PERFORMANCE ENHANCING DRUGS FOR MS?! [Part 3]
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- Опубликовано: 11 июл 2024
- In this video, we discuss PERFORMANCE ENHANCING DRUGS FOR MS?! This is part 3 of a series on demystifying exercise in Multiple Sclerosis.
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NOTE: Make sure to talk to your provider before ANY treatment decision. We hope to educate, empower and energize those impacted by Multiple Sclerosis. This channel consists of a collection of formal lectures and informal video clips about MS to help educate others. These videos do not provide medical advice and are for informational/educational purposes only. The videos are not intended to be a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of a qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read or seen in any of our videos. They are just to help educate you about the condition guys!
![Benefits of Exercise for Multiple Sclerosis: Explained by MS Neurologist [Part 5]](http://i.ytimg.com/vi/6lv66ZcrbJQ/mqdefault.jpg)
![Benefits of Exercise for Multiple Sclerosis: Explained by MS Neurologist [Part 5]](/img/tr.png)
I take your videos to my doctor and tell her this is the only person I would trust with my life. God bless u, amazing.
I trust Dr Boster with all my MS care
Agreed I say the same thing to my drs !!!
Real talk because for some reason this doctor brings up things that I feel are important and I would’ve never known about because my neurologist has never said those things to me so I do too. I bring his videos out and I want an explanation.
I can relate to that. I consider myself to have been very fortunate to have Dr. Boster as my primary Neurologist throughout the majority of my MS experience. If you see this Dr. B, I was wondering if you had any thoughts/input on the following as it relates to prior experience with patients and perhaps it may be of some merit. ruclips.net/video/s_nc1IVoMxc/видео.htmlsi=T7QygF1aIPPHN3YO (Edit: NSFW/vulgarity)
Great info doc!!! You help us MSers SO much! Thank you for being YOU😊
Any time!
Botox was a game changer for me. It almost completely eliminated leg muscle spasms. Leg stretches are helpful as well. EXERCISE is the BEST treatment above any medication. Stress is a huge trigger for me. I avoid drama at all cost. Thanks for what you do Dr. Boster.
Me too with the stress. I’m moving myself out of a stressful situation this week myself. People don’t get it. Humans….i no longer care for the species
A lot of people use "canabis" before working out. Not just people with MS. I learned to do it from a guy who always smokes some before a workout. It makes you lazy and unmotivatedd to workout, so in my experience you have to be 100% devoted to doing your working after a smoke session. Otherwise you'll end up sitting on the sofa eating potato chips watching cartoons. I smoke with intention. It takes a lot of motivation to exorsize at all, and the weed kills that motivation. But, most of the people I know who do it just push those negative unproductive thoughts to the side. Put on some good music and workout. It also helps with DOMS (the soreness you get after working out).
Regarding the end of the video, one of my former mentors made a funny comment disparaging the data on Sativex (a THC/CBD spray approved in Europe for MS spasticity) because although it subjectively decreased spasticity, there was no statistically significant effect on the modified Ashworth Spasticity Scale. They said, "It makes you high so you don't care about your spasticity." :)
I feel like sometimes that is a valid goal! LOL I know it's certainly what I usually get when I use gummies for my idiopathic itching at night... just makes me too sleepy to care. :P
Depending on your dose I think is when it makes you high. I experimented a lot with delta 8 and 9 - both legal in my state. I had a bad experience with the delta 9. Like an idiot, I took too much on my first try 😭 oh man, I tripped balls for 4.5 hours BUT I had pain relief after that for 11.5 hours. I was tired but it deffo helped. I now use delta 8 lozenges & a delta 8 vape cart every night. It helps sooooo much. You definitely have to wean yourself on but this stuff helps way more than the poison meds. That’s my opinion no one asked for lol.
Gabapentin has helped me so much. I have neuropathic pain in my leg which was stopping me from exercising. Since being on Gabapentin I can walk without pain. I have worked up to between 6-10k steps per day. My knee doesn't give way anywhere near as much, and I'm noticing a big difference in my fatigue levels too. 😁
I follow your videos often and yes I can confirm for myself I do not perform as well at all without vaporizing with my volcano before a gym session.
Love the fire crackling the background - reminds me of Howls Moving Castle!!!
Solid education-ing video - as always, thank you Professor Doctor 👍👏!
Hi from Israel thanks for this information good to know nobody talks about electrical massage to hands and feet it can really help to many side effects of Ms symptoms you have menth😊ioned
Thanks for your effort.
Thank you for the great advice that you give us Dr Aaron and I really look forward to your videos every Monday
Thank you Doc for your godly guidance.
Be 🙏 well
Thank you Dr B.!! ❤🙏✌️
You are so welcome
Sweet fireplace Doc 🏆 your video’s are really helpful. TYSM.
A very Happy Birthday to you Dr Boster 🔥🔥❤️🔥🔥🔥 🍰🥳🎉🎈
OMG! What you said about the fellow who uses cannabis for his nerve pain is EXACTLY what I tell my doctors when I use it for pain relief. It doesn't take away the pain, I just don't mind it as much. It helps make pain much more tolerable. And it doesn't take much for me either. Maybe a 5 mg. gummy or brownie bite (I make my own canna butter)
Thanks for this informative video. I vape cannabis prior to walking my 2 Great Danes. I take them one at a time, 2-3 times a day. It lessens the pain but most importantly, it makes me not focus or care about the pain.
Happy New Year 🥳🎉🎉🎉🎉🎉🎉🎉🎉
Awesome video as awlays! What about NAD and certain peptides? Some amecdotal evidence seems to say that it can help in treating MS
I've been using dexidrine lately to help combat my fatigue and it's been wonderful. I don't take it every day... Days when I'm home and I don't mind napping when I need to I don't take it. But it's such a game changer to get me through a 12 hour day at work!! I don't "hit the wall" super hard like I always did before. ❤
Hello from Australia
Thank you Dr Boster - this is an awesome video! 🔥🔥❤️🔥🔥🔥
Glad it was helpful!
Great info! I’ve told my neuro about you (UCD), and she’s glad you offer support for us. I’m an MSer w/ onset in 1996. My C-spine disc protrusion that was discovered during DX in 2001 has now progressed to a severe multi level compression, and now I’m getting my ducks in a row for surgery. I’m Scared!! I know I have to have it done or else I will suffer permanent damage, but it’s still so scary. My MS sx overlap, so it’s deemed a “complex case”. I do wonder if it would have been discovered if I hadn’t developed MS. Thanks for what you do, Doc!
Great information! I’ve been taking Adderall since I was diagnosed in 2019. It is a game changer. I also take Topamax and it helps with the Ms pain. The thing to be careful of when taking both is the weight loss. Not trying to lose weight but I noticed a lack of desire to eat. I know both meds can do this. Now I’ve gained the weight back because I understand it’s the medicine causing the lack of interest in food so I’m conscious about it now so I eat at certain times of the day even when I don’t want to.
Great info. Where is your dog??
Botox in my upper back has been an absolute game changer for me! I used to get so SORE if I did anything that required those muscles.. especially repeated lifting (just regular stuff.. not even weights) and bending over. My legs are still very strong, and I LOVE running, but just the arm/back movement required for that would make my back so stiff and sore to the touch for days after.
I’m so glad Dr. Boster had me try Botox in those muscles. Exercising aside, it helped me feel so much better just day to day!
This is such an informative series AND one in which we can all benefit from. Thank you for another amazing educational and helpful video.
Hugs 🥰
#Sharingiscaring
You are so welcome!
Thank you for this informative video
Glad it was helpful!
I have been using PED for 10 years. I firmly believe they are what gave me the energy to go to the gym almost every day, keep an active lifestyle at work, at home and in my social life. They gave me mental strength and made me feel good about myself again. They were a life changer. Energy, focus, self esteem and strength. I think they are the most important medicine in my MS arsenal. I am a 47 year old male, diagnosed 2011, paralyzed left side 2011, back in the gym 2012. Still going everyday.
Subscribe AND Like ALL his videos. As a youtuber myself he needs this so the videos are seen by more people. Lets show our appreciation.
Top ! thanks Dr B ! I use 5 mg tadalafil, and it works for me, very good results on fatigue and overall strengh
Modafinil is a game changer for me. I’m able to workout daily and I know the only reason that’s possible is because of the 100mg I take first thing in the morning.
a little trick with the lidocaine I've learned over the years with Lyme since 13 and M.S. since 34 and now 48 and still fighting is Lidocaine sprays 4 or 5% sprays cover a large are easy and you dont have to pull out tiny hairs or have the patches ball up under clothes, they dont smell or cake like creams, I bought a prep H one on accident but it still works fine lol and much less expensive great for feet!!! and under socks etc!!!
I am currently taking Amantadine for fatigue (just started a month ago). I am from Spain.
My earlier MS doctor (this is through the VA) prescribed me testosterone and I felt it was beneficial. I had to stop taking it because of slightly elevated PSA. The PSA is under control now, but my new neuro at the VA wouldn't give me the testosterone. He said my T level was not low enough (it is not super low, but it is on the lower side of normal). I am a 53 year old male, so my testosterone is going to be heading lower anyways. I went ahead and got prescribed testosterone cream from an online provider. They do a testosterone test prior to prescribing meds, and they OK'd it. I have to pay out of pocket for it, but it DOES help both in the gym, with mood, and in the bedroom. I think I made the right choice. 😊
Hi DrB
I have a strong chemical reaction to many meds. Tradazone and canibus gummies or tincture completely knock out calf spasticity and waking me up at night. I had many jittery calvs go for hours as I was sleeping fo hours and oddly sometimes one would sometimes just squeeze and feel like it was going to explode. But between canibus, Tradazone, and capiscasian in spicy foods they arnt waking me up. I need to be careful and can't eat spicy every day because I have acid reflux.
Thanks for all of your videos and for sharing this info.
Great video, greetings. Kindly tell me where I can find the list of medicines recommended by the great doctor? I'm living in Italy and it isn't simple to find them, like empira etc. Thank you
What about aspirin as a pre-exercise treatment to reduce the effects of heat? I realise it's not as dramatic as some of these but it is also very cheap and easily accessible.
I use it before physio workouts and it massively increases my stamina and heat tolerance.
What is your understanding of the effectiveness of drugs like modanfil and Baclofyn for progressive ms? more or less success rates? Thanks for another great video 🧡
I now use the generic brand of Ampyra. It’s called Dalfampridine. Your insurance may only approve generic.
I'm interested in use of stimulants like methylphenidate off label to fight Ms fatigue and when it's prescribed with the additional diagnosis of add . I am curious if there are contraindications, if you could elaborate on this topic I'd be very glad
Thank you for your video. If you experience sharper neuropathy and spastitcy in your legs and arms when your estrogen levels drop, can you take any of the suggested medications for a short period of time? Or is there another option? Many thanks
Dr A, i'm undiagnosed without any primary care, lol never mind a MS neurologist, however i have textbook classic symptoms. legalization of cannabis in canada was the best healthcare move Trudeau could have made!! i grow my own, so call me paranoid if you like, but that way i Know, there is no taint of fertilizers or antifungals on my plants. probably smoke about 1 - 2 grams per day - 1. it helps with moving 2. it crushes anxiety 3. great sleep aid 4. seems to increase focus. 5. boosts appetite ( i'm underweight) if i have snow to shovel, which has become great big Issue this winter, i will smoke maybe 1/3 of joint about 30 mins before i start. works for me!! btw, i'm ex-critical care nurse.
Please list all the mentioned medications to aid those who are unfamiliar with them.
Thanks in advance.
Can you please talk about how Semax and Perocetam can affect MS patients fatigue levels?
Hi! Do you have an opinion on Creatine?
I was prescribed Modafinil by my neurologist in Egypt and it was working so well. I didn’t feel fatigued anymore. But I’ve now moved to Norway and they don’t recognize it 😔. All they recommend here is exercise and eat healthy.
I know NICE in the UK now recognise modafinil for fatigue in MS. And given how Norwegian neurologists are happy to prescribe rituximab off-label to treat MS as a disease modifying treatment perhaps you could try persuading your neuro to prescribe modafinil off-label?
Back in 2006 when I was first prescribed modafinil in the UK (off label) I pointed out that exercise and diet and caffeine weren't working. They initially refused and said I would have to put up with the fatigue. I told them that was unethical and I would have no problem finding illicit substances that could help keep me awake if they weren't prepared to prescribe to treat MS fatigue... I wouldn't recommend this approach but it did the trick...
Hello from Minnesota, question with regulating body heat. Has excessive sweating been linked to ms, and sweating excessive in moderately cool Temps?
Last week I asked my neurologist about Baclofen for my awful spasticity, and I was told I would have to go see a physiatry doctor to get a prescription for it. I never even heard of a physiatry doctor before. I think a neurologist should be able to prescribe it and I must have another bad doctor. Thoughts?
The neuropathic pain meds, which has the least sedating side effects? Everyone reacts differently and trial and error. Only gabapentin and Lyrica, has been suggested to me in clinic in the UK.
I didn’t know that Ampyra reduced heat sensitivity. I only knew about the leg fatigue issue. I started on it when only the brand name was available. It worked wonders. When the generic version came out, dalfamprydine, it didn’t work for me at all. I lost ground rapidly. Luckily, I regained strength when I went back on the brand name. I’ve been successfully using a particular generic version, but was recently forced to try the brand that hadn’t worked for me before. It still doesn’t work. I really don’t understand how that can happen just that it does.
Anything for severe dizziness?
My nurse gave me Gabapentin for my dizziness but it did absolutely nothing.
Thank you.
I have Quetenza patches every 4mths on the bottoms of my feet for my neuropathic pain or i would not be able to walk.
What about low dose TRT to help those things for women too?
What is your view on Marijuana? I'm in a state where it is legal. When I was able to use as a medicine it helped a great deal with my fatigue and vertigo.
Topical helped with the spasms and cramps too. Baclofen makes me grouchy
Delta 8 gummies do wonders
Thank you, for finally saying cannabis doesn’t work with pain.
In MS groups many talk about it like a miracle cure, n is not.
For me a non cannabis user is not effect, but a terrible paranoia effect, I didn’t smoke it, but even a whole gummy cause the same effect.
One thing I want to say n favor, I’m 72, n since I was a child, my grandma always have a bottle of cannabis n alcohol, alcohol de caña, or sugar cane alcohol only, rub n the painful area the effects are almost instant.
Also work with arthritis.
Can Botox be used if using an immune-suppressing drug like Kesimpta?
I am keen to improve my exercise performance but now I am on osteoporosis 😢
Iam 36 hade folwing symtoms 3-4 years ago: sleeping problem ,waking up multiple times and even difficult sleeping but i no sleep apnea. Memory and cognitive impairment . my left feet tingling, sometimes i have muscle fasciculations/twiches on back, biceps, triceps, eye, etc..
My concentration and focus so bad now
What can i have? Diagnose?
What do you think of Lyrica
Can I have ms and have normal vision?
I’m in U.K. and my consultant won’t give me sativex to help with excruciating spasms . I’m unable to take baclofen because it stops me going to toilet regardless of how many laxatives I take . He won’t give me it because my spasms are caused by pain , not spasticity . This seems crazy to me as it doesn’t matter what’s causing muscle spasms . The cause and the pain is the same . I can’t bear it as it’s almost constant . My question is would Botox be a solution I should ask him about , for spasms caused by pain not spasticity , as he’s never mentioned this option . He just expects me to suffer and I can’t cope with it anymore .
Cannabis makes me too unstable on my feet. I don’t like the feeling of being high.
You can get versions of cannabis that don't make you high but still deal with pain...
Thanks for all your work! Me and my wife are learning everything from you.
Posted in last video that things were very very slow in Winnipeg but after my wife advocated for me. Things are moving forward! Got my vaccines up to date (could told me when diagnosed i would need it!) waiting the 4 to 6 week for Ocrevus. Hope it works
Down 30 lbs + since November diagnosis. Easy since my wife cut me off dairy and gluten!
This is my January workouts video. LOL
ruclips.net/video/jIv6F69tJbw/видео.html
Thanks again!
Stephane
🔥
Botox was a game changer for me. It almost completely eliminated leg muscle spasms. Leg stretches are helpful as well. EXERCISE is the BEST treatment above any medication. Stress is a huge trigger for me. I avoid drama at all cost. Thanks for what you do Dr. Boster.
I take your videos to my doctor and tell her this is the only person I would trust with my life. God bless u, amazing.
I follow your videos often and yes I can confirm for myself I do not perform as well at all without vaporizing with my volcano before a gym session.
Great info doc!!! You help us MSers SO much! Thank you for being YOU😊
Thanks for your effort.
So nice of you