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Yup I lost 50 pounds in 3 months last year because when I eat I get pain. There’s been no diagnosis yet for me and all the doctors just want to give me different prescriptions but they don’t know what they are treating. It’s extremely frustrating on my end. Not sure what to do. Any advice would be greatly appreciated thanks.

I have a 70% MAL compression. I also have 4 aneurysms. 1-Splenic artery, 1- right hepatic artery, 1- left hepatic artery and 1 gastroduodenal artery also. I had a craniotomy at Emory in 5/2022 to clip 6 brain aneurysms. I was 58. My weight has dropped from 155lbs to 90 lbs. Do I need surgery for the MAL? My vascular surgeon seems to think so. And why do I have 10 aneurysms? No family history, I am autoimmune with Hashimoto’s and I have severe osteoporosis. My body does not produce enough collagen. I’ve had high blood pressure since I was 30. Had Rectal Prolapse surgery in 2/2023. Any response would be appreciated. Thank you 😊

Nutcracker syndrome varicocele problem please help me sir

I have a MALS diagnosis, but trying to rule out everything else first. Thanks for sharing this success story, give me hope that some day i will be able to eat regular food and not just Boost shakes. Larry

What is a UGI on your checklist. Larry

I am an unusual patient, old and male. Good to hear people like her have a successful result. Larry

Yes thats me Sitophobia.. looking at hard food makes me shiver. Boost shakes keeping me alive. Larry

The question is, which specialist to see. I have seen two vascular surgeons that have confirmed i have mals, but they disagree at to wether or not that is causing my symptoms. I still have to rule out other conditions before i proceed with surgery. I have had a very hard time getting to see a GI doc, my appointment is four months from when i got my first symptoms. I went the the ER at 3 different hospitals but they all focus in on Mals and disregard looking at other possibilities. They read my “my chart” and say “ok he has mals send him to surgery with vascular”. But im old, 60 im a male, and my symptoms came on overnight. All of which are very unusual for mals diagnosis. WHat i hoped was going to be a quick, diagnosis and treatment is turning into a long journey. But thats ok, i figured out that i can live off of 500 calorie boost shakes 4x a day and maintain my weight. I have lost over 25 lbs and cant afford to lose more. Sorry for the vent here, i hope this helps somebody else going through this and having a similar journey. Larry

I cant event think about eating regular food anymore, im glad you had a great result, i still searching for the right doc. larry

I was diagnosed with mals 2 months ago and i wish i had come accross this video at the beginning. After 4 different hospitals and 3 long ER visits, doctors still disagree if i have mals or something else. I think the important thing is to eliminate all other possible diagnoses before proceeding to mals surgery. I have had two ctas, two ultrasounds, one EGD and lots of blood work. I have an upcoming celiac block. I have lost over 25 pounds and now surviving on boost high calorie shakes, 4x a day. This is a very difficult disease to diagnose. I have found it very hard to find a surgeon with experience doing the mals procedure, even then they all seem reluctant to do the surgery unless every thing else has been ruled out. Getting an appointment with a GI doc has been the hardest part as they are all booked months in the future. What i thought would take a month or two to resolve is going to take 6 months to a year to figure out and hopefully get back to normal, that is the big change for me is my state of mind about what to expect. Larry

I would say that some of your pts with this probably have ehlers danlos syndrome

I have SMA sydrome found on ct scan with contrast after losing going from 130 pounds to 109 pounds in a year of constant nausea last week I have gone down from 116 pounds to 109 pounds and constant nausea and agonizing pain in lower abdomen. My condition is so bad I got another diagnosis on top of everything which is chronic fatigue syndrome and it’s not my fault because I have been averaging 2700-3000 calories a day for the last 4 years and haven’t had a problem until a year ago. I have been forced not to eat lunch since nausea peaks at this time so I’m stuck eating a 1,500 calorie breakfast and a 1,500 calorie dinner and nearly dying of dehydration even though I’m consuming 5 liters of liquid a day.

"Find a doctor who knows about all these conditions" Ok, but what kind of doctor is that? Vascular specialist? GI specialist? How do I find them?

So if the only issues are nausea gastro issues after eating then why surgery? Recently diagnosed on CT scan for me but confused as to what im dealing with. Is this fatal or just issues after eating?

Very informative. I’m a veteran and I had this exact problem. It’s nice to better understand what was going on in my body. I’m 2 weeks post surgery and things are getting better each day

How do we get doctors to order the ctA with breathing protocol? My daughter had surgery. It’s back. Ultrasound shows stenosis. Every doctor says you don’t need the breathing protocol for a ctscan. It doesn’t make sense to me to do it for an ultrasound and not the other

I think I might have this. I have had several procedures and hospital visits because of my symptoms since the beginning of the year but still no diagnosis, just guess treatments (some did help to relieve the pain). I finally have an appointment w my primary doctor next week(which I booked months ago because he was booked through out)

Does it cause colinic inertia

The music makes it difficult to concentrate on the explanation. Thank you!

I had this and Wilkie syndrome

Can weight gain is help to improved sma syndrome ? And can i eat whey protien during sma syndrome

What’s the update 3:06

I guess I have it 😢

Any advice for a 34yo male post DDJ who has SMA and Nutcracker but never gained weight after surgery? Still 130lbs.

the child also has another narrowing of the nutcracker

for a 12 year old what do you recommend

My issues is that it's affecting my neck and I can't breath and my stomach feels like it's being crushed

The corner stone for diagnosing SMA(Wilki)syndrome is THE RAPID WEIGHT LOSS+ITS SOURCE

Thank you for all you do for us Dr. Shouhed! These syndromes are so scary so to have such a caring doctor that you trust is everything. We love you and your entire staff.

Have had symptoms extending back to childhood of early satiety, bouts of nausea, and upper GI pain/spasms. You mention rapid weight loss but that hasn’t happened with me though a 14 degree angle and 6mm between arteries was recently caught on CT and CTA. Dealing with a bad bout now but I don’t vomit. Also, dealing with chronic malabsorption issues. I am a nurse and have always forced nutrition and treated symptoms but my bouts seem to be worsening. Had to pull out of grad school for a year. Do you see chronic intermittent cases ever?

I have mals it took 7 years and now insurance wants to say it’s exploratory surgery and not pay 4 days before surgery when it’s not they worded it celiac stetting ext I’m in a fight for me life I’m not sure how they would leave me this way or what care plan would work I’m I. Shock

Is the consultation free

Thanks for posting! Great video :)

Noone will do surgery in Australia and horror outcomes are scary. Mine is getting so bd its constant gripping gnarling pressure pain and nerve irriation in right side chest and now as vetting worse is spreading down abdomen and into back. Im so underweight as food is hard and no appetite as in flight or fight all the time. Its causing severe autonomic dysfunction issues and the lonher the nerve irriation is left with worse issues are getting

Constant nausea before and after open MALS surgery (Europe). What is a reason?

No surgeon in Australia will touch this surgery and needs to be done by an expert and open surgery so can deal with the scar tissue and fibrosis to reduce further issues still. However i am finding it impossible to get help and meanwhile now can hardly eat and the nerve bundle irritation means stuck in flight or fight and compressed tightness now is 24/7 from chest to radiate down abdomen and into back. Feels like im stuck internally right aide body and nothing helps ease the pain. Spreading and more deep and visceral issues longer its left. My autonomic dysfunction is worse and blpod pooling in legs wtc etc. Vicious cycle

I am the rare male that was born with this and required open double bypass emergency surgery. MALS is profoundly painful and finding a surgeon who knows how to do repairs is really difficult considering the rarity of MALS, not to mention it is fatal without the surgery, which still has a 1 in 3 death rate.

Mule Town .. rodeo rodeo

Hello , I pray all is well. Please relocate to Tennessee and ask other colleagues who are well trained physicians in different areas. We have no doctors in this country ass town with all these cheap as billionaires.

Can sma symdrome cured weight gain … i am suffering from 2 years and dr told me weight gain

Dr my vascular dr ordered yesterday vascular ultrasound of abdomen aorta is it test which can confirm smas and mals .please reply I donor have enough knowledge really need help from you because there are no enough dr here in Finland experience in mals and smas

Dr I am suffering from 1 year I already text u in watsaap I have epigastric pain after eating meal , that long last for 3/4 hours every meals gives me a pain , food regurgation when I take enough meal , difficult to breathe feels tightness in epigastric region my all gi test gastroscopy , barium swallow, gastric emptifying test, ultrasound ,come out normal ph manometery show food regurgation does it might be mals or smas . I take anxiety medication because my gi dr told u don’t have any gi issue and told me anxiety medication . I am taking since 4 months but my symptoms are worst after meal no medicine working on me .

Does barium swallow test detect sma syndrome

VtOS aTos nutcracker syndrome and malS sufferer here. Looking at surgery for VTOS but mals surgery has horror stories. I am underweight and struggle to gain and ny vascualr compressions have caused worsening autonomic dysfunction hence wasting away further as cant exercise, gain weight or strengthen body and posture. Would a feeding tube to gain weight help cure MaLS and nCs.

Dear Brendan, I operate on adolescents with a pediatric surgeon. Please call our office to make an appointment. 310-890-5834

Hi Dr Shouhed, our daughter was just diagnosed with SMA. She is 11 and has major motility issues and is Autistic and has limited verbal skills. She is always telling us “I hurt”. Is there anything for pain you would recommend she is currently on gabapentin. Would you recommend surgery on a child. We are in Michigan at Helen Devos children’s hospital. Do you know anyone on the East Coast that does surgeries regularly on children. Thank you.

I had a successful open MALS surgery 3 years ago. Unfortunately it took too long for me to get help. My pancreas is now insufficient, my stomach hurts after eating, it feels like food is at a standstill and noisy in the gut (assuming due to low blood flow). I am waiting for ctscan results. Edit: In addition, my artery is now a zigzag pattern (new normal) and right below this I have an aneurysm.

Why foes nobody ever mention EDS is. Big cause of this. Rapid weight-loss is not the only reson this happens. Thousands of patients who have been diagnosed usually have EDS or some type of connective tissue disorder. It NEEDS to be mentioned.

Dr gastric emptyfying test can detect mals or not ❤️❤️

How do we find a doctor that knows about MALS?