Collagenous Colitis flare up

I’m having a flare up & I have no idea why☹️😩

[@uncommonpurestbeauty]

That first line = way too relatable
"It's me. Even though I don't feel like me, I'm pretty sure it's me"

[@acustomer9461]

I was diagnosed last year with this. I struggled to get a diagnosis as well. I can also relate to your thoughts about possibly having PTSD. I’m 33. I have been in remission for a long time. I never changed my diet. I did the pepto bismol therapy, taking 9 pills a day for several weeks and it seemed to work. I still have some tummy troubles but not like during a flare up. If you’d ever like to connect, DM me. I wish your videos were around a year ago when I was confused and wondering what was wrong with me.
You’re a beautiful person. Everything is temporary. I have all kinds of chronic pain issues and when I’m in a flare up with one of them I tell myself that it’s temporary. ♥️

[@StomachSister]

Laura Saputo appreciate you watching and listening to me ramble on !
Thank you for sharing that you can relate about the PTSD that’s the best way I could describe what it’s like. So glad you’re in remission and pepto is a literal life saver !
I’m glad we both finally got a diagnosis , the journey getting to one was rough.
It’s temporary, thank you for that powerful reminder & I would love to connect with you !
Xoxo 💋
Add me as a contact on RUclips. ruclips.net/user/add_contact?c=ZnCrNoi_926PUpQbVymzKPFnzczx6w

[@prayingstitcher]

Hi. I know these are old videos for you. I'm just now living through it with you. It's hard to see you suffering. Thanks for showing us a hard day. Thanks for sharing. Hope you are feeling great now.

[@ryleenightingale6877]

Before I knew I had CC, I always thought I was getting gastritis and I work st a hospital and if you have any flu like symptoms you can’t work for 48 hours. I missed a lot of work because I was always sick and thought I kept getting the stomach bug. It is so frustrating because I did get a verbal warning. I also just got over a flare. It lasted three days and the stomach pain was AWFUL. my body hurt, wasn’t sleeping well. I’ve been on budesonide for three weeks now and haven’t notice any improvement yet. A nurse asked me about my medical conditions and I said I had CC and she looked at me like I was crazy, and I had to tell her it’s an inflammatory bowel disease. I wish it was more known like CD and UC. Hang in there girl❣️

[@StomachSister]

Hey Rylee ,
Before I was diagnosed the docs kept telling me I had gastritis too ! I missed so much work and eventually had to cut down to part time. I’m sad you know exactly what this is like but it’s always good to know I’m not the only one. I’m so happy to hear that you are over your latest flare , these flares are THE WORST!! This is my 3rd day at home but I am feeling much better today thankfully. It’s crazy how no one seems to know about MC CC or LC but it’s up to us to spread the word! It’s more common than we think ! Thanks for being there 💕

[@barber8368]

You might want to look into the Pepto Bismol therapy. It has worked for me in the past and is a lot safer than steroids. There is some evidence that along with symptom relief, there is also a healing element. Sorry you’re having such a hard time but, if it makes you feel any better, you are still beautiful without makeup!

[@StomachSister]

Pepto is my first line of defense and I take shots of it like it’s Patron! Lol it really is amazing and has helped me SO MUCH. I started taking barley pills and using moringa powder (mixed with coconut water or tea) to help with the inflammation too. Trying not to have to take any steroid etc.
Thank you so much for your on going support in this it truly means a lot to me and thanks for the compliment! I still think I look a wreck ! Lol
Xoxo 💋

[@pamburnham6192]

what is the pepto therapy?

[@sarahlevy2793]

She’s absolutely beautiful without makeup - totally agree 💖

[@judygagnon3553]

I've done the Pepto therapy route and it did little to nothing for me. What works for some does not work for all. I did steroids for probably 4 or 6 months back when my diagnosis was IBS....this being 35 years ago. They didn't do anything. I think the only thing consistent about this miserable condition is that unpredictability. They tell you to try gluten free, so I tried that. No dairy, low to no fiber. You name it, I've done it. Now I'm trying every natural remedy that sounds promising. Not only is this disease debilitating, it can get expensive. I'm in a bad flare again. I was supposed to go in for dental this morning, and there is no way I can make it. I don't know what's next. I'm not willing to be a Guinea pig for the pharmaceutical industry that's for sure. You'd think they would have found cures or something by now.

[@StomachSister]

Judy Gagnon it’s so frustrating when you do everything you can and nothing helps. I agree the unpredictability is the worst part and the anxiety that comes along with it. I do hope as time passes they pay more attention to this illness , the same kind of attention they do Crohns and ulcerative colitis.

[@About36Greekss]

Same boat .. eating extremely healthy and I still keep going in and out of flares .. so frustrating

[@StomachSister]

About36GREEKS it is the worst when you feel like you’re literally doing everything in your power to be healthy and your body just doesn’t cooperate! Are you on any meds ?

[@About36Greekss]

Praline Noel im on 2 mesalmine pills daily but they don’t do much , Ive been on 4 before and still had problems . I’ve actually had less problems on fewer pills with a cleaner diet but still can’t get over that hump :/

[@StomachSister]

About36GREEKS 🙁 it’s tough when the meds don’t even help. I just got put on Masalamine 2 weeks ago , my symptoms have improved but idk if it’s the meds or just my flare calming down. How long have you been dealing with this illness ?

[@About36Greekss]

Praline Noel I’ve been with the illness for almost 2 years now ! One thing that did work for awhile was the Keto diet . A lot of others have success on it too . I was on it for 2 months and all my symptoms were gone but I lost some weight so I added carbs back in and within 2 days I was flaring again . I might try the diet again very soon . Look it up Keto for ibd on google ! Lots of success stories :)

[@StomachSister]

About36GREEKS I’m glad Keto worked for you ! Unfortunately though I have too many food intolerances (eggs, dairy,soy and gluten 😒) so its not an option for me.
I’m sorry to hear you’ve been struggling for so long, have you kept a food/symptom journal ? That def helped me figure out what foods I was having a bad reaction to and I just starting eliminating them. Diet is everything but even being strict with myself I still flared so 🤷🏻‍♀️

[@julieannesoltero3365]

My CC hits me hard and the fatigue is awful! I'm in a minor flare right now:/

[@StomachSister]

Julie Anne Soltero I’m sorry to hear about your flare 🙁 how many days has it been?
Do you have your symptoms even when you aren’t flaring ?

[@julieannesoltero3365]

@@StomachSister my flare's can be mild or vicious. I am on day 6 of this last flare but this one is not so bad. I have only had one remission for four months since I was diagnosed. My symptoms are infrequent at all times. I know how difficult all of this is for us sufferers

[@StomachSister]

@@julieannesoltero3365 it's hard to get a handle on this illness when its so inconsistent. I do hope you feel better soon. Are you on meds? what is your diet like?
I have symptoms every day, even on my good days. I will have small flares that last 3 days and this last flare was the worst one i've had since i started having symptoms back in May of last year and this flare has lasted weeks.

[@julieannesoltero3365]

@@StomachSister I am not on steroids but I am on Cymbalta to calm my cramps. My diet fluctuates. I try really hard to avoid dairy and gluten but mostly I stay on liquid diets during a flare

[@StomachSister]

@@julieannesoltero3365 does the Cymbalta help ? my abdominal pain is so severe, its the worst! If you can totally eliminate gluten i think you would see results as time passes. Most ppl with CC are gluten intolerant. I have a problem eating anything during a flare , i have no appetite and my body doesn't absorb anything :(

[@caitlin2273]

I've had micro colitis for 5 years but was just now diagnosed. I sleep 1-3 hours a night including over the past five years because the pain is so severe it feels like my stomach is boiling and exploding. I've tried eating the foods recommended for colitis but just a few bites of any of the foods ends up causing terrible pain. I'm not supposed to stress but I've become afraid of food as it makes me feel like I'm dying. How do you figure out what to eat when everything makes you sick? Maybe that's just me.

[@pamburnham6192]

i have micro scopic colitis/ collagous i was recently in the ER twice from being dehydrated and weak

[@samahf1669]

I pray God to heal you!

[@Thalesschuster]

I have a flare up now for 14 month's continuously.

[@StomachSister]

I am very sorry to hear that :(
Are you on any medication? Have you spoken to your GI ? What are your symptoms ?

[@pamburnham6192]

praline i would love to talk to you over the phone i need all the tips i can get,ive lost a lot of weight

[@StomachSister]

I am so sorry for my delayed reply, quarantine really got me ! How are you feeling these days ? feel free to email me at [e-mail] and we can go from there ! I will help in any way that i can. Thank you for reaching out :)