Thanks for this. Most frustrating thing is having those days where you really feel like you’re on the up and then waking up the next day feeling so bad. It’s hard to find the patience. I’ve learnt not to tell people I’m feeling better on the good days because they are so often followed by days of feeling crap! We will come out the other end, even if it feels like it’s a long way away.
Yep its VERY disheartening.......sometimes it happens on the same day.....like today, this morning I felt full of energy was in a really good mood because of it........and now at 4pm I just wanna back into bed and go back to sleep for another 12 hours. Best wishes to you.
This is actually one of the most useful pieces of C19 content I’ve stumbled upon. There’s so much noise out there and to hear a clear and honest post infection/survival story is genuinely helpful. Hope you feel better soon. ✌️
Lovely video content! Apologies for butting in, I would appreciate your opinion. Have you ever tried - Dinanlinson Rebooting Health Approach (Have a quick look on google cant remember the place now)? It is an awesome exclusive product for getting rid of chronic fatigue syndrome without the headache. Ive heard some interesting things about it and my friend Sam at last got excellent results with it.
This brought tears to my eyes. Thank you so so much for doing this, I am on week 5 and strongly feel ALL of these. People have tried to scare me telling me I must have caught it again back to back but my symptoms are not as bad as before but man.. thank you again for making this it makes me feel SO much more at peace!! Did you document your covid journey I’d love to read about it!
Elizabeth Garibay Hey Elizabeth, I’m so sorry to hear you’re struggling too. Don’t worry - you haven’t re-caught the virus, there’s absolutely no evidence this is possible. What certainly is possible is that the after effects can be really severe - and in some cases more so than the original incidence of the virus itself. I haven’t documented my covid journey but I might do so in a follow up video I’ll do in another couple of weeks once there’s a bit more recognition out there and can report back on it. Good luck with your recovery.
Same as you 5 weeks dont let the stress get to you it gave me lietrally full body pains. I feel mainly chill and sweaty feet and pain and migrines. Much love. I pray you be better soon.
Thank you, I'm on week 7 and there are days where you really do feel like you're going crazy. Nice to know it's not in my head and I'm not alone. Currently living life as an 80 year old with lots of naps!
The feeling of going crazy is also due to the B vitamin deficiency most of us have and that is worsened by covid (B1, B3 oh and zinc). My memory is not working at all.
Thanks for making this. I'm currently at day 44 and am totally experiencing a setback after one week of feeling almost recovered. I over exerted myself with chores / errands, and am now completely wiped out. Muscle aches, brain fog, you name it. Hope you get better soon, cheers!
@@GeorgiaLinders Glad it helped. There is so little visibility on post-viral fatigue since this this virus is so new. Hopefully this changes with time, sooner rather than later. I hope you get well soon!
Thanks for this. I was one of those that had an extremely mild case. I recovered in just a few days and thought “well that’s not bad.” Felt great for about a week and now I’m experiencing what you describe. One thing I can add is on those nights I do go to sleep quickly, I don’t stay asleep very long and have actually awakened to what I’d describe as a night terror or panic attack. The aftermath has been much worse and much longer than the actual virus. I suppose this too will pass. Glad to see I’m not alone on the feeling good, feeling bad rollercoaster.
Thank you - this video explained exactly how I feel in my 9 week post recovery period. I don’t talk about it much because no one really gets it. I was a healthy person who loved to hike and be outdoors and did brisk walks on treadmill every day and now a walk around the neighborhood tires me out. I have some hope that I can recover but until then just using my inhaler and trying to keep a steady pace and not overdo it. I also pray and think positively about full recovery.
Yes - take it easy and recover. Share the articles I quote in my ‘growing recognition’ film with people who don’t believe you! (Links in the description)
This has been incredibly useful Thank-you. Im experiencing the same symptoms as you, headaches (dizziness) , fatigue, body aches, also some low level raised temperature and sporadic tightness in chest. 6 weeks after initial virus. I hope you feel better soon.:)
Omg thank you for posting this video, I'm actually in tears here because I thought I was going mad. My family is losing their patience with me because I frequently have to lie down and I couldn't explain why I feel so tired all the time. That point where you describe the wooziness not quite being the right description for it hit so hard, it's more of a fuzzy feeling for me. I have been experiencing everything you described there with the addition of some GI problems and rashes that left my skin so scaly and which have only just returned to normal. I really appreciate you sharing this, at week 15 I was beginning to wonder if I was ever going to fully recover and this has given me a light at the end of the tunnel.
Hi Sarah, so sorry to hear about how much you’re struggling. GI issues and skin rashes aren’t unusual either. Share these films with your family if it’ll help them understand what you’re going through. It’s very, very real!
Dear Sarah, your description of scaly skin really resonated with me! I had itchy, scaly wrists (tops of) after the first bout back in March but I haven't included it in my symptoms after I was scoffed at by the pharmacist in my local Tescos! I also had a rash from lumbar to head and a superficial burn on the back of my hand that wouldn't heel. At the time I didn't realise I had C19 because my fever wasn't very high. Thank goodness for Tim Spector putting anosmia on the govt symptom list!!
Thank you for making these kind of videos. I had symptoms three months ago, still having issues when anxiety and fatigue attacks, still feeling short of breath mostly at nights, lost my sense of smell completely and I feel I recovered it like 80%, I totally felt like I was crazy. Thank you so much, these videos shows that we are not alone in this.
I thought I was going mad , my mental health is shocking and panic attacks are bad No energy and sleeping often This vid and all the comments has made me feel better God bless you all ✝️
This is exactly what I'm going through and now I don't blame myself as much. I lost my jobs because I'm too weak to return to them, I've been not sleeping or eating enough, and just want to sit on my couch all day. Last night I was feeling suicidal. This virus is so debilitating and the post viral fatigue is beyond depressing. Thanks for the video!
Steve, alot of people have lost jobs, made redundant, furloughed. Your not in this on your own💚. Your health must come first and your body right now is saying REST. Take this time to focus on your intrests, set goals, even reading can be a way to escape and relax. I can assure you the symptoms will subside and you will be better than before. God bless💕
Appreciate video content! Excuse me for the intrusion, I would appreciate your thoughts. Have you researched - Dinanlinson Rebooting Health Approach (do a search on google)? It is a smashing one off product for getting rid of chronic fatigue syndrome without the normal expense. Ive heard some great things about it and my old buddy Taylor got excellent success with it.
Came across your piece today ... just want to say Thank You. I am struggling with set backs with chronic viral fatigue. I have been struggling mentally as do frustrated with slow recovery. This is week 7. Your clip has given me some excellent facts and reassured me. Thanks
I'm recovering from covid (mild case). I feel like I'm going crazy, so tired, sore, can't eat, constant fevers, panic attack, and emotional. When will this end?
Hold in there stacey, I had exactly what you had back in March. It gets better slowly, I'm about 90% better. The panick attacks etc will begin to taper off and the fevers etc. I felt like I was going nuts with it as well.
@@rismoody3906 I'm not 100n% but am getting there. I did have a relapse lately. But generally resting when needed and doing pretty mild exercise, like 5 minute walks, or what ever you can handle (Just dont over do it, stay within a good band.of energy) I started up a low histamine diet recently and think that may have helped as it acts as an anti inflammatory. I've been taking vit b, c and B12, niacin, magnesium, quercitin, zinc, selenium. I've had very little sugar in my diet as well as no caffeine. I think I'm probably more like 70% better but its just a very slow process, patience is needed.
Thank you so much for drawing attention to this. I have been comparing notes with others in the Coronavirus Survivors Group and Coronavirus Recovery Stories groups on Facebook where there loads of us with these lingering issues. It has really helped to know I am not alone. I will post your video to them right away!
Great information shared & possible remedies discussed. Thanks ❤️ 1) Listen to your body. Rest when u are tired 2) Maintain healthy diet , 3 meals + 2 snacks in-between. 3) Maintain light to moderate excercise. 4) Vitamins. 5) Bring stress levels down.
Thanks you so much for this video I'm in New York recovered three weeks now but I still feel fatigue and unwell with muscle pain, it's good to know I'm not alone , please give an update.
Try breathing exercises and to not stress with any of the unwell feelings I'm in the same boat. You overcome this and oneday you be even more stronger for what we been through
I had chronic fatigue syndrome , dx in 1995, after i had a bad flu, presentation was about 2 week after recovery from flu, my first symptoms were a bounding pulse in upper abdomen, and short of breath, i was bed bound for 7 months, two years later i was able to almost return to normal, but i rested when i felt the fatigue and did the things i use to when i was rested, the interval between fatigue and feeling better were weeks in the beginning then as time went on the time shortened between symptoms, but fatigue still plague me, ups and downs, but much better now! Just a note, i was tested for every type of virus, all negative, muscle weakness was a major problem, could not even brush my teeth or shower, its really unbelievable! But don't give up
Can I say a massive thank you for putting these videos together. They have literally kept me sane. I had covid in March and have the exact 6 symptoms you've said. Please take care of yourself and thanks again for your work on these videos 👍
Thanks for this. I am into my 6th week of COVID and am struggling because I thought I was becoming a hypochondriac, so many symptoms! I am glad it is not just in my head. This has reassured me.
I am a RN with nearly 50 years of active clinical practice. I recognized the symptoms when they first were published and felt that this new wave of the same long term condition I have been dealing with since the early 1990's and it has had many different names. The current best name is ME/CHF or myalgicencephlomyelitis (muscle-brain inflammation) /chronic fatigue syndrome. It has also been associated as the Gulf War Syndrome, Yuppie Flu, Fibromyalgia and others. There is poor understanding about what afflicted people are experiencing and the term fatigue is misleading. It is not just tiredness nor is it really depression as the person afflicted wants and has desire to function, know what they want to do but are totally unable. It may be best described as a drained battery. When there is some charge left the TV remote may work but sluggish and with stops. When the battery is fully drained, no matter how many buttons are pushed, nothing is going to happen. The worst recommendation is to exercise more. This will cause further exhaustion, trouble using your muscles and relapse to being unable to get out of bed. CBT (Cognitive Behavioral therapy) helped me with coping with over 30 years of living with this condition. But this is a real medical condition and not one in your head, nor is it a psychiatric condition. It is multi-systemed and recent research is showing showing genetic variations, which when multiple are triggered results in the person being afflicted. It affects cognition, daily functioning, and ability to perform daily tasks. Best recommendation is paced activity, new uses of approved medications for off label use such as low dose naltrexone, famitodine, magnesium glycinate, and other supplements are helpful in getting better quality of life. If the condition lasts more than 6-8 months, it becomes chronic and life long. I would recommend looking into recent research starting with Dr. Bateman from Utah who has been researching and fighting this battle for 30 years. The CDC and NIH have, until recently refused to fund any research into ME/CFS and associated syndromes. It has only been since COVID-19 that they have given any assist. Many physicians do not have much knowledge about the management of this condition. The best help that I received was through Functional Medicine approach and doing a lot of my own research which I could bring to my PCP, who is great in listening and working with me. You will still find bias and be told that you are a maligner, lazy, depressed, just get up, exercise more and get your act together. I even had supervisors work had to remove me from my position once they found out that I had this condition, even though I had glowing performance reviews prior to them finding out. You may run into this. Learn how to pace, don't drain your energy but still be active. You will get good days. Don't try to do everything in that 1 day. It will set you back days even weeks. Do eat whole foods and avoid junk /processed foods. Try to keep on regular daily schedule. Be kind to yourself. Don't plan excessively for things to accomplish. Give yourself credit for every accomplishment , even the little things such as getting a shower, making lunch, being able to spend time with friends, plant a flower, whatever is meaningful to you.
One thing i have noticed that everyone wants to be better yesterday lol, me included! but honestly your bodies have taken a unusual nasty hit and its just working on trying to fix itself. It is actually normal to get PVFS after a flu. Some take longer to heal than others! Unfortnatly we have never been exposed to this virus before and ALOT of doctors do not know how to diagnose the post symptoms most of us have had or having which can cause anxiety and worry which is understandable. Its so great that that video has opened up a forum for ppl to discuss it. With that said, please see it as you are NOT ALONE IN HOW YOU ARE FEELING. Try to not worry as much and take this time to sit down and rest! As someone who never sits down lol i know the struggle but it needs to be done! Drink lots of warm fluids especially water for the chest if your still tight chested. Epsom or magnesium salt baths are good to resore the body. CBD muscle Balm was AMAZING in my recovery for chest pains and discomfort and Hot Steam inhalations every morning for shortness of breath! Good diet lots of GREENS and minerals to help aid the body and keeping energy fixed on things that uplift you. I pray that everyone will be healed with no delay IJN! And that you will all come over this on the otherside with even better health than before!❤
@@tessgirl383 Hey @TessGirl 💕, i went out for my FIRST 40 min walk last Thursday doll and i had covid 5-6 weeks ago. I felt very fatigue before going from doing absolutly nothing all day than lay down in bed, but I felt much better when i came back home. I then ran a hot bath put some bath salts in and relaxed for about a hour or 2. My doctor advised me to go walking just after 14 days of having it to ease any feelings of anxiety and get oxygen to my lungs but i wasnt ready and everyone kept telling me i was paranoid including my doctor and said that anxiety had probably made the symptoms worse but i knew it was a load of rubbish as I KNOW MY BODY. The only time i left my house before Thursday was to drive and get my shopping click and collect because i didnt have energy to walk to the end of my road let alone walk round a supermarket. Its all about baby steps doll. Yesterday, i took my son to our communal garden so he could get to ride his bike for 40 mins and i just got a bit of fresh air & vit d which made me feel again alot better. I also talked at a distance with my neighbour whos husband was still sick from covid he got 8 WEEKS AGO and was still feeling horrid despite having his follow up tests show that it has now left his body, he is still short of breath and having chest pains and his xrays showed he had no damage at all to his lungs. Im a single mother and i was trying to balance getting better from the virus, be a mother, try and become a school teacher overnight, balance my job WFH. I had to take a major step back from all of that because i couldnt balance at all and try to get better. All i could just about manage was making breakfast and that alone would wipe me out FULLY for the entire day. Now i have a lot more energy. I can do chores round the house, do some work on the laptop without getting really bad brain fog and im not feeling the horrible crappy feeling in the day. My muscle aches have subside majorly and i can now drift off to sleep in the night better without the nasty malaise and muscle aches. Sometimes the muscle aches and fatigue strike me at some point in the day but i just sit down and read a book or watch a disney film with my son till it passes. This virus thinks it can linger you just need to tell it whos boss! Drink loads of water stay on top of all your vitamins and herbal teas its wont happen overnight but it does 100% help! You know your body, it will tell you what it can do and right now its fighting and repairing💚
Hello thank You for your experience. I felt very alone and thought I am the only one going through this. I had covid 8 weeks ago and still can’t sleep right feeling fatigued an have a short breath. Coughing. Symptoms come and go. One day I’m all right the other day I can’t get out of bed or couch. Now I’m 34 years. I cry a lot because I have a 11 month old son am I’m scared that I won’t make it. Hope this all ends soon. Wish you all the best sorry for my bad English. Greetings from Germany
Thank you so much for making this video. I am currently in my 6 week of Covid recovery and everything you said is spot on. It’s exactly what I’m going through. Other people don’t understand what we are going through. My parents had Covid also but they don’t seem to be having nearly the post fatigue that I’m having so they often say I just need to stop thinking about it. Like i can control it from my thoughts; so frustrating. I have one day where I feel so so and the next I can get out of bed. I’m a truck driver and I can’t even drive right now. It’s just not safe.
If you have ongoing symptoms after covid19 and are concerned about having post viral fatigue/ME/CFS please do not push yourself to exercise! Rest rest rest! ME/CFS can have a viral trigger, and it has no cure or treatment. Those of us with severe case are housebound or bedbound and have been for years. We have literally been quarantined for years and in some cases decades. Pushing ourselves to exercise has caused some of us to get significantly more ill, and never return to pre exercise condition. Please take care of yourself now. If you do you will have a chance to recover-there’s no certainty that you will eventually over time recover as stated in this video. However your best opportunity to recover is through what is sometimes called ‘aggressive rest therapy’ not exercise.
@@MECFSAwareness I've had Chronic Fatigue Syndrome before and I feel like getting a modicum of exercise is important. Even my elderly Grandparents who were close to 95 improved their health by getting up for a short walk, to get the blood flowing and strengthen their muscles. You loose muscle mass by not getting a little exercise, young or old. That's one of the reasons previously hospitalized elderly Covid19 patients have to go to nursing homes/ rehab centers, so they can regain mobility and it is very hard work.
I'm so scared of this. I've already fallen dreadfully out of shape and really need to start moving around. I live in a town of mountaineering athletes, it's going to be very upsetting if I can't participate.
1 Year after this was posted and I am sad to see that this is not spoken about more. I got covid 2 months ago and I not suffer from post-viral fatigue. The recovery from covid has not been consistent. Some days I am good and some days i’m very bad, sleeping nearly all day and all night long and still feeling like I can’t gather the energy to get up. No one in my life understands. They want me to get up and push myself to be more active thinking i’m giving in to being lazy but when i push myself it only results in more fatigue that lasts longer. I’ve done blood work and it doesn’t seem like i’m deficient in anything. I wish I knew what supplements to try out
Got sick the last week of march, still in recovery now after 5 months. Like climbing a slippery hill. I am slowly getting there, but with minor and major setbacks. Mainly my lungs that keep protesting, aches, headaches, rashes, tiredness and a random surprise every so week like dizzyness, joint pains, sleeping trouble. Working at 80% now, doing much yoga en rebuilding my strength, also acupuncture and herbal medicine to support my lungs and immune system. Glad I am not alone in this ❤🙏 and thanks for these vlogs!
I'm recovering from covid. It was scary and nothing i had ever felt. It was nice to know that inability to focus and fatigue was normal. Im the primary money maker and support system and the fact that i cant do that is very scary. Causing huge stress:/
Thank you so much for sharing this incredibly helpful post. Had presumed covid mid March. It was fairly mild but developed bad sinusitis for weeks and terrible back pain for months. After a lot of chiropractor sessions it is better but still present. As I recover and become more active I'm noticing a lot of fatigue. It has been a very tough four months of pain every day. Trying to stay positive and focus on the improvements. Also important to accept what is happening and take heart from the fact that lots of people are in the same boat.
i am about 50 plus days into when i think i had COVID-19 (Bad chest pains for 2 weeks, extreme fatigue, headaches and slight cough). For about a month since the chest pain has gradually reduced (although still present with difficulty breathing). On top i have constant sore throats and headaches in the front of my head and eyes. I have been tested for COVD again about a week ago, which was negative and all bloods came back fine. Finding this video has really resonated with me. I am 34 and really struggling to cope. I am normally fit and active but one workout with leave me dead for days following. Constantly not knowing how you are going to feel in an hour is depressing . The worst part is waking up feeling like it every day. I feel I am making my family upset and anxious I hope this gradually goes over the next week weeks as i am normally fit and active. Thank you for the video!
I'm in the same boat. Easy then said then done..but with every pain or sensation just relax. Try breathing cycle 4 seconds breath in hold.for 4 then out for 4. Reaper six times. Today watch movie. Have a walk. Dont think of the feelings when they hit etc or are present I'm not a dr. But the mind has so much power. What I'm trying todo now it's hard but life is and after you get better and realsie you're ok you be stronger person for you.
Yes! I’m usually fit and active too. What’s scaring me is that any time I try to get consistent walks in-say 20 minutes per day-I have tingling and weakness in my limbs. I would take just plain fatigue over that any day, because I don’t know if it will get better. Even if I rest for several days on a row, i am still getting the tingling and weakness after a short walk.
@@japanesefinch9021 Yeah, I had a mild case with mainly fatigue overall, and loss of taste and smell. It took me roughtly 4 months to really feel better.
Very useful video to someone who continues to cycle through symptoms 6 weeks after symptoms began and has been continually perplexed at why they are lingering. Thanks!
Hi yes I start week 9 tomorrow. If you need to look on facebook for support groups for long term sufferers. They helped a lot with my general sanity to speak with others in the same boat!
Thanks for sharing your experience, and sorry to hear you've been hit so hard. I came across this as I am just heading into Month Three of being sick since contracting COVID-19 and have also been experiencing a LOT of fatigue. . It would be great to hear more about the difference between PVF/PVFS and ME/CFS as my (non-expert) understanding is that the former can lead to the latter but it doesn't always? . Hearing from people who have developed long-term fatigue issues after getting sick, a lot of them have cautioned to take it easy and be careful not to over-exert yourself in the early stages. Many have said they feel that trying to push through made things worse for them in the long run. This resonates with your advice on listening to your body. I am now trying to cut back on work and study and get as much rest as I can. . Take care and all the best with your recovery!
Really helpful video. Had suspected Covid19 since mid March, like others symptoms come and go. For me, understanding my body & realising it’s not just me helps. Beyond that, accept it for now & try to celebrate what I can do, and try not to stress about what I can’t is key. This will pass.
I’ve found fasts, (every other day and longer, up to 10 days) are what is helping me considerably in reducing what seemed to be systemic inflammation resulting in all the symptoms you outline here. I’m also taking abundant antioxidants and limiting my diet to the most simple high quality nutritional intake when I do eat, grass fed beef and local eggs, unadulterated fats.
Thank you so much for this. I was treated for Covid - 19 and hospitalised for 10 days. Following discharge I experienced and am still experiencing many of the points raised. I thought I was going mad! Listening to this has helped me to know that I’m not.
I'm still like this, what you describe nearly 2 years later! It has been so brutal! I am 50 years old, ibuprofen helps. I have a hx of autoimmune disorders of endometriosis and fibromyalgia, arthritis. It is much worse now, in the fibro dept. I had a hysterectomy a long time ago. But, the body aches, hyperinflammatory condition, fatigue, anxiety, disrupted sleep, and brain fog has peristed. I've become disconnected and indifferent to many things. Food intolerance has been awful. I think we will find that there are many many who suffer these symptoms every day out there, that were primarily healthy before. I am a critical care nurse more than 25 years. I am starting the research into it now with my doctor. I am so sorry for all out there like this!
Thank you for posting this. It helped me feel a lot less anxious. I’ve been covid free for about 4 weeks now but I still get random bouts of fatigue, brain fog, and headaches. When it hits me, it hits me hard. I have to lay down for about 20-30 minutes before I feel normal again. The best I can do is wait it out and just try to stay healthy. Thanks and God bless.
Hi Louis - this is exactly how the fatigue hits me too. I’ve got good at spotting the precursors now - brain starts to fail to process information, frontal headache - then the fatigue hits.
Thanks so much for this video...I have found it very reassuring! I’m watching it as I lie resting on a “ bad” day, following coming down with Covid-19 just under 11 weeks ago. Compared to many others, my symptoms were relatively mild, although I did spend a couple of weeks in bed feeling pretty poorly. After approximately 3 or 4 weeks the fatigue really hit home and now I can have a number of “ good” days, followed by ones where I feel as though I’ve hit a brick wall with no energy at all. I’m very into my fitness and listening to your advice I realise I have definitely pushed myself too hard on the days when I’m feeling more energetic. I will heed what you have said and learn to take things more easily for as long as it takes! Many thanks.
Thanks for watching Sylvia. Yes - the temptation to suddenly burst back into action is strong on days that you feel better, but you do have to be really careful! It’s just not worth knocking yourself out again for days. Best of luck in your recovery, and I hope it’s speedy.
This really helped. Thank you. My husband and I fell ill beginning of March as well, not too bad, and the chest pain is still there, the utter exhaustion, the memory loss and confusion and so much more. I spent a long time beating myself up about not getting better. Knowing it is a real thing at least takes that self flagellation away.
Hi Everyone, new here , 53, thankfully no underlying health problems 🙏🏻 Further to having read some posts on here I thought I’d share my experiences of what I think could be C19 and now Post Viral Fatigue, ( PVF ) Timeline being March 8th, the day friends visited with long term flu/cold like symptoms, to today, a total of 62 Days. First started with a sore sore throat, hoarseness, swollen glands in neck slight difficulty with breathing for a day or two and ear pain. Throughout the time to present day I’ve had very few good days. Mostly suffering with a mixture of symptoms that seem to come and go. 1. Fatigue. 2. Runny nose. 3. Shivers. 4. Headaches. 5. Palpations. 6. Diarrhoea. 7. Sensitivity to bright light. 8. Face feeling like it burning, knees aching and feeling hot, as well as hands ( mainly bed time ) 9. Insomnia. Last Sunday I was on the mend through to Wednesday. Thursday felt shattered all day and slept on and off throughout. Friday and Saturday suffered some if not most of the symptoms above. Mainly 1, 6, and 3. I’ve been talking to my GP since week 3, week 5 had a course of antibiotics a shot in the dark I know. I’d be interested in other people’s experiences regarding possibly having felt the same. My Friends visited Tenerife in September,October and December. Their Grandson brought it back with him having contracted it whilst on holiday. Irony I know, my friends are partial to Chinese food and visited the same restaurant many times on each visit. One visit the owners had just returned from a family gathering in China. Stay safe everyone this is real, I’ve lost my Ex Brother in Law to C19 and my Uncle if fighting for his life in hospital as I write. Jason 🙏🏻🇬🇧✌️NHS
Thank you so much for this video. I'm approaching day 90 since contracting covid and was experiencing what you are describing. Unfortunately I have also relapsed last week and also have severe chest pain, shortness of breath etc again. Your insights into length of recovery time and saying that we will recover fully has given me hope at a very dark time.
Aside from muscle weakness and all of the symptoms you mentioned - I also have internal vibrations and shakiness. It’s so scary and I’m going through a lot of anxiety on top of what the anxiety I already had. I am taking zinc vit d vitamin c and selenium. I am reading medical medium book again. I have decided to treat this as if the virus is still floating about. There are studies to say it’s triggered EBV. So I am on the EBV protocol. I do celery juice daily as well as the vitamins. I’m almost 9 months in. My electrolytes were low after 3 weeks of very bad c19. So I also add extra sea salt and take an electrolyte tablet in water. It’s been life changing.
Had covid in March 2020...almost a year ago but up until now the waves of severe fatigue ( and interruptions in taste and smell) still occur ....thanks for shedding some light on this
I'm day 80. I'm 59, no preexisting conditions, no medications and very healthy before Feb 20 th. Symptoms, from Head to Toe: Whole body: Daily- 24/7 Fever that is over 99.9 but under 100.6 upon waking, rising to 101’s by noon and spiking in the 102-103.8 range by early evening. Some days, higher all day, some days timing is different. Lowest in 77 days was 99.9, highest 104.7 Daily- Body aches, sore stiff joints, muscle weakness, wobbly legs, Daily- 24/7 pure, complete, exhaustion Daily- Skin feeling sunburnt independent of fever, red and hot to the touch, waves requiring ice packs and wet towels Many Days-Chills, shivers, goosebumps, Sensitive skin, to touch and clothing Brain: Fluctuates but mostly Daily- Forgetting simple words, midsentence, events, time gets Foggy, unable to concentrate, track a show, book or conversation, malaise Only a half dozen times or so- Noise sensory overload Couple times a week- Headache that comes and goes Head pressure /no headache comes and goes (once, migraine) Overall- Sleep pattern changes, insomnia (2-4 hrs) compared to pre-illness (6.5-8.5hrs) Ears, Eyes, Nose, Throat: Daily- 24/7- High frequency buzzing in ears with crazy flares so loud I can’t hear people talking Occasional- Pounding in ears Often but not daily- Sore eyes like I’ve overworked them or leftover from migraine Sporadic- Clear runny nose or sinus pressure with zero stuffiness. After day 60, sporadic - Feeling like tongue won't reach up to swallow in far back coated some days Sporadic - Loss of smell and taste of things tasting off/wrong Sporadic - Phantom smells, smoke, wet horse, fried food grease like at a boardwalk carnival Occasionally- Several days of clenched jaw with no psychological basis (stress or anxiety) Chest, Lungs: Sporatic - daily raised heart rate >110 Low O2 sats
I'm no dr but I'm still suffering. Try some breathing exercises whilst you feel it stronger with symtpoms. Look for some good stress techniques. You are going through alot so today watch new nice movie and something you enjoy read just doit try it and a short walk breath in the air. Today know that in the future you will overcome this and be stronger for it. We are all with you and big hugs 👍
Thank you 😊 I know you get it. The brain fog, memory loss, significant. Fatigue serious and muscle and joint pain waves me up at night. Gp invalidating and unwilling to do investigations other than the normal full blood count. Exercise intolerance exists and can set me right back. Thank you for taking the time to make this excellent video!
I was tested positive than after one month I was having fatigue and a bit of fever so I went for a second test and the results was negative by the grace of allaha!!! Now m still suffering from fatigue and a bit heavy chest and a bit heart rate high sometimes!!! Thanx for this video it's very much motivating and helpfull
Hmmm... RUN-DMC ... NYC UES here😁 77 yoa Retired Thank God Personal restricted sociability Watched your vids 2 hrs yesterday and OMG ... Felt better and was more active and walked about more than I have since Feb. Bless your Delorean-loving 💝 P.S. in March walking about in&out of some shops, I was tagged by a bit of a flu (deep aching, deep fatigue... didn'want to move or even think about activity) so I wrapped myself in down comforters for 3 days napping and sipping broth and teas. Probably not a SARS ... but it put me on ALERT. You are a Treasure of these Times😇
Oh man. This nailed it. My wife and I had it at the same time followed by covid pneumonia. My doctor is my neighbor and my wife is in the medical field. You are spot on. We have gone over most of this with our Doctor. The fatigue goes and comes. Same with headaches and brain fog. I’ve had heart and liver issues also. Thanks for putting this out there. From South Carolina. Thank you
Hi William - so sorry to hear you’re still suffering. We’ve learnt a bit since I made this film last April - I’ve distilled it into 10 points in this film: ruclips.net/video/0EaHFuGJl78/видео.html Worth watching!
great information and re-assuring to hear, I have felt the same fatigue and swollen glands since having suspected covid 19 in mid march too, never had anything drag on this longggggg, hope you have speedy recovery
Thanks for this! I am working together with my fabulous allergist on this. She thinks it's undercovered an underlying mast cell issue for me. Mast cell related diagnoses are very recent - in the last five years, although a Harvard group has been working on them longer - and not many PCPs understand the relationship between inflammation and CFS. I am using H1 and H2 histamine blockers and quercetin with good results. Also following a low histamine/mast cell diet. Have suggested this to other friends in the post covid recovery and they also had good success with it. If you try it, drink a TON of water, though.
Iv been doing research on this. In simple form, histamine is released in the body for just about all things. When you are injured or get a virus histamine is released to that area which causes inflammation so the body knows where to react and heal. This is a very basic explanation.
@@ammanadeeb1162 Not here in the US, but it's always a good idea to be monitored by your GP. For example, my allergist told me they were very dehydrating, which I wouldn't have known otherwise. She also was able to help with dosages, answer my questions about using Benadryl, etc. (Claritin didn't work for me and I'm allergic to some of the other new gen meds. A lot of folks on postcovid forums are finding luck with older H1 blocker meds like dipenhydramine and hydroxyzine.) I always, always recommend having your doctor monitor you anytime you try something new even if it's over the counter, because you just don't know how it might affect you. Over the counter doesn't automatically mean harmless. I also recommend looking into POTS/orthostatic intolerance. I switched to a new GP and found out that she is seeing a lot of postcovid patients develop this and MCAS/POTS often go together. The treatments aren't expensive or complicated, but because one of them involves taking a lot of extra electrolytes (I use SaltSticks maximum formula), you absolutely should be monitored by your GP because if it's not right for you, it could mess up your heart or kidneys.
Its a big relief to not be the only one feeling like this. I have extreme fatigue, lightheadness, nausea, increased anxiety and sensory sensitivity after recovering from covid 4 months ago. I pray these issues get researched and not just ignored and not made into another political debate
I had Covid 19 last May. I hate to say it but im still battling extreme fatigue. I will be fully functioning well day to day but i have noticed if i get really working too msny hours or emotionally charged up about something...suddenly its like i have Covid all over again. Im completely exhausted ..slight sore throat..no tolerance for conversation or stimuli. Im a complete write off. I have only recently figured out this is what i must have. Im going to book a doctor appointment to confirm. Its been so off and on. Im poor at pacing myself. Im a nurse. I acquired Covid 19 during the crisis in long term care..i went to help out from acute care. I recently changed to 12 hour shifts and thought that's why i was so fatigued.
All I want to do is get back to work. I have really bad fatigue. I am sill being paid, but I want to work for it! I am on day 27 and I can’t get over the fatigue.
Such a relief to hear a health professional explain the way my 16 yr old daughter feels. She also has an altered sense of taste/smell which has been making eating anything an ordeal for almost 5 months now. Most foods taste like they're rotten and disgusting to her. She's exhausted with headaches/nausea/fatigue so I really appreciate your advice. Our GP has prescribed nasal steroids which aren't helping.
Thanks for sharing as at the start of this I didn't know what was happening. No one warned me about after the virus and the extended suffering and I've had to change a lot of aspects of my life. After 2 and a bit weeks I started to feel myself after being bedridden with extreme fatigue, feeling cold, malaise, shortness of breath, tightness in chest and stomach problems. From previously experience of recovering from an illness I went back to work, I worked out at home, long walks, house work and all the usual stuff. I felt good and this continued for just over a week. Then I relapsed really badly where it's taken me 3 weeks to recover again but I still have symptoms. I'm into week 7 where the tightness in my chest returns often, the shortness of breath, stomach problems, headaches, fatigue, low mood, foggy head / trouble concentrating. I'm resting and listening to my body but sometimes I do overdo it when I feel well but thankfully the symptoms aren't as severe as before or don't last as long. Hearing more storied like yourself puts me at some ease but it's hard to accept that I'll have to go from an active person to someone who has to deal with a chronic illness.
I'm realising that as long as I don't tire myself that I am very gradually getting better. It is only when I try to get back to "normal" that I am wiped out for days afterwards. Slow and steady seems to work faster.
Thank you so very much for putting these videos out . They are such a massive help to thousands of people and so needed. Hope and praying for you that your recovery journey is accelerated and completed.
I had a mate who suffered from this and he was ironically enough an avid sportsman and car fanatic but the virus completely knocked him out for over a year. Someone who had no problem going out partying suddenly couldn't even handle a single pint. It's serious
RUN-DMC I’ve had 3 days where I have managed a bit of walking about a bit & my right leg muscle never hurt which was great. But I woke up with a bit of a sore bitter throat . I rest a lot too . Shall I still do my normal walking about the house or shall I rest more . I want to keep going as it moves lymphatic around ?
Tess Girl I wouldn’t stop walking around unless you really notice a strong reaction to it (fatigue so bad you can’t get out of bed). Some mild movement and exercise is good but the limits for everyone are different, and what’s ok one day may not be another. You just have to feel it out...!
I had pvf from late March to early July. When I was back from hospital, isolated at home, I couldn't even cook and tidy the kitchen in the same day, so, I cooked for two days, and the following day I cleaned. Just cooking put me off the rest of the day. I am still suffering from sleep disturbances.
Julie K Rhodes At day 45 it could very well still be COVID. I’m just hitting the 14 week mark and starting to feel a lot better, week 11 was a turning point for me.
I am on 30th day from onset of symptoms, after well being of three days since yesterday again having chilliness, not exactly fever, little bodyaches, energyless, tired, drained out like, very scary now, is it re-infection?, because 5 days back, went for Repeat RT PCR test (24 days Post Covid) which came negative, lot of rush was there. Little Agitated. Any chance of re-infection?
Now you're looking so so much better than you did here... Good to remember that this was actually a 'long long time ago' and that you've done amazingly well to rebuild your health and life. 👍😊
Omg.. im on week 4 since positive diagnosis I still have cough, and my retest is still pending , and the symptoms that was described is on point. What bothers me more than the fatigue is the tachycardia - even my Fitbit thinks I'm exercising 8-23 hrs /day!
Thanks for the video. I am post Covid 5 weeks now and really struggling with my energy. It’s not easy when I own and run a llama farm single handed. All those little jobs are now becoming a whole lot bigger. It’s difficult to accept the situation and go to bed instead of clearing a fence line or working with my llamas. I just hope it is not too long lasting. Take care 🙏🦙
Thanks it makes perfect sense when I was a teenager I got mono nucleuses I was sick for a year the fact that it will eventually go away is great news I was worried this covid was permanent
Thank you for the video. It’s reassuring to know I’m not the only one suffering after a bout of Covid at the end of June 2022. Recovered from flu-like symptoms after a couple of days, didn’t feel right for two weeks then hit one morning by intense fatigue and a hacking cough. Ever since then I’ve suffered with debilitating tiredness, heightened anxiety and depression. It’s now been over 3 months of feeling unwell- all rather frustrating. The best way to deal with all this is listening to your own body, eating a balanced diet, avoid processed foods as much as possible and try gentle exercise like walking. If anyone has any other tips for overcoming this awful chronic fatigue I’d love to hear from you!
I’ve noticed that I’m more tired and having muscle aches after taking a nap. I haven’t had much trouble concentrating, but my sleep patterns are a little interrupted, I keep waking up at 3 am.
This is very helpful. I found I was getting my energy levels back after getting Covid in April 2021, got Covid again in Feb 2022 and struggling big time with having no energy and constantly tired. Woke up tired today after a good night's sleep and found your post. Going to doctor tomorrow so at least I have some info for him.
Thank you for sharing this. I think I caught COVID last year Feb 2020, so 2 months before you uploaded this video, and it took me about 3 months to fully recover. about 2 months ago i had my second Pfizer jab and my body just shut down after the second jab and I believe I may have even caught COVID while my immunity was down. I still have mucus in my lungs and I am still coughing it out 2 months later, but progressingly getting better, but the fatigue has really been the battle for me. It's insane how I wake up, and my eyes are still burning, as though I haven't slept at all. I'm hoping it will take me 3 months to recover like last year... but as you mentioned. It's so unpredictable at the moment. I am wishing you and everyone else who is suffering so much wishes of recovery and strength. Having a positive mindset i find is what has helped me get through this quite okay thankfully, so stay strong everyone! It's only temporary and we will get better. xxx
I am now entering month 3 of this. I haven’t felt much other than fatigue personally. Hardly any headaches and I actually go to sleep okay. However depression and the episodes of brutal fatigue keep coming. When they do come it’s horrible. I have tried my best to keep the exercise down but I don’t know what we can do about this. I’ve been an active person all of my life. I took physical activity almost as a drug since I don’t have much else. And now I just want myself back. I don’t wish this any longer for any of you. Heal quick and be well soon
NurseJanet Do you mean as in extend the time that I have it? Thanks for replying. My doctor just told me to “eat well and go outside” kind of dismissing my symptoms and my family doesn’t believe me. So thank you for your response ❤️
thank you SOOOOOO MUUUUUCH for taking the time to research and learn and help us! My family member was in the hospital almost 4 weeks, and now hitting the 4 week mark out of the hospital, with oxygen machine and wondering why he is more alert in the evening, and can't keep his eyes open in the day time! (He IS getting better, slowly. he worries about his lungs not improving, his strength not returning)
I’m so glad this is starting to be recognised. Since having mild covid in mid March I’ve been feeling overly tired and frequently getting dizzy headaches. I struggle to do normal house chores like washing up without needing to lie down afterwards. I’m lucky my sleep seems to be ok but I do often have to nap in the afternoon also! I’m usually so active so it’s been difficult for me but hopeful it will pass with rest soon.
I'm 64, got the Rona and recovered at home after a rough week of fevers and body aches. I thought I would bounce back as from a flu, but still just doing household chores and walking 50 meters down to the mailbox leaves me tired. But worse yet is the depression. I never heard of the virus affecting the mind, but in my case it has.
This is exactly how I am feeling. On wk 7 since I had a variety of covid symptoms throughout now barely have the energy now to get out of bed. After a hour out of bed I need a lie down or between very simple household tasks I need a rest. Appetite has been very poor, have had bloods and docs say they are all good. Felt better 2 wk ago and tried to return to around half of normal exercise and activity and crashed again last wk. Before this came over me I was a very active person and my decline has been rapid I’d say I’m around 10% physically 20% mentally getting. Just want to sleep all day now appetite has also been up and down too. It’s very interesting you’ve been through pvfs before and this has triggered it again
CLIFFORD MILLINGTON Yes this sounds absolutely on point. Blood tests will come back normal. This is why I had 3 GPs tell me I was fine 20 years ago before the final one looked past the bloods to say, oh, PVFS. Look after yourself Clifford and manage how much activity you get! Good luck.
RUN-DMC are u still taking painkiller for the headaches? I’ve found taking them makes the rebound head ache worse. What is the minimum amount of activity u would look to do everyday. And how are u managing this this time around compared to 20 years ago
Oh that's unnerving to hear you have relapsed this badly after 7 weeks. I have also found that I get punished for exercising. I just went for a 30 minute walk so we'll see what tomorrow brings. I have shortness of breathe right now.
I am one of these people.... I got ill in early March and it was absolutely horrendous. I have been in and out of A&E twice during April and i am now currently on my sixth (Yes Sixth) relapse of symptoms which started again last week. (gastro pain and extreme lethargy this time) It just seems endless now, I went the entire month of May with no symptoms and was convinced i had finally beaten it, only for it to return again. It is the most bizarre illness i have ever contracted. Hopefully if/when general antibody testing takes place i can get confirmation of what has happened to me and even though it is still early days (for everyone) that someone then may be able to provide an idea of what still seems to be going on inside my body. My thoughts also go out to everyone and their families who did not survive the Pandemic and the people still dealing with the devastating impact it continues to have worldwide.
Thank you for your comment - but so sorry to hear about what you’ve been experiencing. Anecdotally we’ve been hearing about lots of negative antibody tests despite obviously having the condition - I’m going to be talking about this in my next film.
RUN-DMC Great comments and info on your channel, I have heard this in the last few days about the antibody tests, more questions than answers at the moment still aren’t there? Look forward to future updates! Thanks.
People with fatigue should spend more time outside. Fresh air and sunshine are good. People with insomnia; I advise those people to get a pet. It's calming to have a purring cat in your bedroom.
Thank you for making this video! This is now two months in for me and I still have whole days in bed, completely exhausted. I also still have problems with inflammation in my bowels and liver, also lots of chest pain that the doctor thinks could be angina, plus I suddenly have asthma. I am usually fit and healthy, eat well and like to exercise. Now I struggle to walk upstairs, it is crap!
Thank god for this video. I had covid 8 weeks ago, I got pleurisy, fit like fevers, stabbing all over my body, tingling sensations and nerve pains in my body. I’ve now developed arthritis, and bad muscle pains and burning in my head. My parents don’t really believe me they think I’m going crazy but I guess I am sane. Got my spinal fluid checked, ct scans and further checks soon all are clear including normal inflammatory markers in my blood which is very strange. So hopefully this video will help me push through take care all of you :)
This has been a very useful video. As I write this I am lying down resting as my entire body just hurts and I’m just very tired. I had mild Covid symptoms from about early to mid April for a couple of weeks but ever since then I’ve had bad fatigue where I can’t do a huge amount. The worst part is some days I feel fine and the next day I’m just hit with what I can describe as a wall, just extremely tired and muscle aches all over my body. It seems this can affect people of all ages seeing as I’m only 22 and it’s affecting myself and people I know in their 30’s, 40’s and 50’s.
Elliott Hall Hi Elliott - you’re not alone. The symptoms you describe are pretty much bang on. Have a look at this article on the guardian today: www.theguardian.com/world/2020/may/15/weird-hell-professor-advent-calendar-covid-19-symptoms-paul-garner
This is the worst fatigue I’ve ever experienced. It’s horrible to not be able to function. I’m sorry to learn this isn’t unique after an active COVID infection but, it is wonderful to learn I’m not crazy and I’m not alone.
Thanks for this. Most frustrating thing is having those days where you really feel like you’re on the up and then waking up the next day feeling so bad. It’s hard to find the patience. I’ve learnt not to tell people I’m feeling better on the good days because they are so often followed by days of feeling crap! We will come out the other end, even if it feels like it’s a long way away.
Yep its VERY disheartening.......sometimes it happens on the same day.....like today, this morning I felt full of energy was in a really good mood because of it........and now at 4pm I just wanna back into bed and go back to sleep for another 12 hours. Best wishes to you.
it the same with everything...
Hey how are you now I'm on week 12 and getting there slowly
I have had COVID for about 3-4 months now and it is very hard to stay positive and optimistic, but its nice to know I am not alone.
Exactly same experience. You never know where in the curve you are.
This is actually one of the most useful pieces of C19 content I’ve stumbled upon. There’s so much noise out there and to hear a clear and honest post infection/survival story is genuinely helpful. Hope you feel better soon. ✌️
Lovely video content! Apologies for butting in, I would appreciate your opinion. Have you ever tried - Dinanlinson Rebooting Health Approach (Have a quick look on google cant remember the place now)? It is an awesome exclusive product for getting rid of chronic fatigue syndrome without the headache. Ive heard some interesting things about it and my friend Sam at last got excellent results with it.
Wrong
This brought tears to my eyes. Thank you so so much for doing this, I am on week 5 and strongly feel ALL of these. People have tried to scare me telling me I must have caught it again back to back but my symptoms are not as bad as before but man.. thank you again for making this it makes me feel SO much more at peace!! Did you document your covid journey I’d love to read about it!
Elizabeth Garibay Hey Elizabeth, I’m so sorry to hear you’re struggling too. Don’t worry - you haven’t re-caught the virus, there’s absolutely no evidence this is possible. What certainly is possible is that the after effects can be really severe - and in some cases more so than the original incidence of the virus itself.
I haven’t documented my covid journey but I might do so in a follow up video I’ll do in another couple of weeks once there’s a bit more recognition out there and can report back on it.
Good luck with your recovery.
Same as you 5 weeks dont let the stress get to you it gave me lietrally full body pains. I feel mainly chill and sweaty feet and pain and migrines. Much love. I pray you be better soon.
@@RUNDMC1 I have felt almost worse since, the original worst bit lasted a few days then felt much better.
How are you now?
@@RUNDMC1 Would like to hear your personal C-19 story. Thank you
You've suddenly made me feel normal amongst this crazy situation I've found myself ...Thank you from the bottom of my heart XOX
That’s alright Dee - best of luck with your recovery!
Thank you, I'm on week 7 and there are days where you really do feel like you're going crazy. Nice to know it's not in my head and I'm not alone. Currently living life as an 80 year old with lots of naps!
So how long did it take for it to subside ?
@nick No Wonder,I would feel like crap after eating fast food.I will keep this in mind,Thanks for the Feedback.
How lomg did it take to feel good again
The feeling of going crazy is also due to the B vitamin deficiency most of us have and that is worsened by covid (B1, B3 oh and zinc). My memory is not working at all.
@nick how are you now ???
Thanks for making this. I'm currently at day 44 and am totally experiencing a setback after one week of feeling almost recovered. I over exerted myself with chores / errands, and am now completely wiped out. Muscle aches, brain fog, you name it. Hope you get better soon, cheers!
Paincakes Thanks for your comment but so sorry to hear about the fatigue. It’s brutal isn’t it? Good luck getting through it, and look after yourself!
thank you for posting this link on reddit. it was VERY helpful to make sense of what i'm going through.
@@GeorgiaLinders Glad it helped. There is so little visibility on post-viral fatigue since this this virus is so new. Hopefully this changes with time, sooner rather than later. I hope you get well soon!
Hopefully you don't have CFS. If you do, exercise will just make you worse.
How are you feeling now
Thanks for this. I was one of those that had an extremely mild case. I recovered in just a few days and thought “well that’s not bad.” Felt great for about a week and now I’m experiencing what you describe. One thing I can add is on those nights I do go to sleep quickly, I don’t stay asleep very long and have actually awakened to what I’d describe as a night terror or panic attack. The aftermath has been much worse and much longer than the actual virus. I suppose this too will pass. Glad to see I’m not alone on the feeling good, feeling bad rollercoaster.
Hi Vicki - you’re exactly right, the coronacoaster isn’t much fun. And you’re also not alone in having a relatively mild early presentation - me too.
How are you now?
Thank you - this video explained exactly how I feel in my 9 week post recovery period. I don’t talk about it much because no one really gets it. I was a healthy person who loved to hike and be outdoors and did brisk walks on treadmill every day and now a walk around the neighborhood tires me out. I have some hope that I can recover but until then just using my inhaler and trying to keep a steady pace and not overdo it. I also pray and think positively about full recovery.
Yes - take it easy and recover. Share the articles I quote in my ‘growing recognition’ film with people who don’t believe you! (Links in the description)
Lori, How are you doing now...are u normal like before
This has been incredibly useful Thank-you. Im experiencing the same symptoms as you, headaches (dizziness) , fatigue, body aches, also some low level raised temperature and sporadic tightness in chest. 6 weeks after initial virus. I hope you feel better soon.:)
Sian Cater-Jones Thanks Sian - I hope you feel better soon too! :)
How are you feeling now
Thanks God,im not alone..😊
How do you feel now? sympthom still there?
Omg thank you for posting this video, I'm actually in tears here because I thought I was going mad. My family is losing their patience with me because I frequently have to lie down and I couldn't explain why I feel so tired all the time. That point where you describe the wooziness not quite being the right description for it hit so hard, it's more of a fuzzy feeling for me. I have been experiencing everything you described there with the addition of some GI problems and rashes that left my skin so scaly and which have only just returned to normal. I really appreciate you sharing this, at week 15 I was beginning to wonder if I was ever going to fully recover and this has given me a light at the end of the tunnel.
Hi Sarah, so sorry to hear about how much you’re struggling. GI issues and skin rashes aren’t unusual either. Share these films with your family if it’ll help them understand what you’re going through. It’s very, very real!
Hey how are you now I'm on week 12 with a lot of the same symptoms
Dear Sarah, your description of scaly skin really resonated with me! I had itchy, scaly wrists (tops of) after the first bout back in March but I haven't included it in my symptoms after I was scoffed at by the pharmacist in my local Tescos! I also had a rash from lumbar to head and a superficial burn on the back of my hand that wouldn't heel. At the time I didn't realise I had C19 because my fever wasn't very high. Thank goodness for Tim Spector putting anosmia on the govt symptom list!!
How are you feeling now ??
@@الطيورالمفترسة I'm not very device-savvy... are you asking me or Sarah?
THANK YOU, I felt like I was loosing it, hearing it’s not in your head is such a powerful statement.
Thank you for making these kind of videos. I had symptoms three months ago, still having issues when anxiety and fatigue attacks, still feeling short of breath mostly at nights, lost my sense of smell completely and I feel I recovered it like 80%, I totally felt like I was crazy. Thank you so much, these videos shows that we are not alone in this.
I thought I was going mad , my mental health is shocking and panic attacks are bad
No energy and sleeping often
This vid and all the comments has made me feel better
God bless you all ✝️
Same here. How are you feeling now ? Hope you feel better.
This is exactly what I'm going through and now I don't blame myself as much. I lost my jobs because I'm too weak to return to them, I've been not sleeping or eating enough, and just want to sit on my couch all day. Last night I was feeling suicidal. This virus is so debilitating and the post viral fatigue is beyond depressing. Thanks for the video!
Steve Lando Take it easy Steve, don’t beat yourself up - the depression is one of the worst aspects. Keep the faith and take care.
Steve, alot of people have lost jobs, made redundant, furloughed. Your not in this on your own💚. Your health must come first and your body right now is saying REST. Take this time to focus on your intrests, set goals, even reading can be a way to escape and relax. I can assure you the symptoms will subside and you will be better than before. God bless💕
Please make sure you update ! . It’s great & the only one here on corona & it’s post recovery
Appreciate video content! Excuse me for the intrusion, I would appreciate your thoughts. Have you researched - Dinanlinson Rebooting Health Approach (do a search on google)? It is a smashing one off product for getting rid of chronic fatigue syndrome without the normal expense. Ive heard some great things about it and my old buddy Taylor got excellent success with it.
Your honest and integrity in presenting our health condition is priceless....wish you all the best!!
Came across your piece today ... just want to say Thank You. I am struggling with set backs with chronic viral fatigue. I have been struggling mentally as do frustrated with slow recovery. This is week 7.
Your clip has given me some excellent facts and reassured me.
Thanks
I'm recovering from covid (mild case). I feel like I'm going crazy, so tired, sore, can't eat, constant fevers, panic attack, and emotional. When will this end?
Same. The panic attacks are the worst.
Hold in there stacey, I had exactly what you had back in March. It gets better slowly, I'm about 90% better.
The panick attacks etc will begin to taper off and the fevers etc. I felt like I was going nuts with it as well.
I also had a mild case and now the after effects are worse than the freaking virus
@@willthornton4391 what did you do to get better?
@@rismoody3906 I'm not 100n% but am getting there. I did have a relapse lately. But generally resting when needed and doing pretty mild exercise, like 5 minute walks, or what ever you can handle (Just dont over do it, stay within a good band.of energy) I started up a low histamine diet recently and think that may have helped as it acts as an anti inflammatory. I've been taking vit b, c and B12, niacin, magnesium, quercitin, zinc, selenium. I've had very little sugar in my diet as well as no caffeine. I think I'm probably more like 70% better but its just a very slow process, patience is needed.
Thank you so much for drawing attention to this. I have been comparing notes with others in the Coronavirus Survivors Group and Coronavirus Recovery Stories groups on Facebook where there loads of us with these lingering issues. It has really helped to know I am not alone. I will post your video to them right away!
Angel Brown Thanks Angel, and hope you get a speedy recovery yourself! Take care.
Angel Brown please see my comment above. All the best to you ❤️
Hopefully you don't have CFS. If you do, exercise will just make you worse.
@@RUNDMC1 You too!
@@MECFSAwareness I'm not exercising yet don't worry! It will be awhile before I feel well enough for that.
Great information shared & possible remedies discussed. Thanks ❤️
1) Listen to your body. Rest when u are tired
2) Maintain healthy diet , 3 meals + 2 snacks in-between.
3) Maintain light to moderate excercise.
4) Vitamins.
5) Bring stress levels down.
Thanks you so much for this video I'm in New York recovered three weeks now but I still feel fatigue and unwell with muscle pain, it's good to know I'm not alone , please give an update.
Try breathing exercises and to not stress with any of the unwell feelings I'm in the same boat. You overcome this and oneday you be even more stronger for what we been through
Thank you I will try the breathing exercise.
How you feel now? did you recover??
@@Tenoutta1010 and u have to have more sunlight in the morning it is good
I had chronic fatigue syndrome , dx in 1995, after i had a bad flu, presentation was about 2 week after recovery from flu, my first symptoms were a bounding pulse in upper abdomen, and short of breath, i was bed bound for 7 months, two years later i was able to almost return to normal, but i rested when i felt the fatigue and did the things i use to when i was rested, the interval between fatigue and feeling better were weeks in the beginning then as time went on the time shortened between symptoms, but fatigue still plague me, ups and downs, but much better now!
Just a note, i was tested for every type of virus, all negative, muscle weakness was a major problem, could not even brush my teeth or shower, its really unbelievable! But don't give up
Can I say a massive thank you for putting these videos together. They have literally kept me sane. I had covid in March and have the exact 6 symptoms you've said. Please take care of yourself and thanks again for your work on these videos 👍
Thank you - I’m glad they’ve made a difference 👍
Just by reading the comments we are all here to thank you 🙏🏼
Thanks for making this channel. You're bringing clarity and moral support to the table which is greatly needed in or out of lockdown👍👍
Thank you Jermaine!
Thanks for this. I am into my 6th week of COVID and am struggling because I thought I was becoming a hypochondriac, so many symptoms! I am glad it is not just in my head. This has reassured me.
Hi Louise, I can recommend joining one of the long haul groups on Facebook, lots of support there.
I am a RN with nearly 50 years of active clinical practice. I recognized the symptoms when they first were published and felt that this new wave of the same long term condition I have been dealing with since the early 1990's and it has had many different names. The current best name is ME/CHF or myalgicencephlomyelitis (muscle-brain inflammation) /chronic fatigue syndrome. It has also been associated as the Gulf War Syndrome, Yuppie Flu, Fibromyalgia and others. There is poor understanding about what afflicted people are experiencing and the term fatigue is misleading. It is not just tiredness nor is it really depression as the person afflicted wants and has desire to function, know what they want to do but are totally unable. It may be best described as a drained battery. When there is some charge left the TV remote may work but sluggish and with stops. When the battery is fully drained, no matter how many buttons are pushed, nothing is going to happen. The worst recommendation is to exercise more. This will cause further exhaustion, trouble using your muscles and relapse to being unable to get out of bed. CBT (Cognitive Behavioral therapy) helped me with coping with over 30 years of living with this condition. But this is a real medical condition and not one in your head, nor is it a psychiatric condition. It is multi-systemed and recent research is showing showing genetic variations, which when multiple are triggered results in the person being afflicted. It affects cognition, daily functioning, and ability to perform daily tasks. Best recommendation is paced activity, new uses of approved medications for off label use such as low dose naltrexone, famitodine, magnesium glycinate, and other supplements are helpful in getting better quality of life. If the condition lasts more than 6-8 months, it becomes chronic and life long. I would recommend looking into recent research starting with Dr. Bateman from Utah who has been researching and fighting this battle for 30 years. The CDC and NIH have, until recently refused to fund any research into ME/CFS and associated syndromes. It has only been since COVID-19 that they have given any assist. Many physicians do not have much knowledge about the management of this condition. The best help that I received was through Functional Medicine approach and doing a lot of my own research which I could bring to my PCP, who is great in listening and working with me. You will still find bias and be told that you are a maligner, lazy, depressed, just get up, exercise more and get your act together. I even had supervisors work had to remove me from my position once they found out that I had this condition, even though I had glowing performance reviews prior to them finding out. You may run into this. Learn how to pace, don't drain your energy but still be active. You will get good days. Don't try to do everything in that 1 day. It will set you back days even weeks. Do eat whole foods and avoid junk /processed foods. Try to keep on regular daily schedule. Be kind to yourself. Don't plan excessively for things to accomplish. Give yourself credit for every accomplishment , even the little things such as getting a shower, making lunch, being able to spend time with friends, plant a flower, whatever is meaningful to you.
One thing i have noticed that everyone wants to be better yesterday lol, me included! but honestly your bodies have taken a unusual nasty hit and its just working on trying to fix itself. It is actually normal to get PVFS after a flu. Some take longer to heal than others! Unfortnatly we have never been exposed to this virus before and ALOT of doctors do not know how to diagnose the post symptoms most of us have had or having which can cause anxiety and worry which is understandable. Its so great that that video has opened up a forum for ppl to discuss it. With that said, please see it as you are NOT ALONE IN HOW YOU ARE FEELING. Try to not worry as much and take this time to sit down and rest! As someone who never sits down lol i know the struggle but it needs to be done! Drink lots of warm fluids especially water for the chest if your still tight chested. Epsom or magnesium salt baths are good to resore the body. CBD muscle Balm was AMAZING in my recovery for chest pains and discomfort and Hot Steam inhalations every morning for shortness of breath! Good diet lots of GREENS and minerals to help aid the body and keeping energy fixed on things that uplift you. I pray that everyone will be healed with no delay IJN! And that you will all come over this on the otherside with even better health than before!❤
Nicki Ayesha what level of activity are you able to do x
Thankyou and to you also
@@tessgirl383 Hey @TessGirl 💕, i went out for my FIRST 40 min walk last Thursday doll and i had covid 5-6 weeks ago. I felt very fatigue before going from doing absolutly nothing all day than lay down in bed, but I felt much better when i came back home. I then ran a hot bath put some bath salts in and relaxed for about a hour or 2. My doctor advised me to go walking just after 14 days of having it to ease any feelings of anxiety and get oxygen to my lungs but i wasnt ready and everyone kept telling me i was paranoid including my doctor and said that anxiety had probably made the symptoms worse but i knew it was a load of rubbish as I KNOW MY BODY.
The only time i left my house before Thursday was to drive and get my shopping click and collect because i didnt have energy to walk to the end of my road let alone walk round a supermarket. Its all about baby steps doll. Yesterday, i took my son to our communal garden so he could get to ride his bike for 40 mins and i just got a bit of fresh air & vit d which made me feel again alot better. I also talked at a distance with my neighbour whos husband was still sick from covid he got 8 WEEKS AGO and was still feeling horrid despite having his follow up tests show that it has now left his body, he is still short of breath and having chest pains and his xrays showed he had no damage at all to his lungs. Im a single mother and i was trying to balance getting better from the virus, be a mother, try and become a school teacher overnight, balance my job WFH. I had to take a major step back from all of that because i couldnt balance at all and try to get better. All i could just about manage was making breakfast and that alone would wipe me out FULLY for the entire day. Now i have a lot more energy. I can do chores round the house, do some work on the laptop without getting really bad brain fog and im not feeling the horrible crappy feeling in the day. My muscle aches have subside majorly and i can now drift off to sleep in the night better without the nasty malaise and muscle aches. Sometimes the muscle aches and fatigue strike me at some point in the day but i just sit down and read a book or watch a disney film with my son till it passes. This virus thinks it can linger you just need to tell it whos boss! Drink loads of water stay on top of all your vitamins and herbal teas its wont happen overnight but it does 100% help! You know your body, it will tell you what it can do and right now its fighting and repairing💚
@@Lux.500 Not a problem at all. Keep you head up it will pass!👊🏾💕
Hello thank You for your experience. I felt very alone and thought I am the only one going through this. I had covid 8 weeks ago and still can’t sleep right feeling fatigued an have a short breath. Coughing. Symptoms come and go. One day I’m all right the other day I can’t get out of bed or couch. Now I’m 34 years. I cry a lot because I have a 11 month old son am I’m scared that I won’t make it. Hope this all ends soon. Wish you all the best sorry for my bad English. Greetings from Germany
Thank you so much for making this video. I am currently in my 6 week of Covid recovery and everything you said is spot on. It’s exactly what I’m going through. Other people don’t understand what we are going through. My parents had Covid also but they don’t seem to be having nearly the post fatigue that I’m having so they often say I just need to stop thinking about it. Like i can control it from my thoughts; so frustrating. I have one day where I feel so so and the next I can get out of bed. I’m a truck driver and I can’t even drive right now. It’s just not safe.
So sorry to hear this :(
If you have ongoing symptoms after covid19 and are concerned about having post viral fatigue/ME/CFS please do not push yourself to exercise! Rest rest rest! ME/CFS can have a viral trigger, and it has no cure or treatment. Those of us with severe case are housebound or bedbound and have been for years. We have literally been quarantined for years and in some cases decades. Pushing ourselves to exercise has caused some of us to get significantly more ill, and never return to pre exercise condition. Please take care of yourself now. If you do you will have a chance to recover-there’s no certainty that you will eventually over time recover as stated in this video. However your best opportunity to recover is through what is sometimes called ‘aggressive rest therapy’ not exercise.
SERIOUSLY! If taking it easy will help you avoid it getting worse - THEN DO IT! CFS is THE WORST.
How long do you recommend to rest?
This is horrifying!
@@MECFSAwareness I've had Chronic Fatigue Syndrome before and I feel like getting a modicum of exercise is important. Even my elderly Grandparents who were close to 95 improved their health by getting up for a short walk, to get the blood flowing and strengthen their muscles. You loose muscle mass by not getting a little exercise, young or old. That's one of the reasons previously hospitalized elderly Covid19 patients have to go to nursing homes/ rehab centers, so they can regain mobility and it is very hard work.
I'm so scared of this. I've already fallen dreadfully out of shape and really need to start moving around. I live in a town of mountaineering athletes, it's going to be very upsetting if I can't participate.
1 Year after this was posted and I am sad to see that this is not spoken about more. I got covid 2 months ago and I not suffer from post-viral fatigue. The recovery from covid has not been consistent. Some days I am good and some days i’m very bad, sleeping nearly all day and all night long and still feeling like I can’t gather the energy to get up. No one in my life understands. They want me to get up and push myself to be more active thinking i’m giving in to being lazy but when i push myself it only results in more fatigue that lasts longer. I’ve done blood work and it doesn’t seem like i’m deficient in anything. I wish I knew what supplements to try out
How are you feeling now? Please reply ... Same here. Scared
@@fahimzia8023 Same :(
@@fahimzia8023 any update ? Hope you feel better.
Got sick the last week of march, still in recovery now after 5 months. Like climbing a slippery hill. I am slowly getting there, but with minor and major setbacks. Mainly my lungs that keep protesting, aches, headaches, rashes, tiredness and a random surprise every so week like dizzyness, joint pains, sleeping trouble. Working at 80% now, doing much yoga en rebuilding my strength, also acupuncture and herbal medicine to support my lungs and immune system. Glad I am not alone in this ❤🙏 and thanks for these vlogs!
Thanks Charlotte - best of luck with your recovery!
I'm recovering from covid. It was scary and nothing i had ever felt. It was nice to know that inability to focus and fatigue was normal. Im the primary money maker and support system and the fact that i cant do that is very scary. Causing huge stress:/
That's so useful, thankyou for the upload. I've been massively fatigued for a month now, hope it goes soon.
Will Thornton It’s a bastard isn’t it? Don’t overdo it in the meantime - it’ll bite you in the arse if you do. Good luck 👍
@@RUNDMC1 its phenomenal I've never been so rinsed, I've learnt the hard way unfortunately.
Rinsed is the right word for it!
Hopefully you don't have CFS. If you do, exercise will just make you worse.
How do you feel now?
Thank you so much for sharing this incredibly helpful post. Had presumed covid mid March. It was fairly mild but developed bad sinusitis for weeks and terrible back pain for months. After a lot of chiropractor sessions it is better but still present. As I recover and become more active I'm noticing a lot of fatigue. It has been a very tough four months of pain every day. Trying to stay positive and focus on the improvements. Also important to accept what is happening and take heart from the fact that lots of people are in the same boat.
i am about 50 plus days into when i think i had COVID-19 (Bad chest pains for 2 weeks, extreme fatigue, headaches and slight cough). For about a month since the chest pain has gradually reduced (although still present with difficulty breathing). On top i have constant sore throats and headaches in the front of my head and eyes. I have been tested for COVD again about a week ago, which was negative and all bloods came back fine. Finding this video has really resonated with me. I am 34 and really struggling to cope. I am normally fit and active but one workout with leave me dead for days following. Constantly not knowing how you are going to feel in an hour is depressing . The worst part is waking up feeling like it every day. I feel I am making my family upset and anxious I hope this gradually goes over the next week weeks as i am normally fit and active. Thank you for the video!
I'm in the same boat. Easy then said then done..but with every pain or sensation just relax. Try breathing cycle 4 seconds breath in hold.for 4 then out for 4. Reaper six times. Today watch movie. Have a walk. Dont think of the feelings when they hit etc or are present I'm not a dr. But the mind has so much power. What I'm trying todo now it's hard but life is and after you get better and realsie you're ok you be stronger person for you.
Yes! I’m usually fit and active too. What’s scaring me is that any time I try to get consistent walks in-say 20 minutes per day-I have tingling and weakness in my limbs. I would take just plain fatigue over that any day, because I don’t know if it will get better. Even if I rest for several days on a row, i am still getting the tingling and weakness after a short walk.
Í can help you by tapping into cellular memory to find the cause and the natural remedy. www.alternativesolutions4health.info
Anisa B. How are you feeling now ?
Thomas Howard How are you feeling now ?
I’m on weak 9, and these are getting better for me.
Because I'm currently at week 10, I was wonderring, if you had a mild case and how long it actually took you to get better?
@@japanesefinch9021 Yeah, I had a mild case with mainly fatigue overall, and loss of taste and smell. It took me roughtly 4 months to really feel better.
@@Elias.M92 4 months ok. I’m really worried.
@@stevenlilley137 yup and now 6 months later after my reconvery, I still have low lung capacity that Im tryiong to recover with sports...
@@japanesefinch9021 what was your symptoms pls?
Very useful video to someone who continues to cycle through symptoms 6 weeks after symptoms began and has been continually perplexed at why they are lingering. Thanks!
Hopefully you don't have CFS. If you do, exercise will just make you worse.
@@MECFSAwareness Hi CFS is basically what you call PVFS if it doesnt go away. There is every chance this will go away
Hi yes I start week 9 tomorrow. If you need to look on facebook for support groups for long term sufferers. They helped a lot with my general sanity to speak with others in the same boat!
ethnicAlbert I started week 9 today and I’m still feeling fatigued. Hope this will end soon. Wish you the best
Your videos have been so helpful for making sense of this scary fatigue from within!! Thank you
No worries William :)
Thanks for sharing your experience, and sorry to hear you've been hit so hard. I came across this as I am just heading into Month Three of being sick since contracting COVID-19 and have also been experiencing a LOT of fatigue.
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It would be great to hear more about the difference between PVF/PVFS and ME/CFS as my (non-expert) understanding is that the former can lead to the latter but it doesn't always?
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Hearing from people who have developed long-term fatigue issues after getting sick, a lot of them have cautioned to take it easy and be careful not to over-exert yourself in the early stages. Many have said they feel that trying to push through made things worse for them in the long run. This resonates with your advice on listening to your body. I am now trying to cut back on work and study and get as much rest as I can.
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Take care and all the best with your recovery!
I've made a follow up film talking about exactly this. It's uploading at the moment so do have a look.
Really helpful video. Had suspected Covid19 since mid March, like others symptoms come and go. For me, understanding my body & realising it’s not just me helps.
Beyond that, accept it for now & try to celebrate what I can do, and try not to stress about what I can’t is key.
This will pass.
I’ve found fasts, (every other day and longer, up to 10 days) are what is helping me considerably in reducing what seemed to be systemic inflammation resulting in all the symptoms you outline here. I’m also taking abundant antioxidants and limiting my diet to the most simple high quality nutritional intake when I do eat, grass fed beef and local eggs, unadulterated fats.
Thank you so much for this. I was treated for Covid - 19 and hospitalised for 10 days. Following discharge I experienced and am still experiencing many of the points raised. I thought I was going mad! Listening to this has helped me to know that I’m not.
What did they treat you with , medicals ? Antibiotics ?
I'm still like this, what you describe nearly 2 years later! It has been so brutal! I am 50 years old, ibuprofen helps. I have a hx of autoimmune disorders of endometriosis and fibromyalgia, arthritis. It is much worse now, in the fibro dept. I had a hysterectomy a long time ago. But, the body aches, hyperinflammatory condition, fatigue, anxiety, disrupted sleep, and brain fog has peristed. I've become disconnected and indifferent to many things. Food intolerance has been awful. I think we will find that there are many many who suffer these symptoms every day out there, that were primarily healthy before. I am a critical care nurse more than 25 years. I am starting the research into it now with my doctor. I am so sorry for all out there like this!
This is so scary I can’t believe that it damages your body to this degree😭
Thank you for posting this. It helped me feel a lot less anxious. I’ve been covid free for about 4 weeks now but I still get random bouts of fatigue, brain fog, and headaches. When it hits me, it hits me hard. I have to lay down for about 20-30 minutes before I feel normal again. The best I can do is wait it out and just try to stay healthy. Thanks and God bless.
Hi Louis - this is exactly how the fatigue hits me too. I’ve got good at spotting the precursors now - brain starts to fail to process information, frontal headache - then the fatigue hits.
Thanks so much for this video...I have found it very reassuring! I’m watching it as I lie resting on a “ bad” day, following coming down with Covid-19 just under 11 weeks ago. Compared to many others, my symptoms were relatively mild, although I did spend a couple of weeks in bed feeling pretty poorly. After approximately 3 or 4 weeks the fatigue really hit home and now I can have a number of “ good” days, followed by ones where I feel as though I’ve hit a brick wall with no energy at all. I’m very into my fitness and listening to your advice I realise I have definitely pushed myself too hard on the days when I’m feeling more energetic. I will heed what you have said and learn to take things more easily for as long as it takes! Many thanks.
Thanks for watching Sylvia. Yes - the temptation to suddenly burst back into action is strong on days that you feel better, but you do have to be really careful! It’s just not worth knocking yourself out again for days. Best of luck in your recovery, and I hope it’s speedy.
RUN-DMC Thankyou so much! I do hope you are on the road to a full recovery very soon. Best wishes!
This really helped. Thank you. My husband and I fell ill beginning of March as well, not too bad, and the chest pain is still there, the utter exhaustion, the memory loss and confusion and so much more. I spent a long time beating myself up about not getting better. Knowing it is a real thing at least takes that self flagellation away.
There’s an article I quote at the end of my most recent film which cites robust biological evidence for CFS - it’s very, very real!
@@RUNDMC1 Thank you. I am catching up on your videos throughout the day. I will then move on to the articles.
RUN-DMC you can recover & turn those systems back on . There is no proof of ME
Hi Everyone, new here , 53, thankfully no underlying health problems 🙏🏻
Further to having read some posts on here I thought I’d share my experiences of what I think could be C19 and now Post Viral Fatigue, ( PVF )
Timeline being March 8th, the day friends visited with long term flu/cold like symptoms, to today, a total of 62 Days.
First started with a sore sore throat, hoarseness, swollen glands in neck slight difficulty with breathing for a day or two and ear pain.
Throughout the time to present day I’ve had very few good days. Mostly suffering with a mixture of symptoms that seem to come and go.
1. Fatigue.
2. Runny nose.
3. Shivers.
4. Headaches.
5. Palpations.
6. Diarrhoea.
7. Sensitivity to bright light.
8. Face feeling like it burning, knees aching and feeling hot, as well as hands ( mainly bed time )
9. Insomnia.
Last Sunday I was on the mend through to Wednesday.
Thursday felt shattered all day and slept on and off throughout.
Friday and Saturday suffered some if not most of the symptoms above. Mainly 1, 6, and 3.
I’ve been talking to my GP since week 3, week 5 had a course of antibiotics a shot in the dark I know.
I’d be interested in other people’s experiences regarding possibly having felt the same.
My Friends visited Tenerife in September,October and December. Their Grandson brought it back with him having contracted it whilst on holiday.
Irony I know, my friends are partial to Chinese food and visited the same restaurant many times on each visit.
One visit the owners had just returned from a family gathering in China.
Stay safe everyone this is real, I’ve lost my Ex Brother in Law to C19 and my Uncle if fighting for his life in hospital as I write.
Jason 🙏🏻🇬🇧✌️NHS
Thank you so much for this video. I'm approaching day 90 since contracting covid and was experiencing what you are describing. Unfortunately I have also relapsed last week and also have severe chest pain, shortness of breath etc again. Your insights into length of recovery time and saying that we will recover fully has given me hope at a very dark time.
How are you now
Aside from muscle weakness and all of the symptoms you mentioned - I also have internal vibrations and shakiness. It’s so scary and I’m going through a lot of anxiety on top of what the anxiety I already had. I am taking zinc vit d vitamin c and selenium. I am reading medical medium book again. I have decided to treat this as if the virus is still floating about. There are studies to say it’s triggered EBV. So I am on the EBV protocol. I do celery juice daily as well as the vitamins. I’m almost 9 months in. My electrolytes were low after 3 weeks of very bad c19. So I also add extra sea salt and take an electrolyte tablet in water. It’s been life changing.
Had covid in March 2020...almost a year ago but up until now the waves of severe fatigue ( and interruptions in taste and smell) still occur ....thanks for shedding some light on this
Are u better now pls I'm suffering with severe fatigue got covid 15 months ago
I'm day 80. I'm 59, no preexisting conditions, no medications and very healthy before Feb 20 th.
Symptoms, from Head to Toe:
Whole body:
Daily- 24/7 Fever that is over 99.9 but under 100.6 upon waking, rising to 101’s by noon and spiking in the 102-103.8 range by early evening. Some days, higher all day, some days timing is different. Lowest in 77 days was 99.9, highest 104.7
Daily- Body aches, sore stiff joints, muscle weakness, wobbly legs,
Daily- 24/7 pure, complete, exhaustion
Daily- Skin feeling sunburnt independent of fever, red and hot to the touch, waves requiring ice packs and wet towels
Many Days-Chills, shivers, goosebumps, Sensitive skin, to touch and clothing
Brain:
Fluctuates but mostly Daily- Forgetting simple words, midsentence, events, time gets Foggy, unable to concentrate, track a show, book or conversation, malaise
Only a half dozen times or so- Noise sensory overload
Couple times a week- Headache that comes and goes Head pressure /no headache comes and goes (once, migraine)
Overall- Sleep pattern changes, insomnia (2-4 hrs) compared to pre-illness (6.5-8.5hrs)
Ears, Eyes, Nose, Throat:
Daily- 24/7- High frequency buzzing in ears with crazy flares so loud I can’t hear people talking
Occasional- Pounding in ears
Often but not daily- Sore eyes like I’ve overworked them or leftover from migraine
Sporadic- Clear runny nose or sinus pressure with zero stuffiness.
After day 60, sporadic - Feeling like tongue won't reach up to swallow in far back coated some days
Sporadic - Loss of smell and taste of things tasting off/wrong
Sporadic - Phantom smells, smoke, wet horse, fried food grease like at a boardwalk carnival
Occasionally- Several days of clenched jaw with no psychological basis (stress or anxiety)
Chest, Lungs:
Sporatic - daily raised heart rate >110
Low O2 sats
I'm no dr but I'm still suffering. Try some breathing exercises whilst you feel it stronger with symtpoms. Look for some good stress techniques. You are going through alot so today watch new nice movie and something you enjoy read just doit try it and a short walk breath in the air. Today know that in the future you will overcome this and be stronger for it. We are all with you and big hugs 👍
Thank you 😊 I know you get it. The brain fog, memory loss, significant. Fatigue serious and muscle and joint pain waves me up at night. Gp invalidating and unwilling to do investigations other than the normal full blood count. Exercise intolerance exists and can set me right back. Thank you for taking the time to make this excellent video!
If you have a look at what I’ve made since, I didn’t stop there!
For me it's been 8 weeks since I got invected I still have muscle shaking after any physical activity and some time virtigo
I have muscle shakes in biceps and legs when I move them it’s weird all since I caught some virus sox weeks ago .. sorry it’s a bit late
Thank you so much for this. I’m feeling more hopeful now that I know you’ve had it before and recovered.
I was tested positive than after one month I was having fatigue and a bit of fever so I went for a second test and the results was negative by the grace of allaha!!! Now m still suffering from fatigue and a bit heavy chest and a bit heart rate high sometimes!!! Thanx for this video it's very much motivating and helpfull
No worries Shahbaz! Best of luck with your recovery
@@RUNDMC1 thank you and God bless u
Hmmm... RUN-DMC ...
NYC UES here😁
77 yoa Retired Thank God
Personal restricted sociability
Watched your vids 2 hrs yesterday and OMG ... Felt better and was more active and walked about more than I have since Feb.
Bless your Delorean-loving 💝
P.S. in March walking about in&out of some shops, I was tagged by a bit of a flu (deep aching, deep fatigue... didn'want to move or even think about activity) so I wrapped myself in down comforters for 3 days napping and sipping broth and teas.
Probably not a SARS ... but it put me on ALERT.
You are a Treasure of these Times😇
Thank you Rosalind!
Oh man. This nailed it. My wife and I had it at the same time followed by covid pneumonia. My doctor is my neighbor and my wife is in the medical field. You are spot on. We have gone over most of this with our Doctor. The fatigue goes and comes. Same with headaches and brain fog. I’ve had heart and liver issues also. Thanks for putting this out there. From South Carolina. Thank you
Hi William - so sorry to hear you’re still suffering. We’ve learnt a bit since I made this film last April - I’ve distilled it into 10 points in this film: ruclips.net/video/0EaHFuGJl78/видео.html
Worth watching!
great information and re-assuring to hear, I have felt the same fatigue and swollen glands since having suspected covid 19 in mid march too, never had anything drag on this longggggg, hope you have speedy recovery
Thanks for this! I am working together with my fabulous allergist on this. She thinks it's undercovered an underlying mast cell issue for me. Mast cell related diagnoses are very recent - in the last five years, although a Harvard group has been working on them longer - and not many PCPs understand the relationship between inflammation and CFS. I am using H1 and H2 histamine blockers and quercetin with good results. Also following a low histamine/mast cell diet. Have suggested this to other friends in the post covid recovery and they also had good success with it. If you try it, drink a TON of water, though.
Shaina Cohen Thanks Shaina - hope it works for you, and does sound like the right space for treatment!
Iv been doing research on this. In simple form, histamine is released in the body for just about all things. When you are injured or get a virus histamine is released to that area which causes inflammation so the body knows where to react and heal. This is a very basic explanation.
Do you need to have the H1 and H2 histamine blocker prescribed by your GP? I’m also post covid patient
@@ammanadeeb1162 Not here in the US, but it's always a good idea to be monitored by your GP. For example, my allergist told me they were very dehydrating, which I wouldn't have known otherwise. She also was able to help with dosages, answer my questions about using Benadryl, etc. (Claritin didn't work for me and I'm allergic to some of the other new gen meds. A lot of folks on postcovid forums are finding luck with older H1 blocker meds like dipenhydramine and hydroxyzine.) I always, always recommend having your doctor monitor you anytime you try something new even if it's over the counter, because you just don't know how it might affect you. Over the counter doesn't automatically mean harmless.
I also recommend looking into POTS/orthostatic intolerance. I switched to a new GP and found out that she is seeing a lot of postcovid patients develop this and MCAS/POTS often go together. The treatments aren't expensive or complicated, but because one of them involves taking a lot of extra electrolytes (I use SaltSticks maximum formula), you absolutely should be monitored by your GP because if it's not right for you, it could mess up your heart or kidneys.
Its a big relief to not be the only one feeling like this. I have extreme fatigue, lightheadness, nausea, increased anxiety and sensory sensitivity after recovering from covid 4 months ago. I pray these issues get researched and not just ignored and not made into another political debate
Hi Karina, watch my more recent film on 10 top tips to deal with recovery - we’ve learnt a lot in the last year!
I had Covid 19 last May. I hate to say it but im still battling extreme fatigue. I will be fully functioning well day to day but i have noticed if i get really working too msny hours or emotionally charged up about something...suddenly its like i have Covid all over again. Im completely exhausted ..slight sore throat..no tolerance for conversation or stimuli.
Im a complete write off.
I have only recently figured out this is what i must have.
Im going to book a doctor appointment to confirm.
Its been so off and on.
Im poor at pacing myself.
Im a nurse.
I acquired Covid 19 during the crisis in long term care..i went to help out from acute care.
I recently changed to 12 hour shifts and thought that's why i was so fatigued.
All I want to do is get back to work. I have really bad fatigue. I am sill being paid, but I want to work for it! I am on day 27 and I can’t get over the fatigue.
How are you now
Such a relief to hear a health professional explain the way my 16 yr old daughter feels. She also has an altered sense of taste/smell which has been making eating anything an ordeal for almost 5 months now. Most foods taste like they're rotten and disgusting to her. She's exhausted with headaches/nausea/fatigue so I really appreciate your advice. Our GP has prescribed nasal steroids which aren't helping.
Thanks for sharing as at the start of this I didn't know what was happening. No one warned me about after the virus and the extended suffering and I've had to change a lot of aspects of my life.
After 2 and a bit weeks I started to feel myself after being bedridden with extreme fatigue, feeling cold, malaise, shortness of breath, tightness in chest and stomach problems. From previously experience of recovering from an illness I went back to work, I worked out at home, long walks, house work and all the usual stuff. I felt good and this continued for just over a week. Then I relapsed really badly where it's taken me 3 weeks to recover again but I still have symptoms. I'm into week 7 where the tightness in my chest returns often, the shortness of breath, stomach problems, headaches, fatigue, low mood, foggy head / trouble concentrating. I'm resting and listening to my body but sometimes I do overdo it when I feel well but thankfully the symptoms aren't as severe as before or don't last as long.
Hearing more storied like yourself puts me at some ease but it's hard to accept that I'll have to go from an active person to someone who has to deal with a chronic illness.
I'm realising that as long as I don't tire myself that I am very gradually getting better. It is only when I try to get back to "normal" that I am wiped out for days afterwards. Slow and steady seems to work faster.
Thank you so very much for putting these videos out . They are such a massive help to thousands of people and so needed. Hope and praying for you that your recovery journey is accelerated and completed.
Thank you!
I had a mate who suffered from this and he was ironically enough an avid sportsman and car fanatic but the virus completely knocked him out for over a year. Someone who had no problem going out partying suddenly couldn't even handle a single pint. It's serious
How is he now ?
SuperMassive covid hasn’t been around for a year
I think he’s talking about PVFS generally rather than a version of it brought on by Covid.
RUN-DMC I’ve had 3 days where I have managed a bit of walking about a bit & my right leg muscle never hurt which was great. But I woke up with a bit of a sore bitter throat . I rest a lot too . Shall I still do my normal walking about the house or shall I rest more . I want to keep going as it moves lymphatic around ?
Tess Girl I wouldn’t stop walking around unless you really notice a strong reaction to it (fatigue so bad you can’t get out of bed). Some mild movement and exercise is good but the limits for everyone are different, and what’s ok one day may not be another. You just have to feel it out...!
Thank you for this video! This is exactly what I’m currently experiencing, glad to hear that it will get better in time :)
Thank you for the information this really helped me to be calm
Thank you. 7 months on, improving slowly. 🙏
I’m on week 20 and still having chest pains and breathless, totally exhausted, been told it’ll be Christmas before I start to feel normal .
Hey how do you feel now?
How are you now brother
I also have the same symptoms
Do u also get palpitations
I had pvf from late March to early July. When I was back from hospital, isolated at home, I couldn't even cook and tidy the kitchen in the same day, so, I cooked for two days, and the following day I cleaned. Just cooking put me off the rest of the day. I am still suffering from sleep disturbances.
What about low grade fever, high hear rate when slightly move (120 to 162) and breathing difficulties. I am on day 53 since diagnosis
This is my question, too. I still have afternoon low-grade fevers, tachycardia, and cough on day 45. Is this still COVID or PVF?
Julie K Rhodes At day 45 it could very well still be COVID. I’m just hitting the 14 week mark and starting to feel a lot better, week 11 was a turning point for me.
I am on 30th day from onset of symptoms, after well being of three days since yesterday again having chilliness, not exactly fever, little bodyaches, energyless, tired, drained out like, very scary now, is it re-infection?, because 5 days back, went for Repeat RT PCR test (24 days Post Covid) which came negative, lot of rush was there. Little Agitated. Any chance of re-infection?
It mentioned fever several times in the video
Now you're looking so so much better than you did here... Good to remember that this was actually a 'long long time ago' and that you've done amazingly well to rebuild your health and life. 👍😊
Haha, thank you!!
Omg.. im on week 4 since positive diagnosis I still have cough, and my retest is still pending , and the symptoms that was described is on point. What bothers me more than the fatigue is the tachycardia - even my Fitbit thinks I'm exercising 8-23 hrs /day!
Update: tachycardia has greatly subsided but I'm still following up with my cardiologist. I noticed though that I'm forgetful
How are you doing now
No more tachycardia, pretty much all symptoms hv resolved. The last one to go was brain fog and hair loss -- resolution abt 3 months ago
Thanks for the video. I am post Covid 5 weeks now and really struggling with my energy. It’s not easy when I own and run a llama farm single handed. All those little jobs are now becoming a whole lot bigger. It’s difficult to accept the situation and go to bed instead of clearing a fence line or working with my llamas. I just hope it is not too long lasting. Take care 🙏🦙
So sorry to hear you’re still struggling - watch this more recent film which should have some helpful tips!
ruclips.net/video/9SsTWkx6tD0/видео.html
3 months and still waiting for symptoms to go away.
How are you?
It's been over a year and im still struggling with that big ol list
Thanks it makes perfect sense when I was a teenager I got mono nucleuses I was sick for a year the fact that it will eventually go away is great news I was worried this covid was permanent
Thank you for the video. It’s reassuring to know I’m not the only one suffering after a bout of Covid at the end of June 2022. Recovered from flu-like symptoms after a couple of days, didn’t feel right for two weeks then hit one morning by intense fatigue and a hacking cough. Ever since then I’ve suffered with debilitating tiredness, heightened anxiety and depression. It’s now been over 3 months of feeling unwell- all rather frustrating. The best way to deal with all this is listening to your own body, eating a balanced diet, avoid processed foods as much as possible and try gentle exercise like walking. If anyone has any other tips for overcoming this awful chronic fatigue I’d love to hear from you!
PS. Had heart arrhythmia too (ectopic beats) which is really unpleasant but the doctor has said this is a symptom of long Covid/chronic fatigue.
Have a look at The Long Covid Handbook - published last week!
I’ve noticed that I’m more tired and having muscle aches after taking a nap. I haven’t had much trouble concentrating, but my sleep patterns are a little interrupted, I keep waking up at 3 am.
Talk naps probably didn’t help
This is very helpful. I found I was getting my energy levels back after getting Covid in April 2021, got Covid again in Feb 2022 and struggling big time with having no energy and constantly tired. Woke up tired today after a good night's sleep and found your post. Going to doctor tomorrow so at least I have some info for him.
Good luck at the doctors Karl!
Thank you from the bottom of my heart god bless you .
Thank you for sharing this. I think I caught COVID last year Feb 2020, so 2 months before you uploaded this video, and it took me about 3 months to fully recover. about 2 months ago i had my second Pfizer jab and my body just shut down after the second jab and I believe I may have even caught COVID while my immunity was down. I still have mucus in my lungs and I am still coughing it out 2 months later, but progressingly getting better, but the fatigue has really been the battle for me. It's insane how I wake up, and my eyes are still burning, as though I haven't slept at all. I'm hoping it will take me 3 months to recover like last year... but as you mentioned. It's so unpredictable at the moment. I am wishing you and everyone else who is suffering so much wishes of recovery and strength. Having a positive mindset i find is what has helped me get through this quite okay thankfully, so stay strong everyone! It's only temporary and we will get better. xxx
Best of luck Emi!
I am now entering month 3 of this. I haven’t felt much other than fatigue personally. Hardly any headaches and I actually go to sleep okay.
However depression and the episodes of brutal fatigue keep coming. When they do come it’s horrible.
I have tried my best to keep the exercise down but I don’t know what we can do about this. I’ve been an active person all of my life. I took physical activity almost as a drug since I don’t have much else. And now I just want myself back.
I don’t wish this any longer for any of you. Heal quick and be well soon
Hopefully you don't have CFS. If you do, exercise will just make you worse.
NurseJanet Do you mean as in extend the time that I have it? Thanks for replying. My doctor just told me to “eat well and go outside” kind of dismissing my symptoms and my family doesn’t believe me. So thank you for your response ❤️
Jonathan Suruy she never answers just puts gloom & scares people . I think she a sadist!
thank you SOOOOOO MUUUUUCH for taking the time to research and learn and help us! My family member was in the hospital almost 4 weeks, and now hitting the 4 week mark out of the hospital, with oxygen machine and wondering why he is more alert in the evening, and can't keep his eyes open in the day time! (He IS getting better, slowly. he worries about his lungs not improving, his strength not returning)
I’m so glad this is starting to be recognised. Since having mild covid in mid March I’ve been feeling overly tired and frequently getting dizzy headaches. I struggle to do normal house chores like washing up without needing to lie down afterwards. I’m lucky my sleep seems to be ok but I do often have to nap in the afternoon also! I’m usually so active so it’s been difficult for me but hopeful it will pass with rest soon.
Natalie Fairweather I too am having these symptoms . I hope we feel better soon . I will be praying for you .
I feel this way too I’m praying for both of u
How are you now ?? Did you recover and get your normal life back ??
I'm 64, got the Rona and recovered at home after a rough week of fevers and body aches. I thought I would bounce back as from a flu, but still just doing household chores and walking 50 meters down to the mailbox leaves me tired. But worse yet is the depression. I never heard of the virus affecting the mind, but in my case it has.
This is exactly how I am feeling. On wk 7 since I had a variety of covid symptoms throughout now barely have the energy now to get out of bed. After a hour out of bed I need a lie down or between very simple household tasks I need a rest. Appetite has been very poor, have had bloods and docs say they are all good. Felt better 2 wk ago and tried to return to around half of normal exercise and activity and crashed again last wk. Before this came over me I was a very active person and my decline has been rapid I’d say I’m around 10% physically 20% mentally getting. Just want to sleep all day now appetite has also been up and down too. It’s very interesting you’ve been through pvfs before and this has triggered it again
CLIFFORD MILLINGTON Yes this sounds absolutely on point. Blood tests will come back normal. This is why I had 3 GPs tell me I was fine 20 years ago before the final one looked past the bloods to say, oh, PVFS.
Look after yourself Clifford and manage how much activity you get! Good luck.
RUN-DMC are u still taking painkiller for the headaches? I’ve found taking them makes the rebound head ache worse. What is the minimum amount of activity u would look to do everyday. And how are u managing this this time around compared to 20 years ago
Oh that's unnerving to hear you have relapsed this badly after 7 weeks. I have also found that I get punished for exercising. I just went for a 30 minute walk so we'll see what tomorrow brings. I have shortness of breathe right now.
I am one of these people.... I got ill in early March and it was absolutely horrendous. I have been in and out of A&E twice during April and i am now currently on my sixth (Yes Sixth) relapse of symptoms which started again last week. (gastro pain and extreme lethargy this time) It just seems endless now, I went the entire month of May with no symptoms and was convinced i had finally beaten it, only for it to return again. It is the most bizarre illness i have ever contracted. Hopefully if/when general antibody testing takes place i can get confirmation of what has happened to me and even though it is still early days (for everyone) that someone then may be able to provide an idea of what still seems to be going on inside my body. My thoughts also go out to everyone and their families who did not survive the Pandemic and the people still dealing with the devastating impact it continues to have worldwide.
Thank you for your comment - but so sorry to hear about what you’ve been experiencing. Anecdotally we’ve been hearing about lots of negative antibody tests despite obviously having the condition - I’m going to be talking about this in my next film.
RUN-DMC Great comments and info on your channel, I have heard this in the last few days about the antibody tests, more questions than answers at the moment still aren’t there? Look forward to future updates! Thanks.
People with fatigue should spend more time outside. Fresh air and sunshine are good. People with insomnia; I advise those people to get a pet. It's calming to have a purring cat in your bedroom.
I have cats, it did not help me to sleep. It does help me not to feel alone.
U really don't no the struggle we go through for some of us 10 steps feels like a long marathon
Yes this is horrible, I have had this since April and after 7months it’s still not improving a whole lot😢 thank you for your video ❤
Hi Henry - I’ve made LOADS of films since on the subject - have a scroll through them! You might also enjoy The Long Covid Handbook 👍
Thank you for making this video! This is now two months in for me and I still have whole days in bed, completely exhausted. I also still have problems with inflammation in my bowels and liver, also lots of chest pain that the doctor thinks could be angina, plus I suddenly have asthma. I am usually fit and healthy, eat well and like to exercise. Now I struggle to walk upstairs, it is crap!
Thank god for this video. I had covid 8 weeks ago, I got pleurisy, fit like fevers, stabbing all over my body, tingling sensations and nerve pains in my body. I’ve now developed arthritis, and bad muscle pains and burning in my head. My parents don’t really believe me they think I’m going crazy but I guess I am sane. Got my spinal fluid checked, ct scans and further checks soon all are clear including normal inflammatory markers in my blood which is very strange. So hopefully this video will help me push through take care all of you :)
I have experienced the same situation and still feeling these symptoms
I just feel tired all the time since having this virus. I can't rest because I have to work.
me too its like this crap never ends!
I'm feeling 100% now, but it was horrible. I have never had panic attacks or anxiety before, it was extremely scary.
COVID is no joke
How long I took to feel better
Finally. Validation.
That’s what I’m trying to put out there!
This has been a very useful video. As I write this I am lying down resting as my entire body just hurts and I’m just very tired. I had mild Covid symptoms from about early to mid April for a couple of weeks but ever since then I’ve had bad fatigue where I can’t do a huge amount. The worst part is some days I feel fine and the next day I’m just hit with what I can describe as a wall, just extremely tired and muscle aches all over my body. It seems this can affect people of all ages seeing as I’m only 22 and it’s affecting myself and people I know in their 30’s, 40’s and 50’s.
Elliott Hall Hi Elliott - you’re not alone. The symptoms you describe are pretty much bang on. Have a look at this article on the guardian today: www.theguardian.com/world/2020/may/15/weird-hell-professor-advent-calendar-covid-19-symptoms-paul-garner
Thank you SO much for this.
Shelby Hedgecock Its a pleasure, I felt it needed to be done 👍
@@RUNDMC1 this has helped all of us. You should do a pod cast with call ins etc if time. You have helped alot of people with this.
This is the worst fatigue I’ve ever experienced. It’s horrible to not be able to function. I’m sorry to learn this isn’t unique after an active COVID infection but, it is wonderful to learn I’m not crazy and I’m not alone.