Living with ALS 12-11-12

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  • Опубликовано: 16 окт 2024
  • A patient's experience with ALS.

Комментарии • 59

  • @kristopherreilly4966
    @kristopherreilly4966 8 лет назад +99

    Kevin, I am 31 and dying of the same miserable disease. I feel for you as I am end stage myself. I hope we meet in Heaven. I have been fighting 6 years, 2 on a ventilator and I cannot hang in much longer. May God have peace on your soul.

    • @He805
      @He805 8 лет назад +7

      Kristopher,you have the same name as my son and he is also 31.I just want too tell you that you are in my thougts and prayers! God bless you!

    • @overthemoon9941
      @overthemoon9941 5 лет назад +7

      Kristopher Reilly God Bless u both..such strength & courage is amazing..🙏💜👏👏👏

    • @green15838
      @green15838 5 лет назад

      Benfotiamine and wheat germ oil!

    • @tammyzhangfilipinachinesec9856
      @tammyzhangfilipinachinesec9856 5 лет назад +1

      Kristopher Reilly Godbless ang have a wonderful journey to see our Father in heaven...

    • @ireneknow3814
      @ireneknow3814 5 лет назад

      Reaching out , hoping you're still around!

  • @drn7481
    @drn7481 8 лет назад +26

    There is no excuse in insulting a sick or disabled person. Kevin was a brave soul and I wish him peace.

  • @your1olney995
    @your1olney995 4 года назад +15

    I love how important it was to him that he share every adaptive aide, equipment and detail of the stage he’s at. He has one big heart of gold. This family is amazing! 🙏🏻😇

  • @TheBrister
    @TheBrister 4 года назад +8

    I watch these videos every once in a while. Kevin's personality and heart during this journey stayed as strong as anyone possibly could have. Even here in this video he's not taking himself too seriously. So sorry for your family's loss.

  • @veepnk
    @veepnk 8 лет назад +9

    This touches my heart because my mom had ALS and passed away from it. It was horrible and very sad. As I watch these videos, I recall the physical changes and symptoms that ALS brings. When you mentioned that you were still struggling to be a human I hope you realize you are doing all you can. I hope a cure comes soon.

    • @TheMrturn1
      @TheMrturn1 8 лет назад +1

      Kevin unfortunately passed away in 2013. I salute his memory when he was young and strong and full of life and health and dreams before this rotten wasting disease broke his heart and those of all those around him.

  • @citizenlizard
    @citizenlizard 10 лет назад +19

    Incredibly strong soul, I don't have his inner strength...not by a long shot.

  • @sfproud
    @sfproud 9 лет назад +6

    You articulate better than most. Thank you for sharing such touching aspects of this hideous disease.

  • @macbuff81
    @macbuff81 4 года назад +8

    The speed of deterioration is utterly horrifying :(
    We need to find/develop a cure now!

    • @jayg-lg2ot
      @jayg-lg2ot Год назад +3

      I know . I'm newly diagnosed and I'm so scared.i don't wanna die .

  • @ron78tht74
    @ron78tht74 Год назад +4

    How can someone be so brave incredible

  • @margaretcabral535
    @margaretcabral535 8 лет назад +19

    I am sorry Kevin passed away.
    RIP Kevin

  • @detroitbluesguy
    @detroitbluesguy 9 лет назад +5

    Truly a Class Person! Thanks for teaching us, Jerry

  • @God.Almighty
    @God.Almighty Год назад +1

    hadn't seen this complete video before and happily i understand about 90% of what he says. strangely more so than the previous couple of videos. love how his daughter distracts him or makes him laugh every time he gets sad and teary. like come on old man, let's not go there.

  • @kimyoungblood7058
    @kimyoungblood7058 6 лет назад +2

    I learned so much about the progress of AL and how much we need to stop this disease. I did not know. My deepest sympathies to the family.

  • @johnwilder3356
    @johnwilder3356 7 лет назад +4

    to Kevin family may I offer my heart felt condolences on his passing.

  • @embalmers29
    @embalmers29 8 лет назад +5

    My condolences to the family.What a nice guy.

  • @tgarren1964
    @tgarren1964 10 лет назад +7

    Great Since of Humor and great outlook even tho you are living with ALS.
    You have taught me know matter how bad life can get use your inner strength to get you through the day
    YOU HAVE A GREAT SMILE.

  • @katiemilady197
    @katiemilady197 4 года назад +3

    I pray we find a cure for this horrible disease. How cruel for a way for a person to die. RIP Kevin..❤️🙏

  • @abara887
    @abara887 3 года назад +3

    What a Man! ❤😢

  • @He805
    @He805 8 лет назад +5

    Rest in peace Kevin!

  • @ThomasArcher
    @ThomasArcher 3 года назад +1

    Bless you Kevin, and your family.

  • @claudiaescobar3396
    @claudiaescobar3396 5 лет назад +2

    Beautiful soul, 🙏.I cried seeing this video because y seen you from the first video. And the chair is very interesting i thing i need one, am gonna google it! . Now you are in peace and I feel sad for your family

  • @mrwolsy3696
    @mrwolsy3696 Год назад

    God bless you Kevin, in maybe 10 months i will feel your battle.

  • @ryansmith2814
    @ryansmith2814 7 лет назад +3

    that progressed so quickly I'm so sorry

  • @sohovotex9269
    @sohovotex9269 8 лет назад +2

    I hope the best for this man....

    • @josecuadra2369
      @josecuadra2369 8 лет назад

      +Fashionpassionlove unfortunately I think he already passed away

    • @josecuadra2369
      @josecuadra2369 8 лет назад

      +Fashionpassionlove www.legacy.com/obituaries/sandiegouniontribune/obituary.aspx?pid=165278996

    • @mannyenviado137
      @mannyenviado137 8 лет назад

      +Fashionpassionlove he is deceased.

    • @mannyenviado137
      @mannyenviado137 8 лет назад +5

      +Fashionpassionlove O'Donnell, Kevin Joseph 05/25/1957 ~ 06/09/2013 SAN DIEGO -- Kevin Joseph O'Donnell, 56, of Scripps Ranch passed away peacefully at home with his wife at his side and surrounded by the love of his children on June 9, 2013. He was born in Wilkes-Barre, PA, and moved to Los Angeles with his family when he was 13 years old. Kevin was a Boy Scout and excelled in sports, especially in football at Pacific Palisades High School. He received a BA from USC and was a beloved Phi Gamma Delta Fraternity brother. Kevin briefly dabbled in acting in L.A. before becoming a CPA in 1988 embarking on a career in accounting. He was employed as a CFO at several San Diego companies in the past 25 years. Most recently, Kevin was the CEO and President of Crownair Aviation for 10 years. After leaving Crownair in 2009, he continued to work as a private business consultant until his illness. Kevin was a loving father and husband who had a passion for the outdoors. He enjoyed hiking, biking, boating and photography. He also coached basketball teams for all of his children. Kevin was a proud member and sponsor of AA for 26 years. Kevin is survived by his parents Joseph Vincent O'Donnell and Mary Teresa O'Donnell, his wife Carol O'Donnell, as well as his 5 children, Jessica O'Donnell, Dena McQuestion, Kevin O'Donnell Jr., James O'Donnell, and stepson Beau Behrends. Survivors also include his two brothers, Jim O'Donnell of Huntington Beach and Jeff O'Donnell of Los Angeles as well as four nieces. Calling hours will be held at Clairemont Mortuary, 4266 Mt. Abernathy Ave., San Diego, CA 92117, on Thursday, June 13, 2013, from 4-7 p.m. Funeral services are at All Saints Lutheran Church, 6355 Radcliffe Drive, San Diego, CA 92122, on Friday, June 14, 2013, at 1 p.m. In lieu of flowers, donations may be made to the San Diego Chapter of the ALS Association in Kevin's name.
      Published in The San Diego Union Tribune on June 12, 2013 - See more at: www.legacy.com/obituaries/sandiegouniontribune/obituary.aspx?pid=165278996#sthash.naaY156C.dpuf

  • @dawnpowell3144
    @dawnpowell3144 6 лет назад

    My sympathy go to you and your family may God grant you strengthen and healing thru in painful time

  • @carlatibbetts8815
    @carlatibbetts8815 5 лет назад

    You Beautiful Daughter .......Dignity for Daddy .... Bless You😘

  • @francesegan8344
    @francesegan8344 4 года назад +2

    my husband is fighting it its hell on earth xx

  • @johnwilder3356
    @johnwilder3356 7 лет назад +1

    that's awesome Gabriel

  • @zytrotechnologiespvtltd9317
    @zytrotechnologiespvtltd9317 6 лет назад +2

    How Long he live after diagnosed?

  • @cruzinstew
    @cruzinstew 11 лет назад +3

    I can understand you : )

  • @jnwd1723
    @jnwd1723 8 лет назад +8

    I would like to ask the God of all comfort to surround all with this disease with his loving healing embrace and that those who are effected will know God loves them and accept Jesus as their Savior before they die so they will go to heaven and they won't be sick anymore and they will be healthy. I would love for scientists, neurologists, whatever doctors to really concentrate on the cause of this and how to stop it...that would be a blessing....it hurts to see people suffering from this...Kevin's life was important and I'm thankful for the support of his family....it's hard to accept the things you can't do anymore that you use to do with ease. I know because I'm dealing with alot of health problems and making it through a day is a struggle...I'm thankful for when I'm asleep cause then I don't feel the pain. it's getting harder for me to walk, I barely can eat anything anymore, losing alot of muscle....it's a bummer because I use to be strong and loved helping others and I can't do that anymore....it's hard to deal with...God bless all going through great difficulties, in Jesus name Amen.

  • @jwsf941
    @jwsf941 6 лет назад +1

    His speech is more garbled here than in the video posted the day before. Sad

    • @Lexyvil
      @Lexyvil 4 года назад +1

      The month before actually.

  • @scottbarrow1846
    @scottbarrow1846 9 лет назад

    bless u my friend my name is scott barrow & i am dealing with A L S ALSO IM FROM A SMALL TOWN NC BLESS U I ALSO DO VIDEO,S AROUND THE GLOBE TYPE IN ( MY BATTLE WITH A L S ) & WATCH & PLEASE SHARE TO THE WORLD FOR NO ONE SHOULD BE ALONE WITH THIS MONSTER DISEASE , IT HURTS ME TO SEE THESE PEOPLE LIKE THIS, IM IN THE SLOW & EARLY PROGRESS WE MUST STOP THIS THING LOOK WHAT IT,S DOING TO PEOPLE,

  • @iamessence6268
    @iamessence6268 5 лет назад

    RIP 😣