My Lupus Story
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- Опубликовано: 29 сен 2024
- Hi, my name is Stephanie and I am a Lupus Warrior. I've been battling Lupus since 2003 and this is my journey so far. I hope that you guys enjoy this video and I hope that it gives you some insight into how Lupus can affect a person's life. Please like, comment if you have any questions and subscribe.
You can follow me:
INSTAGRAM: / veganlupie
SNAPCHAT:
/ veganlupie
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I feel you. I was officially diagnosed with lupus about 5 months ago. People think it only affects your skin... but it literally affects our internal organs 😢
Yes its levels to this. Plus we dont always look how we feel. I wish people understood even though we "dont look sick" we have so much going on internally. I pray your battle is easy. 💜💜💜
@@StephanieBeThrivin We need your email, veganlupie. We love you girl!
What is your present condition please reply 🙏
Thank you for sharing your story because I am getting tested for Lupus soon and I have autoimmune disease and my hair has come out and my dermatologist put me on otezla. So now I'm waiting on rheumatologist to see me.
You’re welcome. I pray you get an answer to what’s been going on with your body. If you have any questions or need anything don’t hesitate. The Lupus community is such a supportive one so you won’t ever feel alone in this journey. Try to avoid stressing too, it doesn’t help any autoimmune disease and can actually make it worse.
Thank you for sharing your story. Crying about such a hard way to go is not a sign of craziness.
Bless you. Praying for your healing in this journey of yours. Bless you
Im a 16 year old girl and i went threw something similar they dignosed my lupus while i went to the ER, i never knew what I actually had until i ended up in the Emergency room. I know god was with me and will always be🙏🏼❤
Yes God was with you. The earlier your diagnosis the better. How are you doing since your diagnosis? If you have any questions don’t hesitate to ask.
I want to hear those stories it could be called emergency room confessions
That actually a good idea. Got me thinking about it.
Thank you from the bottom of my heart for sharing your story it is so important!!! Education is key. You're gonna impact so many lives with this video!
Thank you soooooo much I really appreciate the support. I hope to help as many people as possible by sharing my story and my journey.
My hair started falling out when I was 27. That made me so depressed. I don’t lose as much hair as I did then, but my hair is still much thinner than it was naturally. To this day, I only wear my hair a certain way to cover up the thinning on the top. It makes me so self conscious. The joint pain, omg it’s terrible. 35 years old and I feel like an old woman. Right now I’m really going through it. My joints in my legs and feet are really painful, takes me about an hour or 2 in the morning for the pain to not be as bad. I feel your pain, thank you for sharing your journey with us.
You’re welcome thank you for watching. I have the same issues with my feet too, sometimes it was too painful to even walk. I pray your journey gets easier with time.
I was diagnosed last week with 15 years of symptoms. I thought it was my iron at one point and I began taking moringa. The only thing that would stop my hair loss was moringa. My energy was up. My bloodwork showed it was ok so I stopped taking it. I recently learned it’s good for lupus. I’m gonna start it again.
My daughter was diagnosed lupus when she was 18. And she is 32 and it affect your organs. The last three years she been threw hell. I can feel what your going threw. There alot of people have lupus. I just keep praying to God.
I was diagnosed at 18 too, I’m now 37. I will keep you and your daughter in my prayers. So far it has attacked my skin and kidneys. Switching my diet and doing yoga to control my stress has been super helpful for me.
I AM GLAD SHE IS OKAY MAY GOD CONTINUE TO BLESS HER, HER FAMILY, FRIENDS, LOVED ONES, AND SUPPORTERS GOD BLESS🤍🙏🏾.
Thank you 💜 God bless you and your family. Thank you for watching.
Have you ever tried a parasite cleanse, Candida or heavy metal? I refuse to accept this diagnosis I’ve been reading a lot and was curious if you ever tried it. I’m going to see a functional medicine doctor instead of allopathic. I’m so afraid
I’ve been doing research and considering it. Honestly I’m super nervous about what may come out. If you do it, please let me know how it goes.
@@StephanieBeThrivin yes ma’am I absolutely will. My research says the full moon is the best time to start. I’ll update you before December 1
When you talked about your dogs freaking you out how I laughed. Mine does the same thing and it freaks me out too the worst one for me is when she sits and begs and looks up the wall. Just like the poltergeist dog lol. Thank you for sharing.
Right 😂😂😂 having us paranoid for no reason. You’re welcome, I’m glad you enjoyed the video.
Thank you for sharing your experiences. I wish you hadn't experienced all of the health issues that you did. I understand how difficult it is. Just know you are not alone. I still struggle with that feeling because only other people who have Lupus/Scleroderma/RA/Autoimmune conditions know what the journey is like. Keep up the good fight!
~M.R.
Thank you for watching and understanding. It really does feel like only people going through it understands the struggle. Hang in there Warrior. 💜
I didn't know you had a youtube channel wow this is great you should keep consistently posting this was very informative I subscribed may you stay blessed by THE MOST HIGH GOD You truly are a WARRIOR dont be ashamed of your tears 👍👍👍👏👏👏😀
Yeah this is the new channel. Wanted to start over
I. Have Lupus. Msy
My Story. Ms D
I have Lupus 💜💜💜💜💜🙏🏽🙏🏽🙏🏽🙏🏽🙏🏽
I thank you. Newbie Lupie!!!
You’re welcome ☺️
Thank you for sharing your story. I hope you continue to be well.
Thank you so much for listening to my journey. 💜
Hello, thanks for sharing your lupus journey. Have you ever followed Dd. Brooke Goldmet who educates on importance of nutrition and reversal of lupus. I’m at a real battle with this currently.
Yes, I recently started following her. I also have been completely vegan since 2017 and nutrition does play a big role in Lupus. Thank you for watching, I appreciate it. 💜💜💜
@@StephanieBeThrivin so sorry you are dwaling with this. A good friend of mine has this and she was told following Keto or Carnivore is good with the Lupus.?
Thank you so much for sharing your story #Warrior 💜💜💜
Thank you for listening to my story. 💜💜💜
What's going on now? How are you?
I'm doing well. Still in remission and nothing really has changed. I posted another update a few videos back. Still eating plant based which I think is what has helped me stay in remission.