Fished out my old binder after watching this today. 7/8 quad so balance is quite similar to yours. I was surprised by how much it helped with pushing around, I think I was losing so much energy from trying to combat balance as well as hand function and pushing, now all I have to think about is the latter two. Thanks for this tip Brian!!
I use this binder and love it. I'm a C6 Quad and started having ALOT of problems with dizziness because of low blood pressure. Wearing this helped with being dizzy and it gives some stability in my trunk that helps me to sit up straighter. It flattens my stomach a bit but its doesn't get rid of a 'quad belly'.
Thank you for making this! everything you said makes perfect sense and I have been trying to explain to my PTs & OTs & docs that I KNOW my newfound thoracic and cervical spine pain is because I have no strength in the core muscles anymore so I knew my neck and other accessory muscles were kicking in extra to try to help stabilize my spine and hold me upright. It's gotten so bad that I literally have spent my days lying on the floor for the last year. None of my healthcare team seemed to believe me when I asserted that i cannot hold myself upright for very long at all, and how fatigued I get so easily and quickly, whenever I try! I reported all the things- inability to deep cough, deep breathe, my speaking and voice was weakening, and everyone kept trying to treat my painful neck and thoracic spine as separate from the T12 level paralysis. It has been even hard to find accounts of other paraplegic, quadriplegic, or hemiplegic people documenting this specific problem from the loss of their core skeletal muscles' function. I continued to wonder how is it possible that even quadriplegics/tetraplegics seem to have no problem being seated in their wheelchair all day and functioning, while I have a T12 spinal cord injury and even some limited feeling & ability in my legs and yet I still cannot hold my own torso and head weight up for more than a few minutes at a time! I will bust out my old binders and pay attention as I attempt to hold myself upright today. Thanks again 👍
I just have to say I thoroughly enjoy your videos. As someone who has lost their ability to walk from a rare muscular illness, your videos have made me feel like I can have the independence I used to have. You said you don’t have the slim 25 year old body you used to have but you seem to get around really well.
Hey brian love your videos I was in a atv wreck I came close to being paralyzed I was left with lots of medical issues but watching your video makes me feel there's a sense to keep going everyday I would love to chat some day
I need to start wearing mine again T3, it really helps with lung function and balance. Along with the belly :) As always excellent video. Much respect ✊ from Ireland 🇮🇪♿️
i'm t3 para and i wear mine everyday more to help with my blood pressure but the added support is amazing, love the channel btw helped so much with all my questions
So I just got one of these and my first impression is I love it. I really feel more stable and feel like I'm sitting up straighter. It will take a bit of getting used to, especially trying to bend over and pick things up but overall I'm really liking it so far. Thanks for the video and suggestion.
Does it roll up on you, throughout the day? I'm looking for one, that will stay in place. While I'm transferring and things like that. All the ones I've ever used would roll up, half way through the day, or would start riding up.
Sorry never saw your reply. It doesn't roll up but it does scoot up a bit. It pulls back down in place pretty easy. Only time it slides up really is if I'm bending or transferring a lot. I've enjoyed having the one I got, same as in the video, but after about 6 months or really about two months ago so 4 months, it's gotten pretty worn out.
im basically the same and your sure do help. im technical a quad but got my arms back, but there few people in my area that have the slightest idea and have no peers or friends for that matter willing give a helping hand. winter is more like prison for me and im no getting any younger..... at 35yrs of age
I think I'm going to start doing this. Great idea! Can you post a video on how you get it on and off yourself? Do you wear a shirt under it so your skin doesn't get red and irritated? Thanks man!
Brian, I just discovered your channel. Diagnosed progressive MS in 2006...electric wheelchair dependent - only one side of my body still works. Where are you? Is everything okay? A lot of people care about your well being...
the abdominal binder is the one thing I kept using.. Now I use a "Gold's Gym 8 wide waist trimmer." I use two because one does not give enough support. I got them for $4.97 each at Walmart. They last a few months. I have a velcro type binder but never used it. I used the custom made corset type for years. But after my last one wore out I couldn't get a good replacement so switched to the waist trimmers.
(1) You still look hot, never mind that you're not the "slim 25 year old." (2) Ribbed for your convenience. Hehehe. (3) You looked like you were faking it because of your really good upper body strength - I have to remind myself that you're really a higher level paraplegic because of how agile you've taught yourself to be.
In some of the videos it actually looks like you are using your core and upper legs, simply because I'm a fit 28-year old and I couldn't do these things you do with my arms alone. As far as I'm concerned, there is some more magic beyond the ab binder ;)
Hi, I am really grateful for your videos. I'm a T4 complete since my incident in 2020 October. Please tell me where I can get this support band. Also need a wheelchair like yours as mine is too heavy.
Glad the vids help!! There’s a link in the description below the video that you can use to buy the support band so check it out. My wheelchair is a TiLite ZR that I got through insurance using NuMotion.
Hi Brian Can you re do your link please as it's out to date with their website and I'm not sure which one to buy. hopefully they can post to the UK. Real like your videos keep up the good work. Is that your bike I can see in the garage do you have a video for that too?
Hi , thanks for this. My partner is a high level quad (C4) and is in need of a new binder. I like the look of the one you demonstrate. Wondering if the velcro tabs are sufficient for a quad belly ? Any thoughts? And what is the name of the binder ? I'll try to find one in Canada. Cheers!
Hi I would definitely love to learn more about the products you use that make things easier for you. My husband an I have been together for 3 years an I just want him to be comfortable an want the best for him. Please let me know where I can buy this waste for him. Thank you so much. God bless you an your family.
Hi Brian, congratulations on becoming a dad! I'm a high functioning c6 quad and have been looking for a good abdominal binder. I like the one you are showcasing but the link you have in the description isn't usable. I'm guessing that company doesn't carry that particular one any longer. Do you think that particular one is sold elsewhere? Is there a manufacturer name or phone number on the binder itself? I would appreciate any help you could give. Yah bless you and your family!
Hi Brian, I am a T6 para and have no core stability..I have been trying to find this binder on the website but can’t finf it..is this an old video? Do you have a serial # and info for contacting supplier? Thank you in advance. Pam
Great videos! Anyone know if these can be used with a colostomy? I really liked the support it gave prior to having the surgery - it sure helped in the appearance department, too.
Could you do a video or direct me to a video that explains the difference between incomplete and complete paraplegic and the difference between paraplegic and quadriplegic
Amy Elise incomplete means the spinal cord has been injured but is still intact. A complete spinal cord injury means the spinal cord was severed in two. A para has lost function of legs. A quad has had an injury affecting arms and legs.
Amy to to what the prior person said, I studied anatomy & physiology, a quad has a Cervical spine injury, so use of arms & hands, and legs are affected because of the nerves that branch from the C spine spinal cord go to those areas. The paraplegics' injury usually Thoracic spine & lumbar spine affects the chest down, but not the arms & hands, because again of the nerves branching goes to the lower parts of the body. Hope this helps.
Hi Brian just watched your video on the Dual core crisscross support abdominal binder want to order one I wear a 38 pants , what size should I order a large. Any special instructions or order item number. Thanks John B
Here’s a new link to the abdominal binder. I’ll update the link! Thanks for the heads up! www.coreproducts.com/products/dual-pull-elastic-crisscross-lumbosacral-belt
Hi Brian, Thanks for the video, Where did you get your ab binder. I have a pt (I'm a PT) who would benefit from one for posture but he has a larger stomach and getting a ribbed one may help to keep it from rolling up when he;s moving around in his chair. I googled around but couldn't find it. Thanks again! Allison
What would you do if you have a colostomy depending on the site. Would it constrict bowel habits or would you just cut a hole to accommodate it. Might be a stupid question but my husband is t3 complete and I would love to get one of these for him
I have a hard plastic shower bench and the same exact injury as you. I really fill like the shower bench could be hurting me. Should I get a padded seat or does it matter?
I have one but I find it shows through all of my clothes. Do you have any suggestions for that? I've never noticed yours. I will also have to try the brand that you use. Mine is a little more awkward looking.
hey, I was looking for one online, but I didn't see the one with plastic parts in it, is there any chance you could send a link to the one you bought? I would really appreciate it!
Question, do you find it easier to put the binder on, laying down while getting dressed? Or after you are sitting in the chair, then adjust clothes? Thanks for this video.
Hi, your videos are an excellent resource..Thank You..Would you be able to answer a few questions? I am working on a writing project, and have absolutely no frame of reference? Macie
Is there any time limit to how long you can wear the support per day? I’ve read some supports say ‘no longer than 4 hours at a time’ but I don’t know how that rule fares out for paraplegics
I've tried...no great advice other than doing upper body cardio and still that doesn't really help with the gut. My best advise is to get one of these to disguise it because I haven't found a way to get rid of it altogether. You don't have abs so it will always be an issue. Doesn't mean you are fat...your guts just hang out since the muscle isn't there anymore.
As a para it's certainly harder. It still comes down to the basics of eating right and exercise. If you don't have use of your abdomen though you'll probably never have a 6 pack unless you go on the juice and use estim on your abs like crazy lol.
lol same here. I'm not a big guy but my belly is bigger than I'd like. I lift weights but I don't get enough cardio. I also enjoy more food than I should lol. Before my accident I was in great shape, worked out, ate right and so on. I know how to lose my belly with diet and exercise, it's just hard to get motivated to do so because it's going to be twice as hard now and well, I'm just not that motivated lol.
Please make more videos I'm not paralyzed but I'm trying to get a wheel chair because I have a lot of health conditions that make walking more than 50 feet a chore I tend to pass out or fall asleep and I have lots of issues walking I suffer from many subluxations and dislocations of ribs my spine my hips and knees and it also causes a lot of pain I'm still being diagnosed but I have pots and eds I'm being tested for MS spasmodic torticollis which is nerve damage and it's starting to effect more than just my neck my c5 has been suffering constant subluxations because both my ehlors danlos syndrome and my spasmodic torticollis which makes my neck shake side to side uncontrollably my doctor told me to keep my neck still unfortunately I can't I get whip lash because of some of them being such a violent jerk that we are worried of my nerves being pinched or worse ruptured I'm hoping to gain my mobility back the only thing I've been able to do the past 9 months is go to the doctor I know a wheelchair would greatly help me and your tips have helped a lot in me learning and I've noticed not many people who use wheel chairs have as professional videos as yours look I hope you read this and make some more videos
Curious how your plan to become pregnant has worked for you all? Just came across your channel. Do you still make videos? Sorry to hear of your accident. I hope all is well with you and your family.
How do you measure for the binder? Do i measure sitting or laying down on the bed?? please help! I'm definitely going to order one. Just not sure which way to measure.
There are people who think you're faking how far your paralysis goes up? I can't imagine being the kind of person who would watch videos of someone living their life and even asserting such a thing. First, it's pointless, and second, it's super rude. Some people's brains just have no filter.
It's not a problem with the pump.No pain or anything to report. I recently had my pump replaced and they actually tell you to wear a binder while healing.
The velcro is usually only noisy at first until it really settles in after moving around a little. Overall, it's a non-issue for me but I do have the occasional time when it makes noise. If it's not way too tight I'm usually good.
Yep! Here you go. I will add this to the video description. www.coreproducts.com/shop-by-product/support-belts/lumbar-belts/dual-pull-elastic-crisscross-lumbosacral-belt.html
I still can't believe someone thinks that you're pretending. After all these videos, equipment, etc...like for what reason would someone put in so much time and effort just to make an elaborate fake channel for a niche audience. It boggles the mind at some people's stupidity or need to be a troll.
First, you´re hot lol second, I use binders aswell but because of a genetic tissue disorder my spine gets wonkier and the organs drop. Can´t work on core stabiity as my vertebrae and joints slip around like a frikking jenga game lol a full n back brace won´t work for me, et the binders but still not stable enough to sit for longer then a few minutes. I want to ask my doctors for a wheelchair, yet can´t sit for long. Is there a way that stabiliues even more? Hate to being homebound.
and you were the reason that my insurance company paid for my smart drive! they saw your video and realized how muched it helped thank you!!
Thats AWESOME!!!!! Thanks for sharing!!!
Fished out my old binder after watching this today. 7/8 quad so balance is quite similar to yours. I was surprised by how much it helped with pushing around, I think I was losing so much energy from trying to combat balance as well as hand function and pushing, now all I have to think about is the latter two. Thanks for this tip Brian!!
I use this binder and love it. I'm a C6 Quad and started having ALOT of problems with dizziness because of low blood pressure. Wearing this helped with being dizzy and it gives some stability in my trunk that helps me to sit up straighter. It flattens my stomach a bit but its doesn't get rid of a 'quad belly'.
Hi deb do you know the name of the binder ?
Thank you for making this! everything you said makes perfect sense and I have been trying to explain to my PTs & OTs & docs that I KNOW my newfound thoracic and cervical spine pain is because I have no strength in the core muscles anymore so I knew my neck and other accessory muscles were kicking in extra to try to help stabilize my spine and hold me upright. It's gotten so bad that I literally have spent my days lying on the floor for the last year. None of my healthcare team seemed to believe me when I asserted that i cannot hold myself upright for very long at all, and how fatigued I get so easily and quickly, whenever I try! I reported all the things- inability to deep cough, deep breathe, my speaking and voice was weakening, and everyone kept trying to treat my painful neck and thoracic spine as separate from the T12 level paralysis. It has been even hard to find accounts of other paraplegic, quadriplegic, or hemiplegic people documenting this specific problem from the loss of their core skeletal muscles' function. I continued to wonder how is it possible that even quadriplegics/tetraplegics seem to have no problem being seated in their wheelchair all day and functioning, while I have a T12 spinal cord injury and even some limited feeling & ability in my legs and yet I still cannot hold my own torso and head weight up for more than a few minutes at a time! I will bust out my old binders and pay attention as I attempt to hold myself upright today. Thanks again 👍
I love your videos. They are informative and well thought out. Thank you.
I just have to say I thoroughly enjoy your videos. As someone who has lost their ability to walk from a rare muscular illness, your videos have made me feel like I can have the independence I used to have. You said you don’t have the slim 25 year old body you used to have but you seem to get around really well.
Hey brian love your videos I was in a atv wreck I came close to being paralyzed I was left with lots of medical issues but watching your video makes me feel there's a sense to keep going everyday I would love to chat some day
i love your videos man!!! keep posting regularly me and my fiance love your videos
I need to start wearing mine again T3, it really helps with lung function and balance. Along with the belly :)
As always excellent video.
Much respect ✊ from Ireland 🇮🇪♿️
i'm t3 para and i wear mine everyday more to help with my blood pressure but the added support is amazing, love the channel btw helped so much with all my questions
Awesome Will! Glad the vids help! :)
Paralyzed Living quick question what size do you use?
Thank you for doing all videos, I got a lot of practical info for my father so to take good care of him. Love your positive and strong spirit!
So I just got one of these and my first impression is I love it. I really feel more stable and feel like I'm sitting up straighter. It will take a bit of getting used to, especially trying to bend over and pick things up but overall I'm really liking it so far. Thanks for the video and suggestion.
Does it roll up on you, throughout the day? I'm looking for one, that will stay in place. While I'm transferring and things like that. All the ones I've ever used would roll up, half way through the day, or would start riding up.
Sorry never saw your reply. It doesn't roll up but it does scoot up a bit. It pulls back down in place pretty easy. Only time it slides up really is if I'm bending or transferring a lot. I've enjoyed having the one I got, same as in the video, but after about 6 months or really about two months ago so 4 months, it's gotten pretty worn out.
I love your videos - helping me to study for my occupational therapy boards. You are awesome!!
You've done very informative videos .. hope you post again and give us updates on how's everything now ..
Thank you so much
im basically the same and your sure do help. im technical a quad but got my arms back, but there few people in my area that have the slightest idea and have no peers or friends for that matter willing give a helping hand. winter is more like prison for me and im no getting any younger..... at 35yrs of age
I think I'm going to start doing this. Great idea! Can you post a video on how you get it on and off yourself? Do you wear a shirt under it so your skin doesn't get red and irritated? Thanks man!
Brian, I just discovered your channel. Diagnosed progressive MS in 2006...electric wheelchair dependent - only one side of my body still works. Where are you? Is everything okay? A lot of people care about your well being...
the abdominal binder is the one thing I kept using.. Now I use a "Gold's Gym 8 wide waist trimmer." I use two because one does not give enough support. I got them for $4.97 each at Walmart. They last a few months. I have a velcro type binder but never used it. I used the custom made corset type for years. But after my last one wore out I couldn't get a good replacement so switched to the waist trimmers.
I had one from the hospital that I wore but it seems maybe I should give it another try
Enjoy your videos. I like the binder you recommend. but core products dont deliver to ireland. any other way i can get it ? thanks
(1) You still look hot, never mind that you're not the "slim 25 year old." (2) Ribbed for your convenience. Hehehe. (3) You looked like you were faking it because of your really good upper body strength - I have to remind myself that you're really a higher level paraplegic because of how agile you've taught yourself to be.
In some of the videos it actually looks like you are using your core and upper legs, simply because I'm a fit 28-year old and I couldn't do these things you do with my arms alone. As far as I'm concerned, there is some more magic beyond the ab binder ;)
Hi, I am really grateful for your videos. I'm a T4 complete since my incident in 2020 October. Please tell me where I can get this support band. Also need a wheelchair like yours as mine is too heavy.
Glad the vids help!! There’s a link in the description below the video that you can use to buy the support band so check it out. My wheelchair is a TiLite ZR that I got through insurance using NuMotion.
Hey man Nice video's lots off love from southamerika👍👍❤👍👍
hi bro pls make some more videos. we r missing u
Hi Brian Can you re do your link please as it's out to date with their website and I'm not sure which one to buy. hopefully they can post to the UK. Real like your videos keep up the good work. Is that your bike I can see in the garage do you have a video for that too?
please make a video about how to choose a wheelchair cushion
Hi! I'm Ivan. I'm a T5 complete. May I ask what type of abdominal binder do you use? Or brand? Thanks. Hoping for your response.
Thanks for letting me know about it because I always wanna to find a good one. I'm a T2
Hi , thanks for this. My partner is a high level quad (C4) and is in need of a new binder. I like the look of the one you demonstrate. Wondering if the velcro tabs are sufficient for a quad belly ? Any thoughts? And what is the name of the binder ? I'll try to find one in Canada. Cheers!
Hey Bryan, Can you make a video about cushions!? please... You're the Best.
Yep, I already made a cushion vid. Here it is! ruclips.net/video/O-xj21W0MS8/видео.html
Perfect. Can you make a video where you talk about stem cells. your videos are motivational!!! :)
Hi I would definitely love to learn more about the products you use that make things easier for you. My husband an I have been together for 3 years an I just want him to be comfortable an want the best for him. Please let me know where I can buy this waste for him. Thank you so much. God bless you an your family.
Hi T5 complete 18 months now. Where can I buy in the UK?
Hi Brian, congratulations on becoming a dad! I'm a high functioning c6 quad and have been looking for a good abdominal binder. I like the one you are showcasing but the link you have in the description isn't usable. I'm guessing that company doesn't carry that particular one any longer. Do you think that particular one is sold elsewhere? Is there a manufacturer name or phone number on the binder itself? I would appreciate any help you could give. Yah bless you and your family!
www.coreproducts.com/collections/back-support-belts/products/dual-pull-elastic-crisscross-lumbosacral-belt?fbclid=IwAR1wTTVmzxyd0otQ-I_EJ3keXw87DWBaeQjwQCFq0XKPXNf6dXHqsA9fNDg
Hi Brian, I am a T6 para and have no core stability..I have been trying to find this binder on the website but can’t finf it..is this an old video? Do you have a serial # and info for contacting supplier? Thank you in advance. Pam
www.coreproducts.com/collections/back-support-belts/products/dual-pull-elastic-crisscross-lumbosacral-belt?fbclid=IwAR1wTTVmzxyd0otQ-I_EJ3keXw87DWBaeQjwQCFq0XKPXNf6dXHqsA9fNDg
does the binder ever fold where the different sections come together? I used to use a warm and form brace, and it would bend and dig into my stomach.
Yes the binder is flexible but still has some rigidity. I haven’t had issues with it digging into me though.
Hi! The link doesn't work. Can you share which binder this is? Thank you!! My partner is a T4 complete and we'd love to try this
Great videos! Anyone know if these can be used with a colostomy? I really liked the support it gave prior to having the surgery - it sure helped in the appearance department, too.
Could you do a video or direct me to a video that explains the difference between incomplete and complete paraplegic and the difference between paraplegic and quadriplegic
Amy Elise incomplete means the spinal cord has been injured but is still intact. A complete spinal cord injury means the spinal cord was severed in two. A para has lost function of legs. A quad has had an injury affecting arms and legs.
Amy to to what the prior person said, I studied anatomy & physiology, a quad has a Cervical spine injury, so use of arms & hands, and legs are affected because of the nerves that branch from the C spine spinal cord go to those areas. The paraplegics' injury usually Thoracic spine & lumbar spine affects the chest down, but not the arms & hands, because again of the nerves branching goes to the lower parts of the body. Hope this helps.
Would it possible help me out. I'm a T9-10 paraplegic. I have very little control in my stomach area.
Yes, give it a try. The binder really helps my stability and confidence with pulling in my belly.
Hi Brian just watched your video on the Dual core crisscross support abdominal binder want to order one I wear a 38 pants , what size should I order a large. Any special instructions or order item number.
Thanks
John B
Do you have another brand you would recommend? My husband feels like this rides up pretty high on the back and it's very scratchy.
Unfortunately, I don’t. This one seems to work well for me so I just keep ordering the same brand.
@@ParalyzedLiving, oh well. He does wear one ever since watching your video so thanks for that. 😊
Hi. The link to the binder doesn't work. Page Not Found
Here’s a new link to the abdominal binder. I’ll update the link! Thanks for the heads up!
www.coreproducts.com/products/dual-pull-elastic-crisscross-lumbosacral-belt
Hi Brian, Thanks for the video, Where did you get your ab binder. I have a pt (I'm a PT) who would benefit from one for posture but he has a larger stomach and getting a ribbed one may help to keep it from rolling up when he;s moving around in his chair. I googled around but couldn't find it. Thanks again! Allison
Watch the video
What size did you end up choosing? You and I look about the same size.
Where can I find one of those binders
What would you do if you have a colostomy depending on the site. Would it constrict bowel habits or would you just cut a hole to accommodate it. Might be a stupid question but my husband is t3 complete and I would love to get one of these for him
Brian, you’re amazing 😉
good idea! I have to try this :)
Good night Brian I have a T10 spinal injury an need to talk about plenty things I don't know if it's possible
I have a hard plastic shower bench and the same exact injury as you. I really fill like the shower bench could be hurting me. Should I get a padded seat or does it matter?
great advice
I have one but I find it shows through all of my clothes. Do you have any suggestions for that? I've never noticed yours. I will also have to try the brand that you use. Mine is a little more awkward looking.
hey, I was looking for one online, but I didn't see the one with plastic parts in it, is there any chance you could send a link to the one you bought? I would really appreciate it!
www.coreproducts.com/collections/back-support-belts/products/dual-pull-elastic-crisscross-lumbosacral-belt?fbclid=IwAR1wTTVmzxyd0otQ-I_EJ3keXw87DWBaeQjwQCFq0XKPXNf6dXHqsA9fNDg
Question, do you find it easier to put the binder on, laying down while getting dressed? Or after you are sitting in the chair, then adjust clothes? Thanks for this video.
laying down is best but i typically put it on sitting up.
Hi, your videos are an excellent resource..Thank You..Would you be able to answer a few questions? I am working on a writing project, and have absolutely no frame of reference? Macie
Is there any time limit to how long you can wear the support per day? I’ve read some supports say ‘no longer than 4 hours at a time’ but I don’t know how that rule fares out for paraplegics
Hi question is that the semi universal binder? Or what's the name of the one you have on the video?
Quick question is their anyway to lose the weight and slim down the gut?
I've tried...no great advice other than doing upper body cardio and still that doesn't really help with the gut. My best advise is to get one of these to disguise it because I haven't found a way to get rid of it altogether. You don't have abs so it will always be an issue. Doesn't mean you are fat...your guts just hang out since the muscle isn't there anymore.
As a para it's certainly harder. It still comes down to the basics of eating right and exercise. If you don't have use of your abdomen though you'll probably never have a 6 pack unless you go on the juice and use estim on your abs like crazy lol.
stonecoldtrk I just wanna lose half my belly no 6 pack for me.
lol same here. I'm not a big guy but my belly is bigger than I'd like. I lift weights but I don't get enough cardio. I also enjoy more food than I should lol. Before my accident I was in great shape, worked out, ate right and so on. I know how to lose my belly with diet and exercise, it's just hard to get motivated to do so because it's going to be twice as hard now and well, I'm just not that motivated lol.
stonecoldtrk I know what you mean
Please make more videos I'm not paralyzed but I'm trying to get a wheel chair because I have a lot of health conditions that make walking more than 50 feet a chore I tend to pass out or fall asleep and I have lots of issues walking I suffer from many subluxations and dislocations of ribs my spine my hips and knees and it also causes a lot of pain I'm still being diagnosed but I have pots and eds I'm being tested for MS spasmodic torticollis which is nerve damage and it's starting to effect more than just my neck my c5 has been suffering constant subluxations because both my ehlors danlos syndrome and my spasmodic torticollis which makes my neck shake side to side uncontrollably my doctor told me to keep my neck still unfortunately I can't I get whip lash because of some of them being such a violent jerk that we are worried of my nerves being pinched or worse ruptured I'm hoping to gain my mobility back the only thing I've been able to do the past 9 months is go to the doctor I know a wheelchair would greatly help me and your tips have helped a lot in me learning and I've noticed not many people who use wheel chairs have as professional videos as yours look I hope you read this and make some more videos
Curious how your plan to become pregnant has worked for you all? Just came across your channel. Do you still make videos? Sorry to hear of your accident. I hope all is well with you and your family.
Hi Becca! We are actually prego right now. I just made a new vid :)
@@ParalyzedLiving Hi Brian, sorry to hear about your accident. Hope and your family goes well. Kind regards, from, PaulLaw.
How do you measure for the binder? Do i measure sitting or laying down on the bed?? please help! I'm definitely going to order one. Just not sure which way to measure.
well I'm between a medium and large. Not sure how to measure but the large might be a good bet for your first one.
Can you share a link so I can buy this
Where did you go?? New video request!!
Check out the description :)
Can you recommend the brand of binder and where I can purchase same?
Does it effect your baclofen pump at all
where can you obtain one.
Thanks for the info I will get me one of those I'm C6/7
What size did you get?
Do you put it on while sitting or lying down?
Nice ... thanks for this :-)
There are people who think you're faking how far your paralysis goes up?
I can't imagine being the kind of person who would watch videos of someone living their life and even asserting such a thing. First, it's pointless, and second, it's super rude. Some people's brains just have no filter.
I read a book by an Anne Arcrane called Hart of His and she did a Special Thanks to a Brian Kinney and I believe that is you sir so awsome!!!
It sure is!! I was her sample. :)
Where can you find one like yours?
I put a link in the description. Check it out!
How does it feel over the pump area?
It's not a problem with the pump.No pain or anything to report. I recently had my pump replaced and they actually tell you to wear a binder while healing.
Interesting. I am on my fourth pump and never have I been told to wear a binder. Anyhow, thanks for the reply.
What is pump ?
Intrathecal baclofen pump to help with spasticity.
Oh I see. Thank you
Where can i order one of those thanks
Check out the link in the description below the vid. I posted a link. :)
Does it make noise?? The Velcro??
The velcro is usually only noisy at first until it really settles in after moving around a little. Overall, it's a non-issue for me but I do have the occasional time when it makes noise. If it's not way too tight I'm usually good.
Paralyzed Living Thank you! I will definitely look into it. 🙂👍🏻
Do you ever go through depression because you can’t do all the things you used to do?
link?
Yep! Here you go. I will add this to the video description.
www.coreproducts.com/shop-by-product/support-belts/lumbar-belts/dual-pull-elastic-crisscross-lumbosacral-belt.html
your so amazing..can't help it..u r
omg yes please. Thank you for showing thid... I am a C7.
bonjour .Vos vidéo sont tellement intéressante Pouvez permettre la traduction en français .Grand merci
Where to find this type of binder?
I just posted a link in the description. :)
You can get the exact same one on amazon for cheaper than from their site too, I just got one.
A tummy tucker would work too i guess !
I still can't believe someone thinks that you're pretending. After all these videos, equipment, etc...like for what reason would someone put in so much time and effort just to make an elaborate fake channel for a niche audience. It boggles the mind at some people's stupidity or need to be a troll.
Exactly! Like I do this for fun or something. I’d much rather walk. Lol
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First, you´re hot lol second, I use binders aswell but because of a genetic tissue disorder my spine gets wonkier and the organs drop. Can´t work on core stabiity as my vertebrae and joints slip around like a frikking jenga game lol a full n back brace won´t work for me, et the binders but still not stable enough to sit for longer then a few minutes. I want to ask my doctors for a wheelchair, yet can´t sit for long. Is there a way that stabiliues even more? Hate to being homebound.
good vieo
👋
your going great I'm also disabled I have started work on youtube please check out
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