Doubting My Son's Autism Diagnosis...

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  • Опубликовано: 8 янв 2025

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  • @whitneymason406
    @whitneymason406 3 года назад +1

    Growing up in Montana I had a very limited experience with autism and the media representations were few and sometimes inaccurate, which like you said, really framed how I understood the condition. When I was 7 months pregnant with our daughter my son had his 2 year old checkup. The doctor gave me the ASQ (Ages and Stages Questionnaire) and said the way I answered showed some red flags for autism. I just thought he behind in language and very active. Luckily, insurance covered speech therapy for a delay and we got started. Once I was on maternity leave I did see what the doctor was seeing and within 6 months he saw a specialist who diagnosed him with autism. My view of autism was pretty negative at first but now I have a much more positive outlook. Thank you for sharing this and your positivity!

  • @kimfeldwicke3611
    @kimfeldwicke3611 3 года назад +2

    Thank you so much for this. I feel so alone at the moment trying to understand what is happening. Your channel is the only thing that is helpful right now!

  • @megpie2234
    @megpie2234 5 лет назад +1

    I wish I could hug you, you said everything perfect, my son is almost 4 and was diagnosed a few months after turning 3 and you said it all PERFECTLY

  • @dijonedowns5825
    @dijonedowns5825 5 лет назад +1

    Thank you so much for this video. My son is nearing 3 years old and has had IEP for over a year now. After some recent testing/assessments it was recommended by his OT, Special Educator, and a Speech Pathologist that he get evaluated for Autism. My husband and I have been uncertain. Our son is practically identical to what you have described your son as. I’m so grateful to you for sharing your story!

  • @L2samalicous
    @L2samalicous 5 лет назад +6

    Thank you for this video. My son is 19 months old and had his appointment through for the pediatrician on the ASD pathway and speech therapy. Such a hard time just the not knowing and I find myself googling everything. This video is very relatable and thank you for helping. Everything you say about dexter is like you are describing my boy. Which gives me so much hope as Dexter seems like such a happy lovely little boy. Love from Derby.

    • @LadiiLike5
      @LadiiLike5 5 лет назад +1

      Same here. Sometimes you feel alone. It is nice to know you are not the only one. Best of luck in your journey.

    • @L2samalicous
      @L2samalicous 5 лет назад

      @@LadiiLike5 thank you hun. Best of luck on your journey too. Your totally right having people going through it with you makes it that little bit easier. Thank you for your reply xx

    • @medharai1151
      @medharai1151 5 лет назад

      My son is 15 months old, has his EIP appointment after 2 months. I have a strong feeling that he is on the spectrum and I’m shattered. I knew it since he was like 7-8 months as he never used to make eye contact. Feel emptiness in my stomach. Can’t imagine my boy struggling. 😭

    • @charlesgodinez6497
      @charlesgodinez6497 3 года назад

      @@L2samalicous update?

  • @LadiiLike5
    @LadiiLike5 5 лет назад +3

    Wow, my son is currently 14 months, almost 15, and at such an early age he has exhibited many behaviors you speak of in regards to your son. He currently does not speak and we will begin speech therapy within 2 wks. I can relate to the emotional rollercoaster you speak of, I have yet to receive an official diagnosis, but thank you so much for sharing your story, it has given me piece of mind.

    • @antvilla5240
      @antvilla5240 2 года назад

      Hoping for good news whats the update

    • @btlmir
      @btlmir 2 года назад

      Hi any update

    • @btlmir
      @btlmir 2 года назад

      How is your son doing now

    • @LadiiLike5
      @LadiiLike5 2 года назад +1

      Hi guys, thx so much for ur concerns. Well my son is now 4yrs old. I will be taking him to a neurodevelopmental pediatrician because in my heart of hearts I know he has some degree of autism. However I decided to wait on the official diagnosis and still began to mitigate thru early therapies. After he turned 3 the at home therapies were discontinued and we would graduate to full day therapies at school and then covid hit. But I am very proactive as far as taking what I've learned at therapy and do all kinds of activities to keep him active and engaged til we start school nxt yr. At age 3 he began speaking and come to find that he is incredibly smart. My advice to any concerned parent is follow ur gut instinct and get and stay educated on autism but more importantly watch and learn your child. Find ways to communicate and be proactive with them (diagnosis or not).

    • @LadiiLike5
      @LadiiLike5 2 года назад

      @@antvilla5240 💋

  • @cristinaceri
    @cristinaceri 5 лет назад +2

    Hi Faye, Thank you so much for your video. I am researching now about autism and I stumbled your youtube post it really help and give me ideas about autism. I observe my toddler now who is 2 1/2 years old, he is different from other kid. Before that, My son is a loving kid when he wants to hug me he just grab and hug me tight. When he was 1 1/2 years old he can read and identify the alphabets, numbers, shapes, colors, and the baby songs he sees on tv he can sing the song already with melody and can do the Hi 5, a line, approved sign, up and down actions. But I noticed something different so I researched about the symptoms of autism and the difference now based on the sysmptoms and my observations with my kid, are these:
    1. when I call his name, he won't listen, even I call him multiple times as in no response it seems like he dont know his names. And when he knows a new word he proudly shout and repeat the word over and over again.
    2.He always do the jumping and hand flapping, Repetitive behavior 3.He can't construct a sentence, if he wants something or wanna go somewhere, he just grab me and go to the directions he wants to go or to the objects he wants to get.
    4.And one more thing when we are in the crowded place like MALL, I noticed my kid, he closed his eyes, so its hard to let him walk by his own so I carry him all the time when we go to the Mall
    5. And when theres a loud sound of an engine of a car and noise in the street, he tends to cover his ears.
    6. For social, One last thing when theres a bunch of kids in the playroom, he prefers to play alone, not paying attention to other kids. These are my observations of my precious little boy. I want to consult a doctor next week to help me better understand him and help him as early as I can. These are my own findings with my little boy. What do you think mommies all the symptoms my boy have leads me to Autism. Please, anyone? What can you say? enlighten me? Anyone who has the same scenario with me? Is this autism?

    • @sunrise7640
      @sunrise7640 5 лет назад +1

      I think it is mommy. Just get him checked up and good luck.

    • @shazrizwan6309
      @shazrizwan6309 3 года назад

      Hey..I think it is..but don’t worry do the assessment first.I’m going through the same situation right now.it’s so hard to except:.😞😞

  • @miriamblanco6863
    @miriamblanco6863 5 лет назад +8

    Omg I’m going through everything your saying. Thank you for sharing love!!! Your the best mom ever!

    • @NurturingNeurodiversity
      @NurturingNeurodiversity  5 лет назад +1

      You are so kind! Thank you! Everything will be ok, I promise.

    • @dixierivera7510
      @dixierivera7510 5 лет назад

      @@NurturingNeurodiversity
      I'm going through the same thing, thanks for sharing. This video help me a lot.
      Quick question, are you doing the gfcf diet?

    • @beaugarrett6751
      @beaugarrett6751 3 года назад

      i know Im randomly asking but does any of you know of a tool to log back into an instagram account..?
      I stupidly forgot my password. I appreciate any tips you can offer me.

    • @francismoshe5150
      @francismoshe5150 3 года назад

      @Beau Garrett instablaster ;)

    • @beaugarrett6751
      @beaugarrett6751 3 года назад

      @Francis Moshe Thanks so much for your reply. I found the site on google and Im in the hacking process atm.
      Looks like it's gonna take quite some time so I will reply here later with my results.

  • @sharacy889
    @sharacy889 5 лет назад +1

    Look at you being so inspirational!!! and wise!!! great job hun, very honest, necessary and positive!

  • @sisikwesi540
    @sisikwesi540 5 лет назад +4

    You are so good at this. Thank you so much for these videos

  • @shaunalea823
    @shaunalea823 5 лет назад

    Your son is so much like my son it's unreal, James is 7 now and I'll tell you I never would have thought that's what he had but he does, he is considered mild hf level 1

  • @dijackson6203
    @dijackson6203 5 лет назад

    I love the way you look at things. My daughter is autistic and I went through just the same process of "she can't be because..." I wish I had videos like yours back then to tell me it would all be fine (which it is, more than fine, we have a lovely family life and huge amounts of fun!) Just like your Dexter she has a "spiky profile" with a mix of things she is brilliant at and things she finds harder.

    • @NurturingNeurodiversity
      @NurturingNeurodiversity  5 лет назад +1

      This is such a lovely comment to read, thank you. I love hearing from people with a positive approach to raising autistic children. Your daughter sounds unique and interesting and amazing! You are one lucky mama :)

  • @That_Girl_Meliss
    @That_Girl_Meliss 5 лет назад

    Thank you for the video. I am going through all of this right now. We just got a diagnosis but I still feel in denial. I am having a hard time accepting it and keep thinking the worst. I am so worried about the future for my little girl (she is 2.5). I’ve felt somewhat alone since my friends don’t understand. It’s nice to see a positive video.

    • @anne-vl7qf
      @anne-vl7qf 5 лет назад +1

      That_Girl_Meliss You’ll get through this, once you know it’s better. God bless xxx

    • @NurturingNeurodiversity
      @NurturingNeurodiversity  5 лет назад +1

      Try not to put so much emphasis on the label. Your daughter is the same person, with or without it. The label will help her when she's older to understand more about who she is and to find others like her if she so wishes. She has so much time to achieve her potential, don't worry! I am going to start a community for people in exactly your situation, hopefully it will help :) Don't forget to enjoy her... these years go soooo fast.

  • @TheAwetist802
    @TheAwetist802 3 года назад +1

    Excellent video and thank you for being open-minded whilst learning what being twice-exceptional as an Autistic individual is like for your son. Yes, you are correct: EVERY Autistic person is unique in their expression and manifestations of Autism and almost no-one really fits the stereotypes. I HIGHLY recommend that parents of Autistic or suspected Autistic children seek out communities of Autistic adults so that they can get to know that Autism is NOTHING to be frightened of nor dreaded. We (Autistic adults) are more than happy to share our own lived experiences with you, our triumphs and challenges, and more. I think a lot of the fear and resentment surrounding a formal diagnosis (or even considering that one's child might be ND ~ neurodivergent/Autistic ~ stem from the popular misconceptions being promoted by neurotypical "professionals" and by a certain organization that continues to pathologize Autism.
    Yes, we face challenges. Yes, there are inherent difficulties that come with being Autistic. No doubt about that. It is not all roses and sunshine.
    But, parents of awesome Autistic kids ~ before diving into mourning "what could have been" or despairing that one's child will never live a full and fulfilled life... get to know adult Autistic people (verbal and non-verbal, labeled high or low functioning ~ [though functioning labels are so very problematic] ~ integrated into neurotypical society or officially identified as disabled). We are intelligent, creative, sensitive, yes we are capable of feeling emotions and have empathy (LOTS of empathy). Being Autistic means we have a different brain wiring than neurotypical folks and we process sensory stimulation, conversation.... everything, really... in a different way but we are not automatically deficient or lesser-than. Presume capability!! Learning how to "unlock" the potential of an Autistic child simply means learning your child's operating system and helping them work around the challenges they face in a world designed for neurotypical brains.
    BTW ~ a recommendation: ASAN is the Autistic Self-Advocacy Network. That organization and its website is a great resource for parents, educators, and other caregivers or advocates.

  • @autismkitchentabletalk7823
    @autismkitchentabletalk7823 5 лет назад +4

    Currently going through this love listening to your blogs very helpful 🥰🥰🥰 thank you!

    • @NurturingNeurodiversity
      @NurturingNeurodiversity  5 лет назад +2

      Thank you so much! I am SO glad you've found them helpful, means everything to me! There are so many videos on the autism signs to look out for, but all they say at the end is to push for early intervention... but what about the emotional side of things? What about telling parents what else they can do? What about telling parents that, actually, it's going to be ok regardless!!! (because it IS) These are things I feel very strongly about communicating to other parents going through the unnecessary emotional trauma that I went through with my son. Thanks again for watching.

    • @autismkitchentabletalk7823
      @autismkitchentabletalk7823 5 лет назад

      Nurturing Neurodiversity we are already going through early int but I have known for a long time that something was off. One of his teachers recently said I think we need to go for an evaluation? How do you feel about that? I cried uncontrollably because I felt so validated like thank god I have a friend in this! Someone who sees my child and his difficulties. I’m a very positive upbeat person but the roller coaster of emotions you talk about is spot on. I long for the day my son will say mama as he has only said it once about a year ago and never again that tugs on my heart. Your videos keep me smiling and remind me that no matter what to enjoy my son and take it day by day. Your amazing! Again thank you!!! 🙏🥰

  • @mattersfingers
    @mattersfingers 2 года назад

    I found my matched child. We are the same with all the symtoms sadly. Really struggling with it . We obviously wont be diagnosed until later as he's only 18 months but I'm taking it badly as we have a new baby due in January too. I feel a bit lost

  • @tessallan4
    @tessallan4 3 года назад

    This sounds EXACTLY like my son..he can do all these things too but I know he’s different than his peers

  • @annieroselamanilao9172
    @annieroselamanilao9172 5 лет назад

    Thank you for sharing your thoughts, experience..😊

  • @LisaMaryification
    @LisaMaryification 4 года назад

    I didn't talk until I was 4. But my twin and I had our own language so it's not like we couldn't vocalize. I just think nobody cared to engage us in conversation. Anyway, I've always been shy and afraid to make eye contact. That may be from mistreatment as a child or it could be a case of asperger or both. Anyway, I think who helped me out of my shell were my paternal grandparents. It was very calm there and they were very gentle and just there for me. I don't remember ever stimming but who knows. I do remember picking at my skin a lot, but that could be OCD or a form of self-harm. But anyway, I often wonder if I do have asperger's. I noticed in your other videos, that your son is using a pacifier. I have read that they may impede mouth development so that language is difficul later. Just saying.

  • @allavarapupallavi201
    @allavarapupallavi201 5 лет назад

    Even I'm going across all these things with my son... Bit worried

  • @queendeqa
    @queendeqa 5 лет назад +1

    Thank you so much for this video. It explained quite a bit on why some parents might be on the fence when it comes to autism.

  • @hans_creation2785
    @hans_creation2785 5 лет назад +2

    My baby is 18 months old. He s talking one or two words. Mostly he s babbling.nd no pointing, no sharing, no socializing,so am confused. Is he having autism or not. Eye contact also some times he will respond for his name ND some times he won't. But he will see my face ND eyes for few minutes. He s not playing with one toy ND all types of toys he likes to play. He won't hurt anyone. If he wants something he will cry simply

    • @btlmir
      @btlmir 2 года назад

      Hi how
      Is he doing now

    • @susmidhapl497
      @susmidhapl497 Год назад

      How he is doing now

  • @ameena6485
    @ameena6485 4 года назад

    Thank you for being a good parent.

  • @frankgiuliani9461
    @frankgiuliani9461 3 года назад

    I wonder it's 2021 when I am seeing this. How is Dexter doing now?

  • @gulshateliza5607
    @gulshateliza5607 2 года назад

    My son is none verbal but he hasn’t diagnosed to be autism there isn’t a professional one who can test the child, and I am still trying to find what makes him doesn’t speak….

    • @gulshateliza5607
      @gulshateliza5607 Год назад

      @ZahhidMicheal hello! I’m happy to hear from you, I want to know about Dr Oyalo, who prescribed the herbal medicine to your son, would you please write me his contact information, thank you🙏

  • @alisona8732
    @alisona8732 5 лет назад

    Hi, I have been watching your videos as they vary helpful as I am in the uk too. My daughter is 3 and has been referred as the speech therapist thinks she has Austim. Can I ask how long you had to wait once referred? I don’t know much about the progress and this is all new to me x

    • @NurturingNeurodiversity
      @NurturingNeurodiversity  5 лет назад +1

      Oh I'm so glad they've been helpful for you! Thank you! We were referred when Dexter was only about 18 months I think (I pushed for it), but it was a different process as because he was so young they wanted to wait to see how he developed before diagnosing him. I know there can be very long waiting lists (up to 2 years in some areas) for the ADOS assessment which is what they usually use to diagnose autism in the UK. My son didn't have an ADOS as the paediatrician thought the reports we'd gathered along with her observations were sufficient to diagnose him there and then. Remember that in the UK, support is supposed to be needs based and not reliant on a diagnosis, so push for support rather than a diagnostic label (although it can be helpful). Good luck with everything and let me know if I can help further.

    • @alisona8732
      @alisona8732 5 лет назад

      Thank you for your reply x

    • @valerieferro7492
      @valerieferro7492 5 лет назад

      Why not get the diagnosis done in another country??

  • @gulshateliza5607
    @gulshateliza5607 2 года назад

    Thank u I’ve learned a lot from your videos

  • @EatPrayCrunch1
    @EatPrayCrunch1 5 лет назад +2

    My son is twice exceptional as well and I can very much relate to your experiences. I've discussed some very similar things on my channel. 💗

  • @richmanpoman1
    @richmanpoman1 5 лет назад

    Time and perserverance will bring a lot of improvements. Just wait.

  • @CheFab1984
    @CheFab1984 5 лет назад +2

    My 2 year old Son’s evaluation is May 21st. I went from feeling the knot in my stomach and feeling like the teacher who brought it up to me is wrong. He gives me hugs, kisses. Looks me in my eyes. I also showed him how to pretend to feed a baby doll. So therefore there is no way he is. To now I am like I hope he gets a proper diagnosis if he is. After His father, my mom and myself calling his name 100x a day to work on him coming he now runs around saying his his own name but still doesn’t come by it lol.

    • @leearahman1341
      @leearahman1341 5 лет назад +1

      I hope you get the best help for your son.
      Can you please share with me if u dont mind, some signs your son showed?
      Mine is almost 22months old and showing some signs but obviously as a mother i dont know if im being paranoid or actually it is something. Though i have already spoken to the health visitor and they will start to work on his speech because he has only 4 words and they will do a hearing test (even though i dont feel like he has any prob in hearing)

    • @sharacy889
      @sharacy889 5 лет назад +1

      @@leearahman1341 I battle the line of being faithful that my son will overcome whatever this is (he has to right) and acknowledging that something may really be wrong or different. But the truth is we are only in control of what we choose to do everyday and no1 really knows what our kids full potential can be, take heart in that. Its not what we had planned on and you know he needs help in some areas, we may have to work a bit harder... the appointments and evaluations go either way at varying points across their lives especially when these kiddos dont present the typical way, but as crazy as it sounds i teared up in Avengers because i was reminded that whatever my son is and will be he is something amazing and so is your little one!

    • @NurturingNeurodiversity
      @NurturingNeurodiversity  5 лет назад

      He will continue to improve over time. Raising a differently wired child is a massive test of patience for us mamas isn't it?! I hope all goes well with the evaluation; try not to put too much emphasis on it, he's just your amazing little boy and you are his amazing mama! Let us know how you get on, I'll be thinking of you!

    • @CheFab1984
      @CheFab1984 5 лет назад

      Zenifar Leea My Son Could identify Letters, Shapes and colors at 1 1/2. And he was getting increasingly smart. He knew the difference between hexagon, pentagon and octagon before 2. He just turned 2 and can read about 15 words and his planets. BUT we started to notice he doesn’t seem to know his name. Now it’s confirmed we call his name 100x a day and nothing. He never comes to his name not even a look at me. He doesn’t seem to grasp the easy things by waving bye. Or Hi 5. I couldn’t understand how fast he could identify things and recite whole songs. But when i try to teach him eyes, nose & mouth. He doesn’t understand. He doesn’t pay much attention to other children. And rocks a lot when he is watching tv. I will update you after his Evaluation on the 21st

    • @CheFab1984
      @CheFab1984 5 лет назад

      Zenifar Leea He was diagnosed today.

  • @listdxb5091
    @listdxb5091 5 лет назад

    Very informative video, lovely woman

  • @gingersnap3024
    @gingersnap3024 5 лет назад

    Bless you!

  • @debbies9838
    @debbies9838 5 лет назад

    I also believe that foods and any injections are not helping our brains.
    Im learning from experience