Mikko's Autism Diagnosis Results...
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- Опубликовано: 23 апр 2023
- Disclaimer: This is a very basic overview of what you may experience going through the diagnosis process. We encourage you to utilize all available services to provide the best care for your family.
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Can I say, as an autistic adult whose entire family neglected any and all of my necessary care during childhood, watching you fight so hard for Mikko makes me feel a tiny bit better about the world. I spent so long as a kid praying that someone like you guys would come find me and help me, I am so grateful that she has you to protect her.
That's so sad that Noone knew what was going on with you. I worked retail and watched a lot of kids being treated badly by their own parents and I'd wonder if the child had something going on with them . I knew they weren't just bad children.
Oooowe I couldn't have said that better. Amen 🙏🥰
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🙏🏾💪🏾🫶🏾🙌🏾👏🏾 but God
i also come from a neglectful home and it's so rough. these videos r healing for me too.
My adult son is 32...
When he was born he was overdue, and very large baby...
I was told when he was 3 that he would loose his language skills, and I should mourn my dreams for him and plan for him cradle to grave...
We moved 4,000 km from our home to attend the queen Alexandria school in Victoria bc for children with autism.
They taught a method known as 'creeping' which rewires the brain...
My son is an adult, he is married to a medical professional, he has many friends, he travels, he works and he has a degree,...all the things the doctors said he would never do or have he has far surpassed their expectations!!
My son I well over 7 feet tall, very strong and his coordination had greatly improved after the doctor told us to buy him a Playstation game system...( back then we had Richard scary's all aroundbthe town and other children's games ) and although I do not believe video games are a good toy for children kids with autism benefit greatly from the hand to eye coordination and the wii game helps with muscle tone...
I wish you and your daughter the very best ❤sending prayers 🙏
Wow, that is incredible ❤
Your story so inspiring so glad you parents are sharing your stories to help each other ❤
Hello. I am 26NB w/ level 1 ASD, ADHD (among others). I am also Afro-Latina. I have followed your channel for a bit now as a way to gently re-parent myself. One of my parents is a Marine and it is so refreshing seeing someone living the gentle life while detangling the strings the military-industrial complex weaves through the medical-industrial complex. Adding another layer of seeing myself represented through many minority lenses. Seeing you and your husband parent heals me; I was neglected and abused for most of my childhood by parents who weren't as caring or attentive, invested or understanding as you all. THANK YOU SO MUCH for sharing your family and life with us. You can never know how much it means to so very many of us.b
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Glad to read your story. My grandbaby is level 2 afro-latina, she is two years old and we're getting her in school now.
There’s no such thing as level 1
@@aestill1 I’m also autistic and started a school at 2
@@aestill1 I wish her good luck
My granddaughter was diagnosed at age 2 non verbal level 2 we are thankful for her speech and occupational therapy has been such a great help . We stopped ABA because they kept changing people so mom took on teaching her. Today she is 5 years old and is speaking sentences. She sings so many songs in tune and very clearly and even adds her little creativity to the songs. She is in a regular kindergarten class and we were worried at first but she has learnt so much social skills with the non autism kids she and one other student are the only ones on the spectrum in her class. She does have an aid who helps her but other than that she is writing and passing tests along with the other students so every child is different and I’m glad we took a chance having them put her in a regular kindergarten class hope this gives you hope to know they can achieve from non verbal to talking in their own time .
Amazing story about your granddaughter. Kudos, to her blossoming in the regular class.
Continued prayers and blessings for your granddaughter!
for future reference the term for non-autistic is allistic
@@user-fc2xk3uv8y good to know. I never knew that.
Yes same with my daughter!!!
I think you and your husband are wonderful parents!!!!!!!!!😊
I get emotional watching this channel because I wish my mother cared this much for me. She yelled at me for everything that I couldn’t control and later realized was due to autism. I don’t blame her for not realizing I was autistic since she was a single mom of 3 and my sister had cerebral palsy and my brother was “gifted”. Because I got good grades she never suspected anything tho she constantly yelled at me for rocking, not paying attention, not making eye contact, holding on to special items, for being weird or being a freak, etc etc. Thank you for being such a loving mom, I really hope you inspire more parents out their to raise their kids with compassion ❤️
Let’s forgive and heal and move one day at a time moms arent not perfect and don’t come with a handbook niether do kids
By Gods grace she did her best
Let’s concentrate focus on Gods love Mercy grace forgiveness and love he’s the only one that’s perfect let’s not blame our parents or hold grudges or negative thoughts or things of the past against them we all make mistakes and mature and grown eventually thank God for moms she did her best love her and forgive you don’t know what she’s gone though or have dealth with etc and even if you do still honour love respect move on by Gods help
Mara I'm so sorry you experienced these things, I hope you're in a much better place now ❤️
I'm so sorry you went through that.
So you're a parent of an autistic kid and worry you are or did no do that well or made "mistakes" and you are putting YOUR stuff on this woman? Stop it. She suffered. Don't beg suffering people to forgive. You erase their feelings. @@Kingjamesbible161
I am so happy you are done with the evaluation process. I am so looking forward to seeing her progress over time. I teach High School Down Syndrome and Autistic students. It is so rewarding to see them progress from non-verbal to verbal!!! Wishing your "Gentle Parenting" videos the best!! Join as many Autism Associations as possible. Other parents with Autistic children have so much useful information
Very well said. 👏
Absolutely, "IT TAKES A VILLAGE ", the schools systems, county, social services, regional centers ect 😢 sadly can do so much. It's almost like a dog chasing his tail. Some services are under staff or the psychiatrist that on staff of 4 or 5 schools are more are unundated with paperwork and so on. That's the the best and smartest advice that could be given, network, learn, network and create a village, a strong village. I truly salute all parents who are raising children in any of the spectrum. 😊❤❤😊
My 14 year old daughter just received a level 1 diagnosis last year. It was a long, exhausting 12 year journey. She's very articulate and hit every major milestone early. There were so many minor ones missed. And doctors, teachers, therapists, family members, everyone treated us like we were being paranoid, knit picky, over exaggerating ect. No one helped us. We eventually removed her from public school because she was being more harmed than helped. 1 year into her diagnosis, and there still has been no help. Sometimes as parents, all we have are each other. Thanks for your platform.
My experience exactly Tiffany. Take heart, my sin is 42 has always worked, has a very good social life with lots of friends who understand him, a great sense of humour, he is living and empathetic, saving for a mortgage. His main hiccup is having little practical sense but still each event is a new learning opportunity. I believe your daughter will be fine, I find repetition is the order of the day. Love to you all. X
My neice was diagnosed at 2 years old. She’ll be 3 in November. My sister has been putting her in speech classes & other classes to help with her development. My neice can count to 10 now. It may be something minuscule to someone else but it’s an accomplished for us and I am so happy, she’s thriving ❤ your daughter is beautiful and will grow up to make you proud❤
You're absolutely right! I'm 52, my parents deceased but they'd be so proud of things I've done or accomplished.
Little Mikko will certainly do some great things. She's already started her journey of greatness (I fell in love with the video camera and I've a feeling she will also).
I am so glad you received a diagnosis. I know how it feels to be in your position: I was diagnosed with autism at a very young age (in the mid 1980's) and was non-verbal until age 5. My mother did nothing to care for my developmental disabilities and was abused badly as a result. I had to teach myself basic life skills, and stopped getting therapy when I was mainstreamed to a regular school in 1990. I am 39 years old now with a 20-year-old son of my own (who is autistic as well). I can speak perfectly and eloquently. I had to teach myself how to speak properly because I received no speech therapy after 1990. I've come a long way since 1986. I'm glad that she has you and your husband to protect her. It makes me so happy that your daughter will always get the care that she needs.
Way to go.. thank you for sharing your story you are amazing indeed!
I've noticed changes in services for learning variances over the decades. Idk about the school district you grew up in, but back then, there were very few Paras, etc.
Beloved, I hope you can find a way to forgive your mom. We can spend years or a lifetime in bitter unforgiveness. It's a choice. But it's in your best interest to realt consider setting yourself free if unforgiveness. It will be like chains breaking you out of bondage.❤ 🎉❤
I suspect I have autism, I remember getting testing as a kid in the early 90s and the Drs telling my Mother they suspected autism but My Mother would not accept it, she accepted the ADD diagnosis and wouldn’t hear another word about autism, No Daugher of mine is a “regard” was exactly what she said but I switched out one letter. As a result I never made it past 8th grade, I got my GED I couldn’t handle school. I was speaking before 1 and reading at 1-1/2 so my Mother insisted I was a genius, I think I just had an obsessive Dad that wanted me to read early. I have never been socially awkward in any way so maybe not but maybe I just manifested it differently as a girl. I was worried my Daughter would be autistic too and for her first 6 weeks I started into her eyes and face just waiting for her to smile make eye contact and coo. I was so nervous at the time I remember being extremely relieved that she was hitting all her mile stones. My Mom told me a crazy story that makes me think I may have regressed at some point too because she told me one day I was fine and smiling and the next day I was like a different kid and I kept banging my head on the floor repeatedly so it all kind of fits for me but that also gave me anxiety about my Daughter. I had this vision she would one day just regress like I did after developing normally. She never did and she is about to Graduate Highschool she has only one year left. I am extremely proud because it’s so much farther than I made it.
“we as their parents are their First teachers “ . Exactly … school teachers are secondary secondary to parents … you are so responsible - you are taking ownership and not passing blame onto the teacher who is secondary to a child’s education important yes ..but no where close to parent as first teachers … I love watching your interaction and how intelligent you are with understanding and clearly researching what you need to move this child forward ! This is exceptional work and documentation !
It's a long, exhausting, and informative process. I am so happy you got it done. My daughter is level three
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My son was diagnosed when he was 2 1/2 yrs old . When he was 5 we removed gluten and dairy and it made a huge difference for him . He was nonverbal, then after 2 weeks away from gluten and dairy he started talking , repeating things and making eye contact . Now he can answer questions and even tell me what he wants .
Hi...can youbplease tell me what exactly you got rid off and what you gave hjm the most to eat? And did you give him extea vitamins? Please Im asking because of my two year old daughter...thank you.
Thank you for educating viewers on autism. You have encouraged me and others in many ways. You are a true advocate for your daughter. Thank you for being that light.
Especially in little girls. The criteria was based on little boys with autism.
I have no personal close experience with autism and your channel fascinates me. You're all so loving and kind to each other. It mesmerizes me.
Hi new subbie. Glad you were finally able to get the diagnosis. Yes never rely on the school for anything. Get all your therapies privately and anything the school provides is just extra! My son was diagnosed at 2 with level 3. We did ABA, OT and speech. But I’d have to say ABA was by far what got him caught up to his typical peers in less than 2 years! He also learned more communication from the ABA verses speech therapy. I think it was because we were doing 20 plus hours of ABA verses only 2 hours of speech per week. I made sure communication was his #1 goal in ABA. Someone told me more hours now can mean he won’t need it later and that sure was the truth! We went all in and now he is in general education Kindergarten without any support needed in class. We do a social skills class once a week and keep him in a few sports where he can get lots of peer socialization. What also helped us was learning that Autisn IS medical and we must have our kids checked for any underlying medical conditions or deficiencies! Research biomedical interventions and get them a MAPs dr! These are the doctors that actually are educated in autism (many have children with ASD) and up to date on autism research. They know way more then mainstream pediatricians who barely had any education on autism in school. My pediatrician actually admitted to me that he didn’t get much training in autism at school. Anyhow, you need a Dr. that knows what test to run (they will need labs and blood drawn) and what deficencies to look for. Also, results need to be read with autism in mind so that looks a little different then a typical child’s results. For example my son had low cholesterol and iron that was affecting his behavior. We never would have checked that at 4 years old. He also had gut issues that were affecting his eating and sleep. Took care of those things and others and it all helped getting him to needing very little if any support. They tell you what natural supplements they need versus a mainstream doctor just trying to give meds. Maps doctors are not covered by insurance but worth looking into. Research the TACA organization as well because they have support and resources for autism families. And diet is VERY important. Diary is the enemy. Do as much research on that and gluten! Hope this helps!
I would also add that the levels can change over time. Level 2 does not really predict the future . It is possible that her support needs could be less as she ages . Hugs mama! I have an autistic 6 year old girl and three year old twin boys . I have found speech and OT to be so so so helpful ❤
She is a beautiful baby and sending your family prayers and strength. You are a beautiful family. Stay strong many support you.
We're waiting for my son to get an evaluation- it's pretty obvious that besides delay because of his severe epilepsy he is level three. He has incredibly limited interests, tip toe walking, can't transition most days without a meltdown, can only eat with a spoon and he just got that down this year...it's such a journey, and you're right. It's shouldn't be so hard to get help!! I love your channel ❤
I will make a suggestion, see if your area has Parents As Teachers, working with them can help get things pushed through further, I used to be a parent educator and I focused on families with special needs.
This brings me both joy and hope. I’m still fighting for my son, they’re making us go through the motions but my mama heart knows! I always knew! I feel stuck sometimes but families like yours makes me feel like there is hope and a point to my feelings and my fighting! Thank you 🥹
I applaud you strength and parenting skills. I know you do it because you love your family, I’m applauding because you do it so well. My kids are grown but yet I’m learning so much from you. Thank for sharing a leek into your life. 😊
Just commenting to say, You are wonderful parents and people, thanks to you and your hard work, your little one will have a much easier time in life. Thank you, from someone who didn't know my diagnosis til adulthood
You're such a fantastic, smart young lady. Your family inspire me. 🩷
I’m glad you finally got the official diagnosis! You’re exactly right, you can’t rely on the traditional medical system for help. We also have a child diagnosed as type 2 autism, we got her genetic testing to have a deeper understanding and found that she didn’t have a genetic mutation that caused her autism, but rather she was dealing with a gluten allergy as well as dairy allergies that was causing many of her symptoms. After we got the genetic testing back, we started to give her certain supplements that were recommended by our natural pathic doctor and we changed her diet significantly and we started to see changes in her behavior right away. This obviously doesn’t apply to everyone and is not meant to be medical advice, everyone’s diagnosis is different, but I would strongly recommend if you haven’t done so to get her genetic testing done because it will at least give you a more in-depth understanding of what exactly is causing her autism so that you can be empowered as a parent to make choices for her future care. Wishing you and your family the best!
FANTASTIC 🤗 As I watched the video, the word Spectrum kept standing out. It meant, those diagnosed don't have to stay at that level, many will walk right out it.... I didn't understand my thoughts, then... I read your comment. I know all will not, but many can. Thanks for sharing your experience that gives others hope. 💕
Grace and Peace to all caregivers. May they take care of themselves to take care of others.💐
@Katy1102 yes diet is so important. Gluten and dairy are so bad for everyone but especially kiddos on the spectrum. And unfortunately mainstream doctor don’t have the skill set in autism to help families. We have a functional medicine dr as well. They are a game changer!
@@kimonanatee2501 Yep, and with more and more children and adults being diagnosed, the care will be even less in depth. Functional medicine and diet adjustments can help tremendously with managing symptoms!
So grateful for Mikko's diagnosis!!! With such an amazing family, Mikko will go far & reach her full potential!!! God bless you all!💖🎊💖🎉
Message “do not wait for them”…progress is everything and the foundation of that starts within the home. Prayers for your progress…anything is possible…my nonverbal daughter is now 7 verbal in general ed without an aid and brilliant. Keep going 😊
I have to get the referral and then it takes 12 weeks for them to contact me to schedule the evaluation. This is through the state I’m assuming. I tried to obtain help with Early Steps here in Florida and I can’t get anyone to follow up. I get flustered and frustrated with people. I’ve been working with him directly. I have completed so many screening checks online as I just want to make sure I’m learning and paying attention to what I need to do so I’m not delaying the care he’ll need if any. Love your channel thanks for sharing with us. Thankful we’re in this era with sharing of content and experiences. If it was a decade ago I would be so lost.
Love the support and care you give mikko as a adhd autistic person i have level 2 and got diagnosed at 30 and as a kid i was bullyed and belittled by my mum for not been normal and still have a bad relationship with my parents as the use it to blame me for been difficult.. It lovely to see parents love their kid unconditionally 🥰 .. In the uk adlut over 25 do not get any help.. 😭 but i have my beat friend since i was nine and we both have asd adhd and both are girls and got dianosed in our 30 and we eachother family and support each.. Girls do not get diagnosed early as guys especially if parents do kot help.. Thank you for been wonderful humana
So proud of you both as parents. I'm a TA in a nursery school. I am learning to be more gentle with our students who seem to hear a different drum beat. I appreciate you both. Your family is a blessing.
Hello there, I’m an ex special education para educator. I’ve taught people on all levels of the spectrum. I love your content. I encourage to always keep ROUTINES. People with autism THRIVE when they know what’s happening next. Granted, life isn’t always predictable but for what you can control inside of your household, do that for little mama’s sake. Some people with autism can become so anxious when they don’t know what’s next- for example, knowing that a bath comes right after dinner every time. Instead of having dinner but leaving the house for a store run (unpredictability). Create those systems for her and then she’ll start to initiate things on her own because she knows what to do. ❤❤❤
Thank you for sharing this detailed update on Mikko's diagnosis outside of the military. ❤
I like that you said that parents are the child's first teacher. It is good when parents begin doing what they can to help the child in the years that precede admission to school.
As an SLP for autistic kids, this has been such a great channel to follow and recommend to parents! Thanks for being so clear and honest! I work for Easterseals Southern California in the Autism Services line and so all of our clients have to have an official diagnosis to receive services but that's a Kaiser protocol. Each practice is different. I will say that having OT simultaneously and having all service providers collab has been the most impactful for every kid I work with. Sensory integration with motor planning practice has led to leaps that never would have happened if they didn't occur at the same time as speech.
Watching you and your husband with Mikko brings tears to my heart ❤️. These days you really have to advocate for your children and yourself.. Just to watch Mikko's progression because of your love and patience.. May God continue to Bless your family.
Watching you with her has opened my eyes. Just know during the tuff times we are praying and in the happy times we are cheering. We want to see you succeed. We love you !!❤❤❤
Thank you for always sharing your knowledge with us and the love you have for your all your babies. As a former special educator what I know for sure is Mikko is in good hands.
God Bless and continue to bless your family❤❤❤
I enjoy watching your videos- my 3 yr old was diagnosed with the level 2 last month as well. I felt like this was our story to the T. You're right tho- it doesn't change how much you love your child. I'm glad your family finally has answers so you can move forward. Many blessings family ❤✊🏿
My son is 11 and he is in the middle of the autism spectrum and he can talk . Miko is a precious and beautiful Lil girl. She did the same things my buggy did when he was little and it brings a smile to my face . She is a precious gift.
I truly know your channel will help educate sooo many people. Please keep doing what you are doing. Stay blessed and stay strong. Your daughter is not only beautiful, but is smart. And blessed to have great loving parents ❤️
It warms my heart to see how hard you work with your daughter, getting her the best care possible!!!!
You guys are doing so great 🥰💕 I am so proud of the Gentle Life w. Mikko I didn't know Matthew was autistic as well but I love how you speak about their progress and diagnosis my daughter has Level 1 Mild-to-Moderate Autism 💛💙♥️💚 thank you
So glad that you guys finally got the information you needed to move forward with her needs. Look forward to seeing what she's learning and what she's accomplished over the time so that'll be exciting for me to watch so best of luck to you family I'll be continuing to watch absolutely love the channel it is so inspirational to all whether your children have been diagnosed with autism or not it's absolutely so you guys are doing a really good job with her so keep going keep doing what you doing
Again Thank you for sharing the experience, Keeping the Family in my thoughts and prayers. You are ALL AMAZING! Blessings of Abundance in all things of God! Mikko's BRIGHT LIGHT SHINES.
You’re such a great parent ! Guiding her and love her every step! Some kids don’t even have people who feed them 😓so thank you for all you do !!!!!! ❤
Blessings to you and your family. Stay strong. You guys are awesome parents 🌹🌹🌹
Thank you for sharing. This will help so many families. Early diagnosis, knowledge, and being an advocate for your child is the key. Prayer goes a long way🙏🏽.
I’ve had only 4 years experience working with TK/kinder autistic kids. I think you’re doing an AMAZING job! Aba therapy has really helped out a lot of our non verbal kids. But the signing is a great way to help! You are an amazing mama and I can really tell you’re an amazing advocate for your children! One of the little girls we had in our class last year looks just like your daughter and she was non verbal as well. By the end of the year we had her using almost full sentences. 💕 your daughter melts my heart! Keep doing what you’re doing and continue to be that voice for her! 😊
Within the last 4 years the post master purchased land here where I live and one thing he focused on was having a school for children with autism. Today it has been up and running yes certified for the last 3 years. That was one of the best blessings for our area ever. I have shown many parents how to recognize autism and give the resources I know of. Mikko, our Princess, is going to excel beyond what the doctor's say. I watch all your posts and pray everytime with you guys. To all that reads my comment or has a relative or friend with autism, love on them give them encouraging words they still process things just differently. Speak those things as though they were into them and tell them that they're overcomers. I speak a turn around for your family continuously when I pray for you all. You're some of the best parents I've seen. With my southern accent y'all got this because God has y'all.much love Mikko you my gurlllll💛💛💛💛
Early intervention is the best and you were your child advocate
My son was diagnosed on April 1, 2005. It's been a long journey with lots of lessons, but from day 1, I always researched and advocated for him and his needs. And will continue to until my last day. I wish you and all of my fellow Autism Warriors, lots of love and light. 💙💙💙
Hi I heard youn your husband say you never notice her as a baby I kept my grandson from the time he was born My grand baby use to shiver n get goose booms all ove his little body And almost seem like he was going to pass out My 25 year Daugther k n I kept telling my daughter In Law that something was wrong . She never looked in to his condition until he was 2 years old Our grandson was diagnosed she still never share his level . My grandson is so smart count’s n Knows all his colers and used certain words he’s going to pre school now and loves school . He also was potty train at 1 year old . He seem to progress so much since he goes to school and be around kids his age . I Love you and your husband for the support you have given to the world . I watch n am Learning a lot Form you And your Family . May God Bless your Family to n Always n Forevermore. Y’all are God Sent . Keep Speading the Love and the patience ist takes to have form day to day . To understand how much love and gratitude is needed to make this world a better place. Love from us All 🙏❤️❤️🤍🤍💯💯😇😇⭐️⭐️🙌🙌🍀🍀🙏
Omg! You and your husband are amazing parents. You are remarkable and I see you working with Mikko giving her a head start. Love to you both!!!
I love watching your progress its wonderful to watch you all grow together. In England my experience has been so disappointing. From little, I knew my son was struggling, my doctor treated me like a neurotic 1st time mum, wouldn't listen, wouldn't help didn't refer him until he was a lot older and had struggled with school and life generally. I just want to say that he is high functioning very clever, fantastic memory. Now in his 40s holds down a very good job working with autistic people.
We never got a diagnosis for our son because by the time they agreed he was having difficulties the goal posts changed and he wasnt eligible any more. We did see the specialists who did the tests before as it was changing and they both told us that my son definitely has asperger syndrome although they weren't allowed to give us a diagnosis officially. I can't tell you the difference this made to his mental wellbeing. He finally understood why he took so long to learn things but once he learns it he never forgets, why he has so many things that are habitual that make him feel more comfortable and present. Why his senses are so heightened and he feels overloaded sometimes. Why he misunderstands peoples intentions, he takes things very literally. Why he has photographic memory and can tell you the year and date for almost everything he is interested in, history, foirball ,music and geography. He still doesn't want people to know that he has aspersger syndrome because he fears that people will look at him differently.
I am so happy that you got this diagnosis early for your little girl and have all the resources available to you. I only wish that was the case for everyone because my sons school years were a misery for him.
I wish you all well for your future. X
My son got evaluated just before the Covid lockdowns started. So lots of the services he needed were put on hold. He is level 3 nonverbal. We do as much as we can at home while waiting for opening for the other services he need. Insurance makes things more difficult.
I'm sorry to heard that. Hopefully more things will become available for your child to thrive more.❤
Mikko is very lucky to have you as parents. Prayers to you and your family. I love your videos. I imagine they are a form of therapy for you all, as well as being a source of information to we who have, know, and love little ones with autism.
This information is so important!!! Thank you, we pray for patience & true blessed support for you & your family🙏🏾🐘🙏🏾
This little girl is so amazing and every time i see her i have a big smile on my face. There is so much information I want to send you but I have to be careful on YT. I pray that God heals her completely. You both are amazing parents!
You guys are phenomenal parents. The work you put into her growth and development is so inspiring. Thank you for sharing your journey with us!
I can only imagine how difficult this journey is for you and your family, but may I just say u are doing great and I'm so happy to learn from you
Thank you all for sharing this experience and how you all are dealing with it. This is a challenging situation and I pray God continue to b with you all and give you so much wisdom. Pray she will learn to speak more and more
Remember don’t forget about taking care of yourselves. I got so caught up trying to make sure my son was okay that I neglected myself. I remember saying if I’m not okay then who will be there for him. 20 years ago black kids were put into disable classes and missed diagnosed. I was a fighter and I made sure just like you guys to stay informed. You guys got this and she will continue to be perfect just like God intended. Stay blessed ❤
So grateful for your channel.
I’m an adult that is currently looking to be evaluated for autism, but the thought of the whole process of it is absolutely terrifying. My therapist said it would help with work accommodations for some of my challenges so I know I’ll have to do it eventually
Let me start off by saying that I love you guys! I am so inspired by your story and I really, really appreciate you for sharing your journey with the world. My daughter is 9 years old now. I got her ASD level 1 diagnosis about 5 years ago. She is also nonverbal due to having bilateral hearing loss. So she wears hearing aids and communicates using some sign language and gestures. I had a hard time processing her diagnosis because I didn’t have any support outside of my at the time teenage daughter. I had absolutely no idea what resources were available as she too needed ABA, speech, and occupational therapy. So hearing your story and the fact that you and your husband both share the responsibilities makes my heart smile. It’s a cruel world and these kids need all of the support they can get. Anyway, things are wonderful with my Madison. She’s in an amazing private school designed specifically for children with exceptional abilities. I’m learning sign language so that I can better communicate with her and teach her things. God bless all of you ❤❤❤
So much I'd like to say. I've been watching your vids for about a month or so. I too have a daughter on the spectrum. I urge you to have both Mikko and Matthew to be tested for Fragile X syndrome. Read about it if you don't know what it is and ask your pediatrician about the test. God sent you beautiful babies just the way they are meant to be. You and your husband are the exact perfect parents for them. God always knows what he's doing even when we can't figure out "why". You're the best advocate for your kids. If you don't like or agree with doctors and other professionals, move on until you find one that listens and works with you. Y'all are going to be just fine. Take it from someone that knows. The struggles are real and never ending but they get easier. My journey began in 1990 and it's been a heck of a ride! One I'd never change or wish away. You guys are truly amazing parents raising awesome children. 😊👍🏼💖
Yes my daughter is getting tested. I had to get her diagnosis from a neurologist and he recommended that test.
I have autism son level 3 thank you so much for everything you tell us about your history ❤may God bless you beautiful daughter daughter ❤
Congratulations 🎊 so happy for you!!! We're still waiting for my granddaughters official diagnosis with a specialist. I've known since she was 3 months old and been working with doctors, and with my experience with autistic children, my daughter and I have been doing it all.
Hi, how could you tell your grandbaby was autistic at 3 months old?
@@DetroitRed03 I’m curious also.
I think that when they are still a baby, they don’t really react to loud noises or pay attention to a number of things
I am autistic and was diagnosed at age 20 (i am 30 and in university) and i am speaking but occasionally do become non speaking if im stressed ,talking to strangers or just dont feel like talking. my family have always been my biggest cheerleaders. I am so glad to see that you are doing the greatest thing you can do for her, which is to accept her as who she is without trying to normalize, fix, change or cure her. Embracing neurodiversity and the infinity symbol and listening to and learning from your daughter and teaching her to embrace being autistic as theres nothing wrong with it its natural neurodiversity and makes her special and is her superpower and something to be celebrated and proud of is one of the most amazing and best things you can do. My family did that for me from day one and when i let them know about the puzzle piece and cure centered beliefs and desires they were horrified.
Its so good to see you being an awesome ally for your daughter. More parents should be this way and recognizing that all forms of communication are equally valid and hold equal weight is a beautiful thing as well. Your an amazing parent and doing a phenomenal job.
I do not support ABA but rather free stimming. I am verbal but when I am stressed or talking to strangers or even something just because it's fun or easier for me I will use AAC rather than speak verbally. with regards to being autistic (I don't "have" autism) I also know that even for all the bad I still would not give it up. I would suffer 100 years of meltdowns, overload, executive dysfunction and alll the bad for even just one day of being autistic and the autistic perspective. For the beautiful feel of a smooth cool pebble in my palm, for the contentment and comfort I feel when engaging with my special interests and the big warm bubble that opens in my chest. For the peace and perfect serenity and ovewhelmeing joy I feel when I discover a new stim and know it will be with me forever sitting perfectly within me for eternity. For the light rainbows that dance through the air and the pure beauty in every single museum and gallery. For the warmth and comfort and complete wonder I feel at the beauty of the inside of a coffee shop, the dim lights creating a feel of home while at the same time being perfectly different, the most nutty smell of a warm latte between my fingers the foam on my lips that tastes like the sweetest most perfect soft cloud. For the way that the white noise of a hard rain or the sound of ocean waves or feel of grass between my bare toes Is overwhelming in the best way possible. For the perfect joy music brings me and how each note seems to resonate within the deepest parts of my soul. For the comfort I feel when I am shopping for more stim toys and engaging in my special interests. For the strength and confidence I feel when talking about my experience and engaging in autism advocacy work. For the joy and prideI feel when I see the smile on another autistic person who I have helped another find a stim toy or a neurodiversity positive resource that has changed their life for the better. I would suffer all the bad a hundred times over because the good far outweighs it. I just want to help others see and appreciate that and stop trying to change it.
Also I stumbled accross this essay tonight. It's amazing to see a non speaking #ActuallyAutistic person who has self acceptance, neurodiversity acceptance and not a pile of internalized ableism. This made me very happy tonight.
researchautism.org/blog/i-have-nonverbal-autism-heres-what-i-want-you-to-know/
#acceptancenotcure #autismprincess
As an educational admin and parent, please know that a diagnosis does not guarantee services. The process is made so that children are not identified as disabled under the educational umbrella just because of a diagnosis. For example, there are children who have diagnoses that do not impact their ability to receive instruction, which means it does not require an IEP. The process is long and because doctors do not know education, standards, etc. Another example, if a child who has AD/HD is not impacted by their diagnosis to receive the instruction, they may not need and IEP (federal) or 504 plan (not special ed). I love your vids and with 2 year old twins who have OT and speech respectively, I know this is a hard time period. Keep advocating for your children and know that as you stated, home is the 1st school. Thank you for your insight and sharing of the fam!
I’m in the same process! My sun sees his psychologist on the 4th. I’m soo excited for you guys. You’re sucha good family & you’re blessed to have her ❤🎉
Mikko is beyond adorable! I'm a new subscriber as of today. My grandson is on the spectrum and I want to learn more about autism so I can help him as much as possible. He's at level 1. Thank you for sharing your experiences. God bless you and your beautiful family.
Please keep up the good work that you do she need you for the good parents you all are my best hope for your family. 👍👍👏👏👏😘😘😘
I really appreciate your channel so much. You showing the world your journey through autism and things you did or do. Its has be so helpful. I am right now in the process of trying to get my 2yr old nephew and daughter diagnosed or at least evaluated. ❤❤❤ Keep up the good work.
Keep up the great work! My little girl was also recently diagnosed as level 3. We will be having her ABA therapy assessment next month to develop a plan on what to work on for her on top of what we have already been doing to help her.
Admiration, for the level of determination, dedication and fight from your family for your children. ❤
I love you said don’t wait on them ! Night night mikko
Well said Mama Bear...much ❤ to you and your beautiful family. Thank you for sharing your reality, your family. Love and Blessings, Gentle 1
I so appreciate you Mama. Your little girl Miko is in kind, warm, and caring hands. 😢
I agree with you. All parents with children with autism specifically. You must work with your child at home do not depend on the school system to help cuz most of the time they hinder your kids from blossoming into the person they should be and not what the school system want them to be. What works for one child does not mean that will work with your child . They think it does!
My son is 18 now. I didn't returned my son back to school after covid.. homeschool is best for him he did great online schooling. What is the problem with the educational system their therapies are not good. They just lumped the kids all together into one group and that's supposed to help your child in an individual way. It does not. You must seek outside help with therapies and sign language is the best thing for your non-verbal children. I was doing that when my son was diagnosed and he has retained the signs that he needs to let me know what his needs and wants makes things much easier for him and I. Peace, Hope and Blessing to all of you Autism Warrior Parents. 💙💙💙
You’re exactly right, and with more and more children being diagnosed with autism and other disabilities, the classrooms are over crowded. There is no way these children will get the attention they deserve.
I guess I've lucked out. My 13yo had been in gen ed but assisted by the sp-ed dept. since kinder , but she was starting to lose ground. Her peers were advancing socially and academically, but she got to about 1st to 2nd grade level and stayed there. Since she had an IEP, they couldn't fail her, so they were basically just overlooking her and passing her along. It was extremely hard for me to teach her because, if I didn't say or do something EXACTLY like the teacher, she would get flustered and shut down. When COVID hit and she was doing online classes, I noticed she would just stare at the screen. When I asked what the teacher was discussing or what subject they were working on, she'd say, "I don't know." She would even log on to do z lesson and be answering questions without knowing what subject it was. I asked and was told about FLS (functioning life skills) classes. I moved her to sp-ed classes full time, and she has blossomed. She used to sit in class and try to disappear, but now, she's reading, and even out loud, writing sentences by herself and even talking in front of the class. Her teacher says she's one of the highest performing in the class. She even has friends now that she talks to on the phone and goes on play dates. Before, most of the kids started noticing the difference in her behavior and would call her annoying and not socialize with her. She only had 2 sweet girls who she knew since kinder, who would stick up for her and include her. Now, other students look to her for advice.
She is a Beautiful little girl and I am sorry y'all had to go through such an extensive wait to find out where she was on the level spectrum may GOD be with you as you continue on this journey Be Blessed
You guys are such great family and parents that we see clearly how she has progressed overtime you’re doing a marvelous job and you’re working with a girl that’s very intelligent she knows what time it is God bless you
I’m sure you guys have hear of this, but the PEC (picture exchange communication) system is a great resource. The child I work with does both sign language and pecs, and he can look through the picture cards and almost make a complete sentence with them. That way he can say exactly what he wants to play or eat etc. ❤
I'm a new jack. Learning and growing through your guidance.
Thank you so much for all your information! We arewaiting right now for my sons assessment. We are on waiting lists now and even though his developmental coordinator explained to me the process, hearing from a parent's perspective of how everything is going to go is really helpful.
Please be careful as well. My grandson has autism too. They can also have seizures too. He had his first one at 9 years old. Prayers for your family and Mikko
Blessings to you and your family!!!😇🙏🏾🙏🏾❤️❤️
Mikko will be fine keep encouraging her . your are amazing parents Much ❤ always.
I do appreciate you letting us into your home and sharing you may not think so but this information will help people to see that she is a wonderful loving little girl and with parents like you two she will turn out to be a wonderful young lady this may sound silly but different is beautiful look around God loves it for our plants to the birds that fly in the heavens. I wish God's blessings on you and your family
My husband is in Sped. Regarding the school system: It’s simply that they are super backed up. That’s why it takes forever. Frequently they have teachers be the case managers, so basically they are in front of students all day and then have to squeeze in communication, evaluations and all of the paperwork on top of their other full time duties. It’s obscene. And the reason that the school district has to do evaluations is to check other areas that the doctor may not have in the context of the educational environment from all the different parties involved. I feel you but when you see behind the curtains you understand more what’s going on.
A school cannot ignore a medical diagnosis. In fact, for my son's learning disabilities from his chemotherapy and cranial radiation were ignored by the school UNTIL we got nueropsych testing and diagnostic testing
done. Always cover all your bases. You are awesome Mom. Keep that shit up.
🌹 Mikko's Mom
May God bless you and your family.
Thank you for gently teaching me about this condition
As a retired educator, special education and the mother of a child with special needs I am so proud of you and your hubby. Sharing Mikko’s journey will help so many people. Good bless you both.
I’m so Happy you’ve finally got a diagnosis and I know the struggle/frustration. My son didn’t get a diagnosis until he was 6 years old because of C-19 and he’s also nonverbal🙏🏾💙
Continue being great parents!❤❤❤
Love you. You're doing a great job with her.
Daddy and Momma you inspire us and we see and appreciate you for all you share here. Yes the medical profession has changed and not client focused frfr
Stay encouraged & always remember for life in life Psalm 91. Your family is beautiful
I've learned that often times the issues of the heart that cannot be changed in life ....will change you. I see Daddy and Momma making that change which is for the better.
❤❤❤❤❤
You and your husband are doing a wonderful job with your children. Keep up the great job
You have to push and advocate. Especially with the school system. You have to keep on them and be relentless. I know it isn’t the same but I was met with such opposition when trying to get my son diagnosed (he has Dyslexia and suffered with speech). Certain education professionals kept saying my son had ADHD but I knew that wasn’t the case. I finally got him the intervention he needed before he entered first grade. Keep up the excellent work you are doing with and for your beautiful daughter and family.
you are a beautiful and kind mom with mikko....she is blessed
I commented on one of your til tok vids, but I've been raising my 3yo autistic grandson. Your videos help bc your daughter n my Ej are so similar. It's hard for me to reach out so finding ur channel helps✊
Wonderful you got the info to better help your children. ❤