Suzi’s FULL Recovery from Severe ME/CFS (after 15+ years!)
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- Опубликовано: 27 сен 2024
- Suzi shares her full recovery from severe ME/CFS, a 15+ year journey. In 2017, she became fully bed-bound. For the next 2.5 years, she could only walk to the toilet. At her rock bottom, she found her full path out. This is one of my MOST inspiring interviews! Starts 0:23. TIMESTAMPS below.
Summary:
Suzi Leach, now in her mid-30's, was knocked down by glandular fever at age 17 (she had some symptoms prior to that). She was soon diagnosed with ME. She had up and down periods, until a bad crash at age 30 left her fully bed-bound. For the next 2.5 years, she went deep down the diet and supplement route, and tried to perfect her pacing, but still remained in bed. She was seriously considering doing a coffee enema on the floor… when she found a new path out.
She has been fully recovered since March 2020.
TIMESTAMPS:
0:23 Intro - Suzi talks about her recent trip to Thailand
1:05 Suzi's purpose for sharing her story
1:44 How Suzi first got ill and what her GP doctor dad said
2:39 How she pushed herself & what it was like friends not understanding
3:46 Functionality levels and key symptoms in the beginning
4:22 Suzi's experience with the medical system - what she was told
5:32 Going to uni -- then crashing again at 23, what she was struggling with underneath her time at uni
6:23 What triggered the relapse at 23
8:22 Suzi's functionality levels after her crash at 23
9:39 We sadly laugh about friends not understanding - "sitting up on the sofa" being ready to party?
10:23 What does Suzi try in holistic world? A common thing people remove.
11:07 Getting herself to a point where she could work again... only to relapse again...so she went to an ME specialist who told her THIS
12:05 Mindfulness and meditation
12:43 Diet changes and reading a book on supplements
13:16 What she felt was really going on in these brief improvements
13:31 Believing she'd have to live her life differently
13:51 The worst relapse 2017-2020 (which would be her final one) and what triggered it
15:12 Feeling like she'd need to make up for things?
16:50 The intense diet changes she'd make this time
19:39 We talk about how far we went with the microbiome route. The jar!
20:29 How meditating sustained her (but what was still going on beneath it)
21:26 Pacing perfectionism
23:35 Laughing about the diet d-tours we went down (maybe you are familiar with these!)
25:06 How diet advice can be contradictory
25:59 THE FULL PATH OUT STARTS HERE
27:10 The brain retraining program she chose (over a coffee enema)
27:43 When she got over this -- is when she began to see improvement
28:01 What debilitating symptoms went away going through ANS rewire
28:48 First time outside... and a trip to the park!
30:03 What types of "exercises" did she do?
30:37 What components of ANS Rewire by Dan Neuffer helped her most? The last thing made her cry (tears of joy).
32:45 The shift from what the specialist doctor told her to seeing it like THIS instead
34:24 Hitting a plateau with brain retraining -- what she tried next that really helped
35:29 What's Mickel Therapy?
38:31 Looking at how it worked - her understanding of it
39:45 A big part of it for her
41:01 The fear of doing what you love?
43:25 The Curable Health app / Dr. Sarno
43:56 A hidden secret emotion??
45:15 The culmination of things
46:47 Telling herself "you can do this." Celebrating it -- and headphones for the Rocky Theme Tune vs to cancel noise
48:06 Gratitude. Laughing about husband shaving legs.
49:10 How gratitude had actually gotten her through from the beginning of the 2017 relapse.
50:52 Snowballing improvement - some pics
51:20 How did she start rebuilding her strength?
52:14 Suzi's first steps (20 seconds of video footage)
53:10 Listening to her nervous system, not needing rests out of control & fear. Talks about some initial activities she did.
56:08 Trip to the Lake District and climbing a fell that marks her recovery "I'm good"
57:34 Getting back into regular life, helping brother with business, exploratory phase
58:31 How she felt like the 2017-2020 relapse was it's own illness because of what she learned
1:00:08 What Suzi is doing now
1:02:24 Why helping others with CFS was difficult for me (Liz) -- Suzi says this could be why 1:04:50
1:06:40 Suzi's final words of wisdom
1:09:10 How to reach Suzi
1:10:32 DANCE VIDEO
Suzi wrote an overview of 5 key elements of her recovery here:
healwithliz.co...
Her blog post is just a short summary. She shares the exact programs, modalities, and more wisdom in our interview.
Connect with Suzi:
Instagram: / trustandbloom_
Suzi’s website: trustandbloom....
Follow me on Instagram:
/ healwithlizc
*Independent Lifestyle & Nervous System Regulation Programs Guide (by myself, Liz, and Lindsay Vine):*
healwithliz.co...
Keywords: Post-viral ME/CFS recovery, Severe ME/CFS recovery, Chronic Fatigue Syndrome recovery
Hi Suzy. I have absolutely loved watching your recovery story. It's funny because I've recently had a big aha moment which matches everything you say! I've been ill 5 years with ME/CFS but many health problems and anxiety since a teen (I'm 39 now) I've been doing GUPTA retraining for 9 months and I also have a book called reverse therapy that I've read 3 times(it's basically Mickel) I'm also doing the trauma into childhood as this has been absolutely key to me in understanding the 'why'. Why I people please, overacheive etc. I can't believe how much energy I'd put into a social situation to prove myself. All because I didn't feel accepted as a child! My body hates it! I'm having a huge revelation and now becoming so aware of my thoughts! And changing them! It's unbelievable because I'm finally gaining traction. I also have been doing curable for around 4 weeks and it is absolutely brilliant and in line with everything I'm learning. I love the bitesized practical tasks! This is find out who we truly are. Everything you've said is just so spot on! I can't wait to be able to earn some money soon and use it to travel! Thank you so much for sharing x
Love this interview so much, thank you both! I believe I have watched every recovery interview out there and still learned so much from Suzi. And can we give it up for Mr. Suzi? You know it's true love when he does a coffee enema for you.
Thanks Sarah, SO glad to hear. And Yes, let's give it up to Mr Suzi!!! ;-)👏
Haha comment passed to Mr. Suzi! (Which I may start calling him now 😂) He was my absolute rock, I'm very lucky. So happy you learned from the interview. Much love 😊
Love this ❤️ because of the severity it was easier to relate than many other stories 🌞
So happy for Suzi! Thank you for sharing hope for recovery!
Thanks for watching 💕💕 Sending good vibes!
Thanks so much! I'm so happy you feel the hope for recovery 😊
WOW Wow WOW Suzi x. Looks like you found your inner self and inner super power x Well done for reclaiming your true authentic self x x What an inspiration you are to us all x Sending you so much love xx. Soooooo happy for you. Thank you for sharing your amazing story x
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Thanks Nikki for your lovely comment and kind words. I truly did reconnect back to myself, a really important part of the journey 💙 Sending you much love 😊
Suzi can I ask you what your rewire looked like? Did you focus on something else, like counting chairs in the cinema looll ?? Thank you, I’m going to listen this interview a lot!
@@clarissericardo2313 Hi Clarisse, the rewire technique I used was from the ANS rewire programme. The intention is that you are shifting the nervous system state back to one of regulation. So I would interrupt my thoughts, do some breathwork or use tools to calm down my nervous system, give myself the new perspective and understanding of why symptoms are there and then engage my attention in something else. So yeah focusing on something and distracting is definitely part of it, I definitely used a bit of looking around the cinema! Happy to help 😊💙
@@suzileach4833 thank you Suzi! I found it very difficult when bedbound with lots of sensitivities and boredom. Sorry to ask again, but I’m that scenario , how did you move your attention to something else when only be able to be with our thoughts? Thank you so much for replying. ❤️
Thank you for always sharing these stories!
💕Thanks Michele 💕
I love her ❤ great pick, Liz
Some really helpful gems of info here-thank you both!
Thanks Peaches 💕💕
Really glad you found some nuggets Peaches! Much love 😊
What a good questions! Its all about connecting to your true self and self exploration. And i love the end! ^^
thank you liz!
You're welcome! 💕
I tried mickeltherapy and it made me a lot worse, i feel sorry for anyone who goes through that therapy.
Hi everyone, thanks for being here. I hope you enjoy this inspiring interview. Take your time with this one, because there are a lot of powerful insights. Suzi is such a gem has so much wonderful wisdom. Based on past feedback, I warmed my screen so my wall appears less white to make it easier for people to watch with light sensitivity. Hope that helps. I also included closed captions, as well. A written transcript of our conversation will be up on my site next week. Sending my support and encouragement!
Thank you,so much in your journey which was also in my recovery journey, I related to so much of it, as a fellow ANS and curable and meditation student, thank you for sharing it, I found it very helpful to help me to keep focusing on seeing fear, feeling safe, finding joy
Very inspiring! I have chronic pericarditis, most likely triggered by Covid, and have lived thru similar symptoms and long Covid symptoms. Nearly 3 years down the line, I’m much better and can go for small walks but my heart has never fully healed and I get regular flares. I have never lost hope that I will fully heal without having a pericardiectomy and Luz’s stories inspire me and make me try out new ways of healing.
Sending your heart healing vibes. Put your hand on your heart and tell yourself, I see you, I feel you, I am safe, I am loved. I am healing. That's what helped me
@@HealwithLiz Thank you! My brother, Nando de Freitas, forwarded me the link to your recovery stories (yr husband shared with him). The stories have been very helpful
@@doritamayrhofer4736 Oh Pieter mentioned that a few weeks ago. Glad these stories have helpful, and I'm so sorry you've been going through this. For me, the bob naviaux research about post-viral illness being a block in the healing cycle was helpful (more-so than the initial trigger), and on how inflammation can be significantly influenced by the nervous system. Because I certainly tried all the turmeric like Suzi (and 20 other anti-inflammatory anti-viral herbs)! But at the end, I just followed what helped people heal and what resonated with me. Then afterwards, I got back into the science to understand how it all worked. Sometimes I'm surprised it did. But last month I was sitting next to a neurologist at the wedding of Pieter's former student and telling him about how I healed from post-viral CFS. He was describing how it makes sense because of the HPA access - and how the prefrontal cortex can influence it, and how the vagus nerve can influence inflammatory response. Some of the nervous system regulation programs get into the science about that more than others. Sending my support and healing vibes for your full recovery!
I want to gag when I think of celery juice… I consumed soo much… and it did nothing!
Sadly mickel therapy did'nt work for me at all. I could never identify the " keys"(emotions) and it would make me even more frustrated and upset.
It seems like all approaches depend on us to love ourselves and self-compassion. The order and approach really matters. The promise Suzi made to herself (3 years before she came across it). The brain retraining for a year before. Then the trauma exploration / journaling / Sarno inspired app, while doing the Mickel therapy. From our last chat, I'm glad you've found resonance with the Jim Prussacks somatic experiencing approach and letting your feelings come up rather than rewiring everything. And you inspired me to go back to my old healthy habit of getting up at dawn. Dom I believe in you!!!!! I know processing a lifetime of trauma isn't easy. You will inspire many people.
When she says 45mins "I was rewiring all the time" what does she mean? What was she doing? Thanks!
Brain rewiring comes in all different forms. In the context Suzi was referring to, it's likely she was recognizing a pattern, thought, or behavior that was based in fear, reminding herself that it was her nervous system, taking steps to calm her nervous system, and redirecting her attention on something positive. There are different programs that have different approaches. Some are more trauma based than others.
hi mam share your instagram link
What a hopeful story, thank you for sharing. I'm going to look into mickel therapy, it sounds very interesting
Loved this!!! Thank you for sharing - I’m going to take these thoughts and run with them ❤