We’re two peas in a pod! ☺️from the weakness in our backs, the exhaustion on doing the simplest of tasks, washing for example and the feeding of the birds, parallel lives ☺️🙏🏻xx
Isn't it wild and wonderful how nature perks us up!!?? Yes, Neil, even just watching you and the birds in the garden helped me mentally. It seems the stress that the world is under now causes us to want to stop and "smell the roses." Thank you for the update. Been wondering. God bless you and Teresa. From Massachusetts......to you - Happy Christmas.
Hi Elaine, my apologies for the late replies.. I'm somewhat behind on comments over this busy period, not to mention I've published four videos in three weeks. I have to agree with you, yes I love nature and filming the birds.. it does sadden me though that it's difficult to visit anywhere but my garden to see the wildlife. But, I try to make the most of it .. it brings me great joy when I receive a comment such as yours that my video has helped you mentally, such a good thing and inspires me to keep making videos. Teresa and I hope you had a lovely Christ, and wish you all the best for the new year. 💞🙏
Hi Neil and Teresa I am so glad to hear Neil that you don't seen to have all that pain!! I am happy to hear that bending over the sink to wash your face and also Going up the steps in your home is going a lot better for yourself. I seen you seem really mobile walking out in your bird sanctuary to see Cedric I am glad you seem and look look good. And what a good choice of a sandwich BLT one of my faves too!! I hope day three of you IV treatment really helps you out pain and Mobility helps to feel better if you don't feel the treatment right way I hope the treatment works for you soon in the coming days for you. Glad to hear you got a new head light for your car I hate when that happens that it can go out!! If I do not hear from you before Christmas (you both need sometime to rest with all the trips you have been doing for your treatments) Neil and Teresa I hope you and your whole family have a Very Merry Christmas🎅and a Safe a Blessed Happy New Year To you all 🎉 Take care
Hi Amanda, and thank you for your lovely kind message .. I'm a little behind with replies but as you say it has been quite busy for us since having the steroid treatment. Not only have a published four videos, it's also been Christmas ha ha .. Unfortunately I haven't bounced back like I normally do after treatment which is a little worrying, and has got me feeling a bit fedup with myself. We do hope you had a nice Christmas, and that you are well and staying safe. Teresa and I also wish you a Happy New Year, and lets hope it's going to be better than this one. All the best, take care. 💞🙏
So happy to hear you felt a bit better this morning Neil. I love the garden and I love the birds as well. I live in an apartment so I do not have a yard but we do have many families of Quail. They are so cute. I’m always stopping my car in the middle of the street so they can cross safely while I watch mom, dad, and youngsters little dangled thing on their heads flop around lol. Have a wonderful holiday you two and hopes of feeling even better tomorrow. Hugs!🤗 Oh wanted to mention that if you ask your subscribers to always leave a comment it will also push your videos up in the algorithm and you should get more views😁
Hello .. I just read your message out to Teresa and we Googled "Quail" .. they are so cute. Really had to smile when you told us about the families of Quail crossing the road, that's so lovely. We get something similar here, we live near quite a large pond and occasionally we'll see Mum & Dad ducks (Mallards) with several youngsters (up to a dozen sometimes) having a wander round the streets trying to find the pond again. Obviously with vehicles this can cause quite a show out there, but everybody (most) is very caring and try to help them get back "home". Thank for the tip about leaving comments .. I'm actually quite behind with comments at the moment over this busy period, not to mention I've published four videos in about three weeks. Slowly catching up. Take care, and all the best for 2021.. stay safe - Neil & Teresa. xx
Hi Neil and Teresa! Good to see you out in the garden Neil. Just worried me slightly as Teresa wasn’t around and the ground can be so slippery! Glad Cedric put in an appearance albeit for two minutes! It surprised me seeing you in that black mask, and Teresa in her fancy one - as here in Portugal if you turn up like that it’s whipped off you and you are given a blue official ones! They are very strict! I hope by now you are feeling more like yourself and able to feed Cedric daily! And Tree, I hope your hands aren’t troubling you too much..this nasty wet, musty miserable weather is making us all ache. David suddenly got knee pain several days ago, and so not a lot is getting done! I think personally that he’s just avoiding putting all the Christmas decoration boxes away until we need them again! 😄. Much love, can’t wait to hear how you are doing! ⭐️💗⭐️
Hi Susan, thanks for your message. Yes it can be slippery sometimes, but I am extremely careful.. I certainly don't need a hospital visit during these difficult times. Thank you for your concern. Wow they do sound strict with the masks where you live, but I actually think it's a good thing really. Here in the UK we're able to buy the cotton one's which to be honest are a little easier to breath through. They're washable as well. Unfortunately I'm not feeling too great, the steroid treatment has not had it's usual effect on me and I haven't bounced back like I usually do. I admit I'm feeling pretty fedup about things. Last night I've had barely any sleep because of pain in my back and burning legs. I'm sorry to hear about David's knee giving him some jip, you could be right about the Christmas boxes ha ha. Best to you both - Neil & Tree. xx 💞🙏
Dear Neil & Teresa ... So wonderful to see you both again! Neil it was brilliant watching you walk around your garden again! Really fab to see! I watch your videos on my big screen TV & because it's so hot over here I have the aircon on ... So I have to turn the volume up. Well, when your infusion machine beeped it was that shrill & loud that it startled my sleeping lil doggie & she shrieked out a bark & then looked around like 'huh? What just happened?' ... It was so funny made me laugh! Hope that you & Mrs Rudolph have a wonderful Christmas & you improve from strength to strength 😘💖😘💖
Hey Susannah, apologies for the late reply .. I'm somewhat behind in comments at the moment what with publishing four videos in the past three weeks. I'm slowly working through them. I just read your message out to Teresa and we were laughing so much about your little Dog, ahh bless. I hope it didn't scare her too much, their hearing is significantly more sensitive than ours isn't it.. ah give her a stroke and cuddle from us. Unfortunately I don't seem to be responding as well I usually do to this round of treatment. We have had a nice Christmas thank you, and we hope you have too. Take care, and stay safe. 💞🙏
Hi Neil & Teresa,Season's Greetings! You got to the garden to feed Cedric. It's awesome you are able to get out on your own! Hope Teresa is feeling better and aren't our spouses the best to help us!! We help each other! I send positive vibes to you all!
Hello Avril, yes indeed Teresa is a God Send.. I say this all the time, she really is my own personal heaven sent Angel.. I'm so lucky to have her. In fact, whilst I'm writing this message to you, she currently in the kitchen chopping Veg bless her. Yes, I've quite enjoy popping down the garden this last day or two and I'm so pleased Cedric is once again putting in an appearance. In fact, I spotted him again this morning .. hopefully if I feel up to it I might record some further footage of him and put a brief video together. So many of my subscribers, including your good self comment on how they love to see the birds and the garden. Take care now. 💞🤗🙏
Hi Neil-10.12 is my birthday! Glad you’ve slept longer and feeling a touch stronger . Well done on stairs & getting down the garden. Amazing NHS! Fingers crossed for a positive difference soon. Love Nic🤗
Thanks Nic, and Happy (Belated) Birthday for the 10th Dec, I hope you had a lovely day. I also hope you had a nice Christmas (I'm somewhat behind in comment replies), wishing you all the best for the new year. 🤗
Merry Christmas Neil and Teresa. Thank you for telling us about your Experiences! Untreated for the last 4 years! Galbapentin and repinirole for nerve pain and muscle spasms! MS effected my heart and I had a Heart Attack! I have Degenrated disk disease, all the neck and upper back! Rare With MS, but unable to use steroid treatments! 30 years manual labor for a 5' 90lb woman! High risk of another heart attack! Good Luck for the New Year to you both! Stay safe and I hope you feel better soon!
Hi Kelli, and thank you .. I'm a bit behind with message replies but I hope you had a nice Christmas. Just reading through your message is shocking, I've never heard of MS causing a heart attack before. Very scary indeed! After 30 years of manual labour I sure do hope you're now taking it easy, especially as you're at risk of another heart attack. It's time to slow right down and look after yourself, put number one FIRST! Take care and stay safe.
Hi Neil& teresa.not seen you guys for a while you dissapered.glad to see you looking well and mobile.your doing good with the help of meds and the lovley teresa.you mentioned in your video your bk pain and muscle problem .am still waiting to see my GP fighting my diagnosis. But as soon as you mentioned your bk standing at the sink! I was like wow that so me! I am in excruciating pain cannot do any activities any more my bk is in spasm to the point of collapsing to the floor .I have been using morphine this wk reluctantly .but am getting no help changing my GP soon as we're out of this Pandemic hoping I will get some answers. But am so glad your ok and doing better than when I last saw you. Thanks for all your information and vlogs Neill Was lovely seeing you walk around your lovely garden unaided again welldone 👋
Hi Bev, and thank you for your message .. Yes! My back pain is terrible, the muscles that run up either side of my spinal called "erector spinae muscles" feel like pieces of concrete in my back. My illness isn't delivering the right signals to them (spinal cord damage) and so they have stiffened up (lots of muscle tone) and the pain can be horrendous. I call the pain "the knives are out" because it's so incredibly painful. But not only that, weakness! I get what I call Back Collapse, and that's where these same muscles are so weak they don't hold me up right, I literally start collapsing to the ground and it take MASSIVE effort to simply stay upright. Know that I understand your pain, and how bad it must be when you say you're collapsing to the floor. I too have been using Morphine (Oramorph) it is a very effective pain killer, but you have to be careful as it can become addictive. Take care 💞🤗🙏
Finding you has been.a god send. I'm literally crying watching you.. and watching your initial videos on symptoms.. down to every detail are exactly everything I'm experiencing and I sometimes feel like I'm going mad. I would love to talk to you. Or email you. I couldn't see where I could.
Hi Bonnie, thanks for your message. Know that we understand what your going through. It does make you feel better knowing there is somebody else (and lots of others) going through the same difficult stuff. You can email me at neil.bradley@hotmail.com but the only problem with email is it has a tendency to put legit emails into junk. So if you do send an email, message me on here to let me know you have done and I will look for it. Take care.
Hi Ian, apologies for the late reply .. unfortunately I don't seem to be responding to the steroids as I have done in the past. Oh and I can always send you over some pigeons if you like lol. I don't mind the Wood Pigeons, it's the Feral Pigeons which are a real pain. There is a flock of them that stay local and I can have 15 - 20 swoop in and wipe the food out in seconds. I've actually devised an anti-pigeon ground feeder with bricks and a wire cage, the little birds can still get to the food but the pigeons can't reach it. I hope all is well with you, and you had a good Christmas.
Hi Neil & Teresa, I just thought I'd stop by to say hello to you both. It's so nice to see you are walking better Neil. I hope Teresa is feeling well too & that her eye bleed is improving, please give her a hug from both of us & our very best wishes. 💜💐 I always feel it's a good sign, when you're feeling well enough to get out into your lovely garden again - I know you love being at one with nature. I love your beautifully edited garden videos & how you add the very effective 'slow down' scenes, when you feed the birds - especially your dear little resident Blackbird, Cedric! 💜💕 🐦 Great to see you both enjoying a drink & a bite to eat in the hospital Costa café, before you start your steroid infusion! Me & Dave love popping into a café & enjoying a drink & a bite to eat! Dave usually has coffee, but I prefer a Choca-Mocha like Teresa - we often have a slice of cake too! ☕🍰😋 The last time we had coffees & a bite to eat in the hospital, we nearly had to take out a second mortgage! 😯 💷 It's great that you've finished day 3 of your IV steroids. I'm so pleased that you're already feeling a little better, well before the steroids have fully kicked in, which they will do - just in time for you to enjoy Christmas! 🎄🎁🎅 Me & Dave totally relate to how worried you feel about your vision Neil - having had optic neuritis yourself & the added concern regarding the Prednisolone side-effects. Like you, Dave always had above 20/20 vision, before the onset of optic neuritis in his right eye in 2015. However, despite having a relatively lengthy & severe bout of MS related optic neuritis, along with a history of several minor bleeds in both eyes due to his type 1 diabetes, his vision is still on the whole pretty good - so try not to worry too much (easier said than done, I know). I was trying to keep this message short & sweet - which is a real feat for me! I've failed miserably & gone off at a tangent again - but only a partial one! 😂🤔 Wishing you both a wonderful Christmas & all the best of everything for 2021! Love, hugs & very best wishes to you both. Sally X 💜💞🐈🐾
Hi Sally, apologies for the late reply .. I'm slowly catching up with messages after this busy period, not to mention publishing four videos in three weeks. It's lovely to hear from you as always, Teresa and I hope you had a lovely Christmas and wish you all the best for the new year ahead, lets hope for a better 2021. Teresa is still waiting for an appointment for the bleed behind her eye, she is still suffering with her vision but coping ok with it. I on the other hand, unfortunately don't seem to have responded as well to this round of steroids. I'm still in a lot of pain, and extremely wobbly. Ahh Sally it gives me great joy that you recognise the slow down scenes in the garden with the birds, because the editing to do this often take great skill! Over the years a lot of my subscribers have commented how they love to see the garden scenes, so I like to still include them. Thank you for this. Oh yes, the Chocca Mocca's .. we got into a bit of a routine and in fact ended up looking forward to the bite to eat prior to my treatment. I have to be careful not to drink too much for reasons I won't go into here (illness related). Ha ha about the second mortgage, totally relate to that along with the car parking fees as well. Such is life. I appreciate you telling me about Dave's Optic Neuritis, it's certainly not nice to have to deal with, and I'm so pleased to hear he is doing better with his vision now. It's very worrying when it is happening. I just know it's the Prednisilone (steroids) tablets effecting my vision, it was particularly bad during the course of IV steroids but seems to have calmed down to my "normal" now, but my vision is certainly not what it used to be anymore. Take care - Neil & Teresa 💞🙏
Yay!!! You made it 😄 So nice to see you walking out to the garden and feeding the birds! That is fantastic 😊 Enjoy your shopping and of course keep us posted. May you both have a blessed Christmas and a happy and healthy New Year 🎊❤️
Thank you for that Patrick, Merry Christmas to you also .. although I'm a little behind in comments, but catching up slowly. I hope you had a good one. All the best.
Thank you so much Celia, my apologies I'm somewhat behind with replying to comments at the moment. We do hope you had a lovely Christmas, and wish you a Happy New Year. Very best to you. 💞🙏
Thank you for sharing your journey. I had steroid infusion about 6 years back. But they sent nurse to my house to place the needle in my arm and I’d plug in the next container for 3 days. Went fine except a big bubble formed on my arm and the nurse was there so she dealt with it. I don’t think it did much. I’ve been on Ocrevus for awhile now. Just had 7th a couple months ago. I’ve never had a single side effect. I drive to Portland Oregon 4 hours on 180 miles to OHSU hospital for 4.5-5 hour infusion and then 4 hours on 180 miles back home. Loonnggg day. I do so well my neurologist said I no longer had to wait the extra hour of observation. So far it appears to be working. Hope the steroids help you out. Stay safe! Merry Christmas for y’all! Peace! 🎄
Hey Sheridan, I guess it's a good job the nurse was there when the lump appeared in your arm. It does sound like you're doing really well on Ocrevus, that's brilliant and hopefully you've had no more relapses. Yes indeed a long day, it would be incredibly difficult for me to travel such a distance (4 hours) now, fortunately my hospital is only about 12 - 13 miles away, about 30 minutes by car so that's good. I hope you had a good Christmas (I'm rather behind in comments I'm afraid). Take care. 💞🙏
@@NeilBradleyMS Thank you for replying. The Ocrevus seems to be helping. No new lesions on brain or spine last two MRI’s. Next one is January 12, 2021. Every year I get one. I’m 65 and I wasn’t diagnosed until 2011. I have Primary Progressive. Originally the diagnosis was Relapsing Remitting possible Primary Progressive. Knowing what I now know I believe I’ve had MS since my late twenties early thirties. It’s progressed very slowly. I think I’ve always had PP. I explained issues off as clumsy or something. Now I see all the fatigue, exhaustion, heat problems, missteps, running into walls, sleeping issues, anxiety, pain everywhere, balance issues, and now I know spasticity was hugely involved. I walk with a cane always and getting harder. I never give up but get frustrated a lot. Every day’s a new day and just go forward as best I can. SLOWLY! I fall a bit. Happy New Year to you both. I hope we all have a better tomorrow everyday!
Thanks Lee, appreciate it .. I'm a little bit behind on comments at the moment but trying to catch up. We hope you had a good Christmas, and wish you all the best for the new year. Take care.
Hey there, and thank you. Apologies for the late reply, I'm somewhat behind on comments at the moment. I hope you too had a lovely Christmas, and glad you enjoyed seeing Cedric, albeit his brief appearance. All the best for the new year, lets hope its better than this one.
Thank you guys for an update video! Oh gosh, you are all alone there when you are getting your infusion.... always know we are thinking about you! so you're never really all alone after all. Greetings to lovely Tree and Cedric (lol)
I hope you had a lovely Christmas Willow, apologies for the late reply.. I'm somewhat behind on comments at the moment. Sending love to you and Rod - all the best for the new year, Neil & Teresa 💞🙏
Hello J, and thank you.. I'm somewhat behind in replying to message, but we hope you had a lovely Christmas. Unfortunately so far, I've not responded as well as I usually do with the treatment. Take care and stay safe.
Thanks Michelle .. yes I started to do well whilst I was actually on the three days of treatment, but unfortunately it doesn't seem to have sustained me like a lot of other times. 💞🙏
Hi there "Just Me" .. yes it's been a while, once again I'm lacking motivation to do a video. Just don't seem to have the 'get up and go' at the moment. Just moving from room to room is difficult and uses up so much of my energy reserves. Apart from that we're doing ok, staying indoors pretty much all of the time. I hope all is well with yourself also.
@@NeilBradleyMS lifes a struggle I'm afraid, sorry to hear you are not so good, I understand lack of motivation etc. Did you see the link I attached to one of your videos comments in January something about Hope's of possible m.s. vaccine actually in development & being tested. ( I can't find the bloomin link now it was on Twitter) a vaccine that they hope could stop it getting worse and "possibly " ease/lessen symptoms, was a reliable source from what recall, maybe a little hope, there is so much testing being done for many things nowadays.
@@justMe-rd4sw I always look at links people send me at the time, but I get so many I'm not sure I recall this particular one (sorry) I'll do a search on it. Thanks.
@@NeilBradleyMS I'll try and look, I must have linked it on someone else's page....oops, some music page will be wondering why I've replied with a medical link to Twitter.
Hi Neil, only just found your YT videos, hope everything is still going well with the steroids! I have secondary progressive MS diagnosed in 2005, age now is 74. I have shocking balance, and very poor walking (non-existent) ability, can walk/shuffle about 8 yards with a walking frame, before I can go no further. These are my 2 main symptoms along with vertical double vision. So I'm in my powerchair most of the time. I'm surprised that you are able to get steroid treatment, as when I ask my neuro, he states that it is not available for progressive MS. I had one 3 day course of steroids back in 2007, when it was considered I was RR (don't think I was) and it made a huge difference, I was able to walk nearly as normal. So it would be good if you could tell me how your neuro makes the decision to give you steroid treatment.
Hi John, my apologies for the late reply.. I'm somewhat behind on comments at the moment. I'm terribly sorry to hear you have SPMS and that you are suffering so badly with not only your mobility, but your eye sight too by the sound of it. I do understand how things are so very challenging. I'm am however pleased to hear that you have some good tech which is enabling you to get around a little more easily. In answer to your question.. I'm pretty complicated, not sure how up-to-date with my videos you are but long story short, this last 18 months or so my MS diagnosis which I had in 2013 in no longer secure. They now think I've got a different auto-immune disease called Neuromyelitis Optica or NMO. Since my diagnosis in 2013, if I've felt my symptoms are getting worse, or I've got a new symptom I call my MS Nurse. They then bring me in for assessment, and if they feel I'm having an "attack" (relapse) they have me in for IV Steroids. Like your experience in 2007, for me the first time I had the IV Steroids in 2013 I went from being very wobbly and unbalance to practically perfect walking again! It was amazing feeling things coming back. Sadly though, for me the effects never last. The most recent steroid infusion was three weeks ago (in this video) and unfortunately apart from a day or two feeling a bit better whilst actually having the treatment, I've not improved. I'm in a lot of pain almost constantly at the moment, not sleeping at night.. feeling pretty fedup with myself. Ohh, something I've just remembered .. my original diagnosis was RRMS back in 2013 until a few years later they moved it to SPMS (like yourself), but I was still receiving, and benefitting I might add from the IV Steroid treatment. For me, so far it's been the best treatment. I'm no Dr, but I do feel you should be offered something to help you. Push hard for it, explain how well it improved your quality of life back in 2007, and how you feel it would do this again. Anyway John, I hope you get to read this message.. you'll have to let me know. Take care - Neil.
The pigeons tend to eat all the food before the little birds get a look in .. so I constructed (with bricks and a wire cage) an Anti-Pigeon food device whereby the little birds get to eat but the pigeons can't reach the food. However, having said that .. I then feel guilty because the pigeons are hungry too .. so out comes the seed for them as well. I'm a big softy at heart 💞🙏
@@NeilBradleyMS thanks for your prompt reply. I had the MRI with contrast and it showed several lesions. Last week I had a pretty tight "MS Hug" and the doctor decided to hospitalize me with a 5-day 1000 mgs per day Methylprednisolone treatment and a lumbar puncture waiting for results. The next day, Tuesday, I felt much better but that was not the case for the rest of the week. He sent me with a home treatment on a 2 Methylprednisolone 25 mgs pills per day reducing the dose on a weekly basis. Right now my spine is very weak and my legs very wobbly. I can also feel my eyesight is affecting, too. TIA
You really have been through it by the sounds of things. I’ve had steroids by IV many many times and in my experience I do start to feel a bit better after about 10 days to 2 weeks. For me though this was for about the first 5 to 6 years of my illness. They don’t have much effect now on me, but if this is your first time I’m confident given a few more days you will start to feel better.
We’re two peas in a pod! ☺️from the weakness in our backs, the exhaustion on doing the simplest of tasks, washing for example and the feeding of the birds, parallel lives ☺️🙏🏻xx
Isn't it wild and wonderful how nature perks us up!!?? Yes, Neil, even just watching you and the birds in the garden helped me mentally. It seems the stress that the world is under now causes us to want to stop and "smell the roses." Thank you for the update. Been wondering. God bless you and Teresa. From Massachusetts......to you - Happy Christmas.
Hi Elaine, my apologies for the late replies.. I'm somewhat behind on comments over this busy period, not to mention I've published four videos in three weeks.
I have to agree with you, yes I love nature and filming the birds.. it does sadden me though that it's difficult to visit anywhere but my garden to see the wildlife. But, I try to make the most of it .. it brings me great joy when I receive a comment such as yours that my video has helped you mentally, such a good thing and inspires me to keep making videos.
Teresa and I hope you had a lovely Christ, and wish you all the best for the new year. 💞🙏
Hi Neil and Teresa I am so glad to hear Neil that you don't seen to have all that pain!! I am happy to hear that bending over the sink to wash your face and also
Going up the steps in your home is going a lot better for yourself. I seen you seem really mobile walking out in your bird sanctuary to see Cedric I am glad you seem and look look good. And what a good choice of a sandwich BLT one of my faves too!! I hope day three of you IV treatment really helps you out pain and Mobility helps to feel better if you don't feel the treatment right way I hope the treatment works for you soon in the coming days for you. Glad to hear you got a new head light for your car I hate when that happens that it can go out!!
If I do not hear from you before Christmas (you both need sometime to rest with all the trips you have been doing for your treatments) Neil and Teresa I hope you and your whole family have a Very Merry Christmas🎅and a Safe a Blessed Happy New Year
To you all 🎉 Take care
Hi Amanda, and thank you for your lovely kind message .. I'm a little behind with replies but as you say it has been quite busy for us since having the steroid treatment. Not only have a published four videos, it's also been Christmas ha ha ..
Unfortunately I haven't bounced back like I normally do after treatment which is a little worrying, and has got me feeling a bit fedup with myself.
We do hope you had a nice Christmas, and that you are well and staying safe. Teresa and I also wish you a Happy New Year, and lets hope it's going to be better than this one. All the best, take care. 💞🙏
So happy to hear you felt a bit better this morning Neil. I love the garden and I love the birds as well. I live in an apartment so I do not have a yard but we do have many families of Quail. They are so cute. I’m always stopping my car in the middle of the street so they can cross safely while I watch mom, dad, and youngsters little dangled thing on their heads flop around lol. Have a wonderful holiday you two and hopes of feeling even better tomorrow. Hugs!🤗 Oh wanted to mention that if you ask your subscribers to always leave a comment it will also push your videos up in the algorithm and you should get more views😁
Hello .. I just read your message out to Teresa and we Googled "Quail" .. they are so cute. Really had to smile when you told us about the families of Quail crossing the road, that's so lovely. We get something similar here, we live near quite a large pond and occasionally we'll see Mum & Dad ducks (Mallards) with several youngsters (up to a dozen sometimes) having a wander round the streets trying to find the pond again. Obviously with vehicles this can cause quite a show out there, but everybody (most) is very caring and try to help them get back "home".
Thank for the tip about leaving comments .. I'm actually quite behind with comments at the moment over this busy period, not to mention I've published four videos in about three weeks. Slowly catching up.
Take care, and all the best for 2021.. stay safe - Neil & Teresa. xx
Hi Neil and Teresa! Good to see you out in the garden Neil. Just worried me slightly as Teresa wasn’t around and the ground can be so slippery! Glad Cedric put in an appearance albeit for two minutes!
It surprised me seeing you in that black mask, and Teresa in her fancy one - as here in Portugal if you turn up like that it’s whipped off you and you are given a blue official ones! They are very strict!
I hope by now you are feeling more like yourself and able to feed Cedric daily! And Tree, I hope your hands aren’t troubling you too much..this nasty wet, musty miserable weather is making us all ache. David suddenly got knee pain several days ago, and so not a lot is getting done! I think personally that he’s just avoiding putting all the Christmas decoration boxes away until we need them again! 😄. Much love, can’t wait to hear how you are doing! ⭐️💗⭐️
Hi Susan, thanks for your message. Yes it can be slippery sometimes, but I am extremely careful.. I certainly don't need a hospital visit during these difficult times. Thank you for your concern.
Wow they do sound strict with the masks where you live, but I actually think it's a good thing really. Here in the UK we're able to buy the cotton one's which to be honest are a little easier to breath through. They're washable as well.
Unfortunately I'm not feeling too great, the steroid treatment has not had it's usual effect on me and I haven't bounced back like I usually do. I admit I'm feeling pretty fedup about things. Last night I've had barely any sleep because of pain in my back and burning legs.
I'm sorry to hear about David's knee giving him some jip, you could be right about the Christmas boxes ha ha.
Best to you both - Neil & Tree. xx 💞🙏
Dear Neil & Teresa ... So wonderful to see you both again! Neil it was brilliant watching you walk around your garden again! Really fab to see! I watch your videos on my big screen TV & because it's so hot over here I have the aircon on ... So I have to turn the volume up. Well, when your infusion machine beeped it was that shrill & loud that it startled my sleeping lil doggie & she shrieked out a bark & then looked around like 'huh? What just happened?' ... It was so funny made me laugh! Hope that you & Mrs Rudolph have a wonderful Christmas & you improve from strength to strength 😘💖😘💖
Hey Susannah, apologies for the late reply .. I'm somewhat behind in comments at the moment what with publishing four videos in the past three weeks. I'm slowly working through them.
I just read your message out to Teresa and we were laughing so much about your little Dog, ahh bless. I hope it didn't scare her too much, their hearing is significantly more sensitive than ours isn't it.. ah give her a stroke and cuddle from us.
Unfortunately I don't seem to be responding as well I usually do to this round of treatment.
We have had a nice Christmas thank you, and we hope you have too.
Take care, and stay safe. 💞🙏
Hi Neil & Teresa,Season's Greetings! You got to the garden to feed Cedric. It's awesome you are able to get out on your own! Hope Teresa is feeling better and aren't our spouses the best to help us!! We help each other! I send positive vibes to you all!
Hello Avril, yes indeed Teresa is a God Send.. I say this all the time, she really is my own personal heaven sent Angel.. I'm so lucky to have her. In fact, whilst I'm writing this message to you, she currently in the kitchen chopping Veg bless her. Yes, I've quite enjoy popping down the garden this last day or two and I'm so pleased Cedric is once again putting in an appearance. In fact, I spotted him again this morning .. hopefully if I feel up to it I might record some further footage of him and put a brief video together. So many of my subscribers, including your good self comment on how they love to see the birds and the garden. Take care now. 💞🤗🙏
Hi Neil-10.12 is my birthday! Glad you’ve slept longer and feeling a touch stronger
. Well done on stairs & getting down the garden. Amazing NHS! Fingers crossed for a positive difference soon. Love Nic🤗
Thanks Nic, and Happy (Belated) Birthday for the 10th Dec, I hope you had a lovely day. I also hope you had a nice Christmas (I'm somewhat behind in comment replies), wishing you all the best for the new year. 🤗
Merry Christmas Neil and Teresa.
Thank you for telling us about your Experiences!
Untreated for the last 4 years! Galbapentin and repinirole for nerve pain and muscle spasms!
MS effected my heart and I had a Heart Attack! I have Degenrated disk disease, all the neck and upper back!
Rare With MS, but unable to use steroid treatments!
30 years manual labor for a 5' 90lb woman! High risk
of another heart attack!
Good Luck for the New Year to you both! Stay safe and I hope you feel better soon!
Hi Kelli, and thank you .. I'm a bit behind with message replies but I hope you had a nice Christmas. Just reading through your message is shocking, I've never heard of MS causing a heart attack before. Very scary indeed! After 30 years of manual labour I sure do hope you're now taking it easy, especially as you're at risk of another heart attack. It's time to slow right down and look after yourself, put number one FIRST! Take care and stay safe.
@@NeilBradleyMS Happy New Year! I hope the steroid treatments helped you!
The US Medical is rubbish!
Hi Neil& teresa.not seen you guys for a while you dissapered.glad to see you looking well and mobile.your doing good with the help of meds and the lovley teresa.you mentioned in your video your bk pain and muscle problem .am still waiting to see my GP fighting my diagnosis. But as soon as you mentioned your bk standing at the sink!
I was like wow that so me!
I am in excruciating pain cannot do any activities any more my bk is in spasm to the point of collapsing to the floor .I have been using morphine this wk reluctantly .but am getting no help changing my GP soon as we're out of this Pandemic hoping I will get some answers. But am so glad your ok and doing better than when I last saw you. Thanks for all your information and vlogs Neill
Was lovely seeing you walk around your lovely garden unaided again welldone 👋
Hi Bev, and thank you for your message .. Yes! My back pain is terrible, the muscles that run up either side of my spinal called "erector spinae muscles" feel like pieces of concrete in my back. My illness isn't delivering the right signals to them (spinal cord damage) and so they have stiffened up (lots of muscle tone) and the pain can be horrendous. I call the pain "the knives are out" because it's so incredibly painful. But not only that, weakness! I get what I call Back Collapse, and that's where these same muscles are so weak they don't hold me up right, I literally start collapsing to the ground and it take MASSIVE effort to simply stay upright. Know that I understand your pain, and how bad it must be when you say you're collapsing to the floor. I too have been using Morphine (Oramorph) it is a very effective pain killer, but you have to be careful as it can become addictive. Take care 💞🤗🙏
Finding you has been.a god send. I'm literally crying watching you.. and watching your initial videos on symptoms.. down to every detail are exactly everything I'm experiencing and I sometimes feel like I'm going mad. I would love to talk to you. Or email you. I couldn't see where I could.
Hi Bonnie, thanks for your message. Know that we understand what your going through. It does make you feel better knowing there is somebody else (and lots of others) going through the same difficult stuff. You can email me at neil.bradley@hotmail.com but the only problem with email is it has a tendency to put legit emails into junk. So if you do send an email, message me on here to let me know you have done and I will look for it. Take care.
Hope you’re feeling the benefit of the steroids Neil. Keep the videos coming! 😀👍 the pigeons send their regards to you aswell 👍😁
Hi Ian, apologies for the late reply .. unfortunately I don't seem to be responding to the steroids as I have done in the past.
Oh and I can always send you over some pigeons if you like lol. I don't mind the Wood Pigeons, it's the Feral Pigeons which are a real pain. There is a flock of them that stay local and I can have 15 - 20 swoop in and wipe the food out in seconds. I've actually devised an anti-pigeon ground feeder with bricks and a wire cage, the little birds can still get to the food but the pigeons can't reach it.
I hope all is well with you, and you had a good Christmas.
@@NeilBradleyMS I hope the steroids take affect soon Neil 😊 All the best for 2021 to you and Theresa. Ian
Hi Neil & Teresa, I just thought I'd stop by to say hello to you both. It's so nice to see you are walking better Neil. I hope Teresa is feeling well too & that her eye bleed is improving, please give her a hug from both of us & our very best wishes. 💜💐
I always feel it's a good sign, when you're feeling well enough to get out into your lovely garden again - I know you love being at one with nature. I love your beautifully edited garden videos & how you add the very effective 'slow down' scenes, when you feed the birds - especially your dear little resident Blackbird, Cedric! 💜💕 🐦
Great to see you both enjoying a drink & a bite to eat in the hospital Costa café, before you start your steroid infusion! Me & Dave love popping into a café & enjoying a drink & a bite to eat! Dave usually has coffee, but I prefer a Choca-Mocha like Teresa - we often have a slice of cake too! ☕🍰😋 The last time we had coffees & a bite to eat in the hospital, we nearly had to take out a second mortgage! 😯 💷
It's great that you've finished day 3 of your IV steroids. I'm so pleased that you're already feeling a little better, well before the steroids have fully kicked in, which they will do - just in time for you to enjoy Christmas! 🎄🎁🎅
Me & Dave totally relate to how worried you feel about your vision Neil - having had optic neuritis yourself & the added concern regarding the Prednisolone side-effects. Like you, Dave always had above 20/20 vision, before the onset of optic neuritis in his right eye in 2015. However, despite having a relatively lengthy & severe bout of MS related optic neuritis, along with a history of several minor bleeds in both eyes due to his type 1 diabetes, his vision is still on the whole pretty good - so try not to worry too much (easier said than done, I know).
I was trying to keep this message short & sweet - which is a real feat for me! I've failed miserably & gone off at a tangent again - but only a partial one! 😂🤔
Wishing you both a wonderful Christmas & all the best of everything for 2021! Love, hugs & very best wishes to you both. Sally X 💜💞🐈🐾
Hi Sally, apologies for the late reply .. I'm slowly catching up with messages after this busy period, not to mention publishing four videos in three weeks.
It's lovely to hear from you as always, Teresa and I hope you had a lovely Christmas and wish you all the best for the new year ahead, lets hope for a better 2021.
Teresa is still waiting for an appointment for the bleed behind her eye, she is still suffering with her vision but coping ok with it. I on the other hand, unfortunately don't seem to have responded as well to this round of steroids. I'm still in a lot of pain, and extremely wobbly.
Ahh Sally it gives me great joy that you recognise the slow down scenes in the garden with the birds, because the editing to do this often take great skill! Over the years a lot of my subscribers have commented how they love to see the garden scenes, so I like to still include them. Thank you for this.
Oh yes, the Chocca Mocca's .. we got into a bit of a routine and in fact ended up looking forward to the bite to eat prior to my treatment. I have to be careful not to drink too much for reasons I won't go into here (illness related). Ha ha about the second mortgage, totally relate to that along with the car parking fees as well. Such is life.
I appreciate you telling me about Dave's Optic Neuritis, it's certainly not nice to have to deal with, and I'm so pleased to hear he is doing better with his vision now. It's very worrying when it is happening. I just know it's the Prednisilone (steroids) tablets effecting my vision, it was particularly bad during the course of IV steroids but seems to have calmed down to my "normal" now, but my vision is certainly not what it used to be anymore.
Take care - Neil & Teresa 💞🙏
Yay!!! You made it 😄 So nice to see you walking out to the garden and feeding the birds! That is fantastic 😊 Enjoy your shopping and of course keep us posted. May you both have a blessed Christmas and a happy and healthy New Year 🎊❤️
Thanks Kelly .. and I hope you've had a nice Christmas yourself. All the best for 2021, lets hope it's better than this year.
🙏🏻 ❤️ from the USA, Merry Christmas🎄
Thank you Karen, I hope you had a lovely Christmas too. All the best for the new year. 💞🙏
It's great to see your walking well which is very positive. Take care my friends 😉
Hi Adrian, and thank you. You take care also.
Merry Christmas Neil and Teresa ♥️♥️🙏🙏🎄🎄🍷🍷
Thank you for that Patrick, Merry Christmas to you also .. although I'm a little behind in comments, but catching up slowly. I hope you had a good one. All the best.
Merry Christmas guys! May God be with you.😉🙏
Thank you so much Celia, my apologies I'm somewhat behind with replying to comments at the moment. We do hope you had a lovely Christmas, and wish you a Happy New Year. Very best to you. 💞🙏
Thank you for sharing your journey. I had steroid infusion about 6 years back. But they sent nurse to my house to place the needle in my arm and I’d plug in the next container for 3 days. Went fine except a big bubble formed on my arm and the nurse was there so she dealt with it. I don’t think it did much. I’ve been on Ocrevus for awhile now. Just had 7th a couple months ago. I’ve never had a single side effect. I drive to Portland Oregon 4 hours on 180 miles to OHSU hospital for 4.5-5 hour infusion and then 4 hours on 180 miles back home. Loonnggg day. I do so well my neurologist said I no longer had to wait the extra hour
of observation. So far it appears to be working. Hope the steroids help you out. Stay safe! Merry Christmas for y’all! Peace! 🎄
Hey Sheridan, I guess it's a good job the nurse was there when the lump appeared in your arm. It does sound like you're doing really well on Ocrevus, that's brilliant and hopefully you've had no more relapses. Yes indeed a long day, it would be incredibly difficult for me to travel such a distance (4 hours) now, fortunately my hospital is only about 12 - 13 miles away, about 30 minutes by car so that's good. I hope you had a good Christmas (I'm rather behind in comments I'm afraid). Take care. 💞🙏
@@NeilBradleyMS Thank you for replying. The Ocrevus seems to be helping. No new lesions on brain or spine last two MRI’s. Next one is January 12, 2021. Every year I get one. I’m 65 and I wasn’t diagnosed until 2011. I have Primary Progressive. Originally the diagnosis was Relapsing Remitting possible Primary Progressive. Knowing what I now know I believe I’ve had MS since my late twenties early thirties. It’s progressed very slowly. I think I’ve always had PP. I explained issues off as clumsy or something. Now I see all the fatigue, exhaustion, heat problems, missteps, running into walls, sleeping issues, anxiety, pain everywhere, balance issues, and now I know spasticity was hugely involved. I walk with a cane always and getting harder. I never give up but get frustrated a lot. Every day’s a new day and just go forward as best I can. SLOWLY! I fall a bit. Happy New Year to you both. I hope we all have a better tomorrow everyday!
So happy that you did much better in the morning. I hope you continue to do well. Blessings to you both! 🤗
Thank you so much Kathy.. I hope you are doing well and staying safe. All the best. 💞🙏
Liking these up dates, keep it up as you can.
Thanks Lee, appreciate it .. I'm a little bit behind on comments at the moment but trying to catch up. We hope you had a good Christmas, and wish you all the best for the new year. Take care.
Well done, hope you continue to improve, have a lovely Christmas. Was nice to see Cedric. 👍
Hey there, and thank you. Apologies for the late reply, I'm somewhat behind on comments at the moment. I hope you too had a lovely Christmas, and glad you enjoyed seeing Cedric, albeit his brief appearance. All the best for the new year, lets hope its better than this one.
@@NeilBradleyMS you too 👍
Merry Christmas to you both, and thak you very much for the videos. I hope you both have a tremendous new year!
Thank you so much Steve! I'm super pleased you're enjoying the videos, we hope you've had a nice Christmas, and have a great new year. All the best.
Thank you guys for an update video! Oh gosh, you are all alone there when you are getting your infusion.... always know we are thinking about you! so you're never really all alone after all.
Greetings to lovely Tree and Cedric (lol)
Ahh thank you much Lita, for this message.. your kind thoughts are very gratefully accepted. 💞🙏
Christmas Blessings to you both.❣
I hope you had a lovely Christmas Willow, apologies for the late reply.. I'm somewhat behind on comments at the moment. Sending love to you and Rod - all the best for the new year, Neil & Teresa 💞🙏
Glad that is all done for now. Hopefully you will feel perkier in a day or two. Always glad to see you both! Hugs and Merry Christmas!
Hello J, and thank you.. I'm somewhat behind in replying to message, but we hope you had a lovely Christmas. Unfortunately so far, I've not responded as well as I usually do with the treatment. Take care and stay safe.
@@NeilBradleyMS hugs no worries. I hope it turns around for you.
Wow wow wow look at you go
Thanks Michelle .. yes I started to do well whilst I was actually on the three days of treatment, but unfortunately it doesn't seem to have sustained me like a lot of other times. 💞🙏
Its been a while, hope you're both ok.
Hi there "Just Me" .. yes it's been a while, once again I'm lacking motivation to do a video. Just don't seem to have the 'get up and go' at the moment. Just moving from room to room is difficult and uses up so much of my energy reserves. Apart from that we're doing ok, staying indoors pretty much all of the time. I hope all is well with yourself also.
@@NeilBradleyMS lifes a struggle I'm afraid, sorry to hear you are not so good, I understand lack of motivation etc. Did you see the link I attached to one of your videos comments in January something about Hope's of possible m.s. vaccine actually in development & being tested. ( I can't find the bloomin link now it was on Twitter) a vaccine that they hope could stop it getting worse and "possibly " ease/lessen symptoms, was a reliable source from what recall, maybe a little hope, there is so much testing being done for many things nowadays.
@@justMe-rd4sw I always look at links people send me at the time, but I get so many I'm not sure I recall this particular one (sorry) I'll do a search on it. Thanks.
I've just done a search back over three months and can't seem to spot the link, sorry about that.
@@NeilBradleyMS I'll try and look, I must have linked it on someone else's page....oops, some music page will be wondering why I've replied with a medical link to Twitter.
Hi Neil, only just found your YT videos, hope everything is still going well with the steroids!
I have secondary progressive MS diagnosed in 2005, age now is 74. I have shocking balance, and very poor walking (non-existent) ability, can walk/shuffle about 8 yards with a walking frame, before I can go no further. These are my 2 main symptoms along with vertical double vision. So I'm in my powerchair most of the time.
I'm surprised that you are able to get steroid treatment, as when I ask my neuro, he states that it is not available for progressive MS. I had one 3 day course of steroids back in 2007, when it was considered I was RR (don't think I was) and it made a huge difference, I was able to walk nearly as normal.
So it would be good if you could tell me how your neuro makes the decision to give you steroid treatment.
Hi John, my apologies for the late reply.. I'm somewhat behind on comments at the moment. I'm terribly sorry to hear you have SPMS and that you are suffering so badly with not only your mobility, but your eye sight too by the sound of it. I do understand how things are so very challenging. I'm am however pleased to hear that you have some good tech which is enabling you to get around a little more easily.
In answer to your question.. I'm pretty complicated, not sure how up-to-date with my videos you are but long story short, this last 18 months or so my MS diagnosis which I had in 2013 in no longer secure. They now think I've got a different auto-immune disease called Neuromyelitis Optica or NMO. Since my diagnosis in 2013, if I've felt my symptoms are getting worse, or I've got a new symptom I call my MS Nurse. They then bring me in for assessment, and if they feel I'm having an "attack" (relapse) they have me in for IV Steroids.
Like your experience in 2007, for me the first time I had the IV Steroids in 2013 I went from being very wobbly and unbalance to practically perfect walking again! It was amazing feeling things coming back. Sadly though, for me the effects never last.
The most recent steroid infusion was three weeks ago (in this video) and unfortunately apart from a day or two feeling a bit better whilst actually having the treatment, I've not improved. I'm in a lot of pain almost constantly at the moment, not sleeping at night.. feeling pretty fedup with myself.
Ohh, something I've just remembered .. my original diagnosis was RRMS back in 2013 until a few years later they moved it to SPMS (like yourself), but I was still receiving, and benefitting I might add from the IV Steroid treatment. For me, so far it's been the best treatment. I'm no Dr, but I do feel you should be offered something to help you. Push hard for it, explain how well it improved your quality of life back in 2007, and how you feel it would do this again.
Anyway John, I hope you get to read this message.. you'll have to let me know.
Take care - Neil.
It's not letting me reply with the aforementioned link I've tried 4 times now , various ways.
Just search ms vaccine
@@justMe-rd4sw Thanks, it must be RUclips blocking it as it’s a link, or something to that effect.
Poor lil pigeons gotta eat too,theyre bigger so need to eat more. I'm always defending them lol xxx
I agree
Those are flying rats.
@@peterjansen5571 All God's creatures.
@@dawniedawn7228 so is covid and Ms. You are right that they are living creatures but I don't like them.
The pigeons tend to eat all the food before the little birds get a look in .. so I constructed (with bricks and a wire cage) an Anti-Pigeon food device whereby the little birds get to eat but the pigeons can't reach the food. However, having said that .. I then feel guilty because the pigeons are hungry too .. so out comes the seed for them as well. I'm a big softy at heart 💞🙏
Do you mean the methylprednisolone take 7 to 10 days to kick in? TIA
Usually with me that is the case yes, however now it doesn’t seem to have much effect unfortunately.
@@NeilBradleyMS thanks for your prompt reply. I had the MRI with contrast and it showed several lesions. Last week I had a pretty tight "MS Hug" and the doctor decided to hospitalize me with a 5-day 1000 mgs per day Methylprednisolone treatment and a lumbar puncture waiting for results. The next day, Tuesday, I felt much better but that was not the case for the rest of the week. He sent me with a home treatment on a 2 Methylprednisolone 25 mgs pills per day reducing the dose on a weekly basis. Right now my spine is very weak and my legs very wobbly. I can also feel my eyesight is affecting, too. TIA
You really have been through it by the sounds of things. I’ve had steroids by IV many many times and in my experience I do start to feel a bit better after about 10 days to 2 weeks. For me though this was for about the first 5 to 6 years of my illness. They don’t have much effect now on me, but if this is your first time I’m confident given a few more days you will start to feel better.
@@NeilBradleyMS , thanks a lot for your response. It gives me some hope and relief. Hope you feel better, too!!😇😇😇😇
You too. 🙏