What Is Chronic Fatigue Syndrome?
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- Опубликовано: 1 апр 2018
- This video delves into the underlying mechanisms, symptoms, lifestyle and treatment associated with chronic fatigue syndrome. The purpose of this video is to educate a general audience about chronic fatigue syndrome, its diagnosis, and treatment (or lack of treatment options).
Please look at the following links to gain more information:
PACE trial reanalysis: t.co/aPGuX9aIpg and t.co/as6cZKsf6h
PACE trail: www.ncbi.nlm.nih.gov/pubmed/2...
This video was made by McMaster University students: Sabrina Garritano, Angelica Dimita, Hayley Duff, and Desmond Chan in collaboration with the McMaster Demystifying Medicine Program.
Subscribe to the McMaster Demystifying Medicine RUclips channel: / demystifyingmedicine
This video is provided for general and educational information only. Please consult your health care provider for Information about your health.
#DemystifyingMedicine, #MentalHealth
Copyright McMaster University 2018
References
Courage, K. H. (2014). Baffling chronic fatigue syndrome set for diagnostic overhaul. Scientific American. Retrieved from www.scientificamerican.com/ar...
Lorusso, L., Mikhalova, S. V., Capelli, E., Ferrari, D., Ngonga, G. K., & Ricevuti, G. (2008). Immunological aspects of chronic fatigue syndrome. Autoimmunity Reviews. doi:i:10.1016/j.autrev.2008.08.003
Mayo Clinic. (2018). Chronic fatigue syndrome. Retrieved from www.mayoclinic.org/diseases- conditions/chronic-fatigue-syndrome/symptoms-causes/syc-20360490
Mayo Clinic. (2018, January 05). Chronic fatigue syndrome - Diagnosis and Treatment. Retrieved March 19, 2018, from www.mayoclinic.org/diseases-c...
O’Rourke, M. (2015). A new name, and wider recognition, for chronic fatigue syndrome. The New Yorker. Retrieved from www.newyorker.com/tech/elemen... iom-report
White, P. D., Goldsmith, K. A., Johnson, A. L., Potts, L., Walwyn, R., DeCesare, J. C., ... & Bavinton, J. (2011). Comparison of adaptive pacing therapy, cognitive behaviour therapy, graded exercise therapy, and specialist medical care for chronic fatigue syndrome (PACE): a randomised trial. The Lancet, 377(9768), 823-836.
Rehmeyer, J., & Tuller, D. (2017). Getting it wrong on chronic fatigue syndrome. The New York Times. Retrieved from www.nytimes.com/2017/03/18/op...
Rowe, P. C., Underhill, R. A., Friedman, K. J., Gurwitt, A., Medow, M. S., Schwartz, M. S., ... & Rowe, K. S. (2017). Myalgic encephalomyelitis/chronic fatigue syndrome diagnosis and management in young people: a primer. Frontiers in pediatrics, 5, 121.
Wilshire, C., Kindlon, T., Matthees, A., & McGrath, S. (2017). Can patients with chronic fatigue syndrome really recover after graded exercise or cognitive behavioural therapy? A critical commentary and preliminary re-analysis of the PACE trial. Fatigue: Biomedicine, Health & Behavior, 5(1), 43-56.
Yancey, J. R., & Thomas, S. M. (2012). Chronic fatigue syndrome: diagnosis and treatment. Am Fam Physician, 86(8), 741-746.
I'm so sick & tired of being sick & tired.
Wrong. You must redevelop yourself in a new person. Thats the only way.
Don't get stuck like the others trying to get your (old)self back.
@@mihakavcic7237 It ain't that easy when you have CFS. Do you have it?
Just gonna copy and paste my comment I have left below.. I hope you see this!!
I'm not able to respond to all the comments on here, so I'm just choosing at random.. But please, please, please look up 'The Optimum Health Clinic,' - London, and 'CFS Health,' - Australia. They both help ppl with recovery from CFS. Both Alex (of The OHC,) and Toby (CFS Health,) had CFS/M.E and fully recovered. And they have stayed recovered, living full lives. You can go to their websites, YT channels and FB pages.
I'm with CFS Health (they both offer online courses for people not in their country,) and I also watch everything that Alex puts out on YT, too. (Check out his series under Alex Howard following 3 people who are on The OHC program.)
I have been in the program (with Toby,) for 2 and half years, and I am a MILLION times better than I was..
Long story real short: Symptoms begun 2013 that got worse and worse until the final 'crash,' in Jan 2018. For 18 months I could hardly sit up, brush my own teeth, cook, go to the bathroom ETC ETC. I am now walking a little less than about a mile, three times PW, with no PEM and able to do ALL things in the house and self care, for myself. (INC on the days that I have done my walk.)
THOUSANDS of ppl have worked with both these places and either improved dramatically and/or, fully recovered.
Also, this book (I'll drop a link below,) is AMAZING for giving hope where you think there is none..and they are all different lengths (though all short,) so catering for brain fog.
All I needed was to know that recovery was possible, and that was me with my stubborn head on.. I won't stop until I'm 100 % recovered.
There are NO overnight 'cures,' no 'quick fixes,' and no way out of this except through it.
Link to the book: amazon.co.uk/Recovery-CFS-50-Personal-Stories/dp/1434363589
@@loobylouboti Mine came on with a full force bang in 1988. Had it really bad for two years and then gradually got better. I felt 100% fantastically great and you think you are completely healed from it then boom! a relapse occurs that usually lasts about 3 months at a time for me. About every 3 years I would get a relapse like that. Finally after 8 years of feeling fantastic I think I'm am completely over it then boom! another relapse out of nowhere, and I am now recovering from it after 3 months. And I did nothing to bring it on. You think you are completely healed but then it rears its' ugly head again reminding you it will be in your system for the rest of your life. At least I am fortunate that it goes into remission for me and I feel great now most of the time because some people suffer with it all the time and for very long periods. Oh, and having had it for 32 years now believe me when I say I have tried EVERYTHING UNDER THE SUN to cure my CFE/ME but nothing helped to cure it or make relapses go away any quicker. I mean I could have written a book like that myself with all the different things I did and tried and then proclaimed I am healed and recovered with the different things I tried because that is exactly how I felt for years after my last relapse and I thought I finally overcame it. But boom! like I said it came out of nowhere again and I did nothing out of the ordinary to cause the relapse because I take great care of myself physically and emotionally. And there is a great place right here in the US that specializes only in CFS/ME but they don't proclaim to cure it either but they understand it greatly and help many people with their symptoms by managing them. It is run by Dr. Lapp in Charlottesville, NC. drlapp.com/ It's the Hunter-Hopkins Center.
@@douglasvancier7683 Hiya. I am sorry to hear you keep having relapses! I'm sure that can both terrifying and pretty soul destroying. And I hear ya..Many many ppl *do* relapse. Yet not all. And this is quite an important point. .. The language you have used in your comment assumes that because *you* have consistently, over the years, relapsed, that this is just something that *will* happen to *everyone* This is a prettttttry huuuuuge presupposition! And not helpful, for anyone I might add.
We don't yet know why some ppl develop CFS/M.E and why others, do not. We don't get know why some relapse, whilst others do not. We don't yet know why some ppl are super sick with it for years, whilst others, not so sick and for not so long.. Meaning, less is known about CFS/M.E than *is* known. .. So let's not assume anything in this case is my advice.
And BTW, the book is actually 50 short stories, by (ofc,) 50 individuals whom all recovered from CFS/M.E. Mind, it was written some time ago, so there's no knowing how many relapsed or otherwise. But still, a fabulously inspiring read IMO.
And I *do* also know that both Toby and Alex, had the illness in their early 20s and late teens, they are now in their 40s and 30s, and no relapse.
I also know (and have personally spoken to ) a few of the coaches whom work together with Toby and they too, have not yet relapsed, after over 15yrs since their recovery.
I dunno, but I find it highly unlikely that your symptoms came back for *no reason at all* That's just not how the body works. We may not be aware of the trigger, but believe me, there will be a trigger. But then I don't wish to assume, because as the saying goes, 'Don't assume anything, it can make an ASS out of U and ME. 😉
Just wanna make peace with my mind. It's a holy war inside my body, we are tired!
wow, I am sorry
Please, drink collard green juice it helps a lot.
KEVINS UNIVERSE Look for dr judy mikovits, she discovered the cause of CFS and it’s my understanding that she is helping people recover from this illness, good luck!!
KEVINS UNIVERSE do you get fever?
Excellent Video clip! Forgive me for the intrusion, I would appreciate your opinion. Have you heard about - Dinanlinson Rebooting Health Approach (probably on Google)? It is a great one off product for getting rid of chronic fatigue syndrome without the hard work. Ive heard some amazing things about it and my mate after a lifetime of fighting got cool success with it.
My life has been majorly altered .. I used to be such a fun person. Im so perplexed by this.. sadness is always so near 😞.
Don't worry, Dino. You'll be okay!
Love you bro. Some wisdom i try to remember:
"Your story may not have such a happy beginning, but that doesn't make you who you are. it is the rest of your story, who you choose to be."
This quote is from kung fu panda (lol), but its true. Don't worry about the fact that you were energetic. CFS can take a lot but it can't take you. You're the same amazing person, you just need to keep going. I believe in you!
yeah man its so crazy, life changing
That’s me. I’m 55 and exhausted every day
I recovered.
I’ve been housebound for over 3 years now and people still think I’m just lazy and it’s “just” my epilepsy.
Despite dedicating my waking hours to staying healthy, physically and mentally, as far as I possibly can.
It’s hard not to get defeated by this.
Just in case this gets me as well, did you try any specific diets?
Peace be with you Bianca...
🙏
Same, my dad apparently thinks I'm a lazy pile of crap when I literally have no energy. Bruh, I wasn't raised to be lazy and I still have wants and needs and bills to pay. I've gone to the doctors and they've told me there's nothing wrong with me and I'm perfectly healthy. What do you WANT me to do about it? Keep wasting my time going back to the doctors for something that apparently cannot be cured?
Look into Cervical Instability and the story from Jeff Wood who was diagnosed with CFS. It seems to often be related to instability in the neck vertebrae. When the ligaments in the neck are lax, it allows the vertebrae to move excessively and pinch and compress arteries which slow blood flow.
I think I have this, ever since I was 15 I had fatigue that just popped out of nowhere. I had so many lab tests and blood tests get done i couldnt even tell you. All of them came back as normal. Over the course of a few years it just had gotten worse and worse, until it had just gotten really bad. I still sleep 12 hours a day and after being awake for 8 hours I feel super exhausted. This has made my life very difficult with things like school and work, because when one of these fatigue episodes gets really bad, I get very bad brain fog and just feel exhausted and zoned out.
UPDATE:
I’m 23 now and I’m finally feeling much better than when I posted this! :D. Thanks for the love and support guys it was horrible af and put me a bit behind.
I also live in a different country as well and left the US. That’s when it really improved a lot. Something in the food my body wasn’t tolerating very well I guess
Get yourself tested for vitamin D or try to get less sleep. Getting more sleep than the body needs also causes fatigue.
L
Look into Lyme disease I’m sure it is Lyme .look for Dr.Rawls MD. Or Rawls MD Read book suffered Long Enough.
Same, 100%
When your medical test comes back normal, that means there's nothing wrong with you
I can tell my doctor a thousand times and he still doesn't get it. I think ppl confuse it with being tired instead of fatigued. There's a huge difference. I had such a hard time finding this video which hit it spot on. Now I will forward it to everyone that matters including my doctors so I don't have to try and convince them anymore. That alone makes me feel better 🤯
Me as well
Get a new doctor ❤
Who else tries to avoid talking on your cell phone so you text family and friends only? Energy depleted all the time.
I cant even text most times because I'm so tired....
I really think I have this but I can't get a doctor to take me seriously.
It took me 10 years to finally get a diagnosis. Doctor after doctor ignored me till I saw a locum doctor who referred me to a sleep clinic and they suspected M.E and pushed for the doctors to refer me to a specialist
I diagnosed myself 20 years ago when doctors were saying it was in the patients mind...I simply listed all my symptoms and it equated with ME but ME and CFS are now under the same umbrella....
I have chronic fatigue and Insomnia and it’s the worst thing I’m so tired yet I can’t sleep😤
Edit: it’s been 2 years since this post and honestly my sleep problem haven’t changed I’m currently trying to sleep whilst being awake for 45 hours..
Poor thing 💋 i know it feels so bad. I have it for years now.
concentrate on your breath while you sleep try not to think any other thing , this helps me .
Luna X look into adrenal fatigue. It often causes exhausted insomnia.
This,this is hell
My body is so exhausted my bones are aching and then i want to rest or sleep but i can't so I'm just there laying on my bed trying to bear the pain
Me too I feel tired and sleepy everyday but i couldnt slee
So basically what this video is saying is once you come down with CFS you are screwed. Awesome
pretty much :/
It's true, EXCEPT that if you're relatively young and fit, and/or a newbie, and you're lucky enough to get great medical care AND have someone kind and gentle who's able and willing to to fully take care of your daily living needs right from the start, so you can organise your life to allow you to take lots and lots of rest at first - as much as you feel you need, and for as long as you need - only VERY cautiously restarting small physical and cognitive activities if and when you begin to feel better/normal again, then finding and staying within your 'energy envelope' (= the amount and type of activity/exertion that doesn't trigger PEM - the exacerbation of symptoms/unwell feelings/exhaustion that often comes on in the next day or so following even a minor increase in exertion),
AND if you have very close look at your diet, with or without professional help, and remove all things you find you're currently sensitive to (eg wheat, dairy, caffeine and sugar are very common triggers of symptoms like chronic headaches, insomnia, bloating, irritable bowel and general nasty feelings of malaise), for 6 months to a year or so at least,
AND if you combine that with (preferably, if you can afford it) an individually professionally naturopathically tailored (check their qualifications are real, substantial, and relevant), or else very carefully researched by you, selection of relevant natural supplements, (eg to rebuild gut health, cleanse liver, restore weakened/depleted adrenal function, etc, as needed), and /or use conventional prescription medicines to relieve symptoms (tho exercise great care with these, since regular dosages can provoke further reactions from a highly over-sensitised/out of whack nervous system, without necessarily actually healing anything),
AND check out your psychological state for stress triggers and avoid these like the plague, AND do some form of physical and/or mental relaxation therapy, especially eg mindfulness meditation or super-gentle yoga...
AND don't put any pressure on yourself to achieve any of the above if/when you're really not feeling up to it....
...If you can somehow manage to do all or most of the above, and don't go broke and/or lose your family/support system, or have any other major dramas to contend with in the meantime, you could be in with a chance, if you're lucky. It might take a year or more to heal, but it could happen.
That is my best advice to you (50 year veteran of ME/CFS, seen and tried it all, or most). If all fails, please be aware there IS currently great biomedical research happening, at last, in countries like America, Australia, Japan and Norway, any of which could eventually produce a cure or more effective treatments. Any support (even just online, from bed or couch) that you can give to these efforts will help everyone, potentially, and keeping in touch with developments and joining advocacy efforts can help one feel useful and like part of a worldwide community, who all understand and are working towards the same goals.
ME Action (US and international advocacy and support), the Open Medicine Foundation (US charity funding top quality biomedical research) and/or your local/national/state ME/CFS patient support and advocacy groups are all good organisations to get to know.
Good luck!!
PaperCup
Medical care? Lol
Yeah it has no known cure. Ive had it for 13 years. Take my word for it this video doesn't do it justice watch this ted talk :ruclips.net/video/Fb3yp4uJhq0/видео.html
Lockie Loxton everything can be cured
I didn’t know there was such a thing. I’m always feeling tired I can’t remember the last time I went to sleep and felt rested the next morning. Instead I wake up sooooo tired with headaches and body ache. Through out the day I get so tired that my eyes start to hurt because they want to close. My husband always getting mad at me because I’m “lazy”. I don’t know if i have this but it’s not just me being lazy. 😔
Feels
You could have a mild case. Are you able to work?
Sameeee.:(
Depends cause there are a lot of diseases and vitamin deficiancies that can cause fatigue. Chronic fatigue is just one symptom of M.E. Do you get severely ill by standing or walking for a few minutes ? In M.E the cells dont process glucose and oxygen normally so they dont produce enough energy for the muscles and organs. The brain gets inflamed and views all movement and stimulus as a threat resulting in swetting, extreme fatigue, fast pulse, headache, pain, weakness, memory issues, sensory issues, dizzyness etc.
Aww :( I hope things get better for you
I have chronic fatigue and i am always feeling sleepy, even after i slept 8-9 hours, its also one hell of a task for me to get up from bed daily
Same here🥺
Are you diagnosed? Is there no treatment at all?
I am asking because i am suffering from these symptoms too from a long time.
Same here... even after sleeping for hours, I'm still tired when I wake up.
My mother has this, I’m currently 13 and she first got it four years ago. Thank you to this video for spreading the awareness, it’s just not known well that this exists and so it’s good to have things to explain to people (mainly friends) when they ask,
Wake up at 6am oh wait
I sleep over 8 hours wake up to exercise then I get so tired I need to sleep. I eat then get tired I sleep. I read and then need to sleep. I drive and get so sleepy as if my muscles all pull me down to a drag and need to sleep. I take vitamins and meditate to wake my mind but my eyes get tired and my vision blurs as my muscles grow weary to relax and just wants to sleep.
I feel exactly the same way. It that way for weeks and then goes away and comes back
I'm not alone..
@@nancywalker-keay8361
Hello, I would like to know how much does it cost you and if they easy to take in regularity also I would like to know a about other things
I would like to know if you take or try something beside the herbs?
@@GD-ps8vw no
You forgot to add the pain that comes along with CFS. It’s horrible! I really hate having this. I feel like it’s a waste of life. I hope one day they find a cure. 🙏🏻
anti depressants don't work for a lot of people, and the withdrawal from these drugs are horrific.
Great Video clip! Excuse me for the intrusion, I would love your opinion. Have you considered - Dinanlinson Rebooting Health Approach (google it)? It is a good one off guide for getting rid of chronic fatigue syndrome minus the hard work. Ive heard some amazing things about it and my friend at very last got great success with it.
Cheers for the Video! Sorry for chiming in, I would appreciate your initial thoughts. Have you thought about - Dinanlinson Rebooting Health Approach (probably on Google)? It is an awesome one off guide for getting rid of chronic fatigue syndrome minus the hard work. Ive heard some pretty good things about it and my buddy after many years got astronomical results with it.
Appreciate Video! Excuse me for butting in, I would love your thoughts. Have you researched - Dinanlinson Rebooting Health Approach (google it)? It is a great one off product for getting rid of chronic fatigue syndrome without the hard work. Ive heard some extraordinary things about it and my BF at last got great success with it.
Nice Video clip! Excuse me for butting in, I am interested in your initial thoughts. Have you considered - Dinanlinson Rebooting Health Approach (probably on Google)? It is an awesome one off product for getting rid of chronic fatigue syndrome without the hard work. Ive heard some extraordinary things about it and my friend Sam after a lifetime of fighting got great results with it.
3fishes inatank never upset the complicated chemicals in the body with drugs that are a poison for the body to deal with on top of cfs.
The constant AND LAYERD widespread pain is hell on earth! I can't believe I've lived for this long with it!🥺
I'm not able to respond to all the comments on here, so I'm just choosing at random.. But please, please, please look up 'The Optimum Health Clinic,' - London, and 'CFS Health,' - Australia. They both help ppl with recovery from CFS. Both Alex (of The OHC,) and Toby (CFS Health,) had CFS/M.E and fully recovered. And they have stayed recovered, living full lives. You can go to their websites, YT channels and FB pages.
I'm with CFS Health (they both offer online courses for people not in their country,) and I also watch everything that Alex puts out on YT, too. (Check out his series under Alex Howard following 3 people who are on The OHC program.)
I have been in the program (with Toby,) for 2 and half years, and I am a MILLION times better than I was..
Long story real short: Symptoms begun 2013 that got worse and worse until the final 'crash,' in Jan 2018. For 18 months I could hardly sit up, brush my own teeth, cook, go to the bathroom ETC ETC. I am now walking a little less than about a mile, three times PW, with no PEM and able to do ALL things in the house and self care, for myself. (INC on the days that I have done my walk.)
THOUSANDS of ppl have worked with both these places and either improved dramatically and/or, fully recovered.
Also, this book (I'll drop a link below,) is AMAZING for giving hope where you think there is none..and they are all different lengths (though all short,) so catering for brain fog.
All I needed was to know that recovery was possible, and that was me with my stubborn head on.. I won't stop until I'm 100 % recovered.
There are NO overnight 'cures,' no 'quick fixes,' and no way out of this except through it.
Link to the book: amazon.co.uk/Recovery-CFS-50-Personal-Stories/dp/1434363589
I'm 29 and I've stayed home for 19 months and only left the house 6 times out of which 4 were doctor's visits and 2 were for walks. I feel horribly fatigued even after brushing my teeth. I feel preoccupied and overwhelmed with basic tasks. Been on antidepressants and Neurotransmitter pills. I don't know how to get out of this slump. Not everyone understands me and it's very hard to follow multiple advices. I used to be fun and was on top of the world. Now I'm in a slump like burnout and friends and even family have left me. My psychiatrist is a horrible dude who thinks I'm taking it so I stopped seeing him. I don't have the zeal or even motivation to do the things I loved. Irregular sleep patterns and insomnia, loss of appetite, lack.of prayer and willingness to do things are most common. It sucks to suck so bad man!
I also get loss of appetite and pain all over ,I even get nauseous a bit
Can you let us know how you are now 10 months later?
anti depressants and mood stabilizers do that.
I have this problem, it is so bone crushing and you feel completely impaired with life and the world. I don't know how to fix but thank God I get sudden light and clarity and I'm OK for a few months but it always comes back, and everything I've worked on in those few months completely vanishes and I'm back in bed dead. The beginning weeks feel great as I'm so exhausted but then the terror and horror begins as I release I physically can't move even if I wanted to
I'm always tired, especially after waking up. It gets better in the afternoon and evening. Some days I feel okay and not so tired. Blood tests couldn't find anything.
Same here...did u find any treatment??
Same here.. Im feeling these exact symptoms after taking the 1st jab of covid19 vaccine. It's been 2 weeks now. Morning 9 to 3 I feel light headed and fatigue while I feel ok after 3pm..
@@miacheldey me too. I hate I took the vaccine. I took my last shot the end of April. I been feeling like this every month since I took the shot..😣
@@theparkerfamily9015 are you feeling once in a month or still having fatigue symptoms?
@@miacheldey at first it was once in a month, and it will go away. Now it’s been a whole month non stop. I been to the ER 3 times. They can’t find anything wrong. I hate it!!
I've suffered with cfs for 16 years plus, seen more doctors than I can remember tried numerous drugs including anti depressants which don't work so don't ever start on them, had numerous brain scans, blood tests and day monitors in hospital and still nothing in terms of answers or treatment. You look normal and in most parts act normal, I hide my disease from all but my family and closest friends because I'm embarrassed and ashamed. It's incredibly debilitating and so over looked by the medical world a real mystery
Learn to switch off the stress response and it goes
@@liam.4454 and how do you do that ?
@@markkneale slow down your brain, learn to relax, stop your mind chatter, meditate, educate yourself ok stress, everyone who gets better has to learn these things
Do you have any implants? titanium
Very helpful article. For years I've convinced myself if I could just get back to the gym, my health would improve. Followed by being angry at myself because I am just lazy, and if I tried harder I could get better. As years fly by with no improvement, I feel like I am watching my life slip through my fingers.
You don’t have to start with the gym, try doing smaller things like a morning walk or swimming every once in a while. And if you feel unmotivated, try to find someone who can motivate you. Or try rewarding yourself, and setting goals.
You are not crazy or lazy. This illness is debilitating and you must really have it. You cannot achieve Slow Wave Delta Sleep due to Alpha Wave intrusion. You cannot achieve restorative sleep if you have ME / CFS/ FM. No matter how long you may sleep with the use of medication you will not recover energy through sleep which is the reason humans need sleep. The body cannot restore or repair itself without stage 3 & 4 Deep REM sleep.
That's exactly me. I had convinced myself too that I am too lazy and if I tried harder at gym/yoga I would get better. I am 37 now and it hasn't changed even a bit. I have even quit drinking as at one point I thought alchohol was the cause. But again it hasn't made any difference.
Even yesterday I pushed myself and ran 5k in 30 minutes only to fee veryl tired later and slept almost for more than 12 hours but I am still feeling heavy and tired. Man this sucks. But I am glad that this is a physical health issue and not just my mental problem.
Exactly
@@theprolightingindia try to sleep less
People laugh off chronic fatigue as if people are lying about it. Actually it’s a living hell. I have chronic fatigue and also insomnia. Some days every waking moment I’m physically and mentally exhausted feeling like I will collapse at any moment. It is no way to live, it’s not living at all. Sometimes I literally wish I was dead so I could just rest. Idiots will tell you “you’re fine there’s nothing wrong with you.” What they really mean is they have no fucking idea whatsoever and it’s more convenient for them to label you as a liar than acknowledge how you feel because they don’t actually care. I would rather have cancer than chronic fatigue. Seriously.
It’s is a cancer of sorts.
Chronic Fatigue Syndrome is caused by a severe decrease in ones metabolism. If you are not eating because your depressed or nauseous, the body lowers its metabolism to match your food intake until it is so low your metabolic rate is not high enough to carry out daily tasks. Your welcome doctors.
i cant even do simple stuff like brushing teeth, doing dishes. let alone getting a job, keeping a job and somehow manage to get out of bed really early. sometimes i just wish i die in my sleep so i cant disappoint others anymore
Exactly how I feel :( Had to drop out of highschool (didn't have a proper diagnosis then at all so it was difficult), and then also drop out of a uni course that would give me an atar so I wouldn't have to finish highschool.... there's nothing for me to do except sit at home now. I feel like I'm disappointing my family and friends. Doesn't help that I don't physically look sick either, I had a teacher when I was in school who thought I was faking it too, it only makes me feel more insecure in my symptoms
:( so sorry
@@user-jw3xm3yj9t the good thing is within 100 years we will be free of all this madness
@@eskaban_edits_beats_and_more I understand you man completely,I feel useless and like a burden to myself and others
I was fully expecting this video to be crap, like most info out there on CFS is. But it wasn't crap, it was spot on. As a CFS sufferer for 8 years, this video is completely accurate. Nicely done.
I have been diagnosed with Chronic Widespread Pain and CFS in 2019. I started having symptoms in 2017 (CWP) and 2018 (CFS). I was 16 at the time and started falling asleep EVERYWHERE (in class, on park benches, etc.). My CFS started to show after I did a burnout. My mother thought it was anemia (she has it and there were many similar sysmptoms), but the blood tests came back negative. I'm in college now and I'm really mad because, unlike my teachers in highschool (who knew I was undergoing some tests for CWP and other stuff), my actual programs teachers do not miss an occasion to call me lazy. I don't wish for them to have it, but sometimes, it's the only way a person will understand.
It’s a real pain in the ass 🤦♂️ I don’t wish it on anyone
Please don’t anyone in the comments panic or fret before talking to trustworthy health professionals; self-diagnosis can be good but it’s better to make sure. There’s always hope.
self diagnosis is never good, but people definitely shouldn't panic just because they feel tired sometimes, CFS is so much more
Does anyone else have chronic fatigue & brain fog that has been going on for many years and is severe enough to seriously hinder your productivity, concentration, memory, endurance etc but not severe enough to render you bedridden and unable to do anything, so you don't feel that you could get a diagnosis so you just don't bother going to the doctor?
I mean I know there's not really much you can do for it as far as treatment (I've been on SSRIs and had a bad experience so I don't want to go back on them), but the one reason why I've considered trying to get a diagnosis is so that maybe I could get accommodations in my classes like extra time on exams, because my difficulty concentrating makes me take longer. But I don't think any doctor would actually give me a diagnosis.
Yes that's me between a rock & a hard place 😎
Lol been there done that. Got the courage to get checked, lots of studies SO Many studies, everything checked out fine :)( you guys have implants?
I have chronic fatigue syndrome. I believe it is caused by all the things we do in life that are unnatural for the human body - like stare at a computer screen all day, take birth control pills, smoke, live every day stressed out, live in a polluted environment, eat unnatural foods like white sugar which I know already makes it worse, drink polluted acidic water, eat non-organic foods laced with chemicals. I have allergies and multi chemical sensitivity. I don't think this is a coincidence. I think limiting exposure to everything is the key. During summer time when allergy season hits, stay in an air conditioned filtered room. My adrenals kick in after 6 p.m. so I tend to feel more normal then and can get a bit of housework done now and then. I had a goiter when I was 17 and I think that's part of the endocrine dysfunction. I see all of this as being the result of living a high stress, unnatural lifestyle.
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
Same here.
From what I've seen, CFS is caused by physical or mental trauma (physical as in an illness or smth hard on your body). You having allergies and multi chemical sensitivity could have caused your CFS, but it definitely isn't the root cause for everyone.
@@sisypheanmxe8774 Thank you so much. I can support your opinion with my and my son's experience of being continuously "targeted" for decades.
Yeah idk about that because i know ppl who eat Mcdonalds and are fat and they come into work all chipper and hyper doing laps around everyone else so I don't think that's the case
I've recently been diagnosed with CFS; it took 6 years to get a diagnosis! Before, I did horse-riding, tennis, went to stage-coach... now some days I struggle to get down the stairs. I have to take sedatives to sleep, but even they don't always help. What's worse, I have bipolar and can't have more than the lowest dose of an anti-depressant! Thank you for posting this video, I needed a bit more of an explanation :)
You cannot achieve Slow Wave Delta Sleep due to Alpha Wave intrusion. You cannot achieve restorative sleep if you have ME / CFS/ FM. No matter how long you may sleep with the use of medication you will not recover energy through sleep which is the reason humans need sleep. The body cannot restore or repair itself without stage 3 & 4 Deep REM sleep.
I don't know about the bipolar part but for the CFS there might be a simple cure . Please read my recent comment on this video ( I am not selling anything) .
Thank you, I'm going to use this video to help friends/family understand what we're going through. Thank you so much for this!
Do you say things that don't make any sense when you have a crash?
Thanks for this video. As a sufferer myself, I found the music very distracting & couldn't really follow what was being said some of the time. Hearing problems are one of the many symptoms of CFS/ME, not listed in the video. Good work though.
lately, I find that I need to adjust the play speed settings on youtube. that might help. I often find people talk too fast, people are clueless out there.
This is glorious, been searching for "can stress cause fatigue and weakness" for a while now, and I think this has helped. Have you ever come across - Qiyia Ziyichael Booster - (should be on google have a look ) ? Ive heard some amazing things about it and my m8 got cool success with it.
Cheers for this, I've been looking for "eliminate stress and fatigue severity" for a while now, and I think this has helped. Have you ever come across - Qiyia Ziyichael Booster - (do a google search ) ? Ive heard some amazing things about it and my brother in law got cool results with it.
This was great, I've been looking for "tired vs fatigue" for a while now, and I think this has helped. Ever heard of - Qiyia Ziyichael Booster - (do a google search ) ? Ive heard some pretty good things about it and my buddy got cool results with it.
michellemumford
I don’t have hearing problems, probably indirectly related to other bodily degeneration.
There’s so many symptom
Well done for this balanced and accurate presentation
Eat well, keep eating, drink good water, take multi vitamins and omega , rest well, sleep good, cut on coffee, don’t smoke, go for walk, but then focus on resting, stay positive and time will make you stronger /// remember stay positive and give meaning in life.
In my situation it does not get better it stays the same no matter how sleep I get I wake up exhausted
@@glenparey991 go for a general
Blood test - verify glucose, cholesterol, testosterone level, cortisol, iron, red blood cells, thyroid. Even if rare look at the stds. Also do a test for sleep apnea. //// also eat good /// walk ///
Ok. will do thanks
I do all this and still have no energy, got blood tests too
That's stating the bleedin obvious Peter
Just a quick information for those suffering with CFS, it's heavly linked with past trauma/emotional repression, And a learned pattern by the brain.
I’ve commented here before but I just wanted to say that I have been doing _very_ limited amounts of graded exercise therapy for a good while now and it can (at times) help me to increase my endurance. I’m saying that I will then crash and have to start all over again. I judge mine by steps per day.
At my peak I managed 10,000 steps a day! (Once) and I though “wow! Finally I’m almost better and I’m about to start my life again.” Then I crashed again. Which has happened several times since. I’m currently struggling to get 1250 steps a day, but I won’t stop trying.
It’s exhausting, heart breaking and it’s hard, but 20 extra steps a day can lead to a better life. Even if it only lasts a few weeks.
I’m just never going to give in or give up.
Its dangerous, back off of it.
How are you doing now? I appreciate the fact that you keep going but Have you every stopped and asked if you should? Have you ever stopped and asked if you are doing this because you never give up or because you want to improve your heath? Remember too much of a good thing is a bad thing. Too much motivation isn't good
There was a program on PBS about CFS. It was excellent. I am sorry that I never understood it. I figured that it just meant feeling tired a lot. It virtually puts some people into a COMA! Definitely needs more money for research.
Thank you so much for your support, it really means a lot to people with this much misunderstood, and stigmatised disease. Please also read the comments, which point out some of the flaws in this better-than-some attempt to summarise what is a relatively common, often severely disabling, highly complex, yet still shockingly under-researched disease. ME Action (international advocacy, patient support) and the Open Medicine Foundation (direct funding of top quality medical research) are two great organisations amongst many that are worth supporting.
Melora Foy are you speaking of Jennifer Brea Unrest Documentary? If so it’s really informative and if you haven’t seen it it’s on Netflix now. Ty for taking the time to care enough to learn more about ME! 💜💜💜💜
I don’t have Cfs but I want to tell who are suffering from it to be strong. It’s ok if you can’t do many things. Its ok if people don’t understand you. At the end of the day you have to be happy so stay positive.
Thank you for being kind.
@@iamanoobandiamembarrassed welcome 😀
I'm pushing 59 years old, my problems started around spring of 2019 at 57, about two years ago. Anyone else like this?
This is an absolute awesome explanation.
I had chronic fatigue. It was horrible, I had to stay home and do online school and always forget how horrible it was. I remember walking home from school (I only live a 10 min walk) and having to sit in the grass 5 times because I was so exhausted and couldn't hold my body. My hands and body would shake from exhaustion that I couldn't write and would sleep constantly in class. A short walk would make me have to stay in bed an entire day or even the next day too. I go to school now but i do get more tired than my peers. Nobody understands that I wasn't 'just tired' and I'm so scared to get it again.
did this chronic fatigue go away for you
Yea why do you keep referring to it as like the flu or something you can catch and will go away??
CFS is lifelong and incurable, Isn't it??
@@conceptdesigns4100 it really depends on the person I guess, for some it can last years/their whole life whereas others may be able to find treatment that works for them. I've had it for 8 months so far.
@@sisi6776 it doesn't go away. it's lifelong and there's no cure
@@user-jw3xm3yj9t I've seen other comments that say it comes back after a few months or years
When you have to fight through the medical system and constantly advocate and fight for ur self to doctors but u can’t bc u have no energy
im so tired of being tired😔
Lots of water. Healthy diet. Exercise. Proper sleep. Meditation. .. These things are probably a good start to ward off CFS.
Those things really help ward off tuberculosis and every other disease out there.
This comment is not helpful for M.E sufferers. You are simply encouraging the "lazy" factor of patients. Before I became ill I was the healthiest and fittest I had ever been, and also was extremely energetic. Most people before M.E were athletes, dancers etc. So your comment is very demeaning and extremely uneducated in how M.E impacts the human body at a chemical and cellular level. Your body no longer produces enough mitochondria, and at severe levels any exertion actually triggers the body to kill off cells because it can no longer handle hormonal and chemical transference. Your body no longer processes food correctly. It is a central nervous system failure.
Whilst I always encourage healthy eating and looking after yourself positively. It is a great misconception that those prevent such multi system auto immune diseases or that it can fully cure it if people just "stopped being lazy and ate healthy", because the majority of people were already doing that before they became ill and are still trying their best to recover with a disease that destroys your energy cells that impacts on both your physical and cognitive capabilities.
I have been feeling this way for the past two and a half years, finally a year ago I was diagnosed with CFS. It was a relief to finally have a diagnosis but was disheartening when there was no treatment that would help me feel normal again
I have been referred to a specialist and am really hoping they can help me get normality soon
I was never a poorly person, the only thing that doctors noticed from my blood tests was that I had raised antibodies and so a viral infection of some kind but we don't know what it was..
I hope they find something to ease this!
What happen now?
You have any implants?
Swear I’ve had this ever since I got pregnant 3 years ago 😞 it’s so hard to take care of a young child when your always tired and exhausted as fuck
Thank you for this informative video !
CFS makes me feel like giving up. Physically feeling sick 24/7 makes me feel like not being here at all because I can’t function normally
Yes, like it's probably little derealization i think...
I am always tired and have trouble studying and have very low stamina and lazy troughout the days, everyday
So do i have depression or cfs?
No one with M.E is lazy! So no you dont have it if you think that. You could not imagine the difficulties of torturing yourself to do the simplest things when your nervous system makes you extremely ill by just standing or walking for a few minutes. I once had my boyfriend over for a day and we just lay in bed and talked but the stimulus of conversation was so much effort that I started puking excessively from overexhaustion.
Im 21 years old male and hate this feeling, going to the class not pay any attention what lecturer says, driving 45 km from my home to the campus, i almost hit the vehicle everytime im on the highway i can't focus/brain fog this things is so dreadful.. many blood test, xray could'nt find anything should i go test for ms i always have muscle pain, back pain etc.
4 years ago I was diagnosed with CHRONIC FATIGUE and I have tried everything I could to get rid of this , but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including CHRONIC FATIGUE , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for CHRONIC FATIGUE and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 3 months of use, I am now totally free from CHRONIC FATIGUE , all thanks to Dr. Joshua Ighalo for helping me with my situation. You can also contact this great herbalist for help by email: drjoshua.ighalo@gmail.com or contact Dr. through his whats-app: +2349057958723. They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
I once slept for 2 and half days only getting up to go to the bathroom I was so fatigued. Probably the best thing that helped me was not working a morning shift. There is nothing worse then getting up when you don't want to. So I worked night shifts and it really made a difference. I know they say most people only need 6 or 7 hours of sleep but I usually need 10. I would really be dragging on 8 hours of sleep. I also found that getting a monthly 1 hour massage helped me feel better in my mind and body.
I feel you. Too bad school wants me to get up at 6 and function at full productivity for 7 hours.
I have anxiety, insomnia and extended (potentially chronic) fatigue for the forseable future, with quarantine I thought I was getting better but no, as soon as I start living a slightly more than just lying around the symptoms worsen
@Glory Glory That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
This video made me tear up. I have undiagnosed CFS. So let me expand Hannah's already horrific story.
Hannah lived in the U.S., and by the time she finally started to understand what was happening to her, her ability to work had been so degraded that she couldn't afford to seek medical help. Hannah filed for state-sponsored health care and was approved. She visited a doctor who announced as he walked into the room, "I know nothing about CFS. Do you still want to see me." This despite having listed CFS as one of his specialties on WebMD. Hannah began to explain her symptoms and the doctor cut her off before she could even truly begin. He immediately ordered 5 tests and suggested a sleep study. Hannah left the office completely deflated.
She searched online and called over a dozen doctor's offices and health organizations only to find that no one in her local area, or seemingly her state, had any experience treating the disease. Hannah realized that even with Medicaid, the co-pay costs of her diagnosis would put her out on the street, presuming she could ever find a doctor who actually knew anything about her disease. Hannah was on her own.
Hannah couldn't work, in the traditional sense, due to her disease... but she also couldn't file for SSDI which would require a diagnosis, which she couldn't get. She called an SSDI attorney who told her as much. So she filed for food stamps to help cover her bills while she worked over the computer from home. She was summarily denied food benefits for not sending in paperwork that she absolutely had sent in with her claim. She had even included a copy of the list of paperwork they'd requested, with notations showing each of the documents she was providing penned in the margins. So she called her case worker. Her case worker never answered the phone over two weeks of attempted calls, and never returned her messages. So Hannah called the main office directly. The call was transferred via an automated system to the operator when no one answered. The operator didn't answer either. She left a message for the operator. No one ever returned Hannah's phone calls. Hannah was on her own.
Hannah's condition, which had been primarily physical for the past 5-7 years, now began to degrade her mind. She found herself and her thoughts turning darker and darker, more and more frequently. She would catch herself looking at sharp objects and thinking about what might happen if she consumed toxic chemicals. The thoughts just seemed to seep into her mind against her will. They frightened her.
Hannah reached out to family, asking for help. What she got back was ignorance and insensitivity. Her disease had progressed to a mental health issue, and the very people she reached out to in her moment of crisis made it that much worse. They implied that she'd done something wrong. That she was responsible for her disease. That she wasn't trying hard enough to fix it. And ultimately that she was being insensitive toward their, fully able'd, needs from her.
Hannah killed herself.
And who would blame her?
Thank you for sharing this very sad, and shockingly, not especially unusual story. I'm so very sorry, if Hannah was a friend of yours.
Can I ask one thing? If you're in the USA and you feel able to, would you please send a copy of this to Dr Frances Collins, Director of the National Institutes of Health, asking him to please provide urgent public funding for biomedical research and doctor education?
It's because of the neglect of substantial funding for medical research into ME/CFS, over many decades, that there is so still much public ignorance and such a shocking lack of medical and social care for millions of often very sick people.The amount currently provided is tiny compared to that given to other diseases with a much smaller number of sufferers, and often better quality of life/ functional capacity.
Organisations like ME Action and the Open Medicine Foundation are making massive efforts to reverse this situation, and every bit of help and extra voices, both from individuals and organisations, will help them communicate the urgency of this situation to those with the power to make the necessary changes. (See their websites for more information.)
Again, my sincere sympathy to you and to Hannah, and all affected by this.
It sickens’s me that in America, your health is only important if money can exchange hands. Even writing that down makes me think, WHAT THE FUCK!!!!!!!!!! seriously, in this society, human life will be allowed to end even when there is a cure because the patent didn’t have the money to pay the “bills” it is SICK to the core. What a complete disgrace!. How can anyone who works for the medical companies or insurances companies live with themselves, their decisions are killing people full stop!!!!
Now imagine if Hannah had been in Mexico. At least in the US CFS exists, even if people are ignorant about it. Here in Mexico it doesn't exist, or at best it's a "rich/white people" disease, considered to be laziness.
she was probably just mentally ill and tried blaming it on something that doesn't even exist
I’ve been bedridden for over two months now. I wish there was a cure. I’m too young for my life to be over.
Well might help by getting out of bed cause to be honest laying in bed will definitely 100% make it worse , you should at least try to take a long walk ,
@@jakesteel90 I physically wasn’t able to do that at the time and staying in bed doesn’t make CFS worse. This illness is debilitating and makes it unable to function like an average person. Just a tip be careful about saying stuff like that to other ill people because it is hurtful to be misunderstood and have unsolicited advice thrown at us. You’re not a doctor either so there’s really no point in telling someone with an illness what to do to make it better.
@@thxa_370 thank you for this. That ignorant comment really had me feeling down. It’s not like we chose to stay in bed. It hurts to hear stuff like that. Being misunderstood.
@@thxa_370 thank you. Your words mean a lot to me. I was actually able to get out of bed for a couple of weeks and it was so amazing I made sure to use the time well. I’m sick again but soon I’ll have some good days once this flare up passes. :)
@@thxa_370 wow that’s amazing! I’m so happy and proud of you! I’m so glad you got to go walking. It’s good that you’re going to take a break now. Collapsing is inevitable and it sounds like you’re aware of your limitations and how to balance rest and pushing yourself through to find joy in life. I hope you’re proud of yourself too. Sending love and strength your way friend. You’re awesome! ♥️
This syndrome sucks so much. In my country there isnt much awareness for this syndrome or anything close to tiredness. I have been to few doctors, just to tell me its the pill, age, I do to many things or that it fly over. I am 20 yo now and I struggle to complete a full day of school. I split my last year of school because of this and I am worries since I tried everythig over summer vacation to get my energy back. I went again to a doctor, who said I need to take extra vitamins and be outside everyday. I cant say to anyone that I am tired because thy say I whine to much. I also get to go in therapy for the 4th time now, because they didnt find anything yet. I am getting sick of people and doctors not knowing what to do about this. Thank you so much for explaining and education
Its all in your head.
I got distracted by the music; does this come and go and vary in severity?
So the body can have a fatigue disorder or condition without there being a Stress lifestyle,cardiac, immune, neurological issue? It's strange how one can feel ill (fatigued) with no medical cause
Biomedical research has actually demonstrated many abnormalities in the cardiac, immune, neurological and cellular/mitochondrial function of people with ME/CFS, but a shocking history of underfunding for high level research has made it impossible to follow up on them properly in order to understand the precise underlying causes and biomechanics of these interrelated, multi-systemic dysfunctions.
There are a variety of initial triggers, like viral infections and chemical/toxin exposures, accidents and surgery; long term physical or mental stress or athletic overtraining may be one type of triggering cause or contributing factor in genetically predisposed individuals. In some people symptoms develop gradually over several years, with no single obvious triggering cause.
More medical research info is available from websites like ME Action, the Open Medicine Foundation, Science for ME, the SolveME Initiative, Health Rising, and MEpedia. Your interest, and any support you can give, will be much appreciated!
I've been told by doctors and have read that mono/epstein barr over time can be the root cause of CFS. True? I caught mono when I was 14. My body and energy levels have never been the same. I'm now 27. I constantly have symptoms of mono/extreme fatigue. They never go away. My doctors chalk it up to the mono in my body, but these symptoms are extremely similar to CFS. Thoughts?
Me too on mono testing at my age 53. Been feeling worn down for 6 months at a time then it goes away. Now it's back again. Im worn down from whatever this is. I have no energy at all.
Its possibly Virus related, not necessarily mono
I suffered from it for a long time too but after I had post concussion syndrome (mostly tinnitus, headaches & anxiety) for a head injury I tried upper cervical care and was surprised that it worked great for both issues! If your C1 neck bone is out of position it can cause a lot of symptoms because it is interfering with the spinal cord. Something to look at if you tried everything else like me.
I wanted to watch this video, but then I realise I was to tired...
6:05?! All you had to do was make a 30 second video saying if you have CFS I’m sh!t outta luck and enjoy rotting my life away, good luck!
I’m not tryna self diagnose, but I get so tired in the shower. I have to sit down sometimes. I always struggle to breathe in the shower and I have to stick my head out of the shower to try and get some air. What do you guys think? I don’t think I have such a concentrated for as this girls though
How hot is the shower and how long do you take them for? because prolonged hot showers can mimic these symptoms in otherwise healthy people because you’re body isn’t meant to shower in hot temps for too long. It can throw off your balance. Try bathing in lukewarm water for a month or so and if it’s still exhausting to stand in the shower then I would definitely talk to a doctor about it. Also look out for more than just the shower symptom.
I used to think that maybe my exhaustion came from my long hot showers so I started to take shorter, cooler baths/showers and I still felt exhausted no matter what. (Tho the long hot showers made it increasingly worse)
@@Cakemine7 oh thank you !
I think you get low blood pressure,make sure it's not too hot shower
Can someone tell me if my leg muscles twiches & pain in my calf is due to this CSF or because I’ve been very inactive for 6 weeks due to illness . I did only 3 mins round the garden & I walk around the house a little bit . I just don’t understand
“Headache, memory loss, exhaustion”, exactly what I have had for 20 years. People always think I’m just lazy. But I need numerous naps to go through the day and the memory is foggy.
At least you can nap. I can't :(
It's either to much radiation or you did what they told you and got the clot shot
@@jmann8182 Faraday cage
How are you now ?
CHECK OUT THE DOC "UNREST". I don't think I have CFS, however, when I was 26 (I'm 31) something similar happened to me while I traveled on a train and stayed at a hotel for about a week. I had traveled before, but this time, the planning and everything was chaotic and mentally draining. When I arrived, I wasn't sick, but I remember feeling insanely tired at the train station. I didn't tell the person I was with because I was confused and was trying to fight it/ignore it. I was alone a lot while I was there and found myself going into stores just to take naps. I remember going into Target just to sit on the couches in the back, I rotated and held my phone out so it didn't look like I was napping. It was embarrassing. I was beginning to think it was narcolepsy. It was a tiredness I had never felt before. I remember the train station being so loud and bright that I had to lie my head on my suitcases, close my eyes and couldn't say much. Even trying to speak normally was body ache inducing. It seemed like sensory overload mixed with the stress I had about the relationship I was in that made me start feeling it intensely, like I hadn't slept in days. I arrived back home that night and haven't had that extreme fatigue or those other symptoms since. I've been in contact with molds (aspergillosis), have experienced akathisia due to an overperscription and stopped taking meds cold turkey which caused withdrawal symptoms for months that mimic CFS (shades inside, daily migraines, extreme nausea, sleeping for days, etc). Could I have something similar to CFS due to my body experiencing any of these things which has to be triggered to come to the surface, like HSV? It was frustrating and frightening to feel out of control, especially out of nowhere with "haywiring nervous system" feeling symptoms. This is why this syndrome caught my attention. It's so bizarre, sufferers can't prove it and there's no cure yet. More awareness brings more attention, we must continue this discussion within all societies until there's a cure and widespread acceptance of ME/CFS.
My best friend was just diagnosed. I wanted a better understanding about the disease as I had not heard of it before. She can not go to school often as she is always tired or asleep. I just wish there was a foolproof cure for her and many other sufferers so I can see her a little more often.
Just knowing you care and are there for her if and when she can see you, will be a real help in keeping up her morale. Perhaps you could send her nice, or funny cards to let her know you care. Sometimes people with severe ME/CFS can still text and use social media, more easily than they can handle face to face interactions, so that might be another way you could keep in touch. But if she doesn't reply, don't take it personally, it will be because she's just too frail at the moment.
Hopefully, she will improve with time and be able to to see friends again, at least from time to time. The most important thing is not to abandon her or write her off because she's so unwell. It can be terribly isolating and people with ME/CFS really feel this; they just can't do anything about it.
Thank you so much for caring about your friend, and for others suffering this awful disease. You might also like to consider helping by raising funds with your school or group of friends for organisations like ME Action and the Open Medicine Foundation, both of which are helping to make real progress now in advocacy and research towards finding that elusive foolproof cure for ME/CFS. :-)
So CFS is just being tired all the time, right? Cuz if that’s the case,I might have it and I’m only 17. I’m kinda scared because I feel like I’m going to die. What should I do?
Unsure if I have this, but sometimes I get extremely tired, like I don't even want to move from my chair or the bed, can't concentrate on anything, can't really even think straight. Happens mostly when I try to read anything...
Whoops! There's an error in this video. You say that ME-patients have increased amount of natural killer cells. It's the other way around - they have a decreased amount of NKC.
IIRC from some years back, some of us have more, some have less, and some don't appear abnormal at all, at least in basic-level testing, but you may well be more up-to-date than me on the finer points of immune system research. :-)
I’m 20, had been diagnosed with 2 autoimmune diseases, gerd, gastritis, and asthma. Now i’m trying to figure out whether the chronic pain & fatigue that i’ve been feeling for more than a month is possibly from CFS or something else, since the symptoms are just so fitting. Going to consult soon if the pain isn’t getting better by time 🤞
Those diseases you have can make you very tired on their own , especially autoimmune ones
Do not take any fvaxxs..will make you worse.. I believe they are also responsible for this. It doesnt show up right away from shot. Develops over time . My opinion and observations
Can one get CFS from a tbi?? I had a subarachnoid hemorrhage from falling and hitting my head at work it's been almost a year and still extremely fatigued always 🤕
I'm having CFS/ME now, I don't know what to do.
Appreciate Video! Forgive me for butting in, I would appreciate your initial thoughts. Have you heard the talk about - Dinanlinson Rebooting Health Approach (probably on Google)? It is a great one off guide for getting rid of chronic fatigue syndrome without the headache. Ive heard some incredible things about it and my m8 at very last got excellent success with it.
This thing is awful because you feel like shit all day no matter what you do, you will feel horrible. Working feels like shit, responsibility feels like shit, going out feels like shit. Hell even dopamine increasing activities like watching Netflix or playing video games feels like shit. Basically everything you loved doing once now feels like shit because the brain just doesn't care to be attentive about anything anymore.
That is my fucking life
I can't even maintain simple chat with someone withught feeling drained
I can't explain how much It drains me physically and emotionally Im literaly struggling to breath I can't keep up with peoples pace
ruclips.net/video/zgBJiQbV30k/видео.html I've found Dr bergs videos extremely useful please check his channel
this pandemic affects us indirectly. Praying this madness ends and our lives be back to normal.
I see that now that that there are Long Haulers from the COVID-19, research is finally being done on what ails them...which may be what ails us. We've been ridiculed and bullied, told it's all in our heads, but as soon as COVID sufferers get it, it's suddenly real. I'm hoping that finally real research will be done that helps us because of COVID-19.
@@user-uj6sc7ls9y So fucking true. Here's hoping.
I slept all day yesterday, all night and this morning I slept. It gets worst around my cycle, when I'm ovulating or when I do a lot. I doubt its depression.
I had severe fatigue for years. My doctors tested me for diabetes and they couldn’t find anything. They thought my problem was psychological. People said that I was just lazy. One day I came across this magazine in the supermarket with an article about Hidden Food Allergies (Intolerances). It said that many people can have a delayed reaction to certain foods. It said that these foods are often the foods that people crave the most. The craving isn’t intentional. Wires got crossed somewhere and your body craves the foods that is actually bad for it. It said that you have to really restrict the food in order to get better. I loved dairy products , so I knew that that was one problem food. By carefully reviewing the foods in my diet , I eventually figured out that I had a problem with the Corn protein (High Fructose Corn Syrup , Corn Starch , etc.). I completely avoided these foods for at least 3 months. I then had SMALL amounts of the foods every 4 days. I felt great. I now realize that I should have gone to a Doctor in Integrative Medicine years earlier.
I do have extreme sensitivity to histamine and chocolate ,I crave cheese and chocolate like crazy and I always feel wiped out THE DAY AFTER eating those triggering foods
@@SRBOMBONICA86 Stop eating those foods every day. Hidden Food Allergies (Intolerances) can cause symptoms up to 72 hours after eating a food. Processed foods have a lot of additives made from the Corn Protein or the Soy Protein. The foods that you crave the most are the ones that usually cause your health problems. It is best that you get more variety in your diet. You can also talk to a Doctor in Integrative Medicine.
@@KB-sv7fm yes ,I will avoid chocolate and cheese for some time,for me histamine and tyramine is the worst offender
@@SRBOMBONICA86 You might be sensitive to other foods as well. Look into the AIP diet or the Paleo diet. Talk to a Doctor in Integrative Medicine. Many universities have an Integrative Medicine Department (Johns Hopkins , Duke , University of Arizona , etc.).
@@KB-sv7fm i definitely am sensitive to histamine ,my IBS flares up severely when I Eat too much histamine in one day ,I try to always lower it as much as I can
I had cfs as a kid. I couldn't walk because of it for months. Now I only get it periodically and can't walk but I can't find anything that talks about it being an inconsistent thing?
I first got it in my mid-teens, following a pesticide exposure, felt very peculiar indeed (woozy, dizzy, couldn't think straight, legs like lead weights, often desperate to lie flat before I fainted, sleeping for long periods) especially in the first year or so, but was able to continue to function normally, on the whole.
It continued on in this mild/semi-latent form for many years; occasionally I'd have what seemed to be a viral infection, but I knew if I just went to bed and rested completely for a few days, I'd come good. I never had a diagnosis back then, or medical treatment; I just ignored the whole thing as far as possible, feeling faintly embarrassed by it and therefore hiding it from everyone - nobody but me knew I continued to get these weird cognitive and (what I understand now to be) neurological/autonomic symptoms. I always worked at relatively menial jobs below my intellectual capability for many years, because I felt too dizzy and cognitively woozy, too often, lacking the ability to concentrate or think clearly, to have the confidence to aim higher.
But in my late 20s and 30s as I took on more challenging and exciting work while dealing with a stressful primary relationship, I found the symptoms increasing; by the time my marriage broke down I'd already had to drop out of my part-time Uni course due to general fatigue and wooziness with severe impairments in concentration and processing complex ideas. I'd put it down to stress, and taken some time out to potter at home, to no avail.
Freed from the relationship, though still with co-parenting stresses, I got busy putting my life back together, acquiring new social circles and new interests and starting to have a great time for the first time for years, so not depressed at all, yet I seemed to be getting more and more woozy and exhausted, more often, in that not normal way; I was getting more and more physically and mentally incapacitated, and frustrated and baffled by that incapacitation.
I researched various psychological conditions and physical illnesses, wondering what could be causing it, but then a chiropractor suggested it could be CFS, so I checked that out and suddenly everything fitted. I remembered those odd symptoms I'd always had and tried to ignore; they were just as described - a classic case; including all the Canadian Criteria. I saw a specialist physician and had my suspicions confirmed - a diagnosis of ME/CFS, going back, he thought to that teenage chemical exposure; the stresses mentioned, along with a physically and emotionally traumatic childbirth, bringing all the symptoms on to the point where I could no longer ignore them or function normally.
Since then, I've had periods of getting both better (from naturopathic treatment) and worse. Currently worse, (in my mid-60s) - after 4 years of flying back and forth across the world to help with my ageing and dying parents, with increasingly severe relapses between each trip, I'm now in the severe category, 2 or 3 years bedbound and barely able to move, but now a little better - just housebound and mainly couchbound.
The main thing I think has made it worse, at every stage, has been stressful circumstances and/or trying to play the hero, ignoring or pushing through the illness to achieve my goals, refusing to let it stop me. The thing that's been most helpful was a year or so of (expensive) naturopathic treatment, including dietary changes and supplements, which definitely cured some of my unpleasant symptoms, but didn't cure the underlying ME/CFS. My most disabling symptom now is the Orthostatic Intolerance (extreme dizziness and faintness, laboured heart and breathing, and pain, with upright posture), as well as general too-easy fatigability, with PEM/ crash/downturn eventually setting in whenever I try increasing my activities just a bit.
My sister has it too, though in recent years she's mostly avoided severe downturns/crashes by staying within her 'energy envelope'; hers also developed later in life but may have begun earlier, in her late teens with a mono/EB virus plus being exposed at some point to the same pesticide as I was, (in a new 'moth-protected' carpet in our parents home; though by the time she was exposed to it, it would probably have worn off and not been quite as toxic).
She too had regular episodes of undiagnosed viral-type infections over the years that left her extremely weak and debilitated, eventually taking early retirement from her teaching career when symptoms became more frequent and unmanageable.
Subsequently we found out more about our family history, and realised that both our father and his father had had to take extended periods of time off work for what was then labelled nervous exhaustion and/or a type of extended flu. They both received complete rest with round the clock care from loving wives and recovered. We felt it was likely there might be some sort of genetic factor at play. My sister and I never received care or nursing, always having to take care of ourselves as best we could, and never recovered.
I relate all this, in case there are resonances with your own experience, and in case it helps you take the best possible care of yourself and to avoid the sort of situations (though sometimes they're simply beyond our control, unfortunately) that could trigger your illness to get worse. I wish you all the best, please ask if there's anything else you'd like to know. :-)
A lot of people are being left with this after Covid-19.
I’ve had this all my live, but only got diagnosed 5 months ago
I have MEand found the background jingle made this video very difficult to follow.
Also, taking medications or pills are not actually helping. As I remember watching a video that pills makes the client or patient feel worse in their minds. So taking medications or therapy may not be solution to help with people who feels severely fatigue.
Excellent Video! Excuse me for chiming in, I would love your initial thoughts. Have you researched - Dinanlinson Rebooting Health Approach (search on google)? It is a smashing one of a kind product for getting rid of chronic fatigue syndrome without the normal expense. Ive heard some decent things about it and my close friend Aubrey at last got cool success with it.
Ohh this was painful for me..but now I'm better than before, I do yoga and meditation everyday,chant "OM" mantra while mediting.eat more vegetables than before coz ,I was hardcore non vegetarian once..plz do eat fruits and veggies also it will boost your stamina more😊😊
Look for Judy Mikovitz, PHD, she discovered the cause of CFS/ME, she states there is a way to help, search for videos and she also has a book called Plague
this thing started in the first month when i was in quarantine times. It felt kinda strange at first bcs i got enough rest, but when i woke up in the morning my brain felt hurt. Idk how to explain but like it was just hurt. And then i felt like i was unable to function. And then my body began to feel like i had so much exhaustions. I thought that i probably needed to improve my excercise. i started to plan my day and stick to a habit. I woke up early (4 30 am). I started my mornibg routine with meditation for 15 mins, stretching, doing work outs, and cool down stretch. It all took almkst one hour long, i took a bath right after. My body felt so great, i felt as if i was on the stage to get my improvement, but at 9 am, suddenly everything turned back. The feeling of exhaustion came back to me again and it's really crazy. It hurts a lott.. But now it gets better bcs i have more interaction with friends since school has started. But still sometimes i relapse.
tbh, the most hurtful thing is when i already have a pretty good morning routine everytime im about to start my day, but then the feeling of chronic fatigue back. It reslly ruins my whole day
If you have the symptoms more than 6 months and fit the other criteria you may have CFS. Look it up on Wikipedia or the Mayo Clinic website and it will tell you the symptoms and criteria.
If you are inside all the time, make sure you are taking vitamin D
4 years ago I was diagnosed with CHRONIC FATIGUE and I have tried everything I could to get rid of this , but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including CHRONIC FATIGUE , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for CHRONIC FATIGUE and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 3 months of use, I am now totally free from CHRONIC FATIGUE , all thanks to Dr. Joshua Ighalo for helping me with my situation. You can also contact this great herbalist for help by email: drjoshua.ighalo@gmail.com or contact Dr. through his whats-app: +2349057958723. They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
Research the benefits of Magnezium - it helps for all energy processes, reduces stress, helps sleep and improves cognition but it takes a couple of weeks to restore and should be taken maybe from dinner and when going to bed to not increase tiredness in the day as it relaxes you
Bro I’ve been tired for the last 5 months. Even laundry is a mission
That's so sad to hear you are still suffering from this same situation . Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same situation , He can also help cure yours permanently
4 years ago I was diagnosed with CHRONIC FATIGUE and I have tried everything I could to get rid of this , but it was all to no avail, until I saw a post on a health forum about an herbalist preparing herbal medicines to cure everything type of diseases. including CHRONIC FATIGUE , at first I doubted it was real, but decided to give it a try, when I contacted this herbalist through his email and he prepared me a herbal cure for CHRONIC FATIGUE and sent it to me via the delivery service of UPS from the company, when I received this herbal cure. , gave me step by step instructions on how to apply it, when I applied it according to the instructions I was totally cured of this deadly disease within 3 months of use, I am now totally free from CHRONIC FATIGUE , all thanks to Dr. Joshua Ighalo for helping me with my situation. You can also contact this great herbalist for help by email: drjoshua.ighalo@gmail.com or contact Dr. through his whats-app: +2349057958723. They also specialize in the treatment of all kinds of diseases, VIRUS HERPES , HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE.
@@nancywalker-keay8361 Okay turn yourself into the police for fraud. The real patients reading posts have no time or money to waste on such nonsense. I've been studying this illness for 39 years and when I read your notes I can immediately recognize you as a Fraud trying to fool desperate people who are suffering. Get a job at McDonald's and ask yourself would you like fries with that,?
Laundry is the frikken worst. I come to take a nap for 3 hours after cleaning.
@@youknowcrimedontpay9257 so their no chance what she said would actually work ?
Does this cause muscle weakness as well all over your body x
I have CFS and I’m only 15!!! I’m constantly tired and always exhausted, going to school is hard as I’m always tired. I’m getting really bad headaches and nothing is helping! Coffee, energy drinks, energy tablets none of them help me!! I’m also forgetting people’s faces as in people who I don’t always see but see once in a while such as my school maths tutor. Please help me I’ve tried everything
Get off all grains and have allergy testing done. Dr Osborne’s book...no grain, no pain is a great help.Good luck everyone.
Eh that doesn’t really affect cfs
This is so Scary , if someone diagnose with this can you please reply I think I have it too
I just woke up out of breath , my muscles sometimes hurt at the morning with no reason , I forget dates and important things alot , I feel tired and out of breath all the time and I just want to finish what I have and go to sleep I also have Hypothyroidism and IBS
I did a blood test and I didn't have anemia but the doctor told me you have a high amout of white cells
Can someone help ?
Diagnosis is still difficult at the moment, however, if you go on the M.E Association website they have print outs that you can show your doctor to help pinpoint things to look for and help with a diagnosis. Hope this helps.
Please do yoga and meditation for 1 hour every day.while doing meditation chant "OM" mantra.you will feel good..I'm very much active now😊
OMG SAME DID THE DOCTOR SAY ANYTHING IM DYING TO KNOW WHATS WRONG WITH ME
You cannot achieve Slow Wave Delta Sleep due to Alpha Wave intrusion. You cannot achieve restorative sleep if you have ME / CFS/ FM. No matter how long you may sleep with the use of medication you will not recover energy through sleep which is the reason humans need sleep. The body cannot restore or repair itself without stage 3 & 4 Deep REM sleep.
help...please i'm in so much pain my cat is so scared what do i do help me i'm so young and feel like an old woman it doesnt stop
I personally do not have this but my friend just got diagnosed at 17. Is there anyway I can help them or?
Understanding is the most important thing. I used to heard "Again?!" when I said to my friend I would take a nap and I felt guilty a lot for this... Show that you're here to help and to listen to your friend is already a lot.
I also suffer from extreme weakness
One day I slept 14 hours..woke up and still felt tired..4 hours later I was asleep again. I just recently started getting this, my sleep time is erratic. Sometimes I sleep early, late, etc...I have no idea what is going on.
I was at a party and i realised how little energy i had and that i barely remember anything fun and every time i talk to someone i feel weird and i always randomly feel small pain in random spots of my body
I'm trying to find something to make me feel energized cuz I am always with fatigue even if I drink a Red Bull I'm so tired lots of fatigue .. what can I do
i feel you i drink such a strong coffee n can sleep peacefully almost immediately
My apologies regarding the 4th point in my comment below. My "M.E.-brain" confused this video with one (from the B.C. CCDP) that promoted the IOM report. Sorry about that ! However, I recommend you read the comment as additional education for yourselves, and to see why we the patients & advocates do not support the IOM report, if you do not already know why. Thank-you for not referencing it ! So, to continue... if you decide to edit this video, which I hope you will, I have a couple more things to add. 1. In eliminating "childhood trauma" from your page of possible causes, you can simply replace it with "virus" or "viral infection" : a well-respected theory which makes a lot of sense as M.E. has typically occurred in outbreaks (see Hyde and/or Chia re : enteroviral cause). 2. You are right that there's no cure, but incorrect re: treatment. The main treatment is called pacing, which is just what it sounds like : you must listen to your body & give it as much rest & sleep as it needs, and if there are things you absolutely must do, then pace yourself ; do not push yourself. Pushing past your comfort zone will only cause relapse. Proper pacing at the disease onset could even protect you from getting more severe & chronic. (The problem is that most people don't know soon enough that they have M.E., so they try to "push through it" as if it were some other problem. in reality, it's been called an "emergency" that one get sufficient rest right away : please see Dr. Nancy Blake and Dr. Byron Hyde re : imperative rest.) 3. Again re : treatment. Yes, one can try to treat 'some symptoms' but this is only partially successful as one isn't able to treat the true source of the symptoms, the M.E. itself. And there are generally only 2 of these semi-treatable symptoms : sleep disorders and pain. You are seriously incorrect to say that a large number of people with M.E. also have depression, and that therefore anti-depressants are the main treatment. It is normal, when suffering any long-term severe disease, to eventually develop a secondary depression due to the losses one suffers in this situation. But it's very important for you to state that people with M.E. are generally NOT depressed, especially in the beginning years. M.E. can in fact be very easily distinguished from depression by asking patients what they would do if they weren't ill. Depressed people often can't come up with anything (depression can affect their motivation & they may also feel that life & activities are futile), whereas people with M.E. are extremely motivated to get better & will give a long list of all the things they would love to be doing. 4. Continuing with this topic, it's incorrect to state that treating depression will in turn help the M.E. symptoms, and there is an inaudible moment at this point in the video which you need to fix, starting at about 4:45 : "...treating the symptoms of depression if one is experiencing '2 inaudible words'...". This is a continuation of the incorrect "anti-depressant" theory, which you must remove. Anti-depressants are contra-indicated for M.E. & can actually be very harmful, and of course mentioning them here also reinforces outdated beliefs that M.E. is psychological. Please see the Nightingale Research Foundation or Hummingbirds Foundation For M.E. for well-researched info on M.E.. Thank-you very much. Two final things : you left out the second "u" in "house-bound", and the New Yorker is a magazine, not a newspaper. 😊
what do you think about socio economic problems in childhood that are still active nowadays? I was never ok with appeasing "symptom treating" without diving deep in what is actually going on with the body and the mind (guess what they are one! hold that thought!)
Western culture is highly dismissive about emotional correlation within tribes. for example the "family tribe" .what if you always had to listen to you mom, her needs, her problems (relationships, intimacy)
and there was never place for you to be heard, seen and asked for what you need in a caring, unshaming, healthy way? I think there is a deep correlation between trauma (for example attachment trauma) to chronic fatique s. Therefore, you shut down and feel abandonend by your mother.
so in other social situations. they body keeps the score and saves the experience in the body
solutions could be far out of your competence knowledge.
please check out ressources like CPTSD from surviving to thriving, or doctor gabor mate and never succumb to videos like this which have no solution, but desperation for audience as consequence of just stating the problem without having a solution or deep knowledge. thats missleading and breeds despair.
-Olli
Interesting
The thing that really bothers me is doing what I am supposed to do, and feeling worse.
Ever try to repair your computer by the manual and still not have it work? Ever been told to just follow the manual, and be called an idiot who never follows the manual? That's my life.
Is there any HGH therapy for this ? One an insurance will contribute to?