I get the anxiety and fatigue aspect. I'm 61, on Orgovyx and Nubeqa (also 6 infusions of targeted radiation: Lutetium), and was PSA 525 16 months ago. Gleason 9. Now PSA .01, and expecting it to go slower. Weight was 195 lbs before the cancer, now it's 170. As I ended all sugars and most heavy carbs, the weight drop makes sense. Psyche impacts the worst part for me. I've been maniacally working out for 16 months without a break and it IS building muscle, but it's a challenge. I eat mostly vegetarian (plus sardines and salmon) and highly recommend a lot of chickpeas for muscle and bone maintenance. Lots of herbs and spices, too. I find the ADT's amplify emotions, so I get worried about stuff that I rarely gave a thought to before. For me, almost zero impact on libido and associated functions. A slight drop. I want to thank you for sharing. This journey is tough, and some days are extra-crappy. I occasionally take half a Lorazapan for sleep. Just .5 mg. Helps. Melatonin is not only good for sleep, but is also emerging as a strong prostate cancer fighter. I hope to go on a "hormonal holiday" soon...
I have been off Lupron for 3 years and suffer with fatigue, have you asked your oncologist about getting some testosterone to perk you up a little bit?? @@parristx
I just found your channel by accident after watching your Shark Vertex review. Now I've subscribed to your channel. I think what you're doing here, sharing your journey, IS therapy! I'm your age or maybe a tad older....turning 60 this year. I'm of your mindset about clinical therapy. It's not always for everyone, and we have our unique ways of coping. I've had a traumatic life, and my therapy has always been to write. I express my thoughts through written words and reflect on them later. It works for me, and I believe this outlet on your channel works for you. Therapy comes in many forms. My husband was just diagnosed with a terminal illness (not cancer). I look forward to following your story here and appreciate you. Stay well and fight hard!
Thank you so much for commenting- you seem very insightful and I am pretty sure you are right. I guess I am not satisfied with talking about my personal challenges with just one stranger- I need to tell it to hundreds! It is good to hear that you have found the outlet that works for you. I am sorry to hear about your husband. You stay strong too.
@parristx thank you. I'm trying! My trauma started when I was around 5 years old, so coping has been a 55-year journey. But I'm a survivor, as are you ❤️
Good series and all elements of this apply to me. Still trying to break out of the cancer funk and build a plan going forward. Keep your suggestions coming.
Thanks David! I try to focus on doing things I can accomplish in the shorter term- you don't feel so much like you are tempting fate and it is heartening to actually accomplish the things. One of my favorites is planting a garden (my neighborhood squirrels seem very happy when I do this too- future buffet!) as you get to enjoy the rewards of your effort for an extended period.
Just found your channel as I was looking up about Vitreous detachment on eye. Anyway what a brilliant channel so now following. Sending you much love from UK🏴🏴🏴💙🙏
Thanks Michael! Hope your eye is doing okay. Some days I will go the whole day without seeing the big floater left by my vitreous detachment- and then something makes me think of it and then I can't help but see it for an hour or two! It is amazing what our minds can get accustomed to and we even forget all about it.
I'm a long time follower/fan, older than you. We've exchanged before. Thx again for a powerful video. My Rx: (1) Get started w a therapist already, (2) The word you may be looking for is, perhaps, zeitgeist? No exact translations in English. (3) There's tech available to prevent hip fractures. Hopefully, it will be mainstream long before you get old. Take care
Thanks Atul. If not zeitgeist maybe I am suffering from a lack of hygge. 😁 Europe has such wonderfully nuanced concepts! And I don't spend a lot of time worrying about breaking a bone but it does come to mind occasionally ending up like the chickens in Gary Larson's "Boneless Chicken Ranch."
Hi Parris! Thank you so much for these videos! My doctor started me on Orgovyx instead of Lupron. Way less side effects, taken orally, no testosterone flair.. Might be worth it to see if your doctor can switch you to Orgovyx. Thanks again for sharing your journey
Thanks John! I remember reading something about a pill to block testosterone- I think this might have been it. I have been on Lupron for 28 months now with 8 month remaining in my treatment plan. I think I will stick with the devil I know for now but it is good to know there are other options. 👍
I enjoyed part one and helps me understand what I am going through. Dr. not providing enough information about this aspect of the treatment. I do feel sorry for his father but that aspect of the videos was not relevant. Otherwise, very good.
Don't give in to the weekness the owl need you plus i love your gardening videos there is a song that may help you it's by the Goo Goo Dolls it's called over and over listen to it and let me no if it helps goodluck
I think I may need to quit watching Lupron videos. I'm starting to ache all over. 😅I've been on Lupron to starve my metastatic breast cancer of estrogen (menopause) for the past 3 years. Due to my metastatic (stage 4) status, this means Lupron for life. I get a shot every month. They'd give me testosterone creams for dryness, but testosterone will only turn into estrogen in my body, so no can do. "Life changing" indeed. That said, after watching Parts 1 & 2 of your Lupron series, I wanna cheer you up a bit! *THERAPY ISN'T HOW YOU THINK IT IS:* Ugh! You sound like my husband! Don't get me wrong, I understand, but you both got the wrong idea! I occasionally see a therapist at the local cancer center (she specializes in cancer anxieties, pain, insomnia, low motivation, common cancer issues like ours) to help me solve things like pain, for example. I signed a thing so she can communicate with my oncology staff, and now they seem more empathetic to my pain for no obvious reason other than seeing their counselor lady. She had loads of knowledge about all kinds of surprising things. *The therapist is the one with ALL the RESOURCES!* Therapists DON'T pick you apart. You fear the UNKNOWN, but therapy isn't about breaking you down and unveiling your innermost secrets! NO! It's just you listing complaints, and them trying to alleviate those complaints. They give you resources to call or exercises to practice *without prying into your secrets.* LOL, me thinks you'd enjoy that Hannibal Lector series where he messes around with his patient's minds, but in reality, most movie or TV therapists would be sued into oblivion in the real world. "Don't Fear The -Reaper- Counselor." See what I'm saying? Anyway, the first time I went, I asked "is it okay that I'm just here for a tuneup?" She said that's fine and I went 3 times, I felt better, and we stopped. *Just like physical therapy!* I still use a lot of the info she gave me to this day, and if I ever feel like I need to, she's just a phone call away if I decide to go back to se her. Also: *Is it more okay for women of our generation to visit a therapist than for our counterpart men?* My husband says, "that's different" when I ask if it's "weird" for me to see a therapist. He seems to think, and I wonder if you do too, females seeking therapy is a different thing than a man seeking therapy. *Is this true for our generation?* If so, then what makes you men so special? Why does knowing more about your brain make you less of a man somehow? I'd like to understand this because my husband just tosses his hands in the air and concludes, "It's just not the same." He's a man of few words, and I love him, but he has a few hangups that are kinda funny if I'm being honest. Like his hatred for stopping to ask directions and his aversion to using a drive-thru for takeout food; he likes going inside, drive-thru no mas. Silly!
I get the anxiety and fatigue aspect. I'm 61, on Orgovyx and Nubeqa (also 6 infusions of targeted radiation: Lutetium), and was PSA 525 16 months ago. Gleason 9. Now PSA .01, and expecting it to go slower. Weight was 195 lbs before the cancer, now it's 170. As I ended all sugars and most heavy carbs, the weight drop makes sense.
Psyche impacts the worst part for me. I've been maniacally working out for 16 months without a break and it IS building muscle, but it's a challenge. I eat mostly vegetarian (plus sardines and salmon) and highly recommend a lot of chickpeas for muscle and bone maintenance. Lots of herbs and spices, too.
I find the ADT's amplify emotions, so I get worried about stuff that I rarely gave a thought to before. For me, almost zero impact on libido and associated functions. A slight drop.
I want to thank you for sharing. This journey is tough, and some days are extra-crappy. I occasionally take half a Lorazapan for sleep. Just .5 mg. Helps. Melatonin is not only good for sleep, but is also emerging as a strong prostate cancer fighter.
I hope to go on a "hormonal holiday" soon...
Thanks once again for sharing this difficult experience.
Thanks for sharing your experiences. You’re helping others.
Thanks Louis- always nice to hear. 🙏🏾🙏🏾
I have been off Lupron for 3 years and suffer with fatigue, have you asked your oncologist about getting some testosterone to perk you up a little bit??
@@parristx
I just found your channel by accident after watching your Shark Vertex review. Now I've subscribed to your channel. I think what you're doing here, sharing your journey, IS therapy! I'm your age or maybe a tad older....turning 60 this year. I'm of your mindset about clinical therapy. It's not always for everyone, and we have our unique ways of coping.
I've had a traumatic life, and my therapy has always been to write. I express my thoughts through written words and reflect on them later. It works for me, and I believe this outlet on your channel works for you. Therapy comes in many forms. My husband was just diagnosed with a terminal illness (not cancer). I look forward to following your story here and appreciate you. Stay well and fight hard!
Thank you so much for commenting- you seem very insightful and I am pretty sure you are right. I guess I am not satisfied with talking about my personal challenges with just one stranger- I need to tell it to hundreds! It is good to hear that you have found the outlet that works for you. I am sorry to hear about your husband. You stay strong too.
@parristx thank you. I'm trying! My trauma started when I was around 5 years old, so coping has been a 55-year journey. But I'm a survivor, as are you ❤️
Good series and all elements of this apply to me. Still trying to break out of the cancer funk and build a plan going forward. Keep your suggestions coming.
Thanks David! I try to focus on doing things I can accomplish in the shorter term- you don't feel so much like you are tempting fate and it is heartening to actually accomplish the things. One of my favorites is planting a garden (my neighborhood squirrels seem very happy when I do this too- future buffet!) as you get to enjoy the rewards of your effort for an extended period.
Great video, Parris! I watched both parts and, as I commented earlier, you're amazing!
Thanks Ross. I am counting down the days till my three years on Lupron is done.
good luck in your stressful times 🙂
Thanks Nat!
Just found your channel as I was looking up about Vitreous detachment on eye. Anyway what a brilliant channel so now following. Sending you much love from UK🏴🏴🏴💙🙏
Thanks Michael! Hope your eye is doing okay. Some days I will go the whole day without seeing the big floater left by my vitreous detachment- and then something makes me think of it and then I can't help but see it for an hour or two! It is amazing what our minds can get accustomed to and we even forget all about it.
@@parristx Thank you. Yes eye is stable although it has PVD and many floaters!!!! And flashes!!!!
I'm a long time follower/fan, older than you. We've exchanged before. Thx again for a powerful video. My Rx: (1) Get started w a therapist already, (2) The word you may be looking for is, perhaps, zeitgeist? No exact translations in English. (3) There's tech available to prevent hip fractures. Hopefully, it will be mainstream long before you get old. Take care
Thanks Atul. If not zeitgeist maybe I am suffering from a lack of hygge. 😁 Europe has such wonderfully nuanced concepts! And I don't spend a lot of time worrying about breaking a bone but it does come to mind occasionally ending up like the chickens in Gary Larson's "Boneless Chicken Ranch."
Hi Parris! Thank you so much for these videos! My doctor started me on Orgovyx instead of Lupron. Way less side effects, taken orally, no testosterone flair.. Might be worth it to see if your doctor can switch you to Orgovyx. Thanks again for sharing your journey
Thanks John! I remember reading something about a pill to block testosterone- I think this might have been it. I have been on Lupron for 28 months now with 8 month remaining in my treatment plan. I think I will stick with the devil I know for now but it is good to know there are other options. 👍
I enjoyed part one and helps me understand what I am going through. Dr. not providing enough information about this aspect of the treatment. I do feel sorry for his father but that aspect of the videos was not relevant. Otherwise, very good.
MOJO thats the word!!!
🙏
🙏🏽
♥️♥️♥️
This is crazy, I’m sorry but I much rather die than to live this way.
Personally I will not continue with Lupron. Brain fog, fatigue, anxiety, bones aching. No thanks.
Gumption = Spunk - very appropriate here.
Don't give in to the weekness the owl need you plus i love your gardening videos there is a song that may help you it's by the Goo Goo Dolls it's called over and over listen to it and let me no if it helps goodluck
Thanks Gus! I have heard that song before and I did listen to it again- this time reading the lyrics. I appreciate it!
Your are welcome
You’re talking to us. You can talk to a therapist.
Good point!
If you are born again believer. You could pray to God for help.
I am more of a "God helps those who help themselves" mentality but I agree that there is always room for prayer.
I think I may need to quit watching Lupron videos. I'm starting to ache all over. 😅I've been on Lupron to starve my metastatic breast cancer of estrogen (menopause) for the past 3 years. Due to my metastatic (stage 4) status, this means Lupron for life. I get a shot every month. They'd give me testosterone creams for dryness, but testosterone will only turn into estrogen in my body, so no can do. "Life changing" indeed. That said, after watching Parts 1 & 2 of your Lupron series, I wanna cheer you up a bit!
*THERAPY ISN'T HOW YOU THINK IT IS:* Ugh! You sound like my husband! Don't get me wrong, I understand, but you both got the wrong idea! I occasionally see a therapist at the local cancer center (she specializes in cancer anxieties, pain, insomnia, low motivation, common cancer issues like ours) to help me solve things like pain, for example. I signed a thing so she can communicate with my oncology staff, and now they seem more empathetic to my pain for no obvious reason other than seeing their counselor lady. She had loads of knowledge about all kinds of surprising things. *The therapist is the one with ALL the RESOURCES!* Therapists DON'T pick you apart. You fear the UNKNOWN, but therapy isn't about breaking you down and unveiling your innermost secrets! NO! It's just you listing complaints, and them trying to alleviate those complaints. They give you resources to call or exercises to practice *without prying into your secrets.* LOL, me thinks you'd enjoy that Hannibal Lector series where he messes around with his patient's minds, but in reality, most movie or TV therapists would be sued into oblivion in the real world. "Don't Fear The -Reaper- Counselor." See what I'm saying? Anyway, the first time I went, I asked "is it okay that I'm just here for a tuneup?" She said that's fine and I went 3 times, I felt better, and we stopped. *Just like physical therapy!* I still use a lot of the info she gave me to this day, and if I ever feel like I need to, she's just a phone call away if I decide to go back to se her.
Also: *Is it more okay for women of our generation to visit a therapist than for our counterpart men?* My husband says, "that's different" when I ask if it's "weird" for me to see a therapist. He seems to think, and I wonder if you do too, females seeking therapy is a different thing than a man seeking therapy. *Is this true for our generation?* If so, then what makes you men so special? Why does knowing more about your brain make you less of a man somehow? I'd like to understand this because my husband just tosses his hands in the air and concludes, "It's just not the same." He's a man of few words, and I love him, but he has a few hangups that are kinda funny if I'm being honest. Like his hatred for stopping to ask directions and his aversion to using a drive-thru for takeout food; he likes going inside, drive-thru no mas. Silly!