I was thinking that we really ought to give a great :::: Shout Out ::::: to TOM ! he has been by your side no matter what. He is there for you In the hospital, if at any time you are feeling sad, ill, upset. He lovingly buys you clothes, treats, and loves to go out with you. He is a gem, a true partner there for you, always. So lets have a cheer for Tom ! Much love to you both. Enjoy your peach coke !!!! yeah Tom
You're so strong it's unbelievable, you go through so much but yet you're still strong and you keep fighting and looking forward to the life you have ahead. I think it's amazing and beautiful. A shout out to Tom for being by your side through everything. Watching your videos helps motivate me to deal with my chronic disease and I watch them whenever I'm down about being sick or something.
Okay you and Tom had me laughing LITERALLY out loud and that doesn't happen too often! I love the Tom picked up the camera! I think its great to have him see things too :). Maybe one day we could have a handover vlog where Tom takes the camera for hte day!
John Green is the greatest!! Turtles all the way down is fantastic! John is OCD and so is the main character so the book helps you understand from a very realistic point of view!❤️
Amy, what the heck is on the cover of your bullet journal? Is it Tom making a funny face, but cut out in an egg shape? No matter whose face it is, it cracks me up!!! You are so talented with drawing and I just love the different themes too!!! Can't wait to see how it turns out!
not sure if someone has already mentioned it but for us Five Feet apart comes out late march and the book is actually based off the movie. It's super bitter sweet! one of the girls working on it passed away last year in September from complications of a double lung transplant her name was Claire Wineland and the main female character reminds me a lot of her
Turtles all the way down is such a good book!! I hope you like it too. It was a book where you could kinda guess what was gonna happen but some things made you go hmmmm 🤔
I already read that book in preparation for the movie. (Five feet apart) It was a really good quick and easy pretty light hearted read... at least compared to what I normally read. I can't wait to hear you final thoughts! I know I know.... I'm a book nerd...
Looking forward to the bookshelf tour! I love your bullet journal, they're so cool and really pretty but I'm too much of a perfectionist to be able to design one without hating it
Tom had me rolling!!! He is to funny!! That was great. Also, you are such a good artist!! I wouldn't even know where to start on a bullet journal and yours looks like one I could go out and buy!! So pretty. Thanks for sharing your days with us!
Haven't heard about any early showings outside the USA. But Multiple states in USA have had early showings and the current next early showings are in two locations in California.
I love your bullet journal! It looks amazing. I've been doing lots of charts, for things i need to remember every day, like some important medications, important exercises, blood pressure and pulse, etc, and I try to make them look pretty! I use a lot of colour, sometimes I'll draw little pics if they're simple things as I'm not great at drawing haha. It's actually really fun, makes things that are boring more interesting, as well as my mundane days a bit more exciting lol. I would love to see more of your journal and ideas for decorating them. Also I love Tom, he's so funny! Love seeing more of him in your videos. I made the mistake of binge watching all your vlogs all day every day, and now I'm up to date... So I can't binge anymore and I'm sad lol. I might buy some of your merch to cheer me up! Haha. Lots of love from south England 🇬🇧
Independence Australia is the cheapest sadly. I use the Coloplast Self-Cath Straight Tip 12G. I like the 16cms... Tom needs to follow you around now to say Basic Bitch!!! It's his new job! I'm going to be out somewhere and just randomly blurt "basic bitch!!!".... love!
There's a guy on RUclips who is a vlogger, his channel name is Cystik1, he did a "react" video to the trailer of five feet apart. It was interesting coming from him cos he has CF, and at the time of watching the trailer, he was in hospital. So, it's a proper, honest review, by someone who is able to really comment on the accuracy etc. Definitely recommended people watch his video
Turtles all the way down was life changing really. Everything he writes is crazy amazing. Looking for alaska is life changing as well, hes my favorite author. His books read easy as well
Healthcare systems in other countries just keep on surprising me. Here in the Netherlands we have €385 “own risk”, if you use a lot of care that is what you have to contribute per year. And then your insurance fees. Which, mine is about €140 a month, though I don’t need the care that you do. But aside from that, everything gets paid for me through insurance, and whatever insurance doesn’t cover, is the max of €385 I have to pay myself per year. If that is used, I only have to pay my insurance fee and everything gets covered. It just surprises me that care is so expensive in other countries!
Tom saying "basic bitch" in an exaggerated American accent cracked me tf up! 😂 I haven't read the book, but I'm wary of the "5 Feet Apart" film because sadly, those types of films are just usually SO problematic. 😕
Hi Amy, have you ever thought of an indwelling catheter that you change every 2 weeks? or you just dont like the fact that it stays in or are you more prone to UTIs with the indwelling? It is a bit more cos effective but some people are more likely to get utis with them.
omg i’ve never been so early! i love your videos so much. they have helped me in ways you cant imagine... they are the reason i pushed my mom to get me to the doctor, which ended up diagnosing me with EDS! thank you so much❤️
I have read most of the books you have mentioned and I love all of them! You have really good tastes in books. Is it hard for you to find some books because of living in the Uk? I love you both so much !
Why do you cook bacon but bake cookies? This comes from my 17yr old daughter. I just want to thank you for sharing your life with us. You give myself and my daughters so much joy and hope. No matter the Drs news we know we can all push forward with a smile eventually. Thank you so much ( Myself and all 4 of my daughters have v eds and gastroparesis plus many more dx)
Turtles all the way down is one of the best books I have read aside from Harry Potter. I do want to read the other John Green books but I do t have them and I can’t find it anywhere! ☺️
I love you and Tom. I'm definitely a Coke girl but Pepsi is good from time to time. I'm from the US and grew up with the Amy Fisher story, you are nothing like her but do people tell you about it.
I have a stupid question..and I'm really really sorry..but im very curious. So...do you go to the toilet at all? That's so personal and i apologise! Genuinely curious. Awesome videos :)
I'm looking forward to seeing this movie & I know its going to be beautiful & emotional 😊😍 Amy I cathrize so if u want to chat about it with me & my mum I'm sure we can chat about it 👍 ( I live in Aussie 🇦🇺 too ) Love kayla
That peach cola is so so so good it’s my new obsession. Also I really want to watch and read five feet apart but I’m kind of scared about the inaccurate parts like the fact that cf patients aren’t even allowed in the same room as each other and i read that the only time they’re allowed near each other is when they have a mask on and are outside. I’m not too sure it just worries me a bit
Amazing human being and i love your energy soooo much ...Keep striving keep making more videos keep being awesome love youuuuuu ❤️❤️❤️❤️❤️❤️sensing you all the positive energies all the way from Pakistan ❤️❤️❤️❤️❤️❤️❤️❤️
Exercise WILL help with the bloating, mostly through farting and improving your gastrointestinal tract....only problem is given you have intestinal failure, I'm not entirely sure it would work but squats are the one exercise my coach used to say would help with bloating and the intestinal tract....
![Quando Rondo - Life Goes On [Official Music Video]](http://i.ytimg.com/vi/eIf3fhMXAow/mqdefault.jpg)
![Yeat & Summrs - GO2WORK [Official Music Video]](http://i.ytimg.com/vi/NEFEwfPcXRA/mqdefault.jpg)
I was thinking that we really ought to give a great :::: Shout Out ::::: to TOM ! he has been by your side no matter what. He is there for you In the hospital, if at any time you are feeling sad, ill, upset. He lovingly buys you clothes, treats, and loves to go out with you. He is a gem, a true partner there for you, always. So lets have a cheer for Tom ! Much love to you both. Enjoy your peach coke !!!! yeah Tom
Ann Marie Albert he’s one of a kind and I couldn’t do it without him! ❤️
You're so strong it's unbelievable, you go through so much but yet you're still strong and you keep fighting and looking forward to the life you have ahead. I think it's amazing and beautiful. A shout out to Tom for being by your side through everything. Watching your videos helps motivate me to deal with my chronic disease and I watch them whenever I'm down about being sick or something.
Okay you and Tom had me laughing LITERALLY out loud and that doesn't happen too often! I love the Tom picked up the camera! I think its great to have him see things too :). Maybe one day we could have a handover vlog where Tom takes the camera for hte day!
John Green is the greatest!! Turtles all the way down is fantastic! John is OCD and so is the main character so the book helps you understand from a very realistic point of view!❤️
Tom is so funny he needs to be a cartoon character
he already is! we're just watching the live action version. 🤣😂
Amy, what the heck is on the cover of your bullet journal? Is it Tom making a funny face, but cut out in an egg shape? No matter whose face it is, it cracks me up!!! You are so talented with drawing and I just love the different themes too!!! Can't wait to see how it turns out!
not sure if someone has already mentioned it but for us Five Feet apart comes out late march and the book is actually based off the movie. It's super bitter sweet! one of the girls working on it passed away last year in September from complications of a double lung transplant her name was Claire Wineland and the main female character reminds me a lot of her
Turtles all the way down is such a good book!! I hope you like it too. It was a book where you could kinda guess what was gonna happen but some things made you go hmmmm 🤔
Does anyone else say “YEAH” at the beginning of the intro in Amy’s vlogs? Lol
'one of us is lying' is such a good book!!!
Looking For Alaska is actually my favorite John Green novel. Have a box of tissues ready.
I already read that book in preparation for the movie. (Five feet apart) It was a really good quick and easy pretty light hearted read... at least compared to what I normally read. I can't wait to hear you final thoughts! I know I know.... I'm a book nerd...
Looking forward to the bookshelf tour! I love your bullet journal, they're so cool and really pretty but I'm too much of a perfectionist to be able to design one without hating it
Tom had me rolling!!! He is to funny!! That was great. Also, you are such a good artist!! I wouldn't even know where to start on a bullet journal and yours looks like one I could go out and buy!! So pretty. Thanks for sharing your days with us!
Thank you for a good laugh. After a rough night I truly needed it. Tom is one of a kind. I'm so glad you had a day with friends.
Thank you for continually staying positive and being so strong! I admire your dedication and positive Attitude love you guys
tom is such a gem ugh! also i loved the game of thrones reference, i'm so excited for the final season!
I can't wait 4 the movie 💖
yoyo ramirez me neither 😅
Haven't heard about any early showings outside the USA. But Multiple states in USA have had early showings and the current next early showings are in two locations in California.
I love your bullet journal! It looks amazing. I've been doing lots of charts, for things i need to remember every day, like some important medications, important exercises, blood pressure and pulse, etc, and I try to make them look pretty! I use a lot of colour, sometimes I'll draw little pics if they're simple things as I'm not great at drawing haha. It's actually really fun, makes things that are boring more interesting, as well as my mundane days a bit more exciting lol. I would love to see more of your journal and ideas for decorating them.
Also I love Tom, he's so funny! Love seeing more of him in your videos. I made the mistake of binge watching all your vlogs all day every day, and now I'm up to date... So I can't binge anymore and I'm sad lol. I might buy some of your merch to cheer me up! Haha. Lots of love from south England 🇬🇧
Independence Australia is the cheapest sadly. I use the Coloplast Self-Cath Straight Tip 12G. I like the 16cms... Tom needs to follow you around now to say Basic Bitch!!! It's his new job! I'm going to be out somewhere and just randomly blurt "basic bitch!!!".... love!
"Handle With Care" is another Jodi Picoult book that is worth a read. I love it so much and have read it over and over and over.
There's a guy on RUclips who is a vlogger, his channel name is Cystik1, he did a "react" video to the trailer of five feet apart. It was interesting coming from him cos he has CF, and at the time of watching the trailer, he was in hospital. So, it's a proper, honest review, by someone who is able to really comment on the accuracy etc. Definitely recommended people watch his video
I love five feet apart. I brought it as an ebook and was surprised how short it was but when I was reading it, it didn't matter, it was REALLY good.
Turtles all the way down was life changing really. Everything he writes is crazy amazing. Looking for alaska is life changing as well, hes my favorite author. His books read easy as well
Healthcare systems in other countries just keep on surprising me. Here in the Netherlands we have €385 “own risk”, if you use a lot of care that is what you have to contribute per year. And then your insurance fees. Which, mine is about €140 a month, though I don’t need the care that you do. But aside from that, everything gets paid for me through insurance, and whatever insurance doesn’t cover, is the max of €385 I have to pay myself per year. If that is used, I only have to pay my insurance fee and everything gets covered. It just surprises me that care is so expensive in other countries!
Could you do a book haul of all the books you have please I'm always looking for new ones
What if u use the small catheter for middle of day
If you contact the mandatory them can sometimes to help with the costs.
Tom saying "basic bitch" in an exaggerated American accent cracked me tf up! 😂
I haven't read the book, but I'm wary of the "5 Feet Apart" film because sadly, those types of films are just usually SO problematic. 😕
Hi Amy, have you ever thought of an indwelling catheter that you change every 2 weeks?
or you just dont like the fact that it stays in
or are you more prone to UTIs with the indwelling?
It is a bit more cos effective but some people are more likely to get utis with them.
omg i’ve never been so early! i love your videos so much. they have helped me in ways you cant imagine... they are the reason i pushed my mom to get me to the doctor, which ended up diagnosing me with EDS! thank you so much❤️
The fault in our stars makes me cry EVERY time 💔😭
One of us is lying is soooo gooood x
I just love ur videos! ❤ you and tom always make my day better. Thanks for being so great and putting a smile on my face 😊
I have read most of the books you have mentioned and I love all of them! You have really good tastes in books. Is it hard for you to find some books because of living in the Uk?
I love you both so much !
Your bullet journal is really coming along. Love the design themes.
Are you still doing the expenses tracker too?
I love Tom making you laugh too much! 😂
Omg Tom sounds like an American and it’s really funny.
Looking for Alaska is so good!!!
Why do you cook bacon but bake cookies? This comes from my 17yr old daughter. I just want to thank you for sharing your life with us. You give myself and my daughters so much joy and hope. No matter the Drs news we know we can all push forward with a smile eventually. Thank you so much ( Myself and all 4 of my daughters have v eds and gastroparesis plus many more dx)
I’m reading Five Feet Apart as well ❤️
The Storyteller by Jodi Piccoult is a very good read too.😀
Raspberry Pepsi is soooo good!!
OMG I just saw you have Funko pops. I’m a huge collector and a zebra too. Small world
PS My sisters keeper is different to the movie so its good you saw the movie first :) You'll LOVE the book if you loved the movie :)
Nice video content today Amy and it’s a great way to end the day watching your vlogs and it is calming....👍👍👋👌😊...
Turtles all the way down is one of the best books I have read aside from Harry Potter. I do want to read the other John Green books but I do t have them and I can’t find it anywhere! ☺️
I have Cystic Fibrosis and im really curious about that book.
I have Cf as well
Have you thought of doing a symptom tracker in your journal, or are you past that point with weird symptoms???
I got UTI's from the speedy cath ones and I switched to the 14 French long male ones so its long and way more sterile.
I just started reading the same book 😍
Love your videos and you and Tom are so funny and your books looking like good ones and I do a mood trackers as well
Any suggestions for other good chronic illness books?
SKSKSKS I LOVE THAT BOOK I HAVENT READ ALL OF IT YET BUT SO FAR I LOVE IT AAHHHHHH
I love you and Tom. I'm definitely a Coke girl but Pepsi is good from time to time. I'm from the US and grew up with the Amy Fisher story, you are nothing like her but do people tell you about it.
Why aren't you using long-term catheters? Or is that not a thing anymore? My carer days were over 10 years ago, maybe I'm outdated lol.
You guys are hilarious! 😂 Love you!
Your not able to pee naturally? I had no idea. Is that from your gastroparesis or from being on ton? I'm truly curious.
I started reading 5 feet apart but I can’t focus long enough to finish it. My goal is to finish it before the movie comes out.
I have a stupid question..and I'm really really sorry..but im very curious. So...do you go to the toilet at all? That's so personal and i apologise! Genuinely curious. Awesome videos :)
Hun if u live in Brisbane got boxes of catheters u could have. I might know a way just have to fund if they can help. One name bright sky
I love you so much 😍 I just started watching you
I'm looking forward to seeing this movie & I know its going to be beautiful & emotional 😊😍
Amy I cathrize so if u want to chat about it with me & my mum I'm sure we can chat about it 👍 ( I live in Aussie 🇦🇺 too )
Love kayla
Hey Amy i use the actreen mini ch.12. IT works zo zo Well
It does some odd, it's doing 2 ads at every ad break????? any ideas
That peach cola is so so so good it’s my new obsession. Also I really want to watch and read five feet apart but I’m kind of scared about the inaccurate parts like the fact that cf patients aren’t even allowed in the same room as each other and i read that the only time they’re allowed near each other is when they have a mask on and are outside. I’m not too sure it just worries me a bit
Emma Gould yeah I’ve heard that too! But there are several accurate parts too which is very refreshing to read! ❤️
Amy's Life I love accurate medical books and movies. I had only heard that it was inaccurate so I’m glad that there is some accuracy 💛
I habe CF and we are encouraged to stay away from other CF patients due to the bacteria we carry.
R.Leath exactly that’s why I was kind of sceptical about the book. I hope you’re doing okay.
@@emmagould1373 i'm doin ok, battling a bad bout of bacterial pneumonia currently but staying positive ☺💙
Hey amy❤️ love you and ur vlogs my stomach gets bloated from my gastroparesis too
Amazing human being and i love your energy soooo much ...Keep striving keep making more videos keep being awesome love youuuuuu ❤️❤️❤️❤️❤️❤️sensing you all the positive energies all the way from Pakistan ❤️❤️❤️❤️❤️❤️❤️❤️
Omg! five feet Apart 💕💞💖
Basic Bitch should be a merch you guys do
💜
Y’all killed me 😂😂 Shame...shame...shame
Can’t wait for the new season to come out!!
Peach coke?????? Yum!! Anyone see that in the US?
Things that make you go hmm suggestion: do you eat or drink soup..
Love u 2 amy, goodnight
Would you wear crop tops without high waisted jeans/skirts? Just a random question ☺️ x
SUGGESTION FOR VIDEO: POSITIVE BODY IMAGE AND HOW YOU COPE POSITIVELY WITH BODY DYSMORPHIA
Hi amy 2019 watch the movie that was my favorite movie
Exercise WILL help with the bloating, mostly through farting and improving your gastrointestinal tract....only problem is given you have intestinal failure, I'm not entirely sure it would work but squats are the one exercise my coach used to say would help with bloating and the intestinal tract....
I enjoy a nice hot cup of water honey, lemon when I’m not feeling my best.
💜💜💜💜💜
❤️❤️❤️❤️
I love drinking hot water
You're the secons youtuber I'm watching, who like to drink hot water. I also like to drink hot water^^
I keep getting utis and they don't go away and they don't stop
Send me a peach coke
does you mass cell act up when you get hot? jw
Omg I just restummbled back here ♡ miss you RIP ♡