I’m not really back... Chronic illness has taught me never to commit to anything😂😩 Here’s my “update” I missed you all ❤️💕💖 thank you for never giving up on me ✌🏼
Hello, I know this is an older video, but I just wanted to let you know that I have just been diagnosed with the same disease and I just wanted to let you know your videos have been some of the best ones I have discovered. You are so informative and upfront with what you are going through.
I was recently diagnosed with LC and want to thank you for all the videos. I felt very alone and my GI didn’t give me a lot of guidance. Turned my bad day into a much more tolerable one.
omgosh! I just discovered you a few days ago and was so disappointed that I found you too late (after you quit posting). Thank you Thank you Thank you for coming back! I am going to record my journey story (I am living in a flare since Nov. 2020) this weekend. I think the more we share, the more we will learn since the medical community and internet do not take our disease serious. Again-YAY you are back! I am not a RUclipsr at all but want to make some videos because of you and another person I found. Watching these helps give more meaning to my struggles and I don't feel so alone. I have not gotten the vaccine because I can barely eat. No way I'm putting anything foreign in my body because once it's in there's no going back. I do realize the disease is serious and I lost a dear teacher friend to it (I'm a teacher) but still-I feel it is too risky for me at this stage in my illness.
Every time I go to write a comment I don't know what to say. Yet I can relate to everything you're saying. :) I have lymphocytic colitis and a constellation of other medical conditions including POTS, EDS, Neuropathy and blah, blah, blah...the list of things I don't have is likely shorter than the list of my medical conditions. I hope you'll consider making videos again because there's people who get it and those who don't. You most certainly get it and you articulate your experience beautifully.
You are very hard on yourself.😟. I got diagnosed about 2 weeks ago and look forward to listening to your videos. I have learned a lot and taken some much needed advice you’ve given. Please know you are helping people and I want to shout out to you a Huge Thank You !!
I describe myself as being in remission for the past year or so, but when people ask when I can't pin point anything. Like how, or even when? Definitely don't know why. And remission doesn't even mean healthy for me. Just not actively being destroyed from the inside by my colon. Glad to see you back, your the only person I know on youtube with MC, and I missed your videos! Keep taking care of yourself 💕
Welcome back! I got Pfizer, first shot was totally fine just a sore arm. The second shot was a bit worse I had a slight fever, body aches, and fatigue but I was fine within 12 hours 👍🏼
I made my video of my MC journey but I’m not a youtuber til now so not sure how to link you to it 😂. I called my channel Microscopic Colitis Matters. I’m going to try to keep posting and I’ll learn as I go. You and Shay were encouraging so I did it! Heather Lee ☺️
I have decided to go back to carnivore. Have you had success with keto? I also have CC and I'm just trying to figure it out. The Dr put me on budesonide and it felt like heaven to be able to eat without needing immediate bathroom breaks. 3 months and my pants are too tight, I'm bloated, and gassy lol. (TMI sorry) Just curious about your experience based on your dietary suggestion.
@@amandabrake7263 After nearly 6 years of LC symptoms I feel so much better after a keto diet. I am back to eating a full range of food with 2 conditions. 1 I must miss breakfast and 2. Keep carbs and sugars to absolute minimum. I am almost back to normal. I hope that helps.
Yay so nice to see you! 💕 Sorry for your losses, I lost my uncle. Nothing much has changed. I’ve been vaccinated (Moderna), I feel like it did hurt my stomach a few days after, but other than that no fever. My liver enzymes are intensely elevated and I have high white blood cell counts that I noticed I’ve had since 2018 and no doctor decided to tell me about, so I’m currently exploring that. It could just be from the inflammation from LC though. I don’t believe in remission either. My doctor said Budesonide would be a miracle cure and it was far from that. There’s no cure or treatment that’s worked for me so far lol.
Thank you for reaching out ❤️ not sure why I stopped doing RUclips I definitely miss it ! I can report I am much healthier now after 4 years of an extremely strict diet and a complete life style change. How are you feeling ? Keep in touch
@@StomachSisterwould be super awesome to have an update video or even a post about how you achieved that (found your triggers, dietician, allergy testing etc, life style changes you made). As someone who is struggling to navigate life with this I’d love to know what other people did to not be miserable everyday.
Hi! Are you still around? :( I have had CC since 12 and I'm 60 now...and just now got diagnosed. Is anyone on here still? Love to hear from you!! Thanks!!
Hi, Like you, I was diagnosed about a month ago with collagenous colitis. I cannot eat anything that would destroy me. Just chicken breast and some white rice. But the problem now is Budesonide. My blood sugar has risen because of it and I don’t know what to do. Should I stop the medication or what? I feel that it has not helped me much. The pain. Continuous diarrhea as well
@@monanayzi9399same!!!! I’m also on Budesonide also. I don’t think it’s affected my blood sugar levels. Gosh I better check that! I have about 8 chronic illnesses so this just tops it all off… like what can possibly be next! It’s just a nightmare. I’m in a flare at the moment, it’s hell! Life is crazy & horrible. It’s depressing & I’m slowly realizing how sick I really am 😪 so I feel your pain too ❤️🩹❤️🩹❤️🩹
You are special and you do matter. I'm so sorry the ex made you feel unsafe here. You don''t seem awkward at all to me. I always enjoy your videos. I won't touch the vaccine. I'm no one's guinea pig. There are very toxic ingredients in every vaccine. No way. I've been spending my evenings for the past week or so with you. I'm sad I'm at the end of your videos. I'd love to know how you're doing. Hope you're doing well.
I think I developed dermatomyositis after my first vaccine so I never got the second. So potential new autoimmune diagnose, but at least my collagenous colitis is in remission. I go only 3 times a day or less now most of the time very well formed and solid
I am recovering from a badly injured neck and now sporting a neck brace also I am scheduled to have an endoscopy next week. I am scared of getting a endoscopy. seen videos of endoscopy that must painfull a scope going down your throat. traveling to your small intestines and large intestines. 😢
Did both ends bout 14 yrs ago, totally out during probes. Woke to no ill effects, biopsy's were needed and taken from both ends. No worries. One thing... I did ask that top side would be first. lol.
I got my first dose of the moderna vaccine about 2 weeks ago and i felt fine afterwords. day 3 i had a little soreness but that was it. My mom and dad had a bit more pain and they got really tired. Otherwise it went well
Yay!!! I'm so glad you're back! I was bummed that you had given up your videos, but if you're not in remission (and what is that anyway?), it's completely understandable. You inspired me to start my own recording of my journey. ruclips.net/p/PLA_vQ6xKwrAuMd-unweTS5CBJKiLtBpnL I found your videos so helpful and relatable, that I wanted to do the same thing to help others. Thank you!!! ❤️ I got both doses of the phizer vaccine. I was pretty nervous because covid is what triggered my LC. I still have other unrelated symptoms to figure out too. But I had also heard that the vaccine was helping other covid long haulers to lose their symptoms. Unfortunately, that didn't happen for me. But the vaccine also didn't affect me too badly. It was like a flu shot. Sore arm, a bit more tired than normal LC symptoms. It was definitely worth going for.
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Hello, I know this is an older video, but I just wanted to let you know that I have just been diagnosed with the same disease and I just wanted to let you know your videos have been some of the best ones I have discovered. You are so informative and upfront with what you are going through.
Yes! Her videos are so real. I love them.
I was recently diagnosed with LC and want to thank you for all the videos. I felt very alone and my GI didn’t give me a lot of guidance. Turned my bad day into a much more tolerable one.
omgosh! I just discovered you a few days ago and was so disappointed that I found you too late (after you quit posting). Thank you Thank you Thank you for coming back! I am going to record my journey story (I am living in a flare since Nov. 2020) this weekend. I think the more we share, the more we will learn since the medical community and internet do not take our disease serious. Again-YAY you are back! I am not a RUclipsr at all but want to make some videos because of you and another person I found. Watching these helps give more meaning to my struggles and I don't feel so alone. I have not gotten the vaccine because I can barely eat. No way I'm putting anything foreign in my body because once it's in there's no going back. I do realize the disease is serious and I lost a dear teacher friend to it (I'm a teacher) but still-I feel it is too risky for me at this stage in my illness.
Every time I go to write a comment I don't know what to say. Yet I can relate to everything you're saying. :)
I have lymphocytic colitis and a constellation of other medical conditions including POTS, EDS, Neuropathy and blah, blah, blah...the list of things I don't have is likely shorter than the list of my medical conditions.
I hope you'll consider making videos again because there's people who get it and those who don't. You most certainly get it and you articulate your experience beautifully.
Glad to see you making videos again, but don't feel pressured to produce them, do it on your time and at a pace that makes you comfortable.
You are very hard on yourself.😟. I got diagnosed about 2 weeks ago and look forward to listening to your videos. I have learned a lot and taken some much needed advice you’ve given. Please know you are helping people and I want to shout out to you a Huge Thank You !!
So glad you’re back! I found your videos a few months after I was diagnosed with MC. They really helped me understand what this is all about. Thanks!
I describe myself as being in remission for the past year or so, but when people ask when I can't pin point anything. Like how, or even when? Definitely don't know why. And remission doesn't even mean healthy for me. Just not actively being destroyed from the inside by my colon. Glad to see you back, your the only person I know on youtube with MC, and I missed your videos! Keep taking care of yourself 💕
Welcome back! I got Pfizer, first shot was totally fine just a sore arm. The second shot was a bit worse I had a slight fever, body aches, and fatigue but I was fine within 12 hours 👍🏼
Welcome back! I think we are all a little uncomfortable and socially awkward this point. Lol it’s not just you! 💝
Being on the combined oral contraceptive pill put me into remission. Two years of trying different drugs that didn't work and boom no more symptoms.
I made my video of my MC journey but I’m not a youtuber til now so not sure how to link you to it 😂. I called my channel Microscopic Colitis Matters. I’m going to try to keep posting and I’ll learn as I go. You and Shay were encouraging so I did it! Heather Lee ☺️
Please do an update. Want to know how you are doing!!
Same! ❤
So great you are back!!! I agree what is remission?
Good to see you Praline, just a quick question. Have you tried Keto style diet with intermittent fasting? It has really helped me out (I have LC).
I have decided to go back to carnivore. Have you had success with keto? I also have CC and I'm just trying to figure it out. The Dr put me on budesonide and it felt like heaven to be able to eat without needing immediate bathroom breaks. 3 months and my pants are too tight, I'm bloated, and gassy lol. (TMI sorry) Just curious about your experience based on your dietary suggestion.
@@amandabrake7263 After nearly 6 years of LC symptoms I feel so much better after a keto diet. I am back to eating a full range of food with 2 conditions. 1 I must miss breakfast and 2. Keep carbs and sugars to absolute minimum. I am almost back to normal. I hope that helps.
@@Downloader77 it really does, thank you.
Yay so nice to see you! 💕 Sorry for your losses, I lost my uncle. Nothing much has changed. I’ve been vaccinated (Moderna), I feel like it did hurt my stomach a few days after, but other than that no fever. My liver enzymes are intensely elevated and I have high white blood cell counts that I noticed I’ve had since 2018 and no doctor decided to tell me about, so I’m currently exploring that. It could just be from the inflammation from LC though. I don’t believe in remission either. My doctor said Budesonide would be a miracle cure and it was far from that. There’s no cure or treatment that’s worked for me so far lol.
Miss you, Praline. How are you doing? I was in a remission and just got hit with covid last week. It launched me into a flare. Hope you're well.
Please come back!!!! How are you doing now lovely??? 🌟🙏🏼💖
Thank you for reaching out ❤️ not sure why I stopped doing RUclips I definitely miss it ! I can report I am much healthier now after 4 years of an extremely strict diet and a complete life style change. How are you feeling ? Keep in touch
@@StomachSisterwould be super awesome to have an update video or even a post about how you achieved that (found your triggers, dietician, allergy testing etc, life style changes you made). As someone who is struggling to navigate life with this I’d love to know what other people did to not be miserable everyday.
Hi! Are you still around? :( I have had CC since 12 and I'm 60 now...and just now got diagnosed. Is anyone on here still? Love to hear from you!! Thanks!!
Hi, Like you, I was diagnosed about a month ago with collagenous colitis. I cannot eat anything that would destroy me. Just chicken breast and some white rice. But the problem now is Budesonide. My blood sugar has risen because of it and I don’t know what to do. Should I stop the medication or what? I feel that it has not helped me much. The pain. Continuous diarrhea as well
@@monanayzi9399same!!!! I’m also on
Budesonide also. I don’t think it’s affected my blood sugar levels. Gosh I better check that! I have about 8 chronic illnesses so this just tops it all off… like what can possibly be next! It’s just a nightmare. I’m in a flare at the moment, it’s hell! Life is crazy & horrible. It’s depressing & I’m slowly realizing how sick I really am 😪 so I feel your pain too ❤️🩹❤️🩹❤️🩹
You are special and you do matter. I'm so sorry the ex made you feel unsafe here. You don''t seem awkward at all to me. I always enjoy your videos. I won't touch the vaccine. I'm no one's guinea pig. There are very toxic ingredients in every vaccine. No way. I've been spending my evenings for the past week or so with you. I'm sad I'm at the end of your videos. I'd love to know how you're doing. Hope you're doing well.
Ty for your videos - I am newly dx w/ CC- you don’t mention if u tried Budesonide- or Bismuth?
Sry if I am overstepping - I feel u❤
I think I developed dermatomyositis after my first vaccine so I never got the second. So potential new autoimmune diagnose, but at least my collagenous colitis is in remission. I go only 3 times a day or less now most of the time very well formed and solid
I am recovering from a badly injured neck and now sporting a neck brace also I am scheduled to have an endoscopy next week. I am scared of getting a endoscopy. seen videos of endoscopy that must painfull a scope going down your throat. traveling to your small intestines and large intestines. 😢
Did both ends bout 14 yrs ago, totally out during probes. Woke to no ill effects, biopsy's were needed and taken from both ends. No worries. One thing... I did ask that top side would be first. lol.
Fantastic to see you back.. Remission..
What is that... 😂😂
I can feel for you sweetheart..
Keep it up..
Get back to me on email... 😘
I got my first dose of the moderna vaccine about 2 weeks ago and i felt fine afterwords. day 3 i had a little soreness but that was it. My mom and dad had a bit more pain and they got really tired. Otherwise it went well
Hi.
How are you .
Would be fantastic to find out how you are.
Just got my vaccine tonight. Ok so far
Miss ya!! Update??
Yay!!! I'm so glad you're back! I was bummed that you had given up your videos, but if you're not in remission (and what is that anyway?), it's completely understandable. You inspired me to start my own recording of my journey. ruclips.net/p/PLA_vQ6xKwrAuMd-unweTS5CBJKiLtBpnL I found your videos so helpful and relatable, that I wanted to do the same thing to help others. Thank you!!! ❤️
I got both doses of the phizer vaccine. I was pretty nervous because covid is what triggered my LC. I still have other unrelated symptoms to figure out too. But I had also heard that the vaccine was helping other covid long haulers to lose their symptoms. Unfortunately, that didn't happen for me. But the vaccine also didn't affect me too badly. It was like a flu shot. Sore arm, a bit more tired than normal LC symptoms. It was definitely worth going for.
Greetings! It's Carl, Dee (waffle sister's) Carlo. I wanted to ask you something in regards to Dee's Bday and I am trying to be sneaky about it.
Hiiiiiii 👋🏼
Ask away ! You can email me if you like it’s pralinenoel@gmail.com