Living with frontotemporal dementia | Wendy's story
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- Опубликовано: 26 сен 2022
- In this video, Wendy describes the challenges of arriving at a diagnosis of frontotemporal dementia (FTD), managing her symptoms, and finding meaning and joy in life whilst living with FTD. FTD is the second most common cause of dementia in people under 65 years of age. For more information on FTD, visit: frontierftd.org
The FRONTIER Research Group is a specialist research group at the Brain and Mind Centre, University of Sydney, dedicated to improving the lives of people living with FTD.
To keep up to date with FRONTIER's latest research on PPA and FTD, visit:
/ frontier_usyd
/ frontierbrainandmind
Video production: www.jonathanbakercamera.com
Music: Wishes by Lane King (Artlist) 
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Beautiful story of strength with grace. Thank you so much for sharing. God bless you all. ❤️🙏🏻
Thanks for sharing this. I have a husband with FTD. Wishing you all a lot of strength and patience 💪
What a lovely couple....it made me smile that they blames certain situations on Dorothy.
My Mum has FTD. It’s a cruel disease. Wished on no one. Godspeed.🙏🏼🙏🏼
My late husband had FTD. Such a devastating experience!😢
blessings for you
What was your early symptom ? I love calling the disease Dorothy. I think that's adorable . You need humor in life. and how was it diagnosed ?
Thanks for sharing. I liked the idea of naming the dementia character but that works when the patient is still aware . I wish I can do that with my mother in law. Any update 2024.This disease of the mind is very painful to handle by their love ones. The person you loved is no longer there yet still alive.
God bless you.
Lovely human beings.
God bless you both! I say I'm "living" with Cognitive Impairment. That doesn’t define me but neither does it mean I'm in denial. My oldest daughter "lives" with dyslexia but, in no way, does it define her. She teaches people to sing. If she said "I'm dyslexic!" she might not have achieved very much because she would be defined by a label.
Thankfully his was caught early too due to so many siblings having it. He tests every 5 months and was diagnosed in aug of 2020
My mum has just been diagnosed with this...
Thank you for sharing your story. My dad is the 6th sibling out of 12 in his family to have dementia. Are you currently on medication and if so which one?
What is the Genetic test for the disease?
Eyyi Dorothy that's interesting
My wife was diagnosed with this disease in February 2023 although looking back on it she probably had it 6 months before that date. I have been in denial about it since it that only lasts so long. I don’t have anyone to help me. We have no kids. I have no idea how to handle my wife with this disease. I don’t want to put her in a nursing home when it gets worse. I want to take care of her here at home. I’m devastated. We have been married for 34 years. It is a horrible disease and aggressive and progressive. This is going to take the love of my life away from me.
You will need to put her in a nursing home. Prepare.
I would love to know if this disease has anything to do with eating beef, processed food or other thing.
Yes, I've thought the same. Processed &GAMe'S. Also, they are the aluminum foil generation, cooked food wrapped in it. Many professionals have correlated the two. ALCOA
She inherited the dementia gene from her parents. Her sister died from it, her brother is currently in a care home from it.
Would it have changed her course by eating absolutely pure? Very hard to say.
It is well established that many people who have exercised all their lives, ate clean, thought clean, were social, engaged, you-name-it, and still ended up with it.
Are you open to a different way of thinking of what you can do to help with this illness nothing to do with medication or money nothing that you would guess at but I’m more than happy to discuss with you my way of thinking , I would think if I was in your position who is this crank but no that’s not who I am , have been on this planet a long time and everyone I have ever met have said I just think differently so maybe time to help with the way I think at put it to good use.
problem is with dementia it doesn't work that way. The rational thought of thinking gets eroded and Withers then dies followed by your organs shutting down.
@@marykay8587 I know as said just happened to catch a RUclips video and for some reason caught my interest and the more I watched different videos in regards to experts and the care home scenarios the more I thought is there another way of thinking be missed so call me a crazy crank I really don’t mind many in my life have said this but ironically came back to me and said thanks be it back problems or all sorts really , I don’t know your circumstances but have you ever considered earthing the body to which how the body works in relation to a power source as a motor if the motor is not earthed the electrical field is becoming erratic yes I know it sounds crazy , will explain more if you are interested.
You can’t even put together a coherent sentence.
@@carollynt But I try too.
@@kavanobrien6547Get mental help. This literally sounds like schizofrenia