This was very informative. I've been struggling for years and am told one thing, then go to a specialist for that and they say it's not that, then something is seen on a scan, I'm sent to another specialist who says "it's not a big deal". Just today I had an ultrasound which says "indicative of MALS". I wish you weren't across the country from me as you seem so knowledgeable about this! I would love to see you and show you all the tests I have had done. Thank you for all you are doing talking about this!
The question is, which specialist to see. I have seen two vascular surgeons that have confirmed i have mals, but they disagree at to wether or not that is causing my symptoms. I still have to rule out other conditions before i proceed with surgery. I have had a very hard time getting to see a GI doc, my appointment is four months from when i got my first symptoms. I went the the ER at 3 different hospitals but they all focus in on Mals and disregard looking at other possibilities. They read my “my chart” and say “ok he has mals send him to surgery with vascular”. But im old, 60 im a male, and my symptoms came on overnight. All of which are very unusual for mals diagnosis. WHat i hoped was going to be a quick, diagnosis and treatment is turning into a long journey. But thats ok, i figured out that i can live off of 500 calorie boost shakes 4x a day and maintain my weight. I have lost over 25 lbs and cant afford to lose more. Sorry for the vent here, i hope this helps somebody else going through this and having a similar journey. Larry
I have MALS but live in Arizona...have no money, live in pain but theirs no doctor here can do the surgery because I keep getting told too find a doctor that deals with with MALS 😢
This was very informative. I've been struggling for years and am told one thing, then go to a specialist for that and they say it's not that, then something is seen on a scan, I'm sent to another specialist who says "it's not a big deal". Just today I had an ultrasound which says "indicative of MALS". I wish you weren't across the country from me as you seem so knowledgeable about this! I would love to see you and show you all the tests I have had done. Thank you for all you are doing talking about this!
The question is, which specialist to see. I have seen two vascular surgeons that have confirmed i have mals, but they disagree at to wether or not that is causing my symptoms. I still have to rule out other conditions before i proceed with surgery. I have had a very hard time getting to see a GI doc, my appointment is four months from when i got my first symptoms. I went the the ER at 3 different hospitals but they all focus in on Mals and disregard looking at other possibilities. They read my “my chart” and say “ok he has mals send him to surgery with vascular”. But im old, 60 im a male, and my symptoms came on overnight. All of which are very unusual for mals diagnosis. WHat i hoped was going to be a quick, diagnosis and treatment is turning into a long journey. But thats ok, i figured out that i can live off of 500 calorie boost shakes 4x a day and maintain my weight. I have lost over 25 lbs and cant afford to lose more. Sorry for the vent here, i hope this helps somebody else going through this and having a similar journey. Larry
Problems can’t find a good dr to diagnosis
I have MALS but live in Arizona...have no money, live in pain but theirs no doctor here can do the surgery because I keep getting told too find a doctor that deals with with MALS 😢
My granddaughter is having intestinal problems pain in small intestine