Praline, PALEEZE make some NEW vids! I've looked at and listened to ALL of your 25? Videos. I found them 🙂 interesting and informative. Please give us more. Thankx
I low-key want to send this video to everyone I know!! I got diagnosed this week and I feel completely alone, no one has any sympathy for me. I am just having to process all the things about a long term disease all by myself. You videos have helped me a lot!!
The thing people say that I absolutely cannot stand is "you look good, you don't look sick." I've heard this for YEARS referring to my MS and other issues. Pretty sure my face doesn't hide it either. Not good at that 😂😤
I feel you, have MC myself. There is a FB group of 2000+ of fellow humans that have MC as well. It’s refreshing to have community to go to that understand day to day MC life.
I may have to get a facebook just so i can participate ! It has been such a comfort to be able to do these videos and hear from others who really understand because they are going through the same thing. How long have you been diagnoses? Thank you for watching and for reaching out. xoxox
I am glad that I came across your channel. I was just diagnosed with lymphocytic colitis. There is not much out there about this. I can relate to a lot of content in your video.
Hi 👋🏼 thanks very much for reaching out to me & sharing your diagnosis with me. I’d love to hear more about your experience, how long it took you to be diagnosed, your symptoms etc if you’re willing to share ! Happy you can relate to my video because I know when I was first diagnosed I felt so lonely in this. Please stay in touch !! Xoxox
You go girl!! I so agree with everything you say in this video. Also, I would listen to you daily. I have watched this one 3 times already. "Feel better" HA!! Get it! 😊
Girl I wish your videos were longer! I totally relate to you. My favorite is”You need a probiotic and some Imodium” Really,... you don’t think I’ve tried an anti diarrhea. I’ve tried all of them and then some. I do not work and have heard it all with the “It must be nice to have all that free time” Yep as long as I can do it from the toilet. I have no special diet. Can’t find one that works. I can have a “safe” food one day and then bam be sick for the next week because of it. Once again thanks for your videos. So nice to hear from somebody who relates.
Aw thanks for not getting sick of me rambling on and on! It's awesome to know you get me. YAS the probiotic or supplement comments are so annoying .. like you said DUH of course we have tried all of that, we've tried everything ! Are you unable to work due to the illness ? I had to switch to part time after being a avid workaholic and even part time is getting pretty difficult to maintain. "must be nice" comments are NEVER nice ! Like i said before i'd love to help you feel better and maybe help with some diet suggestions if you are open to it you just let me know : ) i will say for starters cutting gluten and dairy out entirely really helped me improve ! xoxox
I have IBD and get stupid comments like, "you don't look sick", "I get diarrhea sometimes too", "at least it's not cancer", "congrats on losing weight" and "wish I could work part time , you're so lucky". Drives me CRAZY
Just wanted to add that even within the MC community, there are those who have found remission by eliminating gluten, dairy, soy, yada yada and are convinced that if we all do the same we could be healed! Nope. Been there/done that and still suffering. Wish it was that easy 🙁
Y E S !! I agree with you. This disease presents itself differently for everyone and what works for some doesn’t mean it will work for the rest of us unfortunately. I’ve had ppl w/ MC tell me to just stick to the pepto treatment for a few weeks & that I would be healed in no time 😒
Yes!! I get so frustrated with this even within the MC community! I have eliminated nearly EVERYTHING for the past 6 years- no “cheating,” no alcohol, no restaurants, etc... still have to take meds to function. I feel this!!
Gail right?! You get it !!! Although sometimes I am thankful ppl can’t see what I actually feel like on the inside because it would be terrifying 🧟♀️😂😭
A GUT FEELING I try so hard not to touch my hair so naturally I touch it the entire time 😂 thank you !! I’m a fan of your vibe also & Sean Connery impressions ! Let’s be stomach sistas! LOL
This guy is my husband. I'm using his service. I have learned from watching your videos how much you are hurting. Well maybe that's not accurate. I understand that the pain is often unsurmountable . But people who are not where you are illness wise truly wish you well. No matter how lame their well wishes seem to you they are genuine.
Praline, I completely understand where you are coming from. The two things I really hate are; Oh you're back, you must be feeling better. And How are you feeling because you look better.
The yoga thing is everywhere. It's super annoying. And exercise is detrimental to people with chronic fatigue (Jessica did a video on it). I hate the comments that are I guess "look on the bright side" like it must be nice to stay home. I was recently told that I'm lucky I can't have children because of my disabilities... Like wtf mate.
Since I posted in your last video have you tried adding caffeine into your diet? I stopped drinking the energy drink and went to straight caffeine supplements and it seems to be helping me still. The caffeine after taking it a few days seem to help stop the pain after eating and some during digestion, maybe by about 35 to 40% of the time I’m feeling better. Yet is it really true or just time till my body goes nope no more and caffeine does nothing. Which I’m super terrified about because that seems to be my M.O. it’s happened with most all over the counter anti-diarrhea medication worked for a little bit and now even after not taking them still inefficient . Oh and my depression hit a all time high making me feel an all time low. Not from caffeine from the damn roller coaster ride this is and couple other things. Also The stigma around mental illness makes it hard for me to except my own depression. Make more videos I’ll watch them all and comment something, I like to hear others , knowing I’m not alone and going crazy 😜.
Hey , yes i have been able to start drinking coffee again ! just one cup a day with dairy free coconut creamer! When my stomach is really bad or i'm having a small flare i will cut back on the caffeine, i kind of just have to listen to my body and i'll know if i am able to tolerate it that day. Glad it was helpful to cut the energy drink and go to a caffeine supplement. I can relate a lot to when you said that sometimes your body can be okay with some med or some food one day and the next its like nope! It just makes it so difficult to get a grip on the situation when its constantly changing and is so unpredictable. Thank you for sharing with me about your battle with depression, i really emphasize with that. I think the stigma around mental illness is ridiculous ! we should be able to speak on how we feel and know that just because we are struggling doesnt mean we are going crazy! This situation (and life) is really hard and i think its important that we find others who can relate and really understand. So i'm here if you ever need to vent! you're not alone! I will keep making videos !
Heeyy! Finished my 2 week round of antibiotics for my SIBO two days ago. Things got a lot better but still having symptoms (D and bloating). Cannot wait to see treatment plans with treating this colitis crap lol
Michelle Scroggins Tnx for the update !! Happy to hear you’re making some improvements! I recommend IB guard for the bloating it’s been a life saver for me !
Michelle Scroggins yes you can get it at any pharmacy I usually get mine from CVS it comes in a green box. I also make a ginger and turmeric tea to help with the inflammation and bloating 💖
Mu nutritionist told me to eat oatmeal... Oh and salad and brocoli... 🤦🏼♀️ sure... i’ll eat a cup of knives.... with pleasure 😒 and this is in the nutrition guide for irritable and inflammatory diseases. Such BS!
😂 gurlllll a cup of knives 🔪 is too relatable!!! I am glad that you seem to have a better idea of what not to eat than what you are being told to! Sometimes the Drs and health care providers have no clue what they are talking about , idk what it is about this illness but its crazy the stuff I hear my fellow sufferers have heard from their drs 🤦🏻♀️ Ive learned 80% of what I know from my fellow suffers 💕❤️
Praline Noel hahaha right? 🔪 oh god!! I’m lucky enough my father has crohns, so having him living with that for over 25 yrs, he always made me aware of it and what to avoid and it has been a step up for me. Still trying to figure out what triggers some flairs up but what helps me is smoking cannabis. It really helps with the symptoms. Relieves the stress in your stomach. Helps me go to the bathroom when i feel irritable too. Keep up your amazing videos! 💖💖💖 you help alot! 💖💖💖
You think those top 5 are bad things to say? I get told to pray the disease away... By my mum... Who knows I am an agnostic atheist. Am I the only sane person being driven crazy here?
Downloader77 that sounds so frustrating! Im sorry you have to experience that on top of this illness. I’m definitely driven crazy by the unwanted feedback and suggestions I get from “Normies” (people without a chronic illness) !💕
@@StomachSister I guess people mean well when they give advice, we probably feel let down by them when they don't understand our circumstances accurately and the lack of awareness just makes me feel like the odd one out. I am determined though, I will definitely work on a management diet/fitness programme (suffering for 5 years, but only diagnosed 4 weeks ago after a repeated investigation, the initial colonoscopy was in 2014!!)
Downloader77 I agree I’m sure 90% people mean well but I think you said it perfectly when you said we feel let down because they can’t fully understand what we go through. It’s as though no matter how we explain the only ppl who will truly emphasize are the ones who are going through it as well. I’ve yet to meet a single regular person who knows what microscopic colitis is and that’s why we need to spread the word !! It’s unbelievable to hear how long you had to suffer undiagnosed, I am so sorry you had to go through all of that. How does it feel to finally have a diagnosis ?? (It’s overwhelming at first) Don’t lose hope ! There are so many ways to try to manage it and though I never feel 100% I can say I am doing much much better now 💖 Here for you !
@@StomachSister Aww that's so kind of you. Being diagnosed, meant I am not wasting valuable time, energy and stress looking online for my mysterious symptoms and contemplating every suspicious incident that lead to me feeling so "semi human". I feel as though now I can concentrate on a management lifestyle that will work, I am a resilient clever bastard so I will win I just need some help along the way 🙂
Hi !! i did not see your comment ! no idea how i missed it :( I am relieved you have a diagnosis now! How are you feeling now that you have answers ? did your dr give you any ideas for a treatment plan?
@@StomachSister I'm on two antibiotics that I started yesterday for the SIBO and the hell fire gut hit hard last night. Treatment plan for the colitis is dependent on how bad my colitis is. They won't know until the sibo is treated. He didnt want to over medicate me.
Hi ! For some reason RUclips held your comment for review and I’m barely seeing it ! 😒😫😭 I am so sorry it’s taken me this long to get back to you . Thank you so much for watching and subscribing. I would love to be a support system for each other. I’d love to keep in touch and hear more about your journey 💕
Thank you, I am a Realtor in Michigan, I just recently was diagnosed with this, I cant even imagine how I will be out showing property and not be able to use the bathroom, ugh, and in the winter most cottages are all winterized.
Kerry Fernbach how long did it take you to receive a diagnosis? What are your main symptoms (if you feel comfortable sharing). I know at first it is incredibly overwhelming and stressful but I promise you as time passes and with the right steps you will be able to manage this illness. In my opinion diet is everything, changing my diet and figuring out what my intolerances are is the only way I’m able to control my stomach and be able to work. Yes I still have symptoms daily and yes I do have to take a day or two off a month but I’m not running to the bathroom every two minutes like I was in the beginning. I’m here if you have any questions about anything or if you just need to vent ! Remember, you’re not alone ! 💖
Praline, PALEEZE make some NEW vids! I've looked at and listened to ALL of your 25? Videos. I found them 🙂 interesting and informative. Please give us more.
Thankx
I low-key want to send this video to everyone I know!! I got diagnosed this week and I feel completely alone, no one has any sympathy for me. I am just having to process all the things about a long term disease all by myself. You videos have helped me a lot!!
I know how you feel. They just can't know what it's like. I try to understand that about them.
The thing people say that I absolutely cannot stand is "you look good, you don't look sick." I've heard this for YEARS referring to my MS and other issues. Pretty sure my face doesn't hide it either. Not good at that 😂😤
OMG YASSSS the classic yet unwelcome "you don't look sick" -___-
I feel you, have MC myself. There is a FB group of 2000+ of fellow humans that have MC as well. It’s refreshing to have community to go to that understand day to day MC life.
I may have to get a facebook just so i can participate ! It has been such a comfort to be able to do these videos and hear from others who really understand because they are going through the same thing. How long have you been diagnoses? Thank you for watching and for reaching out.
xoxox
I am glad that I came across your channel. I was just diagnosed with lymphocytic colitis. There is not much out there about this. I can relate to a lot of content in your video.
Hi 👋🏼 thanks very much for reaching out to me & sharing your diagnosis with me. I’d love to hear more about your experience, how long it took you to be diagnosed, your symptoms etc if you’re willing to share ! Happy you can relate to my video because I know when I was first diagnosed I felt so lonely in this. Please stay in touch !!
Xoxox
Search COLITIS. And Gastro on you tube. You will find mucho videos there.
You go girl!! I so agree with everything you say in this video.
Also, I would listen to you daily. I have watched this one 3 times already.
"Feel better" HA!! Get it! 😊
Girl I wish your videos were longer! I totally relate to you. My favorite is”You need a probiotic and some Imodium” Really,... you don’t think I’ve tried an anti diarrhea. I’ve tried all of them and then some. I do not work and have heard it all with the “It must be nice to have all that free time” Yep as long as I can do it from the toilet. I have no special diet. Can’t find one that works. I can have a “safe” food one day and then bam be sick for the next week because of it. Once again thanks for your videos. So nice to hear from somebody who relates.
Aw thanks for not getting sick of me rambling on and on! It's awesome to know you get me. YAS the probiotic or supplement comments are so annoying .. like you said DUH of course we have tried all of that, we've tried everything !
Are you unable to work due to the illness ? I had to switch to part time after being a avid workaholic and even part time is getting pretty difficult to maintain.
"must be nice" comments are NEVER nice !
Like i said before i'd love to help you feel better and maybe help with some diet suggestions if you are open to it you just let me know : )
i will say for starters cutting gluten and dairy out entirely really helped me improve !
xoxox
I have IBD and get stupid comments like, "you don't look sick", "I get diarrhea sometimes too", "at least it's not cancer", "congrats on losing weight" and "wish I could work part time , you're so lucky". Drives me CRAZY
Just wanted to add that even within the MC community, there are those who have found remission by eliminating gluten, dairy, soy, yada yada and are convinced that if we all do the same we could be healed! Nope. Been there/done that and still suffering. Wish it was that easy 🙁
Y E S !! I agree with you. This disease presents itself differently for everyone and what works for some doesn’t mean it will work for the rest of us unfortunately. I’ve had ppl w/ MC tell me to just stick to the pepto treatment for a few weeks & that I would be healed in no time 😒
Yes!! I get so frustrated with this even within the MC community! I have eliminated nearly EVERYTHING for the past 6 years- no “cheating,” no alcohol, no restaurants, etc... still have to take meds to function. I feel this!!
Damn keep grinding, people will come to watch, your well spoken and that’s rare.
Freddy Flores appreciate you ! Thanks for the support 💪🏼
I get “you look great “ a lot. I have an invisible illness mate ! I’m not sure how many times I can explain it ! So frustrating 🙈
Gail right?! You get it !!!
Although sometimes I am thankful ppl can’t see what I actually feel like on the inside because it would be terrifying 🧟♀️😂😭
haha I touch my hair so much in my videos too, it cracked me up when you mentioned that
A GUT FEELING I try so hard not to touch my hair so naturally I touch it the entire time 😂 thank you !! I’m a fan of your vibe also & Sean Connery impressions ! Let’s be stomach sistas! LOL
@@StomachSister hahaha Im so glad someone appreciated my impression! ;-) YAAS! I would love thaaaat! Do you also have a twitter and/or instagram?
A GUT FEELING it’s not often I come across such a solid Sean Connery so I had to shout it out 😂
Yay !! I only have twitter ! It’s @writeyourwrongs
This guy is my husband. I'm using his service. I have learned from watching your videos how much you are hurting. Well maybe that's not accurate. I understand that the pain is often unsurmountable . But people who are not where you are illness wise truly wish you well. No matter how lame their well wishes seem to you they are genuine.
I hope your well? I’ve got a chronic illness too but its great to show people how strong we are!
Not sure why but your comment was held for review so I am barely seeing this ! 😒 thank you for the support , how are you doing these days ??
The struggle is REAL!
144000lightworker Andrea so real! 😂🤦🏻♀️
Why is chronic such a hard word for non-spoonies to understand?! All of these are spot-on....unfortunately!!
Praline,
I completely understand where you are coming from. The two things I really hate are; Oh you're back, you must be feeling better. And How are you feeling because you look better.
Jon Kicker yes yes yes ! SAME !
The yoga thing is everywhere. It's super annoying. And exercise is detrimental to people with chronic fatigue (Jessica did a video on it).
I hate the comments that are I guess "look on the bright side" like it must be nice to stay home. I was recently told that I'm lucky I can't have children because of my disabilities... Like wtf mate.
"You would feel so much better if you got off all those supplements/meds"...um, no, they are a huge reason I'm as functional as I am!!!
I totally get this !
Since I posted in your last video have you tried adding caffeine into your diet? I stopped drinking the energy drink and went to straight caffeine supplements and it seems to be helping me still. The caffeine after taking it a few days seem to help stop the pain after eating and some during digestion, maybe by about 35 to 40% of the time I’m feeling better.
Yet is it really true or just time till my body goes nope no more and caffeine does nothing. Which I’m super terrified about because that seems to be my M.O. it’s happened with most all over the counter anti-diarrhea medication worked for a little bit and now even after not taking them still inefficient .
Oh and my depression hit a all time high making me feel an all time low. Not from caffeine from the damn roller coaster ride this is and couple other things. Also The stigma around mental illness makes it hard for me to except my own depression.
Make more videos I’ll watch them all and comment something, I like to hear others , knowing I’m not alone and going crazy 😜.
Hey , yes i have been able to start drinking coffee again ! just one cup a day with dairy free coconut creamer! When my stomach is really bad or i'm having a small flare i will cut back on the caffeine, i kind of just have to listen to my body and i'll know if i am able to tolerate it that day. Glad it was helpful to cut the energy drink and go to a caffeine supplement.
I can relate a lot to when you said that sometimes your body can be okay with some med or some food one day and the next its like nope!
It just makes it so difficult to get a grip on the situation when its constantly changing and is so unpredictable.
Thank you for sharing with me about your battle with depression, i really emphasize with that. I think the stigma around mental illness is ridiculous ! we should be able to speak on how we feel and know that just because we are struggling doesnt mean we are going crazy!
This situation (and life) is really hard and i think its important that we find others who can relate and really understand.
So i'm here if you ever need to vent! you're not alone!
I will keep making videos !
I totally appreciate that you don’t have a religious claim to your sickness. Or if you do you don’t preach it upon others. 😉💚
Heeyy! Finished my 2 week round of antibiotics for my SIBO two days ago. Things got a lot better but still having symptoms (D and bloating). Cannot wait to see treatment plans with treating this colitis crap lol
Michelle Scroggins Tnx for the update !! Happy to hear you’re making some improvements! I recommend IB guard for the bloating it’s been a life saver for me !
Thanks! Is that something I can get at the pharmacy?
Michelle Scroggins yes you can get it at any pharmacy I usually get mine from CVS it comes in a green box. I also make a ginger and turmeric tea to help with the inflammation and bloating 💖
I have ginger and lemon teabags! I'm going to try it. How much turmeric do you put in?
Mu nutritionist told me to eat oatmeal... Oh and salad and brocoli... 🤦🏼♀️ sure... i’ll eat a cup of knives.... with pleasure 😒 and this is in the nutrition guide for irritable and inflammatory diseases. Such BS!
😂 gurlllll a cup of knives 🔪 is too relatable!!!
I am glad that you seem to have a better idea of what not to eat than what you are being told to!
Sometimes the Drs and health care providers have no clue what they are talking about , idk what it is about this illness but its crazy the stuff I hear my fellow sufferers have heard from their drs 🤦🏻♀️
Ive learned 80% of what I know from my fellow suffers 💕❤️
Praline Noel hahaha right? 🔪 oh god!! I’m lucky enough my father has crohns, so having him living with that for over 25 yrs, he always made me aware of it and what to avoid and it has been a step up for me. Still trying to figure out what triggers some flairs up but what helps me is smoking cannabis. It really helps with the symptoms. Relieves the stress in your stomach. Helps me go to the bathroom when i feel irritable too. Keep up your amazing videos! 💖💖💖 you help alot! 💖💖💖
There is a Facebook group for microscopic colitis.
Roxanne Budd yes ! I don’t have Facebook but my husband joined the group and shares all of the info with me 💖 good to know we aren’t alone.
It's been 4 years. How have u been doing?
You think those top 5 are bad things to say? I get told to pray the disease away... By my mum... Who knows I am an agnostic atheist. Am I the only sane person being driven crazy here?
Downloader77 that sounds so frustrating! Im sorry you have to experience that on top of this illness. I’m definitely driven crazy by the unwanted feedback and suggestions I get from “Normies” (people without a chronic illness) !💕
@@StomachSister I guess people mean well when they give advice, we probably feel let down by them when they don't understand our circumstances accurately and the lack of awareness just makes me feel like the odd one out. I am determined though, I will definitely work on a management diet/fitness programme (suffering for 5 years, but only diagnosed 4 weeks ago after a repeated investigation, the initial colonoscopy was in 2014!!)
Downloader77 I agree I’m sure 90% people mean well but I think you said it perfectly when you said we feel let down because they can’t fully understand what we go through. It’s as though no matter how we explain the only ppl who will truly emphasize are the ones who are going through it as well. I’ve yet to meet a single regular person who knows what microscopic colitis is and that’s why we need to spread the word !!
It’s unbelievable to hear how long you had to suffer undiagnosed, I am so sorry you had to go through all of that. How does it feel to finally have a diagnosis ?? (It’s overwhelming at first)
Don’t lose hope ! There are so many ways to try to manage it and though I never feel 100% I can say I am doing much much better now 💖
Here for you !
@@StomachSister Aww that's so kind of you. Being diagnosed, meant I am not wasting valuable time, energy and stress looking online for my mysterious symptoms and contemplating every suspicious incident that lead to me feeling so "semi human". I feel as though now I can concentrate on a management lifestyle that will work, I am a resilient clever bastard so I will win I just need some help along the way 🙂
Hey Praline! Did you see where I responded and said I finally got a diagnosis? I have microscopic lymphocytic colitis and SIBO
Hi !! i did not see your comment ! no idea how i missed it :(
I am relieved you have a diagnosis now!
How are you feeling now that you have answers ?
did your dr give you any ideas for a treatment plan?
@@StomachSister I'm on two antibiotics that I started yesterday for the SIBO and the hell fire gut hit hard last night. Treatment plan for the colitis is dependent on how bad my colitis is. They won't know until the sibo is treated. He didnt want to over medicate me.
Michelle Scroggins okay , how long is the recovery time for the sibo ? What antibiotic did they put you on ?
@@StomachSister they put me on sulfamethoxazole and metronidazole. Take both for 2wks and my follow up is in 6wks to make sure it's all gone
Michelle Scroggins those antibiotics are heavy hitters please take it easy and let your body rest and recover as much as possible 💖
Loved the video & your channel, just subbed! Looking forward to following your journey, would be awesome if we could support eachother :)) xxx
Hi ! For some reason RUclips held your comment for review and I’m barely seeing it ! 😒😫😭
I am so sorry it’s taken me this long to get back to you . Thank you so much for watching and subscribing. I would love to be a support system for each other.
I’d love to keep in touch and hear more about your journey 💕
Do you think you can get on disability with this condition?
Kerry Fernbach I think it’s a possibility
But it depends on what state you live in and I heard it is really difficult to do unfortunately.
Thank you, I am a Realtor in Michigan, I just recently was diagnosed with this, I cant even imagine how I will be out showing property and not be able to use the bathroom, ugh, and in the winter most cottages are all winterized.
Kerry Fernbach how long did it take you to receive a diagnosis? What are your main symptoms (if you feel comfortable sharing). I know at first it is incredibly overwhelming and stressful but I promise you as time passes and with the right steps you will be able to manage this illness. In my opinion diet is everything, changing my diet and figuring out what my intolerances are is the only way I’m able to control my stomach and be able to work. Yes I still have symptoms daily and yes I do have to take a day or two off a month but I’m not running to the bathroom every two minutes like I was in the beginning. I’m here if you have any questions about anything or if you just need to vent ! Remember, you’re not alone ! 💖
take some imodium plus. you be sorted :)
"have you tried pro-biotics" -_____-