STEROID INFUSION DAY 2: Methylprednisolone | SoluMedrol | MS | NMO | TERESA MAKES A NEW FRIEND!! :)
HTML-код
- Опубликовано: 7 сен 2024
- Steroid Infusion day 2 of 3 (09.12.2020)
----- Please consider joining us -----
▶︎ SUBSCRIBE - www.youtube.co...
👀 WATCH NEXT 👀
▶︎ My VERY FIRST Symptoms - • Multiple Sclerosis - M...
▶︎ My MULTIPLE SCLEROSIS Diagnosis in 2013 - • Multiple Sclerosis - T...
▶︎ The VERDICT, MS or NMOSD - • The Letter | The Verdi...
▶︎ My SHOCKING Consultant Visit - • NEIL'S SHOCKING CONSUL...
▶︎ This is what happened to me after IV STEROIDS - • WHAT HAPPENS WHEN YOU ...
▶︎ BEFORE and AFTER IV Steroids - • CHRONIC ILLNESS DAY IN...
▶︎ Never thought I'd be WALKING like this again!! - • NEVER THOUGHT I’D BE W...
🤒 CURRENT SYMPTOMS 🤒
Numbness, Burning, Tingling, Humming, Buzzing, Squeezing, Skin Sensitivity, Altered Sensation, Balance problems, Chest Pain, Muscle Weakness, Stiff Lower Back, Stiff legs, Stiff knees, Blurred Vision, Anxiety, Depression
👣MOBILITY ISSUES👣
Muscle Weakness, Spasticity, Clonus, Abnormal Gait, Tremors, Walking difficulties, Falling.
😷DIAGNOSIS HISTORY😷
▶︎ Transverse Myelitis (2008)
▶︎ Multiple Sclerosis (2013)
▶︎ Optic Neuritis (2019)
▶︎ Neuromyelitis Optica (spectrum disorder) NMOSD (2019)
💊FREQUENT MEDICATION💊
▶︎ Methylprednisolone (IV)
▶︎ Prednisolone (oral)
▶︎ Azathioprine (oral)
💉PROCEDURES💉
▶︎ Multiple MRI Scans
▶︎ Evoked Potentials (2013)
▶︎ Lumbar Puncture - Spinal Tap (Feb 2019)
----- Links to Social Media -----
▶︎ TWITTER: / spookynash
▶︎ RUclips: / neilbradleyms
----- Playlists you might be interested in -----
▶︎ Tree & Neil's VLOG's - • Chronic Illness VLOG's
▶︎ My Life With Multiple Sclerosis - • (MS) My Life with Mult...
▶︎ Relapses, Steroid Treatment & The Effects - • (MS) Relapses, Steroid...
▶︎ Uhthoff's phenomenon - Heat Sensitivity - • (MS) Uhthoff's phenome...
▶︎ Trying to "kick" Lyrica (Pregabalin) - • (MS) Trying to "kick" ...
▶︎ Molly's VLOG - • Molly's Vlog
▶︎ Birds and Animals - • Birds and Animals
-------------- Music Credits --------------
Music: Awake by Sappheiros
Source: • ❰Future Garage❱ Sapphe...
--------------------------------------
Good evening to you both! Neill, I’m glad you’ve got that second IV done. Sorry you didn’t sleep well but hopefully that will settle out shortly. Teresa, your hair looked beautiful...no wonder you were talked to by ‘Phlegm Man’ ! You are so kind that I’m sure he felt better...even if he made you feel a bit icky! Hope you don’t mind but I saw your mask 😷 and noticed that you tucked your spec lenses under the top of them. If you have a problem with steaming up..this is why! Pull them out..and place the bottom of your specs over the top edge of the mask, pinning it to your face. Voilà, no more mist!
I hope you get on ok at Halfords. Cars, it’s always something 🙄
It’s our 43rd wedding anniversary today, also our granddaughter’s 12th birthday back in Scotland, and our Portuguese friend’s little son’s 5th birthday too! So...we ended up ‘celebrating’ at McDonalds! 😂
Please take care, looking forward to your next video. Much love from Portugal 🇵🇹⭐️💖⭐️
Hi Susan, thanks for the advise about the mask for Teresa, she's been experimenting! Yes, we got the bulb change ok thanks, it's a really good service to be honest and only took about 15 mins and very reasonably priced, can't complain at all. Well congratz on the 43 years, that's amazing.. you and your husband are clearly made for each other. Nothing wrong with celebrating at McDonalds lol. The next video is now out as of yesterday (21.12.2020) but I'm a little behind on comments I'm afraid. Take care and we hope you have a lovely Christmas. 💞🙏
I was fortunate enough not to have seen the post that was deleted & I was shocked to hear about it & that you had to block them. Good on you though! Your channel is troll-free & filled with very supportive, friendly people. Those same people who like yourselves are dealing with alot in relation to health issues & don't need to be reading nasty comments! I'm really sorry this happened to you both. Teresa you do realise that elderly man wanted to tell & show you everything as you've just got that kind of caring face & personality ... A very motherly-type 💖 I am looking forward to watching Day 3 & I'm glad you're going to pay someone to do the headlight ... It gives a man a job which is very needed now with all the job losses due to Covid. Love to you both 💖💖
Hi Susannah, and thank you. Yes, I try my best to keep the channel troll free and quite often it gets a lot of spam too. It's really sad that people feel the need to do this, hiding behind a keyboard. Fortunately I can delete and block. We both laughed when we read you comment about Teresa being the motherly type ha ha. I'm a bit behind in comments so I think you've probably watched day 3 by now, I'm spending some time catching up. And yes, I really like the fact my small bit of business (replacement bulb) keeps somebody in a job, totally agree with you there and very much needed during these difficult times. Much love to you. 💞🙏
I’m so sorry that has happened, you have certainly dealt with it in the right way. There’s no reason anyone should feel the need to put that on you, it’s not nice at all.
Glad the second day was quicker! Love this mask too Teresa! 🎅🏼 Best of luck with the last one ☺️
Thank you Naomi, yes it's very sad that people feel the need to post negativity and hide behind their keyboard. I always like to give everybody a chance, as I did with this person, but the messages started getting very personal so he got hit with the block stick I'm afraid.
When I have SoluMedrol for my MS, my doctor lets me have it to dilute in orange juice and take at home for the 3 days to save the hospital visits and infusion. . .same drug, and dose, but much less tiring and stressful.😊. Stay safe❤
Hi Julie, that's really good! Especially as you won't have to have three separate trips to the hospital which can be very tiring. Fortunately for us, we don't live too far from the hospital, so it's not too bad.
For me, I've found the SoluMedrol has a better effect when delivered through an infusion straight into the blood stream, effectively bypassing the GI (not having to digest it). When I asked this question, apparently though it doesn't make any difference, but I've always felt it does so always opt for the IV.
Hope you're keeping well, and you stay safe too. 💞🙏
Hi Neil & Teresa,always a pleasure to visit. I'm thrilled to see you get the steroids,it's absolutely like Super Power in the IV.Yes,the trolls come but you block and move forward. Lovely to see you both smiling as always. I'm glad your wife said that..each MS journey is like a snowflake..no two are alike.
Thank you so much for this message Avril .. yes it was sad that I had to block this person because they actually had MS and I felt for them. But their messages were so pessimistic, but then they became personal and rude and I just won't tolerate that. I did give him plenty of chances though before blocking, it's the first time this has happened. Very sad really that people hide behind keyboards and do this. All the best.
Hi Bradley I had a ms flare up was in the hospital now I am home just fine. Had three days of steroid home now feeling good thank God we can't give up Braley we be OK stay strong
Hi there Hyacinth, and thank you for your message. I'm super pleased to hear you're feeling much better, the steroid treatment really does work well doesn't it. I try not to give up, sometimes it's hard though. Take care. 💞🙏
I am so glad to see these updates. You two are always in my prayers. I think about you so often during a day. Stay warm and let yourself rest when you get the last infusion. Just let it catch up with you. Hugs to you both. Much love!
Hello "J", and thank you for your kind words.. that's so nice that you think of us during your day, means a lot. Much love to you from both Teresa and I 💞🙏
Nearly six minutes into the video.
I just wanted to comment about what Teresa said.
I'm an admin on a Facebook group related to my disability. We never want to block people, but sometimes, you get to the point when enough is enough! So don't feel bad about decisions you have to make, Neil.
On with the show...play!
Glad today was quicker. More time for Teresa to nip into Costa!🤣
Glad all went well.
Make sure Halford just change your bulb!
Regards to Ken Flem, Teresa,.🤣
Thanks Dean, yes sometimes we have to put a stop to people hiding behind their keyboard posting their negativity. It's sad they feel they have to do that when they could be contributing constructively.
Hi Neil- glad to hear the back pain is subsiding- love Teresas masks! Well done NHS free wifi- Love Nic 🤗
Thank a lot Nic.
I always feel so relaxed and calm after watching you both 👍🏻
Hello LS, that is so NICE to read your message knowing that our videos calm and relax you. Thank you telling us this, they may even give you a little chuckle from time to time also. I hope this message finds you well, have a lovely Christmas. 💞🙏
You both have an important purpose being out here on YT revealing all that you do. It IS educational for us, and even some of the comments offer more good suggestions or personal experiences. We feel that we are all in this together with you both. Looking forward to the final (3rd) infusion story. God is with you.
Thank you so much for this message Elaine, and it makes a lot of sense. To be honest, I was only saying to Teresa yesterday when I received a negative comment about including birds and my garden.. "I don't know why I bother anymore", this comment made me feel like not publishing a 4th video that I've got prepared. BUT, she's convinced me, and she's right of course that this is only one person's opinion. I put so much time, energy and hard work into the channel, comments such as yours really do inspire me to keep going.. so THANK YOU for that. Much love 💞🙏
@@NeilBradleyMS Much love back at ya both!!!!
I hope you are doing better. Thanks for the update. I enjoy hearing from you and Teresa.
Hi there, and thank you so much.
2 days down, 1 to go!! You 2 crack me up 😂 Neil’s face is flushed because Teresa smacked him!!!! I about died laughing! And your new friend....I typically pick up those kind of friends! Lol People can be amazing, huh?!?! That is really repulsive 🤮 Anyway, looking forward to hear how day 3 went. Take care both of you! Much love and stay safe 💕💕
Thanks Kelly, we Laughed Out LOUD!! when reading your comment a few moments ago. Hope all is well with you 💞🙏
You both cheer me up, thank you. I have watched all your videos and have helped me greatly. Diagnosed with ms in jan . Happy Christmas and keep posting.. keep safe and well x
Hello Marcella, wow you've watch all our videos! I'm super happy about that, thank you so much, and I'm so happy that they've helped you so much. I put a lot of time and effort into the channel, making, editing and publishing videos and receiving a message like this inspires us to keep doing them. Thank you so much, and Merry Christmas to you. xx
Hello Neil and Teresa I know you just started you new IV treatments I keep praying that this treatment will work for you and to feel better Maybe you are just having some side affects from the treatment of tiredness ECT.... Until your body gets adjusted to the treatment and just keep thinking positive about your treatments there will we light at the end of the tunnel to your pain issues. Good to hear from you that you are doing better Take care to the both of you.
Thank you so much for your kind message Amanda .. it's been almost a couple of weeks since my treatment now, I'm fluctuating up and down a bit but not too bad, I've been better I suppose. As you say, hopefully my body is still adjusting. You take care.
@@NeilBradleyMS you too !! Glad to hear
Hope you feel better Neil..your wife is so sweet 😘
Thank you so much Michelle. 💞🙏
I hope you are able to get plenty of rest. Prayers and blessings to you both. 🙏🏼💜🤗
Thank you so much Kathy, I hope all is well with you. Merry Christmas, and blessings to you also. 💞🙏
Hope you and Teresa are okay. Pleased the infusions are going okay 🤗 x
Thank you so much Julie. I hope you are keeping well and staying safe. 💞🙏
Hi Neil and Teresa I am keeping safe as much as possible. Hope you & Teresa are keeping safe as you know people like us are vunerable x
That’s good to hear Julie, and yes we are thank you. x
I'm just catching up on your videos. So nice to see you both😊.
Thank you so much LW, we really appreciate your kind words. It's good to hear from you also, all the best for the new year.
So nice to see you both. I absolutely love Teresa’s hair! So beautiful girlie😍Hoping your side effects subside and get better. I know it took me a bit after my series of steroids for the ME/CFS for the side effects to subside. But I got a good few months out of it. Sending love & hugs your way🤗🤗
Thank you so much for your lovely and kind words which both Teresa and I have read (she says thank you and really appreciates your comment). Unfortunately steroid treatment I've received doesn't seem to be having the same effect that it usually does. At the time of writing, I'm in quite a lot of pain and I'm very wobbly and not walking well at all, I'm sorry to report. I'm so pleased to hear that your treatment did you good, and improved your quality of life for a good few months. Steroids do have long term side effects, but we have to weigh it all up and balance it out don't we. Sending much love and hugs right back there to you. Neil & Teresa 💞🙏
Teresa your hair is beautiful. I'm so glad the steroids are working 😘 lots of love from South Wales xx
Hi there, both Teresa and I read all the comments and we'd like to thank you for your kind words. Much love to you from the both of us 💞🙏
Good to see the smiling faces! 😁 Does Teresa have any funky holiday earrings this year? I love her festive spirit! 🎄
Hi Meaghan, and thank you for your kind message. Oh yes, the funky earrings have definitely been given a bit of life this last few days. In fact today, at this very moment I think she's wearing Ginger Bread Men!! lol .. take care and have a lovely Christmas. 💞🙏
My love and prayers I send. ❤️🙏🏻
Thank you so much Karen, much love and prayers from both Teresa and I. 💞🙏
Well said Teresa and good for you. No need for it and yes everybody has a different experience/journey of whatever that may be. Neil, the clonzapam I take 5 a day, I can’t go without them or id be like a kicking donkey. I hope all goes well and I really do hope you can get some sleep, gotta take the good with the bad I guess when it comes to steroids. The coughing in a bag 😬🤮, I would be speechless maybe give a confused half smile. Take care guys 😊
Hi Adele, thanks for your message .. I was interested to hear you take 5 Clonazepam's a day, the one's I have are 500 Microgram tablets. I have to be careful with the dose because they make my already weak muscles, weaker (being a muscle relaxant). But they are one of the best meds I've found for dulling the pain in my stiff back muscles. Do you find they have this effect on you at all? Take care.
@@NeilBradleyMS Mine are the same dose too. Fortunately they do not make my muscles weaker, my muscles are very tight and sore to touch. For the pain I take as you know gabapentin. I have sustained clonus in both legs yet my legs don’t feel stiff just very painful cramps and sore to massage 🙂
Thanks for coming back to me Adele. I too have a lot of clonus and very stiff leg muscles in both legs. No cramping for me though, I’m sorry you get this.
@@NeilBradleyMS no problem Neil my friend. Cool party trick the bouncing leg!
I hope you feel better Soon!
Happy Holidays!
Thanks so much Kelli 💞🙏
That mask ......🎅👍🤣oh ..ewwwww phlegm bag friend🤣🤣,I'm sure he appreciated the friendly chat Teresa 🤮. Oh & car light bulb changing is a joke. Keep on keeping on both of you , love to you both, dont have snotty nightmares 💖✊
Hey there .. good to hear from you, and yeah tell me about it on all counts!! I hope you're keeping as well as can be my friend. Much love to you from the both of us 💞🙏
Hey guys, glad you're getting the steroids Neil, i'm sure they'll kick in soon enough. Unfortunately, the insomnia is a side effect that youll be dealing with , been there myself in the past !! Teresa's had an eventful day with her new friend lol !!! You've got such a warm and trusting friendly face Teresa that people end up wanting to chat to you about their life , ........its the same with me , im always the one that ends up chatting with some random person who is spilling out their entire life journey and woes lol !! Keep smiling , Take care , Grace xx
Thank you Grace, and yes I couldn't agree more about Teresa.. she just cares about everybody. Unfortunately the Steroids don't seem to be doing their thing this time, I'm fluctuating up and down a lot, and today is not a good day. Just got to keep going I suppose haven't we. Take care 💞🙏 xx
Glad to see you Neil 🙏 you know I really adore Teresa ♥️..... she always so adorable. She reminds me of a cute pokemon named Pikachu hehehe
Thank Patrick and lol, what ya like!! 😂🤪
Hi Neil and Teresa !! My name is Jackie, i am from Fort Wayne, Indiana. I am really not a violent person, i am on my husbands account, i need to get my own!! lol..he likes the three stooges. I have been diagnosed with ms since August 2019. I have had alot of issues with off balance feeling (woobly) and very tired all the time, just not feeling well. I just finally started taking Aubagio August 2020. I am scared to take meds. I am very sensitive to medication's , but i finally gained courage to do it!! I hope and pray it is working , so far so good with side effects. I have never had to have a steroid, but i am terrified to take med's. I have problems with panic attacks and medicines. Do Steroids make you feel nervous or gitty? I pray i never have to take them. I am scared to try them if i have too. I hope and pray that you get to feeling better!! I hope that you and Teresa have a very Merry Christmas and stay safe!!
Hello Jackie, and thank you for your message .. my apologies for the somewhat late reply. I would normally respond more quickly, but I think over the last three weeks I've managed publish four videos so I'm only just getting around to catching up on comments.
I completely understand about your anxiety with regard to taking medication, I was like it for years myself. Never took anything, until I became unwell of course. I recall my first steroid infusion at hospital in 2013, I too was pretty scared. I researched all the side effects, and potential long term problems etc. But then I thought to myself, well there is something wrong with my body and there is potentially medicine that can help me regain some quality of life. So, I went for it! And, after about ten days I started to feel better and regain my balance and strength. I'm pleased I did, since then I've had many infusions.
In answer to your question, there are different types of steroids but certainly the one's I had (methylprednisolone) did not make me feel nervous or gitty. There were some side effects like flushing (feeling warm), heart palpitations, nasty taste in the mouth but these are not as bad as they sound, and were short lived. I think the worst side effect was Insomnia, not being able to sleep at night, the feeling of being wide awake, once again though this didn't last long.
I'm pleased to hear you're on an MS medication, this will help reduce the number of relapses (attacks) from the MS. This is a good thing Jackie, and I hope you're coping well with any side effects, if any.
Take care - Neil.
I think some time ago I said to you I take clonazepam and have done for years. I take one and a half and just knocks me out which is great as can't sleep without it. Shame about the nasty person no room for them key board warriors. Sorry Theresa your a grim magnet Lol. Looking forward to a weeks time.😉
Hey Adrian, good to hear from you as always .. grim magnets yeah lol. It's a shame people feel the need to post such negativity hiding behind their keyboards.. not to worry. Ahh yes I seem to recall in a previous conversation you telling me about Clonazepam. It's the best drug I've found so far that reduce the pain in my stiff back muscles (relaxes them), in fact I've just taken one now during the day which is something I don't normally do, but the pain is bad today. I'll probably sleep a lot this afternoon lol, we shall see. We have to do what gets us through the day don't we Adrian. I hope you're keeping as well as can be my friend, take care and until next time, stay safe.
When do you start on the Rituximab?
Hi Peter, I'm not exactly sure .. my hospital (Derby) has got to receive approval from The Walton Centre (Liverpool). Apparently this is all to do with funding it .. as I'm pretty sure it's significantly more expensive than the first line treatment I'm currently on which is Azathioprine. I'm pretty sure I will get approved, and when I do I will of course do video to let people know how I get on. I hope all is well with you Peter, and this message finds you well. Stay safe.
Hello you two, rest up, it’s ok to do nothing. Praying for strength! It’s called the snowflake disease because we all have such different symptoms.
Ignore the ignorance! People have lost their minds!
Hello Jayne, nice to hear from you and thank you for your message. I've not heard of it called the "Snow Flake" disease, but I can certainly relate to it.. having all the different symptoms and all. Take care.
How is your vision doing?
Hi Steve, good to hear from you.. hope all is well with yourself. The eyes haven't been great to be honest and it's worrying me. I've never had a problem with my vision when having the IV Methylprednisolone (in the vein). It's only since being started on the Prednisilone tablets which I have to take in the morning every day, that I've started with visual disturbances. I was slowly being weened off them, until my recent hospital visit I've now been told to stay on 25mg which I'm not happy about. I've had nothing but horrible side effects since being on the daily Prednisilone tablets.