For anyone suffering with this. There is hope! I have it, it was terrible. I had lapaporoscopic surgery to remove it 5 years ago, been on pill every since (with no placebo pills so I don't have my period). It hasn't come back (knock on wood). I am 51 now so I was past wanting to have kids. It would be harder for younger women. But the surgery really did help tremendously. I went from excruciating debilitating pain to no pain.
I’m so glad to hear you’re doing so well now. Here’s my dilemma Set; Several months ago I started passing tissue every month during my cycle suddenly which is scary. It’s like a fleshy color with darkish red tiny clots intertwined in the tissue & am wondering if it could be endo symptoms possibly? I’ve been on BC pills & still am as I’m 42 now & have developed severe pelvic pain/pressure as well just this pas weekend, reminds me of contraction pain on & off, painful for sure. I’m not pregnant to clarify lol . Just curious if this sounds familiar to you or not as I spoke to my regular doctor & she had no clue what it was as I took a pic of it & have been monthly since then…gross🙄😂 I’ll choose an obgyn doc if need be, thank you so much for your help @set c 🤗
@@ReneeW. well my periods were always heavy, long and painful. I guess this is a symptom of endometriosis. I did have larger than normal blood clots sometimes. I always carried tampons and ibuprofen wherever I went because my period could just start whenever. The endo pain wasn't associated with my period which was weird. I had to get a CT scan and an MRI before I was diagnosed with endometriosis. My GP didn't know what was wrong with me. It is a bizarre disease and I think it effects people differently because the tissue can grow in different areas and cause different problems. Have you had a CT scan or MRI of your abdomen?
@@ReneeW. I forgot to say the endometriosis pain was so bad I couldn't walk. One time I threw up it was so bad. I crawled to the bathroom. I haven't had children but I imagine it is similar to contractions. I felt like my insides were twisting. I'm pretty tolerant to pain because of my periods and this was just off the charts. I would try to get an MRI to see what's going on. It was an OBGYN who thought it may be endo so I definitely recommend seeing one. I hope you feel better soon! My name is Stephanie btw. 😀
I have had at least 12 surgeries for endometriosis, this includes a hysterectomy at 33 and left ovary removal at 50. My endometriosis at the time of hysterectomy was moderate Stage 3. I'm post menopausal and STILL dealing with this disease 😪😪😭😭 I had a miscarriage in 1998 at 28....it was a unexpected surprise, but I was happy, until I lost my baby. This disease has made womanhood miserable for me mostly because of the other illnesses that have followed. I also have: interstitial cystitis, migraine headaches, fibromyalgia, bowel pains, depression and anxiety. I wouldn't wish this disease on anyone!!! It has ruined my life.
My niece had this and Was told her chances of getting pregnant was very slim, she kept calm and waited patiently and now has a healthy baby boy who's just turned 2 months.
60% approx can conceive but endo can interfere with conception, and conception can improve once endo is removed both for assisted and natural. There are higher risks with pregnancy when endo is present so experts like Dr King in this video can remove endo and preserve fertility. It is a very precise surgery and not alll gyn are prepared to do this
Chances are better with lower stages but new information suggest that side effects complications, pregnancy losses are higher when disease is present. New research by Horace Roman and associates in France have shown that both natural and assisted conception are improved with expert excision of endo, that is not something every ob/gyn or RE can do,
My surgeon said there nothing she can do and needs to perform a hysterectomy, with out known the real I side. I feel I don't have the rights to cry or feel depressed. But instead be greatful...I don't want to remove everything. I wish my surgeon can see they can save my uterus.
Yeah, that's great and all... except that hysterectomy is not a cure for endometriosis and you can still have endo growing AND EVEN CONTINUE TO HAVE PAIN even if you remove the ovaries and uterus. You can run into massive issues with osteoporosis due to lack of estrogen in your system if you have your ovaries removed. Excision also doesn't treat the issue in a lot of patients. People are constantly gaslit by OBGYNs because we're "just being dramatic about period pain" or being given excessive/extreme operations that don't FIX the problem because no one is researching this disease to the degree we need. We're being mutilated and sent on our way. This is disgusting and wrong and every doctor will tell you something different with endo and treatment. Go ahead and tell me how easy it is to get treated and I'll tell you every single way it hasn't worked.
@Nancy Petersen There are lesions that could potentially not be able to be removed and removal doesn't guarantee endometriosis is treated. I've been through this song and dance with tons of gynecologists. There is no real cure or treatment for endometriosis. The whole experience with gynecologists is a joke.
@Nancy Petersen On and in my bladder, on and in my intestines as well as various other places that, if operated on, would actually do more harm than good. It's not about skill.
@@GlitchScatter you apparently ahe all the information you need, I was the co founder of the first program for the complete excision of endometriosis laparoscopically along with David Redwine, so just hoping you got all you need
For anyone suffering with this. There is hope! I have it, it was terrible. I had lapaporoscopic surgery to remove it 5 years ago, been on pill every since (with no placebo pills so I don't have my period). It hasn't come back (knock on wood). I am 51 now so I was past wanting to have kids. It would be harder for younger women. But the surgery really did help tremendously. I went from excruciating debilitating pain to no pain.
I’m so glad to hear you’re doing so well now. Here’s my dilemma Set;
Several months ago I started passing tissue every month during my cycle suddenly which is scary. It’s like a fleshy color with darkish red tiny clots intertwined in the tissue & am wondering if it could be endo symptoms possibly? I’ve been on BC pills & still am as I’m 42 now & have developed severe pelvic pain/pressure as well just this pas weekend, reminds me of contraction pain on & off, painful for sure. I’m not pregnant to clarify lol . Just curious if this sounds familiar to you or not as I spoke to my regular doctor & she had no clue what it was as I took a pic of it & have been monthly since then…gross🙄😂 I’ll choose an obgyn doc if need be, thank you so much for your help @set c 🤗
@@ReneeW. well my periods were always heavy, long and painful. I guess this is a symptom of endometriosis. I did have larger than normal blood clots sometimes. I always carried tampons and ibuprofen wherever I went because my period could just start whenever. The endo pain wasn't associated with my period which was weird. I had to get a CT scan and an MRI before I was diagnosed with endometriosis. My GP didn't know what was wrong with me. It is a bizarre disease and I think it effects people differently because the tissue can grow in different areas and cause different problems. Have you had a CT scan or MRI of your abdomen?
@@ReneeW. I forgot to say the endometriosis pain was so bad I couldn't walk. One time I threw up it was so bad. I crawled to the bathroom. I haven't had children but I imagine it is similar to contractions. I felt like my insides were twisting. I'm pretty tolerant to pain because of my periods and this was just off the charts. I would try to get an MRI to see what's going on. It was an OBGYN who thought it may be endo so I definitely recommend seeing one. I hope you feel better soon! My name is Stephanie btw. 😀
I have had at least 12 surgeries for endometriosis, this includes a hysterectomy at 33 and left ovary removal at 50. My endometriosis at the time of hysterectomy was moderate Stage 3. I'm post menopausal and STILL dealing with this disease 😪😪😭😭 I had a miscarriage in 1998 at 28....it was a unexpected surprise, but I was happy, until I lost my baby. This disease has made womanhood miserable for me mostly because of the other illnesses that have followed. I also have: interstitial cystitis, migraine headaches, fibromyalgia, bowel pains, depression and anxiety. I wouldn't wish this disease on anyone!!! It has ruined my life.
Did you gain any weight after
Thank you for bringing quality information on endometriosis to this format
thank you for the great information, I know someone who is in great pain from this.
Can it cause your period to be delayed
Kindly share chances of pregnancy after endometrsia
My niece had this and Was told her chances of getting pregnant was very slim, she kept calm and waited patiently and now has a healthy baby boy who's just turned 2 months.
60% approx can conceive but endo can interfere with conception, and conception can improve once endo is removed both for assisted and natural. There are higher risks with pregnancy when endo is present so experts like Dr King in this video can remove endo and preserve fertility. It is a very precise surgery and not alll gyn are prepared to do this
I have always had painful periods got married had 2 kids and then got told I had endo... but I suppose it depends on where the patches are
Chances are better with lower stages but new information suggest that side effects complications, pregnancy losses are higher when disease is present. New research by Horace Roman and associates in France have shown that both natural and assisted conception are improved with expert excision of endo, that is not something every ob/gyn or RE can do,
Hi doc I have endometriosis to do treatment
There is a blood test that may suggest endo. Tumoral marker CA 125 is pretty accurate.
It is not diagnostic for endo or cancer, just needs follow up to figure out why it is elevated
My surgeon said there nothing she can do and needs to perform a hysterectomy, with out known the real I side. I feel I don't have the rights to cry or feel depressed. But instead be greatful...I don't want to remove everything. I wish my surgeon can see they can save my uterus.
Yeah, that's great and all... except that hysterectomy is not a cure for endometriosis and you can still have endo growing AND EVEN CONTINUE TO HAVE PAIN even if you remove the ovaries and uterus. You can run into massive issues with osteoporosis due to lack of estrogen in your system if you have your ovaries removed. Excision also doesn't treat the issue in a lot of patients. People are constantly gaslit by OBGYNs because we're "just being dramatic about period pain" or being given excessive/extreme operations that don't FIX the problem because no one is researching this disease to the degree we need. We're being mutilated and sent on our way. This is disgusting and wrong and every doctor will tell you something different with endo and treatment. Go ahead and tell me how easy it is to get treated and I'll tell you every single way it hasn't worked.
Hysterectomy and ovary removal do not treat endometriosis . The lesions themselves should be removed
@Nancy Petersen There are lesions that could potentially not be able to be removed and removal doesn't guarantee endometriosis is treated. I've been through this song and dance with tons of gynecologists. There is no real cure or treatment for endometriosis. The whole experience with gynecologists is a joke.
@@GlitchScatter the only reasons lesions cannot be removed is due to limited skills
@Nancy Petersen On and in my bladder, on and in my intestines as well as various other places that, if operated on, would actually do more harm than good. It's not about skill.
@@GlitchScatter you apparently ahe all the information you need, I was the co founder of the first program for the complete excision of endometriosis laparoscopically along with David Redwine, so just hoping you got all you need