore of my meds for acid reflux. My hernia is fixed and I don't have the crazy bloating that I used to have on the upper part of my stomach. My GP hasn't improved much and I have been have problems with food I have never had problems with before. I am very happy I did the surgery cause I do feel better then I did and I went from have such bad acid reflux that it would start to drain out my nose ( sorry TMI). Thank you for asking...
Mary Deforge here again, I'm feeling your pain as to share your story about your potassium i.V experience i know how painful this is I'm so sorry you had to go thru so many infusions God bless you your such a trooper hang in there all my love and prayers all the way from the USA your friend M.B.
Omg Tom was so gentle with your hair! My brother volunteered to brush once cause my shoulders were killing me, he literally made my scalp bleed because he was just hacking into my head!
“I don’t want to survive I want to live” truer words have never been said ! After siX years of fighting ,my body is jreally starting to show wear and tear but I decided some time ago I’d rather have 10 years doing what I want in the way I want to do it than 20 years worrying about every move every choice ..wrapped in bubble wrap !?! Quality over quantity ..I would be like somebody baking your favourite carrot cake ...it’s your favourite..in a attempt to have the cake around for longer and last all week you have a tiny piece a day sure it lasted 11 days but it got dryer...grosser and less enjoyable as time goes by ..SO GORGE ON THAT CAKE WHEN ITS FRESH AND MOIST it’s gone by tomorrow but every one talks about it for years and if becomes tradition! I am said carrot cake and I don’t want to get all stale and the cream cheese icing gets all funky ...I want them to enjoy the me cake while it’s good 👌🏻 Often my families protective instincts kick in and they come from a place of only a love and care they want me around for as long as possible so they says “get down from there” ....or let me carry it ...ect! Totally understandablep them I had it easy being unconscious on a vent while they are the ones who get told to say good ect 😕 The few times I’ve nearly passed (Drs he no clue how stubborn o am 😎 And my family fought for resuscitation and I’m glad they did) I wasn’t scared of dying in fact the last conscious feeling before crashing is waves of euphoria an calm never done drugs but its probably the same as the “warm hug from god” addicts describe 👌🏻 I’m sorry I’m a badly sleep deprived and in pain so this this post is a rambling mess😂 however that idea of wanting to live rather then survive hits me so hard because I’m 100% on board ! What’s the point of living to 80 in a protective bubble in a bubble suit .. never touch another animal and not even achieve d one thing from your bucket I’d rather have 5 of me being unapologetically me !xx
I love and admire your courage to share your illness. You are strong, Beautiful, and AMAZING. I have a blood disease and I'd NEVER have the courage to share all I go through. But I really admire you and your courage ❤️🖤🧡💙💚💛💜
Amy, have been following you on and off for a while and I've come to the conclusion that you are are a person who makes the most out of life. Irregardless of the crappy hand that you have been dealt. You have a kind and loving boyfriend who makes your life all the better. Kudos to the both of you.🦄🦄
Bless you Amy! Tom is such a blessing! Wow you are SO BLESSED to have him💜❤ You got this girl!! Also thank you for responding back to my comments..for some reason I went on my GMail & it showed me them all. RUclips didn't let me know. Much love to you sweetheart💜 You are a queen👑 God Bless you & Tom.
Hey amy praying for u and I have been in pain for 2 months now almost 3 months every second of every day seeing a lot of doctors about my acid reflux and gastroparesis
Im in and out of hospital with kidney trouble..i understand the food issue...im praying for you amd i pray all is well.. you are strong and an inspiration to me to push thru❤❤
I was lucky the last time I was in the hospital. The food was okay! Except that one time, they sent me tuna casserole. :x I couldn't even smell it without gagging!
I know you hated some of the food you got but they are way better options for GP than my hospital. Their clear liquid and liquid diets are awful. ..and there are no real soft food options.
That's neat how you can tell the people at the hospital what you want to eat by using a computer. Here at my local hospital here in the United states somebody from the cafeteria comes around to your room and gives you the options of what you can order and you tell them what you want to eat. I wish we could order our food from a computer at our hospital. What's funny about hospital is they want you to get some rest but you can't get any rest because from how many times a nurse comes in your room lol. I get more rest at home than I do in a hospital.
yeah.. gastroparesis sucks. they didn't let me have enough time between my premeds and my meals, so i was sick pretty much all the time. i tried to tell them 30-45 minutes prior but they didn't seem to like following a schedule...
Is beans a normal part of Australian food? It’s odd... especially for breakfast lol. Here in America you never (unless you get baked beans in the far north) see beans at breakfast. Here it’s eggs, bacon, bacon, egg and cheese sandwiches, etc for breakfast + pancakes and French toast. Muffins, donuts lol.
Know what you're going through. My husband has gone through all that. He would go home for 3 days then spend 3 to 4 weeks in hospitality. This went on or 21/2 years. He's on TPN now. He can't seem to gain weight.
Totally understand the struggle with the food in hospitals. I’ve been in hospital for like a week. I have to eat 100% gluten free but the hospital didn’t have any gluten free options. Ate cucumber and yogurt for a week cause they couldn’t manage to get gluten free meals.
Hello, I see what you felt with potassium, at the hospital in Lille France) where I had heart surgery, I lacked potassium so in the catheter and the burn was horrible, I think it is the biggest pain I have felt in two months of hospitalization and it lasted about 15 to 20 minutes if I remember correctly. We in France are lucky to have a health system that takes care of everything and that must not be lost or we will become like the United States, it is the richest who can seek treatment. Very good luck to you, I say a prayer for you, may God keep you ...
Question: how do you bend your arm with the cannula in the part of your arm that bends? I can't do it! I can feel the tube trying to bend underneath my skin. Maybe I'm just a wimp 😂
it's only plastic in the vein , the needle gets out the second they push the plastic part in so you can bend the arms , it can be uncomfortable though.
They did the same thing to my dads puréed foods. His turkey came in the shape of a turkey leg. It looks so bad. The peas you got look exactly like my dads and I wouldn’t even feed it to him.
Lol, your face with the porridge. FYI, I too licked the bean juice off a spoon back when my swallowing was worse. I just wanted to TASTE real food. Too funny! Happy to be past my bean juice days. I hope better days are ahead for you soon!
Keep on goin forward girl!!! Btw about why they don’t give potassium phosphate is because it crystalizes easily and that can become life threatening. I’m not exactly sure and this guy called chubbyemu could explain it better.
Since when do you eat regular food trays in the hospital? I guess I am so used to seeing you not eat that I was surprised to see you order actual food lol!
She is chew and spitting and of she is also draining. Now that she has the PEG-J it is a lot easier for her to drain and then is she is able to even get a few extra calories while the food is in her stomach before she drains that help.. Even a small amount of extra calories helps.. I have to do the same thing and sometimes it worth the extra work and sometimes pain to just taste food cause trust me you really start to crave food and you will do anything to feel like you are eating...
Is Amy from Australia? Does she currently live in England? The start of the video looked like england. Also amy you are so strong and inspiring! I don't know how you manage to stay strong! I was on an NG tube for 6 months and it was awful! I don't know how you cope with all these tubes, you're so strong! Xx
When i was in the hostpital for athsma, doctors came in every 4 hours to give me breathing treatments to get my breathing level to a normal level. Bich👏i👏could👏not👏sleep👏. It was miserable and honestly respec you so much because i could never be as strong as you...
I am late watching your video. I hope and pray you feel better soon. I am so proud of you You are so strong,beautiful, so smart. You are in my prayers always ! Hugs
Ya I really hate the burn potassium I run double pigtail in my chest. Miss your videos. I hope your family are well. Hard loss losing you. Gone but not forgotten.
I take Spirolactone, it raise's your Potassium Level. I used to go into the hospital every month because of super low potassium. And it really burns going through an IV. Now mine stays just high enough where I don't have to do it anymore!💜
Not sure if they will do it for you, but when my Mom needs Potassium, they have the pharmacy make the bags instead of using the premade bags--they use the smaller IV bags-500ml and add potassium and run it a little quicker because its more diluted and doesn't burn so she's happy (as happy as she can be in the hospital lol). Hope you are feeling better!!!!
i have to agree about hospital food when my wife had a spell in hospital i ended up taking sandwich's and flaks of soup other wise i thjink she may have starved
You should ask to get a port put in that way you don’t ever have to be stuck again then they can put up to two IVs in the port my mother had one and she never had to be stuck again
I had that the week befor Xmas had calcium potassium and magnesium for two nights running like you in both arms six weeks later still taking magnesium and potassium fed up just wanna be well xxx
I remember the food I got when I was admitted. I actually ended up starving myself because the texture, the smell and the taste were making me feel sick and the food was difficult to swallow. I ended up living off cereal in the morning and an apple in the evening. I was too shy to say I didn´t like the food and had difficulties eating it. Probably was stupid because I had dropped 2 kg in 3 days
Potassium burns even with the saline. My hospital here in the US doesn’t give them unless it’s an emergency now. My veins look like I’ve shot Heroine for years the one IV tech said when looking at my veins in the ultrasound(hard stick). I have low potassium and I drop at least twice a year. Last year I collapsed due to my potassium being 1.4 and my magnesium being 0.3. It sucks.
My gastoparesis is so bad that I can't hold anything down at all ,I'd rather not eat and suffer more ! My husband is so helpful and supportive ,I'm very lucky he truly takes care of me ! We have been married for 36 years and he's still so supportive! Things are very bad right now and I'm constantly in the hospital which is horrible! When I first got the disease was very optimistic, but as the years went on it got so much worse ! I can barely function ,it's so extremely hard ! I feel so sick everyday .but have the same routine as Emily with the help of ,you husband! It's getting so incredibly bad ,and I feel myself falling into depression! I also gas copd ,ptsd,and was sexually abused a as a child ! It seems like my life would be hell all the time ,but I have an extremely helpful and supportive family, I'm so lucky ! You ate so brave it's the only way to go ! I also have a connective tissue disease and pulmonary Fribrosis,which means I have have ,you lungs drained and spend alot of time in the ICU with chest rubes in ! Life can be so hard ,but I believe Jesus will cure me and even if he won't, you trust in alone !
Absolutely Amy! You deserve the very best in this life because how much of yourself you humbly give. I am all the way from the United States of America and I some how found your channel. Oh yeah! My twin birther went through a gastric bypass surgery and I was interested in how they tube fed him. He very recently told me he has to go through another surgery because he's still not able to eat normally. He got this type of surgery in the first place because he was so morbidly obese and it took a toll on his heart. Obesity runs in my family. Even I try to watch out for it. Tell them to feed you some REAL food that's edible! Damn! If they don't, throw it on the floor and make them clean it up! ; )
When they give you liquid potassium ask them to give you a lidocaine backer which is lidocaine with in the bag of potassium that helps numb it so it doesn’t hurt as bad as hike getting the Potassium I have learned from personal experience
I don’t understand why they don’t bring you more food you can actually eat. The last time I was in the hospital to stay when I had my son. I got a decent sized menu to pick from. I got to also got to get literally as many drinks as I wanted. So I would get iced tea, juice, a soda, coffee or hot tea. 😂 And I got to get extra food (because I was breastfeeding and needed the extra calories) but the menu definitely had quite a few things you would of been able to eat. That would be drainable. I’m fortunate as well that the hospitals near me actually have decent food.
To be honest I expected the food to be way worse I'd actually eat that gladly haha but everything else in the hospital... oh gosh girl you are so so strong ❤
![Gucci Mane & Sexyy Red - You Don't Love Me [Official Music Video]](http://i.ytimg.com/vi/j7IBqyFKT4c/mqdefault.jpg)
Watching your videos back - RIP
omg did she die? when?
@@kimsordyl she passed in April 2021 🥺
@@brendab3204 That's so sad 😭 Thanks for letting me know :(
❤️❤️
@@kimsordylshe died on April 1st 2021
My heart is broken. Our Zebra community has lost such a massive warrior influencer who raised so much awareness. This video hit me hard because I'm on IV potassium everyday and my magnesium is always super low.
Amy you were the most hard-core fighter who came back from this near death weight loss and seemed to do so much better once you got put on TPN . It sure seemed unexpected. We lost a beautiful unique soul and I hope that wherever you are, you're finally pain free for the first time ever. You showed such beauty and strength in your stripes. I hope you're free of them now.
I am in this same boat right now. It sucks. You have helped me so much!
“I don’t wanna survive, I wanna live” made me sad and enjoy your life to the fullest like you seem to from other videos that over watched
When?
😭😭
Rest In Peace 😔❤️
I just hate seeing your poor arms in such a condition what with the bruises and skin rash. I’m so sorry you’re stuck in the hospital, but hope the potassium starts helping and brings your numbers up. Sending lots of love your way!!! ❤️♥️💗🦓💪🏻
Absolutely sad 😭 bless her going through so much but still smiling RIP fly high angel xxx
After a rib removal surgery, I was discharged from the hospital a couple weeks ago. Every thing they gave me to eat tasted awfullll. They told me it was from general anesthesia. No. It was just nasty.
I’m so upset I found Amy and her channels so late. She’s such an inspiration and I know she’s finally healthy and pain free. I know she’s appreciative of all the comments we’ve been leaving for her. Rest easy, beautiful.
Last time I heard she was seriously ill in hospital. Has she passed away x
@Toast Malone Wow. Soo edgy.
she was an amazing person/ friend i miss her everyday
You’re a warrior and honestly one of the strongest people I’ve ever seen. You inspire me by never giving up. I wish you well wishes 💕
I have never commented on any of your vidoes not because i dont follow you. Your a very inspirational individual no matter what life brings you. I wish for a speedy recovery and they find you some answers in life that will kick this in the butt. Keep being positive no matter what girl.. much love from Texas
Amy, I could relate so much when you were speaking about how nobody wants to take charge at Gastro! It's so frustrating when Doctor's don't really know what to do with you and everyone is saying something different. It's especially bad for rare diseases...hang in there and all the best; I wish for a speedy recovery!
Tom is so sweet.. I love when he is brushing your hair. You to are a match made in heaven. He always makes you smile and he loves you so much and I know you love him some much too... #Relationshipgoals so please tell him how amazing I think he is. I wish I could find me a man like him. Every guy I meet runs away when they hear I have a chronic illness...
Oh Amy I've been so worried about you. I hope you can keep positive you can do this xxx 💖
All I have to say is that those pureed peas looked like the plastic toy peas that you see in a child's play kitchen
Dani Gwizdala ahaha they did 😂😂
Dani Gwizdala lmao
@@amyslife4457 Hospital Food is Bloody Disgusting.I would have had your Boyfriend or Guy Friend sneak in some good food lol
I've been told this is why doctors/staff and patients get the same food here (at least in TX), so there's decent selection and quality.
You can probably see the incentives there lol...
@@amyslife4457 When I had my operation the food was disgusting 😂😂😂😂😂
I can see that hospitals food is exactly the same aweful all over the world! :(
Keep doing your best and dont forget to smile but much more laugh NO MATTER WHAT!! :D
Like I said, I was lucky! In Canada it was good for the MOST part, except that tuna casserole. lol It wasn't GOOD, but it was very... bland? Thank god they give you salt.
Eduardo Padilla whenever I’m in hospital my mom will leave to get lunch with my family and bring me back her leftovers.
@@immortalvelociraptor7810 excellent for you that your mom bring you food from outside! :)
Try Japan. They actually care for their patients to get healthy. Beautifully presented too.
I feel you with no one agreeing. I need surgery to help my Cerebral palsy. Every doctor says something different. They all say that the Dysautonomia needs to meet under control before they do anything. I’m not sure if I can wait that long though.
Breaks my heart knowing you’re not here anymore. I love watching your videos so much. Rest in peace gorgeous girl. Wish you were still here 🤍🤍
you're so right about the food!!!!! i was on an adolescent psychiatric unit for 6 weeks and most of the other kids had to rely on their own snacks because the meals were gross but also tiny and probably totalled about 700 calories a day!!! but im sending u all the positivity and strength i can
i me topsch wards for kids are neglected
really missing you today
I hope Amy sees how inspiring she is. She gives me a very good example to keep seeing life in a good manner. Love you Amy RIP 💕 god bless
I still watch Amy’s videos all the time. I too have a chronic illness and always have a question.
If anyone else have clogs in a NG Or NG tube that clogs, flus with warmer water before and after each bag. It works. That’s just if u had problems with your GJ.
And I’ve been blessed with a heart which took me off the terminal list. I was dying in. I still have lots of issues, but I’m alive and feel stronger every day.
Prayer works. I struggled for every breath. I was in Vanderbilt. What an amazing hospital.
Amy, please pet my dogs Athena and Lexi. I miss them.
Much love from Kentucky, Lesley and medical Service Dog Jake.
Feel heartbroken 😭. She was such a fighter and a warrior for her cause.
What are her fur babies going to do and also Tom. Rest in peace Amy you will never be forgotten and your memories live on 😥😥 xxxxxxxxx
My God, Amy. I hope you get well soon so you can go back to do the things you love. I keep you in my prayers and I have to admit I absolutely agree with you about hospital food. Next week I’ll have a surgery and think about that food... you know 😂
Stay strong girl, after a storm the sun always rises back ❤️
I have chronic Lyme disease and last time I was admitted (North Manchester general) I just asked for toast and a cup of tea at mealtimes for 6 days straight
Natascha Heath I live in north manchester, small world 🤗
Hazel Maguire me too! (obviously)
That stuff in the bowl looks like the wallpaper paste I just used for my wall paper boarder...nasty ...poor girl
Sherry L I always thought porridge tasted like wallpaper paste I always used to say that as a child 😂😂
Omg! I've had Potassium bags like you when I was in hospital a few years ago as I had really low potassium and it literally burns. It is so not a nice feeling at all.
Potassium through an IV hurts so bad! After my last baby my Potassium level was really low, spent all night getting bag after bag run through me. Each one seemed to get worse.
I love your channel. You're very genuine and I like your happiness. I have mental health problems and it makes me realize that there are people in this world with all sorts of conditions who manage to lead a happy life even when their chips seem down. You rock.
I get the potassium thing!! I'm queen of hypokalemia lol. The same thing happens to me (drops even when I have it) which is why i require so much. Also low mag and phos typically accompany - it has to do with malnutrition. I get everything u said, plus the low WB, you name it. Hang in there!
Into_LexysWorld thanks Hun! And yeah malnutrition is absolutely awful!
My pain is the opposite. High potassium. Stroke Risk :(
I totally understand how you feel with the nasty hospital food... I have been on a liquid diet for 8 weeks now cause I had surgery to fix my hiatal hernia and to try and help with my acid reflux and also try and helped G.P. And OMG I had to get very creative with how to make that mushy stuff they call food. If you add butter, brown sugar, and maple syrup and it kinda in almost edible... I hope you are doing better... Sending you hugs and love from Oregon
Has it helped? I hope you are doing well and getting some relief! I've got the same issues and they can rule your life...
@@awaitingaugust1681 yes actually it has helped me a lot with my acid feflux, I have actually not had to take anymore of my meds for acid reflux. My hernia is fixed and I don't have the crazy bloating that I used to have on the upper part of my stomach. My GP hasn't improved much and I have been have problems with food I have never had problems with before. I am very happy I did the surgery cause I do feel better then I did and I went from have such bad acid reflux that it would start to drain out my nose ( sorry TMI). Thank you for asking...
Mary Deforge here again, I'm feeling your pain as to share your story about your potassium i.V experience i know how painful this is I'm so sorry you had to go thru so many infusions God bless you your such a trooper hang in there all my love and prayers all the way from the USA your friend M.B.
Omg Tom was so gentle with your hair! My brother volunteered to brush once cause my shoulders were killing me, he literally made my scalp bleed because he was just hacking into my head!
“I don’t want to survive I want to live” truer words have never been said ! After siX years of fighting ,my body is jreally starting to show wear and tear but I decided some time ago I’d rather have 10 years doing what I want in the way I want to do it than 20 years worrying about every move every choice ..wrapped in bubble wrap !?! Quality over quantity ..I would be like somebody baking your favourite carrot cake ...it’s your favourite..in a attempt to have the cake around for longer and last all week you have a tiny piece a day sure it lasted 11 days but it got dryer...grosser and less enjoyable as time goes by ..SO GORGE ON THAT CAKE WHEN ITS FRESH AND MOIST it’s gone by tomorrow but every one talks about it for years and if becomes tradition! I am said carrot cake and I don’t want to get all stale and the cream cheese icing gets all funky ...I want them to enjoy the me cake while it’s good 👌🏻
Often my families protective instincts kick in and they come from a place of only a love and care they want me around for as long as possible so they says “get down from there” ....or let me carry it ...ect! Totally understandablep them I had it easy being unconscious on a vent while they are the ones who get told to say good ect 😕 The few times I’ve nearly passed (Drs he no clue how stubborn o am 😎 And my family fought for resuscitation and I’m glad they did) I wasn’t scared of dying in fact the last conscious feeling before crashing is waves of euphoria an calm never done drugs but its probably the same as the “warm hug from god” addicts describe 👌🏻 I’m sorry I’m a badly sleep deprived and in pain so this this post is a rambling mess😂 however that idea of wanting to live rather then survive hits me so hard because I’m 100% on board ! What’s the point of living to 80 in a protective bubble in a bubble suit .. never touch another animal and not even achieve d one thing from your bucket I’d rather have 5 of me being unapologetically me !xx
Tom is so sweet bless him
Thanks for the ❤️ Amy hope you’re doing much better now starting TPN x
The 'funny' nurse. That is me! I would be that nurse looking after you. x
I love and admire your courage to share your illness. You are strong, Beautiful, and AMAZING. I have a blood disease and I'd NEVER have the courage to share all I go through. But I really admire you and your courage ❤️🖤🧡💙💚💛💜
Yay new videos ..No lies I have been lost with your uploads !! Really hope you are keeping well Amy ❤️❤️❤️.xx
That face u made when u tried the breakfest is wut my grandma did when she was eating hospital food.
(Sry if it sounds mean)
Amy, have been following you on and off for a while and I've come to the conclusion that you are are a person who makes the most out of life. Irregardless of the crappy hand that you have been dealt. You have a kind and loving boyfriend who makes your life all the better. Kudos to the both of you.🦄🦄
Stay strong petal we’re all rooting for you ❤️❤️ xxx
Haha I’m currently in the hospital as well. & the food is 🤢. Lol.
If I may ask why are u in the hospital I'm hope im not being noisy but I wish u the best of luck
Bless you Amy! Tom is such a blessing! Wow you are SO BLESSED to have him💜❤ You got this girl!! Also thank you for responding back to my comments..for some reason I went on my GMail & it showed me them all. RUclips didn't let me know. Much love to you sweetheart💜 You are a queen👑 God Bless you & Tom.
Hey amy praying for u and I have been in pain for 2 months now almost 3 months every second of every day seeing a lot of doctors about my acid reflux and gastroparesis
Im in and out of hospital with kidney trouble..i understand the food issue...im praying for you amd i pray all is well.. you are strong and an inspiration to me to push thru❤❤
Brings very haunting memories back, but it’s nice someone can relate
I was lucky the last time I was in the hospital. The food was okay! Except that one time, they sent me tuna casserole. :x I couldn't even smell it without gagging!
Omgosh, those peas, they are NOT supposed to be all stuck together like that. Awful
Sherry Graham they’re puréed LOL looks very unappetizing
"Purred"
I think they were pureed and then pressed in a pea-shaped mold.
I know you hated some of the food you got but they are way better options for GP than my hospital. Their clear liquid and liquid diets are awful. ..and there are no real soft food options.
Erica Taylor yeah the options are liquid diet which is like clear soups and liquid then a soft diet and then a normal diet
Came across this video today and even though you are still here makes watching your struggle with your health issues even more sad 😢
That's neat how you can tell the people at the hospital what you want to eat by using a computer. Here at my local hospital here in the United states somebody from the cafeteria comes around to your room and gives you the options of what you can order and you tell them what you want to eat. I wish we could order our food from a computer at our hospital. What's funny about hospital is they want you to get some rest but you can't get any rest because from how many times a nurse comes in your room lol. I get more rest at home than I do in a hospital.
Ikr? And in US hospitals you only get breakfast lunch and dinner, not breakfast, morning tea, lunch, dinner, supper and snack!
Ini ITU sakit APA sih, I am from Indonesia, what your sick.. I hope u comeback healty 😊😊
i could never pre-order hospital meals... half the time, i call down for it and by the time they bring it up, i'm nauseous and don't want it anymore!
An Aspie's POV that’s kinda what happens when the food gets here I’m always to nauseous to each much and even chewing and spitting.
yeah.. gastroparesis sucks. they didn't let me have enough time between my premeds and my meals, so i was sick pretty much all the time. i tried to tell them 30-45 minutes prior but they didn't seem to like following a schedule...
Is beans a normal part of Australian food? It’s odd... especially for breakfast lol. Here in America you never (unless you get baked beans in the far north) see beans at breakfast. Here it’s eggs, bacon, bacon, egg and cheese sandwiches, etc for breakfast + pancakes and French toast. Muffins, donuts lol.
I eat beans for breakfast in the USA. I'm mexican though sooo lol
donuts for breakfast? what the fuck
What! Not even like a full English breakfast?? They always include beans!
Refried beans and eggs with tortillas are the best!!!
Amy’s face at 0:58 I died oml😅😆☠️you will be missed so much your lively humour will always be remembered x
Know what you're going through. My husband has gone through all that. He would go home for 3 days then spend 3 to 4 weeks in hospitality. This went on or 21/2 years. He's on TPN now. He can't seem to gain weight.
Totally understand the struggle with the food in hospitals. I’ve been in hospital for like a week. I have to eat 100% gluten free but the hospital didn’t have any gluten free options. Ate cucumber and yogurt for a week cause they couldn’t manage to get gluten free meals.
Hello, I see what you felt with potassium, at the hospital in Lille France) where I had heart surgery, I lacked potassium so in the catheter and the burn was horrible, I think it is the biggest pain I have felt in two months of hospitalization and it lasted about 15 to 20 minutes if I remember correctly. We in France are lucky to have a health system that takes care of everything and that must not be lost or we will become like the United States, it is the richest who can seek treatment. Very good luck to you, I say a prayer for you, may God keep you ...
Question: how do you bend your arm with the cannula in the part of your arm that bends? I can't do it! I can feel the tube trying to bend underneath my skin. Maybe I'm just a wimp 😂
Nadia H not really, you could probably only feel it if the cannula isn’t in properly or you bend your arm really hard lol
@@ac67833 ah - well mine must've been in very wrong! 😂
it's only plastic in the vein , the needle gets out the second they push the plastic part in so you can bend the arms , it can be uncomfortable though.
I had an IV where I bent my arm and I mad them change it a week ago 😂
They did the same thing to my dads puréed foods. His turkey came in the shape of a turkey leg. It looks so bad. The peas you got look exactly like my dads and I wouldn’t even feed it to him.
7:22 I snorted xDD Man, wht a sweet EDS warrior I am missing. I will still continue to watch Amy.
I miss seeing your videos so much ❤ I'm crying you had such an impact on my life. Fly high beautiful
Lol, your face with the porridge. FYI, I too licked the bean juice off a spoon back when my swallowing was worse. I just wanted to TASTE real food. Too funny! Happy to be past my bean juice days. I hope better days are ahead for you soon!
Keep on goin forward girl!!! Btw about why they don’t give potassium phosphate is because it crystalizes easily and that can become life threatening. I’m not exactly sure and this guy called chubbyemu could explain it better.
Since when do you eat regular food trays in the hospital? I guess I am so used to seeing you not eat that I was surprised to see you order actual food lol!
She is chew and spitting and of she is also draining. Now that she has the PEG-J it is a lot easier for her to drain and then is she is able to even get a few extra calories while the food is in her stomach before she drains that help.. Even a small amount of extra calories helps..
I have to do the same thing and sometimes it worth the extra work and sometimes pain to just taste food cause trust me you really start to crave food and you will do anything to feel like you are eating...
Is Amy from Australia? Does she currently live in England? The start of the video looked like england. Also amy you are so strong and inspiring! I don't know how you manage to stay strong! I was on an NG tube for 6 months and it was awful! I don't know how you cope with all these tubes, you're so strong! Xx
When i was in the hostpital for athsma, doctors came in every 4 hours to give me breathing treatments to get my breathing level to a normal level. Bich👏i👏could👏not👏sleep👏. It was miserable and honestly respec you so much because i could never be as strong as you...
I am late watching your video. I hope and pray you feel better soon. I am so proud of you You are so strong,beautiful, so smart. You are in my prayers always ! Hugs
Ya I really hate the burn potassium I run double pigtail in my chest. Miss your videos. I hope your family are well. Hard loss losing you. Gone but not forgotten.
The food I had In my hospital sucked cause they gave me a medication that made my taste horrible I lost over 4 pound in 3 days 😂
My main hospital I can order as much as I want within a certain window.
You're so brave stay strong always may God bless you
I take Spirolactone, it raise's your Potassium Level. I used to go into the hospital every month because of super low potassium. And it really burns going through an IV. Now mine stays just high enough where I don't have to do it anymore!💜
Not sure if they will do it for you, but when my Mom needs Potassium, they have the pharmacy make the bags instead of using the premade bags--they use the smaller IV bags-500ml and add potassium and run it a little quicker because its more diluted and doesn't burn so she's happy (as happy as she can be in the hospital lol). Hope you are feeling better!!!!
i have to agree about hospital food when my wife had a spell in hospital i ended up taking sandwich's and flaks of soup other wise i thjink she may have starved
You should ask to get a port put in that way you don’t ever have to be stuck again then they can put up to two IVs in the port my mother had one and she never had to be stuck again
We love you Amy. Thank you so much for being truly a gorgeous inspiration 💞
I had that the week befor Xmas had calcium potassium and magnesium for two nights running like you in both arms six weeks later still taking magnesium and potassium fed up just wanna be well xxx
I agree with the potassium it burns so much I had a lot of bags last time I was in hospital.
Stay positive sweetheart you're a fighter you can beat this!! 💐❌⭕💝💛💞💜💖
'A lovely...oh christ' is basically every hospital meal ever lmao
I've been thinking of you. sending prayers
I always have an allergic reactions to the sticker things that they over the drips too red rashes its horrible. Sending hugs xx
I remember the food I got when I was admitted. I actually ended up starving myself because the texture, the smell and the taste were making me feel sick and the food was difficult to swallow. I ended up living off cereal in the morning and an apple in the evening. I was too shy to say I didn´t like the food and had difficulties eating it. Probably was stupid because I had dropped 2 kg in 3 days
That is AMAZING that your family advocates for you!!
Potassium burns even with the saline. My hospital here in the US doesn’t give them unless it’s an emergency now. My veins look like I’ve shot Heroine for years the one IV tech said when looking at my veins in the ultrasound(hard stick). I have low potassium and I drop at least twice a year. Last year I collapsed due to my potassium being 1.4 and my magnesium being 0.3. It sucks.
Your face tasting that 😱😂❤️ I feel yeah hospital food is nasty.
I love hospital for where I am
I always cover everything in sugar and salt lol I bring my own 😂😂
You’re so brave Amy! Stay strong beautiful xx
Your poor thing I hope you get better soon may God bless you ♥️🐈📍💚💛💛❤️
My gastoparesis is so bad that I can't hold anything down at all ,I'd rather not eat and suffer more ! My husband is so helpful and supportive ,I'm very lucky he truly takes care of me ! We have been married for 36 years and he's still so supportive! Things are very bad right now and I'm constantly in the hospital which is horrible! When I first got the disease was very optimistic, but as the years went on it got so much worse ! I can barely function ,it's so extremely hard ! I feel so sick everyday .but have the same routine as Emily with the help of ,you husband! It's getting so incredibly bad ,and I feel myself falling into depression! I also gas copd ,ptsd,and was sexually abused a as a child ! It seems like my life would be hell all the time ,but I have an extremely helpful and supportive family, I'm so lucky ! You ate so brave it's the only way to go ! I also have a connective tissue disease and pulmonary Fribrosis,which means I have have ,you lungs drained and spend alot of time in the ICU with chest rubes in ! Life can be so hard ,but I believe Jesus will cure me and even if he won't, you trust in alone !
Praying for you Amy 😔💔
Bless your heart for all the stuff you have to go thru.😘
Absolutely Amy! You deserve the very best in this life because how much of yourself you
humbly give. I am all the way from the United States of America and I some how found your
channel. Oh yeah! My twin birther went through a gastric bypass surgery and I was interested
in how they tube fed him. He very recently told me he has to go through another surgery
because he's still not able to eat normally. He got this type of surgery in the first place
because he was so morbidly obese and it took a toll on his heart. Obesity runs in my family.
Even I try to watch out for it.
Tell them to feed you some REAL food that's edible! Damn! If they don't, throw it on the floor
and make them clean it up! ; )
When they give you liquid potassium ask them to give you a lidocaine backer which is lidocaine with in the bag of potassium that helps numb it so it doesn’t hurt as bad as hike getting the Potassium I have learned from personal experience
Miss you 🙏🌷🇺🇸 RIP
I feel you about the potassium. I've had several IVs they would give me compress to help with the pain. I would have rather gone threw labor again.
Tom was so loving. I do so wonder how he’s doing ….
Two are so great together! ♡ sleep sweet, Miss Amy.
Oh my goodness! That “porridge” looked terrible!
I don’t understand why they don’t bring you more food you can actually eat. The last time I was in the hospital to stay when I had my son. I got a decent sized menu to pick from. I got to also got to get literally as many drinks as I wanted. So I would get iced tea, juice, a soda, coffee or hot tea. 😂 And I got to get extra food (because I was breastfeeding and needed the extra calories) but the menu definitely had quite a few things you would of been able to eat. That would be drainable. I’m fortunate as well that the hospitals near me actually have decent food.
I hate getting blood drawn, and I hate I.V.'s (if I spelled that wrong, sorry). My veins blow really quickly. And they like to hide.
All docs do that pass the buck or don't wanna make decisions for fear of making the wrong one! I
To be honest I expected the food to be way worse I'd actually eat that gladly haha but everything else in the hospital... oh gosh girl you are so so strong ❤
Prayers ❤💜