RITUXIMAB ROUND 3 | Health Update | Nephrotic Syndrome 💉🏥👩⚕️
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- Опубликовано: 6 окт 2024
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Disclaimer: I am not a doctor or in any profession of the sort. I am just here to share my experiences.
💛 FAQ 💛
how old are you? ➡️ 24
what is your chronic illness? ➡️ Nephrotic Syndrome Minimal Change Disease Frequently Relapsing Steroid Sensitive
what is your profession? ➡️ Professional performer
ethnicity/nationality? ➡️ British Born Chinese
What medications are you at the time of this video? ➡️ 150mg Cyclosporin, Rituximab Infusion
sub count: 1370
I started my Nephrotic Syndrome journey back in 2003. My biopsy showed Minimal Changed Disease. After 2 years past and my biopsy showed Focal Segmental Glumelorusclerosis and my kidney functions are gone and went on dialysis. After my first transplant Nephrotic Syndrome again with MCD later FSGS lost the kidney and I also lost my second transplant the same way. I am 35M on dialysos for 19 years now. I wish you remain stable.
I have C3GN diagnosed at age 9 in 2014. C3GN is what the doctors consider to be an ultra rare kidney disease. Ive had alot of treatments and 3 renal biopsies at a young age. I had nephrotic syndrome for 8 years and just 2 years ago, my doctor said my proteinuria is gone below what is considered nephrotic range proteinuria which is more that 3.5g per day. My proteinuria is 1g per day and the nephrologist said this is considered sub-nephrotic range proteinuria. Hopefully i dont relapse at some point but for everyone struggling with similar issues, we are in this fight together, stay strong and stay positive.
It's not easy to be diagnosed with this nephrotic syndrome, I've been fighting it for a year now, this disease lowers your self-esteem a lot, and there are days that really just make you think about giving up, not taking the plenty medications and leaving it in God's hands , but giving up is for the weak and we are not, I hope you get better soon as well as everyone who is going through this situation or other.
God love You ❤️
Thanks so much for sharing your story. Wonderful to hear about your success with Rituxan!
Hello, I'm Billy and I was Diagnosed when I Was 13 years old, I've just gone 20. I have been trying to get of my steroids since and I'm currently at 15mg. It's not been easy and I've definitely struggled a lot with it all mentally and physically. but seeing your videos is so inspiring and helps me push more for my health instead of giving up. It's not an easy journey but I'll get there and I'm really looking forward to when I do!!!
Bro never think of giving up i am also facing the nephrotic syndrome from last 3 years but we will be fine one day
Get well soon, hope a recovery from Lupus!
I am SLE Rheumatoid Arthritis and Nephritis overlap patient going trough my second Rituximab infusion very soon, i have been told that infusions help fight the disease and get it neutral stage in few cases. I am hoping you feel much better now a year after your 2 infusions. This video really makes positive impacts on awareness and motivating for Lupus victims.
Thanks for sharing .💙
I’m glad to hear that you’re getting better now👏🏾👏🏾❤️
Just had my first treatment. Your videos have been very helpful. I’ll have my second Rituximad in 2 weeks. Hope you are well, and thank you for your encouraging videos.
Hii, How you are now?
Update?
Glad you are doing well. I will pray for your health. Hope all goes well in the future!😀
really love your energy and positivity! So inspiring and spirit-lifting
Thanks for the update. Keep up the good work, really appreciate listening to your experience vs ours.
I had every sing thing u had CRAZY 🙂
New subscribers 🙃🙂
Hi Jasmine! Have found your videos and blogs so helpful these past few months! Wondering how you’re getting on? X
Hey Jasmine, thank you for blogging the process throughout this journey! My brother was diagnosed with C3 glomerulonephritis a year ago and we are discussing doing rituximab round. Two questions for you? We’re you in remission prior to the rituximab? Did you feel any side effects during the few months after your rituximab treatment?
Again, thank you for all your content! Watching your videos gives us hope!❤️
Hey! thanks for your comment! I hope your brother is okay?! 😄
I was in remission that is correct and no side effects, just sleepy from the antihistamine 💙 thanks again! x
@@JasminesJourney Thank you!
I’m just starting my treatment this month I run my own business just checking I can still work many thanks
omg what a coincidence After 10 months i believe my rituximab had also worn off and a simple cold seems to have had brought it back but before we did rituximab our doc wanted to start prednisone again but might eventually get an another infusion too.
Does it works for relapse of nephrotic syndrome
@@bawanextdoor1521 I am not sure what your asking but yea retaximaub kept me in remission for 10 moths, during which I started going to the gym and made major lifestyle changes.
@@sri0230 How are you now, how many doses have u taken can u give me ur number
Hi JAZZZZ!!! I am really really happy about ur health 🌺🤩 And just a question . I really hope that u will answer to me … Can we have the foods like pizza, chips, burgers (fast foods ) like once a week (not regularly ) when we are on remission …. Is it ok 👍
Reply me sooon 🤗😯
I find it interesting with over peoples side effects because I ALWAYS get ill and I literally can’t walk after I get so weak but some people have no side effects 😅
First one i Was so itchy, second one my BP dropped to 60/90.
Thank you so much for your videos, I have to get rituxan infusions for kidney disease from autoimmune. I’m scared like anything but I hate being on prednisone and similar 😢
Pls update about your health..
My wife is suffering from Evans syndrome for the past 3years amd recently she received 4 dose of Rituximab infusion and now hoping for the best results. Just want to ask the time of remission.
Did she relapse after ritu
I was diagnosed with MCD lst 2019 and did not have relapse at all but year 2021 i got pregnant surprisingly so they increase the dosage of Cyclosporine to 150 2x a day when I was 6 months preg now i dont have any sumptoms or relapse at all the only one thing i am concern is the kidney function went down ...how is your kidney function?
Hi did u gain weight with infusion rithmatab ❤
Hi , my daughter was just diagnosed 4 weeks ago , she is 3 💔
Hope your daughter is doing better.
How is your daughter doing now? My daughter has issues she is just 3 😥
Hi.. hope you are doing well after 3rd dose.. No updates from long time
🙋♀️Hi Ravig from Austria 🇦🇹,
Rituximab gives many patients worldwide great hope 🙏
Immun-Thrombopenia was diagnosed three months after my third COVID-vaccination in April 2022.
Then my thrombos were only 55k. Since a half year I’m taking Prednisolon 2,5 mg daily which stabilized
my thrombos at 50k. Additionally I have high Cardiolipid and Glucokorticoid Auto-immune-antibodies.
Therefore and because Cortison is no permanent solution, I will start the Rituximab-therapy in one month.
After the therapy I will report to you.
ALL THE BEST TO ALL PATIENTS 🌸👏💐💗
@@lindaflowerpower8498any update?
🙋♀️Hi Jasmine from Austria 🇦🇹,
Thanks to you; your experience gives many patients worldwide great hope 🙏
Immun-Thrombopenia was diagnosed three months after my third COVID-vaccination in April 2022.
Then my thrombos were only 55k. Since a half year I’m taking Prednisolon 2,5 mg daily which stabilized
my thrombos at 50k. Additionally I have high Cardiolipid and Glucokorticoid Auto-immune-antibodies.
Therefore and because Cortison is no permanent solution, I will start the Rituximab-therapy in one month.
After the therapy I will report to you.
ALL THE BEST TO ALL PATIENTS 🌸👏💐💗
Did you take your dose of rituximab injections how are you now
Hi jasmine I'm on the same position as you I've just relapsed again they are going to start me on cyclosporine..any views on this ? They said they don't want to give me steroids again
Hii Jasmine,were you into remission after rituximab infusion
Why are there bubbles allowed to go in?
Did you suffer the cough after get the treatment ?
Can you please tell me is it a good call to go for Rituximab
Ar u ok sister pls rpy🥰
Are you still taking any medicine. Why are you not update in present
Are u completely recovered now?
I'm having a heart attack from all the air bubbles
Can rituximab is give result in nephrotic syndrome
How many days did u take prednisolone in starting period before adding CNI drug do u have SRNS or SSNS
I want more details so i am going to follow on Instagram
Are you fine now?
did you experienced hair loss?
Is this is the last dose !? Miss 🥰
Best wish
Hey how are you now?
Long time no see
Hey
Hi , how r u
No gloves
Hey Jasmine!… Your videos are extremely informative and inspirational… May God bless you with good health always… I’ve been dealing with a similar situation as yours, with second round of Rituximab due this month… I’ve multiple organs affected… Kindly connect with me on a call/mail, whatever is convenient… Take good care…🤗
🙋♀️Hi havanakumar 🇦🇹,
Thanks to Jasmins experience with Rituximab many patients worldwide have great hope 🙏
Immun-Thrombopenia was diagnosed three months after my third COVID-vaccination in April 2022.
Then my thrombos were only 55k. Since a half year I’m taking Prednisolon 2,5 mg daily which stabilized
my thrombos at 50k. Additionally I have high Cardiolipid and Glucokorticoid Auto-immune-antibodies.
Therefore and because Cortison is no permanent solution, I will start the Rituximab-therapy in one month.
After the therapy I will report to you.
ALL THE BEST TO ALL PATIENTS 🌸👏💐💗
I find it interesting with over peoples side effects because I ALWAYS get ill and I literally can’t walk after I get so weak but some people have no side effects 😅