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Lupron Wearing Me Down- Part 1
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- Опубликовано: 22 янв 2023
- Going into my 3rd year on Lupron the cumulative side effects are really dragging me down. Between shrinking bones and muscles and new joint pain appearing weekly it is getting hard to keep my chin up (of course that could also be the muscle wasting 🙄). I have just lost my gumption and motivation since the start of the year and wonder how to pull myself out of this rut.
Watch Part 2 of this video here- • Lupron Wearing Me Down...
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Oh yeah, I completely understand. A little over a year on Eligard. Fatigue, leg pain, some lightheadedness, some days feeling like crap. Weird feeling, light headed at times, sudden surprise poops. Yes, it all gets old. Happy with the .0004 PSA though.
I was diagnosed with stage 4 prostate cancer at age 66 on top of type 1 diabetes and cervical spine degeneration. I am now 69. I am manageing managing my cancer using the new oral drug Orgovyx and taking liberal holidays allowing my testosterone and PSA to climb. You and your doctor have to decide but for me life without some testosterone is just not worth living. I know i will never be cured but I'm not going to live as a bag of brittle bones sitting on the couch.
ADT was first discovered in the mid-60's, and I find it nearly impossible to believe that nothing has been discovered in the intervening years that can take its place. I'm currently on my first dose of Lupron (eventually to have 3 years of it) and I am also on Zytiga for 2 years because of having a stage 4 recurrence of my prostate cancer. In my case I have dabbled in most of the known side effects, with some staying around a few weeks, while others are with me till this day.
I hope the sacrifices and effort you've put in during these few years will pay dividends of many years of cancer-free living to come. Thanks for the update and here's to getting the oomph back to continue with your healthy habits!
Thanks so much! That's what I am banking on- dealing with a few years of unpleasantness in exchange for some extra years of healthy living. I will do my best to keep doing my part! 💪💪
We gotta lift when we’re old, the Lupron just makes it more so. Even the dedicated runners and hikers eventually pay the price of muscle wasting if they don’t lift. Lupron is just gas on that fire. I can almost promise that if you lift as regularly and intensely as you safely can your Lupron side effects will be minimal.
my experience is continuous and consistent lifting is warding off most of the side effects and I've had zero weight gain (weight loss of around 25 pounds more due to elimination of sugars and simple carbs).
What's frightening doctors in American are giving this to prepubescent children who have been deluded into believing by an ideology they're body is the wrong sex. The side effects are frightening and in children can't be regained.
Thank you for your genorsity and kindness and helping us.
Thank you. Glad you found the video helpful.
Been on Lupron for 3 years and it’s awful, doctor said I will be on it for the rest of my life
HORRORS OF LUPRON
Thank you for sharing this video. Just thought I'd parallel my story...
I'm not on Lupron, but I'm 61 and on Nubeqa and Orgovyx since March '23, which are also ADT's not greatly dissimilarto yours even though I take them daily. On top of that, just about to get my 6th infusion of Lutetium (trial).
After 8 months, fighting hard to maintain muscle mass and bone density. Original PSA was 525, Gleason 7, which was initially terrifying, and now 1.0. I'm maintaining so far by rigorous weight lifting, push-ups, pull-ups, and various torso-strengthening exercises. I'm doing these 2-3 times a day.
I'm fully plant-based (tomatoes, tomato paste, broccoli, sprouts, fellel, arugula, spinach, etc.) except for daily intakes of sardines and salmon. Supplements are D3 with K2 (MK-7), Magnesium Glycinate and Magnesium L-Threonate, Milk Thistle (for liver), 5-HTP, Melatonin (good research out there than it can prevent cancers growing blood vessels), Flaxseed powder, MCT Oil, Amla Powder, and Pea Protein for post-workouts.
For me, not a lot of hot flashes, but amplification of anxiety (some depression) and strange mood alterations. I find working out usually works these off.
Very little libido impact for me, which my Doc is surprised by, and still sexually active.
Skeletal muscle mass is 75.8, total body fat percentage is 8.3 (low), body fat mass is 12.3 (under also), lean mass is 57.3, and most blood work is normal.
No weight gain as I'm off all sugars and most carbs, although now working out with Vegan carb-based formula. BWI score is 9.5/10, and Bio Age is 51.
It's a depressing situation at times, but, like you, I'm fighting through it.
I really wish you all the best, parristx.
Hey do u take organic chicken???
Thank you for your thoughts and experiences with Lupron. Had my 1st shot today with another 3 month shot next month, so I feel blessed I will only have a 4 month course. To you, I wish all my best you are in my prayers. Keep up the good fight🎉
I'm on my 2nd shot Lupton 6 months shot it's been 2 months so far so good the side effects just some chills really no hot flashes little brain fog little dizziness sometimes but so far so good
I take vitamin D and calcium supplements to
Don't count your blesses yet pal. They say that but wait till your time is up. I bet they want to extend it. They want to make more money. With this medication that makes you sick and sicker instead of better. I am through with all hormone treatments. I refuse it all. And guess what. I'm doing better. With just radiation!!!!!!
You really do have to question the medical profession and their treatments and the side effects. From what you've described over your many videoswas it really worth it? So many people I know are no better and often worse after a a medical procedure. Apart from putting you back together after an accident you really do wonder ... I wish you well. Thanks again for telling us what the doctors don't tell us or play down or as you said, undersold.
Very much appreciate your honest sharing of your experiences in battling prostate cancer. My MRI shows cancer is highly likely, and having a fusion biopsy on Friday.
Thanks Robert. Wishing you good test results with your biopsy.
Nice presentation thanks. In the UK 18 months ADT is considered the most needed for one course but depends on the PSA and Biopsy results on diagnosis. Could you pass on to us you PSA and Gleason score on diagnosis please? I was 3 + 4 = 7 and PSA 6.6. Thanks again. Peter
Eighteen months I think I could have bounced back from. After three years I find I haven't much bounce left! At diagnosis my PSA was about 32 and my Gleason score was 9. Ergo the three long years.
"Where's your get up and go?"
"It got up and went! "
Parris, you're amazing!
Thanks for sharing.... Here I go.
LUPRON IS A KILLER
I was listening to a Dr. Geo Espinoza episode about doing weight bearing exercises to minimize the loss of bone density. I've not been doing any weight lifting but need to start. I was 6'4" and can already tell I'm just a bit shorter. And I'm confident that all my weight loss so far has been muscle loss. How can wew help each other commit to doing some upper body workout? The loss of motivation on this treatment makes doing any kind of workout plan challenging.
My grandpa is 87 and starting his first Lupron treatment soon. Thank you for sharing your experience and being so honest but still positive! Your video gives me hope that he will be okay as I see you’re going on 2 years of treatment and still traveling and able to do 10,000 steps a day! That is awesome and inspiring! Praying for your continued strength, healing & wellness! 💪🏾
By the way, did you take any supplements for bone health during this treatment?
Eighty seven years old and the doctors are putting the poor old man...on LUPRON??!!! W T F !!!!!!!
AT THAT AGE...HOW MUCH MORE DOES HE WANT TO LIVE
Your bones aren't shrinking. They are losing calcium. Your shrinking is likely caused by the discs of your spine degenerating.
I was ready to take proton therapy but listen to people like you have made me decide to do the surgery route. If I did take the proton therapy I would definitely refuse all hormone treatments. I do not think it's necessary . To cure cancer. I did my own research and studies now saying that it could be worse if you lowered the testosterone. Worse.
I haven't heard that. But good luck with the treatments you choose- wishing you the best.
TESTO REDUCTION IS DEATH WITH A SMILE
Long time since I've seen y'all all here. Hope your fam is doing well
Thanks Jessie. Kids are both in college now- so we are all keeping busy.
@@parristx oh my time flies!! That's for sure.
Does bone growth vitamins (calcium, vitamin K1, vitamin K2, vitamin D3, and magnesium ) help?
My father was on Lupron
And often wonder if vitamins would have helped?
Do anybody got coughing episodes with casodex or lupron???
Ya looking pretty good
Hi Parris, I’m looking for the PSA and Gleason scores that were measured at the start of your treatments. Great videos thanks,
René
Hi there. I think my original PSA score was 37 and the retest a week later was 32. My Gleason score was 9- with most of the cores showing cancer.
hello my name is jimmy , i am from london . i am on xtandi plus injections . i have had back pain since i had cancer . i an 64 , i had cancer for two years . what i want is a doctor to tell the truth . thankyou for your time .
I hope you can get help with that pain and the answers you want.
Please don't give up upon your healthy habits
Thanks- I wont. 💪💪
♥️♥️♥️
Perhaps you could transition to Casodex for your last year of ADT. I am not a doctor but have heard the side effects are considerably less and it is almost as potent as Lupron. Might be just the lift your psyche wants going into the home stretch.
Thanks for the tip- I will look into it!
I would add...
Brain fog
Severe mood swings
Anemia
Depression
Penile and testicular shrinkage
Hot flashes
Among other effects.
ADT CASTRATION is cruel and barbaric treatment
Arm wrestle. Why in the world?What brittle bones would you even think of arm wrestling.
And Xylodex
But you're alive....a few aches and pains, continual hot sweats etc.....is it worth it? My psa was 24, 3 years ago and I've had radiation and hormone treatment (decapeptyl 6 mthly injections- similar to lupron). I was a weight trainer before prostate cancer and I just carried it on with long walks on alternative days. I have lost strength and after 3 years I have stopped the hormone treatment. My last psa test was undetectable so now that I'm off the hormone treatment, I'm awaiting my next test in September.....fingers crossed. They say it takes the same amount of time as your injection period to get the drugs out of your system....I still get many hot sweats and a few aches and pains and I'm only a month or 2 out of the hormone treatment period.....I'm hoping that the sweats and aches will pass soon....cheers
Congrats on getting through three years of ADT! My testosterone took some time to start coming back up after I finished my Lupron treatment. It is in the normal range now and I can definitely feel the difference. Three months after my final Lupron shot began wearing off my testosterone was at 270. At six after months it was at 410. So hang in there! 💪💪
Not quite zero; there is usually some minor or trace testosterone left...
HORROR SHOW
HIFU was so much easier to go through all of this. jmho
Your supposed to do alot of weight lifting while you're on Lupron so you don't lose your muscle mass!
IT IS A SLOW DEATH