Neuro Fatigue After Stroke & Spoon Theory
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- Опубликовано: 31 июл 2024
- Neuro fatigue after a stroke is frustrating to deal with and it’s a complex issue to treat. In this video, I walk you through common symptoms of neuro fatigue and how to explain it to others using Spoon Theory.
Original Spoon Theory blog post by Christine Miserandino: butyoudontlooksick.com/articl...
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Time Stamps
0:00 Intro
0:09 Neurofatigue symptoms
0:44 Good news & frustrations
1:20 History of spoon theory
1:55 Explaining spoon theory
5:24 Outro
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Medical Disclaimer: All content on this channel is for general informational purposes only. It is not intended to serve as a substitute for medical advice or treatment from a physician or qualified healthcare provider. Talk to your doctor before starting a new exercise or therapy regimen.
spoon theory has changed my life! Especially the understanding that you can borrow spoons from the next day and really pay for it because you have less spoons to work with.
Thank you for this. I had a stroke 6 months ago and at 29 years old it’s completely altered my life. I’ve recovered well and am able to walk and talk so I don’t “look” sick. I’ve felt so isolated and it’s like my friends and family can’t grasp what I’m going through. I cry every day from being so tired and lonely. This was very validating.
@brynrydskynrd, You are so welcome. It's so hard for people to understand why you aren't "better" when you have invisible issues. I'm so sorry you're dealing with this, but I'm glad you feel validated! What you're dealing with is very real. ❤️
I read your comment
I too get the " your looking well " when someone asks how I am , but they have no idea about what is really going on.
I hope things improve for you
I had two strokes
Happened to me too at 28! Its an unusual way to live but youre not alone!
Thank you so much. I just I had my stroke January 14. I’ve been home from rehab since February 8. It’s been three weeks since I have not had any therapy. And my son doesn’t understand why I don’t have any energy. This explanation goes a long way.
Happened at the same age for me as well! 4 months ago
Thank you this makes so much sense.. I had my stroke 3yrs ago right around when the COVID first came out and everything was shut down I didn't get to do my therapy when I was supposed to 😪 needless to say I have not recovered... My family and friends don't understand why I'm always tired I feel so alone
I'm so sorry to hear about your experience. The good news is that the brain is wired to continue to make changes. I know it's hard to engage in exercise or therapy when dealing with neurofatigue, but maybe starting out with 2 minutes a day could help you continue to work towards your goals ❤️
You are not alone❤
Due to this I dance with suicidal thoughts because I get so frighteningly tired.
I get moments when I can see a future ahead but then I get so so very tired.
I no longer ever talk to my doctor about this issue. I go see him , get my bloods done and take the medication he prescribes.
I think , I hope it may get better .
Hope you are all well.
Did it go away???
thank you this was helpful for me to understand why I am so tired! My stroke was last week and I have been so wiped out, hey I cleaned house Sat and it must have used 20 spoons! Thank you again
Of course! Oh my word, I can imagine it took at least 20 spoons!
Thanks for all of this. I had my stroke in February of this year it’s super difficult to wake up to this body everyday
@HemaSookram You're very welcome. I'm sorry that you're dealing with all of this. Have you tried reaching out to any support groups (online or in person)? It can sometimes help just to know you're not alone
What is lacking in the spoon demonstration is to show a parallel person who has not had a stroke and starts the day with 50 spoons. And as that non-stroke person goes through the day while the stroke person uses let's say 2 spoons just to shower the nonstroke person gets their whole morning hygiene routine done using 1 spoon. Even more telling would be that the nonstroke person actually ***gains*** a few spoons because the shower experience for them is energizing and costs so little to perform...not even close to 1 spoon. And then show side by side visually how each person goes through the day. A person without the stroke starts the day with not only significantly more energy spoons but also does not spend as much per activity as the stroke person.
Thanks for your feedback!
That is spot on!
That was so helpful, now I understand why I'm so tired and now I know what to do . Thank for the tip
❤️
Thank you for validating that stroke recovery can have its ups and downs. Early in my recovery I was going "gang busters" with a "I got this" attitude and then I hit a wall of energy loss and apathy. It has taken a while to progress through that. I cook most of our meals as my wife still works a full day from home (she's 71) and I have noticed that standing to prepare the meal can be extremely tiring, requiring me to nap again for 30 mins (after the meal). This led me to a conclusion about energy conservation with the idea to think ahead and shape what I am doing to minimise this incessant drain of my precious energy. Sometimes I nap before a task that I know will be taxing, sometimes I will just sit and read a book (no screens) for an hour or so. But also note that a heavy meal of say steak or a lasagne can be equally draining, even though both of those can rebuild your reserve stamina/strength over the following hours. I have found that dietary iron intake can be very beneficial. I use red meats, oily fish, and dark green veg to build me up, but always a balanced diet of 100gms (3.5oz) veg, 100gms protein (meats, chicken, fish, eggs), and 100gms starch (potatoes, rice, couscous or pasta) per person which is enough for a sedentary office job. Plus, I try to exercise 2-3 times a week with a 10-15 minute walk, or a gardening equivalent (usually 1 hour). Sometimes I am too tired or "bushed" to do any of this so do not stress over it as that just wastes more energy. LOL
It sounds like you’ve figured out a nice balance!! ❤️
My chiropractor experienced a severe concussion while kite surfing (he's 70) which led him to consult a neurosurgeon friend about a recovery program for him. They likened the concussion to a stroke in its effects on the brain and from that he advised me about frequent "Naps" of not less than 30 minutes duration. I now take a nap about 2-3 times a day whenever I feel fatigued which rebuilds my "spoon bank". I prefer to use the example of a tank of "gas" or petrol in the car. I.E. you only have so much and when its low or gone its nap time. Some days that might be 3 times and sometimes I can train my brain to survive on one, albeit a 1 hour one about 4 or 5pm. The others I set my phone alarm to 11am and 2pm although it is an indicator not an absolute.
@trevorstewart8 I really like your analogy! Thanks so much for sharing! I know it'll be helpful for others. 😊
Had my stroke a little over a year ago, wish i had found your channel then, but it is nice to still have these now to help with recognition and understanding of what my new normal is.
This is excellent. It makes such good sense. Thank you so much.
So glad I found your channel. Thank you! ❤️
Excellent explanation. I am 4-5 months into this "experience"... You can be as ambitious as you wish in your planning - but there is NO WAY you can accomplish even one tenth of it. The body just won't comply...
Thanks for your kind words and sharing you’re experience❤️
I had my stroke in early March of this year. It hit the Pons region and affected my balance. I could use either side of my abilities, no effect on left or right. I can play my guitars no problem. I see your Vox amp( I have a Vox VT40). That's got to help my neuroplasisity! I walk a lot and made great progress along with my physical therapy. My wife helped me the most!! I'm going back to work next week, I've been off for 3 months and I'm on a few meds with some reductions on them. We can recover quite a bit from strokes if you fight it! Thank you for your insights.
Thank you so much for this, my dad just had a stroke last week and physically he has recovered so well in that little time, however mentally he’s just not there yet.
Give him time
nice vox amp...thanks now i know how to deal my neuro fatigue
Great!
Thank you for explaining this I've tried to explain this to my parents and they just can't seem to understand, I'm running out of spoons and have to be very choosy about where I spend them, thanks again for your help
I have a neurological disorder and I describe shower time as an event. With the spoon theories, that only gives me 3 events per day. It fits perfectly. Thank you for sharing. ❤
Thanks!
Thank you so much!! We sincerely appreciate you❤️ every bit helps us as we’re still a small and growing nonprofit☺️
Getting dressed is all the spoons 😂
Actually I would describe the fatigue that I’m having from my stroke that I had December 8, 2021
It’s more like a big giant magnet is pulling me down and it’s affecting my body and my mind
@nikkicicero, Thank you for sharing your experience! Everyone seems to experience neuro fatigue a little differently and it's good to hear those different perspectives ❤️
I wish I new this in the beginning of my Hemorrhagic stroke.
@titansofthesea I'm sorry you're just now getting the info, but that's why I started making these videos. So many survivors I heard from on social media (and my clients) said that they just didn't get the information they needed after their stroke. I hope it's still helpful now and that you're doing well!
@@PostStrokeOrg My stroke was in June 2021. I am moving along well. My right side was numb but i had full function of muscles and what not. But about two weeks ago the numbness has shifted to an icy hot burning tingling sensation. Very unpleasant. Will you make a video about that because I have been having a hard time finding information about this.
Tell me I’m going on two years must nap every five to six hours walk a half mile and I’m down for a nap does it do any good to push no naps and go all day till you fall over us these bp meds
Is red light therapy something you've engaged with or ran into people who have used it? I'm curious how it affects this problem
Mere left side mein paralyze hai mere ko kis side karke rakh karvat Lene
❤
Can i ask a question can a post stroke patient can do running
@ronaldcampaner, Absolutely! I know several stroke survivors who have returned to running. Of course, it all depends on your movement, endurance, and getting clearance from your doctor, but it is possible. 😊
How would you help someone that didn’t think she had a stroke ? She is exhausted daily and speak slower , some confused words.
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If I've rested well I might have 10 spoons. That doesn't really happen.
Hi mam I am physiotherapy students India,
Is there a connection between 5G and strokes?
this is my life in a nutshell
@dianakane Thank you for sharing your experience. I hope this helps give you a way to talk about your experience!
Then there's also emotional fatigue caused by being around certain people
@purpose8141 Yes! This is great point! Thank you
I have found that I have fewer spoons to start with, now that I am older (60s)
umm what do i do with my fork?
seriously, thank you!
Haha oh my word, thanks for the chuckle :) Hope you're well!
@@PostStrokeOrg 👍 "Better than I deserve" 😊
I’m 42 and I hardly have spoons left
How many spoons for learning a new language? I’m not lazy, teacher 😱
@alainpfaeffli I'm sure it takes a lot of spoons to learn a new language! I'm sure you're not lazy. Part of the reason I made this video was to help people understand that neuro fatigue isn't your fault! The brain is trying to heal :)
Oh boy
Women want to talk about feelings.
Men find solutions to the problem.